We're taking
#LongCovid
to Washington DC to demand the attention and response it deserves. You can help us get there, even if you cant make it yourself.
🚨New peer-reviewed study finds spike protein from SARS-Cov-2 virus blunts a vital pathway in tumour suppression.
“What we found was pretty clear,” explained
@weldeiry
“Spike protein inhibited important activities of p53."
Thanks to
@AdhesionsOrg
and
Until getting chronically sick with
#LongCovid
, I never realized how much false medical information is published in major news outlets for consumption by the masses. The level of lying and misdirection is astonishing.
I have
#LongCovid
and can tell you my body is rapidly aging. Losing eye sight, skin becoming wrinkly losing elastin, hair turning grey, developing two autoimmune diseases. Blood vessels dying. It's like they figured out a way to turn on a genetic process to accelerate aging.
SARS ages you.
Aging of the immune system in humans is characterized by a decline in both adaptive & innate immunity. Paradoxically, aging is also associated with a state of chronic inflammation “InflammAging” and an increased likelihood of developing autoimmune diseases.
"We now know what is actually happening at the cellular level is actually kinda scary" Dr. Li on Long Covid--If you understood just a little biology like me and you had read even half of the research papers on
#LongCovid
that I have, you would think you were in a horror movie.
I have been struggling with a cold for over a month - is hard to bounce back from illnesses more now due to “long covid” - have you experienced it? Dr. Li answered many questions I had tonight and we’re going to be doing this as a series, because I know a lot of you have reached
I have found that
#LongCovid
#Tinnitus
could possibly be related to
#microclots
. This study shows clotting causes tinnitus and treatment with anticoagulant Lovenox improved it by 50%.
#TeamClots
This is literally unbelievable. They've known all along that
#LongCovid
would be present after the acute phase. There should be criminal endangerment trials against all the people at the CDC and NIH in control of these decisions to let it rip without warning the population.
So I typed in most all of my out of range blood test results and symptoms of
#LongCovid
into
#ChatGTP
for an experiment. I asked it provide the diagnosis and treatments a doctor would consider? I never mentioned
#LongCovid
🧵 1/
@ChrisCuomo
I never had the vaccine and have long covid. So I just proved everyone wrong who says it's long vax. While people can be vax injuries, it's not always the case it's the cause.
I wake to another day of
#LongCovid
. My new onset arthritis reminds me I can barely squeeze my hands. My heart has strange pains shoot through it with a few skipping beats. My tinnitus rages through my head. My spirit sinks. I'm only awake for 5 minutes and havent left bed yet.
My cardiologist told me my hands had vasospasm. She said put my hands in hot water regularly, lol! I look it up and Vasospasm is caused by blockage of the blood vessels.
#teamclots
#LongCovid
Imagine this occurring in your organs where you cant see it.
Could
#LongCovid
#Treatment
be successful with a two pronged approach that achieved remission in
#pwME
? Anticoagulation and Antivirals AT THE SAME TIME?
#LongCovidAwarenessDay
I used to be fun. I laughed. I experienced joy. I was happy. That is all gone now. Happiness is but a distant memory. I have not recovered after 12 months and there is no prognosis that says I will. We need help to force
@NIH
to fund research for us
This is a yearly reminder that despite excellent studies finding
#LongCovid
biomarkers for endothelial dysfunction (related to POTS, mitochondrial dysfunction, immune dysregulation, autoimmunity & organ damage), nothing further has been done to make them clinically available
Two of the vascular biomarkers, ANG-1 and P-SEL, provided 96% classification accuracy for LC. Finally...great biomarker candidates!
SARS-CoV-2 is causing an endothelial (blood vessel lining) inflammation and damage in at least some people with
#LongCovid
. Why is this an issue?6/
@nihceal
Stop spreading misinformation, doctors dont have any treatment guidelines or tests for
#LongCovid
because NiH wasted a billion dollars and left patients on their own to suffer
I got my heart monitor results back. Supraventricular Tachycardia. I look it up. "In rare cases, SVT can cause sudden death." If I stop posting, you'll know what happened.
#LongCovid
This FDA commissioner says we are not profitable enough for drugs to be trialed for
#LongCovid
. You are just a $ figure to them and not enough of one to make any effort. They wasted (stole?) $1billion in RECOVER. Now they are saying you are just SOL.
@LisaAMcCorkell
@patientled
@IDEpiHeather
Rob Califf: this is an issue of net present value; what the market will do; There's a whole bunch of conditions that are not financially attractive right now, and I'm sorry to say that's what you're all [with
#LongCovid
] are facing now. 7/
REMEMBER LAST YEAR--they found capillary density reduced by 41% at 18 months post acute--that leads to cardiovascular & neurovascular disease, hypoxia, impaired cellular waste removal, organ and tissue damage--not a "syndrome"
After 1918 Flu, cases of encephalitis lethargica peaked in 1923, then declined over next 10 yrs. The Gov knows this & has decided to sweep us all under the rug & wait it out. We are expendable collateral damage in their bioweapon programs.
#LongCovid
Many studies have confirmed that patients with
#LongCovid
have vascular/endothelial dysfunction but there is not one clinical test to evaluate this dysfunction. It has been known now for 4.5 years and there is STILL not one test.
Why are there no targeted treatments for spike protein in
#LongCovid
? WE HAVE A BIOMARKER--"Out of the three SARS-CoV-2 antigens, the spike protein was the most common, having been detected in 60%—or 3 out of 5—of long COVID patients."
Yale says SARS-Cov-2 spike/viral debris found in brain, coagulopathy, and autoantibodies contributing to neuroinflammation in
#LongCovid
neuronal injury and brain neuroinflammation.
BREAKING NEWS:
@NIHDirector
has fired Avi Nath and Brian Walitt. She issued a statement: "NIH apologizes for gaslighting patients & is immediately appointing new staff solely focused on root cause research to actually find cures from this point forward."
#LongCovid
is a microvascular disease.
“The first thing to go are your smallest blood vessels… This will not show up on x-ray or CRP test.. your labs will look completely normal”
Did you know that completely eradicating Hepatitis C from the body w/ antivirals resulted in almost 90% remission of vasculitis in patients? Guess what other virus infects blood vessels and has been shown to be chronic? Do you know what RAAS Dysregulation is connected to? POTS &
It is now 4 years into the
#LongCovid
pandemic and there is no medical test for VIRAL LOAD? What did the
@NIH
do with the $1.15 billion? Who is responsible for this travesty? We should demand they be held accountable!
If you have
#LongCovid
you cannot rely on your doctor. Doctors are order followers who follow protocols from their associations/hospitals/ins cos. They are not true professionals with independent decision making ability. You are on your own unless the protocols r changed
It told me it would consider the following diagnosis: Vasculitis, Autoimmune Disorder, Chronic Inflammation, Hyperlipidemia, Vitamin D Deficiency, Iron Deficiency Anemia. 2/
FACT 1:
#LongCovid
can cause brain and organ damage. FACT 2: Viruses that cause brain and organ damage are not generally classified as a cold. FACT 3: C-19 can cause these issues independent of having a Vaccine injury.
#LongCovidAwareness
"The concept of microclotting is not something that has been taught in medical school in the last 100 years." Dr Jaco Laubscher
#TeamClots
This is why doctors cannot help those with
#LongCovid
#MedTwitter
Morning All. Do other people with
#longcovid
find their hair falling out sporadically? it's not on my head, thankfully but legs, arms, and chest? So weird.
It's like my hair just rubs off, like when you use Veet 😲 Which I've only used once, decades ago and not on my legs 🙃
Spike S1 protein found in Brain capillary endothelial and glial cells in dead vaccinated patient. No nucleocapsid of the virus found. NECROTIC ENCEPHALITIS, MYOCARDITIS--But, this also implicates pure
#LongCovid
imo, here's why 🧵
Nobody has explained the raging tinnitus that
#LongCovid
causes. A recent poll showed about 50% of Long Haulers have tinnitus. Are their nerves infected with persistent virus? Is the nerve infection causing
#dysautonomia
for long haulers? We need these questions answered
@NIH
Presence of SARS-CoV-2 in middle ear fluid and characterization of otitis media with effusion in COVID-19 patients (Omicron study)
➡️Middle ear infections due to viral persistence, some long lasting, as a possible symptom in C19 and during post-C19 period(Possible LongCovid?)
I have researched
#LongCovid
for about three months now. I am convinced the only way to beat this virus is to remove it and/or its spike protein (Vax injury too) from the blood. I have found only one way to do that. It is currently unapproved by the FDA.
...increased TSPO signal is consistent with neuroinflammation processes like glial activation, penetrating immune cells, or inflammatory activation of neurovascular endothelial cells. This is the whole-brain pattern of significantly increased PET signal in the cases vs. controls:
Living with
#LongCovid
is mentally like being on Death Row with an indeterminate stay of execution, but in the meantime you get to suffer with "sequelae" which translates into English as symptoms that ruin your entire life
Being a long hauler is lonely, especially around the holidays when there should be family, friends & joy. Instead, it's a modern day leprosy. We are shunned by society. There isnt much to be thankful for this ur for me but I'm thankful for all who have supported me through this.
This study revealed changes in multiple parts of the brain including the thalamus, putamen and pallidum, which equated to
#LongCovid
fatigue. Guess what else those parts of the brain are associated with...🧵
An important study on Long Covid "brain fog" by Dr.
@williamhu43
has significant implications for
#LongCovid
patients, finding:
--The study suggests the immune system's cells in the cerebrospinal fluid of Long Covid brain fog patients resembled expression found in viral
For VASCULITIS treatment: It said it would treat vasulitis with low dose long term corticosteroids (Prednisone, Methylprednisolone, Dexamethasone), immunosuppressants (methotrexate, azathioprine, cyclophosphamide, and mycophenolate mofetil) 3/
The German Health Minister, himself a doctor, warns: “Covid remains dangerous. It's not a cold that you can safely catch every season. Rather, it affects the blood vessels or weakens the immune system, which means it cannot be completely cured.”
#Covid19
Worlds first study following
#LongCovid
patients over time (longitudinal)--finds Viral Persistence is significantly linked to symptoms, including fatigue. Notably, this study used tissue samples like
@microbeminded2
talks about as the best way...
VASCULITIS Treatments Cont'd: It said it would use biologic agents (tocilizumab, rituximab, and infliximab), Anticoagulants (heparin/warfarin), Plasma Exchange to remove antibodies or "other inflammatory substances from the blood stream" ( SPIKE PROTEIN seems to fit here)
I'm thinking of starting a Long Covid advocacy organization because there arent very many advocacy organizations that have actually been helping those with
#LongCovid
.
Dr. Rae Duncan explains what is happening in the blood of
#LongCovid
patients. Most people do not know. More doctors need to come out with knowledge seen in their practices to let the public know so that people can understand the danger.
Did you know that 75% of the blood vessels in the body are microvessels? 14.5% are veins, 11.5% are arteries. Imagine the amount of havoc on bodily systems that spike protein can cause by damaging the microvessels.
#LongCovid
Where is the US
#LongCovid
registry? "The research team hopes that the registry they are making in New Zealand will provide hard data on the number of people living with long COVID and their experience and thereby "facilitate meaningful support."
This is my 2nd weekly notice that the
@NIH
wasted $1billion & has produced no biomarkers and treatments. They have a list of symptoms...for $1billion. And congress refuses to fund
#LongCovid
now. We were robbed.
I have been trying to warn the
#LongCovid
community for almost a year now that there is an agenda to sweep it all under the rug. This article says no further research needed, Long Covid is ME/CFS and that cannot be fixed. I told ya so.
I got syptoms of
#LongCovid
months after my infection in early 2022. I've since developed Arthritis, Hashimotos, pre-diabetes, pre-atheroslerotic plaques, dizziness, dysautonomia, fibrosis in my feet--just to name a few.
#Notrecovered
#LongCovidAwarenessDay
Do you dispute this diagram showing POTS, myalgia fatigue, breathlessness are caused by virus/spike causing clots that block capillaries reducing O2 leading to mitochondria/tissue dysfunction? If so, cite a paper with your preferred mechanism.
#LongCovid
RECOVER: "There is ample evidence for persistence of SARS-CoV-2 viral RNA and proteins in several tissues, including respiratory tract, GI tract, olfactory mucosa, and the central nervous system."
Sars2 accelerates biological aging and precipitates multiple age related diseases. It is not just me/cfs dysautonomia and mcas. This is much more than what people think.
Covid linked to deadly diseases, Parkinsons, Alzheimers, bowel disease
As Australia enters its eighth Covid wave, alarming new research suggests catching the virus could have long-term health implications.
Has anyone in the
#LongCovid
twitterverse been tested for neurofilament light chain (NfL)? Its a protein associated with nerve damage and inflammation-used as a biomarker to help diagnose/track progression of neurodegenerative diseases such as MS, Alzheimer's disease, and TBI
I've been to 3 specialists for Tinnitus. All said theres no treatment. Yet I find there is injectible steroid treatments with no side effects that have been up to 70% effective. It works by reducing inflammation. We know
#LongCovid
causes inflammation.
My psyche has been preventing me from facing the reality that this could be happening to all of us with
#LongCovid
to one degree or another. In some amyloid diseases, life expectancy is just 10 years. If amyloids are building throughout out systems, what does that mean for us?
1/Watching the senate testimony on Long COVID and I am overwhelmed by the recurrent theme of LC victims and their struggles with simply being believed
My late wife began exhibiting "flu-like" symptoms in January of 2012 of which the primary manifestation was easy exhaustion and
VASCULITIS Treatments Cont'd: It said it would use Angotensin-Converting Enzyme (ACE) Inhibitors, which treat high blood pressure and reduce proteinuria (excess urine protein) in some types of vasculitis
@EricTopol
@ahandvanish
@LisaAMcCorkell
@juliamv
@NatureRevMicro
Excellent review¡
ANTIVIRAL TREATMENT OF LONG COVID
2 out of 3 patients respond within a few days with
Tenofovir/Emtricitabine (Truvada or generic)
If there is Tachycardia/Myocarditis we include Mebivolol
For Drug-Resistance other antivirals must be added
LongCovid patients have developed capillary rarification. SARS2 infects pericytes, which are cells that wrap around capillaries, causing cytokine release that acts on other cells that collectively form the interior lining of ALL BLOOD VESSELS.
Somebody should be held resposible for all the damages cause by
#LongCovid
. It is undeniable that the genetic sequences in the furin cleavage site are man made. The odds are over 1 trillion to 1 against being of natural origin. Its math. Undeniable.
@TomFitton
Based on CCP’s documents, one important reason for making up the nature-origin theory is to avoid of liability!
“Although in theory compensation claims could be made in private international law, they in fact would face many legal hurdles and could not achieve the desired goal.”
Why is my tinnitus so excruciatingly loud at night? Its definitely 11 but during the day it fluctuates between 5-8. Does anybody know anybody that has cured their
#LongCovid
tinnitus?
Our latest STH article "Post COVID-19 Large Vessel Vasculopathy in a Previously Healthy Young Male"
🔬🧑🔬We discovered significant damage and scarring of arterial walls - less than 2 years after COVID-19 infection in a healthy, 35 year old male
#LongCovid
VASCULITIS Treatments Cont'd: It said it would use Janus Kinase (JAK) Inhibitors: Reduce inflamtions by targeting specific enzymes in the inflammatory process, examples include tofacitinib and baricitinib.
@ShaneyWright
Why is
@brucep13
the only Doctor to have a Long Covid blood panel? Why is he the only one noticing high Cytokines, S1 protein, Endothelial injury and attempting to come up with a treatment solutions while everyone else sits around doing "studies"?
My pharmacist told me he is filling 5 Paxlovid scripts a day & last month he was filling 5 a month. If SARS-Cov-2 was just a cold, people wouldn't be taking Protease inhibitors like in HIV & Hep C in droves.
#LongCovid
Do you have hands/feet that look like these in this picture? I do. Please let me know in the comments.
#LongCovid
@Diagnosis
#ViralPersistence
But...this is a picture of a different infection.
Yesterday I had to brave a trip to the DR/RX for an opportunistic mouth infection causing swollen gums/black tongue. There were people coughing and sneezing everywhere. It's disgusting how society just thinks this is OK.
#LongCovid
"If you decrease VEGF, Patterson said, the neuropathy goes away, and so does the vasodilation and the headaches, tinnitus, brain fog, and heat and cold sensitivity, that comes with it." Has anyone with
#LongCovid
reduced their VEGF and saw these symptoms go away?
Serum Amyloid A has been found in Spike Protein produced
#microclots
. SAA amyloidosis has a 10 year median survival rate. It has not been established that Spike amyloids only affect some people. Indeed, it may be a ticking time bomb of
#diedsuddenly
in billions.
#teamclots
How can
@NIH
RECOVER spend a billion dollars on research and not confirm the existence and viral load in resovoirs first? This is year four and they are still researching meditation and yoga. There are statutes against government waste fraud and abuse.
#LongCovid
The linked article goes over several medications that attempt to treat a second theory of damaged hairs cells due to ototoxic medication--here, possibly the spike protein. OTC Ginkgo Biloba may help too.
This is a review article (not a study) saying that the viral persistence in Long Covid is basically caused by obesity. The theory is that the immune system is dysfunctional due to chronic inflammation from obesity, which causes delayed viral clearance. Weak article IMO.
Same story year after year. We need a biomarker then we can find treatments. Now they r sayin four more years away from being able to treat
#LongCovid
.
Cats already have antivirals for the equivalent of
#LongCovid
in cats, its called Feline Infectious Peritonitis (FIP). GS-441524 (or Remdesivir) is the primary antiviral medication used for FIP Treatment with GS-441524 shows promising results, with reported success rates
Never ceases to amaze that I can take my dog to the vet and have such an evidence-based discussion about persistent pathogens, biofilm formation and precision medicine approaches to deal with these issues. Objective, up-to-date clinical care. Meanwhile, in humans:
Renal artery infarction in the SARS-Cov-2 era: A systematic review of case reports
Rare, but maybe increasing, the normal ethiology being Atrium fibrillation, not your culprit anymore, but
#Endothelitis
.....there we go again!
➡️"Recently, the SARSCoV- 2 virus is an emerging
Peluso knows and the Heinrich scans are jaw dropping. Wake up everyone before it's too late.
#LongCovid
is a CHRONIC INFECTION. Now...if there is silent attack of organs going on like in Hepatitis, Billions of lives are at risk.
New
@UCSF
#LIINC
paper: immune activation & viral persistence in tissue up to 2 years post-COVID. Found double-stranded RNA in
#LongCOVID
, suggesting active reservoir persists and evades immune clearance. Thanks
@polybioRF
,
@NIH
for support.
@ScienceTM
If people realized how horrible
#LongCovid
actually is, they would look at this tower like I do and have tears well up in their eyes, knowing all the suffering that millions are going through. Thank you CN Tower for raising awareness.
Tonight the
#CNTower
will also be lit teal, grey and black for International Long COVID Awareness Day / Ce soir, la
#TourCN
sera également illuminée en bleu sarcelle, gris et noir pour la Journée internationale de sensibilisation à la COVID longue.
#LongCovid
#Microclots
Has anyone that has taken Nattokinase for a few months or so and then retested their S1 level through Patterson noticed a reduction in S1 levels? Please DM me if you dont want to respond publically
Many people with
#LongCovid
believe that
#microclots
play no role in POTS but cannot explain why NK, LK, and SP scored so high on improvement surveys.
#teamclots
I just read a review paper that said if you have a chronic inflammatory disease, you will probably have a poor reaction to vaccines. It cited 4 other papers. Just FYI.
#LongCovid
A year ago 5 (40+ year old) sorority sisters planned a trip to Turks and Caicos.
Two days before the trip one of the Sisters who had recently “recovered” from Covid experienced extreme pain in her calf and went to Urgent Care. 1/11
Many people think autoimmunity is "triggered" and the pathogen leaves the body. But, here we see the opposite, autoimmunity cured by treating chronic pathogens.
#LongCovid
Just so you know, Daszak is leading the NASEM effort to define
#LongCovid
as a post infectious disease. No long covid org or so called community leader with 20k followers even bothers to mention this FACT. There is something wrong and these so called leaders and orgs are suspect
20 million killed. 25 trillion dollars lost.
Due--beyond reasonable doubt--to the actions of four researchers and research administrators who placed their egos and careers over the lives and interests of 7.9 billion: Zhengli Shi, Peter Daszak, Anthony Fauci, and Francis Collins.
Since I got
#LongCovid
, I've developed these red half moon nail signs under my fingernails/toe nails. Does anyone with LC have these? Anybody recieved a diagnosis for this?