@maladyvessel
There's some great articles on how it all happened out there. A few politically minded management types staged a bit of a coup and took over the search dept, ousting the head of it who'd been there for twenty years or something.
The Machiavellian movers have killed it.
@Aarsil0
It is shocking isn't it. They are so trained that if the issue can't be found on diagnostics or through a symptom list, it *must* be psychological or malingering.
It's awful stuff.
@BrandyLJensen
Had zero doubt at the time she was innocent. It was failures in the unit, in a crumbling health service and the misleading use of statistics (she was on duty during most of the deaths).
Will turn out to be one of the grossest miscarriages ever
Chronic illness is a relationship really, between you as self & you as biology.
It's a preoccupying relationship. It's forced upon you, & one party is a very poor communicator (gives you pains & discomforts stripped of reasons), yet holds all the power.
Getouttahere
#NEISvoid
@clairebubblepop
They completed the work started by Thatcher really. That golden era from post war until the 80s was literally created by the post-war Labour party under Clement Attlee.
Fast forward to 1979 and the right wingers strike back and start deregulating and privatising everything
@Z3R0Gravitas
@MrkStdngr
This, Richard. This is the wider point isn't it. Not just that we're under constant assault from pathogens and that much disease may be caused by them, but that covid is only now putting a spotlight on a reality of post-viral illness that's been there all along.
@nntaleb
How aren't hash rate (and other metrics related to mining), transaction volume (related to use), amount of nodes running the s/w (related to degree of decentralisation) not other forms of information?
It's economic anchors r the elec & h/w cost of mining & it's decentralisation.
@maxnichols
@radicalbyte
Nintendo really deserve the kind of cultish awe Apple has. Their degree of innovative and craft has always been incredible. Not just another corporate.
#NEISvoid
Chronic illness can be so all-pervading that all of the basic questions you get when in company - like "how are you?"; "what have you been up to?"; anything about relationships or the future - can *only be answered in terms of it*.
And, that's tough.
@ellegist
We are *so so so* much more nuanced and complex and intuitive a creature than most scientific viewpoints allow. Makes the idea of AI replacing humans except in technical blunt ways seem so flat and silly.
@sc_sager
And the corollary to this story: doctors are *really* quick to go the sledgehammer route, and won't recommend (/won't be aware) of anything dietary, herbal or in lifestyle that could actually fix it in a better way...
@TaylorMod
The one about two young lads arrested by the police. One was caught drinking battery acid and the other eating fireworks! The police charged one but let the other off.
@RnaudBertrand
So interesting. And disgusting.
I wonder if Oliver Stone's "Untold History of the United States" would interest everybody here who's interested in this stuff. It's an incredible documentary series.
@Shigeo808
It does really really get to you; losing maybe 90% of what I had here. Feel a bit sick and can't stop thinking about it.
But these feelings do pass. I've been here before too, in early 2018.
I make good money at my work, crypto then takes it all away. The cycle!
@LifeMathMoney
Toxic toxic message. If your feelings push you to cry, that's what's best in that moment. It is nature's emotional release valve. We've evolved it.
Messages like this are where repression comes from - and all its associated misery.
@seconds_0
You can clarify this as in: if you lose part of or a whole tooth, no obviously it ain't coming back.
But the *dentine* within existing teeth (the thing that's missing in cavities) can grow back. With enough Vitamin D mainly, and other minerals:
@karenmitchell__
Something I read which I think I then saw first-hand (with a boss I thought was narcissistic):
Narcissists often crumble in the face of *real* personal power... If you're able to carry yourself with real self control they have nothing to latch onto.
@shivvstheworld
Stephen Jay Gould was an amazing writer. And the politics thread through it all really great. Have "The Mismeasure of Man" on my bedside table - critiquing the concept of IQ.
@OneAdamReese
@NickSzabo4
Got two thirds of the way through and still struggling to see how any of this makes him a white supremacist.
He just sounds right wing in all the usual ways, but think you've overplayed your cards here mate.
@mfairma
The comments by all the doctors on that thread makes absolutely awful reading. They are *so sure* of their views and that these illnesses *must* be "functional". Because, of course, our scientific understanding is currently complete.........
#NEISvoid
When sick you naturally want to engage in "illness behaviour". The desire to withdraw, isolate, do less, ponder...
It's *extraordinarily* difficult to honour these urges when illness is prolonged. Life and people don't stop, to let you.
Soo hard but have to honour it
@shagbark_hick
* maybe one addendum: if the jobs involves being outdoors and using your body: *excellent*. If it involves being forced to sit for 40hrs a week staring at a screen, it'll wreck your body.
@heynibras
You might just also be a bit low. And you're self soothing via phone use. They get much more addictive when you're at an emotional deficit anyway. Such a ready source of easy dopamine/stimulation.
And it's a core job of the brain to regulate mood so maybe it's kind of ok too?
@implausibleblog
Ok she's like farage now, in that the only reason we all keep having to inhale her hot air is cos the media keeps giving her the platform.
@caitoz
So amazing to have you Caitlin commenting on this. I agree fully with the outline and your expertise on all the detail and insight is excellent.
Amazed the Palestinian situation has gone from smtg small left wing groups have been shouting about for yrs to front & centre in 2wks
#neisvoid
I've never been quite able to articulate this thought.
The best word I can come up with is 'messiness'. There is a messiness that comes from living with
#chronicillness
.
You come to tolerate commitments half done, relationships not quite thriving, everything on hold
@photobiogenesis
Speaking of glymphatic system, this post of yours got me doing mouth taping and I really do notice the improvement in sleep quality.
Your posts are incredibly helpful man.
@Aiannucci
@FanaticFennec
@LynnPW
@corcc11
@checkmateb1tch
@Juleschao
"Ethnicities" are actually just the human organism having adapted to the environment in many different parts of the planet. Skin colour adaptations to the sun etc.
We've all got lungs, kidneys, (mostly) brains...
Ethnicity can be useful but is a specious concept.
#NEISvoid
It's incredible subtle & hard to describe exactly _how_ chronic illness cuts you off from people.
You can't do as much yes, but there's something else. Some broad mismatch in life expectations & outlook... what is it?!? Why is answering How Are You so hard?
@JohnConstas
Really surprised I don't see this more info out there, but as well as sunlight you can actually train myopia better via a set of exercises over a few months (as well as avoiding glasses or getting lowered prescriptions).
Keep meaning to actually do it!
#NEISvoid
Hey, we all know chronic illness creeps into every area.
If it's leaving you alone this Xmas, or feeling guilty for not being able to do much, or in any other unhappy way.
You're not alone with it. You're really not. Give yourself some love and validation if you can.
@Cephii1
@novogratz
@joerogan
"how many deaths he caused"
By interviewing two extremely qualified doctors and airing their alternative views. It should *always* be informed consent.
#NEISvoid
Challenge every bit of shame you feel around your chronic illness or disability. It isn't yours, and never was.
There is an objective understanding out there which makes whatever you suffer thoroughly validated.
Everything short of that isn't yours.
#NEISvoid
Do you have this?
My fight with my health changes daily in a way that feels very granular. It's monotonous but it's always changing. *To me*.
But to others I only have to offer boring headlines - ah a bit better, ah feeling ok, ah really bad today.
Bit lonely that.
Health isn't a thing. It's a potentiality space. It's a *medium* through which the being, doing & creating of your life flow...
Chronic illness then is a problem unlike any other: it's a breakdown in the very fabric of you & in what you might make, do & be.
#NEISvoid
@RussInCheshire
That's an unfortunate conclusion to draw. He's been the only non-establishment choice during my whole life.
The prospect of an *actual* empathy-based social-justice-based government was clearly too much for the venal media and an asset'd up populace who lean centre right.
@seconds_0
To put this another way - TLDR from the article - if u are getting enough Vit D & a few key other minerals plus ur *avoiding* food high in phytic acid (which prevents mineral absorption), i.e. most grains, you're unlikely to get cavities.
Yep no dentist will ever tell u that.
How much is the world in need of a type of chronic-illness-specific counselling,
#NEISvoid
?
A place that gets the dynamics of chronic illness life.
And can receive and validate the psychological impact of such a life.
That can at least make it all feel seen.
I'll create it.
@hackinginquiry
@JulietShawComms
I read stories like this with absolute glee (the piece in Prospect magazine was great too). It will be a great day in this land when Associated Papers will face and retribution. Completely toxic enterprise.
Hope you guys at Hacked Off know you're appreciated.
@Dan_Wyke
So true.
The victim blaming comes quite consistently. People so easily come to think that if you're not improving it *must* be because of you, your habits, your denial, your childhood.
It helps *them* keep the world in order.
#NEISvoid
My recently hope-filled tweets notwithstanding:
I'm filled tonight with how cruel it's been that my illness has basically taken away my ability to be myself, & to connect socially... for almost a decade.
It's a really traumatising ...
@mage_ofaquarius
I think the reactions are the left & right curve meme in reverse: many staunch right wingers will hate this stuff whomever is bringing it (tho seems to be sending *every* woo signal there is)... while those who have explored spiritual stuff could find it cheapening also...
@danielgoyal
Dan I fell seriously ill in June 1987. Complete kidney failure. From that day to this it's the institution of the NHS that kept me alive.
But I know what you're saying is true. We'll look back on the NHS years as ones were we achieved a very particular humaneness in this country
It's the consistency of it that brings the most disbelief.
Yes. You *can* feel rubbish for most hours of most days, for years on end.
*Without* that necessitating self-sabotage or some failure of action or will.
Diseases, once there, are often v sticky.
Believe us.
#NEISvoid
@OdyO11
I relate Ody! It's very difficult, almost in an extremely private way, to know your capacities aren't available to you isn't it. Like, nobody but you will feel how tragic that feels - because the world doesn't see what you haven't been able to do!
Hugs for you xx.
@tomowenmorgan
Tom this talk of yours is amazing.
That it's about McGilchrist, that you're making the case that curiosity is an evolutionary instilled, right-brained portal to fulfilling specialisation *and* the sheer economy of how you got all that into 5mins - wow!
It took me 3 months to put 10 years of research on curiosity into a 20min presentation...
...So when
@GrahamDuncanNYC
challenged me to compress it down to 5min for the
@SohnConf
yesterday, I obviously went insane.
Here it is.
@dianaberrent
@Dakota_150
You're getting so many angry responses to this because many people with ME/CFS feel they've been ignored and overridden on this matter for decades.
It cannot be stated as a universal - "important to recovery" - if so many with the actual diseases experience otherwise.
@GeorgeMonbiot
I've never felt so appreciate of both the police and the power of the state (when it's dispensed ethically) as I do this week.
The police do an unbelievably difficult job keeping us safe. Then they receive constant political attacks to boot. More of us should appreciate them.
@LifeMathMoney
A lot of your tweets just have this sour negativity struck through them.
Meeting up with mates for coffee can be great. Great friendships more important than success.
@tenobrus
This is one of these things that's apparently a matter for empirical debate where anyone who's had muscles knots and had them relieve from massage (even self-administered) can just skip right over and go on with their day...
@Silas33
Is he missing the word "known"? There is no *known* disease process...
It's always struck me as funny that we laugh at the science of any long enough ago historical period (even 50yrs ago)... yet "scientists" in our current age have an arrogance that it's all settled now...
#NEISvoid
Chronic illness adds a contrast dye to certain harsh life truths, which I want to voice.
On my mind rn tho is the idea we are wholly different people when sick to when well.
It's quite hard to square the disempowered, vulnerable me with the real guy.
Same for you?
Life is precious.
Chatting to my mum this morning.
At 8 years old my kidneys both failed. I got a transplant at 10. Parents told by doctors I'd have it for 5yrs, & most children with this illness die.
Unbelievably stressful for them.
Here I am 35yrs later.
Life is precious.
There's a hushed distance you can often feel from others when they come up against your illness.
Often there's compassion but there's also a "I don't speak the language here" too. That silent response can feel abandoning.
Being straight-up about it feels better,
#NEISvoid
@ChrisBloomstran
I'd wager nobody replying to this understands bitcoin... and to what it could be headed (basically the first global, internet-native money).
Saylor gets it. Current macro environ makes it doubly attractive...
A shout-out to every
#neisvoid
'er who's had to take the higher ground when misunderstood.
You just silently, heroically decide that they don't get it but don't mean the harm they cause and know not what they do.
It's an amazing demonstration of grace. I bet you've all done it.
#NEISvoid
Just sending love to you. You over there, fighting day-in day-out chronic illness battles.
It's *so* hard. It gets so messy. You can feel like it's hopeless, like you don't exist, like you're alone.
But others get it and can validate you.
Do keep going.
@Route2FI
Mostly that acc is tapping into the broad desire for pitchfork revenge. He's saying exactly what a certain disaffected crowd want to hear.
You just watch how regularity the insinuating tweets are coming too. There's awareness of engagement there.
@gnopercept
It's essence is nature deficiency. We've isolated ourselves from our element via our technological progress and urge towards convenience.
Get back in nature, the meaning comes back.
@lornamcfindy
I get this Lorna. It's a bit of a weird unintended mass-gaslighting....
I always feel a bit like most individuals don't mean harm to anyone, but there's definitely some structural thing in attitudes too.
But yeah, me too. The world joined me in a certain lifestyle back in March
@danielgoyal
Feel the same. I've had to tune it out over last few days. It's so stupidly privileged to say, but it's just so distressing.
That the propaganda remains so thick in support in the other direction really really sticks in the craw. It's so blatant, and horrible.
@tink_ina
Always answer that statement with "rare within what population".
Was it's rarity established within a general population, or one with my particular prior susceptibilities or comorbities.
Definitely won't be the latter.
@implausibleblog
This guy doesn't have that much blame on his hands personally. He was replaced by Johnson with Simon Case in Sept 2020 despite having much greater experience.