Seeking Boston Marathon @seeksboston26mi Twitter profile | Pikagi

Pikagi

Seeking Boston Marathon

@seeksboston26mi

6,970

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Following

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5x Boston Marathoner battling #LongCovid & stage IV cancer.

Denver, CO

https://t.co/4puL4TlqBy

Joined September 2009

Don't wanna be here? Send us removal request.

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

In case you've run out of things to watch on @netflix , here's the "baker's dozen" of top 12 Seeking Boston #longcovid Digital shorts in a🧵starting w/ a holiday favorite; "Long Covid Actually" starring Keira Knightly & awkward me on her front porch #pwLC

@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

2 years

Not much to love about #longcovid , but I'd love to not have it anymore. The latest digital short from Seeking Boston. (spoof on #LoveActually ) #pwLC #CovidIsNotOver #teamclots

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

2 years

Can we just stop using the term #brainfog and call it what it is. Brain damage. I can see my cognitive decline happen before my very eyes. #longcovid is devastating. #treatlongcovid #disabilityreform #fblc

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

@RonFilipkowski Please, please, please, go to Florida.

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

9 months

🧵1/ My longest break from X as candidly I've been broken. I have been dealing with a new diagnosis of aggressive cancer that's metastasized. You can understand, I needed a break to focus on this news and my family which is far more important than a tweet.

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

7 months

Rest in peace Jeff. Family friend caught Covid three times and died this last week. Doctors could not figure out what was wrong but had what was viewed as "rapid dementia" at age 60. Talented painter, loving father. Four years in and we still don't know how to treat #LongCovid

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

2 years

This is the smile of a man who has lived in five homes over ten months due to financial disruption of #longcovid ...who is back in his own home. If I wasnt so tired, I might cry tears of joy. Thx in part to my mom's estate proceeds I'm home. #pwLC

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

6 months

Shame on @guardian for publishing this trash now the day of int'l #LongCovidAwarenessDay Can Dr Gerrard then explain why I have blood clots, neuropathy, mitochondria & endothelial damage, & a broken immune system that lead to cancer? @natasha__may @GuardianAus H /T @DavidJoffe64

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

Three and a half years into Covid and many doctors in America don't know a thing about #LongCovid . My neurologist moved out of state and I met his replacement. He talked about GET (graded exercise therapy) and questioned if I had depression. Sadly I'm at the acceptance phase, but

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

11 months

Had a close relative reach out and I told her I was in Boston for a brain study (she was unaware.) Her reply was, "enjoy the cannoli's & lobster rolls." Am I wrong or is that a bit of an odd response? I don't need a vigil but perhaps, oh my God, what for, are you okay? #tonedeaf

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

8 months

Today is four years. 1461 Days since I first started feeling sick. I now have neuropathy, vasculitis, cognitive damage, endothelial damage, mitochondria damage, and with a broken immune system, I now have stage IV cancer. #longcovid #FAFO #cancersucks #CovidIsNotOver

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

@DougBillings Are you really playing the "women are asking for it" card? Unreal. You clearly don't have daughters.

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

@celinegounder Stop. Quit broadcasting falsehoods about pre-existing comorbidities leading to #LongCovid I wasn't; A woman Obese Smoker I Didn't have; Asthma Heart disease Diabetes Depression I was; A runner Triathlete Fit, healthy Type A Full of life I'm now disabled with #LongCovid #pwLC

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

5 years

My kids were in the car near the Columbine shooting & heard shots. My High School (Arapahoe High School) had a school shooting. My son went to the STEM school in Highlands Ranch. I don't want "too soon" or your fucking thoughts & prayers. I want legislative action! #stemshooting

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

4 months

Attended Celebration of Life yesterday of family friend and artist. Jeff had Covid a "number of times" followed by sleeping and neurological issues that regressed him to a child. He couldn't work. He'd hold brushes no longer able to paint. Tragically took his own life #LongCovid

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

2 years

I ran a 1:29 half marathon to qualify for the @nycmarathon in '16. This last month my @MayoClinic doc essentially called my #LongCovid situation permanent. I haven't raced in 3 yrs. Trying to remain positive. I could use some help from the twitterverse to help with that #fblc

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

2 years

Not much to love about #longcovid , but I'd love to not have it anymore. The latest digital short from Seeking Boston. (spoof on #LoveActually ) #pwLC #CovidIsNotOver #teamclots

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

3 years

#LongCovid can have a financial impact that's equal to the deterioration of the body. Moved today in preparation for renting out our home to weather the impact of loss of work, and being on disability. Trying to view as an adventure. #fblc

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

New profile pic. #longcovid #brandongilles

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

"Long Covid Ken" was disappointed he didn't make it into the #BarbieMovie as he couldn't keep up with all the dancing, surfing, carousing, and all that "Kenergy." Subseqently, the "Kronic Ken" doll not released and inventory was donated to charity. #longcovid #covidisnotover

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

2 years

Doctor appointment number 207? Easily north of $200k in #LongCovid medical expenses overall. Roughly $35k out-of-pocket this year. Long Covid ain't cheap. #pwLC #teamclots

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

9 months

🧵4/ Not ironic that last week @FortuneMagazine had an article hypothesizing the link between Long Covid and Cancer. Not ironic, my oncologist tells me that a broken immune system is a likely contributor to cancer. @VirusesImmunity @cbarbermd

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Inside long COVID’s war on the body: Researchers are trying to find out whether the virus has the...

'There’s not great evidence to support SARS-CoV-2 being an oncogenic virus–but this virus has surprised us over and over.'

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

@ModelAyshaMirza @kevinnbass He initially liked this photo I posted...then he saw the fine print and blocked me.

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

2 years

@SaraAna66550269 We have anxiety and depression because we are sick. Not the other way around.

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

Being disabled from #longcovid is tough enough, but more difficult when we are questioned about the validity of our damning symptoms or Covid itself. Some gaslight, deflect, minimize. These are super villains. Meanwhile in Gotham City, heroes working on solutions. #KSLongCoVID24

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

2 years

For my #longcovid friends who are without insurance or struggling financially in the US. @costplusdrugs provides Rx at a fraction of the cost. My COBRA insurance would not refill a Rx and local pharmacy wanted close to $500. CPD filled for $50. #pwLC

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

2 years

The #LongCovid video that California Dept of Public Health should have made. NOT "Test It, Treat It, You Can Beat It," but "Ignore It, Get It, You'll Regret It." Reminder: March is #LongCovidAwarenessMonth #pwLC #FBLC . Thanks to @D_Bone for add'l video. #CovidIsNotOver

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

Sign of the apocalypse. Sister-in-law who has Long Covid had her whole house incl three kids get a round of Covid--child got it from school. Once better she takes them back to school masked & a "Karen" (unmasked) gets right in her face telling her she tested positive last night

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

6 months

I've dealt w/ my share of pain in my life; racing the Chicago Marathon on a stress fracture. Four broken ribs & collapsed lung in a triathlon bike crash that landed me in the hospital for 11 days. Bone cancer is a whole new pain. Chemo starts tomorrow. See ya on the other side

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

5 months

With everything going on in life;the future uncertain except my tenancy in fighting the battle inside my body, I successfully pulled off the surprise of the century. w/the help daughter @anna_nicole_god we had a surprise wedding vow renewal yest for Mrs SBM. God I love this woman

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

2 years

The Joe Rogan of medical podcasters, @VPrasadMDMPH (aka Dr. Seuss, aka #saunastalker , aka #goatkiller ) teased us last month about his book about a Bear navigating life in a #COVID19 world. I was able to get an advance copy of his audio book. #longcovid #pwLC Listen and enjoy 1/🧵

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

7 months

In the middle of a lot of ugliness in the Long Covid disability space this week, the very special one half of the @TheReSisters2 sent a care package from up North 🇨🇦 with a very kind note. Many don't know what to say to someone faced with Cancer but you found the right words. 🫂

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

7 months

My first digital short since my cancer diagnosis. @SenSanders inspired me with the #HELPLongCovid hearing yesterday. "Goodnight Long Covid Moon." Massive #LongCovid investment and Social Security reform is needed. #covidisnotover @SenMarkey @Hickenlooper @timkaine #Disability

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

2 years

@DiaryofaSickGrl worst one is "you don't look sick."

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

4 months

Before you throw "fear tactics" at me. This is my reality. @AcrossTheMersey shared @KFF article showing a steady 7% of adults have #LongCovid which can lead to; Vasculitis, neuropathy, mitochondria/endothelial damage, lung/brain/heart issues, blood clots & in my case cancer

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

2 years

Holy shit. I guess I failed the cognitive test. Just received notice I was awarded @SocialSecurity disability. Feel like crying for the wrong reasons. Never thought I'd be disabled. #LongCovid #pwLC

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

4 months

1/ Elderly couple in their 70's in our family circle both got Covid. A week later dad is tired & mowing the lawn. Mom still coughing & not feeling well. Family doctor's encouraging her to exercise so she can feel better. My wife reiterates this is how we believe I got #LongCovid

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

8 months

Oncology appt yesterday. There is still hope despite stage IV cancer and chemo ahead. #longcovid ravages lives. Kindly RT and contribute to my @PandemicPatient fund raise to help others.

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

2 years

Crying. Finally sold my #Triathon bike. Needed the money and haven't been able to ride for years now. #longcovid guts you.

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

9 months

🧵6/ I debated never coming back here for all of the above reasons, but feel my story still needs to be told--especially now. My wife (who has been amazing) & I will monitor & avoid debates about my advocacy. I hope to draw strength as I had before. If it drains me, I can't stay

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

9 months

🧵7/ Other reason for showing up today is #givingtuesday . @PandemicPatient provides legal assistance to those w/ Long Covid trying to get disability. I can't imagine managing my medical bills without having social security disability. Please consider & RT

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Donate to Ty Godwin's Fundraiser for I'm a #pandemicpatient by Pandemic Patients

Some people develop disabling long-term health issues following a COVID-19 infection. Referred to as “long COVID,” this disease has affected millions of adults in the United States. Some long COVID...

secure.givelively.org

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

2 months

Love your content @mmpadellan Can I get a RT on the eve of my 6th round of chemo? My oncologist theorizes that my #LongCovid very likely caused or accelerated my Stage IV cancer. You know, that virus that chubby Cheeto said would be gone by Easter or could be eliminated by bleach

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

@RonFilipkowski I thought Leona Helmsley died?

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

9 months

🧵end. I still need time to process this and ask that you understand that I can't answer all the questions you might have unless it's coming from someone in research. Thanks to those that have supported me here.

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

i got my social security disability back pay. i'm numb. never thought i'd be here. somewhat humiliated by it. does not help to be gaslit by people thinking it's in my head. I have 200+ dr appts, bloodwork, experts & biomarkers, & SSDI saying #longcovid is real. a real nightmare

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

8 months

First time for everything. I cried then my Dr did in my morning appointment. Not ready to give up. #LongCovid #cancer

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

9 months

5/🧵Not ironic that my immune system has been broken for years now due to the ravages of Long Covid. Inflammation is also present and a likely contributor.

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

9 months

🧵2/ Somewhere recently this platform lost it's purpose for me as my advocacy for Long Covid Doctors, organizations, and legislation came under attack & became ugly with personal attacks. Again, you may understand why I left here.

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

Wow. If the U.S. follows suit from the U.K. @NHSuk won't let you donate blood if you have #LongCovid How will the naysayers and gaslighters explain it's "all in your head." Would @nataliesurely @manvsbrain @slate finally retract? cc: @ahandvanish @JoshuaPribanic @morgfair

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

Today's unethical garbage journalism goes to @neiljshaw We aren't lazy. We are chronically ill. I was a marathon runner and type A sales exec. Not lazy. #longcovid #ableism @WalesOnline

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

The latest #longcovid digital short from Seeking Boston. "Long Covid Jeopardy" No. Long Covid is NOT a game and yes, #covidisnotover #pwlc #fblc #parody Rated TVMA.

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

8 months

Post oncology appointment dog therapy. #cancersucks #LongCovid #dogsoftwitter

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

2 years

It was a crawl back in bed day. But Social Security thinks I can still work. Who offers six figure jobs with naps and 3 days off each week with two hr workdays. Waiting... #longcovid #pwLC

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

To use a sports term, going on a bit of offense and defense. Selling a car and tougher decision to sell our 80 yr old Tudor. I can't begin to manage the maintenance of our home and will look for a townhome. #longcovid life.

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

Had great input from the #longcovid community on Heroes of Long Covid (sequel to Villains.)There could have been a dozen or more. Some may not agree on the list. What we should agree on is that we need doctors, professors, research & activists pushing for solutions. Not villains

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

6 months

Weak one in the books. Five more rounds of chemo to go. Progress. #LongCovid #Cancer #LongCovidAwareness

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

6 months

Drip has begun...

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Seeking Boston Marathon

@seeksboston26mi

2 years

Irony is that I used to push a disabled young man in races. Now I'm on disability. #LongCovid #irony

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

RT Yesterday a guy followed us to Target & back for grocery pickup. My wife realized on the way home. She made 7 random turns (park & alleys) & he continued to follow. Eventually got behind him & pulled in our drive then he circled the block when we captured him on video #Denver

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

Weekend mood. #longcovid

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Seeking Boston Marathon

@seeksboston26mi

1 year

Another spineless supposed Dr. that throws out a ton of misinformation, rails on the disabled then blocks you if you call him out on it. Why do we have docs that make it their mission to minimize #longcovid ? (ie "Angry Bear,") This moron actually bought into Netflix pilot article

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

7 months

This time around, no parody or jokes about "Vinay the Angry Conspiracy Bear." I finally put words around my new battle with stage IV cancer; yet another chapter in my #longcovid life. Trust me; you don't want to get on this ride. #cancer #covidisnotover

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Seeking Boston Marathon

@seeksboston26mi

2 years

@MrkStdngr I'd have to dig it up but in the U.S. the highest per capita people w/ #LongCovid are Red (conservative) States. Inversely, lowest per capita are pro-science blue States. Some of that is also "poor" States w/ correlated poor health care, but largely States that dismissed dangers

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

9 months

🧵3/ My run blog (& X) turned into a platform of awareness & advocacy dating back to my 1st interview w/ @tomcostellonbc on @NBCNightlyNews in 2020. I felt my story needed to be shared. I've tried to lighten the topic or chronicle my journey w/ my art & videos for nearly 4 yrs

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Seeking Boston Marathon

@seeksboston26mi

4 months

ER visit Tues. Antibiotics to avoid worsening lungs. Respite weekend. Using wheelchair. Weak. Tired. Chemo #4 Thurs.

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Seeking Boston Marathon

@seeksboston26mi

6 months

Definition of Long Covid cognitive issues. Staring at an Rx bottle thinking you took your pill but not sure so you take (either the) first (or repeat) of a pill at breakfast.

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

2 years

Thanks to @TheExtraFiles and everyone else in the Long COVID community for putting together International Long COVID Awareness month in March & International Long COVID Awareness Day March 15, 2023. #longcovid #pwLC #fblc #CovidIsNotOver

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Seeking Boston Marathon

@seeksboston26mi

1 year

@ICS_updates @NurseRosieCJ @EleanorDamm @ICUdocX @HeatherBaid @dr_cathy_lawson @BACCNUK @IPS_Infection @UKHealthClimate @SusHealthcare @credland_nicki Is this parody?

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Seeking Boston Marathon

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11 months

Powerful interview w/ @VirusesImmunity @YaleMed on hypothesis of Long Covid; 1) Viral Persistence 2) Autoimmunity 3) Re-activation of viruses (ie EBV) 4) Dysregulation of tissue function by Inflammation @davidtuller1

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Seeking Boston Marathon

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1 year

@RonFilipkowski In college it would be a crime to spill a single beer. Such a waste. Maybe they should switch to Coors? Um wait...

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Seeking Boston Marathon

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5 months

Reminder not to look directly into the #EclipseSolar2024 without protective glasses or it will scramble your brain.

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

Ten years ago I ran the best @bostonmarathon of my life. I thought I would return year after year. Trying to get back and overcome 3 yrs of #longcovid so the unicorn is still part of my rehab motivation. Best of luck to those running the #bostonmarathon on Monday. Cherish it.

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Seeking Boston Marathon

@seeksboston26mi

1 year

Day One of Triple Therapy. Gulp. I have tried everything. Needed to try something to break the cycle. #longcovid

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Seeking Boston Marathon

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1 year

Woke up & needed kitchen bags & @Ziploc freezer bags. My mom who passed away last year would stock up on such items so I grabbed from her plentiful supply I stored in my basement. Had a good cry. Physically & mentally worn out from #LongCovidAwarenessDay . Taking a day or two

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Seeking Boston Marathon

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5 months

Drip, drip, drip... #LongCovid #Cancer #chemo

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Seeking Boston Marathon

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4 months

Pneumonia, long Covid and chemo is a cruel combo. Hoping tomorrow is better. Gnite.

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Seeking Boston Marathon

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1 year

Ive read this tweet a few times & I don't know how to understand or describe it other than despicable & unethical behavior for a supposed medical professional. Shame on you @UCSF for allowing this bullying & ableism to exist. Cant imagine anyone going to this school #longcovid

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

6 years

@CrawfordKacee I count three

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Seeking Boston Marathon

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10 months

Liam still in ICU. Continue to send healing vibes, thoughts, rabbits feet, prayers.

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Seeking Boston Marathon

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1 year

@loscharlos @UCSF "I don't see how mild disease is causing longer symptoms?" How are these people considered medical professionals? Many (including me) had mild onset and still sick three years later. #smh

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Seeking Boston Marathon

@seeksboston26mi

2 years

Back by popular demand. #LongCovid #meantweets second edition. Thanks to @D_Bone & a few others for contributions. Don't gaslight. We are real people whose lives are devastated by Long Covid. Thanks to @JimmyKimmelLive @remhq for the parody inspiration and tune #pwLC #FBLC

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

Say it ain't so Joe. @D_Bone

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

5 months

From the bottom of my damaged body and broken heart, thank you @SenSanders for being a champion in govt. for #longcovid & commitment to the $10B Long Covid Moonshot @LCMoonshot @timkaine @RepPressley @LisaAMcCorkell @patientled @PandemicPatient @MichaelPelusoMD @PlzSolveCFS

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

Happy birthday to Boston Happy birthday to me Oh is that Microclots I see? (in my email this morning. Not the bday gift I wanted.) #teamclots Also got my mitochondria test results back this week showing damage. Covid? The gift that keeps on giving #longcovid @dbkell @RTHM_Health

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

2 years

March is International Long COVID Awareness month & International Long COVID Awareness Day is March 15, 2023. #longcovid #LongCovidAwarenessDay #pwLC #fblc #CovidIsNotOver (vertical social video link in comments)

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

5 months

Good for the soul. Seeing my daughter for her birthday.

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

2 years

One last goodbye for my mom. She loved Ocean Beach and spent half her time there the last chapter of her life with her sister--my favorite aunt. Love you Mom. #sandiego

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

My latest #longcovid digital short. Despite #POTUS saying #covid is over, #CovidIsNotOver . If you get "the vid," you have a 20+% chance of getting #longcovid . Trust me, it's a nightmare, or "Day of the Living Dead" #pwLC #longcovidawareness @Alyssa_Milano @morgfair @lenadunham

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

As far as depression, I feel I've managed it as well as one could expect. I've added Neurofeedback therapy on top of other methods to manage the mental aspects of #LongCovid . Does not mean I don't have down mental days. Medical field can do better. #CovidIsNotOver #pwLC

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

6 months

Nothing fake about #LongCovid . It's actually a royal mess. Friday is #longcovidawarenessday

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

had a delayed reaction to those two points of my long appointment. The last GET program I was in, thankfully the PT stopped the therapy as she saw the damage before her eyes. (cont.)

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

We all too often (myself included) point out the wrong or the "bad" Dr or gaslighting professional. Then there's @aftab_usa #LongCovid is very real and the only thing that's "in our heads" is brain damage.

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

6 months

Then and now. Training for my next race pre-Covid in San Diego. Diagnosed with immune deficiency, and stage IV cancer 2024 and managing #LongCovid . #LongCovidAwareness

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

@VirusesImmunity @resiapretorius We are fortunate to have Twitter access to professionals trying to affect change for #LongCovid . Me? 43 months of LC and now have microclots confirmed. We are running out of time. Keep up the great work.

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116

@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

2 months

Twelve hours of sleep. LC + recovering from chemo = tired. (Boo Radley in the foreground) photo credit: Mrs SBM @PhronsieStute

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

4 months

Doctors had no answer or explanations. Jeff leaves behind a wife and four adult children. Covid is not the common cold or flu. It can lead to devastating outcomes. #LongCovid

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

The devil came down to (Colorado) Georgia. Mrs SBM got the vid. Shit.

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

Today is #LongCovidAwarenessDay . #longcovid can steal much of what you used to identify yourself as. I used to love karaoke with my wife after a dinner date. I loved racing with Liam. Protect, invest, reform. #LongCovidAwareness #LongCovidAwarenessMonth

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

1 year

@elisaperego78 Chest pain is not vague. Brain inflammation is not vague. Cranial instability is not vague. Neuropathy is not vague. Disability is not vague. Unemployed due to disability is not vague. Fear of mortality is not vague. Lives destroyed is not vague. #LongCovid #CovidIsNotOver

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@seeksboston26mi

Seeking Boston Marathon

@seeksboston26mi

6 months

Since the great @iamjohnoliver has not covered #LongCovid on @LastWeekTonight , I've taken the liberty of covering it for him in the 20th installment of and Man in the Robe Productions Parody video. #LastWeekTonight #JohnOliver

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