DDave @D_Bone Twitter profile

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DDave

@D_Bone

2 years

I'm I the only one who's noticed its way easier to catch #COVID19 now that the pandemic is over?

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@D_Bone

2 years

Nurse girlfriend had a water bottle cap thrown at her today for asking someone to please pull up their mask in the clinic waiting room in hospital. In a cancer clinic. With cancer patients. With ravaged immune systems.

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DDave

@D_Bone

2 years

Now that I’ve burned through my life’s savings in the two years I’ve been disabled by #LongCovid My biggest concerns are no longer the devastating symptoms - They have now shifted to how am I going to feed and shelter myself. I cannot be the only one here.

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DDave

@D_Bone

6 months

In case you are confused about what #LongCovid can do - This woman deserves an award for warning you. It’s an emergency.

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@D_Bone

2 years

Yeah, this is what I wanted. Work 20 years with no break Get Covid Lose my business Lay in bed for 1.5 years Burn my life savings Get denied for disability Get Covid again Start over in bed Apply for food stamps Make Twitter my only social activity F*ckn Awesome #LongCovid

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DDave

@D_Bone

2 years

It’s become clear that #COVID19 was the *perfect* disease to expose and highlight the the full spectrum of human compassion & empathy. It has cast a spotlight on what people are truly made of and what is important to them, despite there claims. It’s been stunning and telling.

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DDave

@D_Bone

2 years

Denmark, one of the first to declare the pandemic over and enter the Pretendemic™ phase. Deaths are Literally "off the charts" right now. This is what I call a poor Role Model.

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DDave

@D_Bone

2 years

My only experience with #COVID19 was collapsing on day 7 with 84% O2, being sent home a day later, a MI in bed at home, losing 35 lbs, being admitted at 21 days, relearning how to walk, think & breath & then 2 years of illness and losing everything. Let it rip is cringe AF to me

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DDave

@D_Bone

2 years

When I pick up my groceries, outside. I wear a mask and people stare. They must think I am crazy. Or perhaps they wonder if I am weak. Or it could be it makes them think. I really don’t know or care but I am certain of this…

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DDave

@D_Bone

2 years

It's puzzling to watch people so terrified of getting myocarditis downplay a virus that causes myocarditis. It's confused me for quite a while now.

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DDave

@D_Bone

2 years

Heard something at a cardiac imaging clinic today. They talked about how there are so many post COVID patients now.. and they said they had never seen so many POTS Dx in their careers. They also said - “First wave is the worst wave.” I was like Damn, I’m tweeting that later.

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DDave

@D_Bone

2 years

2 years ago I was touring a space & inspecting the plumbing, ventilation & electrical of what was to be my first brick & mortar restaurant and bar. A goal 20 years in the making. Today I discussed applying for food stamps with my partner. I cannot believe this. #LongCovid

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DDave

@D_Bone

2 years

What they think #LongCovid brain fog is: - “It’s on the tip of my tongue.” - “Where did I put my keys?” - “What’s the date today?” - “Where did we park the car?” What brain fog ACTUALLY is: A brief 🧵

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DDave

@D_Bone

2 months

I always thought he was badass.

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DDave

@D_Bone

3 years

The never infected: “I can’t live my life in fear” Longhaulers: “You don’t know what fear is”

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DDave

@D_Bone

1 year

Their brains stopped growing. Positive for antibodies, contracted in the womb. It’s not a damn cold. Society is making a huge mistake.

COVID caused brain damage in 2 infants infected during pregnancy -US study

(This April 6 story has been corrected to remove reference to the Delta variant in paragraph 3, clarify it wasn't determined what variant the mothers were infected with and deletes the last paragra...

apple.news

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DDave

@D_Bone

2 years

A promise - If you develop #LongCovid , all that "percentage chance" and "risk" talk will go right out the window. You will immediately go to a "how do I survive this" and "tell everyone this is happening" agenda.

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DDave

@D_Bone

2 years

So this just happened. Spoke with my neighbors for the first time in 1.5 years. I spoke with them briefly last spring. Turns out they've had Covid 2-3 more times since then. They told me that each infection was worse, and described the last one as really deep and scary.

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DDave

@D_Bone

2 years

I keep hearing stories of more and more "Immaculate Infections" Where people are like, - I went nowhere - I never left my home - I was around no-one Not sure what to believe.

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DDave

@D_Bone

22 days

These athletes worked so hard to be on the world stage only to be robbed by a myth. They could have mandated masks, they could have taken precautions, but no - they wanted to pretend everything was back to normal. Clearly, It's not.

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DDave

@D_Bone

2 years

Just got off my Zoom. Met a nice young person just 22 years old. Boosted. Caught Covid in may, recovered. Went back to work. 2 months later had to stop working. Now living with mom to be taken care of. Unable to cognitively handle daily activities. Insidious silent onset. :(

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DDave

@D_Bone

2 years

Who decided that a paper mask in school was more damaging than neurologic, cardiovascular, immune, and pulmonary damage resulting in disability children? Who decided this?

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DDave

@D_Bone

2 years

I've endured this #LongCovid garbage for roughly 33 months. I'm a pretty mentally tough guy to be honest. But I told my partner tonight, "I'm scared" I'm not ok, and this is all not ok.

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DDave

@D_Bone

2 years

SOME PEOPLE: Yeah, well I never wore a mask, I never sheltered, I never stopped living my life and I never let them jab me with that poison and I still didnt get covid as far as I know. My immune system works. ME: Dude, you killed people.

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DDave

@D_Bone

2 years

I am hearing more stories of folks who have been having re-emerging serious issues from #LongCovid after long periods of perceived recovery. Even as far as a year out after initial symptom resolution. Are we looking at something with a relapsing remitting form similar to MS?

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DDave

@D_Bone

2 years

My friend in Boston said on a call yesterday “Half of my office is out with COVID! ” It was on speaker and my GF heard it in the other room and shouted out, “Yeah, half my damn clinic is out with it too” - We are in Seattle The #COVID19 pandemic is far from over friends.

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DDave

@D_Bone

4 months

My real name is Dave. I have #LongCovid . I'm from the first wave. I've had some ups and downs. I've lost everything. I'm in the 5th year. I am declining more than I ever have. I do not know what is going to happen. I do not want this to happen to you. Today is the first day

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DDave

@D_Bone

2 years

When it comes to #LongCovid there are two types of people : 1) People who have LongCovid 2) People who can still get LongCovid Everyone in group 1 was in group 2

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DDave

@D_Bone

2 years

Listen to him. Repeat his words.

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DDave

@D_Bone

1 year

#LongCovid has cost me ~200K in savings and 3 years worth of earnings. So what's your point?

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DDave

@D_Bone

2 years

Paxlovid is like the new caviar. I’m beginning to wonder if they eat it on little crackers, and “home isolation” is just code for yacht.

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DDave

@D_Bone

2 years

I thought I was gonna lose my damn mind at 6 months with #LongCovid Then I thought I was gonna lose it at 1 year. Then I thought I was getting better last summer. In two days it will be 2 years. I still have LongCovid. Which is why it's called Longcovid. It's long.

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DDave

@D_Bone

2 years

The acceptance of catching covid once per year seems downright absurd to folks who haven't recovered yet from infection 2 years ago. #LongCovid Facts

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DDave

@D_Bone

2 years

Hospital I can’t name just put out an attention all staff: They are full on the fourth floor, and are now encouraging all staff in the faculty and all connected clinics to wear N95 masks. 4th floor is critical care.

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DDave

@D_Bone

2 years

2 years after my #COVID19 infection - I can slowly dress myself. Make my own meals when I have energy. Sometimes take out the garbage. Get myself up at 4 am every day. Winning. #LongCovid

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DDave

@D_Bone

1 month

Over 1600 Americans have died from Covid in the last three weeks. Thats equal to ten 737 crashes, in July.

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DDave

@D_Bone

2 years

I'm glad there wasn't a political movement in the early 80's pushing exposure to HIV as a way out of the AIDS epidemic. But still, here we are with #COVID19

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DDave

@D_Bone

2 years

I think they are getting us ready for some news.

White House acknowledges Biden could get COVID, stresses he’s vaccinated

The White House on Friday acknowledged President Biden could get COVID-19 amid an uptick in positive cases surrounding the president but stressed he has taken steps to protect himself. “We take eve…

thehill.com

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DDave

@D_Bone

1 year

I was hesitant to share this. But, I want to now. This is what my eye does now every time I close it and open it since I developed #LongCovid . I do not know what this is, but at 3 years I have significant balance issues and visual processing problems along with other deficits.

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DDave

@D_Bone

2 years

If you've been struggling with #LongCovid and you start to feel better (as in recovered), or are making significant gains like some I know, Please be open and share - please don't just vanish. People need the hope and clarity is critically important for understanding this.

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DDave

@D_Bone

2 years

A picture is worth a thousand words. This is a pretty clear picture. #LongCovid

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DDave

@D_Bone

2 years

Today is 30 months with #LongCovid As a gift, here is my psychosomatic hand trick, just for twitter.

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DDave

@D_Bone

3 months

I’m 45. I was a bodybuilding backpacker who hikes in the cascades. I didn’t smoke, I ate clean I got Covid in 2020. Since then I’ve had 4 echos. A cardiac MRI. I’ve been hospitalized. I’ve had heart monitors, and I have more cardiologist appointments on the horizon this year.

BHF Policy

@BHFpolicy

3 months

We are in the grip of a heart care crisis. Our hearts need and deserve more💔 Today we've launched a call to all political parties to prioritise heart disease as we head towards a general election. Add your voice here👇

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DDave

@D_Bone

2 years

It can happen to you. I was a 210 lb bodybuilder. I ate clean for a decade, did split workouts 4 days a week. Worked on my feet, hiked in the cascade mountains, played sports my whole life, & was into martial arts as a youth. I have #LongCovid , the bad kind. Dont gamble.

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DDave

@D_Bone

1 year

3 years ago today I was one of the few who wasn't in healthcare who received a Covid19 PCR nasal swab. I tested positive. 3 days later I thought I was getting better. On the fourth day, I collapsed and was taken to the hospital. I have never recovered. #LongCovid

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DDave

@D_Bone

2 years

Weird but True... Many people are just accepting and expecting that they will get #COVID19 But NO-ONE with #LongCovid expects what they get when they end up with it.

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DDave

@D_Bone

3 years

I personally know and speak to people with #LongCovid . Every. Damn. Day. I can assure, the pain and suffering does not shine through in text. You see the tweets, and there are the stories and occasional articles. But it doesn't fully illustrate that these people are in hell. 1

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DDave

@D_Bone

2 years

They said that they are concerned because this last one left them even more exhausted than the others and lasted longer. The conversation ended with "what the fuck are we gonna do" & "I have no idea, but this isn't working" Honestly, I was not expecting that but I'm not shocked.

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DDave

@D_Bone

2 years

Ok, I'll admit the sudden death stuff had me rolling my eyes for a bit. Tragically, people drop dead all the time, they always have. And Focus and exposure can lead to a confirmation bias. But... Something is up me thinks. Honest thoughts?

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DDave

@D_Bone

2 years

We are awesome. We gotta rename Monkeypox but every variant of SARS2 now has to be some type of Omicron so people don't think there is anything to be concerned about.

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DDave

@D_Bone

5 months

NIH Director, Monica Bertagnolli discussing LongCovid, on 4/15/2024 They know.

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DDave

@D_Bone

2 years

Someone from the “before time” messaged me. It’s been at least 8 months to a year since we talked. They’re busy. I’m screwed.. So what’s the point. But I opened up a little. Maybe she’ll tell a friend. I usually am very guarded like in need to preserve a life I might return to

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DDave

@D_Bone

2 years

- getting lost in your home - forgetting why you entered a room, every time. - forgetting how you got to that room - being unable to operate a vehicle - putting dishes in the garbage vs the sink - Hitting light switches to turn on the heat - always leaving the stove on

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DDave

@D_Bone

1 year

I went into quarantine on March 10th 2020. I was PCR positive for #COVID19 . I never recovered. I developed #LongCovid . My life is in shambles now and I've lost everything but the woman I love and we have isolated ever since. On this day I've been on lockdown for 1191 days.

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DDave

@D_Bone

2 years

- It’s called MERS, folks. - It’s a coronavirus. - And it has a 30% kill rate.

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DDave

@D_Bone

2 years

I know so many people with #LongCovid who have improved significantly over *2.5 years* and still cannot work full-time or enjoy life they way they use to. This illustrates how sick many have been. Imagine being so sick that you report improvement and you are still disabled.

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DDave

@D_Bone

2 years

Welp™ Here it is. Today is 2 years since I first felt sick with a heavy chest & a strange tiredness. I have #LongCOVID . Ive traded a rich life full of promise, adventure & fun, for a "groundhog's day routine" of social media, chair hopping & heart racing. Tread lightly

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@D_Bone

1 year

"These findings indicate that the virus persists in gastrointestinal tract in people with long COVID, and that the gut of people with long COVID might be a viral reservoir"

DiscoverMedNews Home Page

Welcome to DiscoverMedNews and major stories from evidence-based medical research and published peer-reviewed medical studies.

discovermednews.com

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DDave

@D_Bone

1 year

I really should have threaded all my “psychosomatic” tricks. #LongCovid .

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DDave

@D_Bone

2 years

Wait - If people are calling for folks with *Vax-Damage* to be financially compensated because they were told the vax was safe. Then folks with #LongCovid should be compensated as well, because we were told this is just a cold.

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DDave

@D_Bone

2 years

After over 2 years of #LongCovid , trying to have conversations with unaffected people from the before time is not easy. We live in different realities. I’m not even sure we speak the same language at this point.

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DDave

@D_Bone

2 years

I can honestly say that the last 48 hours have been the best 48 hours in over 27 months. I'm nowhere near pre covid, but nowhere near the hellish depths of what I have endured. I'm somewhere in the middle, like purgatory. And its so much better than hell.

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@D_Bone

2 years

Starting to wonder if many conditions from anxiety to IBS to devastating neurologic degenerative conditions are linked to past viral infections (also persistent) and aberrant immune responses. My 2.5 year experience with a little corona virus begs the question.

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@D_Bone

2 years

My Doc told me yesterday that she believes every person with PASC/ #LongCovid should be considered high risk and should have Paxlovid if reinfected. My doc specializes in LC, and spends half her time in research & only sees LC patients. So is very upset to date.

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DDave

@D_Bone

2 years

- forgetting what medication you’ve taken - being confused by yes no choices - forgetting your kids names and ages - forgetting your own name and age - using your car key fob to try and lock your home’s door - relearning how to use a debit card machine

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DDave

@D_Bone

2 years

The first time I caught COVID I was young healthy and without co-morbidities. It nearly killed me and I am now disabled. Weird to think that my next encounter will be as someone with a bunch of underlying risk factors. How’s it gonna go? #LongCovid

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DDave

@D_Bone

2 years

- finding that microwave ovens and washing machines are more like puzzles - getting dizzy when asked what you think - strobing in and out of conscious presence And all of these things at the same time. Relentlessly gnawing at every second of every day. Ask me how I know.

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@D_Bone

2 years

Today is 28 complete months of #LongCovid . I rode a bike today with my RN girlfriend. I use to be an avid mountain biker. I needed this. We rode 35 minutes. Flat cement, very slowly. One rest break. We covered 3.25 miles. (Nothing) Her HR at finish. 84 My HR : 144

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DDave

@D_Bone

2 years

Sitting here picking up groceries in the parking lot. Wearing a mask. Nobody is masking in the store. I haven’t seen a single person in 10 minutes in and out. Sometimes I question my sanity after 3 years of this. Then I remember I’m not like them. I’m compromised.

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DDave

@D_Bone

2 years

They see me with a mask not because I am scared, but because I have learned a very hard lesson, a lesson they may have to learn on there own. A lesson most never forget. A lesson that never ends. So keep staring friends.

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DDave

@D_Bone

2 years

What should have been said in 2020 - #COVID19 is a neuro-vascular disease that causes ARDS in many. Organ & longterm autonomic dysfunction are more common outcomes. On any given infection someone may develop these complications or little to no symptoms at all. There is no cure.

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DDave

@D_Bone

1 month

Spoke with a friend who is a nurse at a major hospital in the Portland Oregon area. As always, I asked about the Covid situation. - totally over.

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DDave

@D_Bone

2 years

Why don’t we just stop calling it #LongCovid honestly - and just call it COVID and admit: It’s a virus-disease you can catch over and over, and each time you catch it, it may last 0-1000+ days and may contribute to life altering disability. I think that’s more accurate.

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DDave

@D_Bone

2 years

Anyones hands still doing this at 2+ years. Started going away at 18 months.. got worse after reinfection from O.

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DDave

@D_Bone

2 years

Q :What’s it like being a nurse right now in a U.S. hospital? A : Example A

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@D_Bone

2 years

One of my best friends with LC and one of the most diligent and careful people I know who is 2x’s boosted and had Evusheld tested positive this morning. I am worried for her. I am worried for all of us.

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DDave

@D_Bone

2 years

- flooding your kitchen because you forgot to turn off the sink - getting lost in your neighborhood while driving - forgetting where you are going while driving and panicking at an intersection - living in a 15 second memory bubble (the goldfish)

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DDave

@D_Bone

6 months

Almost done with year 4 of #LongCovid Currently, not ok.

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DDave

@D_Bone

2 years

Just found out that one of my close LH friends is fully recovered from #Longcovid at nearly 30 months. Yes, he did a crazy protocol, I will not get into, but I will share it was gut and cleanse related. He was BAD like me and I am so happy for him. It happened rather quickly.

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DDave

@D_Bone

2 months

Still can’t believe we went from “protect grandma” to “let’s ban masks” JFC AMERICA..

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