Long Covid News #pwLC #FBLC Profile Banner
Long Covid News #pwLC #FBLC Profile
Long Covid News #pwLC #FBLC

@LongCovidNews

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Here for working treatments & cures. #MillionsMissing #POTS #MECFS #LongCovid - Cov Jan 21, LC since March 21. I am unvaccinated. Business owner. Barely coping.

long covid hell
Joined March 2021
Don't wanna be here? Send us removal request.
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@LongCovidNews
Long Covid News #pwLC #FBLC
2 years
To trolls, minimizers and anti-vaxxers: #Longcovid pre-dates Covid vaccine deployment globally. This tweet thread about long Covid is date-stamped 6th June 2020: #diedsuddenly #DiedSuddenlydocumentary
@james__glen
James Glen
4 years
In order to help raise awareness of the COVID long-termers - mild-to-moderate cases that have people struggling for months - this is a curated list of English-language press coverage of the #covid1in20 #covid1in10 experience. Join the Facebook group:
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
Does anyone have issues with people not believing you when you tell them your diagnosis for #LongCovid ? I have told very few people outside my immediate family and business, in the main the look on their faces says it all 🙁 Why is the public health messaging on this so bad?
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@maosbot Apparently his fans are defending him using the excuse it was scripted. Some how this makes it worse.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
What gets me about my illness is not that I can't do stuff. It's that I don't know if I'll be able to do stuff. Doing a thing can either put me in bed for days or I'll be fine. 24/36 hours later the rules change.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
How supportive are your friends and family since you’ve been sick with #LongCovid ? I feel quite alone because there is so much I can’t do that I used to. My family and friends see I’m sick but don’t seem to understand. Any tips on how to help them understand?
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@LongCovidNews
Long Covid News #pwLC #FBLC
2 years
Happy New Year #PWLC #longCovid people. Best wishes for 2023. Let's hope this picture changes this year!
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@LongCovidNews
Long Covid News #pwLC #FBLC
3 years
"The risk of decreased kidney function is highest among people who were in ICU; It's important to note that risk extends to all patients, even those who had milder cases of COVID-19" #longcovid long-haulers at risk of developing kidney damage, disease
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
For those with #LongCovid who suffer, how long does it take for your PEM / PESE to kick in?
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
Long Covid: "I'm grieving my life," says former tennis pro forced to retire at 21. 3 years ago, Tanysha Dissanayake was a tennis prodigy who played alongside Emma Radacanu in junior Wimbledon.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
Long COVID is having a ‘devastating’ effect on doctors who have lost jobs, lost income An anonymous salaried GP said: “I can no longer work, finances are ruined. I didn’t have employment protection so I am now unemployed and penniless”
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@LongCovidNews
Long Covid News #pwLC #FBLC
9 months
@ExtropianEric @CraftyMissB @Dailies54153708 You're very much out of your depth.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
Long COVID Leaves Clues in the Blood We’re a step closer to diagnosing, tracking, and even treating the perplexing condition.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
" #LongCovid patients have been saying this for almost 3 years. Good that the medical establishment is catching up. Maybe we would be in a better place if doctors would have believed us from the beginning, rather than having to still do uphill battles for adequate health care."
@harvardmed
Harvard Medical School
1 year
Researchers are beginning to view long COVID not as a single disease but as multiple disease subtypes, even if instigated by the same virus
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@LongCovidNews
Long Covid News #pwLC #FBLC
9 months
@TheVertlartnic All things ovine!
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
💯
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
Do NOT stop talking about #LongCovid . Let no one intimidate you from talking about YOUR disease. We're warning people because no one else will.
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@LongCovidNews
Long Covid News #pwLC #FBLC
8 months
Epic thread
@TheVertlartnic
The Vertlartnic
8 months
10 Things That Are Totally Nothing To Do With Covid Infections And Haven’t Been Caused By Covid Infections And Are In No Way Connected To Covid Infections At All:
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@apsmunro @mehdirhasan @BallouxFrancois You're just as bad as Balloux. Time will not be kind to you Munro.
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@LongCovidNews
Long Covid News #pwLC #FBLC
2 years
This YouTube video from @LongCovidSOS (Twitter account created July 2020) is date-stamped 8th July 2020. You can't fake a YouTube date stamp.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
🇫🇷 Two million people have #longCovid in France, new figures show. "Although increasingly recognised as a genuine health condition, it can still take a long time to be diagnosed and receive the right care"
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
Great to see Twitter correcting the @guardian @guardiannews tweet. Must be embarrassing for you @rachela_hall , @andrewgregory to not have supplied this context in the first place. #MECFS #LongCovid
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@LongCovidNews
Long Covid News #pwLC #FBLC
7 months
@TheVertlartnic @guardian @natasha__may Don't underestimate the damage that you've done, Natasha.
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@LongCovidNews
Long Covid News #pwLC #FBLC
9 months
@ForOurIzzy @gemcarey @tarotcat Sorry but no. You fundamentally misunderstand what the term Long Covid means and has meant since 2020. It's an umbrella term. Long Covid can be MCAS. Long Covid can be POTS. Long Covid can be anosmia. Long Covid CAN be MECFS. Long Covid can be viral persistence.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
"But you don't look sick!" If I had €1 for every time... I could pay for medical trials for #longcovid
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
Have you seen this rare pic of the infamous little Trigglefish?
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Long Covid News #pwLC #FBLC
1 year
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@ClareWilsonMed NB - you're posting a nonsense opinion piece as if it was fact.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@roger_santos7 @SkyNews Long Covid pre-dates Covid vaccination deployment globally. My thread of date-stamped resources from 2020 proves it:
@LongCovidNews
Long Covid News #pwLC #FBLC
2 years
To trolls, minimizers and anti-vaxxers: #Longcovid pre-dates Covid vaccine deployment globally. This tweet thread about long Covid is date-stamped 6th June 2020: #diedsuddenly #DiedSuddenlydocumentary
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@LongCovidNews
Long Covid News #pwLC #FBLC
9 months
@scotgovhealth @jenni_minto This is abhorrent. How does the Scottish government get this so wrong time and again?
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
6 times World's Strongest Man Eddie "The Beast" Hall talks about his struggles with Long Covid “It's Been Horrendous”: Eddie Hall Talks about Coping with Long Covid
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@LongCovidNews
Long Covid News #pwLC #FBLC
2 years
International long Covid patient groups appeared in mid-2020. The @long_covid Support Group created on Facebook on 2nd May 2020, Twitter in July 2020. French LC group @Apresj20 created a Twitter account in July 2020. USA group @Covid19Long Haulers did too.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@1goodtern @SkyNews Of course is BS, it's fucking Prasad
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
Take a moment to be proud of yourself for surviving the days that felt impossible. #LongCovid
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
My memory of what feeling well felt like is fading.... 😔 #longCovid
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@LongCovidNews
Long Covid News #pwLC #FBLC
2 years
The #longCovid hashtag was first used on Twitter on 20th May 2020: The story about its conception was written in October 2020, published in the BMJ:
@elisaperego78
Dr Elisa Perego
4 years
The #LongCovid #COVID19 is starting to be addressed on major newspapers in Italy 🇮🇹 too: ~20% of tested patients remain covid + for at least 40 days 👇. Prof from Tor Vergata University of Rome notes: there is a lot we don't know about this virus.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
Big shoutout to the people who: ▪️have invisible symptoms ▪️are able to function when in extreme pain ▪️hide their illness well ▪️who don't seem 'sick' ▪️who have flareups when no one else sees ▪️fight a daily battle others can't see You got this.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
"NACE2i works by reprogramming the hijacked ACE2 receptor which disarms the virus & stops it replicating. Reprogrammed ACE2 receptor is returned to the cell surface where it acts as a lock that prevents the virus from entering the cell. This process also reverses inflammation"
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@these41168 @SalvMattera Long Covid pre-dates Covid vaccination deployment globally and exists in countries that did not use mRNA technology in their vaccines. My thread of date-stamped resources from 2020 proves it:
@LongCovidNews
Long Covid News #pwLC #FBLC
2 years
To trolls, minimizers and anti-vaxxers: #Longcovid pre-dates Covid vaccine deployment globally. This tweet thread about long Covid is date-stamped 6th June 2020: #diedsuddenly #DiedSuddenlydocumentary
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@LongCovidNews
Long Covid News #pwLC #FBLC
3 years
@dianaberrent @Survivor_Corps @fi_lowenstein @gadujardin @shelbyhedgecock @LizHIVHep Retweeting and liking your own tweets for attention is 🤦🏻‍♂️ This is a sorry mess you need to clear up properly for all long covid
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@LongCovidNews
Long Covid News #pwLC #FBLC
8 months
@RubiRubenstein @MattJames744 Benefits are subsidising wages, the state is paying for companies to pay unfairly low wages on their staff.
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@LongCovidNews
Long Covid News #pwLC #FBLC
3 years
@dianaberrent You are not being criticized, the author of the article is being criticized. It is not always about you
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@LongCovidNews
Long Covid News #pwLC #FBLC
3 years
@PigmanPaul @NickTriggle So people can get treatment. Post viral effects, such as ME/CFS, have been ignored for decades. People need help.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
This hellish app every single day #LongCovid
@michalek_lisa
Lisa Seymour Michalek
1 year
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
“COVID-19 gave me POTS disorder. Here's how my life has dramatically changed. I went from an active, healthy life to a couch-ridden state in a matter of weeks due to postural orthostatic tachycardia syndrome.”
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@LongCovidNews
Long Covid News #pwLC #FBLC
2 years
NHS England News 7th October 2020: "NHS to offer long covid sufferers help at specialist centres"
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
How much of an asshole is this asshole? Leave your rating out of 10 (for massive asshole) below
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@BohemianAtmosp1 Long Covid pre-dates Covid vaccination deployment globally. My thread of date-stamped resources from 2020 proves it:
@LongCovidNews
Long Covid News #pwLC #FBLC
2 years
To trolls, minimizers and anti-vaxxers: #Longcovid pre-dates Covid vaccine deployment globally. This tweet thread about long Covid is date-stamped 6th June 2020: #diedsuddenly #DiedSuddenlydocumentary
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@healingfromlc I find talking exhausting, within a few minutes of a conversation I'm looking for a way to make it stop as politely as possible. My tolerance for texting/typing is 10 times that, but it does get to me eventually.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
📢 #LongCOVID Could Increase Your Risk of Parkinson’s Disease A growing body of research suggests that widespread COVID infections could lead to an uptick in serious neurological disorders like Parkinsons
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@CovidSolidarit1 It's deliberate they've been made to feel this way. Society has been actively undermining itself for decades now. Divide and rule.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@BohemianAtmosp1 Long Covid pre-dates Covid vaccination deployment globally 👍
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
NHL player Brandon Sutter retires after #longCOVID comeback stalls Sutter did not play for the Canucks in the 2021-22 season due to dealing with symptoms of long COVID
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
Looking back at some notes I have, how many LCers out there are still using Coenzyme Q10? If so what do you think it's doing for you? I tried for a while but nothing #longCovid
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@LongCovidNews
Long Covid News #pwLC #FBLC
8 months
@doctor_oxford
Dr Rachel Clarke
4 years
Cannot wait to listen to this. @WesselyS is an extraordinarily wise, humane and very funny man.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
Spoiler: it's bad news.
@TIME
TIME
1 year
How COVID-19 changes the immune system
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
Relatable.
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@LongCovidNews
Long Covid News #pwLC #FBLC
9 months
@justwannadive @kadamssl Oh dear. Long Covid pre-dates Covid vaccination deployment globally. It happens in countries that did not use mRNA vaccines. My thread of date-stamped resources from 2020 proves it:
@LongCovidNews
Long Covid News #pwLC #FBLC
2 years
To trolls, minimizers and anti-vaxxers: #Longcovid pre-dates Covid vaccine deployment globally. This tweet thread about long Covid is date-stamped 6th June 2020: #diedsuddenly #DiedSuddenlydocumentary
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
I thought this might give some of you a laugh #LongCovid
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
Still relevant
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@LongCovidNews
Long Covid News #pwLC #FBLC
9 months
@ForOurIzzy @gemcarey @tarotcat The thing that marks Long Covid apart is that we know the cause: SARS-COV-2.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@BBCMorningLive @xandvt If you're not discussing Post Exertional Symptom Exacerbation (PESE) as part of the complete Long Covid conversation you're not really talking about Long Covid at all.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@piersmorgan Piers it has always been this way, we've been telling people this since mid 2020!
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@Doc_Valerie It's what @BerlinBuyers are doing. They're posting up some great stickers and posters
@BerlinBuyers
+ BERLIN BUYERS CLUB +
1 year
+ BERLIN BUYERS CLUB + is 💀live💀 a thread
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Long Covid News #pwLC #FBLC
1 year
@nataliesurely You're not a medical professional. You're not qualified. You're a poor journalist.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@oldfshndanne 🙁 Anecdotally I think this is actually the experience of most people experiencing PEM. Mine has actually moved out from 24/48 hours to more like 72 to 96, which initially made identifying the trigger event harder.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
Long Covid resembles hidden malicious software on your mobile phone, depleting the battery without notice. Its effects are palpable, yet its origins remain concealed, gradually sapping your energy, rendering you without power and trapped in frustration.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@endurance831 @SeveritySays It's absolutely a real thing. Viruses cause damage and long term issues. Long Covid is that from Covid.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
"We apologize if language used was unclear" Two things: • if you're using "if" it isn't an apology. • the language used wasn't "unclear", it was outright wrong. @nihceal really need to brush up on their professional comms skills, ironic for a "community engagement" org.
@nihceal
NIH Community Engagement Alliance
1 year
While there's no cure for Long COVID, there may be treatment options that can address one’s symptoms & may help people living with Long COVID have better days. There’s a lot to be learned through research & from the Long COVID community. (1/2)
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Long Covid News #pwLC #FBLC
1 year
@Charles32740407 @carolvorders Long Covid is not bollocks.
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Long Covid News #pwLC #FBLC
1 year
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@CovidSolidarit1 I took it to mean "if you are alive". I'm astounded she has the qualifications she has.
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@LongCovidNews
Long Covid News #pwLC #FBLC
8 months
@tallyhoshow @Johnincarlisle You want to get rid of your veins??
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
Chicago Blackhawks legend Jonathan Toews announced he isn't retiring yet but is taking some time away from the NHL to fully heal from health issues related to #longCOVID and chronic immune response syndrome.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@dsmith1462 @TheEliKlein Long Covid is global, it doesn't care about your lazy US political stereotyping.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
I am removing myself from this group and unfollowing on here, it is clear they do not have the best intentions of patients at heart. There is no room for Garner on any serious #LongCovid platform.
@ApheresisLC
Long Covid Apheresis Community
1 year
Re: Paul Garner. Our admin team had a vote and it was decided to treat every member the same. We have never blocked any member that did not violate group rules. Our community is open access, all data owned by all members. We do not support his views, but unless he breaks the/1
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@irvine75 @carolvorders Long Covid is not bollocks.
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@LongCovidNews
Long Covid News #pwLC #FBLC
3 years
@dianaberrent @NewYorker @DhruvKhullar It is a shame that the article is so bad
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@NickTriggle @NuffieldTrust @BBCNews No mention of Long Covid, Nick? Why's that?
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@HatchForTexas @RealGayArbys Long Covid pre-dates Covid vaccination deployment globally. My thread of date-stamped resources from 2020 proves it:
@LongCovidNews
Long Covid News #pwLC #FBLC
2 years
To trolls, minimizers and anti-vaxxers: #Longcovid pre-dates Covid vaccine deployment globally. This tweet thread about long Covid is date-stamped 6th June 2020: #diedsuddenly #DiedSuddenlydocumentary
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Long Covid News #pwLC #FBLC
1 year
@GuptaProgram Delete this garbage.
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Long Covid News #pwLC #FBLC
8 months
@RubiRubenstein @MattJames744 I'm really not. Benefits are required as a failure of capitalism.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@healingfromlc If I have two sleeping periods of 3.5/4 hours I feel better than when I've had 7/8 hours straight 🤷🏼
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@LongCovidNews
Long Covid News #pwLC #FBLC
2 years
UK Government NICE: "COVID-19 rapid guideline: managing the long-term effects of COVID-19" (Long Covid), published in December 2020 following months of research.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
Stop. Rest. Pace.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
Scheiße, @Karl_Lauterbach . Germany is cutting Long Covid funding to one fifth of the initial proposed €100m. The health budget is reduced from €64.4 billion in 2022 to €16.2b next year. 😮 To compare, the military budget will increase to €51.8b plus another €20b.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
Long Covid drug hope for millions of Brit sufferers whose lives are blighted by illness Patients will be invited to join the trials from January
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@MichaelCWilder I think all of the above are involved.
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
@nihceal The longest list of hidden replies on a tweet I think I've ever seen. Contemptible. #longCovid #fblc
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@LongCovidNews
Long Covid News #pwLC #FBLC
1 year
The responses and quotes to this post are horrific. 😔
@thephysicsgirl
Dianna Cowern
1 year
I've been bedbound since January with long Covid, but I still love to dress up for Halloween. So my husband made me this costume (posted by Kyle, the husband.)
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