Dfrizz @Dfrizz007 Twitter profile

Pinned Tweet

Dfrizz

2 years

#LongCovidAwarenessDay just wanted to share my personal story again. 22 months of pure hell. i can't get a single doctor to take this seriously. it's negligent at this point.

Long COVID limbo: A Chattanooga man’s quest to solve his medical mystery | Chattanooga Times Free...

Doug Frizzell can't remember what "normal" feels like anymore.

www.timesfreepress.com

5

21

68

Last Seen Profiles

@AlinaqiSha76

@scull_ann

@2D_ENTPVTLTD

@stw_pdg

@hannahcrileyy

@daan86425723

@howtobeacrab

@H88655995

@duke32815

@7thcirkleent

@iamlilKam

@Suwalloop

@AllMusicMondays

@Jagpote666n

@YVPromotionsLa

@Brkwst94

@Web4Door

@bokeplokalmalam

@NHPreps

@nil_9_fcb

@AtsuhinaBigBang

@pielcanela98x

@moneillsf

@BosssViral

@MailMainbutnot

@erefosan

@LCPASSAGE

@_Truthbe

@Ani_TAROT

@jeddahpack

@thefarewell

@GoziMuka

@UndeadToTheEnd

@Noir_0096

@Julian_BO4

@Faisalamroo

Dfrizz

@Dfrizz007

22 days

i wonder how many people with long covid don't realize they now also have ME/CFS?

34

45

427

Dfrizz

@Dfrizz007

7 months

@frogess33 You literally post in your bio you support and advocate for long covid patients but won't for your own husband? Hypocrisy at its finest

21

3

406

Dfrizz

@Dfrizz007

2 months

Anybody have a theory on why some of us with long covid and MECFS can't nap anymore no matter how tired you are?

37

12

179

Dfrizz

@Dfrizz007

17 days

SSDI hearing went well. my lawyer called me right after it was over (it was only 15ish minutes on video conference) and said based off some of the terminology the judge used and working with him for many years he's sure i'll be approved and receive payments in 2-3 months.

20

3

180

Dfrizz

@Dfrizz007

7 months

i wonder how many people with LC haven't realized they also have MECFS yet? thoughts?

31

8

141

Dfrizz

@Dfrizz007

4 months

Here's my day for 2-3 years. Wake up unrefreshed from sleep. Let the cat out. Get back in bed unable to go back to sleep or nap later. Feeling of impending doom till 6/7pm. Move to couch. Order food. Lay on couch till late. Get back in bed. Feeling like I'm dying all day. Repeat

6

11

104

Dfrizz

@Dfrizz007

7 days

is wish there was a place we could go that wasn't a hospital or psych ward that people with LC and MECFS could stay as long as they needed to try and heal. almost like a retreat type facility but with medical and quite individual rooms. pain management and access to IVs for sleep

46

77

719

Dfrizz

@Dfrizz007

17 days

I have my SSDI hearing in the morning at 830am on video conference.. Then I'm prob going to the hospital Wish me luck

20

1

76

Dfrizz

@Dfrizz007

5 months

May 9th, 2021 I woke up with the worst headache of my life and everyday since then I feel like I'm closer to death than ever before. Today is my 3 year #LongCovid and #pwME helliversy

13

8

71

Dfrizz

@Dfrizz007

10 months

just finished yet another MRI. at this point i just hope they find something, anything....that's the difference between healthy (they don't want to find anything) and chronic illness (we want to find something)

9

0

62

Dfrizz

@Dfrizz007

10 months

i'd like to give a shoutout to @Dakota_150 for finding info, having info sent, and reposting for all of us to read and repost around. many thanks.....if you don't follow Dakota, please do so

4

11

62

Dfrizz

@Dfrizz007

3 months

for anyone with any concerns, this is legit. i just ordered my watch $199 value for free, tax, shipping included. if you don't get the automatic discount when you put a watch in your cart email longcovid @scripps .edu. and they will send you a code to use

Home - The Long COVID Wearable Study — Scripps Research Digital Trials Center

longcovid.scripps.edu

2

34

60

Dfrizz

@Dfrizz007

26 days

Today was worse than yesterday...how is it possible to sleep 8 hours and make zero energy.... #pwlc #pwME

12

0

57

Dfrizz

@Dfrizz007

1 month

We care a lot about ME/CFS but don’t look to us for more funding.” Instead, she encouraged the ME/CFS community to pin its hopes on long COVID – which, of course, we are. We're fvcked.

A Long COVID / ME/CFS Moment Featuring NIH Director Monica Bertagnolli - Health Rising

In a surprise, Monica Bertagnolli, the new head of the NIH, sat down with a long COVID and ME/CFS investigative journalist to discuss the two diseases.

www.healthrising.org

3

15

52

Dfrizz

@Dfrizz007

20 days

just a quick reminder that long covid and ME/CFS doesn't discriminate. these disease's don't care about your race, gender, religion, income, age, etc etc etc

0

8

50

Dfrizz

@Dfrizz007

1 year

#LongCovid has anyone in the twitterverse that's got LC, been officially diagnosed with covid encephalitis from a medical professional. Just curious if so what treatment/if any/ did you receive? I'm wondering if more of us had a form of encephalitis in 20-22

11

47

Dfrizz

@Dfrizz007

7 months

@JaymieGill i'm in the same boat. no memory, scared, not sure how much longer i can continue to do this

1

4

39

Dfrizz

@Dfrizz007

10 months

@Apple748582331 @nypost as someone with 31 months of long covid themselves (and no vax) i can assure you it's not anxiety and depression. i was healthy 2.5 years ago, i'm bedbound now

8

0

37

Dfrizz

@Dfrizz007

20 days

if you are a person that believes in prayer, pray for these people in upper east Tennessee, Western North Carolina and upstate South Carolina. flooding at historical levels. they are getting fucking hammered still. Dams are at a catastrophic breaking point.

1

4

39

Dfrizz

@Dfrizz007

1 month

@sapphicswilder Here's the problem IF she's in a psych ward. She would have access to a phone just not her phone with all her contacts in it. So unless you remember many people's numbers by heart, that might be the issue

1

37

Dfrizz

@Dfrizz007

3 months

anyone with LC or MECFS dealt or dealing with akathisia (hard to sit still or uncontrollable urge to move)...If so what's the best fix for this? i know some meds i'm currently taking could be the cause. thoughts?

14

6

37

Dfrizz

@Dfrizz007

3 months

Why is there not a ME/CFS or long covid specific hospital and/or healing resort in the United States? That's right they don't care about us

3

1

35

Dfrizz

@Dfrizz007

7 months

@drseanmullen this is satire correct? or have you been hacked?

1

32

Dfrizz

@Dfrizz007

26 days

Two days in a row, last night I got 8:45 of sleep and woke up to zero energy made. This life isn't sustainable

10

4

33

Dfrizz

@Dfrizz007

2 months

i wonder how many people with long covid don't realize they actually have ME/CFS as well?? (i have both)

6

0

32

Dfrizz

@Dfrizz007

17 days

oh and for anybody thinking about applying for SSDI, you need to do it yesterday. i applied november 2021 and just had my hearing today 10-1-2024.....the process and time inbetween is stupid. and i was denied twice before going in front of a judge today (on video)

4

1

34

Dfrizz

@Dfrizz007

1 year

@ke_lin_ Consider going. Just make sure it's not a involuntary doctor hold, that will follow you for the rest of your life. If you go on your own accord it will allow you to check yourself out (unless you are a harm to yourself or others)

8

0

31

Dfrizz

@Dfrizz007

2 months

everyday is the worst day of my entire life. today is the worst. tomorrow will then be. so on an so forth

6

1

31

Dfrizz

@Dfrizz007

23 days

i wish the hospital would just put me in a medically induced coma. i understand the risk and i don't care. i'm sick, my brain is on fire, my body is breaking down. i (we) need help yesterday

5

0

30

Dfrizz

@Dfrizz007

7 months

@drseanmullen Sean please blink twice to let us you are OK.

0

29

Dfrizz

@Dfrizz007

3 months

i don't align with Bernie politically very much, but i'll give credit when it's due. he's one of the only people bringing this up. got to give him props

Bernie Sanders

@SenSanders

3 months

For too long, millions of Americans suffering from long COVID have had their symptoms dismissed or ignored – by the medical community, by the media, and by Congress. Unacceptable. Congress must act now. Yes. It is time for a Long Covid Moonshot.

526

2K

8K

4

1

29

Dfrizz

@Dfrizz007

2 years

@DiaryofaSickGrl couldn't agree more. my biggest fear isn't dying at this point, my biggest fear is finally seeing a doctor that might be able to actually help and saying "man i wish i had saw you 12 months ago we prob. could have reversed this"

0

3

29

Dfrizz

@Dfrizz007

6 months

@MchP66592467 Same. I want to live just not like this

1

27

Dfrizz

@Dfrizz007

11 months

@Dakota_150 12 months? i'm on month 31

0

2

28

Dfrizz

@Dfrizz007

14 days

i just voted via absentee ballot. why? because i'm too sick to early vote/go on voting day/i could bare walk to the mailbox to drop my ballot. this is what being sick with MECFS or LC does to people. basic task are not so basic anymore.

2

4

26

Dfrizz

@Dfrizz007

6 months

any #pwME or #LongCovid has issues with your pituitary gland on an MRI? my doctor suspects i might, keyword might, have Cushing's disease based off my appearance, labs, and now being the most i've ever weighed in my entire life. i've read up on cushing's and i check a lot

14

6

24

Dfrizz

@Dfrizz007

6 months

@ThePOTSPostman i haven't found a single vitamin, supplement, or medication that's helped any of my symptoms. zero

4

0

25

Dfrizz

@Dfrizz007

10 months

@SaruulbilegE @Natalie6548 @stephbriggsuk is this satrie? have you been living under a rock?

0

24

Dfrizz

@Dfrizz007

6 months

she doesn't even realize she's being gaslit again. sad

tern

@1goodtern

6 months

So... this young woman is very excited, because she has been told by a neurologist that she has FND not Long Covid... because her symptoms started two months after her covid infection. Doctors are so whack.

166

88

1K

7

0

24

Dfrizz

@Dfrizz007

4 months

@BecauseIMatter White male here. Have been told it's stress or anxiety many times. Terrible take

4

0

22

Dfrizz

@Dfrizz007

2 months

@yourmamacron Dave is the cancer in our community

1

0

22

Dfrizz

@Dfrizz007

9 days

anybody else currently have inflammation in all four of these areas at the same time: brain, brain stem, neck, and spine? i'm suffering at this point

7

3

23

Dfrizz

@Dfrizz007

10 months

@MamaSitaa__ honest question? do you think this will eventually put such a strain on your relationship that he says he can't do this anymore? i hope not. i'm hopeless too. 31 months and counting

2

0

21

Dfrizz

@Dfrizz007

1 month

@theironspartan Weird I didn't take a single vax

1

0

20

Dfrizz

@Dfrizz007

7 months

is this satire? was Sean's account hacked? are we living in the matrix? lol at this post

3

0

21

Dfrizz

@Dfrizz007

1 month

Heart rate was just 169 walking from house to mailbox. I'm getting extremely worried at this point...thinking I should goto ER tonight or tomorrow

8

1

21

Dfrizz

@Dfrizz007

7 months

@pamelarbishop afraid to say LDN is a waste of time and money. i understand at this point we're willing to try about anything but don't be shocked if it doesn't help. i've taken it two different times, zero help

0

16

Dfrizz

@Dfrizz007

8 months

is it possible we are all dead and none of this is real life? #LongCovid #MECFS ...my brain sure thinks it's possible

3

1

18

Dfrizz

@Dfrizz007

3 months

@morganstephensa join the NIH trails that are nowhere near my house and never are accepting new patients you mean....i've been told this same thing too...

0

1

19

Dfrizz

@Dfrizz007

3 months

for anyone that thinks we were laughing at Winnie last night, here's the recording and facts. her and my interaction starts at 1hr 18 minutes until 1hr 26 minutes. you can be the judge for yourself. Winnie cusses me out so i apologize for the language she (and me) used.

2

3

17

Dfrizz

@Dfrizz007

17 days

i won't know officially until i get the letter in the mail then the other letter with benefits numbers but he's said I will be approved.

2

0

18

Dfrizz

@Dfrizz007

10 months

@DrSyedHaider is this satire? my 31 months of long covid disagree. be better than this OP

1

0

17

Dfrizz

@Dfrizz007

7 months

today is 34 months with LC/MECFS. first day my life changed was May 9th, 2021. i can't believe this nightmare is still going on . we need help yesterday

1

0

16

Dfrizz

@Dfrizz007

2 months

@kendra_raleigh9 @BNOFeed It's airborne, washing hands doesn't stop covid

0

17

Dfrizz

@Dfrizz007

22 days

@AutonomicBrad They are in pure denial

1

0

17

Dfrizz

@Dfrizz007

11 months

@fillthewhole as someone with LC for 30 months, i wouldn't want my blood either.

0

16

Dfrizz

@Dfrizz007

2 months

@I_need_a_razor alot of people with long covid don't realize yet they actually have ME/CFS

1

0

16

Dfrizz

@Dfrizz007

2 years

@eileeniorio @SethMacFarlane never had the first vax. i've had long covid 22 months and it's the worst thing that's every hit me....

Long COVID limbo: A Chattanooga man’s quest to solve his medical mystery | Chattanooga Times Free...

Doug Frizzell can't remember what "normal" feels like anymore.

www.timesfreepress.com

0

15

Dfrizz

@Dfrizz007

22 days

@ZieglerFrank this is a valid point frank. me personally i think i got sick, developed long covid, and it moved into full blown ME/CFS.....i'm somewhere on the very close to severe side now

2

1

16

Dfrizz

@Dfrizz007

2 months

@betsyladyzhets @thesicktimes don't ignore ME/CFS please. find a way to bring it up

0

1

16

Dfrizz

@Dfrizz007

2 months

I'm really struggling to find a reason to keep fighting lately. My brain hurts, my body hurts. I just don't see a way out at this time....

4

0

16

Dfrizz

@Dfrizz007

2 months

Do you feel that long covid or MECFS has changed your personality? Cause I sure do

2

0

14

Dfrizz

@Dfrizz007

2 months

@SomeJackass77 i see Dave is still on the me, me, me tangent. shocker

0

14

Dfrizz

@Dfrizz007

11 days

i need help. today. but i don't know where to turn to for the help i need. hopeless

4

1

15

Dfrizz

@Dfrizz007

7 months

Landmark Study Confirms Chronic Fatigue Syndrome Is 'Unambiguously Biological'

The results are finally out.

www.sciencealert.com

0

3

14

Dfrizz

@Dfrizz007

7 months

@ApuEnjoyer88 @nypost Me, no vax, libertarian, and had this shit 34 months

1

2

14

Dfrizz

@Dfrizz007

2 months

@CDCDirector When the fuck are we going to do something about long covid and ME/CFS Mandy

0

1

14

Dfrizz

@Dfrizz007

2 months

great piece you did Sam.

Sam Norpel, MA

@NorpelSam

2 months

1) 🖼️ 🧵 It took painting flowers recently & DMing with another patient about my #LongCOVID #SuicidalIdeation to get my next LC painting to come to life. Long Covid: Suicidal Ideation “Thoughts in My Head”by me, Sam Norpel 2024.

25

60

228

2

3

14

Dfrizz

@Dfrizz007

8 months

@RogerSeheult @AlexSprackland not coming back doesn't equal symptoms are gone. ive been sick over 1000 days with this and i've given up on the medical system, but i still have 25+ symptoms

0

15

Dfrizz

@Dfrizz007

1 year

#LongCovid i went to the ER tonight for what i thought was kidney/back pain. i got a IV (shocked), i got a ER doctor that believed in long covid (shocked) and then all the sudden, he says that famous line. we're going to release you, you should work with your primary. lol F me

0

1

13

Dfrizz

@Dfrizz007

8 days

@MamaSitaa__ Dave is the cancer of our community

2

0

15

Dfrizz

@Dfrizz007

30 days

@NeleHelena Happy birthday today is my b'day too and I'm still sick AF

6

0

14

Dfrizz

@Dfrizz007

11 months

@GeorgiParvanov4 i'm coming up on 950 days and i feel this post to the core. if possible try and keep fighting brother

0

14

Dfrizz

@Dfrizz007

1 month

@sapphicswilder It might vary. My guess she doesn't have access to her phone but the phone in the ward. Assuming she's even in psych.

0

13

Dfrizz

@Dfrizz007

6 months

i can't see the post because Dave has me blocked for some reason, but just imagine if Dave gave that same love and support in return how better our community would be

Just Here For The News

@ktho641521

6 months

Dave could use some love and support

1

0

5

3

0

14

Dfrizz

@Dfrizz007

10 months

today at primary care: 14 day heart monitor, more blood work, memory test (which i failed), EKG, more pills, still in pain 955 days and counting... #LongCovid

1

2

13

Dfrizz

@Dfrizz007

4 months

What drug helps people with insane racing thoughts that are debilitating to the point you can't function? #pwme #pwlc

14

0

13

Dfrizz

@Dfrizz007

2 months

@yourmamacron @Nnwwzz124 reminder: dave is the cancer in our community

1

11

Dfrizz

@Dfrizz007

1 year

i feel like #longcovid has really changed my personality. i no longer remember what it feels like to be the old me.

0

1

12

Dfrizz

@Dfrizz007

27 days

How are you supposed to function when your body is literally making zero energy after 9:21hr of what I thought was ok sleep.

3

0

11

Dfrizz

@Dfrizz007

29 days

@MamaSitaa__ i honestly don't know anymore. its' been 3.5 years i'm honestly shocked i'm still here to be quite honest with you. heartattack or by my hand.

1

12

Dfrizz

@Dfrizz007

1 year

@LongCovidKiwi when you have the covid hangover but didn't do the partying the night before.

0

12

Dfrizz

@Dfrizz007

7 days

you would think someone with alot of money would start something like this just to make more money for themselves. which i'd be fine with....cause i'd (we) would have a fighting chance

3

0

74

Dfrizz

@Dfrizz007

4 months

i'm not a female of course so i can't pretend i know what it's like to lose part of your of yourself like this, but also being sick 37 months i was going to shave my head last time (i know it's no big deal for guys) chickened out. but none the less we are pulling for you Dianna.

Dianna Cowern

@thephysicsgirl

4 months

Dianna decided to shave her head to make it easier on herself for her journey with #LongCovid and #MECFS . Many people struggling with this disease choose to do this if bed-bound for extended periods of time, like Dianna has been. Hopefully she can avoid crashes, and reduce the

3K

727

8K

1

12

Dfrizz

@Dfrizz007

1 month

Everyday is the worst day of my life #pwME #pwlc

0

11

Dfrizz

@Dfrizz007

2 years

@Survivor_Corps i posted this in the FB group, but for anybody not in the FB group, i wanted to share my personal story that was on the front page of Sunday's paper here in Chattanooga, TN for anybody interested.

Long COVID limbo: A Chattanooga man’s quest to solve his medical mystery | Chattanooga Times Free...

Doug Frizzell can't remember what "normal" feels like anymore.

www.timesfreepress.com

1

5

12

Dfrizz

@Dfrizz007

25 days

Three nights in a row my body made zero energy after 8+ hours of sleep. This life isn't sustainable

3

12

Dfrizz

@Dfrizz007

10 months

@PaulGadsden82 bro, nothing to be embarrassed about. i hope those treatments help....i don't have the ED problem, but i do have the issue where i can't stay concentrated in order to finish (could be a side effect of meds i'm on)

1

0

11

Dfrizz

@Dfrizz007

2 years

@VicBrian2 @SethMacFarlane unvaxed. 22 month long hauler. it's pure hell

1

0

10

Dfrizz

@Dfrizz007

11 months

@AlisaValdesRod1 What ER are you going to, cause the ones in Tennessee don't seem to know about long covid

1

0

11

Dfrizz

@Dfrizz007

2 years

@patpatspat wrong again. i haven't a one single vax, but i've had long covid for 22 months. so is that still a vax injury?

3

0

10

Dfrizz

@Dfrizz007

5 months

@I_need_a_razor it's trash. i've taken two separate times two separate years and didn't do anything. they have to listen to the sick patients before doing these stupid trails

1

0

10

Dfrizz

@Dfrizz007

5 months

accurate.

ChronicIllnessHumor

@HumorChronic

5 months

One doctor just throws you to another doctor and it is an endless cycle #chronicillness #diagnosis

8

35

148

3

2

11

Dfrizz

@Dfrizz007

1 year

@CDCgov @CDCMMWR up to 12 months? yea i just had my 27 months of hell date just three days ago ....that needs to be reworded and fixed...it's insulting

0

10

Dfrizz

@Dfrizz007

7 months

@MchP66592467 Same. Long covid/me for 34 months, and not a single vax

1

0

10

Dfrizz

@Dfrizz007

22 days

@CDCDirector What the fuck are you guys going to do about long covid and MECFS people that are suffering.... I guess you'll just continue with your photo ops

0

11

Dfrizz

@Dfrizz007

1 month

My brain has been on fire for so long I don't remember what normal feels like, I really don't

0

11

Dfrizz

@Dfrizz007

6 months

@loscharlos @SocialSecurity I've been waiting 31 months, after two denials. Me and my lawyer go in front of a judge in June of this year. I live in Tennessee

0

2

11

Dfrizz

@Dfrizz007

1 year

#longcovid me: doctor, I feel like I'm dying Doctor: let's schedule a follow up 6months from now This is my life thanks to LC

0

1

7