Scott Daniska @scott_scientist Twitter profile | Pikagi

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Scott Daniska

@scott_scientist

1,413

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Scientist & chronic illness advocate raising awareness of environmental research for ME/CFS & more. Let's drive change together! #ChronicIllnessAwareness

United States

https://t.co/Gzasw9fUNm

Joined August 2009

Don't wanna be here? Send us removal request.

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@scott_scientist

Scott Daniska

@scott_scientist

16 days

My advocacy presentation entitled: "Environmental Contributions to ME/CFS & Long COVID". Many years of research to produce these results, and many months to assemble the presentation, just hoping this gets properly funded!

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Environmental Contributions to ME/CFS & Long COVID Presentation

Presentation from a scientist with ME/CFS on his research perspectives on the root cause of ME/CFS and Long COVID. Addresses environmental factors as root ca...

www.youtube.com

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@scott_scientist

Scott Daniska

@scott_scientist

1 month

@elonmusk I find it surprising that you find it surprising that sucking all the wealth out of the lower class so you can solely control it and making the cost of living unaffordable has deterred people from having children

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@scott_scientist

Scott Daniska

@scott_scientist

2 months

Very disappointed in Dr. Avi Nath's comments today: "The population affected by long COVID is so much larger, and symptoms are so much more severe compared to ME/CFS that we decided that what we should do is focus on long COVID." Would he like some photos of ME/CFS patients?

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Scott Daniska

@scott_scientist

12 days

Tired of listening to these doctors and physicians holding webinars telling patients to “eat a healthy diet and focus on conditioning” in order to improve… Some of the healthiest athletes in the world are still getting horribly sick from ME/CFS & Long COVID… you think they

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@scott_scientist

Scott Daniska

@scott_scientist

1 month

@SandraHolmberg3 @elonmusk Crazy how some people think that I’ve made a political comment by objectively acknowledging he has accumulated an egregious level of wealth… Stating facts isn’t an opinion or philosophy, no wonder we’re so divided.

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@scott_scientist

Scott Daniska

@scott_scientist

1 month

@KevButterworth @elonmusk Chronic illness rate is up from 6% to 60% of the adult population in less than 100 years. You have to be rich just to get by.

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Scott Daniska

@scott_scientist

1 month

When ME/CFS patients say that “It feels like there’s cement in my blood”, what if they were unintentionally being truthful? I request a formal investigation of the role of particulate matter in ME/CFS, clogging lymphatics & interstitial spaces (which is why perfusion is poor),

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@scott_scientist

Scott Daniska

@scott_scientist

1 month

Genuine question: If you knew the root cause of ME/CFS, beyond a shadow of a doubt, but even if you told people, they wouldn’t believe you, what would you do? Do you just keep trying to tell people or do you give up?

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@scott_scientist

Scott Daniska

@scott_scientist

2 months

Attended a wedding yesterday, and including myself, there were 3 people out of the 50 present who had medically diagnosed Chronic Fatigue Syndrome. This is not a rare condition.

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@scott_scientist

Scott Daniska

@scott_scientist

2 months

@annitht Appreciate that! I want all the chronic illness communities working together (MCS, POTS, FM, etc) and research studies to use all subgroups as controls so we all get answers and use funds more effectively

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@scott_scientist

Scott Daniska

@scott_scientist

2 months

@granejane @PatientDreams I’m at the point where I don’t mind if people publically call out comments like that on webinars. You can’t make those comments and get away with it, he needs to be held accountable, people’s lives are at stake.

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@scott_scientist

Scott Daniska

@scott_scientist

2 months

ME/CFS isn’t just “feeling tired all the time”. It’s potentially fatal. Doctors need to hear this so they start taking the condition seriously.

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‘My child died of ME’: a scandal waiting for its Post Office moment

Sean O’Neill is dreading his daughter’s inquest but hopes it will show the nation how people with the condition are routinely stigmatised and ignored by the NHS

www.thetimes.com

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@scott_scientist

Scott Daniska

@scott_scientist

1 month

@SenSanders It is unacceptable to put $10 billion into long covid, and nothing into fibromyalgia, me/cfs, multiple chemical sensitivity, pots, etc. All these patients suffer just as much. Please be a hero for all of them

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@scott_scientist

Scott Daniska

@scott_scientist

30 days

@AuroraTheFoxxo @elonmusk Please let me know where I said the word stolen

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@scott_scientist

Scott Daniska

@scott_scientist

4 months

This message is to healthy people who have a friend who recently developed a chronic illness they don't understand: Don't abandon them, or keep your distance. Support them harder. They need you. Reach out. They need that love to keep them going.

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@scott_scientist

Scott Daniska

@scott_scientist

2 months

@PeonyLeaves905 When researchers can even display intelligence regarding the condition they’re treating, then we can’t trust the results or mechanism they’ve proposed either.

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@scott_scientist

Scott Daniska

@scott_scientist

4 months

I just finished an INCREDIBLE interview with a long COVID patient now in remission and I can’t wait to share it with everyone in the coming days!!

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@scott_scientist

Scott Daniska

@scott_scientist

8 months

IT'S DONE! After years of work, finally have published my video explaining my research results and discussing root cause. PLEASE watch, like, subscribe, and share to help me spread this word and reach the researchers! #mecfs #longcovid #mcs #pots

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Scientist Shares Research Findings! Unveils Novel Mechanism for...

Scientist with ME/CFS research experience proposes a novel mechanism for chronic illness based upon research findings and personal experiences. Relevant for ...

www.youtube.com

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@scott_scientist

Scott Daniska

@scott_scientist

1 month

Personal post: This is what before and after ME/CFS looks like for me. Zero help from my employer, from friends, from the government, and from doctors. You get ill, and you’re just fucked.

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@scott_scientist

Scott Daniska

@scott_scientist

1 month

@zalaly I developed ME/CFS back in 2017 and I remember initially being in the hospital, and was shocked when millions of people have had this condition for decades, yet no doctor or researcher ever compiled recommended reflex testing, or most beneficial treatments… every new patient is

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@scott_scientist

Scott Daniska

@scott_scientist

4 months

A couple years ago I surveyed multiple ME/CFS groups to see what medications/treatments they found beneficial. Sharing with everyone in case this helps anyone.

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@scott_scientist

Scott Daniska

@scott_scientist

2 months

@JanetDafoe Hear it for yourself at 24:50 timestamp

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Delving into Neurological Implications of Inflammation: COVID-19 and Viral Infections

Episode · COVID On The Brain · In the third episode of season two of the podcast COVID On The Brain, we had the privilege of hosting Dr. Avindra Nath, a distinguished physician-scientist specializing...

open.spotify.com

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@scott_scientist

Scott Daniska

@scott_scientist

22 days

Interesting protocol for treating tethered cord in ME/CFS, using frequency specific microcurrents (FSM) to destabilize the tether until it separates, and then GK-Cu to restabilize after the tether separates.

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ME/CFS, Spinal Instability, & Tethered Cord Recovery Protocol

I am not a medical provider. My experience and thoughts are not medical advice. Nothing in this article should be construed as medical…

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@scott_scientist

Scott Daniska

@scott_scientist

1 month

@DrSuneelDhand “Stop trying to figure out what’s going on and just learn to live with it”

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@scott_scientist

Scott Daniska

@scott_scientist

4 months

When I first became ill with Chronic Fatigue Syndrome, I remember saying "Well, at least I don't have Multiple Chemical Sensitivity so I don't have to change my lifestyle". It took me 4 years to realize the environment was driving my symptoms. It's not obvious.

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@scott_scientist

Scott Daniska

@scott_scientist

30 days

@Greg54783235113 @elonmusk Have you ever lived with a chronic illness that leaves you bedbound? Millions of Americans have that. Just because you had that opportunity doesn’t mean everyone does.

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@scott_scientist

Scott Daniska

@scott_scientist

2 months

@ishbelfrazer LMAO. Every single person with ME knows its physical, I've never heard of a single person who thinks its psychological that has the disease. More researchers that won't listen...

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@scott_scientist

Scott Daniska

@scott_scientist

2 months

@BonnieLextra 👏🏼👏🏼👏🏼

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@scott_scientist

Scott Daniska

@scott_scientist

1 month

@18_simplicity Compartment pressure/pain, mechanical derived weakness, breathlessness, increased symptoms in areas receiving increased blood flow, postural symptoms, etc

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@scott_scientist

Scott Daniska

@scott_scientist

1 year

@erikmoldwarrior CFS patients will go to any length imaginable to avoid considering an environmental component to their illness

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@scott_scientist

Scott Daniska

@scott_scientist

30 days

@Raks54672917 @elonmusk In America, the cost of living is substantially higher than Africa. New kid? Need a new room, need new life insurance, need to spend more on food, need to drive them around, need to pay medical bills, etc. people don’t want to bring a child into the world that’s living in the

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Scott Daniska

@scott_scientist

1 month

When it comes to farming, if you have a sick plant, the assumption is always an environmental problem: lack of sunlight, mold, poor nutrients, etc. When it comes to people, the assumption is it’s never environmental. We all just have these random genetic problems that are

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@scott_scientist

Scott Daniska

@scott_scientist

1 month

@DaniBeckman Twitter can have some aggressive/close-minded commenters, but it’s partially due to researchers, legislators, and advocacy leaders repeatedly ignoring these patients and gaslighting them

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@scott_scientist

Scott Daniska

@scott_scientist

3 months

@SurvivingCFS The problem with the severity scale is that people only refer to functioning, which can mean many different things because symptoms are so heterogenous. But it doesn’t refer to suffering level, which can be severe while functioning is still relatively high.

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@scott_scientist

Scott Daniska

@scott_scientist

2 months

Hear my comment to the NIH during their webinar on Clinical Research Engagement. I think it was well received; my comment was the only one the panel discussed at the end and had them nodding in agreement. This is how we make change: DON'T BE AFRAID TO SPEAK UP!!!

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@scott_scientist

Scott Daniska

@scott_scientist

3 months

@dsethlewis Patients are about 25 years ahead of doctors when it comes to understanding this disease, but doctors think patients are too stupid to know anything.

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@scott_scientist

Scott Daniska

@scott_scientist

1 month

@KevButterworth @elonmusk Causation is irrelevant

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@scott_scientist

Scott Daniska

@scott_scientist

1 month

@morganstephensa @POTUS Excellent thank you. Please also advocate for ME/CFS, fibromyalgia, and other chronic illnesses with no medical awareness or funding, they all desperately need attention.

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@scott_scientist

Scott Daniska

@scott_scientist

1 month

@pausedME It’s easy to feel a kind of ‘high’ when you’re improving, but please make sure you maintain pacing and pay attention to what your body is telling you so you can keep all the strides you’re making!

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@scott_scientist

Scott Daniska

@scott_scientist

1 month

@Naomi_D_Harvey I would LOVE some collaborators. Or even just the opportunity to sit at a table with some researchers and tell them what I know. They get so many people telling them wacky theories however that the barrier to get that is very high

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@scott_scientist

Scott Daniska

@scott_scientist

1 month

Just wanted to take a minute to thank everyone on this platform for every comment and piece of feedback you’ve given me. Even if in disagreement, that has been what has kept the conversation going, and without it I’d just be talking to a wall. I appreciate everyone in this

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@scott_scientist

Scott Daniska

@scott_scientist

3 months

@useless_priest I can’t speak for women, but in my personal experience, I have been afforded no consideration, proper care, or belief. I’ve had to fight my way through the system the entire time. It’s been awful.

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@scott_scientist

Scott Daniska

@scott_scientist

12 days

@danaherbert It is extremely rare that researchers are interested in root cause, I’ve even heard some say they’re specifically not interested in it

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@scott_scientist

Scott Daniska

@scott_scientist

2 months

Will be speaking up for the patient community tomorrow at the NIH Webinar. My top priority will be the most productive use of research funds to benefit patient quality of life. I hope to sufficiently represent and honor our community. I know how much everyone is suffering.

@NIH_OSP

NIH Office of Science Policy

2 months

Join OSP and @CISCRP for a listneing session on raising public voices throughout all stages of clinical research. Full details at:

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@scott_scientist

Scott Daniska

@scott_scientist

1 year

@ahandvanish There are potentially billions of biomarkers in the human body... I've seen hundreds of millions thrown into biomarker studies and the only thing thats come out of that is "there is an abnormality" without any understanding of why. Establishing causation is the only path forward.

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Scott Daniska

@scott_scientist

2 months

@hout_marianne IMO, it is more likely that he is just lying for grant funding

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@scott_scientist

Scott Daniska

@scott_scientist

4 months

So happy to see that NIH researchers are now listening, and have included the mechanism I have proposed for ME/CFS in their roadmap!!! Feeling incredible relief that all my efforts are finally getting this information in the hands of the right people

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@TomKindlon

Tom Kindlon

4 months

News from NIH: ME/CFS Research Roadmap now available Links in image: #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

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@scott_scientist

Scott Daniska

@scott_scientist

1 month

@ChrisMurphyCT It’s not just high prices, it’s inaccessible. The state of Connecticut has prioritized giving housing to illegal immigrants over those with disabilities, including those who are blind and in wheelchairs. I struggle to think about what they go through…

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Scott Daniska

@scott_scientist

1 month

@AndyBayo_ It’s almost like no one cares about researching root cause…

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@scott_scientist

Scott Daniska

@scott_scientist

28 days

@Bridget_OShea Most patients know more about ME/CFS than any doctor, particularly neurologists

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Scott Daniska

@scott_scientist

1 month

How is your ME/CFS generally trending overtime?

Gradual improvement

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Gradual worsening

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@scott_scientist

Scott Daniska

@scott_scientist

4 months

Until the 3-6 million people suffering with this horrible disease get adequate funding, diagnostic tests, treatments, and support, every single day is ME/CFS Awareness Day.

@weandmecfs

WE&ME Foundation

4 months

ME/CFS Awareness Day 2024 - thanks to @oeg_mecfs for organizing this important event today in Vienna. Each bed displayed represents #MECFS patients that miss their previous lives and have messages from them attached 💙

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Scott Daniska

@scott_scientist

4 months

I remember when Long COVID got $1.5B in research funding and patients were saying "Do you think we'll get a cure in 2 years?" Multiple years have gone by and not only do we not have a cure, but we haven't even made any progress. Because we're not doing the right kind of research

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@scott_scientist

Scott Daniska

@scott_scientist

11 days

How relevant are environmental factors for the ME/CFS and Long COVID population as a whole? Hear my analysis:

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@scott_scientist

Scott Daniska

@scott_scientist

5 months

Brand new paper: "Epithelial barrier damage by environmental toxins results in dysbiosis, translocation of microbiota, opportunistic pathogen colonization, chronic inflammation, systemic immune responses, and defective epithelial barrier healing."

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Recent advances in the epithelial barrier theory

Effects of environmental toxins on epithelial barrier functions

academic.oup.com

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@scott_scientist

Scott Daniska

@scott_scientist

1 month

I am so happy for the Long COVID community to get this wonderful opportunity for medical funding they desperately need. However, ME/CFS, POTS, MCAS, Fibro, and MCS patients suffer just as dearly. Please don’t leave them behind. Please advocate they get funding too.

@SenSanders

Bernie Sanders

1 month

For too long, millions of Americans suffering from long COVID have had their symptoms dismissed or ignored – by the medical community, by the media, and by Congress. Unacceptable. Congress must act now. Yes. It is time for a Long Covid Moonshot.

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Scott Daniska

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1 month

@KevButterworth @elonmusk Not relevant to the point that financial status of lower class citizens is concerning. I never said it’s not important generally, which is obviously very much is.

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@scott_scientist

Scott Daniska

@scott_scientist

2 months

@DaniBeckman @KamalaHarris The problem is these people say they care, but then they don't even show up to vote. They have a golf game that day, or whatever it is. If you can explain that she is different, and cares more about medical research than jailing Trump, Tiktok bans, and UFOs, I'd change my stance

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@scott_scientist

Scott Daniska

@scott_scientist

1 month

Glad to see NIH Director is addressing LC, but unfortunately don’t see any mention of the tens of millions of Americans dealing with ME/CFS, POTS, MCAS, Fibro, Multiple Chemical Sensitivity, etc with just as severe cases and zero funding.

@NIHDirector

Dr. Monica M. Bertagnolli

1 month

1⃣ #NIH ’s approach to evaluate therapeutic interventions for #LongCOVID is evolving. We will apply lessons learned from initial #NIHRECOVER studies & trials to develop a new program called RECOVER-Treating Long COVID (RECOVER-TLC).

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Scott Daniska

@scott_scientist

1 month

@ThePOTSPostman And conversely a problem with any of those things will lead to a change in autonomic baseline function

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@scott_scientist

Scott Daniska

@scott_scientist

5 months

Today I called Bernie Sanders' office and requested ME/CFS, Multiple Chemical Sensitivity, Fibromyalgia and POTS (which have almost zero funding) specifically be added to the moonshot legislation; Solve asking for "associated conditions" isnt enough. You can call at 202-224-5141

@LCMoonshot

Long Covid Moonshot

5 months

BREAKING: Senator Bernie Sanders drafts proposal for Long Covid Moonshot. The proposal earmarks $10B in Long Covid research funding over the next decade.

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Scott Daniska

@scott_scientist

2 months

@healingfromlc Willing to bet my reputation that it will not

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Scott Daniska

@scott_scientist

2 months

Going to be more of the same until researchers start listening to patients, who know more than the researchers at this point

@mrzphd

Michelle R. Zimmerman, PhD #MIEExpert #LongCovid

2 months

I’ve been disabled since March 2021. I’ve been going through invasive, painful testing, giving my body to science for data ever since. It’s been over 2 years with NIH RECOVER. To date, no answers. No treatment. No recovery. But I did get this water bottle as a consolation prize.

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Scott Daniska

@scott_scientist

9 months

@SurvivingCFS

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Scott Daniska

@scott_scientist

1 month

@PlzSolveCFS @sciam @NIH_NINDS Well on his last podcast he said “ME/CFS isn’t as severe”, so I guess we don’t have to worry about it, right?

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@scott_scientist

Scott Daniska

@scott_scientist

4 months

@dysclinic They're actually making a fantastic point, that the irregularities in autonomic function may be a compensation for vascular/anatomical/other changes rather than primary dysfunction.

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@scott_scientist

Scott Daniska

@scott_scientist

13 days

New data out from the Younger Lab! They found that pain and fatigue were worse when the air quality index was worse. This had a statistically significant relationship, even in a flawed preliminary study! This is the beginning of proof, that environmental factors lie at root cause

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@scott_scientist

Scott Daniska

@scott_scientist

4 months

@jason_isaia This is a weighted survey from the community. If one person has a very bad reaction to LDN (which I have heard of several times), it will lower the score substantially. Whereas almost no one has a strong negative reaction to magnesium.

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@scott_scientist

Scott Daniska

@scott_scientist

1 month

I’m trying to make a list of therapies that promote wound healing/connective tissue repair. Here’s what I have so far, please comment if you have any ideas to add! -Vitamin C -Red light therapy -Hydrogen water -Retinol -Collagen supplement -Infrared sauna -GHK-Cu peptide -Copper

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@scott_scientist

Scott Daniska

@scott_scientist

4 months

"They found that women who cleaned as little as once a week had an accelerated lung decline risk. In fact, they said using cleaning products for 20 years is equivalent to smoking 20 cigarettes a day for 10 to 20 years for women." .

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@scott_scientist

Scott Daniska

@scott_scientist

4 months

Check out my interview with Ben, a person with long COVID now in remission to hear his story and how he recovered! Thank you, Ben for having the courage to share it with the community and we are all very anxious to hear it!

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A Long COVID Remission Story That May Surprise You

Today I interview Ben, a person with long COVID from Kosovo. He shares his journey, which started after he contracted long COVID in 2019. He experienced a tr...

www.youtube.com

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@scott_scientist

Scott Daniska

@scott_scientist

2 months

@IsabelC18904528 Usually they don’t publish these kinds of videos for about 3 weeks

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@scott_scientist

Scott Daniska

@scott_scientist

3 months

If you have ME/CFS and feel there are no options for you and you’re ready to give up, just move to a place with better air quality. I know it sounds too simple to possibly help, but what do you have to lose?

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@scott_scientist

Scott Daniska

@scott_scientist

1 month

For those of you that think chronic pain/Fibromyalgia is a neurological disease, then why is it that wherever I have sharp pain, it looks like bleeding underneath the skin in that spot?

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@scott_scientist

Scott Daniska

@scott_scientist

26 days

@RorPreston @Invest_in_ME I worry substantially that that pathway may indeed be triggered, but as a protective mechanism. If you were to use that treatment on a human, consequences could be fatal.

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@scott_scientist

Scott Daniska

@scott_scientist

20 days

@I_need_a_razor They made me stop breathing in my sleep, don’t recommend them

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@scott_scientist

Scott Daniska

@scott_scientist

4 months

I am so certain about the mechanism for ME/CFS that I proposed, that I’m willing to stake my entire reputation on it. I will speak to any doctor, researcher, content creator, congressmen, or advocacy leader about it either publicly or privately at any time in any context.

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@scott_scientist

Scott Daniska

@scott_scientist

28 days

I’ve been working on my latest presentation for months now, and I’m almost done! Will be posting it publicly next week!

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Scott Daniska

@scott_scientist

27 days

@Silas33 Safe housing

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Scott Daniska

@scott_scientist

21 days

@LindseyMarie_xo The fact that you have enough energy to maintain friendships in of itself is impressive

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@scott_scientist

Scott Daniska

@scott_scientist

20 days

@NBoydGibbins I would look at separation of muscle fibers, focusing specifically on areas where patients complain of chronic pain and muscle weakness

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@scott_scientist

Scott Daniska

@scott_scientist

15 days

TOMORROW! (Sunday) 1 PM EST, join this Twitter Space for a discussion on the science and research being done in ME/CFS and Long COVID! [Co-host @AaronCa11 ]

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@scott_scientist

Scott Daniska

@scott_scientist

26 days

Director Bertagnolli of the NIH, has decided to propagate the unsubstantiated claim that a live virus is at root cause of Long COVID, as opposed to talking to ME/CFS patients taking experimental antivirals for decades without benefit. @NIHDirector

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Q&A: NIH Director Dr. Monica Bertagnolli on next steps for RECOVER, future Long Covid research...

Betsy Ladyzhets spoke with Dr. Monica Bertagnolli, director of the National Institutes of Health (NIH), in a wide-ranging interview discussing the agency’s efforts to further research into Long Covid...

thesicktimes.org

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Scott Daniska

@scott_scientist

16 days

@RobertKennedyJr The only politician I've heard speak that talks about our country's issues proportionately to their importance. He is correct; the chronic illness epidemic should be the top priority. Incredible speech, incredible man. THANK YOU, MR KENNEDY.

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Scott Daniska

@scott_scientist

1 month

@ratraceco @SenSanders Sorry, but I can’t call tens of millions of Americans suffering in agony in the dark with zero help “a good start”. Sounds like just a justification to accept inaction. All the conditions can be equally severe and all should be funded together

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Scott Daniska

@scott_scientist

4 months

Here's a clip from my recent interview with Ben: a person with Long COVID now in remission!

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Scott Daniska

@scott_scientist

1 month

I'm going to call it for what it is. This bill leaves ME/CFS and other non-infectious illness patients behind. The best they got is they will be "considered" in other Long COVID studies... If you were suffering in bed for decades, would being CONSIDERED as a patient in a trial

@SenSanders

Bernie Sanders

1 month

For too long, millions of Americans suffering from long COVID have had their symptoms dismissed or ignored – by the medical community, by the media, and by Congress. Unacceptable. Congress must act now. Yes. It is time for a Long Covid Moonshot.

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Scott Daniska

@scott_scientist

1 month

@BottsieHicks Formal studies haven’t been conducted yet, but ME/CFS is systemic. Blood flow is a problem, but as I said I think lymphatics and connective tissue are also affected which will also affect blood flow, nervous system, muscles etc

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Scott Daniska

@scott_scientist

1 year

Imagine if people took the failures of our healthcare system, which kill thousands of people a day, as seriously as they do 5 people stuck on a submarine.

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Scott Daniska

@scott_scientist

1 month

@JanetDafoe I hope this can be updated to incorporate degree of suffering as well. There are people who can physically run a mile, but they will feel awful. Or maybe they can do it once or twice, but not repeatedly. Many people suffer extremely, but don’t lose functionality as much.

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Scott Daniska

@scott_scientist

1 year

@HarryBoby4 Why I know beyond a shadow of a doubt Long COVID will NOT be solved in 5 years: You can have the largest excavating equipment in the world, but if you’re on the wrong island, you’ll never find the buried treasure. Our scientific method is fatally flawed.

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Scott Daniska

@scott_scientist

9 months

@NeurologistMom because "inflammation of brain and spinal cord" does not accurately describe the illness. there are WAYYYY more systemic factors to this disease than the CNS. I would prefer chronic fatigue syndrome over a step back like that

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Scott Daniska

@scott_scientist

3 months

@NIHDirector Monica Bertagnolli declined my request to speak with her today due to scheduling conflicts. While understandable that there are time constraints, there are consequences to avoiding patient feedback. Sharing my response with everyone.

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Scott Daniska

@scott_scientist

3 months

Check out the following clip from my recent interview on the Multiple Chemical Sensitivity Podcast, where I talk about particulate exposures causing chronic pain/fatigue! Full video in the link below 🧑‍🔬

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Scott Daniska

@scott_scientist

1 month

@InflammaSean True... but I'm talking about what's practically useful. If you put your hand in a fire 10,000 times and every single time it burned you, do you need a clinical study to know that fire is hot? At a certain point, you can be comfortable in knowing something.

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Scott Daniska

@scott_scientist

5 months

@LCMoonshot @SenSanders Imagine how much we could accomplish if LC, FM, ME/CFS, MCS, MCAS, POTS, and EDS all started working together for funding for the whole pool of patients, rather than only trying to advance their own diagnosis

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Scott Daniska

@scott_scientist

21 days

@LindseyMarie_xo I’ve heard so many ppl say IG is a farce. People deal with so many difficulties you just never see on there

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Scott Daniska

@scott_scientist

2 months

It blows my mind that millions of people have ME/CFS and no doctor or researcher has ever said “Hmmm, let’s look in peoples homes and see if we can identify any common factors…” Isn’t that the first logical thing you think people would check?????

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Scott Daniska

@scott_scientist

2 months

Almost like I've been saying this from day one...

@TomKindlon

Tom Kindlon

2 months

Press release for new US study that is getting some media coverage already "Research finds no difference in #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome prevalence caused by #COVID19 & other acute illnesses" #MEcfs #CFS #PwME #LongCovid 1/

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Scott Daniska

@scott_scientist

1 month

@FStevenChalmers I worry that we are researching the wrong things and moving in the wrong direction, and those who are chronically ill will never get the help they need in their lifetime

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