Cat @Catinmyfamily Twitter profile

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Cat

@Catinmyfamily

8 months

Please send prayers. My dad’s on day 11 of Covid. His oxygen has dropped. My kids have already seen two grandparents pass. I need him, and we need him. And 👏🏼👏🏼👏🏼 for my mom. She has masked like a champ and is Covid negative right now.

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@Catinmyfamily

3 months

It’s not a cold. Thanks to Covid, I have severe iliac vein compression and need surgery. And, thanks to Covid, I have no safe way to have surgery without risking covid again. 🫠

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@Catinmyfamily

5 months

I am covid positive again. It’s impossible to stay well in an unmitigated pandemic when you have kids, are too sick to homeschool and try to hold on to your remote job, and are (thanks to covid) immune compromised.

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@Catinmyfamily

8 months

Perhaps an unpopular opinion but anyone who says “I had long covid and recovered” and they are indoors without a mask, you did not have “my” long covid. If I ever get well enough to do things, I will damn well do all I can to avoid this again.

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@Catinmyfamily

5 months

How am I supposed to recover from LC with unmitigated Covid spread? We hired a nanny to reduce the risk from aftercare (where classes are mixed). The nanny tested pos today and was at our house for 6 hours yesterday. Please send prayers we don’t get Covid.

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@Catinmyfamily

8 months

@doctor_zeest My kids’ school policy is more rigid for lice than for Covid.

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@Catinmyfamily

7 months

I tested pos for Covid this am. I feel a bit hot, with mild sore throat and aches, and a bit tired (not as bad as a PEM day). I’m doing nasal rinses, supplements, and gargling. Should I get Pax? I am nervous I’m not mounting much of a response. I am immune compromised.

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@Catinmyfamily

6 months

@MalakaGharib What an offensive story! Substitute long covid for skin cancer & replace “going out” with laying in the sun & see how it reads. Your husband is not anxious. He has adapted; you have not. He is right that more covid could seriously hurt him (and you & your child for that matter).

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@Catinmyfamily

4 months

My spouse informed me he wasn’t wearing a mask as we entered our son’s year-end school event. So, my sons and I sat with masks on while my husband and parents didn’t. Air quality in 1600s. I am so mad and hurt. I am immune compromised and have long covid.

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@Catinmyfamily

8 months

So, we have round 2 of covid in our house since Dec. My husband got it both times. This time is much worse than 3 weeks ago. One child tested pos each round. My 3m aura is my guardian angel. No childcare. I have long covid. Send energy vibes.

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@Catinmyfamily

8 months

Since LC, my tongue has a white film on it. It’s not yeast (I’ve tried lots of yeast treatments and they have done nothing). Has anyone had a white film and gotten rid of it? If so, what worked? I’m trying those blis lozenges now. I have also tried salt water and cpc.

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@Catinmyfamily

1 year

Just got my #microclot results back - headed to #TT soon… 4 out of 4. Scared. If you have done triple anticoagulant therapy / please give me feedback. #pwLc #pwME #NEISvoid (feel free to RT).

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@Catinmyfamily

4 months

A family member was diagnosed with long Covid (never vaxxed for the anti vax tribe). We have been texting. He appears to have ME. His doctors have been telling him he just needs to exercise more. He used to bike ride 85 miles/week and now struggles to walk. I hate this virus.

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@Catinmyfamily

6 months

@ZoeMartell1 @BagTooth Totally agree with you – I had a friend that I met with outside and she wore a mask even though she wasn’t sitting nearby. She said “ I couldn’t live with myself if I hurt you.”

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@Catinmyfamily

1 year

In the past 24 hours, our #LongCovid community has lost one person to death and another skated on the razor’s edge. Long Covid is real, awful, and treatments need to be fast tracked. We also need #masksinhealthcare #CleanAir and better vaccines.

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@Catinmyfamily

1 year

@amyheckman A mom told me once that she was thrilled her daughter opted not to go to college because it just wasn’t needed when her husband should card for her and her family. 🤯 but what about early widowhood or infidelity or disability…

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@Catinmyfamily

6 months

I am so fucking tired of being sick and not being able go manage even 1/3 of what a normal healthy person can. And I am not severe. We need #longcovid and #MECFS treatments now.

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@Catinmyfamily

5 months

@alexandrite113 I just want to say I totally understand not fighting once you’re there. It’s so exhausting. It should not be like this.

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@Catinmyfamily

1 year

I asked my #LongCovid doctor for more help. Only thing he offers is exercise therapy and to optimize my nutrition. Dude, that is not why I need to sleep/rest 10-16 hours a day. So frustrated. PSA: if you get long Covid there are no treatments by the medical establishment.

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@Catinmyfamily

7 months

@PleaseSavemich I have long covid. Trust me when I say oreserving your health matters. Your quality of life will ve far worse if you get long covid. Don an n95 or test everyone and see your kids/grandkids. Find a group to hike with, canoe with, be outside with. You can still do things!

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@Catinmyfamily

10 months

To all the Mamas with long Covid who busted pushed themselves to walk around part of a neighborhood with their kids: 💪🏼👊🏼

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@Catinmyfamily

1 year

@rubyslippahs It feels like dropping my children into the hunger games

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@Catinmyfamily

8 months

@RedCross @catladyactivist Also, why do you not care about your employees? Surely you don’t want them disabled? Covid has reduced my ability to work and care for myself and others by 50%.

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@Catinmyfamily

4 months

I am realizing MCAS may be causing a lot of my issues. In your experience, what issues (besides flushing and raised skin from something on your skin) are MCAS driven or contributed? #chronicillness #MCAS #pwLC #pwME

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@Catinmyfamily

9 months

@hausofhemlock Unsolicited advice: make sure your partner is in sync on what needs to happen. Mine was not, but has been more so the sicker I have gotten.

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@Catinmyfamily

1 year

I’m so, so tired of people calling my rest time “time to relax.” There is nothing remotely relaxing about your body not functionally normally and needing to rest all the time. #neisvoid #pwLC #pwME

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@Catinmyfamily

10 months

@drseanmullen My 4 and 5 yo’s wear kn95s to school every day. It’s not perfect. I also convinced the teachers to allow me to donate @cleanairkits CR filters - one to each room (2 is really needed for size but we do what we can). Awaiting delivery of units.

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@Catinmyfamily

9 months

One child tested positive this morning. Please send rays of light and prayers for no long Covid in the family (besides me) and that I don’t get it… fortunately, the child has minimal symptoms (he masks at school but we always test before seeing grandparents).

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@Catinmyfamily

1 year

@michaelmina_lab @PutrinoLab I was in the top left and got long Covid. Just a reminder that long Covid doesn’t care about viral load.

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@Catinmyfamily

2 months

@ahandvanish Blis K12 lozenges, nasal lavage with saline, and salt water mouth/throat gargle for sure. Increase vitC. Based on @Naomi_D_Harvey posts, maybe start grapeseed extract. I throw a nicotine patch on too.

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@Catinmyfamily

4 months

@TaraFotiPhD I hate the “it’s not real” view. People who care a lot about me clearly espouse this view when they say things like “I think if you could just do some yoga and eat better, you’d feel a lot better.” I’m sure I would. To do yoga, I’d have to be feeling a lot better already.

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@Catinmyfamily

8 months

I have been running our house solo since my husband has covid. I am crashing. No food delivery due to snow storm. Kids out of school all week. Low energy food and activity ideas for 4 and 5 yo’s? I can sit to do activities as long as my arms aren’t raised. #pwLC #NEISvoid #pwME

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@Catinmyfamily

5 months

@sublimepilgrim I don’t know if nicotine patches give you a burst of energy, but they do me. They are absolutely a crutch for me and not a cure, but if they help you, I would slap one on. Sending you positive vibes.

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@Catinmyfamily

8 months

@ksoosakgae I’ve been thinking someone needs to sell kits like this and also sell kits for a safer house, safer school, and supplements to take if you have Covid

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@Catinmyfamily

2 months

@karriehiggins Or having to DIY their own healthcare because they have a “novel” illness like long covid. I am not a scientist but I need to get better. It did not take long to realize that I was going to have to hack my own path in this jungle to even have a chance of improving.

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@Catinmyfamily

1 year

Thanks @PBS for being attention to the mass disabling event that is long Covid. #MaskUp #notrecovered

charlos

@loscharlos

1 year

Spoke to @PBS along with @edyong209 about how #LongCovid is hidden in plain sight — yet is the fastest growing public health crisis in the country, for which there are still zero answers for. 3+ years in, the degree of suffering & QOL is truly unfathomable.

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@Catinmyfamily

4 months

@AnciraBecky I am looking at surgery and am thibking of weiting on my limbs “please wear n95 and keep my hepa on - i am immunecompromised from covid.”

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@Catinmyfamily

11 months

@lcwithme Aren’t you in the hospital? Good grief. Maybe give them this diagnosis and treatment of MECFS guide from Mayo Clinic? (It says in there not to do graded exercise).

Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic disease often preceded by infection. There has been increased interest in ME/CFS recently because of its signific...

www.mayoclinicproceedings.org

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@Catinmyfamily

1 year

@briimii It’s so hard. I about cried when I visited a (historically Covid conscious) friend outside, and my friend donned a mask without me asking because she said “I can’t live with myself if I make you worse, and I’ve been high risk lately.”

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@Catinmyfamily

11 months

@sheblocksidiots @sadboysgotobed Usually sick people are told they need guarantors for the bills. The smart move is to not be a guarantor, but that doesn’t work with your spouse. The American healthcare system is really messed up.

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@Catinmyfamily

8 months

@goldnecklace2 @jakescottMD It’s not minimizing HIV. It’s showing the severity of SARS-Cov2.

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@Catinmyfamily

4 months

@NIHDirector Skip the exercise trials. Trial ampligen, BC007, monoclonal antibodies.

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@Catinmyfamily

10 months

@anonymousjerbs @PaulRKeeble Not when Covid destroys your immune system and makes you susceptible to everything.

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@Catinmyfamily

7 months

@LazarusLong13 I think when you have kids in school doing their best to mask and when you are doing your best to mask and you still can’t stay healthy that says a lot about the public health failure. Really should be a community effort.

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@Catinmyfamily

1 year

@HugMeredith My favorite thing about mask wearing is not having random men say “can I see that smile” or “smile girl!”

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@Catinmyfamily

7 months

@heymrsbond @MeetJess I know it would mean the world to my 4 and 5 year olds who are the sole maskers in their school.

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@Catinmyfamily

8 months

@justaneighsayer Come on. You have no idea if that coffee was procured to drink outside. But it doesn’t matter. Don’t come after the advocates!!!

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@Catinmyfamily

3 months

For those who have gained a lot of weight and have long covid 🙋🏻‍♀️- my doctor told me I needed to just eat what my body was craving because it needed easy energy to function.

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@Catinmyfamily

11 months

My son asked me to do legos with him. He had to wait 5 hours until my PEM lessened. Our set had a bench on it. He put a little woman #Lego figure on it and layed her down and said “Mommy! She’s like you.” I just want my normal life back. F* long Covid. #NEISVoid #pwME #pwLC

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@Catinmyfamily

8 months

@catladyactivist I’m sorry. We are on day 24 of someone testing positive in our house. It’s so nerve wracking.

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@Catinmyfamily

1 year

@masksplaining My spouse sent me everything he found about it being minimal for a few months. And none of it was remotely compelling to me. It was mostly stuff about how omicron didn’t result in as many deaths or hospitalizations on a percentage basis as alpha and delta.

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@Catinmyfamily

3 months

@erincandy They really help me too. They didn’t help me as much before I got more amino acids on board. I wonder if nicotine + taurine is what helps me.

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@Catinmyfamily

1 year

@LeavittAlone I was just thinking about this. My extended family is SO worked up about immigrants taking over America, a race war in America, trans rights, etc but mass shootings and Covid aren’t an issue

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@Catinmyfamily

1 year

@CDCgov @CDCDirector I was fully vaxed, got Covid and now have long Covid that is seriously disrupting my life. We have to clean the air in schools and hospitals and wear respirators in medical facilities. It’s time for you to tell the truth and lead.

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@Catinmyfamily

1 year

@DYork1979 This is why patients stop going to doctors. Useless. And cost you time and money and energy.

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@Catinmyfamily

1 year

@Salon Thanks for bringing attention to this issue. One note: Parkinson’s in 20 years isn’t the worst case scenario. I’m worried about not deteriorating farther right now. If I could have good health for 20 years / I could get my kids launched.

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@Catinmyfamily

3 months

@amylorrainelong This has happened to me too. My prop man said “i don’t rhink you are hearing her” and repeated what I said. Then, I was taken seriously.

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@Catinmyfamily

8 months

@RedCross @catladyactivist I don’t think I can donate anymore (pwLC + presumed ME), but there is zero chance I would go without fulsome Covid mitigations. I’m not going to do a selfless act and end up disabled by it.

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@Catinmyfamily

1 year

@seeksboston26mi A police officer told me to always to straight to a fire station (they are usually there - not true at police stations) and lay on the horn. The fire fighters will come out.

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@Catinmyfamily

8 months

@GalvinAlmanza @TraceyABurgess I’ve seen pictures of this from Malaysia too. We need these. Too much gatekeeping in medicine….

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@Catinmyfamily

1 year

@PaulASAP @fitterhappierAJ Death is not the only option. Disability by long Covid is more likely

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@Catinmyfamily

7 months

@ThePOTSPostman And this is raynaud’s!

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@Catinmyfamily

9 months

@fillthewhole Ffs. Last year at this time the LC clinic near me recommended GET and “optimizing your nutrition.” I had really hoped they would be doing better by now. Also, #masksinhealthcare are really the bare minimum.

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@Catinmyfamily

9 months

@alexandrite113 I see a warrior. You are beautiful in both pictures. This disease sucks.

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@Catinmyfamily

7 months

Update: can’t do paxlovid with anticoagulants per Amazon doctor I spoke with. I have all the supplements recommended by @organichemusic and am taking them. I also have TUDCA and Metformin, which are not contraindicated for me.

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@Catinmyfamily

10 months

@chydorina I’m the “can’t do brain work for more than 4-5 hours a day,” limited physical activity (can do hygiene tasks and generally take care of my kids with breaks), can’t exercise and get PEM from l mental, physical or emotional stressors type.

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@Catinmyfamily

9 months

@MchP66592467 @piersmorgan Got long Covid from omicron in June 2022. Now only able to work 40% of my norm. Can’t physically do things with my kids. Piers - we need help from people like you with clout and voice.

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@Catinmyfamily

10 months

@healingfromlc I’m sitting in my house in a n95 because I have kids in school. It’s hard. 👊🏼

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@Catinmyfamily

1 year

@chantz_y A friend of mine worked for a really misogynistic man – one perk though: he told her she could leave every day by 430 because he knew she needed to cook dinner for her husband. She gleefully left early every day but rarely cooked.

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@Catinmyfamily

4 months

@gydaarber We do bliss K-12 and my kids mask (not perfectly) at school. We have still been sick.

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@Catinmyfamily

7 months

@catladyactivist I know you know this, but I need reminders in moments like this: n95 for you, carry extras to offer to all who treat you or are near you, try to check in and then wait outside if possible, air filter blowing clean air on you, eye protection, lumify drops, cpc, xlear.

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@Catinmyfamily

10 months

@briimii An attorney friend of mine posted she had Covid right now and was shocked because it was gone she thought. The absolute dearth by public health messaging is criminal.

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@Catinmyfamily

9 months

@dysclinic I stopped when they told me to try exercise therapy (even though I get PEM) and to “optimize my nutrition”. And that was at a US long Covid clinic associated with a teaching hospital.

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@Catinmyfamily

1 year

@londonsje About 1200/mo for my family plus the $10k deductible…

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@Catinmyfamily

4 months

Has anyone taken metformin for long covid and improved?

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@Catinmyfamily

3 months

@CorAndersson 🤢 why can’t people just say I love you and am sorry you are hurting!

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@Catinmyfamily

8 months

This is definitely one of my lesser LC/ME symptoms, but my calves are almost always sore. Like I hiked a bunch. Anyone know why?

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@Catinmyfamily

1 year

@PammckC @loscharlos It’s so hard. I try to tell coworkers, too. One commented her sister still couldn’t smell since Covid a year ago. Another admitted he had fatigue issues for months after his first infection (second one didn’t produce LC for him). I have also learned about one other coworker w LC.

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@Catinmyfamily

5 months

I know some people got covid, got better, then got long covid. I am someone that got Covid, and did not got better. I have always believed in viral persistence because many of my symptoms feel like acute covid.

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@inkblue01

5 months

The virus can persist and replicate long term in tissue reservoirs, not just at autopsy. This includes in the brain, GI tract and the lung, possibly for months even years. We need to develop new antivirals. NIH Director Bertagnolli MD #LongCovid #ViralPersistence 👇

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@Catinmyfamily

1 year

@Yash25571056 Wut? That sounds so concerning if fever is no longer a main symptom. It’s like it’s trained our body not to kill it.

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@Catinmyfamily

4 months

Family member asked me what if I just stopped trialing potential treatments? They said all the cells in the human body turn over ~every six months so with time I may just spontaneously recover. Well, it’s been nearly two years, so ummmm….

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@Catinmyfamily

5 months

I have been diagnosed with compression of iliac vein. Stent proposed. How come the surgical team didn’t suggest metal testing? Why was that my idea? Posting in case it helps someone else - no one should have vascular surgery & then learn they are allergic to the hardware IMO.

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@Catinmyfamily

9 months

@harkshetweets We got to a private school. I would pay double tuition for masks on all kids and teachers. My kids are the sole maskers and bring home a fair bit of sickness. With LC, working is super hard - wish I could homeschool on top…

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@Catinmyfamily

6 months

Today I realized I need to resign from something I like and enjoy due to long covid. 20 months in, $10k+ in treatment attempts, and I am still losing parts of my life.

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@Catinmyfamily

8 months

@Gmwetz Comfort to you, Etz. I have appreciated your voice as I’ve gone through things. I am rooting for you to get better. Sometimes it helps me to think that SI is a side effect of brain inflammation. I’m not 100% sure on the science of it, but the idea is a bit comforting to me.

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@Catinmyfamily

1 year

@haziethompson I quietly support efforts (fund things/people, push for cleaner air, and write legislators). I’m the primary support for my family of 4. Without me, we lose health insurance and 2/3 of our income. If it was just about me, I would be more public. It is so hard on all sides.

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@Catinmyfamily

1 year

@I_need_a_razor I’ve talked with coworkers about my issues and learned there are a lot of people with “mild” long Covid. Like, they can work 8 hours but they used to bike ride 50 miles on the weekend and can’t do that anymore. Or they can’t taste foods very well anymore, etc.

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@Catinmyfamily

1 year

@sublimepilgrim I feel you. I told my husband we really need to sit down and go over things in case I die. I have a 4 yo and a 5 yo. I’m trying to get well.

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@Catinmyfamily

7 months

@LazarusLong13 FWIW – I wore an aura when I went out this week and I have Covid right now. I went to an acupuncturist (she had a Kf94 on), to get labs, and to my office for three hours (where I met with five different people in one on one interactions). I have (masked) kids in school so 🤷🏻‍♀️

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@Catinmyfamily

1 year

@Iamjacksdisgust Solidarity. I’m the lone always masker in my house. I have long Covid.

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@Catinmyfamily

1 year

@DXvi79 It feels like we Covid conscious people married folks who are not

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@Catinmyfamily

8 months

@ChrisCuomo We definitely need treatment. I don’t care much about origin.

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@Catinmyfamily

7 months

@HollyHK_UTA @CDCgov Some Quest employees I talked to said that they always know someone has long Covid when they have an order for around 30 labs…

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@Catinmyfamily

9 months

@ErinAPN1 I’m so sorry. I have long covid and would happily get substantially worse in severity if it meant by sons could live life without ever having to worry about LC. Strength to you. And prayers for healing for her and treatment for all of us.

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@Catinmyfamily

5 months

@salamasinamusic Sounds right. I have family members worried about civil war in the US but not at all concerned about h5n1 or long covid despite one person almost dying from covid in december 2023 and another in November 2020. And I have long covid.

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@Catinmyfamily

5 months

One of the awful things about long Covid and ME is having to convince people you are actually sick and it’s not made up and you are not deconditioned.

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@Catinmyfamily

1 year

@joespfeifer @MrkStdngr The key thing is if your religion doesn’t interfere with me, it’s fine. And that’s not true with Covid. Public health can’t be “you do you.” Lone masking doesn’t work nearly as well. Lone religion can work just fine.

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@Catinmyfamily

1 year

@RealGayArbys I have a sign on my door that masks are required. I do require them. I’m not “rich” but I’m also not interested in a second infection. I’m already dealing with long haul as it is.

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@Catinmyfamily

1 year

@luckytran We dropping hand washing and autoclaves now ? What’s next?

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@Catinmyfamily

4 months

@roxy_mojo That sounds magical

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