Steve Chalmers @FStevenChalmers Twitter profile

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Steve Chalmers

@FStevenChalmers

9 months

@1goodtern My mother lost the central vision in one eye in her early 20's. The doctors dealt with it as best they could. She lost the central vision in the other eye in her early 40's. A few years later, leading edge research linked her Uveitis to the histoplasmosis she had at age 10

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Steve Chalmers

@FStevenChalmers

2 years

@yunatalks @Lanooba It was about 2009 when I realized I was in meeting after meeting with only men. It was disheartening. In my 20s I thought we had the problem fixed. I was wrong. Tech is far worse than it was 40 years ago for including women.

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Steve Chalmers

@FStevenChalmers

2 years

@morganstephensa My back of the envelope guess is that there are ~5 million people with disabling cases of Long Covid in Europe and the western hemisphere, and that the combined medical and disability-income cost of each, honorably, is about US$1 million That's US$5 trillion they don't have it

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Steve Chalmers

@FStevenChalmers

2 years

@morganstephensa When the people and institutions which had been denying and trivializing ME/CFS for decades pivoted this year to deny and trivialize Long Covid as well, it became clear to me that this was an organized, funded, disinformation effort. The only question is white vs black propaganda

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Steve Chalmers

@FStevenChalmers

2 years

@PJTheEconomist I think the reason why we are suddenly seeing so much disinformation saying Long Covid is always psychological and repeating the debunked nonsense that ME/CFS can be cured by GET/CBT is that disability insurers are terrified of their exposure Which I think is US$10 trillion

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Steve Chalmers

@FStevenChalmers

2 years

@moonshadow75 I suspect the reason why is very ugly: If Long Covid and ME/CFS are both real, there are about 10 million people in Europe and the Americas who need both medical care and disability income. Lifetime disability income is very expensive

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Steve Chalmers

@FStevenChalmers

2 years

@yunatalks @Lanooba Yes. When I started in Silicon Valley in 1980, I was in a fast growing company in a hot field, and the hiring mix was probably 40% women. As I aged in that same company, the mix drifted lower and lower until the last few years before I retired, only men were left in my sphere

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Steve Chalmers

@FStevenChalmers

2 years

@emilyesfraser ME/CFS isn't just marginalized, it's been the target of an active disinformation campaign to deny/trivialize for at least 30 years People doing that denying and marginalizing pivoted to do the same to Long Covid in mid 2022 Whoever is behind this (cui bono?) is driving wedges

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Steve Chalmers

@FStevenChalmers

10 months

@Paul_Wischmeyer @WesElyMD @mackinprof @TomVargheseJr @iceman_ex @drdangayach @iamyourgasman @laxswamy @CMichaelGibson @OGdukeneurosurg @Nephro_Sparks 1 in 3 patients walks into clinic with a complex chronic physical illness A special interest (litigation defense or disability income) has spent US$10 million to write disinformation into peer reviewed journals that this illness is always psych Physician believes disinformation

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Steve Chalmers

@FStevenChalmers

1 year

@EmLyWill @richardvallee It remains my perception that a disinformation campaign denying and trivializing ME/CFS has been under way for about 30 years The target of this campaign is first medical practitioners, with the seeming goal to dismiss patient complaints and never, ever write disability document

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Steve Chalmers

@FStevenChalmers

2 years

@Naomi_D_Harvey @TimHuttonAu “You can sway a thousand men by appealing to their prejudices quicker than you can convince one man by logic.” ― Robert A. Heinlein, Revolt in 2100/Methuselah's Children That's how these absurd positions on complex chronic illnesses get so easily accepted by mainstream medicine

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Steve Chalmers

@FStevenChalmers

2 years

@loscharlos that the science had not yet proven any harm from tetraethyl lead, and would not hear otherwise They were unflappable and stayed on message They worked for Ethyl corp, of course What you describe is not science debate It's dissemination of disinformation, plain and simple

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Steve Chalmers

@FStevenChalmers

6 months

@NeurologistMom 30+ years of disinformation directed at practicing physicians (and policymakers, public) denying and trivializing ME/"CFS", which "cui bono?" suggests benefited payers of disability income who would at this point owe about US$5 trillion of lifetime income to ME/"CFS" patients

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Steve Chalmers

@FStevenChalmers

11 months

Let's be clear: the anecdotal experience from #MECFS is that 1 in 10 people truly disabled by the disease, abandoned by medicine and falling through the social safety net, will suicide within a decade I expect the denial and trivialization of #LongCovid to have the same result

Paul Keeble ME/LC

@PaulRKeeble

11 months

As the research funds run out and the vicious press and psychologists move in I fear too many of the 100s of millions world wide ill with Long Covid will take their own lives. Obituaries were very common in ME communities before the pandemic and will be again. /1

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Steve Chalmers

@FStevenChalmers

2 years

@PutrinoLab This. Is. An. Active. Disinformation. Campaign. By. A. Special. Interest. In. An. Absolute. Panic. Over. Their. Financials. If. Long Covid. Is. Recognized. As. Real and Physical. The journalists may or may not know they're being used. Cui bono?

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Steve Chalmers

@FStevenChalmers

5 months

@Carnage4Life Opinion Only the call centers where agents are constrained by a process which could easily be automated, and disempowered from actually solving customer problems I don't think AI adds value in those cases AI will never be able to replace the call centers with empowered agents

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Steve Chalmers

@FStevenChalmers

2 years

@gemale10 There is an active disinformation campaign denying and trivializing Long COVID The advocates who have been denying and trivializing ME/CFS for 30-40 years suddenly pivoted in mid 2022 to deny and trivialize Long COVID. Mainstream journalists have been caused to amplify this view

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Steve Chalmers

@FStevenChalmers

10 months

@1goodtern Some other minimizers are simply doing the bidding of some set of payers of disability income, who if they met their obligations, across Europe and the western hemisphere, would have to pay lifetime income of about US$5 trillion to the roughly 5 million people disabled by LC

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Steve Chalmers

@FStevenChalmers

4 months

@dysclinic the disinformation campaign against ME/"CFS", pivoted in 2022 to deny and trivialize Long Covid as well, has captured that editor the journal system is broken but we all knew that thank you for doing the right thing

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Steve Chalmers

@FStevenChalmers

2 years

@MrkStdngr An important but unhelpful thought, from my early struggle with MCS 26 years ago. The smartest, most experienced people who had walked the path ahead of me told me, "You want this to be all in your head. Then you can do something about it." They were right. Mine is physical.

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Steve Chalmers

@FStevenChalmers

10 months

@SalvMattera This actually means 3 things: 1. We as a society can't afford the level of disability this implies. We have to understand this illness which can't possibly occur if the basic theory underlying medical practice and research is correct. And we have to be able to treat, or cure it

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Steve Chalmers

@FStevenChalmers

1 year

@MECFSNanoneedle Of course it wasn't science. PACE, and GET/CBT as an Rx for PEM, was always a pretext to turn million dollar disability claims into thousand dollar "medical" interventions. Follow the money, from the payers of disability income, to the creators of PACE.

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Steve Chalmers

@FStevenChalmers

1 year

@ShaneyWright Never forget, there has been an active, organized, funded disinformation campaign denying and trivializing ME/CFS for probably 30 years now Every visible action through intermediaries And that team pivoted to deny and trivialize Long Covid mid 2022 The pediatricians...

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Steve Chalmers

@FStevenChalmers

2 years

@PJTheEconomist This is across Europe and the western hemisphere In May 2020 my adult daughter was sick for a week (no Covid test), OK for a day, then rapidly descended into disability. In her case it was a rare autoimmune disease with a name. Her treatment has cost US$400,000 so far.

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Steve Chalmers

@FStevenChalmers

1 year

@Dan_Wyke Perhaps simply because: 1. Their profession has been immersed in disinformation for 30+ years denying and trivializing such diseases. Cui bono for the disinformation campaign is obviously payers of disability income 2. The disease mechanism contradicts dearly held medical dogma

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Steve Chalmers

@FStevenChalmers

10 months

@DisabledDoctor That, and special interests flooding the medical profession with PR (that's disinformation) to induce practicing physicians to disbelieve patients and psychologize when presented with complex chronic illnesses which would be very, very expensive for those special interests

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Steve Chalmers

@FStevenChalmers

8 months

@1goodtern Ummm...my back of the envelope is that there are about 5M people in Europe and the west truly disabled by ME/"CFS", and another 5M by Long Covid. Perhaps 5% of those are UK, say 500,000 cases. The fake science denying the reality of both is because there's no money to pay them

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Steve Chalmers

@FStevenChalmers

2 years

@ManvBrain Coercing patients to do GET even though a significant fraction of them will have permanent PEM disability made permanently worse by doing so And medicine can't predict who will be harmed this way Is an inhumane ruse by health and disability income payers to shirk what they owe

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Steve Chalmers

@FStevenChalmers

2 years

@loscharlos When I was about 5 years old, a very long time ago, my father, a chemical engineer, was at an industry conference The topic of tetraethyl lead came up. It was well known by then that the lead in fuel was harming people But two men in the audience stood up, and firmly insisted

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Steve Chalmers

@FStevenChalmers

2 years

@nataliesurely @newrepublic Here's the real problem, using back of the envelope math (not remotely journalism quality sourcing): Over the past 40 years, we have accumulated about 5 million people in Europe and the Western hemisphere with at least somewhat disabling ME/CFS PR denies and trivializes illness

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Steve Chalmers

@FStevenChalmers

5 years

@Robert_E_Kelly @Teri_Kanefield However, if you look at what is actually happening, the Trump fascist reality show is only entertainment/distraction, and the agenda of the plutocrats is being executed in the background in tax cuts, judges, foreign policy, deregulation, etc. Cui bono, always ask cui bono.

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Steve Chalmers

@FStevenChalmers

1 year

@dysclinic You raise a very valid point in research context There are two very important factors here: 1. Medicine and science do not understand the mechanism by which exercise causes PEM in a subset of patients, including worsening permanent disability. This is an ethics problem of...

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Steve Chalmers

@FStevenChalmers

9 months

@TimesONeill The disinformation campaign which has been denying and trivializing ME / "CFS" for at least 3 decades pivoted in mid 2022 to deny and trivialize Long Covid as well GET/CBT is simply one of their talking points Now dusted off and applied to Long Covid as well "Cui bono?"

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Steve Chalmers

@FStevenChalmers

2 years

@LowCarbLainey I remain convinced that the interests which have been actively denying and trivializing ME/CFS for 30+ years, and the interests which have been denying and trivializing Long Covid for about a year now, are the same interests. And that it's in their interest to divide us Unity

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Steve Chalmers

@FStevenChalmers

5 months

@1goodtern People who work in grocery stores, in customer facing roles on public transit (including not just buses and subways, but also taxis and railroads and airlines) Also people who work on farms with poultry and susceptible animals, and in meatpacking (butcher factories) for them

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Steve Chalmers

@FStevenChalmers

7 months

@catladyactivist you do know this has been an argument for about 50 years and that the whole "gas is better to cook on" thing which causes people to want gas cooktops is the result of a very old gas industry PR campaign, right? they had to ban good CO detectors burning gas indoors is a problem

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Steve Chalmers

@FStevenChalmers

11 months

@Nina_Steinkopf Disinformation is being written into the journals, and into the peer reviewed medical literature, for the benefit of terrified payers of disability income This causes patients to be thrown to the wolves These kinds of things have been done for generations It needs to stop

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Steve Chalmers

@FStevenChalmers

1 year

@MarekSJF The people running this disinformation effort are very good at their jobs and are getting pieces like this into respected publications on both sides of the Atlantic. Shame on the editors for being tricked into publishing disinformation.

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Steve Chalmers

@FStevenChalmers

8 months

@sunsopeningband “it is difficult to get a man to understand something, when his salary depends on his not understanding it.” - Upton Sinclair This hasn't been a science debate for a long time. It's been a disinformation campaign targeted at the medical profession by a terrified special interest

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Steve Chalmers

@FStevenChalmers

7 months

@shellchat @sunsopeningband I am very concerned that "effort preference" is a lead in to a propaganda campaign to physicians and policymakers that ME/"CFS" is a "learned behavior". That phrase worked very well denying and trivializing MCS back 25 years ago, and resonated with practicing physicians.

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Steve Chalmers

@FStevenChalmers

7 months

@ShaneyWright @guardian This isn't about the Guardian. Just used This was a worldwide PR campaign. Someone was afraid enough of this issue to spend real resources driving a disinformation message worldwide Yeah, we know who handled it in the UK. They are unimportant and we do not hear their words.

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Steve Chalmers

@FStevenChalmers

2 years

@StenHelmfrid Since at least 1 in 3 people walking through their door has a chronic physical condition medicine doesn't understand, that assessment is wrong most of the time. Needless to say, I have no patience for this job performance issue.

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Steve Chalmers

@FStevenChalmers

2 years

@coolpix_jpg I believe there's an active disinformation campaign, targeting public policy and the medical profession, denying and trivializing Long Covid. My back of the envelope is that in Europe and the Western hemisphere there are about 5 million people at least partially disabled by LC

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Steve Chalmers

@FStevenChalmers

7 months

@Huisarts_Vink It's a disinformation campaign, on behalf of terrified payers of disability income, not science. They've been denying and trivializing ME/"CFS" for 30+ years, including in the peer reviewed literature Accumulated about US$5 trillion in lifetime income liability for ME/"CFS"

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Steve Chalmers

@FStevenChalmers

10 months

@IsabelRamirezRD Never forget, all of these beliefs are traceable to a decades old disinformation campaign denying and trivializing ME/CFS cui bono? says the special interest behind the disinformation campaign is one or more payers of disability income "yuppie flu" was a PR coup

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Steve Chalmers

@FStevenChalmers

9 months

@JohnSin77034530 @1goodtern That was in 1970. She'll turn 95 next month. We had moved to San Francisco, and somehow she was taken on as a patient at UCSF medical center, where the relevant research was taking place. But that was a long time ago, and the tools were...primitive...compared to today.

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Steve Chalmers

@FStevenChalmers

7 months

@CovidCastaways I think a fraction of them are paid trolls, say getting a few cents for each post and several times that if they can get engagement, running at least 10 accounts simultaneously Yesterday's anti Long Covid recognition PR event was professionally done. Someone funded that.

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Steve Chalmers

@FStevenChalmers

11 months

@davidtuller1 As I've said so many other places, I believe this piece is part of the disinformation campaign denying and trivializing Long Covid, whose "cui bono?" is some payer of disability income in utter panic over their financial exposure if Long Covid is objectively diagnosable.

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Steve Chalmers

@FStevenChalmers

2 years

@jenbrea @ales_frost @danahaff An observation from a retired computer designer whose degrees (a long time ago) are in electrical engineering 45 years ago circuits got fast enough that we started having problems which looked like logic problems to some of the smartest minds in the industry They weren't

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Steve Chalmers

@FStevenChalmers

6 months

@MichaelCWilder @NIHDirector ROFL so obviously April 1. NIH has been in regulatory capture for so long, and it's so ingrained in the culture, that if this century's Pasteur actually found the novel disease mechanism underneath ME/"CFS" and Long Covid inside NIH, they'd be Semmelweis'ed, not get a Nobel

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Steve Chalmers

@FStevenChalmers

6 months

@PutrinoLab It's been a disinformation campaign all along Oh, there are true believers, and they are useful But this has never been about science, it's been about trillions of dollars worldwide disability income for people with ME/"CFS" and now Long Covid The patients? Collateral damage

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Steve Chalmers

@FStevenChalmers

1 year

@TraceyABurgess @exceedhergrasp1 @EmLyWill @NIH Cui bono? I think payers of disability income will use the results of this trial, written into the peer reviewed medical literature, as justification to shirk paying disability income on the pretext that (cheap) exercise would resolve the disability That's what PACE was for

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Steve Chalmers

@FStevenChalmers

9 months

@SalvMattera Do not forget the incentives Although my kids are in their 30s now, when they were in California public schools, the state funding wasn't based on enrollment, it was based on daily attendance to incent schools to prevent truancy remember post prop 13 schools depend on state $$

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Steve Chalmers

@FStevenChalmers

2 years

@ramyvaldes That's not a conspiracy theory In the words of the Godfather so many movies ago... "...it's just business..." welcome to feral capitalism I liked steward capitalism better

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Steve Chalmers

@FStevenChalmers

11 months

@dysclinic (Retired computer designer here, not someone educated in medicine. But my adult daughter was on high dose IVIG monthly and is now tapering; she's finally recovering.) It's a combinatorial solution to a combinatorial problem. Of course it will evade controlled experiment

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Steve Chalmers

@FStevenChalmers

2 years

@StenHelmfrid Methinks he (Garner) doth protest too much What are his sources of funding?

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Steve Chalmers

@FStevenChalmers

9 months

@PutrinoLab The whole PACE study supporting GET and CBT was disinformation written into the peer reviewed medical literature to provide cover for payers of disability income to deny $1M+ claims and say $1000 treatment would solve the problem Patients, and physicians, just collateral damage

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Steve Chalmers

@FStevenChalmers

3 years

@blgtylr Disagree. An aerosol scientist could explain this more accurately, but the essence is humidity in the air is in liquid form and naturally has metal salts dissolved in it. Those humidity droplets corrode the coin and the corrosion product goes to the air, which I then smell.

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Steve Chalmers

@FStevenChalmers

2 years

@jenbrea @ales_frost @danahaff Oh, and if a neurologist ever started talking down to me about there's nothing wrong if there isn't physical damage to the neuron, my response would be very dismissive of both him and his profession. If I kept my cool.

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Steve Chalmers

@FStevenChalmers

2 years

@EricTopol @LancetRespirMed Disinformation, via another credible source (sigh) "Cui bono?" is pretty obvious, as is their panic

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Steve Chalmers

@FStevenChalmers

2 years

@MillieBlattner 30 years of disinformation, denying and trivializing, seems to have had an effect I would ask "cui bono?" but think it's obvious who benefits to pushing $100 "solutions" on patients with million dollar diseases/disabilities

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Steve Chalmers

@FStevenChalmers

1 year

@DcrInYYC @LongCovidHell There is a recent paper, from Brazil if I remember correctly, about some psych research that accidentally stumbled over a reality that 25% of the population seems to have cognitive decline, it's just that in most cases other areas of the brain can compensate. Scary.

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Steve Chalmers

@FStevenChalmers

2 years

@MrkStdngr That "chemical rage" seems to be a momentary malfunction of the brain whose cause is physical, not psychological. I don't experience it (that I know of) but there are reports of it with Multiple Chemical Sensitivity as well.

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Steve Chalmers

@FStevenChalmers

1 year

@neganova_alina "cui bono?" the capital owning class is willing to take losses to the herd to ensure that the cash flow on their investments continues Payers of disability income face 5 trillion dollars of lifetime disability claims due to Long Covid. They don't have it. Deny/trivialize

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Steve Chalmers

@FStevenChalmers

2 years

@MrkStdngr So in my case, there were several years of learning what I could and couldn't do. There was becoming an objective observer of my own body. It was good to cross check with my wife (same sick house incident), and hard to let my then 7 and 3 year old children find their own limits

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Steve Chalmers

@FStevenChalmers

2 years

@jenbrea @ales_frost @danahaff conditions of inadequate / unstable power distribution So I will argue here that "FND" might be medicine's equivalent of computer designers' "electrical problems" Only computer folks figured it out in 5 years and some physicians still claim logic problems after 140 years

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Steve Chalmers

@FStevenChalmers

1 year

@sarahdayarts to add to your list: - disinformation denying and trivializing Long Covid, directed at practicing physicians and policymakers - systematic denial of disability income to those disabled by Long Covid

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Steve Chalmers

@FStevenChalmers

2 years

@DianeOLeary @nataliesurely "Cui bono?" The article clearly favors the viewpoint preferred by the payers of medical and disability income, who face what I speculate is 5 trillion dollars exposure if ME/CFS is proven real and physical, and another 5 trillion if Long COVID is real and physical

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Steve Chalmers

@FStevenChalmers

11 months

@LauraMiers The saddest thing about all of this is that the only way out of this for society is a breakthrough where we learn to treat Long Covid (and a dozen similar diseases) But instead, because of the way the payers of disability income are measured, masterful PR against that research

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Steve Chalmers

@FStevenChalmers

7 months

@Dan_Wyke The disinformation campaign, whose third target is the public, is over 30 years old The phrase "yuppie flu" going viral in the US, before the term "going viral" was a thing, was a PR coup They're pretty good at it: I didn't realize I was being PR'ed until the pivot denying LC

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Steve Chalmers

@FStevenChalmers

2 years

@KunstJonas In the right quantity, this is what disinformation in the peer reviewed medical literature looks like All you have to do is spam the platform with psych papers, creating the illusion of science consensus around psych, particularly if you can discourage physical cause papers

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Steve Chalmers

@FStevenChalmers

2 years

@StenHelmfrid The medical payers want $1000 solutions to $100,000 problems The disability payers can't pay about $10 trillion of disability income, so need an excuse to deny every ME/CFS and Long Covid disability claim These words provide cover for both "Throw them to the wolves"

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Steve Chalmers

@FStevenChalmers

6 months

@basarsarikayamd 35 years of disinformation (in the US, more in the UK) flooding practicing physicians, policymakers who set research priorities, and the general public denying and trivializing ME/"CFS" and now Long Covid to benefit payers of disability income facing US$trillions obligations

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Steve Chalmers

@FStevenChalmers

2 years

@PJTheEconomist The whole point of GET/CBT for patients with ME/CFS had absolutely nothing to do with the well being of the patients and everything to do with limiting the combined medical and disability income cost of a case to about US$1000. Insurer could deny further claims for noncompliance

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Steve Chalmers

@FStevenChalmers

1 year

@dysclinic ...created entirely as a pretext for disability insurers to turn million dollar lifetime disability claims into $1000 one time interventions. The entanglement of this research with the interests of payers of disability income has not been taken seriously. Physicians were...

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Steve Chalmers

@FStevenChalmers

2 years

@coolpix_jpg My back of the envelope is also that proper medical care (not abandonment) plus disability income for a single disabling case of LC is roughly US$1 million That's a US$5 trillion exposure for the national program payers and private insurers That's an existential threat

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Steve Chalmers

@FStevenChalmers

8 months

@ABrokenBattery @krishgm @JaneDodgeC4 Wow, that disinformation was delivered professionally to physicians, even back then Who could predict that the "cui bono?" for this disinformation, payers of disability income across the West, would face a US$5 trillion exposure for ME/CFS, plus US$5 trillion for Long Covid?

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Steve Chalmers

@FStevenChalmers

2 years

@nataliesurely @newrepublic In fact, I'd even call that PR disinformation My daughter's really wierd probable LC case turned out to be an autoimmune disease with a name and which was ultimately treatable Her care has cost her HMO US$400,000 so far Had she remained disabled, lifetime disability income...

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Steve Chalmers

@FStevenChalmers

5 months

@LauraRbnsn The first chapters of this book really helped me frame this seeming contradiction Raising the birth rate (of white people) is about getting votes for candidates and policies which benefit plutocrats, through fear & hate Plutocrats need the poor to starve

Let them Eat Tweets: How the Right Rules in an Age of Extreme Inequality

www.amazon.com

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Steve Chalmers

@FStevenChalmers

2 years

@cstroeckw It's a disinformation message, on behalf of payers whose liability for mental illness is small and whose liability for physical illness is quite large This is not a medical discussion, it's a money discussion by entities terrified they can't pay if LC & ME/CFS are real/physical

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Steve Chalmers

@FStevenChalmers

10 months

@StenHelmfrid My opinion remains that the PACE study was conceived, funded, and run to write words into the peer reviewed medical literature which provide cover for payers of disability income to reject all claims from ME/"CFS" patients Collateral damage to the patients and their doctors: OK

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Steve Chalmers

@FStevenChalmers

2 years

@ShaneyWright ME/CFS and LongCovid are both cascade failures in the human body. All we can observe are these large collections of downstream problems in the cascade, with a lot of variability which is anathema to modern medicine. /1

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Steve Chalmers

@FStevenChalmers

2 years

@moonshadow75 My adult daughter's medical costs (at absurd US billing rates, based on statements from her HMO) have cost about US$400,000 since the sudden start of her post being sick autoimmune disease in May 2020 If she stayed disabled, lifetime disability income would have cost millions

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Steve Chalmers

@FStevenChalmers

2 years

@calirunnerdoc @Brewsterlala @loscharlos It appears to me, an utter outsider, that visible faces who have been denying and minimizing ME/CFS for decades have pivoted in the last 12 months to deny and minimize Long Covid as well This indicates a paid disinformation effort

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Steve Chalmers

@FStevenChalmers

4 years

@shaft Interesting way to bias your pool toward the kids of wealthy parents who could do well enough in an expensive school, to the exclusion of the star students from tier-2 schools. And to bias your pool against those busting ass to work their way up from where they started.

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Steve Chalmers

@FStevenChalmers

1 year

@GeoEduOne The anti ME/CFS recognition effort won, and the medical profession and patients lost. Again.

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Steve Chalmers

@FStevenChalmers

1 year

@TomKindlon ...without ever pointing out that BPSM is used by proxies for payers of disability income, to create constructs which deny the reality of physical illnesses affecting millions, allowing those payers to shirk million dollar per patient lifetime income exposures

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Steve Chalmers

@FStevenChalmers

2 years

@jenbrea @ales_frost @danahaff Took about 5 years to figure this class of problem out If we unsoldered the part from the board, it was fine (no trouble found on autopsy) People kept insisting they had to be logic problems, and wouldn't take no for an answer Turned out they were "electrical problem", that is

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Steve Chalmers

@FStevenChalmers

7 months

@1goodtern There's been a denial and trivialization of Long Covid disinformation campaign since mid 2022, when those who'd been denying and trivializing ME/"CFS" for years or decades pivoted in near unison to deny LC as well Do you think this is a new campaign, or just more of the same?

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Steve Chalmers

@FStevenChalmers

2 years

@StenHelmfrid Never forget, this is simply an active disinformation campaign waged by a patient and well funded opponent with decades of experience in wearing its our advocates down. I have no idea if the people doing the attacks know they're part of such a campaign, or are simply encouraged

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Steve Chalmers

@FStevenChalmers

2 years

@jenbrea @ales_frost @danahaff Crickets Medicine has no concept of any of these things And there are about a dozen syndromes, going back to "neurasthenia" 140 years ago, which seem to me awfully like the vague semi repeatable symptoms which evade controlled experiments...which digital circuits act like under

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Steve Chalmers

@FStevenChalmers

1 year

@Dan_Wyke I still think what is happening in PEM is something medicine simply can't conceive of occurring, and which cannot occur if current medical orthodoxy (more precisely medical dogma) is correct. It would have been figured out long ago if the answer weren't in a prohibited space

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Steve Chalmers

@FStevenChalmers

6 months

@1goodtern Ooh, this could get controversial in a way it shouldn't But I've been following Emily Kopp's investigative journalism And while we'll never know all the facts (which are obviously classified here in the US) I nominate Dr. Peter Daszak and his company EcoHealth Alliance

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Steve Chalmers

@FStevenChalmers

2 years

@ECooperAuthor Never forget: People with ME/CFS are a 5 trillion dollar "inconvenient truth" to the collective payers of disability income in the Western world People with Long Covid are a second 5 trillion dollar "inconvenient truth" to the collective payers of disability income in the West

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Steve Chalmers

@FStevenChalmers

2 years

@fucklongcovid Yup My adult daughter was lucky, her (presumed) long COVID variant is treatable as autoimmune disease and she is (more or less) back to functioning But I would point out that not just post COVID but also ME/CFS, GWS, and a whole bunch of other syndromes simply cannot occur...

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Steve Chalmers

@FStevenChalmers

5 years

@Teri_Kanefield Well said. Any thoughts on my comments on that thread at that the 40% exist because Jane Mayer's "Dark Money" folks groomed them over 40+ years; that Trump hijacked those voters to get elected; they played Trump to get their project over the finish line

Steve Chalmers

@FStevenChalmers

5 years

@Teri_Kanefield Teri, perhaps it would be useful to consider the GOP as a collection of splinters, joined by harshly enforced rules about one set of talking points and supporting whoever gets nominated/elected no matter how much your splinter disagrees with theirs on policy

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Steve Chalmers

@FStevenChalmers

5 months

@Carnage4Life When I joined HP 44 years ago, there was already an effort to balance people count (including R&D) around the world in proportion to revenue at the country level It was customary to transfer a maturing product to one of the overseas teams, and redeploy everyone on its US team

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Steve Chalmers

@FStevenChalmers

2 years

@awgaffney With all due respect, the medical profession failed to find the physical disease mechanism underlying "neurasthenia" 140 years ago, and has psychologized at least 10 other syndromes since "cui bono" says this position benefits payers of medical expenses and disability income

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Steve Chalmers

@FStevenChalmers

11 months

@LauraMiers This letter is an element in a disinformation campaign. You document it beautifully; I had not realized his history

Response to Time Ideas Long Covid op-ed

On November 15, 2023 Time magazine’s Ideas section posted an op-ed from distinguished medical people, starting with the premise Long Covid…

medium.com

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Steve Chalmers

@FStevenChalmers

4 months

@loscharlos @NIHDirector @patientled @LongCovidSOS @long_covid @LongCOVIDPhysio Then kick the psychologizers out of the room and work on finding the physical cause The psychologizers are only in the room because your agency has been in regulatory capture for 30+ years by interests with trillions of dollars at stake if ME/"CFS" and now Long Covid are real

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