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Sam Carlisle Profile
Sam Carlisle

@samcarlisle

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CEO @CauseCommsUK , comms expert, journo. 20 yrs as national newspaper exec. Daughter with learning disabilities teaches me everything. @iHV trustee @WiJ mentor

London, England
Joined February 2009
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@samcarlisle
Sam Carlisle
3 months
Couldn't be more proud of this show. Thanks to the brilliant team at FYI for working with us and the @DCPcampaign on this excellent investigation into disabled young people's lives featuring findings from the Disabled Children's Partnership's This Is My Life Report, out today.
@FYI_SkyTV
FYI - Sky Kids Weekly News Show
3 months
We examine what life is like for disabled children growing up in Britain today. Watch this weekend on FYI Investigates: Disability and Me @fyi_skykids on @SkyNews and for schools at
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@samcarlisle
Sam Carlisle
4 years
My beautiful daughter just said a three word sentence “Flowers, I like.” Bursting with pride right now. #LearningDisabilities #SEND #RCDP #TeamElvi #happy
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@samcarlisle
Sam Carlisle
2 years
This is poisonous @AllisonPearson People with dwarfism are regularly photographed & jeered when they simple go shopping. @EllieSimmonds1 on #Strictly = visibility and understanding. If it makes your Saturday night uncomfortable that says so much about you.
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@samcarlisle
Sam Carlisle
2 years
Glasgow we love you 😍 🇺🇦 🏴󠁧󠁢󠁳󠁣󠁴󠁿
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@samcarlisle
Sam Carlisle
4 years
What an incredible family. Frances’ mum and dad for being SEND parents for 53 years, Jo for using her voice when she was at her most fearful and most of all Frances for beating all the odds. Big blooomin love 💜💜💜💜💜💜💜💜💜to you all. From us lot ❤️
@jowhiley
Jo Whiley
4 years
Update on Frances: a thread. First of all, Frances would like to say a huge thank you to everybody who has helped her, especially the amazing doctors and nurses of the NHS, and her many MANY well-wishers. ❤️
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@samcarlisle
Sam Carlisle
1 year
"Oh, did she need this?" Said the immaculately-dressed non-disabled mum parked in the DISABLED bay, dropping her perfect kids off to their play scheme while looking at Elvi in her WHEELCHAIR. It had taken two hours to get Elvi dressed & out so you can imagine my response😠😡🗯️
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@samcarlisle
Sam Carlisle
1 year
Actual The Thick Of It. Chose today to share this with my son 🥹
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@samcarlisle
Sam Carlisle
4 years
Just gonna lock myself away and watch this 6,546,543 times
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@samcarlisle
Sam Carlisle
10 months
Serious suggestion, if the government wants to save money, stop doing continuing health care assessments on people for whom there is no cure. My daughter is NOT going to get better. Just support her.
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@samcarlisle
Sam Carlisle
2 years
@jimconey is a “benefits scrounger” he’s also an editor at the Sunday Times & Charlie’s dad. James represents the families of 1.2m disabled kids with this candid piece. Take time to read particularly if you have sway with government 🙏 @EmmaTuckerST #SEND #Benefits @DCPcampaign
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@samcarlisle
Sam Carlisle
1 year
Gregg Wallace quits BBC series to find the right education for his autistic son. Did you know three out of four parents of disabled or neurodivergent children have had to leave work because of lack of support? ⁦ @DCPcampaign #SEND
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@samcarlisle
Sam Carlisle
3 years
Here's my beautiful daughter, Elvi, who loves wheelchair skating, music, laughing and pizza and happens to be disabled. #IDPWD2021 💜
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@samcarlisle
Sam Carlisle
2 years
As soon as I told @EllieSimmonds my daughter has dwarfism and how much her Strictly appearance meant, she whipped my phone from me and filmed a message for Elvi. You're an absolute star, Ellie & have made another young lady (and her mum) v. happy #whocareswinsawards 💜 #Strictly
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@samcarlisle
Sam Carlisle
2 years
Elvi. Outside a pub. If you knew how rare it is for her to do this because of her sensory issues you would understand the beauty in this everyday picture. #SEND #LearningDisabilities
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@samcarlisle
Sam Carlisle
4 years
We have JUST been offered an appt for Elvi's jab. While I am hugely grateful I don't think I will ever forget how brightly the pandemic has illuminated the lack of regard and compassion society has for people with #LearningDisabilities Their lives matter. #SEND @mencap_charity
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Sam Carlisle
5 years
My letter in today’s Times. I wonder if it’s time to talk about special educational “rights” instead of needs to make the government and wider public understand EVERY child matters. #SEND #SEN #GiveItBack
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Sam Carlisle
8 months
Responding to the idea that being parent to a disabled child is a "golden ticket". It will be too late for Elvi but the next Govt must stop the SEND scandal. My brief was 800 words, there's so, so much more I could have said. @DCPcampaign
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@samcarlisle
Sam Carlisle
4 years
My daughter's teacher just rang to say Elvi is saying three word sentences in class. E is 18 with #LearningDisability This is our gold star. So proud of her and grateful to all #SEND teachers & speech & language therapists out there. You are the heroes. #disability #SLT #SLTchat
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Sam Carlisle
10 months
I was so furious with @GillianKeegan for claiming parents of #SEND children are gaming the system to get their kids into posh schools, that I wrote this. It's not politicians who doing a "F***ing good job, it's parents & carers of disabled children. 💜
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@samcarlisle
Sam Carlisle
3 years
Three days before she leaves school and 19 years after she first became known to them, our local authority HAS STILL NOT AGREED A COLLEGE PLACE FOR my daughter. Yes I'm shouting, I'm furious. Her future is valuable too. 19 years they have known this coming! #SEND
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@samcarlisle
Sam Carlisle
9 months
ICYMI, my Times piece hitting back at the idea coming from councils and ministers that parents of disabled children are to blame for the #SEND crisis.
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Sam Carlisle
6 months
SIXTY EIGHT Conservative MPs write to the Chancellor to increase funding for SEND education in next week's budget, organised by @DavidDavisMP @DCPcampaign #GiveItBack @RishiSunak @GillianKeegan @RoryStewartUK @campbellclaret
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@samcarlisle
Sam Carlisle
2 years
Or stop messing around caring for disabled children AND a parent with Alzheimer’s, I mean, what was I thinking giving up my job?? @thetimes
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@samcarlisle
Sam Carlisle
4 years
Dins by the bins. The band didn’t want to give their name because they were out of practice but thank you social distancing brass! #disabilty #music #lockdown #wimbledon #SEND #BRASSBAND
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Sam Carlisle
10 months
Here's my daughter who Dominic Cummings suggested today was "appalling neglected" by government during the pandemic. Not just children in care but children who needed care were abandoned, families were left to cope. It broke so many of us. #CovidInquiryUK keeps giving.
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@samcarlisle
Sam Carlisle
3 years
My Irish immigrant Nan used to put up young footballers doing trials for @WatfordFC at her council house She loved this one. He went on to be pretty useful at my team @LFC My nan was furious to see him experience racism. Her granddaughter is livid it persists. @officialbarnesy
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@samcarlisle
Sam Carlisle
1 year
@fliceverett It’s the reality for most carers. Don’t pity us. Help us fight for more support. 💜
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@samcarlisle
Sam Carlisle
4 years
Elvi’s favourite thing in the world is skating so we were determined to make that part of our social distanced exercise. It brings her such joy (and much-needed cardio for me!). #TeamElvi @Wheelsnchairs #skating #rollerblading #disability #accessibility
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@samcarlisle
Sam Carlisle
9 months
Blaming parents of disabled children for council budget crisis is repugnant. My piece in ⁦ @thetimes ⁩ today. #Send #socialcare @SpcialNdsJungle ⁩ ⁦ @DCPcampaign ⁩ ⁦ @letuslearntoo #GiveItBack
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@samcarlisle
Sam Carlisle
4 years
Sat here in tears. I won't be the only one. Stay strong parents. ❤️
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@samcarlisle
Sam Carlisle
8 months
Parents don’t live forever. Our worst fear is that our disabled children live somewhere like this, in the care of monsters after we have gone. #SEND
@BBCMBuchanan
Michael Buchanan
8 months
NEW: “That’s how you don’t leave bruises.” The appalling treatment of 2 men with learning disabilities by their carers.
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@samcarlisle
Sam Carlisle
2 years
My darling Elvi, Happy, happy 21st Birthday, you have taught us everything, we love you so much. ❤️ 💜 🥳 ❤️ 🎂 🎈 🌈 🎉 😍
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@samcarlisle
Sam Carlisle
2 years
For my daughter Elvi and the tens of thousands of children who have been failed. Thank you @willquince Please now get the once-in-a-generation #SEND Reforms right. #Disability #LearningDisability #Neurodiversity #education
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@samcarlisle
Sam Carlisle
2 years
One of the unforgettable performances of the year.
@deirdreheenan
Deirdre Heenan
2 years
Barry Keoghan. In 2003 his mum passed away. Spent 7 years in foster care with 23 different foster homes. In 2010 he responded to small casting ad in Dublin shop window. In 2023 nominated for best supporting actor. #Oscars2023 #bansheesofinisherin
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Sam Carlisle
5 months
"The closure of 10 children’s centres would involve closing the least efficient of our children’s centres where we are not quite getting the outcomes we would want" -DerbysCC These are CHILDREN'S CENTRES NOT BANKS @helenhayes_ @wesstreeting @campbellclaret
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@samcarlisle
Sam Carlisle
1 year
@Beccaliv But do you have a blue badge? She didn't. It was also the way she referred to my daughter as "she" without addressing her directly, she's 21.
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Sam Carlisle
6 months
"As someone with a sister with Down syndrome ... I'd love to see a government leaning into this more" Thank you @campbellclaret and @RoryStewartUK for including my question about disability policy on The Rest is Politics. @DCPcampaign @HelenHayes @vickyfoxcroft
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Sam Carlisle
3 years
This is Billy & me 7 years ago today at @10DowningStreet about to talk about support for #disabled children. Billy is #CEV . Mum @Darcicles1106 has been fighting for him to have a vaccine for months. Today he got an appt… and Covid @contactfamilies @jowhiley @mencap_charity
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@samcarlisle
Sam Carlisle
9 months
@FoxNikkiFox The cost to taxpayers of councils wasting money on tribunals is £60m and would fund 9,960 additional SEND unit places, shown in this report from the @DCPcampaign and @ProBonoEcon
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@samcarlisle
Sam Carlisle
8 months
Chuffed that our friend Muhayman Jamil has been awarded an #MBE for services to people with disabilities. A former brain surgeon, he switched to become a palliative care consultant AND co-founded Wheels & Wheelchairs. He changed our lives 💜 ❤️ pic: @ArthurJEdwards @Wheelsnchairs
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Sam Carlisle
4 years
#CarersWeek2020 . Shout out to the brothers and sisters who make sacrifices for love day in day out. #teamelvi
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@samcarlisle
Sam Carlisle
7 months
The councillor who blocked Elissa for highlighting what she said about SEND is deputy leader of Warwickshire Council. Decent people in public service shouldn't face harassment but let's be clear what Elissa did was not harassment it was holding elected officials to account.
@ElissaNoves
Elissa Noves
7 months
Thank you everyone who has shared, commented and complained about the conduct of the Cllrs at the @Warwickshire_CC scrutiny meeting. I've been made aware that Cllr Golby has claimed that the sharing of her comments and the offensive and hurt this has caused is "harassment". She
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@samcarlisle
Sam Carlisle
7 years
Glorious rite of passage today. Taking my 16-year-old daughter who has the mental age of two, uses about 70 words and is pushed in a wheelchair for her very first PIP assessment interview. #DisabilityRights
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@samcarlisle
Sam Carlisle
5 years
#BackToSchool for Elvi not quite meeting @KensingtonRoyal standards. Yes, I’ve been up since 4am with her, yes, I’m still in PJs. Yes, her bus was an hour late. No, I haven’t had a blow dry. Best of luck to Princess Charlotte. @world_sen @DCPcampaign #SEN @DawnNeesom
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Sam Carlisle
2 years
No, no, no. I think The Specials meant more to me than any other band. Opened my eyes to politics and damn fine music. Thank you, Terry Hall.
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@samcarlisle
Sam Carlisle
3 years
We've been told our daughter has to come home from her special needs college for a week because of staff shortages. We have no support in place. Please get vaccinated, follow guidelines and keep Britain working. 🙏 #SEND #COVID19
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@samcarlisle
Sam Carlisle
3 years
7am: In bits sending Elvi off for her first day at residential college. 2pm: Proud to deliver @DCPcampaign letter to @RIshiSunak to return social funding for kids like Elvi. The fight is too hard for #disabled kids. How was your day? #GiveItBack #socialcare #SEND @treloars
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Sam Carlisle
4 years
Our Elvi has #learningdisabilities and has a full, fun life. She’s been a pain in the bum today but she’s also been singing She at the top of her voice. This is for you Frances Whiley. ⁦ @jowhiley ⁩ ⁦⁦⁦ @MoncktonR ⁩ ⁦ @spicerlife #lovinglearningdisabilities
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@samcarlisle
Sam Carlisle
2 years
Good to see ⁦ @jessphillips ⁩ Phillips and Iain Duncan Smith leading calls to criminalise ‘cuckooing’. ⁦ @tommyjessop ⁩ highlighted the impact on people with #learningdisabilities with his brilliant #LineOfDuty performance 👏
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@samcarlisle
Sam Carlisle
4 years
How many times does this have to be said? It's been covered by The Times, The Sunday Times, Sky The Sun, Channel 5 News, BBC, Guardian, Daily Mail, the Mail on Sunday. If all those disparate voices feel it's true, surely SOMETHING SHOULD BE DONE
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@samcarlisle
Sam Carlisle
1 year
@TimGatt The lack of awareness, thought and basic humanity still upsets me after 21 years of being Elvi's mum.
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Sam Carlisle
5 years
My daughter, who happens to be disabled, earned her first @raceforlife medal last night in Battersea Park. She is so thrilled with it she wore it to bed and to school. Proud momma. #disability #accessibility #teamelvi
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Sam Carlisle
2 years
Where do you start with this? How many school refusals are from disabled/neurodivergent children? @michaelgove #SEND I've interviewed so many families where this is the case.
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@samcarlisle
Sam Carlisle
3 years
With hours to go b4 Elvi left school for good, @Merton_Council finally agreed funding for her college place. It took a fight, legal help from @irwinmitchell & heartache but our daughter will start the best college for her in Sept. Other parents don't have the luxury of lawyers.
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@samcarlisle
Sam Carlisle
2 years
A secret. Sometimes I find it really tough to see happy pics of families of four enjoying their holidays. 😞
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@samcarlisle
Sam Carlisle
1 year
I brought my Mum a copy of the book I wrote about King Charles. She has Alzheimer’s and can’t remember she was a librarian, adored books and drilled the importance of reading into me and my sister. I think she would be proud.
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@samcarlisle
Sam Carlisle
2 years
Stopped thinking about the carnage to take down a dress for my daughter’s prom at her college for disabled young people. And ended up hanging out. Such a joyful evening. #TeamElvi ❤️ 💜 🪩 🎈🥂 ♿️ 🌈
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@samcarlisle
Sam Carlisle
7 months
When things go right. Elvi's holiday day centre was moved (funding etc🙄) She was freaked out by the new setting (autism/sensory issues) and refused to go in yesterday. Today we gently wheeled her in to find the staff had created a beautiful bespoke sensory area for her. 💜❤️ 🧵
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@samcarlisle
Sam Carlisle
2 years
The numbers of disabled and neurodivergent children is increasing. Each child matters. We need to rethink education. The more I speak to parents, the more I believe we need to rethink education. #SEND ]
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@samcarlisle
Sam Carlisle
3 years
Just had a long chat with my GP who apologised 4 chaotic state of vaccine prioritisations & comms around people with #learningdisabilities . He asked how he can do better. This stemmed from my daughter's LD health check. How fantastic if all GPs can learn from Covid @jowhiley
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@samcarlisle
Sam Carlisle
3 years
Raging that we started looking for a college place for our disabled daughter in 2018, we did everything meticulously. Now we're days away from her leaving school forever and the local authority is refusing to agree a placement. Are you in the same position? Talk to me. #SEND
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@samcarlisle
Sam Carlisle
4 months
Hi all, I'm looking for a parent who has had to give up work because of lack of childcare for their disabled child. Someone who would be happy to be interviewed for TV. Many thanks #journorequest #SEND
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@samcarlisle
Sam Carlisle
4 months
For 7 years, we've been warning that if you don't get SEND support right in schools you will see an increase in need at the other end. Many young people signing up for PIP now were starting secondary then. Don't abandon them twice. @DCPcampaign
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@samcarlisle
Sam Carlisle
2 years
Thank you to everyone who wished our daughter Elvi happy 21st birthday. When she was diagnosed with RCDP, aged two, we were told she wouldn’t live to be three. Elvi had other ideas. Here’s how we celebrated. #SEND #learningdisabilities
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@samcarlisle
Sam Carlisle
3 years
Happy 20th birthday my beautiful young lady. May there always be music #teamelvi 💜 🎵 🪘
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@samcarlisle
Sam Carlisle
6 months
I do not for the life of me understand why Labour do not commit to policies that will help disabled people & those with learning disabilities if both @Keir_Starmer & @AngelaRayner have family experience of this. Some spending decisions are moral imperatives. @thetimes #GiveItBack
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@samcarlisle
Sam Carlisle
5 years
Our beautiful daughter is 18 today. Oh you have taught us SO much Elvi Bean. You have given us so much love and drawn us into the orbit of the most wonderful people. We love you beyond measure. What a rockin' way to roll into adulthood. @Wheelsnchairs #teamelvi #jeansforgenesday
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@samcarlisle
Sam Carlisle
4 years
London 5am. You are so beautiful even with the sound of traffic.
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@samcarlisle
Sam Carlisle
4 years
My then four-year-old son drew this of our family ten years ago today. He has grown up with the greatest acceptance and care of his sister’s disability. All the love between them ❤️ #siblings #family #rainbows #disability #art #valentines
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@samcarlisle
Sam Carlisle
9 months
I can't watch this. I just can't. Seeing at the same time that Birmingham Council has slashed services for children with special needs, schools and early years services and social care, and adult social care provision and social work. It is a dark day for those of us fighting.
@FoxNikkiFox
Nikki Fox - BBC News & Watchdog Presenter
9 months
Mother covers 144 hours of care a week for disabled son
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@samcarlisle
Sam Carlisle
4 years
My good friend’s teenage learning disabled daughter has been offered a jab by her GP. I can’t quite express the relief and joy we are feeling for her. This is a group crying out for priority. Well done that GP for using common sense. #vaccine @ITVTonight #learningdisability #NHS
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@samcarlisle
Sam Carlisle
6 years
Totes emosh listening to Alchopops on the last ever @themarkrad and @StuartMaconie on @BBC6Music . Seen me through so many tough times and made me laugh so often all to the best soundtrack one could hear. Thanks for the afternoon delights chaps. XXxxxx
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@samcarlisle
Sam Carlisle
6 years
@TfL ⁩ bus just refused access to my daughter in her wheelchair because there were two pushchairs on board . “I can’t ask them to move I can’t get out of my cab.” The bus wasn’t even half full. #discrimination #disabiltyaccess @DCPcampaign ⁩ ⁦ @Tanni_GT
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Sam Carlisle
2 years
Thank you to the 999 call handler who kept me calm for 25 mins just now when Elvi & I broke down on the A3. No hard shoulder, two lanes. 70+mph cars and lorries speeding past. A sheer drop on to the M25 to our left. And 🙏 to the cops who rescued us. Never been so scared.
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@samcarlisle
Sam Carlisle
4 months
Cost of a prison place: £60,000 for court etc + £40,000 annually = £100,000 Cost of a #SEND school place = £10,000 Percent of prisoners who are neurodivergent or have learning disabilities = 28% Doesn't it make sense to invest in SEND school places?
@AdamJSchwarz
Adam Schwarz
4 months
Rishi Sunak brags about building the "biggest prison programme in history". Is the country needing more prison places really something to celebrate? #PMQs
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@samcarlisle
Sam Carlisle
2 years
@willquince Thank you for engaging with SEND parents. You were the first of the Children's Ministers to do that with any sense of hope.
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@samcarlisle
Sam Carlisle
4 years
@bryony_gordon Thank you Bryony. Had posted on insta about fast runners steamrolling my daughter’s wheelchair onto the grass where she can’t control it. I can’t skip into a ditch with her. No PB means as much as 2 metres.
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@samcarlisle
Sam Carlisle
7 months
@carolvorders I was in the gallery today with my son, who is studying politics A Level. Did a sharp intake of breath when he made the joke, it was humiliating.
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@samcarlisle
Sam Carlisle
3 years
Dear @RishiSunak , you said this week you would consider funding a build back for disabled children abandoned in the #pandemic . Here’s why that is vital in today’s @TheSun Please read the @DCPcampaign report into what went wrong & what to do now. #giveitback #leftinlockdown
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@samcarlisle
Sam Carlisle
6 months
@RestIsPolitics @RoryStewartUK @campbellclaret Keir Starmer has talked about his brother having learning difficulties. Why is the biggest minority in the UK - disabled people - not a bigger element of policy decisions and announcements?
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@samcarlisle
Sam Carlisle
4 years
FIVE wheelchairs out today for a rollerblade around Battersea Park. Come and join us in a chair, on skates or spiritually by donating. @Wheelsnchairs @SuperheroTri #accessibility #sportforall @BBCLondonNews
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@samcarlisle
Sam Carlisle
10 months
It's clear from the #CovidInquiryUK that disabled and older people were written off during the pandemic. It's good to know their voices have been heard on the issue of scrapping ticket offices. This was always a disastrous idea.
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@samcarlisle
Sam Carlisle
6 years
⁦Why Makaton should be taught in schools. ⁦ @singinghands ⁩ ⁦ @MyMrTumbleMag ⁩ ⁦ @CBeebiesHQ ⁩ ⁦ @MakatonCharity ⁩ ⁦ @robdelaney
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@samcarlisle
Sam Carlisle
11 months
Single mum Joanne on what it feels like to prepare to go up against a council barrister (paid for by tax payers) in a special needs tribunal, just to get a level playing feel for your child's education. Thank you @Emmabarnett @carolynatkinson #SEND
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@samcarlisle
Sam Carlisle
1 year
Parents like you having to campaign outside Parliament this week #3 . Getting an EHCP for Lucy's autistic son William, 5, took so long he missed out on a special school place. Mainstream say they can't meet his needs. Her younger son now faces the same issue. @education4all23 #SEND
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@samcarlisle
Sam Carlisle
2 years
This is love. Best friends since they were three. My daughter, Elvi, and her vbbf, Izzy. 💜
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@samcarlisle
Sam Carlisle
4 years
At some point in the last two years I must have looped ⁦ @caitlinmoran ⁩ into a Skype call by accident then left the camera on. The Uggs, The Dude wardrobe, the post depot for the street, the diet. It’s ALL here! #WFH @thetimes ⁩ ⁦ @TimesMagazine
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@samcarlisle
Sam Carlisle
1 year
@MelanieEast72 And she would have had a blue badge if there was a case for a hidden disability. She didn't.
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@samcarlisle
Sam Carlisle
4 years
It’s snowing, it’s cold, we’ve been inside for 7,543,762,987 days BUT there’s always music. Presenting ... Yazoo on Kazoo @alison #TeamElvi #giggles #musictherapy #alisonmoyet #LearningDisability #yazoo #vinceclarke
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@samcarlisle
Sam Carlisle
4 years
@JBwol Still waiting to hear from Jamiracoup.
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@samcarlisle
Sam Carlisle
1 year
Thank you to the I for splashing the fight families are facing withdrawing their disabled children's child trust funds. This is absolutely the young people they were meant to help. #SEND
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@samcarlisle
Sam Carlisle
2 years
The news is so bleak, here’s Elvi loving her djembe drumming class in Brixton to add some cheer. #SEND #goodnews 🎶 🪘 💜 🤩 ❤️ 🎵 🌈
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@samcarlisle
Sam Carlisle
2 years
EHCP is trending. For anyone wondering what that is, it's the legal document for a child or young person with disabilities that sets out their needs, aims, & what they legally require to meet them. It is frequently a huge battle for families to fight for provision.
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