Seth Poling @SethPoling10 Twitter profile | Pikagi

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Seth Poling

@SethPoling10

4,986

Followers

390

Following

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Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth

Morgantown, WV

https://t.co/foSWlUwlEI

Joined February 2012

Don't wanna be here? Send us removal request.

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@SethPoling10

Seth Poling

1 year

Thank you @WDTVSports for the opportunity to share my story and advocate for #LouGehrigDay with the @WVBlackBears . Remember, we can #EndALS @iamalsorg @WVNews247 @LG4Day @alsassociation

@WDTVSports

WDTV 5 Sports

1 year

Ahead of the first annual Lou Gehrig's Day with the @WVBlackBears tomorrow, we interviewed S.E.T.H. Project founder @SethPoling10 about his 9 years living with ALS: One of the most eloquent and remarkable interviews we've done. See more with 5 Sports!

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@SethPoling10

Seth Poling

1 year

There is a beginning and end to every story; this is the end of my story, but this is not goodbye; it is a see you later. In the end, it's not the years in your life that count. It's the life in your years. Friends and family, THANK YOU. Please continue my fight to #EndALS .

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Seth Poling

1 year

💔 Tonight, my son asked my wife if he could lay on top of me if #ALS takes me away, so he could go to heaven with me. The innocence and love in his question shattered my heart. Let's work together to #EndALS and ensure a future where no child has to ask these questions. ❤️🙏

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Seth Poling

2 years

My #trach change went okay, but I am going through the most difficult time during my 8-year #ALS journey. I am going through a MAJOR bout of #depression . The weight of limited time, loss of friends with ALS, seasonal anxiety, and daily struggles have me spiraling. #EndALS

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Seth Poling

2 years

Just wanted to check in. Still kicking. Feeling pretty rough, but I got out of bed today. Physically and mentally exhausted. FU #covid #ALS #depression

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Seth Poling

2 years

Then, I'm 28. Owned my own business, truck, house. Dating my future wife. I LOVED my life. #ALS stole that life. Now, I'm 35. Permanently disabled. Own my own wheelchair, vent, eye gaze. Married w/ 2 kids. I LOVE the chance to live longer. #NotTodayALS Keep living & loving.

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Seth Poling

2 years

I am taking a break from social media as I try to navigate a heavy decision... ending this journey #ALS

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Seth Poling

2 years

My 2nd shift caregiver called off due to 3 flat tires. My morning caregiver covered. Typically, we do 2 people transfers. Just as she got ready, in walked my @UPS driver. He takes his lunch break w/ me everyday. Today he transferred me, changed my shirt & did it w/ a 😀 #ALS 1/2

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@SethPoling10

Seth Poling

2 years

Prayers needed. My wife @erika_poling is at the hospital w/ my youngest son. He is #Covid_19 +. My oldest son 4th bday is tomorrow. I'm still recovering from #Covid_19 . Both my parents have #COVID19 . My aide w/ covid now has the #flu . #ALS #PRAYERS

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Seth Poling

2 years

The last 4 days have been HELL in #ALS land. My #caregiver of 3 yrs quit over text sending me into a tailspin. I contemplated hospice to ease the new burden of limited care on my wife. Thankfully 2 new caregivers came down from the Heavens. They start training today. #NotTodayALS

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Seth Poling

2 years

Please wish me luck with my trach change today. It is not a normal change. They discontinued the one I used for the past year. The new one is supposed to be more comfortable. This is our last try before I have to get a trach revision. #EndALS

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Seth Poling

3 years

I hate that #ALS has put so much on my wives shoulders at the age of 33! Single parent to 2 boys, caregiver, chef, house cleaner, snow shoveler, teacher, referee, butt wiper. I see the mental and physical exhaustion on her face, but love in her eyes. #WonderWoman #loveher

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Seth Poling

2 years

Yesterday, I was blindsided when my main caregiver quit over text. We've worked together for 3 years. Zero notice, zero reasoning. Our #ALS world has been turned upside down. I wish her the best moving forward, but WOW. #heartbroken

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Seth Poling

2 years

Today, my sister is undergoing Whipple surgery for Ampullary cancer. Please send positive thoughts & prayers her way for a successful outcome. My family has been dealing with a lot lately. My sister and I are fighting terminal illnesses #EndALS #EndCancer

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Seth Poling

1 year

As I battle ALS, all I yearn for is to be an ordinary dad, not a hero. But to my 5yr old son, I'm already a hero, despite the immense struggle I face. ALS may limit me physically, but it can't touch the love & strength I pour into our bond. Cherishing each moment together. #ALS

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Seth Poling

2 years

This morning, my 4yr old did the following : Let the dog outside. Put my glasses on. Turned my eye gaze device on. Told me good morning w/ a kiss. Got under my covers. Asked for cartoons. #NotTodayALS 🥰

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Seth Poling

2 years

That silly Max, the Elf, painted my toes. We have 2 boys who can't wait for Christmas. Thanks to everyone who sent me well wishes, love & support. I'm grateful to have such an amazing support system. I have a long journey ahead, but I'm determined to keep forging on #EndALS

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Seth Poling

1 year

First food since Monday after the GI bug. I have a slight lung infection and I am severely #depressed , but I made it to practice. My sister has her port placement surgery for #chemo tomorrow. My oldest son turns 5 this weekend. Please God, give us 5-6 good days. 🙏 #EndALS

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Seth Poling

3 years

I usually wake up at 6am. I need cough assist, suction, head up & a extra blanket. This morning I rang @erika_poling . I looked over to see my 3yr old. "What do you need Daddy?" I'm cold, blanket & suction. He did ALL 3 + a hug! #prouddad #ALS #thankful #smile

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Seth Poling

2 years

***Proud Dad Moment*** Alas, my prayers have been answered. I finally found a PRN caregiver. How many 4 year olds can cough assist and suction their #ALS Hero. #myboy #nottodayals @erika_poling

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Seth Poling

1 year

Every night, my favorite part of bedtime is when my wife says 'bedtime' and within moments, my boys sneak into my room, climb under the covers, and ask to watch cartoons 😍💙 One of them usually stays all night, squeezing my arm. #ProudDad #BoyzRoom #EndALS 🌙❤️

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Seth Poling

2 years

The last few weeks in #ALS land has been brutal. The pain of seeing friends pass away and struggle is unbearable. As if this life isn't hard enough, but the relentless heartache SUCKS. It is becoming to much to bear. I f-ing hate ALS so much.😫

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Seth Poling

2 years

Rough few days. I have had a small lung infection and have not been sleeping due to coughing. I am on the mend but deep in the trenches on the mental front. Just keep swimming. Just keep swimming. #EndALS

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Seth Poling

2 years

Long day for the Polings. -My son has pink eye, lung & ear infection -Morning caregiver threw a tantrum & left -Palliative care meeting today to plan March -My sister had surgery today & received some scary news Please, send positive vibes #EndALS

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Seth Poling

2 years

So, this is 36. I celebrated with what might be considered mundane to the average Joe, but I am no such thing. Today was the first time I went inside a restaurant in FOUR years. The boys loved the hibachi. they sang to me at home. I am so grateful for another year. #NotTodayALS

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Seth Poling

2 years

I always dreamed of being a dad, but I couldn't fathom fatherhood while quadriplegic, only being able to move my eyes. Recently, my boys have ignored me when I try to talk to them. I know they don't mean to, it's their age, but it hurts. My heart aches for my babies. #EndALS

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Seth Poling

2 years

Happy birthday to the guy who gives me hope. Enjoy your day brother. Please visit @iamalsorg to support @bsw5020 birthday fundraiser #NotTodayALS

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Seth Poling

2 years

-Dinner for my mother-in-law's birthday on Friday night. -Saturday night, I had my second panic attack in three days. Sometimes, I am a rock, and other times I am as soft as mud. #EndALS

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Seth Poling

2 years

Just your friendly neighborhood Spider-Man, Bumblebee, and ninja #NotTodayALS #Halloween

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Seth Poling

1 year

In bed since Thursday with a fever/upset stomach. But it's not just my stomach that's upset. My tears have been flowing all day. Tears for my tireless wife who never rests, for my sons who want to play. Tears for the loss of who I used to be & person I've become. #EndALS #Family

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Seth Poling

2 years

Today was a horrible day in #ALS land, so much so that I am in my feelings. It is difficult to endure the constant bombardment of ALS. I can't quit because the law doesn't allow it. I can't continue at this pace. Wth am I supposed to do? I feel the need to keep going, & it sucks

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@SethPoling10

Seth Poling

2 years

Devastated to share that my afternoon caregiver of a year quit today over text due to her pregnancy. It's a heartbreaking loss to my #ALS journey, but I wish her all the best. Finding a new caregiver won't be easy, but I'll keep fighting. #EndALS #CaregiverShortage

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Seth Poling

2 years

I'm proud of myself. I have written 40 personalized letters to friends and family since January. Two of those writings are of my wedding speeches for both of my sons. I just finished writing a song for my boys and sent it to be produced. #EndALS

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Seth Poling

2 years

I spent the morning planning a surprise birthday dinner for my wife. I made reservations, sent invitations, ordered a cake, arranged childcare, & I came up with a ruse. The last step was to tell my sister in law... One BIG problem, I accidentally text my wife instead😔😂 #EndALS

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Seth Poling

2 years

My favorite place to be is inside your hugs #ProudDad #NotTodayALS #FathersDay

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@SethPoling10

Seth Poling

2 years

Please say a prayer for my mom as she has surgery today. Thank you.

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@SethPoling10

Seth Poling

2 years

I haven't spoken a single word by mouth in 15 months. Yet, my voice has been amplified by #ALS . The reach is ever expanding, but I still struggle to be heard by those in my daily life. Is this my perception or am I being discounted? #easilyignored

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Seth Poling

2 years

#ALS insomnia. Last night, I woke up to the worst feeling, a mucus plug, ZERO air in/out. I tried to alarm my wife, but I couldn't. I tried again, but nothing. I panicked & I was about to pass out, but my wife heard me grinding my teeth. A FULL blown panic attack ensued #EndALS

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Seth Poling

1 year

6 years of battling #ALS : a mix of triumphs, heartache, and the unwavering power of support. Join me on my emotional rollercoaster as I reflect on my journey, celebrating accomplishments and shedding light on the realities. Read my blog post here:

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Seth Poling

2 years

Life with #ALS is tough, especially with young children. Thanks to my friends @ChrisSnowCGY @kelsieswrites for @erika_poling and my first date night in 4 years. We celebrated by going to watch the @NHLFlames @penguins game. #EndALS #Thanksgiving2022

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Seth Poling

2 years

Day 13 #Covid_19 . I'm close to feeling normal. My youngest son was discharged from the hospital yesterday. He was so excited to see his brother and wish him happy birthday. What a exhausting 2 weeks @erika_poling #ALS #brothers

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Seth Poling

1 year

Oh My Goodness FIREWORKS! I had the BEST day today. We ate lunch at my favorite dive bar for hotdogs for my boys and a cold beer for this guy. We had family photo's, ice cream, and fireworks. #NotTodayALS

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Oh My Goodness FIREWORKS

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Seth Poling

1 year

Happy Mother's Day to my amazing wife Erika Poling! Her unwavering love and support for our family is truly inspiring. Check out this heartfelt tribute to her on my blog: #MothersDay #ALSAwarenessMonth 💐❤️

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Seth Poling

2 years

Life is hard. Marriage is hard. Raising children is hard. #COVID19 is hard. Cold/flu season is hard. #ALS is hard. Imagine being a younger 30 yr old wife & mother facing all of this physically alone. @erika_poling . It breaks my heart. This mother deserves a break... #MothersDay

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Seth Poling

2 years

Great news! My sister's recovery from ampullary cancer surgery is going well. Her numbers are improving, started a normal diet & even took 2 long walks around today! We are hopeful she will be released soon. Thank you all for your prayers during this time. #thankscaner

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Seth Poling

2 years

Getting a trach comes w/ challenges, i.e. finding more than 2 caregivers. It's disheartening to plead for help & feel like there aren't many options. It's a harsh reality accepting people may not be willing to provide care, making it difficult to continue my ALS journey. #EndALS

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Seth Poling

1 year

I wrote a heartfelt blog post about the burden of growing up too soon, inspired by my sons' journey with #ALS . It's a reminder of the challenges faced by young carers and the importance of supporting them. #ALSawarenessMonth #youthcarers

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Seth Poling

3 years

My boys are quarantined this week at my parents house. My wife video called them during lunch at work. My oldest son, 3.5 yrs old, stopped my wife mid conversation. He said, "Mommy if you're at work, who's suctioning Daddy?". She said daddies aid. He wanted to go home to help me.

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Seth Poling

2 years

My #DadGame compares to none. LOL Liam is home congested, so he is getting a breathing treatment from my #VOCSN vent at the same time as me. My VOCSN (Ventilator, Oxygen, Cough Assist, Suction, Nebulizer) is 5 machines in 1. T-Rex Ranch with my boy. #EndALS

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Seth Poling

2 years

I'm COVID positive. I'm pissed off. COVID free for 2.5 yrs. New aide starts 3 weeks later... Her faimly was "sick" don't worry about it. #COVID #ALS

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Seth Poling

1 year

Happy #FathersDay to the best dad's in the world! Boys, I'm proud to be your daddy; but being honest, I don't always feel like Superman. Living with #ALS has its challenges, but my love for you boys never wavers. Grateful for the opportunity to be their hero. 💪❤️ #ALSdad

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Seth Poling

1 year

My family has been caught in an intense, high-stress holding pattern for weeks. With limited care & school out, we're facing new challenges every day. It's tough, but we're staying strong. Sending love to all those battling #ALS . Together, let's #EndALS #AintNoMntHighEnough #WV

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Seth Poling

2 years

#ALS please chill out. The last 45 days have been miserable on me and my care team. #EndALS

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@SethPoling10

Seth Poling

2 years

I want to give a BIG shout-out to @synapticure @bsw5020 On my 36 birthday last week, I received a letter of approval for RADICAVA ORS from my insurance. Before Synapticures involvement I was denied 3 times. They made the impossible possible on the first try. #ALS #grateful

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@SethPoling10

Seth Poling

1 year

Happy 5th birthday Liam! Wishing you a day filled with laughter, fun, and lots of cookies! Enjoy your special day to the fullest and may all your wishes come true. 🎂🎉🎈 #happybirthday #birthdayboy #EndALS

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Seth Poling

2 years

Another successful #trach change in the books, plus 6 more #botox shots to the face #EndALS

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Seth Poling

2 years

Busy day in #ALS land. 2 new caregivers start training today. #trach change this afternoon. Please say a prayer for me because today's change will determine if I have to get a trach revision. The ENT has had to push with her entire body weight to insert new trach twice #ouch

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@SethPoling10

Seth Poling

1 year

Survived a GI nightmare 😖Started puking Sunday night and had a 3 hr panic attack. No sleep, just continuous puking and sh*tting. Hoping the worst is over and I don't get aspiration pneumonia 🙏 #GIbug #healthnightmare , #EndALS

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Seth Poling

2 years

Raise your hand if you're enjoying the last day of winter break with dad. ✋ #EndALS

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Seth Poling

2 years

**ALS Update** It is not a secret how difficult it is to live with #ALS , so I enrolled in Palliative Care. This specialized in-home care will provide additional resources to my care plan. The goal is to continue living more adequately prepared. #EndALS Audentes fortuna iuvat.

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Seth Poling

2 years

It is a #ALS Christmas Angel miracle! I'm happy to report my dad delivered $1,500, gifts, & food to Mrs. Bland & family today. Mrs. Bland was officially diagnosed with ALS last week. She & her husband are the guardians of her 4 grandkids. THANK YOU for your donations. #EndALS

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Seth Poling

1 year

🎉🎉Happy 4th birthday, Bayler 🎉🎉 #ALS may be pushing us to the edge, but we're pushing back with all our might. In this final push, we'll rise above the struggle, fueled by love, & unwavering hope. Together, we'll conquer the impossible, one step at a time. #PolingThisOut

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Seth Poling

1 year

Like the mightiest oak tree, my #ALS journey has shown me that strength and resilience can emerge from the most challenging circumstances. Together, let's stand tall and united to #EndALS and create a world where no one has to face this disease alone. 🌳💪 #ALSawareness

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Seth Poling

2 years

Sneak peek "The Polings Fall 2022"!!! #WV #PaigePhotography #ALS #family

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Seth Poling

3 years

Tomorrow is trachestomy day. New beginnings. Let's do this. #ENDALS #NoWhiteFlags #TooTuff4ALS

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Seth Poling

1 year

Thursday afternoon date🌷🌻 Wish us luck, we're on our way for a ENT office for a #trach change with a small lung infection. #ALSAwarenessMonth #EndALS #ShesPretty

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Seth Poling

2 years

Lying in bed thinking my #NYE was an out-of-body experience. I'm surrounded by joy, laughter & love. Albeit beautiful/ serine, I felt overwhelmed knowing the adversity/heartache the NY will bring. I pray my #depression subsidies, better times outweigh the bad. #EndALS #HOPE

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Seth Poling

1 year

🎓🎉Celebrated Liam's Pre-K graduation & honored #LouGehrigDay last weekend, but it's been a rollercoaster week. 😔Feeling awful since Monday morning & just got diagnosed with bronchitis/pneumonia.😷 #ALS is relentless, never receding. Grateful for love & support!💪❤️ #EndALS

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Seth Poling

2 years

Happy Valentine's Day #EndALS Roses are red, my coughing's all done No more sick days, oh what fun! I'll do a happy dance and twirl And enjoy the world, germ-free swirl!

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Seth Poling

2 years

I chose the road less traveled, not because it was a smooth ride, but because it was the road that led to more time and memories. #NotTodayALS

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Seth Poling

2 years

Incredibly difficult to die gracefully. Who knew dying was SO hard? #EndALS

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Seth Poling

1 year

My days are spent crying from my frustrations or crying from sadness. #EndALS #depressed

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Seth Poling

3 years

My 3yr old just told my wife,"When Daddies muscles grow back big and strong, he is going to help me build a snowman". Ah man right in the feels. #ALS #NeverGiveUp

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Seth Poling

2 years

My eye gaze device malfunctioned. I was watching #MarchMadness in bed. I choked until help came to the rescue. A massive panic attack ensued. Struggling to prevail... #EndALS

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Seth Poling

2 years

Not a good night last night. I had a mucus plug for over a hour. Full blown panic attack. Antibody infusion, double antibiotics & nebulizer treatments every 2 hrs since Friday Ugh #COVID19 #ALS

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Seth Poling

1 year

Life with late stage #ALS -Cry - Explain crying - Frustration by communication -Cry - Explain crying - Emotional physical mental spiritual exhaustion - Cry

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Seth Poling

2 years

Hi everyone. I wanted to update you on my "I have ALS" sign/sticker. My friend Lauren took my idea of a few emojis and came up with this. What do you think? Do you understand? What would you do if you didn't know me and saw this on my wheelchair? #ALS #endALS @iamalsorg

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@SethPoling10

Seth Poling

2 years

Please keep this goofball in your prayers. Bayler has a respiratory infection which caused an asthma attack. He has double pink eye too. #seasonofsickness #EndALS

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Seth Poling

2 years

TODAY is the day. On this day 5yrs ago, I received the worst news ever. "I'm sorry Seth, you have #ALS . You have 3-5yrs left" The day before my diagnosis, I shredded 2 huge tress, went skydiving at the beach. 30yrs old about to celebrate my 1st wedding anniversary. 5 YEARS😇

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@SethPoling10

Seth Poling

2 years

My dear boys, my heart and pride, With you, my world feels so alive. From the moment I held you in my arms, I knew that my love for you would never harm. Watching you grow, learn and play, Fills my heart with so much joy each day. Cont... #EndALS

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@SethPoling10

Seth Poling

2 years

Living with #ALS is challenging, especially when it comes to communication. I communicate via eye gaze technology. I type, text, drive, and use social media with only my eyes. I hope you enjoy my demonstration. #ENDALS

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Eye Gaze Communication #als #aac #abilitydrive

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@SethPoling10

Seth Poling

1 year

Feeling nostalgic for the pre-ALS days, missing the joys of Spring turkey hunting and morel mushroom hunting with Brier and friends at camp. Cherishing those memories and hoping for a cure for #ALS to make new ones in the future. #Toferson #NurOwn #EndALS

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Seth Poling

3 years

Tough day in the #ALS world. My main aid was 45 min late. Exploded upon arriving & quit. Next Friday was her last day before starting a new job. 13 months with me. Prayers for her moving forward.

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Seth Poling

2 years

As many of you know, I've been desperately trying to hire additional #caregivers . 2 weeks ago, we interviewed a potential candidate & agreed to give her a chance. We added her to payroll & scheduled her paid training. She has yet to show up for work or text back. How sad #EndALS

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@SethPoling10

Seth Poling

1 year

Feeling incredibly let down by the 3 new caregivers we hired. It's been 4 weeks and they still can't handle tasks independently or fix mistakes. The dysfunction is affecting my main caregiver and my wife. This level of inadequacy in the workforce is beyond disappointing. #EndALS

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@SethPoling10

Seth Poling

2 years

I'm jumping aboard my friend @sandymorris333 train. I'm sharing my #BodybyALS . I know, @erika_poling is a lucky woman Hahaha But seriously, this is the reality and cruelty that I face daily. #ALSAwarenessMonth

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@SethPoling10

Seth Poling

2 years

Utter defeat... must do better next week. #EndALS

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@SethPoling10

Seth Poling

2 years

No, not again, not another young man with a wife and children. My deepest condolences to the Stewart family during this difficult time. @jonstew1982 was a great guy and warrior. We have to #EndALS

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@SethPoling10

Seth Poling

2 years

My birthday continues. I received my Augmented Reality communication glasses today! This is part of a Pilot Program with @Abilitare . You can find out more about the Pilot Program and apply at #ALS #Abilitare

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@SethPoling10

Seth Poling

2 years

Please say a prayer for @sandrawmarlowe today. She joined the #trach club this morning. You are a #warrior #nottodayALS

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@SethPoling10

Seth Poling

1 year

Happy birthday @leanne_yacyshyn . You are a WARRIOR. #EndALS

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@SethPoling10

Seth Poling

2 years

My afternoon caregiver needs prayers. She has been off for 2 weeks with pregnancy issues. She had the same issue with prior pregnancies, resulting in bed rest. This news is an atomic bomb to my care team & my journey. I am struggling with less care. #EndALS #momscarf

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@SethPoling10

Seth Poling

2 years

What a weekend. @MonsterJam Show on Saturday. The boys had a blast. Old Dad crashed. I was up ALL night. 3 breathing treatments, 3 doses of Ativan, and I puked 5 times. I slept all day today. #EndALS Thankful for my Angel of comfort, @erika_poling

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@SethPoling10

Seth Poling

1 year

***Proud Dad Moment*** Just watched my son Liam and his tee ball team, Seth's ALS Sluggers, crush it in their first game! So proud of these little sluggers and their sportsmanship. 🤩⚾️ #teeball #ALSsluggers #EndALS

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@SethPoling10

Seth Poling

2 years

I spent the evening outside on the patio with my boys. The neighbor was mowing and he kept stopping to play catch with my sons. I couldn't stop smiling and thanking him. #ALS #humanity

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@SethPoling10

Seth Poling

2 years

Just a #dad on his way to pick up his son, after his first week of #Prek . I had so much fun, I think that I will do it again next week. #ALS #EndALS

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@SethPoling10

Seth Poling

2 years

My 2 best friends from college came to visit today. We don't see each other as often as we would like.. But, when we do, we pick up as if we just left off. Our kids played & laughed. #ALS can be like solitary confinement. My heart's full. My tank's re-energized. #NotTodayALS

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@SethPoling10

Seth Poling

2 years

When we long for life without difficulties, remind us that oaks grow strong in contrary winds and diamonds are made under pressure. ~Peter Marshall #NotTodayALS #oaks #ALS @erika_poling

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@SethPoling10

Seth Poling

1 year

*** Proud Dad Moment*** Today was Liam's last tee ball game of the season with the Seth's ALS Sluggers. So incredibly proud of him and his amazing teammates. Seeing their growth and teamwork on the field brings me pure joy. Go Sluggers! ⚾️🏆 #ProudDad #Teamwork #EndALS

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@SethPoling10

Seth Poling

2 years

What it's like to sleep with #ALS 10pm- Fall asleep 1am- Wake up sweating 1:05am- Wife turns on fan 4am- Cold, heels hurt 4:05am- Wife turns fan off, blanket, braces 5am- Need to pee 6:30am- Wife/kids get ready for the day 7am- Caregiver starts I'm sorry @erika_poling 😫💕

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@SethPoling10

Seth Poling

2 years

G tube beers by the pool today for the win #Merica #NotTodayALS #MemorialDayWeekend #BeerMe

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