@DanWuori
Dan, I adore you. With everything going on in the world right now, it's a wonderful break to see your posts that are just pure joy. Thank you for being you. 💞🥰
I hate to rip the bandaid off for anyone, but the government is not going to give any special treatment to people with Long COVID.
They’re just going to treat y’all like the rest of us—as in waiting for us to die off.
The very 1st policy w/ COVID was protecting business, so…
After being on methadone to treat pain for 19 YEARS, these mfers are denying me coverage. Because of stupid BS that has nothing to do with my pain. Addiction/overdose? I'm taking as prescribed = perfectly safe. All these requirements have been met. WTF?!
@1goodtern
I've started to question whether I'm just crazy. I hate that. NO ONE in my life masks anymore. No one takes it seriously. Not my doc, not my 83-yr-old MIL, no one. No one is testing, nothing is being blamed on covid (it's lockdowns or vaccines). This is really hard.
I had to euthanize my dog, Gunner. I tried so desperately to save him - but I couldn't. I'm devastated. This is what happens when a-holes breed pitties indiscriminately with no concern for their well-being. I don't want to talk about it - but I had to tell you guys. 💔😭😭😭😭💔
92 year old woman broke her sternum, 2 ribs and arm and they gave gaba-fucking-pentin, a nerve pain medicine. Uh .... who tf are graduating out of medical school lately? Sadists only?
@Misfittoy77
:
@Claudia
A. Merandi my Granma fell & fractured her sternum,2 ribs & arm. She’s 92, in massive pain, & all the hospital will give her is Gabapentin”
Claudia A. Merandi's video!
#TikTok
My pain therapist tried to tell me that if I just get off the opioids for one year, I'll realize that I didn't really need them. I said, that's not what I hear. He said he has quite a few people who've been better once off meds for a year. I said I'd love to hear from them. Well?
After 19 years of being on methadone to help control my pain, I was denied coverage by Wellcare and have to appeal their decision. They throw out a bunch of word salad about not meeting requirements. Uh, it's always been approved for almost 20 years. What changed? Wish me luck.
EVERY single month now, my prescriptions are filled late and I through withdrawal until I get it filled. EVERY FUCKING MONTH NOW.
I don't understand how my life can mean so little.
@MColetteK
Throwing people into withdrawal every month or two should be criminal, instead it’s policy.
Drs will never return to prescribing opioids. The stigma is set too deep. It was never an Rx problem, but CDC made it one.
People are dying in pain. Repeal the Controlled Substances Act.
#ChronicPain
is trending b cuz pain patients are being left for dead. I know b cuz I am one of them. I ask my doc what to do when the meds they give me not only don't work but are causing me early onset dementia and ruining my teeth. They literally told me they DON'T KNOW. wtf?
@Squijibo
I think one of the most disrespectful things you can do is show up sick anywhere - but the doctor's office! It's been a lifelong pet peeve of mine.
@hillygirl1939
I have severe claustrophobia and have had literal panic attacks wearing a mask. But I wear it anyway - because it's the right thing to do. If I can wear a mask, anyone can wear a mask.
I knew it! I knew that the people who make it impossible for us to get our meds can get whatever meds they need - or even just for fun! I'm apoplectic. 🤬
The White House has a pharmacy – and it was a mess, a new investigation found via
@YahooNews
Oh joy! January is here and that means I have to pay cash for my pain meds or wait a week or two for them to 'maybe' get the insurance preauthorization done. What's $400 when you get a whopping $1000 a month to survive on? I f'kn hate this BS. 🤬
I love my dr. She apologized for the way I was treated and promised she's not going to send me to a pain clinic or take my meds away from me. She does want me to start taking my seroquel again, just to see. It never worked b4, but I will do it for her. We're also going to do ...
HOLY SHIT! A sheriff deputy just called me b cuz I left a message at my rep's office asking how to relieve the unbearable sciatic nerve pain. Should I go to the street, the bottle, or suicide? They thought I was going to harm myself. I'm looking for a solution!
@CMerandi
OMFG! Pain management should NEVER tell you to chew gum in response to pain, unless you want to fracture your teeth and blow out your TMJ. I'm speaking from experience, as I just learned I need thousands of $ of dental work this week. From clenching my jaw in response to pain!!
@StefanKertesz
Dr. Noah Nesin, Chief Medical Officer for PCHC says, "These drugs have very significant risks associated with them, no evidence of benefits for any cause of chronic pain and for the common reasons that they're prescribed there's good evidence that they don't work".
LIES!
I tried Kratom for the first time. I think it might be helping a little bit. But I really don't understand why they would make this illegal. I've done A LOT of drugs - and this ain't it.
@Ramyisback
Documentation is SO important. Also, having a doctor that's willing to go to bat for you. Initially, my doc said she couldn't say I'm permanently disabled. After being with her for 10 years she says she'll do whatever is needed to keep me on disability. I'm really fortunate.
Instead of admitting we have a lot more disabled people now that covid is making the rounds, they want to make it harder to be considered 'disabled'. This is bad, folks.
#Disability
rates have skyrocketed in the United States in the wake of
#COVID
, with infection-associated chronic illnesses like
#MECFS
,
#POTS
, &
#MCAS
surging. US Census figures currently report that 14% of Americans are now disabled. (1/7) 🧵
#ChronicPain
My doctor's office just told me they see no end in sight for difficulties in prescribing pain medication. NO END IN SIGHT.
@DEAHQ
Is your plan to kill off CPPs?
@nomad_flounce
@Very__Regular
Too bad Biden isn't onboard with expanding the court. THAT is what needs to be done. It's sad that the Repubs will do what needs to be done to advance their agenda, no matter what, while Dems have one excuse after the next for why they can't do anything to fix it.
YES! Leaving someone for dead, when relief is right there, should be a crime. When someone says, "I can't live like this", and you do nothing??? How do you live with yourself?
Good news, y'all. The appeal worked and I got my meds covered. At least for this year. They're making it harder and harder and harder to get relief. So much suffering in their wake. 😰
The fall tour of Painless: The Opioid Musical starts today! University of Michigan School of Music, Theatre, and Dance students will be touring to high schools across the community to share this story!
Learn more about Painless here:
#open
#painless
With suicides at record levels, along with the overdoses. Hey anti-opioid zealots, your plans don't seem to be working. Oh, you think it hasn't gone far enough? You want to double down on failure. We can expect the same results, and YOU will be responsible.
Most in politics are still pushing
#TheGreatOpioidLie
.
Media continues to mainline opioid PROPaganda to the masses & deadly prescribing policies/practices have metastasized in every state of the nation.
Meanwhile
#overdose
deaths continue unabated.
#PainCareCrisis
#ChronicPain
@anonymouspharmd
Of course. But for many of us, opioids allow us to move and take care of ourselves in a way we wouldn't be able to otherwise. It does mask the pain enough that I can get up and go for a walk and do my PT. Otherwise, I'm in bed.
@LauraMiers
OMG - totally! I get the weirdest side-eye from people when I try to explain what's going on. It sounds like a conspiracy theory - but it's real life. As I say all the time, I appreciate you SO much, Laura. 🙏
@sarahGad2024
@ibdgirl76
What does this mean? You were "in so much pain the doctors overprescribed opioids"? I hate to tell you, but YOU are responsible for YOUR addiction, not the doctors. When you blame them, I can't get my pain treated adequately be cuz the docs are terrified of being arrested.
Reading the comments breaks my heart. These are real people's lives being destroyed simply because they are being refused adequate pain care. And no one in any place of power seems to give af. 🤬
How long can one live when they only go from the heating pad on their bed to the heating pad on their recliner? Inquiring minds want to know. What bothers me the most is how easily severe pain can be safely treated with
#PainMedications
#OpioidHysteriaKills
We need to get the DEA out of our doctors' offices. They've turned medical 'care' into medical 'enforcement'. No wonder we have both record suicides and overdoses! HELLO! 🤨
The
#DEA
should be assigned the task of controlling illegal drugs because that is what is killing the vast majority of those who die from drug use.
Instead the
#DEA
is attempting to control Legal
#OpioidRxs
as if they are ILLEGAL drugs which will kill many times more than those
#ChronicPain
@DEAHQ
@Sen_JoeManchin
"The greatest increases were seen in middle-aged and older adults."
You don't say? How many had to die to find relief from severe pain?
Nearly 50,000 Americans died by suicide in 2022, a record-high number: CDC
The doctor/patient relationship has been destroyed. If you admit a history of addiction, you
will be discriminated against. Once they became medical 'enforcement' rather than medical 'care' we can no longer be fully honest with them. Not good.
First call of the day comes from a frantic wife whose husband has been taken to the ER.
MD refuses to treat kidney stone pain due to history of addx
Claudia A. Merandi's video!
#TikTok
@Imani_Barbarin
Toxic positivity is deadly. Imani is being honest and speaking truth. We need to move forward in truth, not delusion. Oh, and what hope?
Everywhere we turn for help, we're told it's not as bad as we think and there's nothing they can do to help. Go fucking swimming. Do these people not understand we need our pain controlled BEFORE we can do PT? WTF?!
Stupidly went to a
#PainManagment
dr today, havent been that stupid since 2014 but Im declining fast so as a last effort to remain my son's mom I saw this jackwad (see review below) and sadly I PAID HIM to dismiss my pain. Back to my bed to slowly, tortuously die
@KatTwisted
Hello? Yes, I want to report inappropriate prescribing. My doc, and docs all over this country, are not appropriately prescribing pain medication to people suffering. Now we have record suicides AND overdoses. Who's the idiot behind this travesty? Hello?
@DanWuori
I am famous for talking aloud to myself. I do it all the time. I talk to my dogs too. They pick up things you wouldn't imagine. I say I'm getting another cup of coffee - and my pup goes to the kitchen. If only I could teach him how to make the coffee.
@sarahkendzior
It also tells me that the Dems don't really care about winning. Something is stopping them from doing what would work to win elections. THAT is what is more important to them. Obvs, it's not We The People.
So, let me get this straight. The drug war has ruined endless lives and been a complete failure - yet your best & brightest thinking is to double down???? IT WON'T WORK.
Oh, and stop denying chronic pain patients their lifesaving medications. WTF is wrong with you?
The FEND Off Fentanyl Act will save lives and keep Ohio safe by giving law enforcement the resources they need to stop fentanyl at its source.
The House needs to do what’s right for our communities and pass this bill.
@LauraMiers
@davenewworld_2
It breaks my heart into a million pieces when he says he can't look at his wife and daughter because he's failing them. Oh, my dear, sweet man. It's not your fault. 💔😭
@ibdgirl76
We're addicts getting high. Big difference between dependance and addiction and I haven't 'felt' anything but a reduction in pain from these meds in decades. They don't make me high. And even if they did - so what? What's wrong with a little pleasure, especially when suffering.
Only a psychopath would imprison an 88 yr old doctor for showing compassion and treating pain. 🤬
Please send the good doctor a card and let him know how much we support him. I was in prison, and I remember clear as day how important mail is. 🙏
Dr. Bauer, 88 years old, remains incarcerated for treating pain
Please consider sending him a card
To the prosecutors, may you receive what you have given to many
#scum
@RockyMountViews
I chose to be SAHM. I really did want to be with my kids. But that choice left me completely vulnerable. We ended up divorced after 20 years - and if he wasn't generous (he is), I'd be left penniless by the judge. Women must be protected. Or whoever stays home w/the kids.
THIS is exactly wtf is going on. If you need opioid pain meds to function, you will be gaslit so the med professionals can absolve themselves of the harm they're inflicting on CPPs by denying us that relief. It's not medical 'care' anymore. It's medical enforcement.
@CMerandi
Doctors & health care providers have lost credibility by supporting a political agenda against use of opioid pain medication in practice of medicine that compels them to lie to patients, to tell them made up B.S. about their pain not being medically significant or needing relief.
My gawd! They've known chronic pain patients aren't the problem for over a decade, and yet they're pushing people off their meds and on to the street, or suicide, to find relief. We should all be furious. I know I am.
... do an x-ray and MRI on my left hip to see if any of the falls I took when my pain wasn't controlled enough did extra damage we don't know about yet.
It makes such a difference when someone is kind to you when you're suffering. It totally changed my mood. 🤗
THIS! Any time I share my suicidal ideations or just my admonition that I wouldn't be sad to die right now - people say THAT'S TERRIBLE. No shit. Try living in my body. Then you'll understand.
Discussed this with a friend yesterday. We both have chronic illnesses with flares that were so severe we have trauma from it. Being so sick and miserable that you wanted to die is not an experience others can understand.
@catladyactivist
Fear is the correct response to the threat of death and disability. Do the people who accuse us of living in fear put their hand on a hot stove? Why not? Same thing.
Deaths have soared. Just wait. The utter lack of access to pain relief is going to kill A LOT more people. They're on a mission to end all opioid prescribing in the US. They're murdering people and they know it.
The Devil's Lettuce??? So, I am getting my veggies! SWEET. Now leave me tf alone.
I enjoy cannabis. It helps me eat and sleep, two very important things. I've never had a bad reaction to it - so why would you deny me that option and deny me sleep and sustenance?
Even if we did not have the high potency THC, a subset of people would still be deviously harmed. Keeping it illegal is "harm reduction." It's the Devil's Lettuce indeed.
People are SO brainwashed by the anti-opioid zealots! They won't give their 3 yr old pain relief be cuz they're afraid they'll become an addict?
OMFG! That poor little baby.
DEA starting Black History Month with a ‘throwback Thursday’ that should remind everyone they were founded by racists with the intention of systemically oppressing and harming people of color in the US and around the world
I have to go for an MRI of my lower back today. I was supposed to get it done last Saturday but I had a panic attack. I'm more claustrophobic than most - like really, REALLY bad. My doc prescribed 1mg lorazepam. I hope it works. Keep your fingers crossed and say a prayer. 🤞🙏
You mean to tell me that the opioid settlement money isn't going to help people but instead to build the police state?
This will only make everything worse.
🧵Govts are using opioid settlement💰many ways, but a recurring theme I’ve found is investing in law enforcement:
-$18K for phone unlocking tech in CT
-$25K for a police conference in CO
-$200K for a jail body scanner in MI
My
@kffhealthnews
&
@NPR
story:
Just got off the phone with my therapist. They think opioids make the pain worse. He insisted there are pain patients who get off opioids and can't believe how much less pain they feel.
Does anyone on this hellsite have that experience?
I need parents to understand that your kid personally having a measles vaccine is not enough to protect them, it was herd immunity that protected everyone
Thanks to anti vaxxers and a broadly immune compromised population thanks to multiple covid infections, that’s gone
@LauraMiers
I would be living on the street if I didn't have my husband. I get disability but it's nowhere near enough. If something ever happened to him, I'm f'kd. But then to see those who are working full time still can't afford it - while private equity is buying up all the homes? BAD!
6/ Elyse Stevens, a primary care doctor in New Orleans, treats 20 patients with substance use disorder daily & has appointments booked out months. She says, “By the time you’re putting someone in jail, you’ve missed 10,000 opportunities to help them.”
@Imani_Barbarin
THIS! I want to scream every time I see a supposed 'feel good' story about a kid selling lemonade to pay for his cancer surgery, or any number of other horrible things people are going through - with no support from our government.
@DEAHQ
Are you guys killing off chronic pain patients to celebrate? I am one of them. I cannot access relief through my doctor, like a responsible person does. Should I go to the street, the bottle, or suicide to escape the unbearable sciatic nerve pain?
A question for Asst US Attorneys Ava R. Dustin, Michael A. Sullivan, Robert N. Melching, Payum Doroodian;
How does it feel knowing you destroyed an 87 y/o doctor’s life?
87
Wake up, America
Im homebound. I cant sleep. Im
#suffering
. Im unable to cook meals anymore. I go from my bed to my recliner. Im declining. My drs are fully aware of all of this, they are fine watching me decline vs treating my
#SeverePain
. They are harming me, why is this legal?
@JaymetheRN
Thank you. WE need as many HCWs as possible. When a CPP says we need opioid pain meds, we're accused of being drug seekers. I've seen articles by HC professionals that say pts on LTOT cannot be trusted to make decisions for themselves. OUR voices alone aren't working.
HOLY SHIT! They want to trick people in pain and pretend they're giving them something for relief. WTF?!
This is SO f'kn evil. WTF happened to this country?
What happened to 'do no harm'?
“Researchers are also looking at whether placebos can be used to ease pain in patients who may be particularly susceptible to opioid-use disorders because of a history of trauma or family history of substance-use disorders, Rich said.”
People's lives are being destroyed just to eliminate opioid pain med prescriptions. It's backfiring - but they're doubling down on failure instead of offering relief. People will die. People are dying. 😢
@SuzyQ
: Pharmacist here. I’ve lost my will to live. The phone rings off the hook non stop with patients and doctors trying to find stock.”
drtrishcares's video!
#TikTok
If the Sacklers were out of line for pushing oxycodone - why aren't these physicians equally out of line?
Michigan surgeons offered more money to limit opioids for pain via
@BridgeMichigan
Where are our government representatives? The ones with oversight jurisdiction over the DEA, CDC, DOJ? When are you going to start caring about your constituents who are suffering and dying?
@RepHuffman
@Senlaphonza
@AlexPadilla4CA
@LauraMiers
My doc filled out some paperwork and I'm permanently excused from jury duty now due to disability. Maybe your doc could do the same for you? I fear it's a longshot - but worth a try. 🙏
0.022% of overdoses from prescribed opioids.
The fentanyl crisis was created by the DEA restricting regulated pain medication, forcing people to the unregulated drug market. EVERY single one of these fentanyl deaths is the direct result of failed drug war policy.
Great job.
#DYK
68% of overdose deaths involved synthetic opioids, primarily fentanyl. Join DEA’s efforts to remember the lives lost from fentanyl poisoning by submitting a photo of a loved one lost to fentanyl
#JustKNOW
Learn more
@life_is_art___
New policies that their lobbyists have pressured lawmakers to pass. But what if I have no problem with the opioid pain meds I take? Am I going to be forced to take their Frankenstein mystery medication? No thanks.
@benigma2017
Does he mean give the Dems the trifecta - like we did in 2020? When Biden broke all his promises and gave Manchinema the pen to write legislation to their donors liking? Like then?
@drkwarlord
I get a little over $12,000 a year to survive on disability. If I didn't have A LOT of help, I'd be living on the street. I don't know how people do it.
Well, surely because one individual says opioids didn't really help, and led to his body being in worse condition, that means everyone, even those who find opioids helpful don't really need them.
Wait - that doesn't make any sense.
Stop this BS right now!
This is so gut wrenching. I have a call with my doctor this morning and I have a strong suspicion they're going try to send me to a pain clinic. The nurse who set up the appt asked me some weird question insinuating that 'my needs' cannot be met there. I'm gonna flip a switch.
@biggynotsmall
He insisted that there were quite a few people in the chronic pain groups he ran before that got off opioids and were better off. I told him I'd love to talk to them, be cuz all I see is increased and endless suffering.