I’m beginning to realise that when people use the words ‘Covid is airborne’ most don’t understand what this means and why e.g. when I see my GP I’m more worried about whose been in their unventilated office in the past 48hrs than if they put on a mask for the short time I’m there
Just found out that my last (extremely lovely) friend who was masking has made the v difficult decision to stop. Makes me feel sad & alone but also so grateful to have found all you wise, caring SARS-CoV-2 savvy folk on this platform. Thank you for being here!!
My genuine concern is that a lot of people have now forgotten what it’s like to be well and this persistent state of ill-health is starting to become normalised.
Petty much every other person I know has a ‘cold’, cough and/or chest/sinus infection right now. Thankfully, they seem to have finally stopped blaming lockdowns for their weakened immune systems… But how many more years will we have to wait before they finally join the dots?
I 😷 because I follow the evidence. I 😷 because the virus took away a big part of me in 2020 & I don’t want to lose any more of myself. I 😷 because I want to retain the ability to work & look after the people I love. I 😷 because I care.
#CovidIsAirborne
#BeKind
#LongCovid
That’s me just after my
#novavax
on Thursday! It’s been over 2 years since my last vaccine thanks to UK government not caring about people with LC/anyone. Had v bad side effects after AZ & Moderna. Pleased to report my Novavax experience has been so much better, I’m so relieved!
Well, I’ve just had to turn down another opportunity to present at a conference as everything is back to f-2-f. No hybrid options for people like me. The lack of accommodation for folks with LC and those wanting to be careful for the people they love is killing our careers 😢
Liverpool GP has highest rate of Long Covid patients in England, UK… 1/5 patients… yes that’s one in five … FFS why are we screaming into an abyss? This has to stop. People’s lives are being ruined & the economy is going to crash if people can’t work.
The UK Covid-19 inquiry continues. It’s so clear we couldn’t trust the government then so why on earth should we trust them now. Covid is not a cold. Covid is airborne. Covid (SARS2) continues to kill and destroy people’s lives. We are all at risk. It’s time to wake up.
What do most people think happened to everyone who got sick during the pandemic (which, incidentally, hasn’t ended)? Do they think people with
#LongCovid
mysteriously got better?
Hi everyone in our covid cautious/caring community. There are quite a few people right now still testing positive on day 10 despite feeling much better. Some are deeply kind individuals who want to keep others safe. Any advice for them as to when they can come out of isolation?
What I love about this photo is seeing a group of super smart athletes looking so confident and comfortable in their respirators. What a fantastic, positive image. Great to see these images being so widely cascaded. Thank you team 🇦🇺
Petty much every other person I know has a ‘cold’, cough and/or chest/sinus infection right now. Thankfully, they seem to have finally stopped blaming lockdowns for their weakened immune systems… But how many more years will we have to wait before they finally join the dots?
Now I’ve seen everything: a national Long Covid conference full of seemingly maskless, tightly packed together folks. No hybrid option (exclusion=discrimination). People with LC invited to attend this f-2-f event (note: LC risk increases with each infection).
Conclusion: WTF!
To all the kind people out there, if you see someone like me wearing a mask it may be because I have long Covid, it may be because I’m caring for someone I love undergoing chemotherapy, it may be both. It’s lonely behind a mask. Please smile at me and lift my heart. Thank you.
@Ceri_turns
My friend who had stage 4 cancer was asked by a woman on the till why she was wearing a mask. She told her she was dying and didn’t want to spend her last precious days in bed sick with covid. That woman shut and never hassled my friend again.
So we couldn’t trust public health and governmental agencies at the start of the (ongoing) pandemic so why on earth do people think it’s ok now to continually expose themselves to a level 3 biohazard with no mitigations? 🤔
"Covid is not airborne it's droplets - surgical masks are fine"
Dr Barry Jones describes the "dishonesty" of the IPC cell & the WHO, originally categorising
#covid
as airborne but then insisting via social media and official guidance that it was not
@covidinquiryuk
Good news - I have just been called by my pharmacy in Edinburgh and told they will be getting
#novavax
on 23rd. Offered appointment on 24th April. No request to identify a group of 5 people. £60
Right, so if you were a healthcare professional seeing someone with long Covid and were offered one of these lovely, life protecting FFP3s to wear which one would you choose?
Spoiler alert: duh don’t be stupid, the answer is none of them - obviously!!
I don’t want us to ‘learn to live with the virus’, I want us to ‘learn to live SAFELY with the virus’. Clean air in schools & workplaces; mask up in healthcare settings and treat people who want or need to be careful with kindness and respect
#CovidIsAirborne
#CovidIsNotOver
Has anyone else in the UK just had their appointment request for a novavax booster declined and been directed to the Dears pharmacy website where you can now only book a Pfizer booster. This is a disaster!
To all SARS-CoV-2 cautious folks still out there, let’s stop saying ‘cautious’ and use the term ‘careful’ to describe ourselves instead. Language matters and ‘careful’ so much better captures who we are: people who care about ourselves and people who care about those around us.
@DALupton
In my experience the people who are continuing to be COVID careful are thoughtful, intelligent and wise individuals who care deeply about a plethora of issues (Palestine, the environment etc) and are very kind. Something to be proud of I reckon.
For those in UK hoping to get two doses of
#Novavax
here is the correct info. The licence secured in 🇬🇧 means we can only get a 2nd dose at least 3 months after the 1st, though there’s a bit of wiggle room (in theory) if a clinician recommends this eg due to a weak immune system.
@CounsellingSam
Thank you for your courageous and honest tweets. There are so many people out there suffering with LC who are feeling isolated and abandoned. I pray we can use these experiences to lobby for more funding to help ensure people get the care and support they need.
Sadly, it’s been confirmed that Novavax won’t reach the UK till 22 April. I do hope we get v good uptake as Novavax is better & cheaper than mRNA options & has less side effects plus for some of us mRNAs are not an option. So we need to show there’s a v good market 4 Novavax
NOVAVAX COVID VACCINE UPDATE: Despite being told by Novavax that their Covid vaccine would be delivered to pharmacies from 1st April, we received an email from them yesterday at 3pm saying "The expected date of vaccine being available is at this point week commencing 22nd April".
To my best friend on the one year anniversary of your death. You retained your charisma, generosity & gratitude for life despite being failed by the 🏴🇬🇧NHS & staff who wouldn’t mask to keep you safe when you had so few precious days left. I miss you today more than ever ❤️.
@pharmadoctoruk
@LifestyleBath
Given that a lot of us wanting
#Novavax
are also trying to avoid getting Covid it would’ve been great if the vaccinator in the publicity photo had been wearing a respirator.
@PharmaDRclinic
please make your participating pharmacies aware that we appreciate & need mitigations
@DALupton
I’m so grateful a prominent academic is being public about COVID cautiousness. I am grappling with similar issues and am pretty certain by being ‘out’ my career is being harmed. I feel a strong ethical mandate to advocate for others without job security but it comes at a cost.
@mm_tw9
I wish you were right. Sadly I offered all three ffp3s to the person doing my blood test and they said they wouldn’t wear one to protect me… same person who said no masking when doing a home visit for my best friend who was dying of cancer ….
How convenient: the timing of these things is rarely coincidental. Suffice to say in Edinburgh 🏴 we’re enduring the Fringe with approx. 2.5 million visitors from across the globe crammed together in a soup of Covid variants, poorly ventilated venues & virtually no 😷ing...
Covid in Scotland
"Wastewater data analysis will be paused until the end of August as the responsibility of laboratory COVID-19 water samples testing transfers from Scottish Environment Protection Agency (SEPA) to NHS Lothian"
@carolvorders
@mrjamesobrien
@LBC
Please ask what’s happening to the first wavers Carol. Many are now dying (or dead) & no one seems to know or care. Society has moved on & left them behind. And keep in mind that what’s happening to the first wavers is a sign of things to come for many many more of us. Thank you
@1goodtern
There’s so many 🇬🇧 people desperate for an updated Novavax & for quite a few of us mRNA’s are not an option. I think we’ve demonstrated there’s a good market thru high uptake earlier this year. If needs be, let’s use this platform to lobby & put pressure on MHRA
@PharmaDRclinic
@carolvorders
@LBC
Journalists with integrity don’t break their promises, but yet again you have let the long Covid community down and made us feel worthless and invisible. This is beyond disappointing.
@_CatintheHat
Great news but let’s hope MHRA also approves the updated Novavax soon for 🇬🇧. We now have persuasive evidence that 10% of people with LC can’t tolerate mRNA options and symptoms worsen with each booster so we need an updated Novavax here and in every country
@DALupton
You have been absolutely amazing and a great role model for people like me.
Thank you for caring so much and using your title and kudos so responsibly to raise awareness about SARS-CoV-2. I am so sorry this has come at a personal cost. History will remember you very kindly.
@1goodtern
@Saffiya_Khan1
Not been in the office since March 2020; been shielding ever since waiting for the penny to drop for everyone else. I think I’m going to be waiting for a very long time!
We need clean air in schools & workplaces; we need to treat eachother with care & respect
#CovidIsNotOver
@sum_social
Sadly I totally agree… I remember growing up in the 1970s when it was considered an achievement to live to 70. Plus pensions were calculated on the basis people would live up to 3-5 yrs after retirement so there is an economic motive to ‘allowing’ life expectancies to drop
@cv_cev
@BBCLookEast
@DrChrisSmith
@BBCLookEast
please please stop wheeling out the same old ‘experts’ who clearly are not up to speed with evidence base and are not capable of offering the public an informed and responsible perspective. Do better we deserve so much more from you.
I’m not going to renew my tv licence
@BBCMorningLive
&
@BBCNews
thanks to your irresponsible reporting. Pls stop doing sloppy, lazy journalism; pls stop wheeling out the same old Covid minimiser ‘experts’ & give the public the information they need make informed choices
🦠With so many coughs going around, hay fever season & now a summer Covid wave growing, it's hard to know when to be worried.
@xandvt
's here with the ultimate guide to what might be causing your cough & when to be worry. To watch this in full click here:
@1goodtern
Kind of makes sense - I suspect (white) masks/respirators resembling those worn in the early phases of the pandemic have triggering effects for so many due to trauma/bad associations. Makes sense to develop options which look different as long as functionality not compromised
Year 4 of LC. So grateful to my employer for allowing me to work from home.
- Thanks to my students & team for always meeting me outside/on MS teams❤️
- Thanks to the lovely admin staff for offering to meet for outdoor coffees & walks❤️
- As to my academic colleagues, with a few
Delighted to report I’ve tracked down the mystery person behind the informative & highly creative stickers which have been appearing across Edinburgh during the superspreader Fringe event. They’re not on this platform, but their artwork can be found here:
@PSBaker10
I think a lot of people are struggling to shake off colds and are getting bacterial infections on the back of viral infections and weakened immune systems from earlier covid infections - plus I know plenty of people with the ‘100 day cough’ which was pretty rare before 2020
See Connor Browne’s excellent commentary. The BBC news coverage of this Lancet paper re: covid and cognitive decline and the misrepresentation of its contents is irresponsible and downright misleading. Sadly this isn’t the first time this has happened. Shame on you BBC.
1. This is the paper that's making the headlines today. I've read it in full, and its findings are, in my opinion, robust, and, frankly, align with common sense. The problem is not the paper, but its misinterpretation by the media.
I am watching the UK covid inquiry. UKHSA’s Jenny Harries is giving evidence. There aren’t words in my vocabulary to convey the disgust and anger I feel on hearing she endorsed discharge of covid+ frail older people into care homes. She has blood on her hands.
@drclairetaylor
Thank you for everything you say. Thank you for not giving up and thank you for being brave enough to tell people the things they need to know even if they don’t want to hear them
@Victoriantaddeo
@AHAhistorians
Couldn’t agree more, we had a perfect opportunity to tackle inequality and make conferences and meetings more affordable and accessible for everyone by making hybrid the default… it’s so disappointing
@systematic_fun
I come from Liverpool- the people there are proud, caring & have good work ethic so if they say they’re sick they’re sick. They’re also in poorly paid jobs and living in poor housing which means they’re being battered by the virus and will be the first to get
#LongCovid
About to enter soon to be covid hot spot Edinburgh where Taylor Swift is performing for a second night. Needless to say, I am not going to the concert.
@LancsArtist
That’s what I think too - the problem is that it leaves all those people who are sick (and getting sicker) being gaslighted. It’s becoming increasingly difficult to advocate for ourselves e.g. asking a doctor to open a window etc. without being accused of being over-anxious
@buzzingboo
🤞we so need the option of novavax in 🇬🇧 as some of us can’t tolerate mRNA ones so it’s our only option. As importantly, novavax is cheaper to buy - £45 versus £100 for Pfizer - so it’s a bit more accessible to people on low incomes but it’s still inexcusable anyone has to pay
@LetChuckLoveYou
Weakened immune systems from covid infections, lots of research showing this is what’s happening but media not reporting this so a lot of people don’t realise what’s happening to them
I was chatting to a pal who works in healthcare. I asked about her colleague who has LC. Her: ‘She’s fine now’. Me: ‘Ah great’. Her: ‘Yes, she still gets really tired & has to have gaps between treating patients so she can rest, but she’s recovered’. Me: ‘hmmm’.
It’ll be interesting to see how the messaging about SARS-CoV-2 and the importance of being boosted changes (from being almost non-existent) now that vaccination is going to be a profit-driven exercise in the UK! Maybe we even see stuff in the media about Covid still existing here
@GayFabFourFan
Yes and we also know that doctors struggle to stay on top of the research/evidence in their own clinical speciality and rarely read outside of that. So don’t think for a second NEJM articles reporting the latest SARS-CoV-2 research are their bedtime reading.
Good morning
@carolvorders
and
@LBC
please can you let us know if you’ll still be taking about
#LongCovid
on your show 4-7pm today. It’s such an important topic and there’re so many people out there who are desperate to talk about their experiences. 🤞🤞🇬🇧
@sheencr
@ConversationUK
I’ve noted that they will be fobbing off the small number of eligible people in the uk with out of date covid vaccines like they did last year. Anyone would think they want pensioners dead!
If you’re trying to book a Novavax booster in 🇬🇧 and were declined (like I was) it looks like it’s worth persevering. My guess is it will be a postcode lottery with some chemists getting Novavax on time and others not. Do ring and check b4 your appointment. Good luck everyone!
@dxrevisionwatch
@Prof_J_Lawton
@buzzingboo
We were told by Novavax that their vaccine will start being delivered to pharmacies from the 1st April. We’ve not heard anything different. Our partner pharmacies will be able to offer all licensed Covid vaccines incl the Pfizer vaccine which some pharmacies received last week.
I’ve been looking at interviews we’ve recently done with people living with chronic health conditions like diabetes. People talk a lot about trauma in these interviews; mostly to explain why managing a chronic illness is hard. No-one talks about Covid or the pandemic… 1/
@WillowLymeInfo
I absolutely agree - I’m not judging them at all. And I know they’ll always be there for me and meet me outside. But when you have to go into work and none of your peers mask and they ostracise you, complain they can’t hear you when you speak etc etc it’s really really tough …
@brownecfm
An excellent, if sad, example of someone joining the dots together based on their personal observations and experiences (‘lay epidemiology’) and realising what governments should be telling them ie SARS2 continues to pose a serious threat to their and other people’s health
@PeteUK7
@wesstreeting
@GwynneMP
Provide GPs with basic information about airborne transmission and why it’s important to have good ventilation. My GP refused to open his window despite it being a warm sunny day and implied I had mental health issues for asking and masking.
Here we go again, no sooner do we we start to come out of one wave then we go plummeting into another…Thank you
@BuDs_UK
for everything you do to advocate for people with LC and for helping to keep us informed about Covid levels so we can make informed & responsible decisions.
The Autumn Wave of Covid has started in England, and we have raised our Covid risk level to VERY HIGH. Around 1 in 179 people in England were infected with Covid as of 8 September. We expect the risk of meeting a Covid-infected person to continue to rise.
@_CatintheHat
I’ve said this before but how can we find out who sits on the JVCI so they can be asked to publicly defend their (irresponsible) decisions?
@Engineer_Wong
Adam your products are a game changer and the 4lite has given me confidence to do more things (masked). So grateful for that. I can’t wait for your new products to come out especially the device you can wear round your neck. Don’t let the odd stupid review pull you down.
@Menka_1
@DrChinEzi
@lizziejbailey
@RebeccaMLiv
You should be utterly ashamed of yourselves. And thanks for making it even harder for people with LC to advocate for masking to help keep themselves safe. We need you to be role models. Ps have you not read the latest NEJM and Nature articles?
@1goodtern
It’s my understanding they only test for covid in hospitals if they have already decided that person will get paxlovid if positive - and given practically no one is eligible in the uk, there’s practically no testing. Added bonus: no one dies of covid this way either
@CovidSolidarit1
It means the uk government should not have vaccinated the majority of frail
Older people with the old bivalent boosters. Yet again they have failed us but what’s new there …
Sadly we don’t know why the UKHSA has delayed release of the SARS-CoV-2 data till just before Xmas but it’s reasonable to speculate their motive is not benign given they’re a government agency and not independent. Reasonable to assume too we’re at the peak of a big wave right now
Wow.
Astonishing news in the UK that the release of the winter infection survey data tomorrow is being cancelled because the rates it showed are so high that Downing Street have crapped themselves and hidden the results.
Looks like
@carolvorders
and
@LBC
have decided to not talk about long Covid after all. What a shame. Please don’t let vulnerable people down. You can do much better than this.
Good morning
@carolvorders
and
@LBC
please can you let us know if you’ll still be taking about
#LongCovid
on your show 4-7pm today. It’s such an important topic and there’re so many people out there who are desperate to talk about their experiences. 🤞🤞🇬🇧
@annamdrake
@MarieSnyder27
Seriously good for you and thank you for taking such a courageous stance for everyone … we need to vote with our feet and stay strong
@DALupton
I decline all in person invites as a matter of principle & try to remind organisers that people at earlier stages of their careers won’t feel as confident & able to ask 4 that. Ironically, they then often ask me present remotely while keeping the rest of the event in person!
@maosbot
Has anyone (eg a colleague or student) ever masked for you when you have an indoor meeting? Do you have spare respirators for this eventuality? Please say yes…
I highly recommend following
@BuDs_UK
who work tirelessly to raise awareness about SARS-CoV-2 and the devastating impact it can have on people’s lives. Levels in the UK may be going down but remain unacceptably high. This is not a time for complacency. Thank you
@BuDs_UK
.
Covid infection levels in England remain Extremely High, with between 1 in 32 and 1 in 43 people in England infected with Covid as of 10 January. It remains essential that everyone takes precautions to avoid catching Covid.
But the problem is that by not talking about the pandemic it is slowly and silently slipping from the collective consciousness and becoming a ‘non-event’… maybe this is why e.g. the UK Covid enquiry is receiving negligible media coverage i.e. it’s not newsworthy… /4
@CovidSolidarit1
Lots of people being floored by viruses and then not being able to shake them off and needing antibiotics suggesting weakened immune systems which they are blaming on lockdowns rather than covid - but they don’t read the research indicating the latter!
I hope this isn’t true i.e. that there may be a pricing structure for novavax depending on the number of individuals who book. If it is, I really hope we can all use this platform to collaborate and do group bookings to keep the prices as affordable for everyone as possible…
🧵Morning starts with an email from pharmacy saying their
#Covid
#vaccination
appointments are delayed and it's no longer Novavax because: Pfizer vaccines are administered individually (now £80) but Novavax comes in vials of 5 doses now reserved for group bookings. Wait for it...
For folks living in 🇬🇧 see below. Needless to say, it’s criminal we have to pay for these vaccines & these prices will be prohibitive to many on low incomes. It’s important to remember too that the lowest paid often have to work in roles with the highest exposure to SARS-CoV-2
After feedback from our partner
#pharmacist
who have already started
#vaccinating
patients against
#Covid
, we have updated our published service price guide and expected availability of both private Covid vaccinations. Appointments are now available from today 💉
@CovidSolidarit1
This does beg the question of who owns/controls the media. The bias and misreporting is very troubling. I am just so grateful to have a more rounded perspective thanks to identifying and following properly informed individuals and experts on Twitter/x
Just listening to interview on
@BBCRadio4
“We still don’t really have a full scientific explanation for why some people including those with mild symptoms were affected so badly for so long and in so many different ways”. Pls stop using the past tense. Sloppy reporting yet again!
@1goodtern
And remember by wearing a respirator (a good, well fitted one obviously) with confidence and without apology, you are also normalising mask wearing for others. The more of us who do this, the easier it gets…
@Kit_Yates_Maths
What about those who won’t be able to afford to pay for moderna privately and those who can’t tolerate mRNA vaccines … we need all vaccines freely available in the uk to anyone who wants one including novavax
@MeetJess
Well just wait to we get onto the field and track events. How many more casualties are we going to see b4 we realise what an utter farce it is to cram elite athletes together in an Olympic village with no mitigations.