I went for a smear last week and there was no privacy curtain due to covid 🤦🏼♀️ I emailed the surgery and suggested they should have a privacy curtain. I’ve received a reply to say that the risks outweigh the benefits. Please tell me I’m not crazy.
@Dienekes_
I also broke the rules by suggesting that a family could take their gloves off to hold their dying mothers hand. This lady loved to hold hands ❤️
Just to be clear nurses do go into nursing for money. We don’t expect to get rich doing it but we do expect fair pay for a critical patient safety role. We are a highly educated, highly skilled workforce.
Not true.
I got diagnosed as autistic yesterday. These things are deeply uncomfortable to me and always will be.
Since I’ve known I’m autistic I do them less and life is better.
Exposure doesn’t always work
#AuDHD
buying groceries can be uncomfortable. going to school/work can be uncomfortable. socializing can be uncomfortable. the more you do it, the less uncomfortable it will be. if you can do these things (I know that there is a % of the population that isn’t), you have to do them often
I’m 51 and a nurse. I’ve seen and done a lot. I have been surprised by human behaviour three times today but by far the most abhorrent is people thinking that 21 Ukrainian children with cancer should not be allowed into the country for treatment 😳
My occ health report says that ‘unfortunately the neurodiversity condition autism is a life long condition and Helen will not recover’.
It’s not unfortunate.
I’m a f
@cking
delight 😂 but it shows you the every day ableism out there
#AuDHD
I’ve just completed my autism/ADHD screening forms. What a mess they are.
They use the Cambridge behaviour scale. It’s an empathy scale. It’s a myth that autistic people don’t have empathy.
No, I didn’t enjoy cutting up worms and yes, I can tell when people are uncomfortable 🤦🏼♀️
This gets beaten out of you.
Nothing changes 🤷♀️
I email my concerns if really important so I can say I raised it but otherwise I just think ‘I told you so’.
I don’t know why employers don’t use us as canaries in the mine
#AuDHD
@AntonyGibbs4
@StephPanecasio
What you’re describing is different to what women are experiencing. Women do it because they doubt themselves or rather they’ve been taught to doubt themselves.
@helen_barnowl
@ElshadKarbasi
Bullshit. What country are you in that they have autistic nurse practitioners?
I want to make sure I don’t require any healthcare there.
@fesshole
Lots of women do this to avoid random men sitting next to them. Would be great if men just stuck to their space. I will of course move my bag if someone wants it.
Seen a lady two days in a row. Couldn’t work out why she wasn’t drinking. Physically swallow ok. Today she said the glass was heavy. Smaller cup and glass and she’s drinking. Now that is
#advancednursing
🤩🤩 and possible saved admission!
@BorisJohnson
We’re not heroes 🤦🏼♀️ we’re ordinary people with bills to pay. This is an insult. And we inadvertently increased your popularity by delivering the vaccination programme. No wonder you think we’re mugs.
@EllenCScott
That health care professionals aren’t heroes 😳 I said it 😆 I am one btw. My colleagues and friends are wonderful people but we are ordinary people doing a fairly ordinary job in extraordinary times. We need protecting physically and mentally
I’m blocked by her.
The utter irony of her thinking that autistic people don’t have empathy.
This is why I talk about being autistic.
I’m a registered nurse.
And my GP boss at the time thought I couldn’t be autistic as I have empathy.
It’s a myth.
‘High functioning’ autism means that after a great week away and a 6 hour drive yesterday I need to pay the autism tax of spending today just existing so I can function at work tomorrow because I’m shattered and thoughts are getting negative 😬
#AuDHD
@smlfc2005
@Flakes1979
It’s completely unacceptable to criminally damage someone’s car. Obviously they shouldn’t be parked across the pavement but doing that doesn’t solve the issue
I’m a registered nurse.
At the end of last week I forgot to take my thyroxine, forgot to change my HRT patch and ran out of another medication 🤦🏼♀️
People don’t do it on purpose.
No surprise but I am now actually diagnosed as
#ActuallyAutistic
Mixed feelings obvs. Confirmation I’m not broken but mixed with grief.
It’s an explanation for all the things. Now to move forward. Self ID is 100% valid. As an adult self ID is needed to go for formal assessment
@naomi2009
@sajidjavid
I work for a GP practice and have been seeing patients face to face when clinically appropriate and safe to do so throughout. Don’t make baseless accusations.
OH have rung me twice.
I’ve emailed my manager twice to say to say email is my accessibility requirement.
HR have emailed me to say OH has been trying to contact me.
I replied that I need to be emailed not telephoned.
I’m not being inflexible. I’m asserting myself.
#AuDHD
I got my first report on my autism assessment today. It’s striking how we are measured by how others perceive us rather than how we experience the world.
Couple of subjective words in there I’m not happy about.
It really is perception
#AuDHD
Two retired medical consultants on my walking trip. Both thought that working eleventy billion hours a week was fine. They did it.
I stuck up for today’s junior doctors
@BorisJohnson
@TheSun
We’re not heroes. We’re highly educated skilled professionals who deserve a salary commensurate with those skills.
And the Sun sponsoring the event is a disgrace.
You have to return PIP forms within a month but the service offering help with form filling has an 8 week waiting list.
You have to ring it seems to get an extension.
My disability means phone calls are difficult for me 🤦🏼♀️😩
#AuDHD
He’d be horrified at my advice when frail older people have reduced appetites 😂
Pretty much eat what you like! Biscuits for breakfast, chocolate for lunch. Crack on
Tell me you don’t work in a hospital with sick and critically ill patients without telling me you don’t work in a hospital with sick and critically ill patients
When I told occ health that bring tired or hungry affects me badly she said it was the same for everyone 🤦🏼♀️
That’s the whole point. It’s not the same for me as everyone else. If I’m tired or hungry I will melt/shutdown.
I’m fed up of people dismissing my experiences
#AuDHD
‘High functioning autism’ is BS.
I have therapy today so have showered. I didn’t shower yesterday and wouldn’t have bothered today if I wasn’t at therapy.
This is the part people don’t see.
The rest of the time I’m a mostly put together ANP who is good at their job
#AuDHD
I do like Joe but he is wrong about this.
And a lot of exercise people just don’t understand how disabilities including autism/ADHD can make good food and exercise regimes almost impossible.
My energy fluctuates so much I can’t plan exercise. And if I’m tired I eat badly
#AuDHD
In response to Joe Wicks saying
#ADHD
is caused by ultra-processed foods: Joe is a force for so much good but on this he's abjectly wrong. His point that a good diet can help almost everyone is right. But diet good, bad, or ugly won't make you have ADHD or make you not have ADHD.
That first paragraph 😬 she didn’t mind if he was autistic as long as he didn’t act autistic 🤦🏼♀️
A new understanding: how research into autism is evolving | Autism | The Guardian
@BethRigby
This is what drives me nuts. Everyone moaning about Christmas but as always the staff in the NHS will be working. So they don’t get to join in but will have to pick up the pieces after 😩
Maria, I was undiagnosed as
#AuDHD
for 53 years. That’s living life on hard mode. I had several bouts of ‘depression’ (burnouts) and I recovered every time. I’m f
@cking
tough as old boots.
Autistic women are more likely to die by suicide. It isn’t a weakness. Life is hard for us
Had a meeting about reasonable adjustments today. It went really well. I explained what RSD (rejection sensitivity dysphoria) is and they had no clue. Apparently NTs don’t get this 🤷♀️ who knew
#AuDHD
@ccdaniels65
@Not4Twos
O Richard, I’m a community nurse. I have attended so many incidents outside of work and not once were my qualifications or expertise questioned.
Everyone else here knows exactly why and so do you because you mention it.
@JimBethell
You are two years older than me. You went to a fee paying school and had all the privileges. I went to a comp with 1500 kids and had no privileges at all. I still passed my A levels and went to uni. That is grit and perseverance!
F
@cking
hell. I just started a claim fur PIP. For some reason you can only start by ringing which when you’re autistic is a nightmare.
I never thought I would claim but it’s becoming increasingly clear just how affected I am.
#AuDHD
@AntifaRabbitHol
I know right.
I guess they don’t like us pointing out a flaw in a plan.
I’ve often been told I’m being negative. Nope, objective and realistic.
A thing just happened at work that I predicted.
Pattern recognition.
@KateBurkeNHS
Definitely done the keys thing. Lock my car doors as soon as I get in. Make sure I know where my car and door keys are and have them in hand approaching. Check in with friends after meeting them. So many things.
Always feels very vulnerable sharing this. Still huge stigma and misunderstanding. The substance is a red herring. Look beyond to the trauma.
If you want any support please DM me.
One day at a time. Great maxim for life.
Today is
#SuicidePreventionDay
Late discovered autistic women are 13 times more likely to die by suicide than non autistic women.
No wonder we struggle.
And yet there is very little support
#AuDHD
@AutisticCallum_
Weirdly I was talking about this in therapy today.
Partly we also don’t have as many people we get along with so we tend to work to keep those friendships.
And I have masked hugely to keep friends.
@Simon4NDorset
I am an advanced nurse practitioner for care homes. I worked right through the pandemic. The worst thing I did was go out for more than one exercise a day. You’re right. Such a sin 🤦🏼♀️
@adamfare1996
I was treated for recurrent depression for decades before I knew. The only thing that made me better was being off work and talk therapy.
The therapy worked as I process verbally. I mostly talked about tut previous week and things that had happened.
@Drsafariboob
It’s a diagnosis I considered before landing on autism and likely ADHD.
I think many women especially who get a BPD diagnosis are autistic with a good dolllop of additional trauma.
Just had my second first autism assessment. Feeling overwhelmed. You’re talking to a psychologist about quite traumatic things but it’s not a therapy session. So no reassurance you’re ok. Just left hanging
#AuDHD
Told my GP I’m in autistic burnout.
Stress and anxiety on the fit note.
Suggested counselling.
It doesn’t work for burnout and last time there was a 9 month waiting list.
They obviously weren’t at my talk
#AuDHD
I hesitate to post every single time. Still massive stigma attached to drinking too much. It is usually a symptom of trauma. No-one enjoys it I promise.
I post to try to reduce the stigma.
DM’s open if you are worried about your drinking. Or anything actually 😘
Your salary is paid in exchange for your time. Time is your actual life, chunks of your life. Put like that do you want to give part of your life away free because the government is underfunding healthcare 😳 or the emotional pressure of healthcare being a vocation 🤷🏼♀️
@SteveBarclay
All the people saying that £27k is enough for a graduate nurse please do come and train as a nurse and then let me know if you still agree.
And please do ask me questions about a typical day of mine and see what you think my value is.
Next Thursday I’m presenting to the local GPs and other staff on being an autistic woman.
I’m scared but think it’s important.
Just checking what you think I should be including. It’s only 10 ish minutes
#AuDHD