parasocialost @DisabledDem Twitter profile | Pikagi

Pikagi

parasocialost

@DisabledDem

1,654

Followers

1,083

Following

1,098

Media

40,263

Statuses

Personal acct. Politics, disability, chronic illness, cats. They / she. Disabled. Sick. Tired. Swears a lot and masks “aggressively”. Asks sincere questions.

The wayside

https://t.co/hrFVLLNp8B

Joined September 2019

Don't wanna be here? Send us removal request.

Pinned Tweet

@DisabledDem

parasocialost

15 days

Please read this 🧵. Tinu's someone who's created care networks for folks, helped so many cf. Literally kept ppl alive. And people can't even wear a mask while she gets chemo for cancer that acute COVID sparked. Fight for her please. #ForTinu

@Tinu

Tinu Abayomi-Paul aka Empress of Twerk. NO DMs

16 days

I am going through a bad time mentally and physically. Both the hospital that is supposed to be making me better And the insurance company that is supposed to cover my care is treating me like my life is worthless. After being treated like this for two and a half years it is a

4

61

109

0

40

37

Last Seen Profiles

@turbanlisever69

@mattengland3011

@mattponatoski

@3DG3ICSPim1WZQq

@RogerWilsher

@tyler__carr

@isesakiyurine

@satch0037

@vagina_care

@ALLIN_YUDAI

@postgresnx

@JS__98x

@RahulsainiINC1

@answeristolove

@Deem_556

@mungayoungs

@matiasomarperez

@JayJumjim

@naslouki

@LaurenMont42182

@MsvoxxieAD

@matiabidnoor

@takoyakimu

@DrTome_92

@Open_access

@alfonso94250

@bokeplokalmalam

@firsanova2

@masgung1973

@kongiwag

@dylandte

@marquito1611

@max75445854

@AlmryAlyamy

@DuoMustache

@AZTK_acc

@DisabledDem

parasocialost

1 month

So I got Covid, from a medical appointment. At a cancer center where patients and their companions were packed, mostly maskless, into poorly ventilated waiting areas. How many people there with cancers or treatment that wreck immune systems got covid that day?

9

561

2K

@DisabledDem

parasocialost

1 month

I currently have my 1st covid infection. I needed care. Instead, I got COVID… at a cancer hospital. This isn’t hierarchy of illness. This is: WE KNOW PEOPLE GETTING CHEMO ARE HIGH RISK FOR GETTING VERY SICK OR DYING from infection & we aren’t even masking in these spaces.

@Tinu

Tinu Abayomi-Paul aka Empress of Twerk. NO DMs

1 month

Meanwhile I come home sick from chemo EVERY month. My system has deteriorated so much I am now going to chemo on Monday STILL SICK from the last time I had chemo. It is literally, actively killing me that people don’t mask. No one cares. 😭😭 #WearAMask

7

330

749

19

615

2K

@DisabledDem

parasocialost

1 month

You can literally hear people screaming at others in the audience. This attorney tried to point it out, to say that there are people in the audience harassing masked members of the community there, and his mic was cut and he was threatened with police. #NoNYMaskBan

@COVIDAdvocacyNY

COVID Advocacy NY

@COVIDAdvocacyNY

1 month

Staff attorney from Disability Rights New York speaking out against the mask ban bill at the Nassau County Legislature meeting! #NoNYMaskBan

0

50

245

2

614

1K

@DisabledDem

parasocialost

1 year

US folks: If a doctor terminates your care because you ask for an accommodation, it’s potentially patient abandonment. Patient abandonment is reportable. I understand if you don’t want to go through the trouble, but if you’re up for it, you can report them.

1

291

1K

@DisabledDem

parasocialost

1 year

[thread CW: child & patient abuse, mention CSA] A Boston hospital just sent out a new "code of conduct" message thru their patient portal to tell me all about the zero tolerance tone policing policy. Because patients are "being more combative". Let's consider that. 1/10

22

282

945

@DisabledDem

parasocialost

1 year

@SeeMiaRoll @Marriott Marriott, after you address with Mia the problems that your illegal policy caused for Mia, how about you let the rest of us know what you’re doing to ensure this never happens again? I suggest starting with dropping your new policy of discriminating against #disabled people.

2

30

799

@DisabledDem

parasocialost

1 year

Are patients becoming more combative? Or when patients get caught on the jagged edges of our shattered healthcare system, when patients are hurt by this violent to all system, is it now a dischargeable offense to do anything other than sit there silently while being hurt? 2/10

2

89

769

@DisabledDem

parasocialost

1 year

5/10 I realize most healthcare professionals say they practice trauma informed care but they don't actually. It's aspirational. So I'm not surprised many fall short of real trauma-informed care, which is why I'll sometimes actually SAY something to cue them into trauma space.

2

65

728

@DisabledDem

parasocialost

1 year

[CSA mention] 4/10 I recently, calmly told a nurse (before she took my blood pressure at an appointment where I needed a pelvic exam) that I had PTSD as a survivor of CSA. This might affect my BP. Her response: "If you get combative, I'll call security." She said it twice.

16

92

726

@DisabledDem

parasocialost

1 year

6/10. It doesn't work great, but it means if I get "weird" there's at least a chance someone won't take it as a personal offense. Now? There is no chance. Now, just disclosing PTSD is treated as a threat of violence. Now, you better be good. Better not tell. Better be quiet.

3

49

684

@DisabledDem

parasocialost

1 year

9/10. [medical neglect, abuse] #Disabled people get left without assistance to reposition, toilet, eat. Even in acute care. What is a more offensive offense? Leaving a human without even basic care; or that human expressing anger & fear when they're left without even basic care?

2

66

650

@DisabledDem

parasocialost

3 years

@sickgirlmeg “It’s been hard for everyone” says a presumed-healthy person who’s been working ftom home but going out to bars & restaurants, weddings, vacations, concerts, amusement parks…

3

27

648

@DisabledDem

parasocialost

1 year

7/10 In 2012, I had unexpected surgery. I woke screaming, swinging, trying to pull out lines, run away. I was terrified & delirious. I joked sheepishly later that maybe just my amygdala woke up. Staff said: it happens, you can't control it, it's ok. Now? Guess I'd be punished

1

39

627

@DisabledDem

parasocialost

1 year

10/10 [child & patient abuse] I fear that to hospital admin & staff, it's the latter. I worry this hospital admins see that their broken system is chewing us up & rather than remedying it, they're effectively saying: "Shut up or we'll give you something to cry about".

6

55

608

@DisabledDem

parasocialost

1 year

8/10. One time I passed out hard & came around in the ambulance as someone was putting an O2 mask on my face. Semi-conscious, I didn't know where I was. I fought b/c I truly thought someone was trying to suffocate me. My care wasn't terminated back then. But now? It would be.

2

32

572

@DisabledDem

parasocialost

1 year

[child abuse] 3/10 As a survivor of long-term child abuse, my vigilance is hyper. A medical analogy: I don't have super specificity, but do have high sensitivity to early & slight signs of toxic, abusive, & violent systems & people. I want this to be a false positive, but...

1

26

541

@DisabledDem

parasocialost

3 years

@jason_tebbe @prof_goldberg “Please stop,” said my 1st year graduate semantics instructor as I stood in her doorway nervously kicking at a loose floor tile. “Oh, I’m sorry. It’s crumbling,” I said. “Yes. It is. And it’s asbestos,” she replied.

1

11

466

@DisabledDem

parasocialost

2 months

@Imani_Barbarin Damn. Yeah. When I say people can’t afford to catch covid, this is what I’m talking about. It was already too easy to fall through the cracks, now the cracks are chasms.

0

60

451

@DisabledDem

parasocialost

1 year

“Among the 181 who were sickened at the CDC conference, the median age was 38, nearly all were younger than 65 and two-thirds were women, Nordlund said. No severe illnesses were reported.” Yeah. Follow up in 6 months & see how many have long covid. How many lose their jobs.

@TRyanGregory

T. Ryan Gregory

1 year

Here's a link in case of paywall. Remember, this was shrugged off when first reported. Now it comes out that 181 people, 1 in 10 attendees, were infected. 70% were unmasked.

40

258

741

12

117

375

@DisabledDem

parasocialost

1 month

I can’t take paxlovid without stopping a medication that’s stopping me from having pulmonary emboli. I already need help to bathe, prepare food, stay hydrated. The person who does that is also sick. Because they were with me at the medical appointment. Three years ago,

1

32

342

@DisabledDem

parasocialost

2 years

Speechless at how neatly she summed that up.

@Imani_Barbarin

@[email protected]

@Imani_Barbarin

2 years

If you need to explain wage compensation to Boomers, I got ya!

82

3K

13K

3

53

311

@DisabledDem

parasocialost

1 month

… their father was dying of covid. It wasn’t fast. Like people may think. It wasn’t 1 trip to the hospital. It was days in & out, us up late at night going over meds & care plans with him. He died of a brain bleed after weeks of acute infection. Now we have this infection

0

37

292

@DisabledDem

parasocialost

4 years

@RachelCDailey I *FEEL* the gut-wrenching frustration. I left my graduate program over their refusal to consider such accommodations & I lost my last job in part b/c my supervisor had issues with me working from home (HR granted the accommodation, boss made sure it was a shitshow).

0

14

279

@DisabledDem

parasocialost

2 months

@JSTOR @UCBerkeley I’m going to assume your blog post was AI written, so no. For so many reasons. No. This was a terrible idea.

1

3

281

@DisabledDem

parasocialost

4 years

@redrum_memes @RandiFoorDalton Holy helling hell. Thank you for filing that grievance, because putting her horrible behavior on record is important. I'm so sorry she happened to you.

0

0

259

@DisabledDem

parasocialost

2 months

Y’all masking and alt texting. 💕🌼

@babs_zone

itsbabs.bsky.social ✨

2 months

y’all masking ?

Tweet media one

77

242

3K

2

34

251

@DisabledDem

parasocialost

5 years

I can't believe I have to say it: Stop patting disabled people. Stop randomly patting us. Just. Stop.

4

41

223

@DisabledDem

parasocialost

3 years

@fearnley_k Thank you for sharing your experiences. Since early on in the pandemic, I've worried at terms "mild", "moderate", & "severe" since how they're used medically vs. how their understood in general are different. Long Covid adds a whole other layer to my concerns.

1

20

223

@DisabledDem

parasocialost

5 months

[death, abuse by HCWs] My friend @kynurse4change died this week. Emily was an advocate for patient education & empowerment. She died in a crumbling healthcare system that's little more than a trauma machine. She was killed by healthcare that ranged from careless to cruel. 1/?

@Dysautonomia

Dysautonomia Intl.

2 years

#MedTwitter please read this new study on “clinician-associated traumatization” in #EDS . We need you to stop giving patients PTSD just because you don’t understand their illness. Same study could be done in #POTS #autoimmunity #LongCOVID #fibro etc. 1/2

16

180

437

6

80

221

@DisabledDem

parasocialost

1 year

a disability rights advocate I look up to recently said using the term "eugenics", while it may be accurate, can be unhelpful because it can come across as unhinged. I don't think there are polite words to use for this. I can't find them & wouldn't use them if i could.

16

46

219

@DisabledDem

parasocialost

2 years

@coachjoetori @Tinu @lyft Holy hell @lyft what the actual fck? Minimally, a refund & take this seriously.

1

14

215

@DisabledDem

parasocialost

1 month

I had a friend who was born during an influenza outbreak in the 70s. In all the baby pictures of my friend, every adult around him wore masks & gowns, careful to keep this child safe. We used to do better. We can do better. 💗😷💗

@ardenepstein

arden 🍎🎶✨

1 month

This is why I’m scared my baby will get Covid when they’re barely hours old, especially being born in January most likely 😭

3

3

15

0

37

186

@DisabledDem

parasocialost

8 months

On “choosing” to work while sick. If you’re sick but your boss thinks working while sick is “normal”, even noble, guess what? You HAVE to work sick. Or get fired. Or disciplined out of your job. Actually bullied. Made sicker. Hurt. So fuck elevating this shit. #PodSaveJon

@jonfavs

Jon Favreau

8 months

Just to follow up: the brand of person I was referring to is someone who tells people to fuck off if they choose to work from home while sick. I don’t find that persuasive, I find it unhinged. Long Covid is real, tragic, and deserves more attention (I had a post-Covid condition

489

69

2K

1

39

183

@DisabledDem

parasocialost

3 months

[death, crumbling healthcare] Last week, I was diagnosed with a condition that has a mortality rate of 14% at 1 month, 33% at 3 months. The healthcare system my insurance requires me to use can’t get me in to see the specialist who may be able to treat it for… 5 months.

11

33

181

@DisabledDem

parasocialost

3 years

@AnaMardoll A library near me has that. I merrily hang my tag and park in the "attaboy" space since it's closer & more accessible than the disability parking spaces. That's a hill I am 100% willing to die on.

0

1

174

@DisabledDem

parasocialost

3 years

@CDCDirector How about if you’re vaccinated but immunocompromised? Or severly ill? Or can’t get vaccinated bc you’re getting chemo? How about homebound still waiting for an appointment? Do you even know we exist?

6

20

167

@DisabledDem

parasocialost

27 days

Disclaimers: I’m white. I only follow olympics via spill-over into social media. I look up news if I see something I want to know more about. 1/3 Seems like there’s more specific focus on & outrage at Noah Lyles (for competing while COVID+ & ill) than for not Black athletes.

4

30

170

@DisabledDem

parasocialost

9 days

@plagueprose oh my god that doctor is being so awful. She is inappropriate, unprofessional. Also, I feel like I want to tell you, you did NOTHING wrong. Moreover, your responses to her were amazing. You we clear, and advocated for yourself. You were appropriately upset by her threats.

0

5

170

@DisabledDem

parasocialost

3 years

@bennessb Misattribution. Many of my illness symptoms & disabilities are perceivable in a variety of modes. But ableds & presumed healthy ppl misattribute what they witness. E.g. flat affect & low energy = angry, rude, lazy, disinterested (rather than pain, nausea, fatigue).

1

15

148

@DisabledDem

parasocialost

2 years

@theBrianaMills I was raised in an abusive home. There are misconceptions that this means every day was violent. It wasn’t. In between, was risk. In between, you were expected to act “normal”. I’m destroyed by the similarities, the violence of the command to “be normal while we hurt you”.

6

19

150

@DisabledDem

parasocialost

1 year

Ok, I am muting this now. It is heartbreaking to see how much this resonates for so many. I hope we can find ways to connect & support one another, maybe fight back together against policing tone in healthcare contexts. I will also note: be kind, content warn.

2

6

144

@DisabledDem

parasocialost

2 years

"Unless you have the luxury of staying home all year, you will have to get creative too." I'd like to clarify, for shyte-goblins like this who apparently need clarification - staying home all year is not a luxury. Being excluded from every part of society is not a luxury. 2/3

1

32

144

@DisabledDem

parasocialost

1 year

[forced exposure] @MassGenBrigham says patients can’t ask staff to wear a mask. They are a huge healthcare system in Massachusetts. They are effectively locking people out of safe healthcare.

Tweet media one

10

68

140

@DisabledDem

parasocialost

3 months

A nurse came into my room the last day I was hospitalized. She looked around, grabbed a mask, & said as she put it on “everyone else is wearing one, so I figured it’s for a good reason.” 🙌 This. It’s a critical mass social effect. Many WILL wear PPE when they see others are.

1

31

141

@DisabledDem

parasocialost

1 year

For those who aren’t familiar with the bullshit of job searching while disabled, I present: the higher ed disability advisor job description which includes the following (incomplete) information that’s there simply to justify hurting disabled employees.

Tweet media one

5

44

139

@DisabledDem

parasocialost

4 years

@kendallybrown I just watched a video of someone who was identified as her during the lockdown, smirking as she refused to put on a paper mask. If I live long enough, I’m going to do what I can to support the dem who runs against and defeats her.

9

7

121

@DisabledDem

parasocialost

4 months

@Olas_Truth Urology nurse stood behind me & tried to pull my shirt off (without asking if I needed her “help” with it) so she could get my arm bare to check my blood pressure. I gently & slightly move away, saying “I have PTSD…” Nurse: “If you get combative, I’ll have to call security.”

4

6

121

@DisabledDem

parasocialost

2 years

wow. just... wow. so if you're an immunocompromised person with a job or who goes to school, what the fuck are you supposed to do now that there are little to no more supports for time off / remote access? The CDC did a great job erasing us & obscuring the realities of COVID.

@ZenMeoww

zen or brooke (she/her)

2 years

Wait what the actual fuck Am I reading that statement from the CDC correctly??

Tweet media one

5

21

65

4

52

117

@DisabledDem

parasocialost

1 year

[CW: antisemitism, pretty bad] BUT @Imani_Barbarin 's analysis - as always - is amazing. These are lessons we need to know, practice, and pass along, iteratively.

@Imani_Barbarin

@[email protected]

@Imani_Barbarin

1 year

Thanks to @chescaleigh for bringing this opportunity to my timeline… 😈 Part 1 | Part 2

21

379

2K

0

37

121

@DisabledDem

parasocialost

4 years

@JoannaNoBanana That disability is not a binary, static category. That self-compassion isn’t selfishness, laziness, or giving up. That tick checks are very important. That mobility aids preserve /restore independence. That it wasn’t “just growing pains”.

1

2

117

@DisabledDem

parasocialost

4 months

CW: police violence, eugenics. Please, please… call out police removing people’s PPE. But please recognize & speak about this with the awareness that it isn’t new. Police doing this is another form of violence from a set of people well known for being violent.

1

55

120

@DisabledDem

parasocialost

4 years

Yes. Hire #disabled commentators, advocates, & journalists. And campaigns & party committees, hire & elevate disabled staff who work within the disability community. #CripTheVote

@SFdirewolf

Alice Wong 王美華

4 years

Thx @jaketapper for mentioning #CripTheVote , an online community created by @GreggBeratan @AndrewPulrang & me! @CNN , hire disabled commentators, advocates & journalists for your shows! 😊 Captioned 📺 h/t @maria_m_town @TaryninDC #DisabilityCoalition

12

124

436

0

29

116

@DisabledDem

parasocialost

8 months

@KTLA "Health officials still recommend that people who test positive for COVID-19 wear a mask, avoid contact with those who have a higher risk of catching severe COVID-19..." How do health officials suggest people know who around them is higher risk of catching severe COVID-19?

4

10

116

@DisabledDem

parasocialost

8 days

I’m old enough to remember when clinical staff smoked in U.S. hospitals. Ashtrays on tables in hospital cafeterias. Nicotine is addictive. It was hard to change their behavior but they did. For the HCWs whining about wearing masks now, grow the fuck up & put on a mask.

0

36

118

@DisabledDem

parasocialost

2 years

Is there some kind of rule that says doctors’ offices must have the heaviest, hardest to open doors on patient bathrooms? Because every pulled muscle in my neck would like to know.

6

5

116

@DisabledDem

parasocialost

2 years

@SeeMiaRoll It doesn’t. It makes no sense. There is no explanation for why, if they’re requiring a new mask they are sure of, that they can’t offer a GOOD, effective mask. Forcing a swap to a gappy surgical mask is a sign of not actually caring to prioritize our health & safety.

1

1

110

@DisabledDem

parasocialost

5 years

@JulianCastro @ewarren @TheDemocrats (I'm nearly done.) @ewarren engaged directly & widely with the disability community, earlier than other candidates (of those who have bothered). She's got plans, & those plans have plans. I read them & I feel like there's a way forward. She's who I'm supporting. 8/8 #CripTheVote

2

33

110

@DisabledDem

parasocialost

1 year

Texas gave @Tinu COVID & Long COVID. COVID activated her cancer (CLL). She's been fighting 1.5 years for care, but at $13K a month in TX (a state that never enacted the Affordable Care Act), this life-saving care is out of reach. Help save her life. #CrisisCrowdfund #ForTinu

@Mae_DayJ

👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥

1 year

Please support my GoFundMe campaign to help @Tinu reach affordable Cancer Treatment before its too late: #GoFundMe #CrisisCrowdfund #housingcrowdfund #ForTinu #DisCo #neisvoid

Tweet media one

18

268

182

0

158

109

@DisabledDem

parasocialost

3 years

@bennessb “So what makes you think you have a radial artery occlusion?” the smarmy fellow asked smarmily as I sat in my hospital bed after I had been admitted the night before thru the ER, where they did a vascular ultrasound & found evidence of a significant radial artery occlusion.

1

8

111

@DisabledDem

parasocialost

1 year

@chronicallybeee Un-damned-real.

1

0

112

@DisabledDem

parasocialost

2 months

I am begging recently disabled folks to learn about disability / disabled history. Follow disabled elders (who may not be what you consider old). Uplift community. & if you’re white (I am) understand that even in disablement, we still have a lot of (relative) privilege.

0

60

107

@DisabledDem

parasocialost

8 months

If Jon were up on crip / disability culture, he’d know we’ve been talking about the problem of prominent people publicly promoting the “push through it” paradigm. (I’m gonna let that alliteration stay as a loving tribute to my total damn hingelessness). #PodSaveJon

@jonfavs

Jon Favreau

8 months

Just to follow up: the brand of person I was referring to is someone who tells people to fuck off if they choose to work from home while sick. I don’t find that persuasive, I find it unhinged. Long Covid is real, tragic, and deserves more attention (I had a post-Covid condition

489

69

2K

2

17

108

@DisabledDem

parasocialost

12 days

wearing a mask is not an accommodation. wearing a mask is access, for you, for me, for others we don't know, for others we know but don't know their health status, their financial status, what they are willing to take on or what they can afford. wearing a mask is access.

1

43

107

@DisabledDem

parasocialost

2 years

@TheWharfDC @PendryHotels Now open, for some. Not for ppl who are #HighRiskCovid19 , though, huh?

Tweet media one

8

12

103

@DisabledDem

parasocialost

2 years

Trading risk for risk, experiencing coerced exposure, knowing you cannot afford to catch COVID or can't afford to catch it again.... that's not a fuhking luxury. Framing it as such is a shyte-take. It's left-appealing doublespeak in service of capitalist eugenics. 3/3

1

19

103

@DisabledDem

parasocialost

2 years

@JolentaG I’m imagining describing everything at this level of drama. “It’s going to rain so I guess I’ll have to COMPLETELY CHANGE MY LIFE and bring an umbrella.”

5

7

102

@DisabledDem

parasocialost

5 years

I had favored @JulianCastro as a candidate. I was hoping that I wouldn't have to choose between Warren and Sanders this early on, but a few things happened. A thread. I'll add #CripTheVote here too, but it's not implying any endorsement from the larger community. 1/

9

38

98

@DisabledDem

parasocialost

5 months

3/? When she was alive, fighting for hospital & home care, when she was fighting for her life, she told me to TELL HER STORY if they killed her. So I'm telling you what I know. I know that Emily was traumatized & killed by a healthcare system that's collapsing into eugenics.

2

17

98

@DisabledDem

parasocialost

7 months

Hi yt comrades. Read. Learn. Share. And then go compensate @FaatiTheStreet for them having to take time & energy to bring this history lesson to you. You will find their 💵🔗 here, copied & pasted from their 🧵:

Tweet card media

FaatiTheStreet | Twitter, TikTok | Linktree

I’m Faati, Queer Afroindigenous Disabled Activist, Writer, Media-Critic -They

@FaatiTheStreet

Mis Leading

@FaatiTheStreet

7 months

The Black Panther Party Famously was known for working in solidarity with disabled activists by helping to feed the disabled activists while they protested in the 504 Sit-In. Let’s be really real right now, nobody was calling them ableist. They were calling them ‘Ally.’

Tweet media one

3

127

498

1

72

95

@DisabledDem

parasocialost

2 years

@Sblahov War on pain patients. It’s vicious. It’s immoral. I’m so sorry your father is being mistreated by his insurance company.

1

6

92

@DisabledDem

parasocialost

6 months

The care that @Tinu needs is expensive. Yes with insurance, yes with every option looked into & used. This is healthcare in the US. We need to support Tinu while she works to get life-saving care here. Now. Please. #ForTinu Venmo: TinuWrites

Tweet card media

Support Tinu Abayomi-Paul on Ko-fi! ❤️. ko-fi.com/tinuwrites

Thanks for supporting Tinu & the Everywhere Accessible foundation.

@Tinu

Tinu Abayomi-Paul aka Empress of Twerk. NO DMs

6 months

Another doctors visit. Scans tomorrow, insurance should ? Cover it? Due to the status of my health which the ultrasound & ekg I had to find money for told them. So I’ll be doing some automated posts today & possibly tomorrow. Thank you for your help.

0

44

68

1

115

95

@DisabledDem

parasocialost

5 months

[death, grief, healthcare provider induced trauma] 4/4 I'm gutted. I miss my friend. I know what Emily experienced is not unique. Trauma, abuse, neglect, gaslighting, actual assault, criminalization. I know has happened, is happening to many. What are we going to do about it?

1

16

95

@DisabledDem

parasocialost

5 months

2/? She was abused, both physically and emotionally, by healthcare workers. Were there still some good ones in there? Yes. They are getting scarcer. And the overall approach to complex chronically ill patients has accelerated into one informed by eugenics. My friend was killed.

1

15

96

@DisabledDem

parasocialost

5 years

centrist Dems & others who accept a infantilizing perspective of disabled people will clutch their pearls at the call out, so let me add: Biden is by no means the only politician who pats us like we're someone's pet bunny.

2

15

89

@DisabledDem

parasocialost

4 months

@maskbloc614 @RiversideHosp This must have been terrifying for the patient and their advocate. I will call, but want to confirm the person who was denied care (& the person assaulted by hospital staff) consent to this action first. If there’s anything else they need for support, please let us know.

1

2

94

@DisabledDem

parasocialost

1 year

@chronicallybeee The anti-mask staff just gut me.

0

2

94

@DisabledDem

parasocialost

3 years

@KatAMacfarlane Tou probably lnow this but I’m saying it for others seeing this thread. The school could have granted a temporary accommodation while you got documentation. They also don’t need to force u to get new documentation every year for chronic conditions. They CHOSE to make this hard.

3

1

94

@DisabledDem

parasocialost

8 months

@cyreejarelle Claim your disabled / disability identity before others (non-disabled) do it for you. Their version will not respect or possibly even acknowledge your autonomy.

0

8

94

@DisabledDem

parasocialost

1 year

Not legal advice. I’m not a lawyer. But as a peer patient, I will try to find some resources to add tomorrow when I can see well enough to dig through all the info that’s geared towards doctors rather than patients.

1

5

88

@DisabledDem

parasocialost

2 months

@DisabledDoctor Thank you to your spouse for fighting for this, for at least trying. It's stunning how committed so many people are to this "casual" eugenics of in-person only for events like this.

1

7

91

@DisabledDem

parasocialost

2 years

[CW: domestic violence, child abuse] Help 4 @WokeLiving This mom had to travel out of state to save her children from their abusive father. Temp housing + food, legal, med, on razor's edge budget is HARD as hell. P: paypalme/FightingForThem V: FightingForThem C: $FightingForThem

4

125

86

@DisabledDem

parasocialost

1 year

I've never had viral tweets before. Systems to help ppl aren't there, are inaccessible, or are violent. Community care is needed until we can change it. Here's a good #MutualAid thread. Click thru. Scroll. Make doe-nations or share. Thank u. ❤️

@Tinu

Tinu Abayomi-Paul aka Empress of Twerk. NO DMs

1 year

Time for our #MutualAidThread . If you can see this? RT/QT! If you can afford it? Donate! If you're in need? Tell us how to help in 2 tweets or less! For an extra boost, come to our meeting at 7:30 pm CT about the future of #MutualAid . Link and rules follow.

92

257

187

3

21

88

@DisabledDem

parasocialost

6 months

@ashishkjha hey how's your friend who had a transplant doing? the one you used as a rhetorical device in the opinion piece the Boston Globe to published for you. Since you used him, let's hear about how many infections he's had and how he's doing. Other high risk people want to know.

0

5

89

@DisabledDem

parasocialost

1 month

@brain__frog I would let out the shriek of utter disabled rage I feel at the medical ableism but the neighbors would be so scared.

0

1

90

@DisabledDem

parasocialost

1 year

Back in early '22, @Tinu caught COVID. She nearly died from the resulting pneumonia. While recovering: her #cancer came out of remission + she developed #LongCovid . She needs support for care. Help out.

@Tinu

Tinu Abayomi-Paul aka Empress of Twerk. NO DMs

1 year

I’m too sick to do any of this right now. @BeingCharisBlog called me in about it today. @Mae_DayJ did too recently. I’m just dying faster trying to save myself & the world as I decline. I have to go on rest NOW. So I am. #MutualAidRequest

53

1K

1K

1

107

88

@DisabledDem

parasocialost

2 years

1/3 I saw an ay-whole art prof talking about how now that his school dropped mask requirements on campus, they can have "real" classes. When someone pointed out his comments were shitty (my words) to people who can't afford the risk of (repeated) infection, the ay-whole said:

1

15

86

@DisabledDem

parasocialost

3 years

@BeingCharisBlog I get into this a few times a year whenever “pedestrian friendly” planning ends up meaning“no nearby place to park / be dropped off”.

1

1

86

@DisabledDem

parasocialost

2 years

Someday, I'll write about how a non-negligible part of "healthcare privilege" is the BELIEF you'll get the care you need when you need it. Sometimes the belief is true. Sometimes it isn't. I hypothesize it's a strong independent predictor of COVID risk behavior & attitudes.

4

25

85

@DisabledDem

parasocialost

2 years

@Walling_B Happy to call and yell at them for / in addition to you. I am truly sorry your grandpa is sick, and that your family tried to hide their terrible behavior.

1

1

87

@DisabledDem

parasocialost

6 months

@NicoReznick @WriterCrafter Self defense. Very valid. I’m also very sorry he assaulted you.

1

0

86

@DisabledDem

parasocialost

1 year

Pain is not “discomfort”. Your civil or human rights being violated is not an “inconvenience” . Advocating for safe, appropriate care is not “abusive” or “combative”.

1

32

81

@DisabledDem

parasocialost

8 months

I believe there were some people talking about disabled gig workers. It’d be great if folks support disabled gig workers, instead of using them as hypotheticals in arguments. My friend @Faux_Fox_ is an actual disabled gig worker who could use some actual support.

@Faux_Fox_

Faux Fox🌻

8 months

I am on my last pair of contacts, & have not had an eye exam in 2 years. I desperately need to have one so I can get more contacts. W/o them, I can't drive or work (or do anything else tbh). It's $160 (exam) & $300 for contacts. C*shapp & V*nmo: foxrook

2

42

31

1

65

83

@DisabledDem

parasocialost

2 years

@JortsTheCat @westeawest you're separating them. read some of the QTs, the ones that are siding with you. read their hostility towards the entire notion of grocery delivery. follow disabled people & see how we get piled on by "allies" when we talk about a food or grocery delivery gone bad.

2

6

82

@DisabledDem

parasocialost

27 days

What I’m saying, especially to other yt people, check the specific & focused outrage u have for Lyles, especially if you’ve been following the olympics. Consider the difference in media narrative for Lyles vs the narrative for other (white) olympic athletes with covid. 3/3.

3

10

84

@DisabledDem

parasocialost

10 months

@PanickedFoodie Good reminder. What grates about their current bullying over oral thermometers / temps is that I swear pre-pandemic, it was ear thermometer nearly every time. But now they suddenly give a damn about accurate temp checking. It feels like it’s not so much about quality care.

0

2

82

@DisabledDem

parasocialost

6 months

@StinkRatsCharms I'm going to retitle this: "I'm ok with the idea of my husband dying because I guilt tripped him into eating indoors at a restaurant for the good of our marriage because being seen eating is more important to me than MY HUSBAND'S LIFE" I honestly think I'm going to be sick.

1

5

82

@DisabledDem

parasocialost

1 year

1/3 [death] I don't know how to tell some of you new-to-disability-spaces folks this but there is a FUCKTON of bullshit in and around establishment disability rights culture. Preserving personal power and proximity to power are as high a priority as getting shit done. AND...

1

18

82

@DisabledDem

parasocialost

1 year

I can't with the leftists who think that anyone still giving any shits about COVID mitigation is a.. .what was the term? Nepo-kid? Nepo baby? Right. The latter, because some set of these socialists-for-now folks embrace authoritarian patriarchy tools like using age as an insult.

1

13

83

@DisabledDem

parasocialost

8 months

@KTLA Unnamed representative with the California Department of Public Health: “Most of our policies and priorities for intervention are now focused on protecting those most at risk for serious illness." Where? How? What are they actually doing for this? Not a damn thing.

0

10

80

@DisabledDem

parasocialost

2 years

@TheEDSociety This tweet here showing a complete absence of masks at the indoor 2022 International Scientific Symposium warrants discussion. #ISS2022 Do others agree? Do you think this #ChronicIllness group should be promoting no masks? #NEISvoid #DisabilityTwitter #EhlersDanlosSyndrome

1

5

78