Mum to ND kids, Lead SLT in Shrops CAHMS
@mpftnhs
, SI-SALT Advanced Practitioner. Former teacher. Interested in SI, SLCN & ND 🤩 All views my own. She/her
"The Navajo tribe views a person with a disability as a teacher for the clan, one who brings special lessons to the tribe and who offers a sixth sense or a unique gift (Medina et al. 1998)." - ❤️
@SENDconsultant
@gfreeman2012
@neuroteachers
(see )
Cognitive behaviour therapy (CBT): in other words, changing someone's behaviour by changing faulty thought processes. Well, what if my thought processes are fine, & it's my environment that needs fixing🤔? Then CBT is not going to work, & could make things much, much worse.
I interviewed autistic teenagers about their special interests for my dissertation. This is what they had to say about school environments. Next to the💚are ideas that offer support, so that everyone is included
@autisticrealms
@NDConnectionUK
@educationgovuk
@Ofstednews
Do other SLTs end up with lots of emails to themselves over the weekend with really useful links & resources gleaned from the ever generous twittersphere? 🤩 ideas on how to record as cpd? That's where I fall down
@RCSLTLearn
1/4 CBT should not be a gold standard for Autistic CYP. "For Autistic individuals with anxiety associated with sensory input, distress can result from being exposed to the sensory stimuli, and also in anticipation of being exposed."
/1 Sadly our 12yo autistic CYP was excluded today 😔. The saddest thing is this was because of his autism, & an autistic meltdown. It makes us so sad, angry & frustrated. This tweet is about giving him & other autistic CYPs a voice
@NotFineinSchool
@_MissingTheMark
@naomicfisher
I have huge problems with the word 'resilience'. To me it means coping in a situation that doesn't feel natural, comfortable, safe. We might be 'trained, persuaded & rewarded' to be resilient, but this isn't our true nature. Energy is taken, if pushed too far, too long, we break
1/9 Listening to autistic teenagers talk about their special interests has been an epic & joyful adventure. My MSc research=getting those voices heard. Many 'thank yous', above all to the teenagers involved, their families, & my own YP for the inspiration
SEND parents have jobs, families, a life outside SEND. It can often feel like a complete other full time job, just dealing with the phonecalls, letters, emails, mtgs with multiple agencies. Please remember this, see the pressures we are under & show you understand.
@teamsquarepeg
As a therapist, I'm not here to fix or make better. That notion implies something is 'wrong'. It sits within a medical model. I'm here to help others achieve outcomes that are meaningful for them; to respect autonomy; to facilitate, not direct.
1/7 Being at/going to, school is not the same as learning. Therefore, finding school difficult, does not mean a dislike of learning. We should be mindful of not conflating these 2 concepts & avoid sensationalist rhetoric, for whose gain?
@DrRuthMoyse
@DrChrisMooreEP
@ReachoutASC
Instead of 'Behaviours that challenge', or 'challenging behaviours'...I really don't like either, as they imply some element of negativity/ judgement. What about, 'behaviours that communicate (a) need?'. To me that's what they do. It's our job to listen
@RCSLTLearn
@PBSuk2
This is 1 of 4 themes from my MSc research on autistic teenagers' passions/special interests, shared in their words. Their passions help them to thrive. We need to think how we word reports & talk about these passions in general. So much more than 'repetitive' & 'restricted'
It's important that we avoid the 'super power' analogy in describing neurodivergence. It's better to talk about 'spiky profiles'. This helps to work towards equity, & avoids 'gas-lighting'. Context plays a huge part in individual experiences. We must listen, not judge or assume.
1/10 BEHAVIORISM is rife in our school & health systems. Look beyond the glossy websites, the cheerful photos, the chatty newsletters, the push & pull of rewards & sanctions nestles 'harmlessly?' 'It's what we've always done.' Yet, when we know better, surely we should do better?
"Strict uniform, regulations on how you walk." Schools are not, nor ever should be 'boot camps'. This is not about 'equality', or 'preparing for adulthood', it is simply oppression. 'You, CYP, will do as we say, bc we are superior'. This is 'childism' & it is rife in education.
@redgierob
I just find secondary school rules so Draconian. My Y8 son full tie, shirt, blazer all week. If he didn’t, would be detention. Updated behaviour policy for this year. Now they get detention if they walk more than 2 abreast in the corridors. No wonder he isn’t keen on school.
As SLTs we need to move away from 'fixing' or 'curing'. That assumes we know best. I believe it's more important to support individuals to achieve meaningful goals for them. This may = similar outcomes. The 🔑 difference is we listened 1st & didn't presume
@RCSLTLearn
1/4 An autism diagnosis is much more than just a ‘label’. If you’re autistic, you’ve been autistic your whole life and you will gradually become aware that you experience the world in a different way to many of your peers.
@AutisticGirls_
@MrTs_NQTs
"Autistic adults reported a preference for online/ text-based appointment booking, facility to email in advance the reason for consultation, the 1st/ last clinic appointment & a quiet place to wait."
Useful thoughts for access to CAMHS 🙏
@AutisticDoctor
If you're unable to go to school because of trauma & anxiety, the last thing you need is a representation of those experiences come to your safe space of home. This also affects teachers whose training never covered this. When will politicians stop meddling in education?
/1 I'm seriously asking, can anyone out there truly say they have found an educational setting that understands, inspires & genuinely cares about neurodivergent young minds? That doesn't have behaviourism hidden in its policies, or try to treat all autistic individuals the same?
Just saying, if you're a small voice, saying & sharing neurodivergent-affirming practice, in whatever way you are able, you are making a difference. You will be heard by someone. They too may have a quiet voice, but hearing your words, means to them that they are not alone. 💜
Seriously concerned by this advert. 'Stages & sequence of interests"? What rubbish! Then a promise to help others 'reduce' them. I can detect behaviorism hiding in plain sight. I wonder what 'robust evidence' is quoted 🤔. This looks like a webinar to avoid!
Join us on 2 July at 9am UK for ‘
#Autism
; The origins of the special interest & misuse of the interest’ with Prof. Tony Attwood.
Learn strategies to make constructive use of the interest or to reduce the dominance of special interests in daily life.
"Therapists flocking around distressed school students no doubt mean well. Yet they often treat symptoms, not causes, and position problems within young individuals instead of within adult-run systems, and so increase the problems." 👏👇💯%
There is not a week that goes past where I don't dip into both professionally & personally. If you haven't seen it before, check it out. Scroll right (alphabetical topic order) & scroll down each tab for even more. It is truly Epic & Autism affirming. ❤️
Some VERY UNSAFE advice around stimming
@Autism
😔 "Autistic people should be encouraged to reduce or stop the behaviour before they reach an age where it’s not acceptable".😔 Check out
@drstevenkapp
instead
1/11 A thread on the presentation I did for
@TalkingMats
#TMMySenses
. It's all about energy accounting. The energy we need for processing sensory information during everyday activities. I'll explain 'spoons' next. Huge🙏 to the original 'energy' spoon creator👉
@bydls
Thought. What if as speech therapists we did not judge another's communication, but amplified their thoughts, ideas, hopes, wishes to ensure their voices were heard. Facilitators, not gate keepers.
young autistic people say the same. A quote in my dissertation about schools, ‘noises everywhere, bright lights, bells and people’-now look at the top 5 sensory issues rated by autistic adults. When we know better, we MUST do better
@NDConnectionUK
@TalkingMats
@NotFineinSchool
"Some sensory issues may be more pronounced for autistic people with intellectual disabilities but more difficult to assess from the perspective of an onlooker unless clearly indicated through the autistic person’s actions."
Tomorrow is
#DLD
day. DLD is part of neurodiversity as is shown in
@FORRTproject
brilliant visual. Disorder is a difficult term for many ND individuals, so I often use 'difference'. Help is about listening, respecting, collaborating, facilitating
@RADLDcam
@DLDandMe
@NAPLIC
@Fiona_Clarke_
Excellent webinar & actually the inspiration for my tweet. The difficulty I have is that often the understanding is that autistic experience needs fixing. There is so much unlearning that needs to happen. I'm so excited for the
#NATP
@AFNCCF
@AT_Autism
@JoPavlopoulou
1/10 Supporting young people through a meltdown. What does not help and can lead to burnout, and what does. A thread inspired by our lived experience as a family with our
#ActuallyAutistic
YP. For ALT text, see notes on this link
Spoons=energy. We don't always see 'spoons' being used up👉sitting still, coping with noise, bright lights & cognitive demands. We can lose spoons. Result👉shutdowns, meltdowns, burnout. We may only see this in 'safe' spaces (home)
#FlipTheNarrative
👉spaces for safe conversations
A fascinating and insightful "Save our Spoons" presentation from Lisa Chapman
@CommonSenseSLT
Spoons = the energy we use from our activities & experiences - and it's all about balance. So important to "listen to YP & their ideas to help them feel better."
#TMmysenses
1/2 Situational Mutism & Selective Mutism: comparisons & cross over. For image ALT text, see the nots on this link
Numbered references in tweet 2/2
All thoughts very welcome 🙏❤️
FYI school is absolutely NOT the best place for every child. I have experience of schools failing CYP wellbeing as a parent, ex teacher & AHP working with school-age CYP. Have you tried talking to the 1000s of us who say the same? You are either naive, incompetent or both.
I want every child to be in school every day, because it’s the best place for their educational outcomes & their wellbeing. I’m pleased to see the steps announced today by
@educationgovuk
which aim to intervene more quickly & earlier where there is poor attendance. 1/3
1/7 I often hear talk about emotional regulation in
#CAMHS
. A lot about when it's not happening, then how to do more & better, What is often missed is the whole picture. Who decides what regulated looks like? How do you regulate an emotion, if you're not sure what it is?
👏
@naomicfisher
I've sat in mtgs as a professional, where my opinion mattered, was sought & valued. I was called by my name. I've sat in mtgs in the same schools, with the same staff, been told we (parents) were the cause & I was just 'mum'. The double standards were appalling😔
We don't recognise so much of the work that parents do, and we don't see how their views are valued less than the professionals who write the reports and do the assessments, because 'mum' can't have an objective view or even reliably fill in an observation. 8/
1/4 Would you stick in a job where you were constantly told you were a failure, had no free access to a toilet, could only move & talk to others with permission, were isolated for breaking any of these rules? Or would you leave
@educationgovuk
? 🤔
@teamsquarepeg
@NotFineinSchool
1/21 Autistic and Neurodivergent (ND) Overwhelm, a 🧵 - understanding what's involved, what you might see, timeframes and how to help and some personal learning on the way for me as an SLT
@rcslctlearn
@CPD_RCOT
@asi_wise
1/ Beware Positive Beahaviour Interventions, a relative to PBS. Users have vocab like, "gentle, safe, controlled'. Describe touch as, "guide, embrace'. Give holds number "levels'. Yet all this violates the human being they are used on, dehumanises, disrespects, traumatises. Why?
4/4 "Graded exposure actually causes the Autistic individual further distress & potential trauma because their sensory systems do not become desensitised with repeated exposure. Yet are still regularly used due to lack of understanding of Autistic experience."
A Neurodiversity-affirming Advent Calendar from
@CommonSenseSLT
@autisticrealms
. Our theme is love 💜. Throughout advent we will be highlighting lots of resources informed by, written and collected with love from
@Spectrum0Gaming
Email from our school. 'It is good to hear that students are saying they are doing, on average, 1.5 hours of additional revision an evening, some are doing nothing' this pressure is NOT OK. 1.5 hours extra after a full day at school is NOT OK, or sustainable.
@teamsquarepeg
😔
Every
#CAMHS
practitioner should be aware of
#Alexithymia
. One of many reasons why
#CBT
can be inappropriate. A big role for
#SLTS
in Mental Health to champion awareness amongst colleagues, whilst supporting CYPs & families to understand, explore & ask questions
@RCSLTLearn
.
This is the best thing I have learnt about my neurodivergent brain… 🧠… I feel every emotion with 100% intensity. Sometimes I just feel sooooo many emotions all at once that it feels impossible for me to explain how I’m feeling..
Masking in autism is often associated more with girls than boys, but I believe many boys mask too. It's important for professionals to take time to hear whole narratives, most importantly from CYPs, families & carers. These are as valuable as any formal report
@NotFineinSchool
I cannot have neurodiversity, no more than I can have biodiversity. A forest has biodiversity, a myriad of different ecosystems & organisms. The greater the biodiversity, the stronger the forest. The human species has neurodiversity. Each of us unique, yet stronger together.
My difficulty with reasonable adjustments is that CYP generally have to suffer/ prove they need these 1st, before they are provided, & even then this is all too often sporadic, worse used as a reward. Let's just make adjustments now, for all. It's called universal design.
Neurodivergence describes functioning of the central nervous system & mind, that diverges from a societal standard. You can't have neurodiversity. If you're neurodivergent, your whole body is neurodivergent. This is true of any neurodivergence: autism, to dyslexia & stammering
Individuals waiting for autism/ADHD diagnosis need both pre & post diagnostic support. There's so much that can be offered whilst waiting. It then makes sense to aid safe exploration post diagnosis. The fact that MH services rarely offer either is crazy
I had to describe my AuDHD child's school masking to a psychologist yesterday and I came up with a pretty efficient analogy. At school she is beautiful origami. Everybody loves to look at the origami, and marvel at how pleasant it is, but nobody thinks about the complicated...1/4
This is not about young people or humans in any way. The pronouns, the vocabulary 'dealing with", the dismissive tone all dehumanise. The problem sits with the person speaking, the policies & institution represented. If this is the tip of the iceberg, SEND is in perilous hands
Cllr Hammersley responds to being told that children with SEND were institutionalised with "they must have had better ways of dealing with them. Let's go back to some of those ways"
Avoid, avoid, behaviorism alert. Look beyond the titled author and you see someone with privilege dictating behaviour expectations, advocating praise and punishment, bullying to do what another deems is best. This is ABA in all but name.
Active ignoring is one of the best ways to reduce attention-seeking behavior. But remember, active ignoring takes time and practice to perfect. Some caregivers also work with a professional trained in effectively utilizing active ignoring.
These tips come from a conversation
@AutSciPerson
IMO self-identification is equally valid at any age. So much time & expense on yes/ possibly/ not sure; tentative murmurings, avoidance of direct discussion. Diagnostics is so often unobtainable in a timely way, or 'empty', with few 'spoons' / finances left over to seek support
Updated resource 💜 Including reference to Haydock, A., Harrison, L., Baldwin, K., & Leadbitter, K. (2024). Embracing gestalt language development as a fundamental neurodiversity-affirmative practice. Autism, 28(5), 1055-1059. 💜
1/4. Echolalia, Scripting & Gestalt Language Processing. A resource to encourage curiosity, to go beyond noticing a 'label' & really think about communication. This is about tuning into another, to really know them. What better way to show love
@RCSLTlearn
2/7 Schools are physical environments. They are frequently loud, bustling, bright, visually & people-crowded spaces. A sensory roller-coaster: some predictable points, but stomach churning on route for many.👉 We need physical safety for all; equity for those who need more
1/3 Why “Screen Time” Can Be Good For Autistic Children
"If your child loves screens, lean into it, & use it as a way to connect with them. What is it that your child really loves doing on screens? Do more of that." 👉
@RCSLTLearn
@DivergentSLT
Visuals don't have to be printed/ laminated. Loved sharing how to use a 'now & next' board today: thick paper inside a poly pocket with a pad of 'Post-It' notes. Instantly flexible, renewable, recyclable & in the moment; just like communication 🤩
@RADLDcam
@NAPLIC
@neuroteachers
Why do we need more SLTs in MH? SLTs are trained to listen & are passionate about giving others a voice. Client autonomy & self-advocacy = core to SLT practice. So much of
@EmilioLees
fab checklist of 'things to say in therapy' are SLT skills
@RCSLTLearn
@Melaniespeechie
@RogersHistory
@rallott
@naomicfisher
Naomi is doing an amazing job at amplifying voices that otherwise are often not heard or valued. We cannot & should not ignore the distress of the youngest people in our society. I taught, & now work alongside education, I see this distress too. The message for change is clear.
#ActuallyAutistic
empathy - youngest came to the door of my room yesterday. Opened it, made gazillions of kisses in the air, & exclaimed he'd filled my room full of kisses for me. He then closed the door to keep them in. 💜
@jester
Our son excluded 2x Y1. EHCP only in y5. Multiple exclusions before & after, 15 in total. EHCP gives no protection. Special schools equally appalling, poorly staffed, no understanding of autism. Now having funded online learning 👉 loving 1st chance to learn in a long time
1/10 'Knowing me in the full sort of picture': A participatory sense-making account of autistic teenager wellbeing through their insights into their special interests
A poster of my my MSc dissertation
@sheffhallamuni
. ALT text in the thread below.
@RCSLTResearch
@MPFTResearch
Our son is special, not because he has an EHCP, or autism & dyslexia diagnosis, or attends a specialist setting. He's special because he's our son, & no more or less special than are other son. All CYPs are unique & have so much to offer. That's worth remembering
@teamsquarepeg
🤩
The trauma you experience as a parent of an SEN CYP caused by systems is cavernous, matched only by the yawning gap in the lack of empathy & compassion shown by the systems for the harm they cause. The system's drive for quality fails to include 'human'
"This is probably as big as the post office scandal" one person comments. "It's all about money" another says.
"It's all about risk" Professor Luke Clements says.
The
@lawcommission
is currently reviewing the law and guidance relating to disabled children...time is ticking 🕑
"In the context of Autistic safety, one must have neurodivergence competency. A person having knowledge of their own experience & having the understanding & language to advocate for themselves increases safety. This cannot be taught without competency." .
New
@educationgovuk
research into the use of reasonable force and restraint in special schools and alternative provision could offer some clues on how future guidance will develop
"Given the high prevalence of autism in psychiatric outpatient clinic populations... it makes sense to develop a psychiatric workforce that includes people with lived experiences of neurodevelopmental conditions".❤
@JoPavlopoulou
@DrRuthMoyse
@PaulaMc007
/2 Autistic meltdowns can happen for many reasons Meltdowns are NOT in the autistic person's control & should not be punished. They cause great embarrassment & exhaustion.
3/7 Schools are social environments. Communication breakdowns, intersecting with environmental overwhelm = no 'spoons', ableist expectations on preeminent value of spoken/written language👉we need to value authentic relationships & communication
"Professionals must have an open mind when listening to service user accounts of their past & current situations. They should put aside any bias/preconception & be open to accepting the knowledge & interpretations offered by the service user."
@TalkingMats
Interoception (ability to interpret internal signals from our bodies) is closely linked to Alexithymia (ability to identify, interpret & label feelings & emotions). If these difficulties exist, it may be harder to access therapy that explores feelings & emotions
#CAMHS
@WordAware
/3 First aid for autistic meltdowns = giving space (physical & with questions/ comments), reducing environmental demands, giving reassurance, treating with respect & dignity. So often, autistic meltdowns are seen as 'behaviour'. The result is all too frequently sanctions.
@HelenATSLT
I think the environment always needs considering
@NDConnectionUK
. these resources are good examples
@AutisticDoctor
& imho environments are equally important beyond autism too
I'm over the moon. Just found out I can call myself a SI-SALT - passed SI 3. Thank you to absolutely everyone who has supported me this far. 🥰🤩🥰
@SINetwork
@RCSLT
@sheffhallamuni
@MagpieChatter
SI4 and diploma starts monday🤗
Instead of asking for 'emotions', let's talk about energy levels. more tangible: we are more likely to be able to sense energy levels, than feelings. Energy levels, link naturally to conversations on energy accounting. What takes away/ gives 'spoons' back.
1/4 So often in Mental health we may ask, 'What is wrong, how can we help?'. But these are the wrong questions, they set professionals up in a position of "powerful healer", 'knower"; the individual as "less powerful", "knowing less", "failing" "in need of healing".
@alisonpearsonSW
Sending 🫂 I hope things are better now. I think listening without prejudice is a skill that is much underused in mental health services.