Darren Brown OBE @darrenabrown Twitter profile

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Darren Brown OBE

2 years

Published in @PLOSONE "Prevalence, severity, and risk factors of disability among adults living with HIV accessing routine outpatient HIV care in London, UK: A cross-sectional self-report study" @KellyOBrien25 @AgnieszkaLewko #GlobalPT #HIVPhysio

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Darren Brown OBE

@darrenabrown

2 years

Invited to present at a medical conference about Long COVID. I’m told the conference is only permitting in person presentations. I’ve declined the offer, told them in-person only perpetuates ableism, and it’s not acceptable in this day & age. End.

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Darren Brown OBE

@darrenabrown

2 years

Today, 10 days after 1st testing positive for #COVID19 round 2, my lateral flow is finally negative. So what did I learn about this reinfection as a person with #LongCOVID 🧵

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Darren Brown OBE

@darrenabrown

2 years

Really proud to have been a member of the @WHO Guideline Development Group for #LongCOVID Post-COVID Condition #Rehabilitation released today

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Darren Brown OBE

@darrenabrown

3 years

Death and hospitalisation are not the only outcomes. The false dichotomy of “death Vs quick recovery”, has been a cause of delegitimising COVID causing prolonged illness. Disability and #LongCOVID remain largely ignored in the pandemic narrative, and even more so around #Omicron .

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Darren Brown OBE

@darrenabrown

2 years

And *WHY ON EARTH* would I want to go to an in person conference full of people. Jog on. I’m not getting COVID again.

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Darren Brown OBE

@darrenabrown

3 years

I feel like I repeat myself sometimes. So I’ll try do it in one tweet for fun. #LongCOVID is not burnout. Exercise is a type of physical activity. All forms of physical activity are exertion. If exertion makes symptoms worse, you can’t exercise or think your way out of it.

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Darren Brown OBE

@darrenabrown

2 years

Appologies if my tweet was not clear. This is a UK medical conference aimed at GPs and other health professionals. I was invited to present on the topic of Long COVID. I have the physical ability to attend in person. I’ve chosen not to accept the invitation and made it clear why.

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Darren Brown OBE

@darrenabrown

3 years

Even to this day it still feels like a kick in the gut when you share your lived experience of a #LongCOVID health challenge with a team you’ve been referred to for specialist input, for the Dr to roll their eyes and say “yeah but I’ve never seen that … seems unlikely” 🤬

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Darren Brown OBE

@darrenabrown

2 years

So … got COVID again! 🥺 Cough started yesterday evening. Lateral flow positive this morning. Will try get onto an antiviral study ASAP. Reinfection after #LongCOVID . Let’s see what flavour this one has to offer.

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Darren Brown OBE

@darrenabrown

2 years

I find how people react differently to fatigue fascinating. My sister is pregnant & has fatigue. People are saying rest, don’t over exert, look after yourself. When I had severe #LongCOVID fatigue I had advice to try yoga, do a bit more each day, keep pushing/trying. What gives?

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Darren Brown OBE

@darrenabrown

2 years

This might be the most important lesson I’ve ever read and how it relates to #LongCOVID Every #rehabilitation #rehab professional needs to read this. #GlobalPT we need to learn from history @history_physio , learn from mistakes, and avoid harm!

Is ‘Long Covid’ similar to ‘Long SARS’?

In 2002–03, a Severe Acute Respiratory Syndrome (SARS) coronavirus caused a pandemic. It was described as a novel virus, meaning that it seemed to be unrel

academic.oup.com

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Darren Brown OBE

@darrenabrown

3 years

Today was a big day. We went cycling. Last time was Sept 2020 the day before my huge Long COVID crash. I’m now largely symptom free, stable, & no more PESE. I’ve noticed ⬆️ ability to exert myself more. Today felt like the time, & my ability, was right. And it felt fab to do it.

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Darren Brown OBE

@darrenabrown

4 years

I am living with #LongCOVID . I am experiencing multi-dimensional and episodic disability, across all dimensions of disability. My primary symptom is fatigue & post-exertion malaise. Along with other symptoms. I want to describe the nature & extent of disability I experience.

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Darren Brown OBE

@darrenabrown

2 years

I am so happy to share that on 16th November 2022 I will be awarded a Fellowship of @thecsp for global impact achieved through clinical, academic and strategic leadership in the fields of #HIV and #LongCOVID This is a huge honour & privilege

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Darren Brown OBE

@darrenabrown

3 years

Was a pleasure to present this evening on #LongCOVID at #Physio21 but I need to make it explicitly clear: - Long COVID is not deconditioning - We need to differentiate phenotypes and not confuse post-intensive care syndrome (PICS) with Long COVID (side note: ppl can have both)

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Darren Brown OBE

@darrenabrown

2 years

5) Ive now returned to what was the new #LongCOVID baseline. But noticed improved smell/taste and lower resting & exertional heart rate now 🤯🤷🏻‍♂️. I feel like my body has been recalibrated, like it’s reacting more proportionally after re-infection. I don’t understand this.

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Darren Brown OBE

@darrenabrown

3 years

16 months of #LongCOVID and today I achieved: 🗓 1 month of working full time 👨‍⚕️working 6 days straight + oncall 🕺🏼dancing in my bedroom on Thurs (no setback)! Over time I’ve had 2 crashes 📉 2 vaccines 💉& lots of support. Could this be the💡at the end of an episodic tunnel🛣

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Darren Brown OBE

@darrenabrown

3 years

Hearing so many incredible stories of people slowly recovering from #LongCOVID with pacing as the rehabilitation approach used (including myself). Stories from different countries, settings and groups of people. Pacing really does work!

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Darren Brown OBE

@darrenabrown

2 months

I am overjoyed to announce I have been appointed to Officer of the Most Excellent Order of the British Empire ( #OBE ) in the Kings Birthday Honours List 2024, awarded for services to the @NHS and people living with #HIV and AIDS and people with #LongCOVID

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Darren Brown OBE

@darrenabrown

2 years

4) I knew the value of rest and time for recovery. This time I’ve properly rested. I’ve done some work on my computer. But I’ve remained in isolation and it’s permitted me time to heal. I didn’t do that in 2020. I was trying to exercise straight away. This time, I rested.

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Darren Brown OBE

@darrenabrown

2 years

10) Final add on … for those saying they will “watch and wait ” for my crash. That’s mean. See point 6. I’m not an idiot. I’m also not new to the rodeo. So I’d ask you kindly refrain.

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Darren Brown OBE

@darrenabrown

3 years

So everything the #MECFS community warned us about is coming true. Infiltration of #PACE trialists across responses to #LongCOVID without apology or transparency. Changing language to pull the wool over our eyes and further their agenda. And without checking, orgs are complicit.

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Darren Brown OBE

@darrenabrown

2 years

9) Lastly. I’ve re-learned prioritising life, love, and strength in connection. Triggers for change often cycle around health challenges. I hope this trigger is a further prioritisation of self-care and self-worth.

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Darren Brown OBE

@darrenabrown

2 years

7) I was previously appropriately fearful of reinfection because of how much round 1 COVID turned my life upside down. I now feel like I’ve got the personal resources to cope. I DO NOT want COVID again, and do not wish it on anybody. I will continue to live life safely 😷

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Darren Brown OBE

@darrenabrown

4 years

#LongCovid 🧵 I’ve worked in rehab for many years. I’ve spent my career promoting physical activity & exercise w marginal impact; most are uninterested. No matter what health condition, getting ppl to understand ⬆️moving = good, has not worked. But now I’m asking for caution 1/n

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Darren Brown OBE

@darrenabrown

4 years

My GP surgery just called me (unexpected) as I’m on a watch list for #COVID19 (which I think is awesome as I had no idea) ... and it’s official ... I’ve just been referred to a #LongCovid clinic ❤️🧡💛💚💙💜 🎉🎉🎉🎉 Faith in the system has just been restored. Feel emotional.

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Darren Brown OBE

@darrenabrown

2 years

6) Im cautiously optimistic for no longer term issues after round 2. I know I felt fine after the acute phase of round 1 (for a few months) before #LongCOVID hit. So I’m gonna be watchful, careful, and continue to pace, prioritise and plan.

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Darren Brown OBE

@darrenabrown

2 years

1) This was nothing like 2020. I had less symptoms, they were less severe. I still felt rough. But in comparison to round 1, this was much easier. Having both vaccine induced (x3 Pfizer) and natural immunity must have helped.

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Darren Brown OBE

@darrenabrown

3 years

With conservative #LongCOVID prevalence estimates at 10% … we can translate todays 78,610 new U.K. #COVID19 cases into 7,861 new Long COVID diagnosis on 9th March 2022. It will likely be higher numbers, yet this mass disabling event remains absent from pandemic narratives 😔

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Darren Brown OBE

@darrenabrown

3 years

So if #LongCOVID occurs in approx. 10-30% of cases … this would mean in 3 months time we’re looking at a range of 140k-420k new cases of Long COVID and disability due to new #COVID infections over the past 2 weeks … maybe we need to better #CountLongCOVID

Prof. Christina Pagel

@chrischirp

3 years

We've recorded 1.4m cases in England in last 2 weeks alone. Even if Omicron less severe we know *nothing* about its long term impact. Even if less likely to cause long covid, *hundreds of thousands* more people likely to suffer long covid - affecting them *and* economy. 13/18

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Darren Brown OBE

@darrenabrown

3 years

Thank you to everybody who is tagging me into posts. I’m currently off work sick with a #LongCOVID relapse, so I won’t be responding on social media at this time. Much love all. (PS: I will recover from this episode 💪)

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Darren Brown OBE

@darrenabrown

2 years

Tonight I received a Fellowship of @thecsp Thank you to all involved. I hope this award and accolade brings visibility, hope and change. #GlobalPT #Physiotherapy #PhysicalTherapy

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Darren Brown OBE

@darrenabrown

1 year

It’s becoming apparent that maybe we need to convene a collaborative of the good, sensible, and literate, to publish an outline of what SAFE and GOOD #LongCOVID rehab research looks like. Methods. Outcomes. Metrics. Success. Implementation. Whose game for some team work?

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Darren Brown OBE

@darrenabrown

2 years

3) I took my healthcare into my own hands. 🚨This is not advise. Don’t follow me.🚨 I couldn’t access anti-virals. But I increased my inhalers, I managed any rise in temperature with paracetamol, and introduced aspirin ( #teamclots ). Speak to a doctor, don’t copy me.

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Darren Brown OBE

@darrenabrown

3 years

This week I worked a full week (first time since Sept 2020), I did something fun one evening, I went out for dinner with my partner, and today I spent time out in nature (yes in London 🤯). I feel like things are really on a good trajectory #LongCOVID . #pacing does work!

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Darren Brown OBE

@darrenabrown

2 years

8) People can be amazing. The kindness, care, and compassion of others always makes my heart sing. Those who have checked in on me, sent kind words, or been available. Thank you 💙🙏🏻.

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Darren Brown OBE

@darrenabrown

3 years

Many w #LongCOVID are new to #Ableism that ppl w #disability endured for a long time. Share w me the #ableist phrase that gets you every time & your resolution request. Here’s mine: 🤦🏻‍♂️Phrase: “have you tried yoga?�� 🙏🏻Request: “Have you found things that help you?”

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Darren Brown OBE

@darrenabrown

4 years

Happy #PrideInside #Pride2020 to all our rainbow family and allies ... much love to everybody ❤️🧡💛💚💙💜🌈🏳️‍🌈 ... and yes I will still be dancing like this in living room this year #Physio #LGBTIQPhysio #GlobalPride #GlobalPT

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Darren Brown OBE

@darrenabrown

2 years

2) I was better prepared. I monitored my vitals (SpO2, temp, heart rate) regularly. I recorded and tracked my symptoms. I shared these with loved ones via a Google doc.

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Darren Brown OBE

@darrenabrown

3 years

I thought I’d developed thick skin over the invalidation, armed myself with evidence and literature. But when my self-management attempts were laughed off, despite 20 months waiting for this appointment, it naffs me off I’ve left with not much other than feeling belittled.

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Darren Brown OBE

@darrenabrown

4 years

I am so #PROUD to be a #Physio @ChelWestTherapy @ChelwestFT celebrating #WorldPTDay ... recognising the vital role of #Physiotherapy in #COVID19 and maintaining essential #Rehabilitation services ... happy World Physio Day #GlobalPT

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Darren Brown OBE

@darrenabrown

4 years

So the time has arrived. I was putting it off as I’ve not been clean shaven in 7 years ... but today I need to protect my patients, my colleagues, my loved ones, my community and myself @ChelWestTherapy @ChelwestFT . So it’s time for #MasksNotBeards #COVID19 #CoronavirusPandemic

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Darren Brown OBE

@darrenabrown

3 years

We have a @WHO clinical case definition of #LongCOVID . We have daily tracking and reporting of #COVID19 cases across the U.K. Why do we not have daily reporting of new #disability caused by #COVID 3 months after infection, and rates of recovery? #CountLongCOVID #DisabilityMatters

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Darren Brown OBE

@darrenabrown

3 years

An estimated 120 million people living with Long COVID globally (and more than 2 million in the UK), yet Long COVID remains absent from the dialogue surrounding the positivity of “mild” acute #Omicron . Disability matters. We need to better #CountLongCOVID .

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Darren Brown OBE

@darrenabrown

4 years

Today is my #LockdownBirthday and I’m so grateful to my amazing boyfriend who has done everything he could to make it the best day possible. Love you Carlos 🥰

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Darren Brown OBE

@darrenabrown

4 years

Signed off work for 2 weeks with post-COVID syndrome. In an effort to truly practice self care, I’m turning off all social media and emails. I will not be reading or replying to anything for this time. 👋

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Darren Brown OBE

@darrenabrown

2 years

@RhodaWatkins10 Me pre- #LongCOVID … not deconditioned, not unfit, not unwell, not co-morbid, not anything other than living life to the max. I’m lucky 2 years in, i’m now fully functional, through careful pacing, inhalers, and a shit tonne of supplements & rest

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Darren Brown OBE

@darrenabrown

3 years

Seriously ... what is this #CovidVaccine doing? I’m improving MORE #LongCOVID after 2nd #Pfizer dose 2 weeks ago 💙🎉 I just had to climb 2 flights of stars at the train station ... exertional HR 104 no symptoms ... 1 month ago same activity HR >160, breathless & exhaustion. 😳

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@darrenabrown

2 years

@EHRC We are working hard to scientifically demonstrate the disability experiences of people with #LongCOVID . There is however enough data already in circulation (eg: @ONS ) to demonstrate the prevalence of disability under U.K. Equality Act Disability Definition 2010 for example 👇

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Darren Brown OBE

@darrenabrown

3 years

I need this #LongCOVID

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Darren Brown OBE

@darrenabrown

4 years

@dcron09 Not sure of the source of this image. But hits the nail on the head.

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Darren Brown OBE

@darrenabrown

4 years

Tonight I got home and cried. I’m being openly fragile, as many of my #NHS colleagues, patients and their loved ones have been with me. In this uncertain time of #COVID19 , I can’t figure out why tonight I was more fragile than normal. I think it’s both happiness and sadness (1/n)

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Darren Brown OBE

@darrenabrown

3 years

Problem w post-exertional symptom exacerbation #PESE #PEM is nobody sees it. It’s invisible. Today I can’t get out of bed after 1min sit-stand test in #LongCOVID clinic Thurs. The difference between paced activities & exercise is academic to some. To me it’s my life & disability.

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Darren Brown OBE

@darrenabrown

1 year

Today I resigned from my job. I’ve loved my current job. And served in the NHS with pride and passion. I’ve accepted this new position and I’m super excited for the next step in my career. I’m changing paths to something new. And I’m genuinely exhilarated with this change.

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Darren Brown OBE

@darrenabrown

5 years

#PrideInLondon #GlobalPT living my best life ... I love being a physio so much!

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Darren Brown OBE

@darrenabrown

3 years

Today I got home after a weeks holiday exploring Suffolk & Norfolk with the boyf. We had an amazing time & loved the coast. I was also #LongCOVID symptom free despite being very busy & active. Here’s a beach pic 🧵 on a particular thought about the terms “tired” & “fatigue”.

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Darren Brown OBE

@darrenabrown

2 years

Im totally blown away with the sense of belonging, honesty, integrity and vulnerability that has been shared across day 1 of #LCPForum . Together we connected. And with that we are and will create change. I’m looking forward to day 2 tomorrow. #LongCOVID #FBLC #GlobalPT

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Darren Brown OBE

@darrenabrown

4 years

I feel so lucky to share my story with @thecsp #Frontline thank you for allowing me the opportunity and the space to talk about my experiences and #RehabHIV #HIVPhysio I’m also laughing so hard at my sunburnt forehead that matches my #PinkSocks 🤣🥵🤪

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Darren Brown OBE

@darrenabrown

5 years

@gareththomas14 Gareth well done for feeling able to speak about living with HIV. You are, as you have always been, incredibly strong and graceful. I wish you the best of luck tomorrow for the tough challenge with iron man. As an outstanding athlete I’m sure you will smash it!

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Darren Brown OBE

@darrenabrown

3 years

Today marks 365 days since I first developed symptoms of acute #COVID19 . One year of living with #LongCOVID . My #COVIDAnniversary . I was going to record a @LongCOVIDPhysio podcast to acknowledge the day. But my head is all over the show today with mixed emotions 1/7

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Darren Brown OBE

@darrenabrown

3 years

“Conceptualising #LongCOVID as an episodic health condition” #EpisodicDisability published in @GlobalHealthBMJ 🔓open access #GlobalPT #LongCOVIDPhysio @LongCOVIDPhysio @KellyOBrien25 #PatientLedResearch

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Darren Brown OBE

@darrenabrown

1 year

@BernieBissett @UniCanberra Your statement that there is “resistance to exercise” ignores @WorldPhysio1951 and @WHO guidelines. This is quite frankly neither what the #LongCOVID community wants, informed by research and evidence, or based on any guidelines. 😡

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Darren Brown OBE

@darrenabrown

1 year

Thank you @WorldPhysio1951 it is such an honour to receive the international service award #WorldPhysio2023 in practice. Thank you to all who celebrate, uplift and support. Together we connect to to create change #HIVRehab #LongCOVID #GlobalPT

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Darren Brown OBE

@darrenabrown

2 years

Just signed up for the #Panoramic study so here’s hoping for Paxlovid 🤞. Thank you everybody for all the love. I’ll be signing out for now 💙

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Darren Brown OBE

@darrenabrown

3 years

As the Chair of @LongCOVIDPhysio #LongCOVIDPhysio I’m proud to put my name to this collaborative #LongCOVID orgs open letter on behalf of our executive board, in solidarity with #pwME #MECFS , urging @NICEComms to #PublishThatGuideline without further delay

Long COVID Physio

@LongCOVIDPhysio

3 years

Today patient-led #LongCOVID organisations write an open letter to @NICEComms urging them to publish the #MECFS guidelines without further delay #PublishThatGuideline . We stand in solidarity with ME/CFS organisations and individuals #MillionsMissing

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@darrenabrown

3 years

Resting heart rate 68BPM. Walking a few minutes to train station my heart rate doubles. It’s done this consistently since having #LongCOVID . I don’t climb stairs at work because it rises to 180BPM. I’m waiting for an ECHO, CPET & Lung Function Test to see if there’s a reason.

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Darren Brown OBE

@darrenabrown

4 years

THIS IS MASSIVE 🥳 This year I was denied the opportunity to donate convalescent plasma after contracting COVID19 despite being in a monogamous long term relationship & having no risk of blood borne viruses I CAN’T TELL YOU ENOUGH HOW BIG THIS IS 🎉

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Darren Brown OBE

@darrenabrown

3 years

“Mild” acute COVID (as defined by WHO as the absence of pneumonia requiring pharmacological treatment, oxygen or hospital admission) is more likely to cause #LongCOVID among economically active, younger people and women.

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Darren Brown OBE

@darrenabrown

6 years

#PrideMatters because I’m able to be openly #gay in my profession #GlobalPT #LGBTIQPhysio @thecsp and work with amazing people ... but #LGBT + oppression is everywhere, #PRIDE gives voice to marginalised ppl in the fight for #Equality #Equity & #Inclusion #DiverseInclusivePhysio

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@darrenabrown

4 years

As I finish my night shift, I want to express how proud I am to be part of a local & global #Physiotherapy community #GlobalPT , who are stepping up during #COVID19 , acting across traditional & extended roles, & demonstrating the value of #Physio #GlobalPT #COVIDPhysio

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@darrenabrown

3 years

@WorldPhysio1951 Response to #COVID19 Briefing Paper 9 “Safe #Rehabilitation Approaches for People Living with #LongCOVID : Physical Activity and #Exercise ”

World Physiotherapy

@WorldPhysio1951

3 years

Our latest #COVID19 briefing paper focuses on safe rehabilitation for people living with #LongCovid Find out more: #GlobalPT @LongCOVIDPhysio @AWcpta @ERWorldPhysio @WorldPhysioNACR @WorldPhysioSAR

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@darrenabrown

2 years

This is so exciting!!! #LongCOVID Im proud to collaborate with @visible_health as an expert advisor They are impressively: 1️⃣ mission-led 2️⃣ patient-led 3️⃣ moving faster than institutions

Visible

@visible_health

2 years

Today, we're launching the Visible Beta app for #LongCovid and #MECFS . We want to make tracking your condition and taking part in research available to as many people as possible, as soon as possible. Here's more about what we're building:👇🧵1/7

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@darrenabrown

3 years

The new @WHO case definition of #LongCOVID #PostCOVIDConditions released today

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@darrenabrown

3 years

I feel like the @PublicHealthW COVID Recovery app for #LongCOVID still doesn’t get it. Exercise is not a cure all. This type of messaging can be so harmful and remains insidious in many responses to Long COVID. Our activist work is not done by a long shot. There’s much to do.

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@darrenabrown

4 years

I’m feeling like a broken record but I’m consistent in my messaging: @NICEComms cautions against graded exercise therapy for patients recovering from #COVID19 & living with #LongCOVID cos as a #LongCOVIDPhysio @LongCOVIDPhysio I’ve lived with the harm

NICE cautions against using graded exercise therapy for patients recovering from covid-19

Graded exercise therapy may not be appropriate for treating post-viral fatigue in patients recovering from covid-19, the National Institute for Health and Care Excellence (NICE) has told doctors. In...

www.bmj.com

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Darren Brown OBE

@darrenabrown

3 years

#LongCOVID needs safe and effective treatments #TreatLongCOVID beyond the recognition and measurement of symptoms, to ensure that the disability and life impacts can be addressed. This needs biomedical research to better understand the mechanisms causing symptoms & disability.

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Darren Brown OBE

@darrenabrown

2 years

Im enraged at the level of transphobia throughout Physiotherapy. Individuals, leadership, & more. I have zero words to describe how utterly disgusted I am at every single ounce of transphobia in our profession. It’s insidious & it’s endorsed by those at the top.

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Darren Brown OBE

@darrenabrown

4 years

3 weeks ago: Specialist #HIV / #Oncology #Physio 2 weeks ago: Physio deployed to acute medical ward 1 week ago: Physio with #COVID19 symptoms quarantined at home This week: Physio deployed to level 1 HDU for COVID & NIV I’m a PROUD #COVIDPhysio #GlobalPT versatilist

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Darren Brown OBE

@darrenabrown

4 years

My Friday evening is TOTALLY all about #NHSVirtualPride ❤️🧡💛💚💙💜🌈🏳️‍🌈🥳😘 ... much love to all our rainbow NHS family and allies

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Darren Brown OBE

@darrenabrown

3 years

Further tests today @KingsCollegeNHS finding further objective measures of impairment with #LongCOVID . Pleased i’m now beginning to get some sort of answers, as I’m finally being investigated. But that’s coupled with a sense of vulnerability at learning what’s wrong.

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Darren Brown OBE

@darrenabrown

3 years

Tonight’s @C4Dispatches #dispatches on #LongCOVID was sensitive and well pitched. It’s great to hear that the trajectory (albeit a long one) is that of improving, and the focus is NOT to push people. Let’s hope access to safe & effective #rehab is equitable for all

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Darren Brown OBE

@darrenabrown

4 years

My first attempt at a TeleHealth clinic today. Summary = failure. Technology issues at the hospital, technology issues for every patient. Can’t see. Can’t hear. Resort to phone. Can’t do what I need by phone 🤦🏻‍♂️... patience is a virtue. TeleHealth is not easy, it’s exhausting.

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Darren Brown OBE

@darrenabrown

2 years

It’s an honour to be awarded the @HIVandRehab Elisse Zack Award for Excellence in HIV Rehabilitation. It’s a privilege to be the 1st European & person from the UK, recognised alongside so many incredible leaders in #HIV and #Rehabilitation #RehabHIV

Realize

@HIVandRehab

2 years

Elisse Zack Award for Excellence in HIV and Rehabilitation: Darren Brown

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Darren Brown OBE

@darrenabrown

2 years

Emerging evidence of pathogen reactivation following #SARSCoV2 ; with flare ups of EBV and Herpes seen in #COVID & #LongCOVID . Could we translate learning from other knowledge areas? Eg: the presentation of Immune Reconstitution Inflammatory Syndrome (IRIS)? 🧵

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Darren Brown OBE

@darrenabrown

3 years

As we learn more about #LongCOVID quickly, whilst applying the lessons from other post-viral illnesses eg: #ME /CFS… why has @NHSEngland chosen a copy of pulmonary rehab as their example of Long COVID rehab?

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Darren Brown OBE

@darrenabrown

4 years

So many anecdotal reports of people living with #LongCovid having symptoms relapse after #CovidVaccine , for maybe a week or so, and then feeling much better. Me included. Super weird. Super interesting. Researchers TAKE MY BLOOD🩸 🙏🏻❤️

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Darren Brown OBE

@darrenabrown

2 years

Sending all my solidarity to @thecsp members striking today at our Fulham Road neighbour @RBandH … great to see stewards @JncPhysio @physioTash11 kicking off early to raise the need for #CSP4FairPay

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Darren Brown OBE

@darrenabrown

3 years

I know there’s no cure for Long COVID. I’m not nieve enough to think I’m immune from future relapses or episodes. I’m happy in this moment & feel that victories can be shared & celebrated. I’ll continue pacing, listening to my body, but thankfully also living my life 💙 (end)

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Darren Brown OBE

@darrenabrown

3 years

Exciting day: 2nd #COVID19 #vaccine #CovidVaccine received @ChelwestFT . After the 1st dose my #LongCOVID symptoms were worse for 1 week, but then alleviated after 3 weeks. The threshold I could exert myself ⬆️. Feels like that’s “wearing off” so I’m happy to get a “top up” today

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Darren Brown OBE

@darrenabrown

3 years

Thank you @physiopedia for this recognition and praise #LongCOVID . Acknowledgement from peers and #GlobalPT community means the world 💙. The @physiopedia team have been incredible. Thank you for everything you do.

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Darren Brown OBE

@darrenabrown

3 years

I am SO VERY EXCITED that a HUGE piece of work that has been in development since Feb 2021 … is coming *VERY* soon (fingers crossed this week 🤞). Watch this space #LongCOVID community. I’m really hoping this piece of work will have important value and impact 🤞

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Darren Brown OBE

@darrenabrown

3 years

@doctorasadkhan YES YES YES YES YES YES YES THANK YOU!!!!!! Physiotherapists and Psychologists are you listening!!! #GlobalPT DO NOT PRESCRIBE EXERCISE AND CBT FOR PEOPLE WITH LONG COVID, FATIGUE & POST-EXERTIONAL SYMPTOM EXACERBATION

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Darren Brown OBE

@darrenabrown

2 years

I’m looking for my next career move. I’ve worked in the NHS all my adult life and known no different. I’d love to hear some Twitter treats on transitions, change, and opportunities.

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Darren Brown OBE

@darrenabrown

3 years

What a fantastic start to the week 🥳🥳🥳 @GlobalHealthBMJ @KellyOBrien25 #LongCOVID #LongCOVIDPhysio #EpisodicDisability

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Darren Brown OBE

@darrenabrown

1 year

@BernieBissett @UniCanberra @ESSA_NEWS what patient and public involvement was conducted in the funding of this study, considering it goes AGAINST existing guidelines. I’m shocked this has been funded and frankly outraged our profession continues to push harm on people with energy limiting disabilities.

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Darren Brown OBE

@darrenabrown

5 years

Super excited to have received an @RainbowNHSBadge today @ChelwestFT ... it’s a really proud moment to be able to demonstrate that as a #physio #globalPT we at @ChelWestTherapy provide an open, non-judgmental and inclusive place for people that identify as #LBGT + #LGBTIQPhysio

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Darren Brown OBE

@darrenabrown

4 years

And I’m somewhat confused. I’m flummoxed. I’m dumbfounded. Now anyone appears to be rehab experts, promoting physical activity & exercise, despite calls for caution from lived experiences of potential harm from within & beyond, incl allies 2/n

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Darren Brown OBE

@darrenabrown

4 years

Asking for caution, or at least a period of pause, to reflect on good intentions and mitigate unintended consequences, is not a big ask. It’s kindness and an evidenced based approach, to do no harm. Surely that’s our duty 3/n

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Darren Brown OBE

@darrenabrown

3 years

Today 93,045 new #COVID cases reported. In 3 months (11th March 2022) if at least 10% develop #LongCOVID , another 9,305 people will join the growing U.K. mass disabling event. In just 3 days, at least 26,004 people will experience a new disability in 3 months time #CountLongCOVID

Darren Brown OBE

@darrenabrown

3 years

Todays new #COVID #COVID19 cases total 88,376. So that means 8,838 new #LongCOVID diagnosis on 10th March 2022. In two days that’s 16,699 more people with a new disability in 3 months time. We need to #countlongcovid and report the risk in daily figures #DisabilityMatters

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