๐ ๐ฉท๐๐She/her โโ๏ธโ๐โโฌ๏ธ exvangelical AND exmormon, MSW, ๐Lupus Scleroderma and Pemphigoid ๐ท ADHD, I ๐ my ๐, โ๏ธ, and smashing the patriarchy, BLM โ๐ฝ
My heart rate was 190 for a hot second at the doctor's earlier today and I was about to tell the MA that I have POTS when she was like " I saw in your chart that you have POTS, let me get you some water, here let's tilt this exam chair back so you can lay down" someone give this
@ATMwithJacy
As someone whose mom died when I was a teenager and I went to Iive with my momโs brother and his wife who resented me, I think she is making a good choice. That whole situation messed me up more than my momโs death
@coldbrewsed
Yes, itโs gotten to the point where bills I totally couldโve afforded went to collections ๐ฌ it doesnโt help that I also donโt listen to voicemail.
@chaoticgaythey
From my understanding chickenpox isn't actually a pox virus, its a herpes virus with pox virus like symptoms. I don't think people (at least my generation) were taught much at all about small pox besides europeans brought it to America and it killed a lot of indigenous people.
@the_tweedy
Not exactly the same but I hate when I am at water aerobics and men try to swim laps in our lanes. Like because we are mostly women and mostly disabled and our exercise isn't competitive/timed/goal-driven, it is somehow less important than their exercise.
@tiredgenerally
I have 7 diagnosed food allergies, so places like whole foods and sprouts make it possible for me to find fun foods to enjoy. I buy my regular food at walmart and winco, but I feel like a kid in a candy shop when I go to specialty geocery stores because they sell things I can eat
Therapists who work with teens: what do you do when you get a totally different picture of the problem from the parents compared to what the teen has told you?
TIL that Mormons are no longer buried in their temple clothes. Apparently they slowly faded it out and now they just wear whatever the family choses and put the temple clothes in the casket neatly folded right before burial so they will be handy for the resurrection.
@oldenoughtosay
I have had many nanny and babysitting jobs throughout my life, and never have they not provided food. As someone who grew up poor, I was always in awe of their fully stocked walk in pantries with everything from costco that you could ever want. Best part of the job haha
@fattyMPH
I once went to the doctor for hypothyroidism to renew medication, which I had been previously diagnosed with, and the doctor billed it under weightloss counseling, which my insurance doesn't cover, and the doctor's office refused to fix their error and resubmit it to my insurance
@chronicallybeee
Even my DSM class was like "you need to know thjs but it's all garbage" I keep my notes for insurance very vague and under diagnose so I use anxiety disorder unspecified like 80% of the time, depression 10%, and then like a few specific dx's like PTSD or eating disorders
Just this week I learned that my ear pain I have had for 3+ years is TMJ and I am realizing how much I clench my jaw. My head CT showed that my jaw had a lot of swelling. I am open for any and all tips at managing TMJ. I am already on a mostly soft diet due to my dysphagia
@panagis21
When I was a kid our landlord always had homemade baklava in her office for tenants when we dropped off our monthly rent check. That is one way to keep a good relationship with tennants
@fattyMPH
under the proper billing code, and I was stuck paying the out of pocket bill for the appointment. I was sooooo mad that I switched all my HCPs completely from one hospital system to another ( I realize it's a privilege I had that option) and I found a really great PCP who I have
Why is it easier for me to take a whole shower and wash my face in the shower than to wash my face at the sink for like a minute? I would rather take another shower than just wash my face
@That1MedStudent
I would guess that pregnancy is a greater risk to someone's health than an anesthetic that makes it possible for someone to get an IUD places
My mom is dead but sometimes I still โbuy her a presentโ for Motherโs Day, but itโs actually just something for me in her honor, like a ring from Etsy with both our birth stones. Now taking gift recommendations.
@the_tweedy
Green flag: they are making an honest effort to not use ableist language or phrases, I had to cancel with a friend and they responded "get well soon", to which they quickly corrected themself and aknowledged that I am not getting better anytime soon, but they hope that my pain
@the_tweedy
While it's not explicitly written for how to support a partner I think "How to keep house while drowning" is a great resource for partners of ADHDers my husband could not understand why I struggle with caretasks until we listened to it together, it gave him a glimpse of my brain
@katystoll
I am in an MSW program to become a therapist and when I told my dad he said, "oh like Jordan Peterson the psychologist, he is great you should look him up" ๐ฌ no dad nothing like Jordan Peterson
@Respexy
Right like I would say that non-sexual physical touch is my "love language" and I feel like my ex had trouble understanding how I wanted physical touch but not sex
@EponymousDj
Right, like this should just be standard care! It was at a really good teaching hospital that regularly ranks nationally for patient care, but this was still above the normal level of good care I receive from that organization
@tastysauce_
@BlkGrlBrilliant
Because they should be! I hate missing an opportunity to stay at home and listen to the rain with the windows open while snuggling with my cat drinking coffee
@holy_schnitt
My family doesn't eat until 6 at the earliest and I have a propensity to get hangry, so I am following my dietitian's advice to have something with fat, fiber, and protein for lunch to keep my blood sugar stable. I had some lentil vegetable soup with some cheese.
CW bipolar disorder, mania
LuLaRich was kind of triggering for me because my dad's manic episodes often including spending money we didn't have on the latest MLM. But it serves as another example of ways that MLMs prey on vulnerable people.
So all the therapists in the other therapy office downstairs dress very professional (slacks, blazers, dress shoes) while all of the therapists in my office dress VERY casual. I was feeling a little self conscious and like we need to step up and dress more professional, but
@the_tweedy
I do this as a TA. I always accept late work no penalties and the profs I work with have never said anything about it to me and the syllabus doesn't address is it so ๐คทโโ๏ธ. I plan to do the same if/when I teach my own class. I find it so sad when I get an email from an over-stressed
I hadn't shared it on main until now, but Alex and I are getting a divorce. At first we thought it would be amicable, but things have taken a turn. I think it will eventually be a good thing for me, but I am just hurting right now. As I talk to my friends I am realizing how much
@batsgirl
@MamaDoctorJones
My guess is this is referring to the difference between a fetus and a baby bc fetuses are surrounded by amniotic fluid, but I don't know MDJ please explain
@NeuroArchie
I used to be an academic advisor and students with dyscalculia could take a philosophy class in place of math because it still fit the "logic" GE requirement.
@caseydanielee
I use my epi if I have symtoms from 2 or more body systems. So hives + watery eyes=epi, hives+runny nose=epi. The exception to this is respiratory symptoms, wheezing always =epi (unless I know it's not allergic) there is very minimal risk to using an epi pen when maybe benedryl
@areynarivarola
Ugh I am doing an internship with a non-profit right now and I am conflicted because while what we are doing is extremely urgent and important (psychiatric care for uninsured patients) and I love it, I hate that we have to focus on raising funds to keep going and perpetuate these
@KevinNe77857066
@DavidArchie
Have you ever considered that LGBTQ teens struggle with depression and suicidal thoughts because of the rejection and judgement they face from bigots like you?
@Katelynjontel
Like do they not understand that the more you have the more you are at risk for! Like I don't want more either but they keep coming up, believe me I also feel like this is getting ridiculous, but I am the one who has to live with it so I can't just ignore it ( ps I already tried
@emilykmay
One time when I was 2 my mom was on her period and I very loudly insisted on helping her change her pad yelling "I help, Mommy! I help" as the other women in the bathroom erupted in laughter
My (ex) MIL started a PhD at the U today and over the weekend I gave her a campus tour, helped her find her classes, and helped her set up her parking pass. I just texted her and she is having a great first day of school!
@MackWithMast
@itswalela
I hate thinking about how much money I could save if I didnt have so many food allergies. I hate not being able to buy the generic brand or food from the bulk section, but unfortunately I need to buy the expensive allergen free brand.
My personal therapy session was so rough that I had to reschedule my morning clients. We got into traumas that I havenโt thought about in years. I am currently icing my face to get the puffiness from crying to go away, and then I am going to go get breakfast out.
@areynarivarola
health disparities rather than actually fighting against the system that creates these health disparities in the first place and leaves the most vulnerable without access to healthcare.
@AHinkle628
I have such a hard time with this but I am getting better! Last week I asked for an extra pillow under my knees during my mri. There are so many times I regret not advocating fir myself, but I have never regretted when I do!
of myself I have lost or suppressed over the last 6 years. So far the most painful part has been learning what his friends and family really think of me. My mom is dead, and I am not close to my dad or half-siblings, so his family has been my only family for six years.
I had a really fun weekend with the guy I am dating. I stayed over at his place last night and he helped me bake this lemon blueberry cake for my sister in lawโs bridal shower today
@gabrielledrolet
If people dont want to use pre-minced garlic they dont have to but why do they care about how other people cook/what other people are eating? Gosh some people are so frustrating. I am a disabled home chef and I alternate depending on how I feel
@EDSJess
The overwhelming urge to lay on the floor all the time. Waking up super dizzy, dehydrated, and confused every day. Getting the chills and nausea when overheated.
@Cooperstreaming
Yep, I get this all the time. I hated having a "boy's name" as a kid, but I love it as an adult, and if I ever have a daughter I don't think I could give her a traditionally feminine name.
@CarissasNewLife
Last time I came out of general anesthesia they had to re-sedate me. I have no recollection of it but the notes used words like combative and belligerent ๐ฌ and when I saw my doctor again she said โYou were a mad woman!โ
@Artists_Ali
I was raised southern Baptist and went to a Lutheran school and I was so confused because my pastor had told me that peta wouldn't be in heaven, but the Lutheran minister who led our weekly chapel service said they would.
Apparently itโs because of the TikTok videos of people sharing their temple clothes, and a part Nelsonโs rebrand of the churchโs to appear more mainstream Christian
@HannahntheWolf
my pain is so bad I can't wash my hair" like if the decrease in ability is dramatic enough they care even though two people could have the same functional limitations now but they only care about how the former triathlete is impacted
@tigeridareya
I was never taught to call the police on someone doing something illegal if it wasn't harming others. Does she call the cops on everyone who is speeding because they are breaking the law? Or only the laws she disagrees with? Also, if this were a real belief taught by the church
@DRinaldiMusic
I told them I couldn't see them. The parent was consistently dropping the child off 10-15 min late or no showing. I am trying not to take it personally. I could have squeezed them in later during my break, but I deserve my break and my time should be respected.
@the_tweedy
So I am not a parent but growing up my mom had Lupus and I really liked her approaches. She took a daily nap where I was allowed to watch TV or do other quiet activities, she had close friends who would take me for one day a week so she could rest, she kept things simple,
@acweyand
@Nigella_Lawson
@WholeFoods
I stacked and decorated 3 Whole Foods Chantilly cake for my sisters wedding and everyone loved it! We also bought a sheet cake and we were eating it for days haha, itโs so good!
@HannahntheWolf
Related to this, in my experience doctors only believe me when I tell them that my symptoms are debilitating when I tell them what I was able to do before symptom onset with a narrative like that, " In 2017 I was running 4 miles everyday and doing arm balances in yoga and now
@KellyOwens9997
@SatiricalMommy
As a therapist who works with teens and pre-teens, I see a huge increase in summer depression for kids whose parents work all day and because the kids suddenly arenโt seeing their friends every day. I try to find summer resources like low cost day camps held by the county rec
@QueerwolFagDyke
Yeah thankfully my dentist has also been good about it, I just tell them I need to sit there for a few minutes, but this is because I almost fell at their office one time
@the_tweedy
I wore a lot of dresses as a teenager and the fact that I never understood why all the other girls had to ask someone "zip me?" to zip up their dress. I have always been able to touch everywhere of my back. I SUCKED at PE, but the only test I could pass was flexibility.
@DrAmyPsyD
This applies to so many things! Like allowing cashiers to sit, people taking the elevator etc. I am disabled and wish that society would just implement universal design and assume that there will be disabled people even if they don't notice it. Accessibility is just human needs
@ItsEmilyKaty
I feel like for me it was realizing that what I thought was just anxiety that I was poorly managing is actually overstimulation and autistic burnout, and learning to accept my limits. For me it's being able to notice my emotional state and overall distress levels without feeling
Tw: death
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I was searching for important documents to go change my name tomorrow and I stumbled across my momโs death certificate. I donโt know why but I always thought her official cause of death was from a blood clot from Lupus/APS, but her death certificate says she
Guess who was diagnosed with
#POTS
today? My cardiologist gave me the standard recommendations like compression socks, hydrate, increased salt intake, but I also saw in the notes something about not operating heavy machinery alone? Does this mean that I shouldn't drive by myself?
Sometimes when internalized ableism gets to me and I feel guilty for using my accomodations because I technically could push myself and stay up all night to get an assignment done (at a high cost to my health) I open up my myChart tests results and look over the 7+ different
@AutSciPerson
Yep, just FYI for local friends, I get mine refilled often and they are covered by my insurance, so if you need one let me know. Seriously, my allergist is willing to refill my prescription monthly but I only use them maybe 1 time a year.
Tw: death
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Honestly this is kind of relieving regarding my own Lupus diagnosis. It was very scary to be diagnosed with what I had always been told was the cause of her death. Lupus still played a big role in her overall health and I am sure it contributed.
@the_tweedy
@AvrilaWrites
This is my main concern about dating again! But my therapist friends and I are very careful to not therapize each other haha. Regarding my divorce all my therapist friends have been like "do I need to fight him?" and it's great to just be normal people haha
Therapist/social work friends, how do you cope with the anxiety and physical stress after a crisis after a crisis at work? My go-to coping skills aren't working
Question for my chronically ill friends, do you consider unsolicited health advice ( things like "have you tried yoga?) to be micro-aggressions? Also, please comment to explain your thoughts โฅ๏ธ
#NEISvoid
I told my dad about my divorce and I wish I hadn't. I thought reaching out and trying to reconnect would be good, but I was just reminded why I keep my distance.
@mediocremumsy
Ugh, I also hated when male RMs said they wouldn't even consider dating a girl who hadn't gone on a mission bc that means she must not be committed enough. My argument was always "if HF doesn't require it of women, why do you think you can require it of women?" That usually left
@KevinNe77857066
@DavidArchie
Even if broader acceptance is at an all time high that doesnโt mean LGBTQ teens donโt face bullying and harassment from peers or shame and judgement from their family. I am a mental health therapist who works with LBGTQ teens, and to this day they are still getting death threats
@MoriahMurray7
My favorite doctor I have ever had was a DO family medicine resident. She was the first person to believe me and refer me to rheumatology. She also was very aware of weight bias in medicine and supported me my goals of behavior changes without focusing on the scale.