Long COVID Physio @LongCOVIDPhysio Twitter profile

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Long COVID Physio

2 years

We are so excited to share the #LCPForum sessions recordings Available tomorrow on @YouTube Tuesday 01-Nov-2022 #LongCOVID 🇬🇧 #covidpersistente 🇪🇸 #COVIDLong #ApresJ20 🇫🇷 #COVIDLonga 🇧🇷 #GlobalPT #FBLC

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Long COVID Physio

@LongCOVIDPhysio

2 years

New Video Released Today🎉 “Impact of #LongCOVID on Day-to-Day Life” This 5th instalment of the Long COVID Video Series, in partnership with @fisiocamera , has been co-produced with people living with Long COVID, sharing their stories

Long COVID Physio

In this video we describe the impact of Long COVID on day-to-day life, as told by people living with Long COVID

longcovid.physio

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Long COVID Physio

@LongCOVIDPhysio

3 years

New #LongCOVIDPhysio video series released today on “what are common #LongCOVID symptoms?” … part 1 👇 (and part two in the thread 🧵 below)

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Long COVID Physio

@LongCOVIDPhysio

8 months

Graded exercise therapy should not be recommended for patients with post-exertional malaise #PEM / post exertional symptom exacerbation #PESE @NatRevCardiol #ME #MECFS #LongCOVID @FvRhijn

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Long COVID Physio

@LongCOVIDPhysio

1 year

🚨New Release Today🚨 Safe #LongCOVID Rehabilitation Created by @LongCOVIDPhysio in partnership with @fisiocamera Clink on link below 🔗👇 to access video with closed captions (which can be translated), audio only, and written transcript.

Long COVID Physio

In this video we describe what is safe rehabilitation for people living with Long COVID

longcovid.physio

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Long COVID Physio

@LongCOVIDPhysio

18 days

Difficult watching Dr Lisa Ritchie (IPC) @covidinquiryuk today. We advise a trigger warning ⚠️ for this post & if you plan on watching it later. #COVIDInquiry #LongCOVID #LongCOVIDAHPs #COVIDIsAirborne #AGPs #COVIDIsNotOver #CleanAir #LongCOVIDGroups #LongCOVIDKids #PPE #IPC

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Long COVID Physio

@LongCOVIDPhysio

1 year

New Episode of our #LongCOVID Video Series released today 💙 ⚖️ #Pacing ⚖️ Click on link 👇 to watch video, listen to audio only, or read transcript (audio as text). Thank you to all involved 🙏🏻💙 @fisiocamera

Long COVID Physio

In this video we describe what is pacing

longcovid.physio

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Long COVID Physio

@LongCOVIDPhysio

2 years

Today is the first #LongCOVIDAwarenessDay to raise visibility and awareness of the global scale of #LongCOVID affecting more than 65 million people around the world, as well as their families and society. Today we join our community in solidarity 🖤💚🤍

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Long COVID Physio

@LongCOVIDPhysio

3 years

Today patient-led #LongCOVID organisations write an open letter to @NICEComms urging them to publish the #MECFS guidelines without further delay #PublishThatGuideline . We stand in solidarity with ME/CFS organisations and individuals #MillionsMissing

Long COVID Physio

Patient-led Long COVID organisations write an open letter to National Institute for Health and Care Excellence urging them to publish the ME/CFS guidelines.

longcovid.physio

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Long COVID Physio

@LongCOVIDPhysio

2 years

“Episodic Nature of #LongCOVID ” is the fourth video in our #LongCOVIDPhysio Video Series in partnership with @fisiocamera Watch the rest of the video 👇 @darrenabrown @KellyOBrien25 @LindsaySkipper @UofT_PT @BSMSMedSchool #FBLC #GlobalPT #EpisodicDisability #DisabilityTwitter

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Long COVID Physio

@LongCOVIDPhysio

18 days

Again, we have the same question as Chair, Baroness Hallet "If you have uncertainty and there's a possibility that the pathogen could be aerosol...if you're going to exercise the precautionary principle. Wouldn't it be best to advise the highest level of face mask protection?"

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Long COVID Physio

@LongCOVIDPhysio

2 months

The final episode of the #LongCOVID Video Series is now live 🎥🤩🎬🍿 #Exercise See the video, audio only, transcript, details for translated closed captions, the team involved, and how to access the full video series, by clicking 👇

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Long COVID Physio

@LongCOVIDPhysio

2 years

Decreased Fatty Acid Oxidation and Altered Lactate Production during Exercise in Patients with Post-acute COVID-19 Syndrome 👉 study provides the first evidence of mitochondrial dysfunction that advances our understanding of #LongCOVID pathogenesis

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Long COVID Physio

@LongCOVIDPhysio

8 months

As Physiotherapists we disagree with you! As experts in our field, we’re fully supportive of those that challenged you. It is unhelpful to talk about a profession as if it is an intervention, and equally unhelpful to misquote NICE guidelines. The make it clear … No GET👇

Artur Fedorowski

@ArturFedorowski

8 months

@satish_r_raj @dysclinic @cyndyashibao1 Replying to comments on our recent paper. The jury is still out ... let us wait for the verdict and accept it, when it comes. A number of ongoing studies give hope for the future whatever the outcome will be.

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Long COVID Physio

@LongCOVIDPhysio

18 days

We have the same question as Chair, Baroness Hallett "If SARS1 was meant to be guiding you, why didn't it?" #COVIDInquiry #CovidInquiry #LongCOVID #LongCOVIDAHPs #COVIDIsAirborne #AGPs #COVIDIsNotOver #CleanAir #LongCOVIDGroups #LongCOVIDKids #PPE #IPC #OccupationalDisease

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Long COVID Physio

@LongCOVIDPhysio

3 years

@sandralopezleon También disponible en español

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Long COVID Physio

@LongCOVIDPhysio

4 years

🚨🚨🚨NEW WEBSITE 🚨🚨🚨 We have a brand new #LongCovidPhysio website & we are so happy 🎉 You can learn about us, listen to podcasts, read our blogs, access #LongCovid #COVID19 learning resources, read our work, & find peer support. All on this link 👇

Long COVID Physio

Long COVID Physio is a global peer support network for Physiotherapists living with Long COVID, also providing education and advocating for safe and effective rehabilitation

longcovid.physio

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Long COVID Physio

@LongCOVIDPhysio

3 years

Clarity needed and accurate translation of science needed here! These results are not applicable to all with #LongCOVID because: 👉Small sample size (n=30) 👉No control group 👉Mostly hospitalised 👉No screening of post exertional symptom exacerbation

Long Covid fatigue 'reduced with exercise programme'

Researchers say a six-week exercise programme helped patients make "significant" improvement.

www.bbc.co.uk

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Long COVID Physio

@LongCOVIDPhysio

3 years

Today is #WorldPTDay & @WorldPhysio1951 have provided information sheets #GlobalPT starting with 👉What is #LongCOVID ? #CovidLong #apresJ20 #COVIDLongue #LangzeitCovid #pitk äcovid #covidpersistente #MitCoronaLeben #koronaoire #longhaulers #l ångtidscovid

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Long COVID Physio

@LongCOVIDPhysio

1 year

The relevance of #pacing strategies in managing symptoms of post-COVID-19 syndrome #LongCOVID

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Long COVID Physio

@LongCOVIDPhysio

2 years

Published today in partnership with @HIVandRehab @LongCOVIDPhysio @UofTCOVIDRehab @PhysioCan “Return to Work for People Living with #LongCOVID : recommendations for employers, insurers, human resources personnel and rehabilitation professionals”

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Long COVID Physio

@LongCOVIDPhysio

18 days

More from Chair Baroness Hallett "There is uncertainty so the uncertainty means we don't yet know the transmission & what I don't understand is the IPC cell seems to become wedded to the idea that it was droplet" #COVIDInquiry #LongCOVID #LongCOVIDAHPs #CleanAir

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Long COVID Physio

@LongCOVIDPhysio

9 months

Seeking adults living with #LongCOVID in Canada, Ireland, US & UK to participate in Long COVID & Episodic Disability Study To assess a questionnaire for its ability to measure disability experienced by ppl with Long COVID Click link to learn more:

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Long COVID Physio

@LongCOVIDPhysio

3 years

They are all available for our #GlobalPT family to use NOW in clinical practice. They can also be used by people living with affected by #LongCOVID to support your own needs. We particularly love this info sheet about #PESE #PEM

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Long COVID Physio

@LongCOVIDPhysio

3 years

“What’s really surprising is the number of previously fit and healthy individuals who went on to develop #LongCovid . I’ve lost count of the number of patients who tell me, ‘This isn’t right; I used to run marathons; I kept in shape,’ None of that seems to matter.” - @PutrinoLab

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Long COVID Physio

@LongCOVIDPhysio

3 years

We are very excited to announce a new partnership with @DoctorsWithME . At #LongCOVIDPhysio we believe that partnerships are important to connect and create change. We are excited to work closely across #LongCOVID and #MECFS with our new partners 💙

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Long COVID Physio

@LongCOVIDPhysio

2 years

What is safe #LongCOVID #rehabilitation ? Publication based on #LCPForum discussion session with @BreathewellPT @darrenabrown @IppokratisAnge1 @JonesFio @KellyOBrien25 @OnTapPhysio @SueYFC @racheltarrant5 @MVGutierrezMD @DP_Gross

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Long COVID Physio

@LongCOVIDPhysio

3 years

Pacing continues to be our most effective #LongCOVID management and rehab strategy … NOT exercise

How Athletes With Long COVID Are Adjusting Their Exercise Routine

Exercising can sometimes exacerbate Long COVID symptoms because of a protein that tricks the body into thinking it has worked out more than usual.

www.verywellhealth.com

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Long COVID Physio

@LongCOVIDPhysio

3 years

What is #LongCOVID ? Today we release the first of our #LongCOVIDPhysio video series in partnership with @fisiocamera , where we describe what is Long COVID, including clinical definitions #FBLC . Thanks to @La_Vavva @darrenabrown @ThePhysiFro @LindsaySkipper

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Long COVID Physio

@LongCOVIDPhysio

2 years

#LCPForum @PutrinoLab “We need precision medicine. There are different types of fatigue. And fatigue is not the same as exercise intolerance, and not the same as post exertional symptom exacerbation #PESE #PEM ” #LongCOVID #FBLC #GlobalPT

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Long COVID Physio

@LongCOVIDPhysio

3 years

"Why is it called #LongCOVID ?" is our NEW second episode of the #LongCOVIDPhysio video series in partnership with @fisiocamera . This video received consultation from @elisaperego78 & @Dr2NisreenAlwan and was peer reviewed by @LongCOVIDPhysio executive board.

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Long COVID Physio

@LongCOVIDPhysio

3 years

This study identifies that vascular stress (macro- and micro-circulation) seen in #LongCOVID fatigue, is equivalent to the transient fatigue associated with high-intensity exercise. Translation: Long COVID fatigue may feel like running endless marathons

Chronic fatigue associated with post-COVID syndrome versus transient fatigue caused by high...

Purpose The pathophysiology of chronic fatigue associated with post-COVID syndrome is not well recognized. It is assumed that this condition is partly due to vascular dysfunction developed during an...

www.medrxiv.org

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Long COVID Physio

@LongCOVIDPhysio

2 years

#LCPForum @BinitaKane “If tests are normal that does not mean there’s is no pathology. It means we don’t have the right tests” #LongCOVIDKids @LongCovidKids #LongCOVID #FBLC #GlobalPT @fisiocamera

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Long COVID Physio

@LongCOVIDPhysio

3 years

We know how disappointing this news is to many living with #ME #MECFS . We stand in solidarity with communities affected and hope for an outcome that best supports people living with and affected by ME, soon.

NICE

@NICEComms

3 years

NICE pauses publication of updated guideline on diagnosis and management of ME/CFS. Read more here:

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Long COVID Physio

@LongCOVIDPhysio

10 months

Findings from @Yale invasive cardiopulmonary exercise testing (iCPET) support a clear physiologic abnormality underpinning #LongCOVID symptoms, dispelling harmful myths (eg: deconditioning) around post-COVID exercise intolerance #GlobalPT

Study helps explain post-COVID exercise intolerance

Exercise intolerance is one symptom associated with long COVID. A new study helps explain its cause.

news.yale.edu

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Long COVID Physio

@LongCOVIDPhysio

2 years

The session on Post-Exertional Symptom Exacerbation (PESE) begins! @sunsopeningband emphasizes that PESE is more than tired, more than fatigue. It is exhaustion often combined with concentration, memory, pain, nausea and other symptoms. #LongCovid #LCPForum

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Long COVID Physio

@LongCOVIDPhysio

2 years

Four new announcements today about the Long COVID Physio International Forum #LCPForum 👉 Registration is now open 🎉 👉 Full programme available 👉 Speakers list revealed 👉 Learning objectives announced Find out more🧵 #LongCOVID #FBLC #GlobalPT

Long COVID Physio

Programme, speaker list, and learning objectives of the Long COVID Physio International Forum #LCPForum

longcovid.physio

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Long COVID Physio

@LongCOVIDPhysio

3 years

We are very excited to be launching our new #LongCOVID educational video series this week, in partnership with @fisiocamera . Watch out for the first video coming very soon #FBLC . The video series will cover different topics. More info to be released this week 😊

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Long COVID Physio

@LongCOVIDPhysio

1 year

People with #LongCOVID and/or #MECFS experiencing #PESE / #PEM do not have “Boom and Bust”. This is an example of patient blaming language.

Southern Trust

@SouthernHSCT

1 year

Staff in our Post COVID-19 Syndrome MDT Assessment clinic (or Long Covid clinic) have created a resource for new service users 👉 They would also like to hear about your experience if you have already used the service. #teamSHSCT

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Long COVID Physio

@LongCOVIDPhysio

2 years

Ballet will not address ANY of the mechanisms causing #LongCOVID … we need real research! Not ballet! See proper research questions 👇

Long COVID: major findings, mechanisms and recommendations

Nature Reviews Microbiology - Long COVID is an often debilitating illness of severe symptoms that can develop during or following COVID-19. In this Review, Davis, McCorkell, Vogel and Topol explore...

www.nature.com

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Long COVID Physio

@LongCOVIDPhysio

3 years

Pacing is an approach used to balance rest and activities, to avoid worsening symptoms. It is safe for people living with #LongCOVID and other energy limiting conditions eg: #ME #MECFS . Learn more about pacing 👇

Long COVID Physio

Learn more about what is pacing, how to do it, and why it is useful for people living with Long COVID

longcovid.physio

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Long COVID Physio

@LongCOVIDPhysio

2 years

Panelists are discussing deconditioning. Patients became unwell using the deconditioning model of rehabilitation. Thinking of a dysregulation model may be more helpful per OT Sue Pemberton - work on regulating sleep, eating, blood pressure, autonomic function, etc. Avoid PESE

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Long COVID Physio

@LongCOVIDPhysio

1 year

The first Chair of Long COVID Physio @darrenabrown reflects on the past 2+ years, as he hands on the baton of leadership to an exiting new team #LongCOVID #GlobalPT #Physiotherapy #Blog

Long COVID Physio

Darren Brown, inaugural Chair of Long COVID Physio, reflects on collective achievements over more than 2 years, as he passes the baton of leadership onto a new team.

longcovid.physio

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Long COVID Physio

@LongCOVIDPhysio

18 days

Dr Ritchie agreed when asked "What was known about #COVID was informed by #SARS (referring to SARS-Cov-1)" #CovidInquiry #LongCOVID #LongCOVIDAHPs #COVIDIsAirborne #AGPs #COVIDIsNotOver #CleanAir #LongCOVIDGroups #LongCOVIDKids #PPE #IPC

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Long COVID Physio

@LongCOVIDPhysio

4 years

We know a number of articles recently have invalidated the experiences of people living with #LongCOVID . We will not draw attention to them, or argue with people promoting them. We will centre our energies on compassion, kindness, and honouring the stories of those affected.

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Long COVID Physio

@LongCOVIDPhysio

2 years

As Physiotherapists living with #LongCOVID we call on @ESSA_NEWS to stop funding this research. We would invite the funders and researchers to talk with us about WHY this research is harmful and not wanted by those of use living with the condition #NothingAboutUsWithoutUs

Dr Bernie Bissett (she/her)

@BernieBissett

2 years

Delighted to share that we have been supported by ESSA (Exercise & Sports Science Association of Australia) to the tune of $50 000 to continue our research in exercise in Long COVID in Canberra. Shout out to the whole multidisciplinary team! @UniCanberra

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Long COVID Physio

@LongCOVIDPhysio

3 years

“what are common #LongCOVID symptoms?” … part 2

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Long COVID Physio

@LongCOVIDPhysio

3 years

New #LongCOVIDPhysio blog from @AlyssaaErinn "Joining the Frontlines of Advocacy" as a Physiotherapist living with #LongCOVID and the lessons from #ME #MECFS and other marginalised groups

Long COVID Physio

Alyssa Erin is a Physiotherapist living with Long COVID in Canada, who shares lessons and experiences of entering advocacy spaces as a person newly experiencing disability

longcovid.physio

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Long COVID Physio

@LongCOVIDPhysio

8 months

#LongCOVID can destroy your ability to exercise: now we know why @sunsopeningband @NatGeo

Long COVID can destroy your ability to exercise. Now we know why.

As a new study shows, the answer lies in some long COVID sufferers’ muscle damage and their bodies’ ability to make energy.

www.nationalgeographic.com

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Long COVID Physio

@LongCOVIDPhysio

3 years

“Appropriate #exercise is movement from which the patient recovers” @sunsopeningband #LongCOVID #MECFS #GlobalPT #AHPsDay

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Long COVID Physio

@LongCOVIDPhysio

8 months

Well here’s another piece to the puzzle … #LongCOVID cannot be psychosomatic if @NHSBT will not let people with Long COVID donate blood. Building on the existing mountain of evidence of biomedical and physiological changes associated with #LongCOVID

Long Covid Support 🌍

@long_covid

8 months

🚨 Did you know… ‘NHS Blood & Transplant’ states that you cannot donate blood if you have #LongCovid : “If you have been diagnosed with Long Covid or have had symptoms for over 12 weeks then you need to wait until it is at least 6 months since all symptoms have gone”

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Long COVID Physio

@LongCOVIDPhysio

18 days

We were then shown this table which is part of a paper which Dr Ritchie co-authored in 2013 - clearly contradicting #IPC policy. #COVIDInquiry #LongCOVID #LongCOVIDAHPs #LongCOVIDKids #COVIDIsAirborne #COVIDIsNotOver #LongCOVIDGroups #CleanAir #PPE #FFP3

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Long COVID Physio

@LongCOVIDPhysio

3 years

New case definition of #LongCOVID announced today by @WHO reflecting the impact on functioning in day to day life (disability) and episodic nature (fluctuating or relapse) #GlobalPT

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Long COVID Physio

@LongCOVIDPhysio

2 years

@scottishballet would like to explore dance and ballet to treat #LongCOVID When will it ever end! 😳

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Long COVID Physio

@LongCOVIDPhysio

7 months

Ciara Breen, an occupational therapist, describes the importance of thinking about cognition in #LongCovid . #LongCovidPhysio #LongCovidAwarenessDay #LongCovidAwarenessDay2024 #COVIDPersistente

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Long COVID Physio

@LongCOVIDPhysio

1 year

We are excited to announce our new team starting July 2023, including the executive board and committees. #LongCOVID (note: board liaison roles will be announced in July)

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Long COVID Physio

@LongCOVIDPhysio

10 days

When asked why he would defer to Prof Hopkins view on route of transmission as opposed to any other evidence e.g. Prof Beggs "I haven't listened to any of the other evidence" #COVIDInquiry #LongCOVID #LongCOVIDAHPs #COVIDIsAirborne #CovidIsNotOver #CleanAir #LongCOVIDKids

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Long COVID Physio

@LongCOVIDPhysio

3 years

#LongCOVID has long told the story of the vascular nature of #COVID (thank you Lauren for your incredible art) [all images described in tweet or AltText]

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Long COVID Physio

@LongCOVIDPhysio

2 years

What is disability? Has our understanding of disability changed over time? Check out our latest blog on #LongCOVID and #Disability by @darrenabrown to learn more about the history and understanding of disability

Long COVID Physio

Disability is a complex topic, and the understanding of disability has changed over time. Read this blog to learn more about Long COVID and disability.

longcovid.physio

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Long COVID Physio

@LongCOVIDPhysio

2 years

We’ve got something to share! We’re really excited to announce the Long COVID Physio International Forum #LCPForum @RMUoHP @fisiocamera @aboutKP @HIVandRehab @ekstokes @PutrinoLab Check it out now on our website #LongCOVID #FBLC #GlobalPT

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Long COVID Physio

@LongCOVIDPhysio

3 years

Today is #WorldPTDay and @WorldPhysio1951 have provided info sheets #GlobalPT 👉 How to use #Pacing with your Physiotherapist #LongCOVID #CovidLong #apresJ20 #COVIDLongue #LangzeitCovid #pitk äcovid #covidpersistente #MitCoronaLeben #koronaoire #longhaulers #l ångtidscovid

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Long COVID Physio

@LongCOVIDPhysio

3 years

New #LongCOVIDPhysio #blog by @OT_Skiff "Bring It On" where Helen discusses her experiences of #LongCOVID crashes, pacing, acceptance, returning to work, boosters, and why we need to #CountLongCOVID

Long COVID Physio

Occupational Therapist Helen provides updates on her experiences of crashing, pacing, acceptance, returning to work, boosters, and why we need to count Long COVID.

longcovid.physio

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Long COVID Physio

@LongCOVIDPhysio

2 years

Wrong! Rehab won’t always result in “recovery” from #LongCOVID . We need better acknowledgment of the mechanistic causes of the underlying pathophysiology, to guide science and treatments. Rehab can help manage disability. It’s not a cure and recovery is not certain.

Functional Neurological Disorder Society

@FNDSociety

2 years

Excellent talks from @lauramcw and @Tim_R_Nicholson at #FNDS2022 on FND & COVID-19! Specifically, education of FND after vaccine (and the role of the media) as well as models of FND in the broader setting of Covid-19.

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Long COVID Physio

@LongCOVIDPhysio

2 years

Today is #MEAwarenessDay . We are grateful to all the knowledge, lessons, and support from #PwME . Today is an opportunity to learn more and update knowledge so please follow @MEAssociation @PhysiosForME @DoctorsWithME @PTOT4MECFS @StripyLightCIC

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Long COVID Physio

@LongCOVIDPhysio

3 years

“The physical deconditioning theory does not explain the presence of persistent symptoms in patients who were affected by mild forms of the disease” #LongCOVID #GlobalPT

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Long COVID Physio

@LongCOVIDPhysio

7 months

We will continue to call it Long Covid, a name favored by people with living with a very real disease. It’s covering no new ground to also say that infection-associated conditions follow influenza and other illnesses. One does not delegitimize the other. Both are true. Carry on.

Prof Nisreen Alwan 🌻

@Dr2NisreenAlwan

7 months

Shame, shame, shame on @guardian for publishing such headline & on #LongCovidAwarenessDay of all days. Study DID NOT find it’s time to stop using the term #LongCovid which shouldn’t be between quotation marks. Ask yourself in whose interest this dismissal & stigmatisation is in.

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Long COVID Physio

@LongCOVIDPhysio

1 year

Amyloid deposits identified in skeletal muscle of people with #LongCOVID and post exertional symptom exacerbation #PESE #PEM Important for #GlobalPT to know of the emergent mechanisms of intolerance to exertion and exercise

Resia Pretorius

@resiapretorius

1 year

Wonderful to see the @RobWust team at the #KSLongCoVID24 symposium. They found amyloid deposits, identified by ThT in the muscle. Perhaps due to movement of the amyloid deposits via the damaged vasculature?

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Long COVID Physio

@LongCOVIDPhysio

1 year

@WHO_Europe #Rehabilitation : self management of #LongCOVID for adolescents 👉 understanding post exertional symptom exacerbation ( #PESE ) 👉 #pacing 👉 managing daily activities 👉 education 👉 activity tracker 👏

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Long COVID Physio

@LongCOVIDPhysio

2 years

The media may not get it … but AI does! #LongCOVID

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Long COVID Physio

@LongCOVIDPhysio

4 years

Booklet for ppl who had #COVID19 (with or without +ve COVID-19 test) & have symptoms >4 weeks, including: • adults • young people • children. May also help: • parents of children who had COVID-19 • family members, partners, friends & carers #LongCOVID

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Long COVID Physio

@LongCOVIDPhysio

4 years

We are pleased to see action addressing the inaccuracies perpetuated by this @guardian observer article. Thank you @MEAssociation for tackling this challenge and supporting people living with Long COVID

ME Association

@MEAssociation

4 years

ME Association demands instant corrections to article that appeared in 'The Observer' today (29 November 2020): Full text of our letter appears below. #mecfs #cfsme #MyalgicE #pwme #TheObserver

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Long COVID Physio

@LongCOVIDPhysio

3 years

📣 Today we announce our inaugural #LongCOVIDPhysio Executive Board 📣 who are shaping our next stage of growth. They represent our membership, our culture, & our purpose. Meet our team including ppl living with & affected by #LongCOVID and allies

Long COVID Physio

longcovid.physio

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Long COVID Physio

@LongCOVIDPhysio

1 year

🚨Coming soon🚨 The 7th episode of our #LongCOVID Video Series on “Pacing” @sunsopeningband @OT_Skiff @kirrabrean @LindsaySkipper @LisaAMcCorkell @SammieFMc @MichelleBull4 @julialmv @CenterRes

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Long COVID Physio

@LongCOVIDPhysio

10 months

Today our vice chair @DrMark_Faghy representing Long COVID Physio, joined forces with @LongCovidSOS @long_covid @LongCovidKids to deliver a letter to the Prime Minister at 10 Downing Street requesting urgent investment for #LongCOVID Read more:

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Long COVID Physio

@LongCOVIDPhysio

25 days

Published today 🔔 @UofTCOVIDRehab New policy brief on #LongCOVID , Episodic Disability and labour force participation

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Long COVID Physio

@LongCOVIDPhysio

9 months

#HappyNewYear Do you want to learn about #LongCOVID ? Check out our video series in English

Long COVID Physio

Long COVID Physio has partnered with FisioCamera to deliver a series of educational videos about Long COVID.

longcovid.physio

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Long COVID Physio

@LongCOVIDPhysio

3 years

“…six months to a year from now, we’ll be reviewing the literature about talking about the long-term deleterious effects of non-hospitalized patients." #LongCovid #COVID19

Fauci Warns of "Troublesome" Long-Term Effects of COVID-19 in Young People

Fauci says heart conditions being seen after recovery.

ny1.com

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Long COVID Physio

@LongCOVIDPhysio

7 months

Dr. Todd Davenport emphasizes the need for funding to pursue tests and cures for #LongCovid . #LongCovidPhysio #LongCovidAwarenessDay #LongCovidAwarenessDay2024

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Long COVID Physio

@LongCOVIDPhysio

3 years

@dianaberrent @Dakota_150 Hopefully you will listen to others responses @dianaberrent . We challenge this assumption you make, with our lived, clinical, academic, research, guideline and policy knowledge.

Long COVID Physio

Learn more about what is exercise and when it is not safe for people living with Long COVID

longcovid.physio

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Long COVID Physio

@LongCOVIDPhysio

9 months

The #LongCOVID Video Series has published 7 videos (1 more to come) & translated into 9 languages. ❓What impact have they had? ❓How do they help you? ❓What changes have they created? We’d love to hear from you in comments👇 @fisiocamera

Long COVID Physio

Long COVID Physio has partnered with FisioCamera to deliver a series of educational videos about Long COVID.

longcovid.physio

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Long COVID Physio

@LongCOVIDPhysio

3 years

Lessons from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome #MECFS for #LongCOVID : Postexertional Symptom Exacerbation #PESE is an Abnormal Response to Exercise/Activity

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Long COVID Physio

@LongCOVIDPhysio

3 years

“Scientists say they have detected irregularities in the blood of #LongCOVID patients that could one day pave the way for a test for the condition”

Long Covid: Early findings bring hope for diagnostic tests - BBC News

Scientists say early research findings could lead to a diagnostic test for those with long-term symptoms.

www.bbc.co.uk

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Long COVID Physio

@LongCOVIDPhysio

2 years

Yesterday in #Chicago @ACRMtweets #ACRM2022 @LisaAMcCorkell @darrenabrown @KellyOBrien25 @Caregiving_UofT @fofiConstant presented on opportunities for international collaborations and capacity building in #LongCOVID and #COVID19 rehabilitation research

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Long COVID Physio

@LongCOVIDPhysio

2 years

New @LongCOVIDPhysio Video Series released tomorrow morning on the Impact of #LongCOVID on Day-to-Day Life Watch this space 👀

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Long COVID Physio

@LongCOVIDPhysio

2 years

Thank you to everybody who follows and supports #LongCOVIDPhysio … today we reached 13K @Twitter followers. Our #LongCOVID community is powerful, connected, and impactful. Together we make change. Thank you #FBLC

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Long COVID Physio

@LongCOVIDPhysio

4 years

Very proud that part 1 of our #LongCovidPhysio #blog is published in @JOSPT “Physiotherapists Living with #LongCovid : Defining the Indefinable” #GlobalPT Part 2 coming soon 🥰 @OnTapPhysio @SusanWilliams__

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Long COVID Physio

@LongCOVIDPhysio

3 years

We are really proud to have been visibly recognised for our contributions in #LongCOVID by @NICEComms with our inclusion in the information for the public section of the NICE Long COVID updated guidelines

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Long COVID Physio

@LongCOVIDPhysio

1 year

🦠 What is Long COVID? ❓Why is it called Long COVID? ⚡️Common symptoms 🎢 Episodic nature ⚓️ Impact on day-to-day life 🛟 Safe rehab ⚖️ Pacing All videos in our #LongCOVID video series👇 @fisiocamera

Long COVID Physio

Long COVID Physio has partnered with FisioCamera to deliver a series of educational videos about Long COVID.

longcovid.physio

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Long COVID Physio

@LongCOVIDPhysio

1 year

Coming soon ⏰ “Safe #LongCOVID Rehabilitation” The next episode in the Long COVID Video Series Created with @sunsopeningband @SimonDecary @KellyOBrien25 @darrenabrown @LindsaySkipper @fisiocamera @DrMark_Faghy @LauraTabacof

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Long COVID Physio

@LongCOVIDPhysio

25 days

"Studies have shown the reduction in quality of life and the impact on the sufferer to be able to do the job they did before #LongCovid " #CovidInquiry #LongCOVID #LongCOVIDAHPs #OneLessAHP

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Long COVID Physio

@LongCOVIDPhysio

3 years

What is #LongCOVID ? Today we release the first of our #LongCOVIDPhysio video series in partnership with @fisiocamera , where we describe what is Long COVID, including clinical definitions #FBLC . Thanks to @La_Vavva @darrenabrown @ThePhysiFro @LindsaySkipper

Long COVID Physio

In this video we describe what is Long COVID, including clinical definitions.

longcovid.physio

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Long COVID Physio

@LongCOVIDPhysio

2 years

Today we begin the Long COVID Physio International Forum #LCPForum and we are excited to see you in 5 hours time when we open and welcome you #LongCOVID #FBLC #GlobalPT

Long COVID Physio

Programme, speaker list, and learning objectives of the Long COVID Physio International Forum #LCPForum

longcovid.physio

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Long COVID Physio

@LongCOVIDPhysio

3 years

Check out the video in full #LongCOVID common symptoms video on our website👇 including transcript (audio as text)

Long COVID Physio

In this video we explore some of the common Long COVD symptoms including fatigue, cognitive dysfunction, post-exertional symptom exacerbation and orthostatic intolerance.

longcovid.physio

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Long COVID Physio

@LongCOVIDPhysio

1 year

36 million people across @WHO_Europe Region with #LongCOVID 👉 that’s 1 in 30 Europeans in 3 years 👉 1 in 30 who still find it hard to return to normal life 👉 1 in 30 who could be suffering in silence, left behind as others move on from COVID-19

36 million people across the European Region may have developed Long COVID over the first three...

News and Press Release in English on World about Health and Epidemic; published on 27 Jun 2023 by WHO

reliefweb.int

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Long COVID Physio

@LongCOVIDPhysio

3 years

Today has been a tough day on social media for many living with #LongCOVID #FBLC … we are sending our love to all of you 💙. We value you, acknowledge your experiences, and celebrate your activism. Huge hugs to all in our community, and allies.

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Long COVID Physio

@LongCOVIDPhysio

2 years

#GlobalPT #physio are you seeing patients with #LongCOVID and orthostatic tachycardia after COVID-19? Here’s a great @bmj_latest infographic on patient history, physical examination, investigations, diagnostic tests, and management

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Long COVID Physio

@LongCOVIDPhysio

3 years

#Pacing can be difficult with #LongCOVID symptoms like exhaustion & brain fog ... we constantly update our website with reliable & accessible info ... including over 15 different pacing links

Long COVID Physio

Learn more about what is pacing, how to do it, and why it is useful for people living with Long COVID

longcovid.physio

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Long COVID Physio

@LongCOVIDPhysio

3 years

“Neurological infection with SARS-CoV-2 - the story so far” @RunningMadProf

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Long COVID Physio

@LongCOVIDPhysio

3 years

We began #LongCOVIDPhysio podcast as a way to share our #LongCOVID stories, & this has become more with community, clinicians, researchers, activities and allies. Our podcast has been downloaded more than 15,800 times across the world. Thank you to everybody for all you support.

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Long COVID Physio

@LongCOVIDPhysio

4 years

We strongly recommended that all Physiotherapists providing care for people living with #LongCovid use risk stratification before implementing any exercise as rehab. Exclude post-exertion malaise. Exclude potential cardiac symptoms. Listen to the patients story.

Long Covid Kids - #LongCovidKids

@LongCovidKids

4 years

I will be referred to a physio who will help me build up my strength with ‘graded exercise’. I mentioned the change in @NICEComms guidelines and was told the physio would decide. They are already working with lots of people who need the same support. 🤬😭🤯. @LongCovidPhysio

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