CEO
@CauseCommsUK
, comms expert, journo. 20 yrs as national newspaper exec. Daughter with learning disabilities teaches me everything.
@iHV
trustee
@WiJ
mentor
Couldn't be more proud of this show. Thanks to the brilliant team at FYI for working with us and the
@DCPcampaign
on this excellent investigation into disabled young people's lives featuring findings from the Disabled Children's Partnership's This Is My Life Report, out today.
We examine what life is like for disabled children growing up in Britain today. Watch this weekend on FYI Investigates: Disability and Me
@fyi_skykids
on
@SkyNews
and for schools at
This is poisonous
@AllisonPearson
People with dwarfism are regularly photographed & jeered when they simple go shopping.
@EllieSimmonds1
on
#Strictly
= visibility and understanding. If it makes your Saturday night uncomfortable that says so much about you.
What an incredible family. Frances’ mum and dad for being SEND parents for 53 years, Jo for using her voice when she was at her most fearful and most of all Frances for beating all the odds. Big blooomin love 💜💜💜💜💜💜💜💜💜to you all. From us lot ❤️
Update on Frances: a thread.
First of all, Frances would like to say a huge thank you to everybody who has helped her, especially the amazing doctors and nurses of the NHS, and her many MANY well-wishers. ❤️
"Oh, did she need this?" Said the immaculately-dressed non-disabled mum parked in the DISABLED bay, dropping her perfect kids off to their play scheme while looking at Elvi in her WHEELCHAIR. It had taken two hours to get Elvi dressed & out so you can imagine my response😠😡🗯️
Serious suggestion, if the government wants to save money, stop doing continuing health care assessments on people for whom there is no cure. My daughter is NOT going to get better. Just support her.
@jimconey
is a “benefits scrounger” he’s also an editor at the Sunday Times & Charlie’s dad. James represents the families of 1.2m disabled kids with this candid piece. Take time to read particularly if you have sway with government 🙏
@EmmaTuckerST
#SEND
#Benefits
@DCPcampaign
Gregg Wallace quits BBC series to find the right education for his autistic son. Did you know three out of four parents of disabled or neurodivergent children have had to leave work because of lack of support?
@DCPcampaign
#SEND
As soon as I told
@EllieSimmonds
my daughter has dwarfism and how much her Strictly appearance meant, she whipped my phone from me and filmed a message for Elvi. You're an absolute star, Ellie & have made another young lady (and her mum) v. happy
#whocareswinsawards
💜
#Strictly
Elvi. Outside a pub. If you knew how rare it is for her to do this because of her sensory issues you would understand the beauty in this everyday picture.
#SEND
#LearningDisabilities
We have JUST been offered an appt for Elvi's jab. While I am hugely grateful I don't think I will ever forget how brightly the pandemic has illuminated the lack of regard and compassion society has for people with
#LearningDisabilities
Their lives matter.
#SEND
@mencap_charity
My letter in today’s Times. I wonder if it’s time to talk about special educational “rights” instead of needs to make the government and wider public understand EVERY child matters.
#SEND
#SEN
#GiveItBack
Responding to the idea that being parent to a disabled child is a "golden ticket". It will be too late for Elvi but the next Govt must stop the SEND scandal. My brief was 800 words, there's so, so much more I could have said.
@DCPcampaign
My daughter's teacher just rang to say Elvi is saying three word sentences in class. E is 18 with
#LearningDisability
This is our gold star. So proud of her and grateful to all
#SEND
teachers & speech & language therapists out there. You are the heroes.
#disability
#SLT
#SLTchat
I was so furious with
@GillianKeegan
for claiming parents of
#SEND
children are gaming the system to get their kids into posh schools, that I wrote this. It's not politicians who doing a "F***ing good job, it's parents & carers of disabled children. 💜
Three days before she leaves school and 19 years after she first became known to them, our local authority HAS STILL NOT AGREED A COLLEGE PLACE FOR my daughter. Yes I'm shouting, I'm furious. Her future is valuable too. 19 years they have known this coming!
#SEND
Here's my daughter who Dominic Cummings suggested today was "appalling neglected" by government during the pandemic. Not just children in care but children who needed care were abandoned, families were left to cope. It broke so many of us.
#CovidInquiryUK
keeps giving.
My Irish immigrant Nan used to put up young footballers doing trials for
@WatfordFC
at her council house She loved this one. He went on to be pretty useful at my team
@LFC
My nan was furious to see him experience racism. Her granddaughter is livid it persists.
@officialbarnesy
Barry Keoghan.
In 2003 his mum passed away. Spent 7 years in foster care with 23 different foster homes.
In 2010 he responded to small casting ad in Dublin shop window.
In 2023 nominated for best supporting actor.
#Oscars2023
#bansheesofinisherin
"The closure of 10 children’s centres would involve closing the least efficient of our children’s centres where we are not quite getting the outcomes we would want" -DerbysCC These are CHILDREN'S CENTRES NOT BANKS
@helenhayes_
@wesstreeting
@campbellclaret
@Beccaliv
But do you have a blue badge? She didn't. It was also the way she referred to my daughter as "she" without addressing her directly, she's 21.
@FoxNikkiFox
The cost to taxpayers of councils wasting money on tribunals is £60m and would fund 9,960 additional SEND unit places, shown in this report from the
@DCPcampaign
and
@ProBonoEcon
Chuffed that our friend Muhayman Jamil has been awarded an
#MBE
for services to people with disabilities. A former brain surgeon, he switched to become a palliative care consultant AND co-founded Wheels & Wheelchairs. He changed our lives 💜 ❤️ pic:
@ArthurJEdwards
@Wheelsnchairs
The councillor who blocked Elissa for highlighting what she said about SEND is deputy leader of Warwickshire Council. Decent people in public service shouldn't face harassment but let's be clear what Elissa did was not harassment it was holding elected officials to account.
Thank you everyone who has shared, commented and complained about the conduct of the Cllrs at the
@Warwickshire_CC
scrutiny meeting. I've been made aware that Cllr Golby has claimed that the sharing of her comments and the offensive and hurt this has caused is "harassment". She
Glorious rite of passage today. Taking my 16-year-old daughter who has the mental age of two, uses about 70 words and is pushed in a wheelchair for her very first PIP assessment interview.
#DisabilityRights
We've been told our daughter has to come home from her special needs college for a week because of staff shortages. We have no support in place. Please get vaccinated, follow guidelines and keep Britain working. 🙏
#SEND
#COVID19
How many times does this have to be said? It's been covered by The Times, The Sunday Times, Sky The Sun, Channel 5 News, BBC, Guardian, Daily Mail, the Mail on Sunday. If all those disparate voices feel it's true, surely SOMETHING SHOULD BE DONE
My daughter, who happens to be disabled, earned her first
@raceforlife
medal last night in Battersea Park. She is so thrilled with it she wore it to bed and to school. Proud momma.
#disability
#accessibility
#teamelvi
Where do you start with this? How many school refusals are from disabled/neurodivergent children?
@michaelgove
#SEND
I've interviewed so many families where this is the case.
With hours to go b4 Elvi left school for good,
@Merton_Council
finally agreed funding for her college place. It took a fight, legal help from
@irwinmitchell
& heartache but our daughter will start the best college for her in Sept. Other parents don't have the luxury of lawyers.
I brought my Mum a copy of the book I wrote about King Charles. She has Alzheimer’s and can’t remember she was a librarian, adored books and drilled the importance of reading into me and my sister. I think she would be proud.
Stopped thinking about the carnage to take down a dress for my daughter’s prom at her college for disabled young people. And ended up hanging out. Such a joyful evening.
#TeamElvi
❤️ 💜 🪩 🎈🥂 ♿️ 🌈
When things go right. Elvi's holiday day centre was moved (funding etc🙄) She was freaked out by the new setting (autism/sensory issues) and refused to go in yesterday. Today we gently wheeled her in to find the staff had created a beautiful bespoke sensory area for her. 💜❤️ 🧵
The numbers of disabled and neurodivergent children is increasing. Each child matters. We need to rethink education. The more I speak to parents, the more I believe we need to rethink education.
#SEND
]
Just had a long chat with my GP who apologised 4 chaotic state of vaccine prioritisations & comms around people with
#learningdisabilities
. He asked how he can do better. This stemmed from my daughter's LD health check. How fantastic if all GPs can learn from Covid
@jowhiley
Raging that we started looking for a college place for our disabled daughter in 2018, we did everything meticulously. Now we're days away from her leaving school forever and the local authority is refusing to agree a placement. Are you in the same position? Talk to me.
#SEND
Hi all, I'm looking for a parent who has had to give up work because of lack of childcare for their disabled child. Someone who would be happy to be interviewed for TV. Many thanks
#journorequest
#SEND
For 7 years, we've been warning that if you don't get SEND support right in schools you will see an increase in need at the other end. Many young people signing up for PIP now were starting secondary then. Don't abandon them twice.
@DCPcampaign
Thank you to everyone who wished our daughter Elvi happy 21st birthday. When she was diagnosed with RCDP, aged two, we were told she wouldn’t live to be three. Elvi had other ideas. Here’s how we celebrated.
#SEND
#learningdisabilities
I do not for the life of me understand why Labour do not commit to policies that will help disabled people & those with learning disabilities if both
@Keir_Starmer
&
@AngelaRayner
have family experience of this. Some spending decisions are moral imperatives.
@thetimes
#GiveItBack
Our beautiful daughter is 18 today. Oh you have taught us SO much Elvi Bean. You have given us so much love and drawn us into the orbit of the most wonderful people. We love you beyond measure. What a rockin' way to roll into adulthood.
@Wheelsnchairs
#teamelvi
#jeansforgenesday
I can't watch this. I just can't. Seeing at the same time that Birmingham Council has slashed services for children with special needs, schools and early years services and social care, and adult social care provision and social work. It is a dark day for those of us fighting.
My good friend’s teenage learning disabled daughter has been offered a jab by her GP. I can’t quite express the relief and joy we are feeling for her. This is a group crying out for priority. Well done that GP for using common sense.
#vaccine
@ITVTonight
#learningdisability
#NHS
Totes emosh listening to Alchopops on the last ever
@themarkrad
and
@StuartMaconie
on
@BBC6Music
. Seen me through so many tough times and made me laugh so often all to the best soundtrack one could hear. Thanks for the afternoon delights chaps. XXxxxx
Thank you to the 999 call handler who kept me calm for 25 mins just now when Elvi & I broke down on the A3. No hard shoulder, two lanes. 70+mph cars and lorries speeding past. A sheer drop on to the M25 to our left. And 🙏 to the cops who rescued us. Never been so scared.
Cost of a prison place: £60,000 for court etc + £40,000 annually = £100,000
Cost of a
#SEND
school place = £10,000
Percent of prisoners who are neurodivergent or have learning disabilities = 28%
Doesn't it make sense to invest in SEND school places?
Rishi Sunak brags about building the "biggest prison programme in history".
Is the country needing more prison places really something to celebrate?
#PMQs
@bryony_gordon
Thank you Bryony. Had posted on insta about fast runners steamrolling my daughter’s wheelchair onto the grass where she can’t control it. I can’t skip into a ditch with her. No PB means as much as 2 metres.
@carolvorders
I was in the gallery today with my son, who is studying politics A Level. Did a sharp intake of breath when he made the joke, it was humiliating.
@RestIsPolitics
@RoryStewartUK
@campbellclaret
Keir Starmer has talked about his brother having learning difficulties. Why is the biggest minority in the UK - disabled people - not a bigger element of policy decisions and announcements?
It's clear from the
#CovidInquiryUK
that disabled and older people were written off during the pandemic. It's good to know their voices have been heard on the issue of scrapping ticket offices. This was always a disastrous idea.
Single mum Joanne on what it feels like to prepare to go up against a council barrister (paid for by tax payers) in a special needs tribunal, just to get a level playing feel for your child's education. Thank you
@Emmabarnett
@carolynatkinson
#SEND
Parents like you having to campaign outside Parliament this week
#3
. Getting an EHCP for Lucy's autistic son William, 5, took so long he missed out on a special school place. Mainstream say they can't meet his needs. Her younger son now faces the same issue.
@education4all23
#SEND
At some point in the last two years I must have looped
@caitlinmoran
into a Skype call by accident then left the camera on. The Uggs, The Dude wardrobe, the post depot for the street, the diet. It’s ALL here!
#WFH
@thetimes
@TimesMagazine
Thank you to the I for splashing the fight families are facing withdrawing their disabled children's child trust funds. This is absolutely the young people they were meant to help.
#SEND
Really good news young adults with learning disabilities are beginning to receive their Covid vaccines. Now if you could extend this across all the learning disabled
@MattHancock
@KatiePrice
@spicerlife
EHCP is trending. For anyone wondering what that is, it's the legal document for a child or young person with disabilities that sets out their needs, aims, & what they legally require to meet them. It is frequently a huge battle for families to fight for provision.