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@elysekiera

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S๐šŽ๐šŸ๐šŽ๐š›๐šŽ ๐™ป๐šข๐š–๐šŽ & ๐™ผ.๐™ด., ๐š‹๐šŽ๐š๐š›๐š’๐š๐š๐šŽ๐š— & ๐š‘๐š˜๐šž๐šœ๐šŽ๐š‹๐š˜๐šž๐š—๐š ๐š๐š˜๐š› ๐š˜๐šŸ๐šŽ๐š› ๐šŠ ๐š๐šŽ๐šŒ๐šŠ๐š๐šŽ. A๐“‡๐“‰๐’พ๐“ˆ๐“‰ โ€

Los Angeles, Ca
Joined March 2009
Don't wanna be here? Send us removal request.
Pinned Tweet
@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
I have been stuck in bed and within one room for almost 15 years now. I have learned over time to let go ( as many of us have) in the most impossible and profound of ways. To watch life pass by, to observeโ€ฆ. #cfs #mecfs #pmwe #longcovid #lymedisease #lyme
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
When you hit a new lower level with your #chronicillness , you start to reminisce and long for the less sick but still very sick version of yourself. No matter how many years you have been unwell, the grief never gets easier. #mecfs #lyme #longcovid #severeme
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
It astounds me that diseases as serious as #mecfs , #Lyme and now #longcovid can be so blatantly dismissed and neglected when the level of disability and suffering is more severe then most any other known disease that is taken seriously. #chronicillness #pwme #severeme
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
1 year
Today is my birthday & I am unfortunately stuck in bed as usual. #MECFS has tried its best to rob everything. It has stripped me bare, left me battered, broken, dependent, severely disabled & on my hands & knees year after year after year. What it canโ€™t take however, is my
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
tending to me whilst I lay stuck in my bed and realize I canโ€™t end it just yet. There is still, STILL too much left even in the rubble. There are still reasons to smile, moments that move me, as fleeting as they are.
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
๐ŸงตI have not been inside a grocery store, a clothing store, a movie theatre, a restaurant, a drugstore or even a convenient store in over 10 years. I have not driven a car or been on the beach, which is a 5 minute drive from my house, in 15. #mecfs #lyme #longcovid #severeme
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
They are what I live for now, more then ever before.
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
The sad reality for many of us is that #SevereME , #Lyme disease and #longcovid are all illnesses that donโ€™t simply or kindly take you from this earth but progressively rob you of almost every single human joy that there is, whilst keeping you alive. #pwme #mecfs
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
But then I put a decadent piece of chocolate into my mouth, listen to the melody of one of my favorite songs, read a beautiful and descriptive poem, see a yellow bird painted with black polkadots floating in the air outside of my window or gaze into the loving eyes of my mom
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
Some might ignorantly suggest that being chronically ill is due to past trauma that you havenโ€™t fully healed from but what about the much greater trauma of being severely medically neglected and gaslit for years on end whilst being on the verge of death? #lyme #cfsme #longcovid
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
This illness has taught me to live for the smallest of moments and joys. To continue to exist and push forward even if this life feels unsurvivable. Many times a week and/or many times a day, I ask myself, is this life worth continuing ?
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
Having Severe #MECFS is like sitting among the ashes of your burnt down home, covered from head to toe in soot & debris, whilst searching earnestly for any piece of yourself that has survived the wreckage. #MyalgicEncephalomyelitis #lyme #bedridden #pwME #longcovid
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
the rest of the world move forward, while sitting from the sidelines, from behind the metaphorical glass window pane. Friends going to college, discovering themselves, starting careers, traveling, buying homes, getting married, having babies,
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
starting families. All things that I have craved with my whole heart to also be able to do but the severity of my condition has simply not allowed it. Having severe M.E. and also late stage Lyme disease is a prison sentence for many, an unexplainable and ..
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
inhumane existence, especially as a young person. It is a life of solitary confinement within your own body and the outer walls of one room. I try my absolute hardest to make the very best out of this, however it is no easy taskโ€ฆ.
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
How can I possibly keep doing this or living this way, it feels barbaric in the 21st century to be subjected to such suffering day in and day out.
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
10 months
For me, this has been the case. The most valuable years of my life have been robbed by this illness. If a cure is found within the next 5 years, I will be 40 yrs old. I've been seriously ill since I was 19, which means that the majority of my life has been spent in a bed. ๐Ÿ’”
@mecfsquotes
ME/CFS Quotes
3 years
If you get #MECFS , one thing is for sure: your life as you know it is over. Thatโ€™s why we must fund biomedical research for treatments and a cure.
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
when you are a passionate lover of life.
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
๐Ÿงต1/3 What illness exists other than #SevereME & now some cases of #longcovid , where many, (including myself), can not manage to get to a hospital or Drโ€™s office because we are too sick to endure the trip? Where speaking or concentrating a little too hard causes instant #PEM ..
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
Today I feel like Iโ€™m going to die. I have been in this place so many times & it never gets easier. I canโ€™t go to a hospital & Drs have nothing to offer. There isnโ€™t anything I can do except lay here in the dark, white as a ghost, unable to speak or move. #LymeDisease #mecfs #LC
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
I canโ€™t tolerate visiting or talking for more then 5 to 10 minutes most of the time. Even at 5 minutes I can feel the blood draining from my face and my body crashing as PEM hits instantly. Does anyone else experience this when it comes to speaking ? #mecfs #pmwe #lymedisease
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
Surrendering is big part of chronic illness and when you are very severe, you have no choice but to profoundly & humbly acquiesce. The level of surrendering though can feel too impossible and cruel for most to even comprehend. #mecfs #chronicillness #lyme #longcovid #pwME
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
10 months
Coping with the profound grief of the life you hoped to have but couldnโ€™t due to a prolonged and severe chronic illnesses is something that is hard to put into words. #mecfs #pwme #severeme #lyme #longcovid
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
11 months
To my severe friends- I am curious what supplements, treatments or medications have had the most positive impact for you. Specifically, any that gave you a 5 to 10% improvement. ๐Ÿค #severeme #pwme #cfs #lymedisease #longcovid #chronicillness
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
๐Ÿงตโ€ฆโ€ฆ. or to celebrate any special occasion in over a decade. The examples are endless but you get the idea. It may sound as if I have committed a terrible crime and am writing this from inside a prison cell but this is severe ME/CFS and late stage Lyme disease.
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@IppokratisAnge1 I really relate and Iโ€™m so sorry. I lost my whole 20s to ME/CFS and Lyme. Itโ€™s so so hard when ur so young.
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@MrkStdngr Your daughter is severely sick, itโ€™s not emotional or spiritual. Finally he truly believed me after that. But man being told itโ€™s psychosomatic in any way causes serious ptsd. Iโ€™m afraid of therapists and any western Dr at this point.
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
#severeme is a life of existing, enduring, surviving and persevering minute after minute, hour after hour, day after day, year after year and for some, decade after decade. This is not how a human life is supposed to be. #mecfs #lymedisease #longcovid
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
๐Ÿงต I have not been to a dentist in 9 yrs or to a Drs office in 7. I have been too unwell to visit with friends & verbally speak for more then 15 min in over 9 yrs. I also have been unable to sit upright at a dinner table to eat with my family โ€ฆ..
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@lapis_lazuli11 Iโ€™m so sorry Amy, my hearts hurts for you. You deserve at the VERY LEAST to be able to stay in the comfort of your own home. Do you think they would be willing to pay for a carer? Sounds like they donโ€™t understand this illness at all. ๐Ÿฅบ๐Ÿ’”
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
๐Ÿงต1/3 There is an unfortunate misconception about being chronically ill, that if you remain sick, it is you that is doing something consciously or subconsciously to keep yourself from healing. That somehow it is your fault for not getting betterโ€ฆ. #MECFS #lyme #longcovid #pwme
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
3/3 What other disease is capable of turning all these things into luxuries and robbing a human being of so much and for so long? Please let a #cure be found soon for all of us who dream of being more then a ghost in our own lives. #mecfs #spoonie
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
2/3 Where the most basic human birth rights cause a set back or are simply not even possible, such as - sitting outside, talking on the phone, watching a movie, reading a book, bathing, going on a car ride, intimacy, sitting at a dinner table or visiting with loved onesโ€ฆ
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
๐Ÿงต 1/2 Before vs after #severeme & #lymedisease I had many plans & dreams for my life 15 yrs ago. They went from,โ€œbeing a model, graduating art school, becoming a graphic designer & traveling the world โ€, to โ€œhaving the ability to eat at the dinner tableโ€ฆ. #mecfs #longcovid
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
10 months
I feel like a ghost in my own life. #mecfs #lyme #longcovid #pwme
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
10 months
@annitht Iโ€™m in the same boat Annie, if my parents die, itโ€™s over for me as well. They are my only family- no husband, children, or siblings. Iโ€™m so sorry that you have to live this reality as well ๐Ÿ˜žโค๏ธ
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@thane_black All the above, also losing my youth. Getting severe at a young age and being sick during the prime years of oneโ€™s life is one of the most devastating aspects for me personally.
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
๐Ÿงต3/3 It is incredibly harmful, untrue and unfair to all of us who have or are currently doing everything possible to try to heal from crippling illnesses that there are no known cures for. Whose fault is that? Certainly not ours. #chronicillness
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@MrkStdngr When I first got sick I had to go through a little of what you are dealing with. Luckily my mom had CFS when I was a kid so she understood what was happening but my dad not so much. He is a therapist and took me to many. Finally one therapist said โ€ฆ.
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@amy_is_tired I relate very much to this. It becomes so hard to even get help when you can barely use a phone to speak or text or organize. It leaves you in quite a stranded position
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@LTrzepkowski It sure is and thank you Louis, it was a smal moment and then I had to lye back down. โค๏ธ
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
๐Ÿงต2/3 that you just arenโ€™t trying hard enough, you arenโ€™t digging deep enough, that you have some childhood wound that once healed will heal you. This narrative needs to stop ๐Ÿ›‘
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
7 months
@SurvivingCFS ๐Ÿ˜ข
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
1/2 To continue to wake up each day and choose to keep trying, to keep fighting, to keep hoping, after so many years of suffering, being confined, debilitated and for many, unable to speak, walk or see the light of day, #LongCovid #mecfs #pmwe #cfs #lymedisease #chronicillness
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@allietrann Hang in there Allie ๐Ÿซ‚ I know the feeling wellโ€ฆ. After 15 years of being sick, Iโ€™m in a similar place but there is more hope right now then ever in regards to research into ME/CFS and long Covid. Donโ€™t give in just yet, you are needed here. โค๏ธ
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
When you are constantly at the mercy of your body, you will do absolutely anything at all to find relief. Learning how to stick my own veins, & make & administer my own Ivs, has been one of the few things that gives me a temporary reprieve on my worst days. #LongCovid #mecfs #lyme
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
1/2 โ€œSome people, when they hear your story contract, others upon hearing your story expand and this is how you know.โ€ #MECFS #lymeDisease
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
๐Ÿงตโ€ฆ. go the grocery store, have a picnic outside & to once again be able to take a walk with a loved oneโ€. The first girl is still me. โค๏ธ
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
1 year
@arianek @brunodbo Omg Ariana, I just read everything you went though and my heart just breaks for the torture you have had to endure. What a courageous soul you are, many wouldnโ€™t be able to survive all that. Iโ€™m just so sorry and wish things were vastly different โค๏ธ๐Ÿ˜ข
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
4 years
@Tommyguns11 @GavinNewsom @KTLA Itโ€™s not just about the death rates though. So many people who have gotten this are still struggling for months later with health complications. A few people I know as well.
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
4 years
@lhbncht @GavinNewsom Well you are part of the problem and why we have to shut down again..... thanks!
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@MrkStdngr It really is, as if the physical and emotional suffering due to being so sick isnโ€™t enough, then we have to prove ourselves and fight for people to believe us or understand. Itโ€™s beyond cruel and unfair.
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@hopefullizzy I never do at this point, it just causes a worsening crash if I donโ€™t have a parent or friend to help me speak to them. They usually have nothing to offer anyways. It feels as if we are surviving on a raft in the middle of the ocean so very far away from any help or land.
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@MrkStdngr Iโ€™m so sorry you have to go through this ๐Ÿซ‚
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@GabbieHanna He has receipts that he bought it months prior
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
2/2 Thank you so much to all of you who made the last two days really meaningful for me by sharing my story. Truly means more then you all could ever know. ๐Ÿค
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@GeorgiParvanov4 I feel this deep in my heart, my parents wonโ€™t allow me to do assisted suicide either, even though the suffering is just out of the this world. Iโ€™m so sorry โค๏ธ
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@MrkStdngr My heart goes out to you Mark, I feel this way as well. I am sending love and healing energy your way.
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E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
2/2 is a true testament to the insurmountable strength that lyes within the human spirit.
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
10 months
@S_wei I think so many of us in this position can unfortunately relate to this statement ๐Ÿ’” My heart really goes out to you Tobias and to everyone who also feels this way.
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@MrkStdngr @hopefullizzy Whenever you have a chance Mark, look up Elizabeth Dโ€™Angelo on Facebook and DM her. She had the neck, spine and throat thing your describing. She would go into paralysis, have seizures and breathing spasms etc but she figured out how to help change it for herself.
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@leowmya Yes and food is the one thing that gives me a tiny bit of strength
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@MrkStdngr Omg!!! This is insanity!!!!! We need to find you more advocates. Iโ€™m so sorry that you keep having to go through one hurdle after another, itโ€™s not right.
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@DafoeWhitney Having one of those days today. Sending love to you Whitney.
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
9 months
@alexandrite113 @vee_etc I have felt like this all along, I donโ€™t feel most people really care all that much about diseases that arenโ€™t mainstream. Even my own family members donโ€™t share about my illness or my life. Itโ€™s like I died and no longer exist.
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
5 years
@aaroncarter Between you and Trisha Paytas Iโ€™m starting to feel like Iโ€™m starting to lose my mind as well......
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
1 year
@MrkStdngr Sorry to hear that you are in the ER Mark ๐Ÿ˜ข๐Ÿฉท
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
6 years
@RandieK @realDonaldTrump You must be on drugs
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@myrabatchelder So upset about this. As some who is already so sick, canโ€™t get vaccinated and depends on care from my elderly mom who does have to leave the house, this mandate could have really been a life saver for both of us.
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
9 months
@PaulBetBest @misshealing7 I know! Thank you for saying this. Her parents were planning to throw her out to the curb in just a few months! Itโ€™s unreal ๐Ÿ˜”
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@thane_black ๐Ÿซ‚โค๏ธ ily Thane. Itโ€™s unreal how these illnesses effect us all so differently too. I was sick as a child as well and often wonder if the worst adult cases start in childhood
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
1 year
@BhupeshPrusty @OStriebling Hmm not sure about this oneโ€ฆ. I feel Iโ€™m aging faster
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@NataliaHodgins 1000% feel this
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@ChadDigums Iโ€™m really touched by what you said, thank you. Iโ€™m planning to continue to share more of my story on here ๐Ÿ’œ I hope and pray that long Covid research does the same ๐Ÿคž๐Ÿป๐Ÿ™๐Ÿป
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@2dreamornot2 Yes to this !!!
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@DiaryofaSickGrl An unmedicated abortion ๐Ÿ‘Ž๐Ÿป not fun
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
11 months
@lcwithme That is awful Marisa ๐Ÿ˜ž Iโ€™m so sorry your parents are not supporting you, nothing worse then being this sick & having your family doubt you! I echo everyone elseโ€™s comments regarding unrest, it would help them better understand this disease if you can convince them to watch it ๐Ÿค
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@KyleMcnease @welcomewords Thank you so much Kyle, I really appreciate such a compliment โค๏ธ๐Ÿฅบ
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@Alwayshopeful25 Thank you Eric, I promise that you will find a way despite how brutal and unrelenting it feels in each moment. I felt that way two years into this as well. I couldnโ€™t imagine going on but somehow there exists in all of us a strength we wouldnโ€™t even believe.โค๏ธ
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@MrkStdngr @maggytamney This is accurate ๐Ÿ˜ฃ, I canโ€™t get to a hospital or dr either, especially at my worst. My body canโ€™t tolerate it. Itโ€™s not something most can comprehend because it sounds too awful and unbelievable to be true.
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@debbie_seymour Been primarily bedridden for almost 10 years nowโ€ฆ you lose muscle tone and get weak but thatโ€™s about it. Make sure to pump your legs a few times every hour just to keep some blood flow
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@DrWillDonald It is unreal โ€ฆ..
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@D_Bone This is really frightening and discouraging ๐Ÿ˜ž
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@carrol2_j Prayers for you Amanda. What a seriously hard and nightmarish situation ๐Ÿ’”
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
3 years
@thane_black You deserve this type of following my friend. You write beautifully
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
8 months
For me it was before I developed #mecfs
@healingfromlc
Celine
8 months
Before I developed Long COVID I thought you could only this sick right before dying. Apparently not.
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
9 months
Please send your healing thoughts and prayers to Karissa ๐Ÿฅบ
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
1 year
@welcomewords Iโ€™m so sad to read this ๐Ÿ˜ž please give Nathalie my love, she is such a beautiful human. May the extreme symptoms she is having ease up and may she get some relief soon. She will be in my prayers ๐Ÿ™๐Ÿป๐Ÿฆ‹
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
Tweet media one
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@benh_mecfs @MEActNetUK ๐Ÿ’œ so sorry Ben. That feeling of brokenness is very real and relatable to so many of us.
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
10 months
@alexandrite113 โค๏ธ it is SUCH hell, Iโ€™m so sorry Amy
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
7 years
@charlesmarlowe_ Haha that is utter BS Charlie, we don't want to get rid of guns! We just want stronger regulations on them....
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@D_Bone Yup this happens to my legs when I stand
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@DafoeWhitney Feeling this one hard today. โค๏ธ
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
5 years
@trishapaytas @stefsanjati @YouTube ๐Ÿ˜ณ Trisha may have officially lost her mind .....
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@MrkStdngr Are your parents willing to talk to anyone knowledgeable about this illness? It sounds like they have 0 understanding of long Covid, ME, etc ๐Ÿฅบ
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@theedifyingword The loneliest in all ways
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@supinegal I get those really dark circles too ๐Ÿซ‚โค๏ธ
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
2 years
@thane_black Talking is one of the biggest things that causes a crash for me, more then moving around. I donโ€™t understand it. More then ten minutes and Iโ€™m done for.
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@elysekiera
E๐š•๐šข๐šœ๐šŽ K๐š’๐šŽ๐š›๐šŠ
9 months
@PaulBetBest @misshealing7 Iโ€™m so sorry that happened to you ๐Ÿ’”๐Ÿ˜”
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