Anna @halcionandon Twitter profile

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Anna

1 year

@Mae_DayJ @ChronicLoaf_ @Aoiferocksitout @Nice_White_Lady @TiffanyAndLupus @dasoultoucha @DawnMGibson @GeecheeThreat @AlexisSMobley @caramind93 @DisabledDem @DisMoviePod @haredottir @maysoonzayid @moniquedhooghe @nolan_syreeta @taras_rhymetime @JessicaGimeno @ezerinis @NormalFreeZone @haziethompson @riotheatherrr @angmarsbane10 @champagnestalli @DisDatinChat @MikeeMort @Ntombi @PAF_Foundation @SynceNerd_Carli @JoyceTakako @tinustuff @Tinu @bibicosplays @FranckGagnon @shaboom @digitalsista @gunswordfist @HijaDe2Madre @grrlintersect @HTTOrganizers @SingsongRaptor @SophiaTheAuthor @blackstudiesbae @ChristelAdina I’m severely ill, disabled, paying for $$$ healthcare, food on meagre income & saving to escape longterm abuse to stable safety. Please help or ❤️& 🔁 Australians can to @halcionandon #MutualAidMarathon #MutualAid #CovAidRequest

Anna Halcionandon is building a better life safe from abuse

Please help me escape abuse.Pay for healthcare. Pay for help. Pay for a future.Ways to help:Click on a coffee number, or to donate a custom amount please type your donation into the blank field. Or yo

buymeacoffee.com

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Anna

@halcionandon

2 years

@curiousdatacat Nope you’re not the only one. Society isn’t working. Everyone is pretending things are normal when they aren’t- that’s unsettling in itself. What’s next is such a loaded question.

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Anna

@halcionandon

3 years

Do you ever miss yourself? The one that was healthy? I miss her. How do you grieve yourself while you're alive watching it happen, & remembering what you've lost & wondering what could have been? #NEISvoid #chronicillness #DisabilityTwitter

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Anna

@halcionandon

1 year

#SevereME is me. Alone in dark. I fear with #LongCovid this will kill me. soon. Cure please. #SevereMEDay

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Anna

@halcionandon

2 years

I can’t see many #pwme #MECFS in my TL again. Are you guys there? Last time this happened you only started showing up after you replied to my ‘where are you folks?’ Tweet. Missing lots of other people too. I hate to do this… If you can see this tweet please like/reply.

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Anna

@halcionandon

7 months

I’m a bit surprised at how many people don’t know what Rolling PEM is. #PEM #PWME #MECFS #LongCovid

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Anna

@halcionandon

1 year

#MEAwarenessday Are you aware I’ve #VerySevereME & no one gives a shit? I’ve been through 20+ years of awareness days & no one cares. The very ill are forgotten even by others with #ME . I wasn’t expecting a cure by now but was expecting treatment. Only a few years left without.

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Anna

@halcionandon

3 years

If you're on the #pwME tag, can you please like this tweet? I swear I am invisible. Maybe just uninteresting to other PwME, not sure. Could be the algorithm? Posting now for time difference. (Could be that I'm talking about problems with Twitter...)

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Anna

@halcionandon

2 years

Actually a Q: How many #chronicillness people out there never have restorative sleep? I mean ever, no matter how much sleep you get. #PWME have it in our diagnostic criteria. Who else is in sleep hell with us? #Neisvoid

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Anna

@halcionandon

2 years

I don't usually mark my birthday but this past year there were a few times when I didn't think I'd make it, so here's to me. Happy Birthday you old bag. 🍰🎂

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Anna

@halcionandon

2 years

I don't have the energy to interact with people much on Twitter & definitely not on FB. There's lots of us too sick to. Don't forget we exist. #pwME #Chronicillness #MECFS #NEISvoid

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Anna

@halcionandon

2 years

I’m trying to escape an abusive environment. This is my 3rd attempt in 8 yrs. Nobody in my home city #Melbourne Australia is listening. Can anyone out there help me? I’m very ill & doing this all is killing me but I have to get out this time. Plz RT! #NEISvoid #DisabilityTwitter

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Anna

@halcionandon

7 years

#CatPerson : When a guy who learnt all he knows from PornHub meets a girl who learnt all she knows from Twilight.

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Anna

@halcionandon

8 months

I don’t know how many people are seeing my posts. Numbers say not many & don’t get it. If you can see this can you please put a ❤️on it?

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Anna

@halcionandon

7 months

Why are posted bedrooms of #ChronicIllness folks so immaculate? Are they always like that? Mine looks like a bomb hit. Partly because if stuff is rearranged I’ll never find it again (as health declines, so does the ability to find anything). If I can’t see it, doesn’t exist.

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Anna

@halcionandon

6 years

I'm left wondering about all the very severe #pwme that had no online presence & disappeared quietly into the night, no online friends, perhaps no real life friends or family to mourn them. Let us remember them too. #MyalgicE #severeME

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Anna

@halcionandon

6 years

I'm 38 years old. Been sick for 16 years and nearly all my friends and acquaintances with ME are dead. That's not how it should be. This is what people twice my age should be saying.

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Anna

@halcionandon

2 months

Are there any influencers out there willing to promote me? This is my story and there’s so much more. #MeAwarenessHour

Australia's state and services are trapping a woman living with severe ME/CFS in domestic abuse

Woman living with severe ME/CFS in Australia trapped in a cycle of violence from domestic abusers to the punitive state & medical services.

www.thecanary.co

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Anna

@halcionandon

13 days

I really need somewhere to live. Can someone please help me? I’m being neglected and abused. I can’t do anything better than I am I just need help. Those domestic violence numbers don’t work they don’t help disabled people. I need someone to take me in. Please help.

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Anna

@halcionandon

2 years

If I don’t get proper treatments soon this is going to kill me. I need a proper doctor. Fluids. Proper meds & treatment. No docs helping. Reaching out while still can. Help. #SevereME #pwme #mecfs #AdrenalDisease #neisvoid #pots #dysautonomia #LongCovid #chronicillness

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Anna

@halcionandon

1 year

I’m eating baby food & liquids because I have no energy to chew or digest solids. Bed 24/7. How much worse do I have to get before someone will help me? Doctors, services, help! Keep asking & nobody listens! Is this really Australia? 😭 #Auspol #chronicIllness #VerySevereME

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Anna

@halcionandon

8 months

I wish I could write my own prescriptions. I’d either be a lot better or dead but at least I’d be getting somewhere. No GP will treat me. “Too complex.” #MEAwarenessHour #ME #MECFS #MedicareIsBroken #LongCovid #ChronicPain #ChronicIllness #Auspol2023

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Anna

@halcionandon

2 years

Beyond exhausted but wanted to ask people who have/had #COVID19 : Did your hair start falling out? Mine started coming out in big clumps 2 nights ago. #LongCovid #Neisvoid

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Anna

@halcionandon

7 years

I have severe ME & I was barely alive 2 years ago so lets not forget people struggling with #SevereME . #SevereMEDay #SevereMEAwarenessDay

Anna

@halcionandon

7 years

Hi to all those people out there reading tweets but too sick to tweet yourself. I know you're there and I'm glad you are. #PwME

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Anna

@halcionandon

7 years

@Corey_Feldman You keep being ignored because ppl like Matt Damon want a medal for not being an abusive male. You're fighting complicit white males, the most dangerous kind. Until they change I don't know... More of your buddies that were abused need to come forward.

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Anna

@halcionandon

8 months

NOBODY WILL HELP ME. WHAT DO DOCTORS WANT TO HEAR? WHAT ARE THE MAGIC WORDS YOU WANT TO HEAR? I’M BEING LEFT TO ROT. HELP ME. 😭 #MEAwarenessHour #PWME #MECFS #ChronicIllness #NEISVoid #Spoonie #DisabilityTwitter #MedTwitter #MedX

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Anna

@halcionandon

4 months

So I shit myself. Put on pair of disposable adult nappies I bought last time this happened- when parties &more people made sensory hell. Horrible stomach ache. Stress period & now I shit myself as waking up bc couldn’t get up fast enough. This is #SevereME #MEAwarenessHour

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Anna

@halcionandon

1 year

@SarahLerner I was supposed to be admitted to hospital for a bunch of tests & scans done in one go because I’m too incapacitated for separate trips. The doctors involved just argued with each other & used me as a go-between for six months. I was not admitted. No scans, IDK if I’m ok.

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Anna

@halcionandon

10 months

I post so I’m not forgotten which happens a lot not big account people move on & bad algorithm. 🥺 I must find help. But rolling PEM 2 years! (check history). Bed 24/7. Can’t keep this up getting worse.😞 #MECFS #PwME #ChronicIllness #DisabilityTwitter #SevereME #LongCovid

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Anna

@halcionandon

11 months

#MeAwarenessHour Need advocate to make phone calls & advocate for me. None in area. No help. No Doctor. No hope. Can’t help self. Another #BlueRose if I’m even noticed. #PWME #SevereME #MECFS #ChronicPain #LongCovid #NEISVoid #ChronicIllness #DisabilityTwitter #PwLC

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Anna

@halcionandon

2 years

I can’t end up in a place like this: I don’t think people realise what few housing options are available to the sick and disabled. If you aren’t set up for the long haul, things can go bad very quickly. And stay that way,

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Anna

@halcionandon

2 years

It took me 8 months to set up my phone and have some little ability to tweet. Yes I want a cookie. Hello 👋🏻 #Neisvoid #pwME #pwLC #chronicillness

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Anna

@halcionandon

6 months

I wonder how many people have me on mute because I’m too depressing for them to deal with. 🤔 Here are some fun emoji’s if you’re still here >🌈😆🎊🎉🥰🥳🤩

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Anna

@halcionandon

1 year

It’s my birthday 🎂 but no cake can’t move much. 😔 can tap on phone #MEAwarenessHour #pwME #MECFS #severeme #DontLetMeDie 🙏

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Anna

@halcionandon

2 months

Brain completely wrecked after #Covid infection 3. Nothing improved after 10 wks. Nose bled entire time. I can’t remember anything. It’s the worst ‘fog’ I’ve ever had. How many infections do I have left? Help me find a home. Covid brought to me here every time. #LongCovid #PWLC

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Anna

@halcionandon

9 months

Melbourne = city of 6 million people. Cannot find a single GP who will help me. #ChronicIllness #DisabilityTwitter #Spoonie #NEISVoid #PwME #MECFS #LongCovid

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Anna

@halcionandon

6 years

Know that feeling you get when you have to sleep to recharge but you're running on adrenaline so when you wake up you could be crashed harder than you have been in years instead? I was writing essays in March... How many times do we have to say goodbye to ourselves? #pwME #MECFS

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Anna

@halcionandon

1 year

Are you still here or at another platform? Where? Are you splitting time between them? @ everyone but especially #ChronicIllness #DisabilityTwitter #pwME #MECFS #MyalgicEncephalomyelitis #pwLC #LongCovid #Neisvoid Communities are so fragmented now. Exhausted trying to follow.

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Anna

@halcionandon

2 months

My father is a narcissist w psychopathic tendencies. Psychiatrist made me promise to escape because unsafe. They’re keeping me ill so I can’t. Mother was a victim first, now partner in crime. This family promised help but lied. Lost half my life. Help me be free. #MEAwarenessHour

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Anna

@halcionandon

2 years

It’s strange how people with #ChronicIllness or #Disability aren’t allowed to be multifaceted human beings. I’ve been told so many times that I don’t have the personality of a sick person. What the hell does that mean? (I know what it means.)

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Anna

@halcionandon

2 months

Are there any Australian journalists wiling to write & publish a piece on me? I’m trying to escape abuse, find an advocate, get the NDIS, etc. I‘ve tried all the orgs & the government isn’t interested either. The Canary UK has written a piece about me but I’m yet to find help.

Canary

@TheCanaryUK

3 months

A woman with severe #MEcfs in Australia is appealing for help to leave an abusive household. @h_sharland reports how appalling & increasingly life-threatening circumstances underscore a systemic failure of services. Read & please support @halcionandon :

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Anna

@halcionandon

10 months

When my great grandma sick Europe WW2 she lived middle of nowhere but could get home visit doctor. Bombs didn’t stop docs. I can’t! Australia 2023. When ask help, too sick to help. I don’t understand. Rt please nobody sees me.

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Anna

@halcionandon

7 months

@1goodtern @keetmuise I think a lot of people have an internalised “everything is fucked” & will keep going as normal until it stops. Otherwise they’d have to face the problem & do something. That leads to more problems like seeing we have no competent leaders to deal with it all. Ingnorance is bliss.

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Anna

@halcionandon

3 years

So, for people not in Australia or not reading our news... Today we were told by our media to buy paracetamol so we can manage Covid at home. All 25 million of us. We will have a million active cases soon. Hospitals, labs, health care workers aren't coping so... Panadol?

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Anna

@halcionandon

3 years

I have no one left #CloseToME If I did I wouldn't be this sick. I wouldn't have to do everything myself which is nothing now. That's my only communication of today bc no energy. Those of you w ppl who care don't realise how lucky you are. #pwME #MECFS #ChronicIllness #NEISvoid

penny #ME🕊️🕊️

@TheOldLostRoad

3 years

So many patients with #MECFS have no one left. Those who have family and friends please show the world your reality and how ME affects your life. United our voices will sound louder. Your voice is needed. Please use #CloseToME and SHARE this message.

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Anna

@halcionandon

1 year

So I’ve gone mute and can’t move except my finger tapping this out. I just keep getting worse. If you’re out there-👋🏻 👋🏻👋🏻👋🏻 I’m trapped in here. Wonder if twitter will let anyone see this🙁 #SevereMe #MECFS #LongCovid #pwlc #pwME - yes both, I am not lucky.

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Anna

@halcionandon

7 years

Hi to all those people out there reading tweets but too sick to tweet yourself. I know you're there and I'm glad you are. #PwME

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Anna

@halcionandon

3 years

@wonder_cripple All of them. Showering feels like exercising he way Arnold Schwarzenegger did when he was Conan.

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Anna

@halcionandon

7 years

So here's my blog again. Have severe ME so it took a ton of effort. Please retweet! : #pwME #mecfs #MyalgicE

What Happens When Carers Stop Caring

Update: 05.07.18 I am now looking for a carer to help during August. I am being left alone with the same abusive man described in my blog below. If you live in Melbourne and want to help, get in co…

halcionandon.wordpress.com

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Anna

@halcionandon

3 months

Why is so hard to get away from abusive people when you’re most vulnerable? Why doesn’t ‘the system protect’ us? Why don’t good people protect us? Abused people of all ages & backgrounds seem to have no options unless they’re rich. Any help I haven’t thought of? ❤️🔁💬 to ⬆️

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Anna

@halcionandon

6 months

If/when I die from this, I want the names of everyone abusive or neglectful that could have helped to have their names released. Maybe that’s too vengeful for a placid disabled person to wish but I am a human first & you had a choice. (Nobody here, IRL). #MECFS #pwME #LongCovid

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Anna

@halcionandon

1 year

#MeAwarenessHour Please help me find a #MyalgicEncephalomyelitis #MyalgicE #MECFS literate GP or 1 willing to learn in #Melbourne #Australia Refused meds especially pain meds. Have 30 days to find a GP. Desperate. Am #SevereME to #VerySevereME can’t believe this happening

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Anna

@halcionandon

2 years

Why are we living with Covid again?

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Anna

@halcionandon

2 years

Where do disabled/chronically ill people get money for personal assistants? I’ve seen a few with them but never had a chance to ask about it. I used to joke about this but some people actually have them??? I need one! #NEISvoid

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Anna

@halcionandon

1 year

@Tinu TY Tinu! I’m sick, disabled, paying $$$ healthcare & saving to escape longterm abuse & not be trapped in a disability group home, aged care (yes young ppl) or homeless. Please help or like & RT💜 Australians can to halcionandon

Anna Halcionandon is building a better life safe from abuse

Please help me escape abuse.Pay for healthcare. Pay for help. Pay for a future.Ways to help:Click on a coffee number, or to donate a custom amount please type your donation into the blank field. Or yo

buymeacoffee.com

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Anna

@halcionandon

1 year

If a person with #SevereME cries for help, does it really happen if nobody wants to hear it? 🤔 (😐) #MEAwarenessHour #pwME #MECFS

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Anna

@halcionandon

3 years

#NEISvoid #pwME I had a shower, went straight to bed and cannot move. May last a few hours or ??? Need nap. Can you relate?

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Anna

@halcionandon

2 months

More bad news & desperation for advocate & safe place to stay. I’ll keep asking for help until I‘m likely dead. Help me please help me. Nowhere safe to go help me.😭 #MEAwarenessHour #SevereME #pwME #MECFS #LongCovid #MutualAid @LongCovidAidBot My story:

Australia's state and services are trapping a woman living with severe ME/CFS in domestic abuse

Woman living with severe ME/CFS in Australia trapped in a cycle of violence from domestic abusers to the punitive state & medical services.

www.thecanary.co

Anna

@halcionandon

4 months

Help me please 🙏 I need somewhere else to live. #MECFS #pwME #ChronicIllness #DisabilityTwitter #NEISVoid #MutualAid

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Anna

@halcionandon

8 months

@1goodtern Option B Also, worsening of existing Long Covid for those who have it (speaking from experience).

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Anna

@halcionandon

8 months

#MEAwarenessHour #MyalgicEncephalomyelitis I feel like I’m on a ladder that never ends, but I can’t climb back down; I have to keep climbing. I never reach the clouds, day after day I climb. Weaker & weaker. Further from home. I got on that ladder the day I got sick with #ME

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Anna

@halcionandon

2 years

I want to live and get good medical care and maybe even escape abuse and go home one day, but trying to matter to people is beyond exhausting. 😭

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Anna

@halcionandon

7 months

I’m in rolling #PEM . Anyone who’s had this knows you need months of rest to get out. I don’t remember huge chunks of my life & it will keep getting get worse until it kills me. I joked about resting in a cabin by sea w a carer (or similar) but I don’t have a choice anymore.

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Anna

@halcionandon

1 year

How is it that #PwME in the UK (some in Germany) have organised a protest & campaign but here in Australia we are 🤷‍♀️? UK organisations have better government funding than ours but this #DontLetMEDie campaign was people power not an big org, is that right? Can someone explain?

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Anna

@halcionandon

3 months

Help me. This is me everyday not only #MEAwarenessDay . I need a safe place to stay. Where I don’t have to fight for basic needs like food from the people supposed to care for me. I have nowhere to go. Help me please. 🙏 #SevereME #May12 #pwME #MECFS #PWLC #LongCovid

Anna

@halcionandon

4 months

Help me please 🙏 I need somewhere else to live. #MECFS #pwME #ChronicIllness #DisabilityTwitter #NEISVoid #MutualAid

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Anna

@halcionandon

3 months

Here I am. All in print. Help me get to safety. #MEAwarenessMonth #pwME #SevereME #PwLC #MECFS #ChronicIllness #DisabledTwitter #NEISVoid #Abuse #Neglect #Advocacy

Canary

@TheCanaryUK

3 months

A woman with severe #MEcfs in Australia is appealing for help to leave an abusive household. @h_sharland reports how appalling & increasingly life-threatening circumstances underscore a systemic failure of services. Read & please support @halcionandon :

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Anna

@halcionandon

1 year

Being sick is so expensive. #chronicillness

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Anna

@halcionandon

6 years

On this #SevereME Awareness Day, hi to all those people reading tweets but too sick to tweet themselves & wish they could tweet or communicate at all. I've been there. I see you. Hang tight. You aren't alone. #severeMEday #pwme #MyalgicEncephalomyelitis #MyalgicE #mecfs

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Anna

@halcionandon

2 years

Is @TraceySpicer a #LongCovid sufferer too? How many of us are there in Australia? Maybe she can use her platform to help herself & us. My GP doesn’t believe in it. Won’t try any treatments for Long Covid nor #MyalgicE . Books closed for GPs so no progress. Prob for most patients.

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Anna

@halcionandon

3 years

I miss my health so much. I miss who I used to be. Who I was meant to become. Illness is like being an alternate self on a different timeline. Like a buried a person the day I got sick & I am what is left. But there was no funeral. Life went on. For everyone else. #NEISvoid

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Anna

@halcionandon

3 years

Please send energy. Doing badly. Can breathe sleep only.

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Anna

@halcionandon

3 months

@DiaryofaSickGrl I’d want them to experience it. You don’t truly know how it feels until it happens to you, but when you have no empathy like most of my family it doesn’t matter at all unless you experience it yourself. Then it’s the worst thing ever AND EVERYONE MUST KNOW Let them know.

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@halcionandon

2 years

What is it like to be ill and/or disabled and have a supportive family? It’s something I‘ve never had. Who else gets by without family support? How? #PwME #MECFS #LongCovid #ChronicIllness #DisabilityTwitter #NEISvoid

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Anna

@halcionandon

3 years

I wish I had the energy to interact with people. Have online & IRL discussions, but most times I just can't.😩 I see you though. It's even worse knowing my tweets aren't seen much/ shadow banned. Other people don't see me. Thanks Twitter. Not everything is about money. #Neisvoid

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@halcionandon

4 months

CW: Abuse Not a fun topic but… Those w #ChronicIllness #Disability : have you been abused/neglected/ treated badly by your nearest & dearest for being this way? #Neisvoid #MECFS I thought I was the only one for so long. 🥺 Trying to escape. Might help to share. Or ignore.

I have/am being abused

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Anna

@halcionandon

1 year

I pushed way too hard again. Bad habits. I do seriously think if I had a carer and a small quiet cabin by the sea to ‘radically rest’ in for a few months I’d improve a ton. A good doctor nearby would be a bonus.

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@halcionandon

1 year

Nobody understands #SevereME or worse, banging my head against the wall with little energy I have. I can’t get help & vultures everywhere trying to take advantage. Abuse & neglect is cherry on top. By authorities, by family by people I supposed to trust. I am so exhausted. 😭

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Anna

@halcionandon

2 years

Barely able to type. Please help me get away before it’s too late. I don’t even have good doctors that know how to treat me or energy to set up up anything to escape. Check profile for details. Cognitive functions bad. Don’t know how to tag this. Help. #NEISvoid

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Anna

@halcionandon

2 years

#MEAwarenessHour #pwME #MECFS #Chronicillness Please retweet: I have #SevereMe & need help escaping an #abusive household. Food, transport, housing, carer, etc. If you can please Buy Me A Coffee. (GoFundMe w Coffees.) Appreciate any help. Thanks🙏

Anna Halcionandon is building a better life safe from abuse

Please help me escape abuse.Pay for healthcare. Pay for help. Pay for a future.Ways to help:Click on a coffee number, or to donate a custom amount please type your donation into the blank field. Or yo

buymeacoffee.com

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@halcionandon

1 year

Does anyone feel like we’re living in overtime? Like 2020.4? Watching a ball being kicked around in a soccer match but no goals being kicked. Everyone so very tired. But we have no idea what happens when the game ends.

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Anna

@halcionandon

5 months

Last year on my birthday I fell down and cried and cried and I couldn’t get up while my abusers ate dinner and ignored me. I texted my neighbour “help” over and over again until she came over and helped me. This year she isn’t there anymore. Who will I text this year?

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Anna

@halcionandon

10 months

@JanetDafoe help me plz! ALL say i too sick too help. I Getting worse. Don’t want to be blue rose want live.

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Anna

@halcionandon

14 days

Is there a right way to ask for help? I don’t seem to know how to do it. 🥺

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Anna

@halcionandon

4 months

Covid again brought to me by family. Not again. 3rd time. Already have #LongCovid . Rolling PEM. Now this on top and not sure when Easter abuse begins. Give me strength and get me out of here. #MeAwarenessHour

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Anna

@halcionandon

7 months

I desperately need an advocate. If you are able to help, let me know. Melbourne best but anywhere in Australia is ok you can dial into any meetings. Please ❤️💬🔁

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Anna

@halcionandon

2 years

When you’re about to crash do you sometimes forget everything you’re supposed to remember but remember random old stuff? #pwME #MECFS #PEM #Neisvoid

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Anna

@halcionandon

11 months

#MEAwarenessHour Help find #doctor willing to prescribe pain medication in #Melbourne #Australia . Have 16 days supply left! Asked so many and nobody wants a complex patient. Help. 😫 #MECFS #DisabilityTwitter #ChronicIllness #SevereME #PwME #LongCovid

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Anna

@halcionandon

2 years

Any disability advocates out there? I’m well overdue for some help. I have no energy left. I had to crawl into the kitchen to heat a 5 year old frozen meal. Melbourne, Australia (RT-Might unearth someone) #DisabilityTwitter #chronicillness #MECFS #advocacy #NEISvoid

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Anna

@halcionandon

1 year

For #LongCovidAwaneressDay I was gaslight and abused by GP who threatened take medication away unless do as told and take medication he wants that makes me sick. Still shaking in bed. Scared found my profile.

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Anna

@halcionandon

3 years

#NEISvoid How do you ask for help? Is there a 'proper' way to make doctors listen in particular? I find they're suspicious no matter how I act. Too happy & I'm coping so it's not bad. If crying I must be hysterical. But don't be average. Trying to get an urgent appt. Tips?

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Anna

@halcionandon

4 months

It feels like I’ve lost a month of my life in a coma but I’ve spent it in bed in my head trying to escape sensory overload. I keep expecting my birthday & Easter to happen soon but then realise it already happened without me. I need to get out of here please help please help

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Anna

@halcionandon

8 months

@gemcarey Crowdfunding needs. Scrounging for scraps. Homeless. Dead. There’s me in Aus. On the cusp of Very severe. I do almost everything myself in bad environment & can’t sustain it. Services meant to help don’t. I’m struggling to get better so don’t end up dead. Ppl w help don’t get it

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Anna

@halcionandon

6 months

This is exactly the problem: there’s nowhere to go. The abuse orgs don’t help disabled people. Other people need to help us bc the government won’t. I REPEAT: OTHER PEOPLE WITH A HEART NEED TO HELP US. NOBODY ELSE WILL. WE CAN’T HELP OURSELVES. #MECFS #PwME #LongCovid #SevereME

Amy

@alexandrite113

6 months

What happens to the severe/very severe people whose parents are abusive and have nowhere to go? Why isn’t there some type of care home that understands these illnesses? I can’t think of anywhere these people can go that would not make them worse. They are at the mercy of

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Anna

@halcionandon

9 months

What is it like to have a family that cares about you?

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Anna

@halcionandon

1 year

#SevereME #VerySevereME #MyalgicEncephalomyelitis Is being too sick to participate in #meawarenesshour & 2 hours to compose this tweet. The sickest are screaming into the void.

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Anna

@halcionandon

1 year

Health is for the rich & connected. I’ll probably make it another 2-3 years at most. I never thought I’d get this bad - mostly because I’m in the wrong location with the wrong people without the money or care. A wasted life. Australia 2023. #DontLetMeDie #VerySevereME

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Anna

@halcionandon

1 year

I hope I get out of this. I just want to live and get better. People who abuse the sick and disabled are pieces of shit. My brain tells me otherwise a lot. I must remind myself. People who ignore it aren’t much better.

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Anna

@halcionandon

2 years

👆Retweet no matter where you live. Someone who can help might see it.

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Anna

@halcionandon

1 year

Help prevent me going to an abusive disability group home & escape longterm ongoing abuse: Australians can to username: @halcionandon no fees. Please like or retweet, help appreciated. 🙏💜 #severeME #PwME #LongCovid #MutualAid

Anna Halcionandon is building a better life safe from abuse

Please help me escape abuse.Pay for healthcare. Pay for help. Pay for a future.Ways to help:Click on a coffee number, or to donate a custom amount please type your donation into the blank field. Or yo

buymeacoffee.com

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Anna

@halcionandon

1 year

So many #PwME have died this year already. This is the same hospital Maeve died in from malnutrition. It’s entirely preventable. It could be you or me one day. Please sign this petition. #VerySevereME #MECFS

Katy B

@KatyBruce108

1 year

'Sign this petition to help try to save Alice Barrett's life. She's 25 & has #VerySevereME . She's currently in Royal Devon & Exeter NHS Foundation Trust hospital. They are refusing to adapt their NG tube feeding policy for her requirements' #MECFS #pwME

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Anna

@halcionandon

2 years

International crowdfunder: Anyone who wants to help me with costs (some said you do) Buy Me A Coffee. 🙂 (It’s the same as GoFundMe except with Coffees.) Retweet please! #MutualAid #DisabilityCrowdfund #chronicillness #NEISvoid

Anna Halcionandon is building a better life safe from abuse

Please help me escape abuse.Pay for healthcare. Pay for help. Pay for a future.Ways to help:Click on a coffee number, or to donate a custom amount please type your donation into the blank field. Or yo

buymeacoffee.com

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