Sarah Parton (she/her) @sarahkarpar Twitter profile

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Sarah Parton (she/her)

@sarahkarpar

10 months

My last day of work forever is today. It wouldn't matter what day it is, I would never be ready. #ALS has taken most of my legs and now my job. Like a ninja thief, it sneaks in to dismantle my life. Bittersweet day for sure. #endals

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Sarah Parton (she/her)

@sarahkarpar

10 months

Some good news for the day. I have guardianship of my granddaughters, and today my 8 year old granddaughter qualified as a gifted student. This smarty pants makes me so proud. #ALS can suck it today, she is the news of my day.

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Sarah Parton (she/her)

@sarahkarpar

1 year

The only time since June 2022 I didn't think about #ALS . Went to see an AC/DC tribute band with my main squeeze. AC/DC is my favorite band. Yes, I sang along to all the songs. I couldn't dance, but I was moving my arms and woo-hooing like I always have.

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Sarah Parton (she/her)

@sarahkarpar

2 years

Some good #ALS news for me today. I had my 2nd ALS clinic appt. I have had no loss of function or progression since diagnosis. I am 14 months post symptom onset and same function as June 2022 when I was diagnosed. #fuckals

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Sarah Parton (she/her)

@sarahkarpar

7 months

Received news today that due to Total and Permanent Disability due to #ALS all $148k of my student loans will be discharged. I applied in December as ALS is one of the 13 qualifying conditions.

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Sarah Parton (she/her)

@sarahkarpar

11 months

Today is the day I'm dropping off all disability paperwork to my neurologist. Starting short term disability on Dec 1 due to #ALS . There is also a chance to keep my life insurance if it is approved. Fingers crossed.

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Sarah Parton (she/her)

@sarahkarpar

1 year

Just sharing my #ALS clinic update. July 2022 and Jan 2023 45 was my score. July 2023 44. In a year, I lost less than 1% of function in the subjective areas. Flail leg subtype ALS confirmed. Neuro said the words "you will make it more than 5 years" I sure hope. #fuckals

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Sarah Parton (she/her)

@sarahkarpar

2 years

So the first "I can move" #ALS dream happened last night. I was a ballerina for 13 years. I haven't danced in over 25 years. Last night in my dream, I was in the lead role. Moving so effortlessly. Great dream, until I woke up. #ENDALS

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Sarah Parton (she/her)

@sarahkarpar

2 years

My insurance approved Relyvrio for me. My neuro sent the script. Good news today. #ALS One less obstacle.

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Sarah Parton (she/her)

@sarahkarpar

10 months

Took my beautiful and festive granddaughters to see Santa. Of course, they both asked for something they had never mentioned prior to today. Gotta love it. #ALS didn't stop the fun.

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Sarah Parton (she/her)

@sarahkarpar

2 years

So lucky this guy loves me back. When we said "in sickness and in health" I don't think either of thought it would be #ALS . I'm sorry you have to ride this ride with me. I'm thankful to have you for however long that may be. #FUCKALS

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Sarah Parton (she/her)

@sarahkarpar

1 year

First #ALS fall in public today. Tripped on a carpet at CVS and went down to my knees. My husband and a very kind shopper helped me up through a dead lift from the ground. I was grateful and embarrassed. No injury, just sore knees and ribs. I was ready to just live at CVS.

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Sarah Parton (she/her)

@sarahkarpar

2 years

Today a fell down 3 steps leading out our back door. I still walk with lower limb onset in right leg. I trusted my right leg and it let me down....literally. Just a few bruises and I did sit on the landing for 10 minutes figuring out how to get up. #ALS #FuckALS

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Sarah Parton (she/her)

@sarahkarpar

11 months

List of things I actually hate: 1. #ALS End of list. Have a great day.

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Sarah Parton (she/her)

@sarahkarpar

2 years

When I'm 64 just came on. I was singing along. My granddaughter, 7 asked me "what are you going to do when you're 64?" I didn't know what to say. So I just shrugged. Reality is I'm 46 with #ALS , probably won't see 64. #fuckals #ENDALS

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Sarah Parton (she/her)

@sarahkarpar

1 year

30 year class reunion yesterday for my husband. The party was up 1.5 flights of stairs. #ALS did not win. I climbed those stairs like a boss. Up and down 3 times. @DParton61

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Sarah Parton (she/her)

@sarahkarpar

1 year

I have decided that my free trial of #ALS is not working out for me. I would like to return it. Very dissatisfied and would not recommend. #fuckals

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Sarah Parton (she/her)

@sarahkarpar

9 months

Awe Santa did a lot of work. Hope my kiddos are happy tomorrow morning. Merry Christmas to all. Wishing hardest for a cure for #ALS but soaking in the love of this day. I don't know how many Christmas mornings I have left , so making the most of the ones I'm given.

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Sarah Parton (she/her)

@sarahkarpar

2 years

Telling people I have #ALS always makes them sad. It took me months of weird walking and 100 "what's wrong with your leg" to finally say it. It is a gut punch I deliver with every person I tell. I always smile when they say "I hope you feel better soon"

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Sarah Parton (she/her)

@sarahkarpar

1 year

Happy Day #ALS world. Today is my 47th birthday. Big announcement... My son was chosen as one of the Iron Horse scholarship recipients. This is the $2,130 dollars per semester through Live Like Lou. I am beyond proud and reverent for what this means. Feeling doubly grateful today

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Sarah Parton (she/her)

@sarahkarpar

1 year

Took a fall today. No injuries other than to my pride. Tripped on my toes and straight to my knees on the bathroom floor. Crawled to the bedroom and pulled myself up onto the bed. Rolled and stood up. #ALS shoutout to my arms today. #fuckals I hate what I have lost.

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Sarah Parton (she/her)

@sarahkarpar

10 months

Tested positive for covid 19 yesterday, after my husband tested positive on Sunday. Sharing is caring, I guess. Started Paxlovid today. I felt terrible yesterday and already feel better. I hate #ALS and Covid. Stay safe everyone. Covid is making the rounds.

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Sarah Parton (she/her)

@sarahkarpar

7 months

Today is a hard day in #ALS land. I have many really good days. Resiliency is just in short supply today. Wishing you all a world of happiness and ease of mind today.

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Sarah Parton (she/her)

@sarahkarpar

2 years

So, I ordered both the probiotic and B12 that received promising reviews in the studies for #ALS . They are OTC, so why not. Trying to save my own life is exhausting.Thanks to my RN sister, who helped me find the correct ones.

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Sarah Parton (she/her)

@sarahkarpar

8 months

My baby is turning 21 at midnight. I'm dusting off my party girl attitude of my 20's and leaving #ALS at home to toast my lovechunk as he enters the best years of his life. He has made my life so full of love and I love him with my whole heart. Throwback to our first day together

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Sarah Parton (she/her)

@sarahkarpar

9 months

#ALS clinic day. 17 degrees and a winter wonderland of lake effect snow abound. 43 of 48 FRS. That is only 2 points since my 45 in 2022. Lost the points in walking/climbing stairs. Hope everyone has a beautiful day. #endals heavy on the #fuckals

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Sarah Parton (she/her)

@sarahkarpar

8 months

I have known about #ALS since I was a kid. Listed as my biggest, and what I thought was an irrational fear, I never believed this is how I will die. Oh, the naivety of me. Even when diagnosed my sister said "our worst fears never come true" as we cried in disbelief.

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Sarah Parton (she/her)

@sarahkarpar

1 year

Still cutting up fruit and bending over to get dishes from the bottom shelf. I still do my own make up, braid my granddaughters hair, walking, and I can even drive. Hoping to stay this way so #ALS doesn't win. I am all in for #nurown . I am still early in this horrible disease.

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Sarah Parton (she/her)

@sarahkarpar

1 year

Today I registered this chicken wing for Kindergarten. She is my youngest granddaughter. Seeing her graduation year, knowing I will be there in spirit only, makes even the best times hard. I deserve to see her walk across a stage at 18. #approvenurown #fuckals

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Sarah Parton (she/her)

@sarahkarpar

2 years

Today is the day I have been waiting for all month. Let's get this approved now. #AMX0035 @US_FDA It could mean I could keep walking and living my life with movement. #ALS

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Sarah Parton (she/her)

@sarahkarpar

7 months

Bought myself a hoodie that perfectly describes how I feel about #ALS . I will wear it proudly. #fuckals

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Sarah Parton (she/her)

@sarahkarpar

2 years

To all #ALS warriors here's a little levity. I apologized to my son for getting an incurable disease with zero life sustaining meds. He replied by saying "that's what it would have to be to take out Sarah Parton." When you're known for being tough... #fuckals #ENDALS

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Sarah Parton (she/her)

@sarahkarpar

8 months

Just finished my first Healey Trial appointment at UPMC Presbyterian in Pittsburgh. I go back at the end of the month to be assigned to a regimen. Doing my part to help end #ALS

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Sarah Parton (she/her)

@sarahkarpar

2 years

I just want to stick it to #ALS today. While I have right foot onset. I am always scared of the day I lose my arms/hands/fingers. Until then, I challenge myself to do extra. I have had guardianship of my granddaughter for 4 years. Doing her hair brings me joy. #FUCKALS

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Sarah Parton (she/her)

@sarahkarpar

7 months

I'm so sorry to everyone who was hanging onto Relyvrio as a promising treatment had their hopes dashed today. I have read so much sadness, anger, and resentment today. #ALS brings so much pain and loss. Adding to it just hits harder. #endals

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Sarah Parton (she/her)

@sarahkarpar

11 months

Happy Birthday to my main squeeze and my greatest love. #ALS is not invited today. I love you ❤️ @DParton61

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Sarah Parton (she/her)

@sarahkarpar

2 years

So 430 this morning I awoke to terrible belly pain and nausea. I walked to the bathroom and proceed to vomit for 10 minutes. The whole time all I thought about were all the warriors who couldn't have gotten up,turned their head, or wiped their mouths. Terrifying #EndALS

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Sarah Parton (she/her)

@sarahkarpar

1 year

Heading to Clearwater FL tomorrow. I was selected to be trained as an #ALS Research Advocate by NEALS. I'm almost all packed. Excited and nervous. Traveling with #ALS is never easy. Rollerator, meat wagon, cane, compression socks, AFO, and Billy zip shoes. ✈️

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Sarah Parton (she/her)

@sarahkarpar

1 year

Mild #ALS above 35, moderate ALS above 25. According to current Adcom. Been on since 10am. Some tears during testimony from ALS community. I knew who everyone was. My appreciation to all the warriors who fought so hard for this ❤️. Thank you.

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Sarah Parton (she/her)

@sarahkarpar

2 years

Wishing all my friends and especially my new #ALS friends a very happy New Year. I know these holidays are hard when we think too much. While mindful of this, be well, be tough, and keep going. Let's also hope this year brings us #Nurown

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Sarah Parton (she/her)

@sarahkarpar

5 months

I was diagnosed with #ALS a month after my 46th birthday. Today, I am 48. I love aging out of spite against this hideous beast of a disease. Suck it #ALS Putting on a pretty dress today and charging like the bull I am through another year.

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Sarah Parton (she/her)

@sarahkarpar

9 months

Best pain free sleep of my life. 300 mg neurontin and 5mg thc/cbd gummy. Coma level sleep. The pain from edema and #ALS cramps were too much, so i have been trying all combos. Woke up with no hangover and felt great. Hope this helps someone else too.

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Sarah Parton (she/her)

@sarahkarpar

2 years

This is my best friend. This was our new millenium photo in 2000 our friendship spanned 24 years. On July 29, 2021 she died suddenly from anoxic brain due likely to an aneurysm. I was diagnosed with #ALS on June 21, 2022. I don't fear death bc I know she is waiting for me.

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Sarah Parton (she/her)

@sarahkarpar

2 years

I did my first dose of Relyvrio today. It smells like fruit punch, but tastes terrible. I used a straw and did as much as I could in the first gulps. As it got to the end the taste increased. As a chaser, coffee with Carmel creamer cleared my mouth of taste. Thankful always #ALS

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Sarah Parton (she/her)

@sarahkarpar

6 months

My Ramp is in and done. I took a little ride. #ALS restricts my walking, but this ramp....I feel so much better about being able to live my life. I can go outside whenever I want to now.

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Sarah Parton (she/her)

@sarahkarpar

2 years

On our way back from a week long @WaltDisneyWorld vacation. I just want to shout out the Disability Services and all the ride staff that gave me extra special treatment. This made #ALS easier to forget. #ENDALS

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Sarah Parton (she/her)

@sarahkarpar

11 months

We took these cuties, a fox and a mermaid, to our local zoo for the Annual Zoo Boo. It includes treat stops and zoo fun. I am a lucky Gigi. #ALS lost again. I WILL see these 2 grow up.

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Sarah Parton (she/her)

@sarahkarpar

8 months

Couples painting with my mini me. It was our first, and I think we nailed it. I am trying to get all the memories made before #ALS makes even this impossible. Grateful for today.

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Sarah Parton (she/her)

@sarahkarpar

8 months

So the "hot flash" game is real. Big hot flash this morning caused me to vomit for about 2 minutes. #ALS and menopause ! Seriously? I really would like to be regular whelmed for even a day.

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Sarah Parton (she/her)

@sarahkarpar

9 months

Ever since 2020 with covid, 2021 when my BFF died, and 2022 when #ALS invaded me. Life just changed in ways I never imagined.

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Sarah Parton (she/her)

@sarahkarpar

4 months

Heading to lunch with my granddaughter. Cruising along and my wheelchair got caught on a raised curb. Dumped me out onto the sidewalk. I was always lucky I never hit my face.I guess it was my turn. My son came and picked me up off the ground. #ALS never has good timing.

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Sarah Parton (she/her)

@sarahkarpar

1 year

This week is our town's fire department fundraising festival. It is called the Cherry Fest. Last year I walked unassisted around the whole thing. This year we need handicapped parking and an electric wheelchair. I really hate #ALS . I can't walk far anymore.

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Sarah Parton (she/her)

@sarahkarpar

5 months

How important are family and caregivers? I had #ALS clinic yesterday. Lost some important FRS points, but my Neuro said that even with loss of function, he sees me as doing better than most of his patients because I have so much support. Couldn't agree more. Thanks caregivers.

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Sarah Parton (she/her)

@sarahkarpar

6 months

Finally, after nearly a year since I first had measurements for a ramp and over 45 phone calls, it is scheduled to be installed tomorrow. #ALS has made stairs too challenging, and I have not made the 3 steps many times. I'm getting some dignity back tomorrow.

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Sarah Parton (she/her)

@sarahkarpar

3 months

Today is 2 years since I was diagnosed with #ALS . It's not a celebratory anniversary, but one that reminds me how dedicated I am to surviving. On global #ALS / #MND Awareness Day, let me assure you that 2 years ago, I was more aware than ever. #endals

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Sarah Parton (she/her)

@sarahkarpar

2 years

Well, I got my first #ALS pressure sore on my foot from my AFO and the way my foot positions in it. My RN sisters were pretty concerned. All bandaged up and off my feet for a while. Ball of foot and 4th toe both have them. This f'ing disease. Always something. #fuckals

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Sarah Parton (she/her)

@sarahkarpar

10 months

Happy Thanksgiving to all my #ALS friends, caregivers, family, and advocates. I am thankful for all of you, even if today is just another Thursday for you....I'm still grateful to have you in my life.

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Sarah Parton (she/her)

@sarahkarpar

2 years

Today my PCP told me he doesn't think it's #ALS because I only have foot and ankle paralysis. He thinks the problem could be nerves. He said both upper and lower motor neurons need to be effected. The kind of mind fuck that visit was....false hope is dangerous to me.

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Sarah Parton (she/her)

@sarahkarpar

2 years

@PatricProAuthor Amyotrophic Lateral Sclerosis

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Sarah Parton (she/her)

@sarahkarpar

7 months

Busy day for this #ALS gal. Lunch with a fundraising team, found out I will be in Healey regimen f, then mentor training. Whew. My whole life is now about making a difference and leaving an impact.

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Sarah Parton (she/her)

@sarahkarpar

2 years

@MrBlazer @the_vello He could have been in hearse and still would have gotten my vote.

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Sarah Parton (she/her)

@sarahkarpar

5 months

When my son said, "I wasn't sure which flowers were your favorites, so I bought them all" He is my whole heart. Happy Mother's Day to all #ALS warriors, advocates, caregivers, and allies. To those who lost a mom to #ALS , this day is a hard one and we see you.

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Sarah Parton (she/her)

@sarahkarpar

2 years

Early Christmas present hoodie from my friend. Just in time for the holiday fun. I definitely walk like I've had a few. #ALS #ENDALS #notdrunkyet

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Sarah Parton (she/her)

@sarahkarpar

1 year

You know who knows what it feels like to be stuck in something that can't move and all electric has failed? Who are also air starved and nobody knows how to save them? That would be people with #ALS . ALS is also like the ocean. It doesn't care who you are. It stays just as fierce

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Sarah Parton (she/her)

@sarahkarpar

9 months

I did not have facial cellulitis on my 2024 bingo card, but here we are. Photos don't even do it justice. The pain is constant and next level. It is spreading to my neck, fire poker hot, and I have had on and off fevers. Yay to the new year. #ALS and cellulitis.

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Sarah Parton (she/her)

@sarahkarpar

7 months

Today, my granddaughter, who is 8 said to me she is sorry that I had to have "quadrilateral sclerosis". I said we all have to have some fights in life, with a chuckle. God, I love that kid . #ALS

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Sarah Parton (she/her)

@sarahkarpar

1 year

Flags are available to view. I got an email. Still hard to look at. #ALS . If anyone didn't get the email and wants me to post theirs or their loved one's, let me know. I will. ❤️

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Sarah Parton (she/her)

@sarahkarpar

1 year

#ALS Thursday aka every day. Dependent edema in my right lower foot is the pits. Next up, a referral to Lymphodema Clinic. Just one more thing. #endals

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Sarah Parton (she/her)

@sarahkarpar

2 years

Friday humor. My apologies to anyone not ready for it. But I felt this to my core today. #ALS life should come with coupons or loyalty bucks of some kind. "Sorry you have ALS and no cure...here's 5 million dollars." That would be thoughtful, at least.

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Sarah Parton (she/her)

@sarahkarpar

2 years

Good morning. Woke up and still have #ALS . Could I please have a better chance of survival? I'm dying waiting. Kind of tired of being terminal. @US_FDA #NurOwnworks

ALS ACCESS

@brainmatters10

2 years

The ALS community needs a Hero. My dear friend, the godfather of Crypto died of ALS. A little biotech company called @BrainstormCell has an amazing drug called #nurown . Ticker BCLI. The treatment works. Yet the @US_FDA is not patients tell the story. It works @mikeavaz1

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Sarah Parton (she/her)

@sarahkarpar

8 months

Happy Monday to all the #ALS warriors and caregivers. I know we all fight more than movement battles. You are all heroes to me. #endals

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Sarah Parton (she/her)

@sarahkarpar

2 years

I am so lucky to have so much family who are already planning to be my caregivers. Most of my siblings are nurses. This is a big problem in #ALS world and we can't live our lives without help. This is so sad.

Seth Poling

@SethPoling10

2 years

Yesterday, I was blindsided when my main caregiver quit over text. We've worked together for 3 years. Zero notice, zero reasoning. Our #ALS world has been turned upside down. I wish her the best moving forward, but WOW. #heartbroken

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Sarah Parton (she/her)

@sarahkarpar

1 year

#ALS whatever keeps me going. Happy Friday.

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Sarah Parton (she/her)

@sarahkarpar

1 year

Dealing with pressure sores on my paralyzed foot is a next level pain in the ass. I can still walk but I can't walk without pain. #ALS gives zero breaks. Toes wrapped up like little mummies. Ball of my foot so padded, I'm 4 inches taller. Giant UGH.

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Sarah Parton (she/her)

@sarahkarpar

3 months

Heading to my clinical trial for regimen F in Pittsburgh today. I have been riding the #ALS struggle bus ever since I started this trial. My family has commented on the decline since starting. I may be the placebo or my ALS has officially sped up. #endals

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Sarah Parton (she/her)

@sarahkarpar

1 year

With my favorite guy in guess what city? Seeing a concert tonight. On a weeknight, we may be too old. @DParton61 #ALS can suck it today.

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Sarah Parton (she/her)

@sarahkarpar

2 years

#ALS friends. I would love to coordinate a virtual get together. There are a few people interested. Just a chance to talk and see each other and break up loniliness. Any body is welcome with any neuro condition. US, Canada, and anywhere. Drop a comment if interested.

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Sarah Parton (she/her)

@sarahkarpar

1 year

Happy 19th Anniversary to the love of my life. I would choose you every lifetime. ❤️ @DParton61

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Sarah Parton (she/her)

@sarahkarpar

1 year

Carved pumpkins with my granddaughters. They hate cleaning them out, but love to create. Thanks to their pops for doing most of clean out. #ALS can't stop Halloween for us.

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Sarah Parton (she/her)

@sarahkarpar

1 year

#ALS is one of those things that no matter how much you want something, it doesn't care. Just one day that isn't a struggle would be amazing. Please add skin breakdown to "the things I don't need" list.

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Sarah Parton (she/her)

@sarahkarpar

8 months

First Healey Trial appt coming up Feb 15. Because I am under 36 months, I am willing to do my part. There is no information on which regimen I will do. Assuming I qualify, they will randomly assign me to one. #endals

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Sarah Parton (she/her)

@sarahkarpar

2 years

Happy Wednesday to all my beautifully strong #ALS warriors, their loved ones, allies, and caregivers. I have never seen a group so supportive and inclusive. Big Wednesday hugs.

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Sarah Parton (she/her)

@sarahkarpar

3 years

Just donated for the 3rd time to Fetterman for Senate campaign. I can't wait to vote for him. I am also kinda hoping this may move me closer to the chance of being best friends with our SLOP? 👭🏻 Proud to be in PA to be able to vote for you @JohnFetterman @giselefetterman

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Sarah Parton (she/her)

@sarahkarpar

5 months

Anyone going to the Pittsburgh Pirate's game in June for Lou Gerhig Day, my granddaughter, was asked to be on the field to say "Play Ball." We will be there with Live Like Lou. #ALS Awareness and baseball.

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Sarah Parton (she/her)

@sarahkarpar

1 year

Just did my statement to the FDA for the Sept ADCOM. Did I cry a little during it? Yes. #ALS causes tears sometimes. #approveNurown

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Sarah Parton (she/her)

@sarahkarpar

1 year

#ALS is giving me constantly cold, nearly frozen level cold legs and feet. Nothing is able to warm them. This is the first experience with not being able to warm them up. Painful and uncomfortable. Any suggestions welcome. #ENDALS

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Sarah Parton (she/her)

@sarahkarpar

9 months

No power since 1030 am. High winds up to 63 mph. I'm just tired of surviving things. Thankfully my #ALS does not require power. The meat wagon is still fully charged. This is ridiculous, though.

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Sarah Parton (she/her)

@sarahkarpar

2 years

Looking to spend the anniversary of my #ALS diagnosis staring up at the big sky in Montana. Does anyone live in/near that can recommend the best town to stay in. Planning to go in June. I don't want to be in a forest, I live in PA and we have a ton. Thanks

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Sarah Parton (she/her)

@sarahkarpar

6 months

When your 9th birthday falls on Easter. Happy Birthday Sasha. ❤️

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Sarah Parton (she/her)

@sarahkarpar

1 year

Lymphodema clinic..."You need these wraps and they're not covered by insurance." That should be the definition of #ALS . All the things you need will not be covered by insurance.

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Sarah Parton (she/her)

@sarahkarpar

1 year

#ALS clinic day tomorrow. That means today is filled with nerves and a big headache. Why do I hate clinic day so much? FYI, Jan 2023 score 45.

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Sarah Parton (she/her)

@sarahkarpar

11 months

Drowning in bed lately. There is a soundtrack of grunts and noises that accompany my rolling over and getting out of bed. I have not had restful sleep in many days. #ALS just keeps bringing the hits.

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Sarah Parton (she/her)

@sarahkarpar

8 months

#ALS friends. Please check out if you have a college kiddo and share. My son was an Iron Horse recipient last year.

Live Like Lou

@LiveLikeLou4

8 months

If you or someone you know has been touched by Lou Gehrig's disease (ALS) and is a dependent pursuing higher education, Live Like Lou is pleased to share our interest application for our 2024 Iron Horse Scholarships. Apply before February 21:

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Sarah Parton (she/her)

@sarahkarpar

1 year

Another Gen X #ALS bucket list concert. Violent Femmes in Cleveland. Such a good show. Not the best venue for a wheelchair but I could hear every word.

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Sarah Parton (she/her)

@sarahkarpar

8 months

Dinner and a fun evening with my 3 favorite guys. My husband, son, and bonus son. ❤️ I have taken a picture of these 3 every year for almost 21 years.

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Sarah Parton (she/her)

@sarahkarpar

1 year

Big thank you to @LiveLikeLou4 for the Lou Gehrig Day honor. My son was recognized for his Iron Horse Scholarship. @Pirates also gave 1K extra to his award. It was a pleasure to meet all the beautiful people at Live Like Lou. I am beyond humbled and grateful. #ALS awareness.

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Sarah Parton (she/her)

@sarahkarpar

2 years

#ALS diagnosis this year. Too many lost. #Nurown in 2023 please. #ENDALS

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Sarah Parton (she/her)

@sarahkarpar

2 years

Who else got stairs for Christmas? Everywhere we went...stairs. Shout out to my arms, who pulled me through Christmas. Still walking and OWNING every trip up and down. Merry Christmas.

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Sarah Parton (she/her)

@sarahkarpar

2 years

Paxlovid said to Relyvrio...hold my beer. #ALS Thankful for both, but they are in hot competition for which can be more disgusting. This is a hard week for my tastebuds.

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