Anna Rebowska @anna_rebowska Twitter profile

Last Seen Profiles

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Anna Rebowska

@anna_rebowska

4 months

Autistic people are criticised for catastrophizing. The problem is not that we are wrong; thanks to our pattern recognition abilities, our predictions are usually spot on. The real issue is that we typically highlight issues that are supposed to remain hidden.

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Anna Rebowska

@anna_rebowska

4 months

They desperately want us to believe that autism and ADHD are now being 'overdiagnosed'. The alternative is to admit that for generations, neurodivergent people have been systematically ignored and failed.

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Anna Rebowska

@anna_rebowska

4 months

Neurodivergent people receive more negative feedback over their lifetime than neurotypical people. Often for completely inconsequential things. When we're repeatedly told that everything we do and say is somehow wrong maintaining some sense of self-worth can be incredibly hard.

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Anna Rebowska

@anna_rebowska

7 months

Autistic people are often criticised for reading too much into things and catastrophising. People don't want to listen despite our predictions being pretty accurate thanks to our pattern recognition abilities. I think the real issue is we often highlight what others want hidden.

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Anna Rebowska

@anna_rebowska

4 months

The rates of unemployment for autistic people are very high. There are 100 layers of random social rules for interviews and job hunting, and if you fail any of them, you don't get hired. It would be great if more employers could rethink their approach.

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Anna Rebowska

@anna_rebowska

3 months

If your autistic child is lonely and wants to make friends don't put them in a “social skills” group to learn how to perform like NT. Instead help them find groups and clubs linked to their special interest. That can lead to authentic connections.

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Anna Rebowska

@anna_rebowska

3 months

Autistic people, especially autistic children, may not realise might not know that they don’t have to push on through pain if they are told to do something and it hurts. The literal interpretation of 'try your best' is often to keep going at all costs.

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Anna Rebowska

@anna_rebowska

4 months

ADHD kids grow up to be ADHD adults, and autistic kids grow up to be autistic adults. Unfortunately, NHS mental health services are set up as if we all just disappear on our 18th birthday.

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Anna Rebowska

@anna_rebowska

3 months

One of the autism diagnostic criteria in ICD10 that bothers me the most is 'adherence to non-functional routines'. It projects NT prejudice so clearly. Those routines absolutely have a clear purpose.

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Anna Rebowska

@anna_rebowska

8 months

Autistic people’s sensory sensitivities are not the same as phobias. Repeated exposure doesn't help. We are not afraid of loud noises for no good reason. We become distressed by pain or overstimulation. Let us wear ear defenders and earplugs!!

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Anna Rebowska

@anna_rebowska

7 months

Autistic people shouldn't have to justify their existence by having special talents and gifts that are valuable to the economy. Judging everyone's worth in terms of productivity and economic activity is the first step to eugenics.

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Anna Rebowska

@anna_rebowska

7 months

We need guidelines for clinicians in the mainstream services to help them grasp this concept.

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Anna Rebowska

@anna_rebowska

3 months

Autism assessments put too much emphasis on external signs and behaviours. There is little consideration of the internal world and direct experiences. The criteria need to be rewritten and diagnostic tools updated with direct input from #ActuallyAutistic people.

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Anna Rebowska

@anna_rebowska

4 months

@AnnaPiePie Picnic on the train tracks is my new favorite metaphor. Thank you.

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Anna Rebowska

@anna_rebowska

7 months

Autistic burnout is real. You are worthy of rest. That means not replying to messages, declining invites, postponing tasks and limiting access to people who have been accustomed to draining your reserves.

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Anna Rebowska

@anna_rebowska

6 months

Autism can't be 'cured', only hidden for the benefit of others. It eventually leads to autistic burnout. Pushing infant masking through ABA-based early interventions is a seriously misguided approach.

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Anna Rebowska

@anna_rebowska

8 months

The latest trend of proclaiming that autism isn't a disability is rooted in ableism. You can be proud of being autistic without throwing everyone with support needs under the bus.

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Anna Rebowska

@anna_rebowska

6 months

@HeldinEU

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Anna Rebowska

@anna_rebowska

4 months

@MaxW391 Important rule, never interrupt an enemy whilst they are making a mistake.

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Anna Rebowska

@anna_rebowska

6 months

Boy, 7, died of undiagnosed eating disorder as he lived on just 'a few biscuits'. Meanwhile, many ED services are fighting to distance themselves from ARFID and to continue to be anorexia centric.

Boy, 7, died of undiagnosed eating disorder as he lived on just 'a few biscuits'

Alfie Nicholls, who had autism, died at age seven after developing the undiagnosed eating disorder ARFID - now his mum now wants everyone to be aware of the condition and how to manage it

www.mirror.co.uk

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Anna Rebowska

@anna_rebowska

7 months

Please stop and think before filming your autistic child's meltdowns and sticking those videos on the internet or having them broadcast on TV is another level. I can't think of anything more humiliating than having my worst moments filmed and broadcast without consent.

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Anna Rebowska

@anna_rebowska

7 months

It's commonly understood that autistic individuals don't cope well with change, but it's more than that. It's about predictability. If we can anticipate something, we can cope with it. In essence, the more mundane our lives are, the better.

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Anna Rebowska

@anna_rebowska

7 months

Autism assessments rely way too much on observable external signs and behaviours. You don't make any other psychiatric diagnosis with so little consideration of internal ward and direct experiences. Diagnostic criteria need to be rewritten.

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Anna Rebowska

@anna_rebowska

6 months

@laurenancona ED is a very broad term and I wish we would stop equating it with anorexia.

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Anna Rebowska

@anna_rebowska

4 months

@hi_its_annaleah Possibly. If they only encounter burned autistic people struggling with their environments.

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Anna Rebowska

@anna_rebowska

7 months

Insisting that neurodivergent people must only show their strengths and not their struggles is another form of ableism. Superpower narrative can be as damaging as excessive focus on deficits.

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Anna Rebowska

@anna_rebowska

11 months

@ashleyann_atx Many people experience cognitive dissonance when they meet an autistic person who doesn't fit their schema of autism. It's easier to reject the notion of that person being autistic than change their beliefs.

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Anna Rebowska

@anna_rebowska

11 months

@NurseStandard @DoreenCrawford

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Anna Rebowska

@anna_rebowska

3 years

@thefourthcraw C) Arrange for the canary to complete an online module on resilience training and a mandatory mindfulness session

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Anna Rebowska

@anna_rebowska

6 months

What a wonderful tool to push autistic and neurodivergent people towards personality disorder diagnosis.

Dr Jay Watts

@Shrink_at_Large

6 months

Introducing the SAPAS, an 8-question screening for personality disorders, in primary care is a recipe for disaster. It's a perfect excuse to offroll, exclude and delegitimise patients in an already overwhelmed system with 1.6 million waiting for mental health services.

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Anna Rebowska

@anna_rebowska

6 months

@laurenancona The sensory requirements are absolutely valid but when the menu of options that are acceptable is so narrow that person will literally die of malnutrition then I personally think it fits a definition of a disorder and requires intervention.

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Anna Rebowska

@anna_rebowska

8 months

I would pay good money for an Administrative Support Worker? Someone with understanding of executive dysfunction to open my mail, pay my bills, schedule appointments, make phonecalls and help me with other aspects of adulting? Why is this not a thing?

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Anna Rebowska

@anna_rebowska

4 years

@apnoeaboy I wish this honest portrayal could be made a part of the daily broadcast. Too many people think that being put on a ventilator is an easy fix and have unrealistic expectations regarding prospects of recovery.

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Anna Rebowska

@anna_rebowska

7 months

@Dr_BellaR Have you moved into my old rented house? Sounds so familiar. It reflects the state of housing in the UK that even a professional wage is not sufficient to rent something decent and simultaneously save for a house deposit.

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Anna Rebowska

@anna_rebowska

6 months

If the scientific community was more inclined to hear autistic voices when we are still alive there would be perhaps less need for posthumous examination of diaries. 🤔

Cambridge to study diaries of Wycombe Abbey pupil who killed herself

The 16-year-old wrote down how she felt before she died and researchers hope her words will help them to understand why autistic teenagers are at higher risk

www.thetimes.com

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Anna Rebowska

@anna_rebowska

5 months

If a third of students are struggling is it time to explore why school environments became so toxic?

Nearly a third of UK secondary pupils avoid school due to anxiety, survey finds

Youth charity stem4 calls for more mental health support for under-18s to stem high absenteeism

www.theguardian.com

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Anna Rebowska

@anna_rebowska

6 months

Supporting neurodivergent students requires more than just 'inclusion' in mainstream classrooms. Dig deeper. What exactly are we 'including' them into? The one size fits all behavior management programs dominating in English secondary schools cause damage on daily basis.

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Anna Rebowska

@anna_rebowska

4 months

@adamfare1996 The only acceptable flavor of autism is masked to the hilt for the convenience of others. That's what early interventions are all about.

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Anna Rebowska

@anna_rebowska

3 months

@bahhumbug73 Self regulation or even just doing something just for fun and pleasure is functional.

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Anna Rebowska

@anna_rebowska

2 years

@Seasonal_Bitch Diagnostic criteria focus too much on external signs. Time to shift to exploration of internal experiences.

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Anna Rebowska

@anna_rebowska

3 months

@DPhilipJones Unless they have called the police and you were arrested, no one can stop you from leaving the supermarket. It is false imprisonment and is a crime in its own right.

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Anna Rebowska

@anna_rebowska

2 months

@HollytheOT OMG What is this? As if the human face was not overwhelming enough, let's just add weird stuff with flashing lights on top.

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Anna Rebowska

@anna_rebowska

7 months

@AnnMemmott I suppose it is very inconvenient to have people constantly pointing out things that are supposed to remain unnoticed under the carpet.

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Anna Rebowska

@anna_rebowska

6 months

@laurenancona Not everyone who has ARFID is autistic (even if there is a big overlap). Sensory issues aren't the only underlying cause. In terms of accommodations who is going to support parents to implement those if they don't have access to dieticians, salt etc experienced with feeding?

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Anna Rebowska

@anna_rebowska

4 months

@SethornelgTales What they think of as 'desensitization' is learning how to ignore your pain, don't trust your own body and bend over backwards for convenience of others. That's not a good preparation for healthy adulthood.

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Anna Rebowska

@anna_rebowska

10 months

Time to consider if the relentless campaigns encouraging people to reach out are in fact harmful when reaching out results in a string of rejections.

Cara Lisette

@CaraLisette

10 months

Genuinely horrific how many people in the mental health community take their own lives and their last tweets look like this. Mental health services can be so woefully inadequate and until that changes, people will continue to die. RIP @TraumaPhDandMe .

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Anna Rebowska

@anna_rebowska

6 months

@laurenancona Personally I think that flagging up autistic people at risk of death through malnutrition and offering them dedicated support is useful but we can agree to disagree.

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Anna Rebowska

@anna_rebowska

5 months

It's important to grasp that the spectrum isn't linear. Each and every autistic person has their own profile of strengths and difficulties. Just because an autistic person thrives at university and has a professional career, it doesn't mean they don't have support needs in other

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Anna Rebowska

@anna_rebowska

6 months

The idea of placing disabled people in institutions and excluding them to save money seems to be rapidly gaining popularity across local authorities.

Elissa Noves

@ElissaNoves

6 months

Cllr Hammersley responds to being told that children with SEND were institutionalised with "they must have had better ways of dealing with them. Let's go back to some of those ways"

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Anna Rebowska

@anna_rebowska

2 months

@draevans Different. It can be difficult to quantify. Pulling a 'high functioning' autistic person out of a pit of severe mental illness often takes much more energy and resources than arranging a care package to support someone with their activities of daily living.

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Anna Rebowska

@anna_rebowska

11 months

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Anna Rebowska

@anna_rebowska

7 months

Ableism within families can have a significant negative impact on autistic people’s self-esteem and mental health. Home needs to be a safe space.

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Anna Rebowska

@anna_rebowska

3 months

The default response of many autistic people to any change of plans is 'NO!' Our brains perceive a threat and quickly go into fight or flight mode. Please be patient and try to give us some notice and time to adjust.

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Anna Rebowska

@anna_rebowska

7 months

Autism and ADHD are not just childhood disorders. They persist across the lifespan and significantly impact daily life. We need more resources and support for neurodivergent adults, including elders.

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Anna Rebowska

@anna_rebowska

10 months

@Dr_Done_ @AlkadhiO @A03580132276 @veggieequallife @RooDoherty @markr1004 @PenfoldJohanna Open-source collaboration via social media poses direct threat to the old power. Hence the constant attempts at silencing through intimidation and thinly veiled threats of the GMC.

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Anna Rebowska

@anna_rebowska

4 months

The fact that this is recent and unexpected discovery reveals a lot about biases of professionals working with autistic people.

Study reveals unexpected literacy in autistic people who cannot speak

About one-third of autistic people are unable to communicate using speech, and most are never provided an effective alternative. However, a new study from scientists at the University of Virginia...

www.eurekalert.org

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Anna Rebowska

@anna_rebowska

7 months

Sensory rooms are fashionable at the moment in psychiatric hospitals as a way to help autistic people. Overwhelming bombardment of harsh lights and loud noises isn't remedied by providing intermittent access to a room with a lava lamp in a corner.

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Anna Rebowska

@anna_rebowska

6 months

I often say that you can't CBT yourself out of autism. However we need to make a distinction between autism and other co-occurring conditions like ARFID or OCD, which respond well to CBT.

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Anna Rebowska

@anna_rebowska

3 months

@AnnMemmott If it did work, I would be seriously worried about potential side effects. The way it feels to me is that my brain is making too many connections, and accelerating this process even more seems somewhat unwise.

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Anna Rebowska

@anna_rebowska

3 years

@LauraFMcConnell @SueReviews @milton_damian @thewoodbug @MsJoBillington @CharleneTait_SA @nickmward @FionaSnp @JoPavlopoulou @CatrionaSScot @CarlyJonesMBE @pauladams40 The current model of 'inclusion' is keeping us very busy in CAMHS. The majority of children coming through as anxious, depressed and suicidal struggle with unmet SEN in the mainstream with no support because 'no budget'.

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Anna Rebowska

@anna_rebowska

3 months

There is a strong conviction that if we close all psychiatric hospitals patients will be happily supported to live their best lives in the community. The more likely outcome is that another institution will take over.

Emily Deans MD

@evolutionarypsy

3 months

Idaho didn’t have a state mental health unit so they’ve just been putting severe mentally ill patients in maximum security prison!!! They just now approved funding.

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Anna Rebowska

@anna_rebowska

3 years

The noble idea behind closing inpatient CAMHS beds was to 'move care into the community. Instead, we moved it into paediatric wards in acute hospitals.

Sharp rise in acute medical beds occupied by children with nowhere else to go

Doctors in parts of England ‘babysitting’ for children who have been displaced due to violent or self-harming behaviour

www.theguardian.com

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Anna Rebowska

@anna_rebowska

4 months

Do you ever wonder why so many autistic people have a seemingly short fuse? We go about our daily lives with a very high base level of stress. Constantly teetering close to the edge. Navigating communication challenges, sensory overload, overstimulation and more.

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Anna Rebowska

@anna_rebowska

4 months

@AnnMemmott If the choice was between bunch of people holding me down and mechanical restraints I would definitely prefer mechanical but to describe it as positive and caring is very much a stretch.

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Anna Rebowska

@anna_rebowska

3 months

@milton_damian Because we are expected to devote every minute of our waking lives, particularly as children, to learning how to be more neurotypical. Aimless fun not allowed.

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Anna Rebowska

@anna_rebowska

11 months

@pepemac27 Pay attention to the outcome and don't be fixated on the process. Are the dishes coming out clean?

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Anna Rebowska

@anna_rebowska

4 months

@BBCr4today @MishalHusain It really scares me that the platform is given to 'experts' who don't even grasp the distinction between basic terms in this discourse. Neurodiverse and neurodivergent aren't interchangeable.

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Anna Rebowska

@anna_rebowska

7 months

If your autistic child is trying to make friends but having a hard time with it don't put them in social skills training class. Help them find a group linked to their interests and passions. That can lead to real and lasting connections.

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Anna Rebowska

@anna_rebowska

6 months

@laurenancona What has happened in this case is that all the difficulties were dismissed as part of autism and no intervention or monitoring was offered.

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Anna Rebowska

@anna_rebowska

6 months

@PCamhs It baffles me as well. ED is not just anorexia. It's an umbrella term that includes ARFID, pica and rumination disorder, which are commonly associated with neurodevelopmental conditions like autism.

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Anna Rebowska

@anna_rebowska

6 months

@laurenancona What we talk about here is a child starving to death because none considered offering supplemental nutrition in the face of very severe food restriction.

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Anna Rebowska

@anna_rebowska

3 years

@Hisly9 @nicocoer My grand-grandmother died aged 104 and her diet for the last 3 to 4 years was pretty much exclusively cake as she didn't fancy anything else.

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Anna Rebowska

@anna_rebowska

10 months

@AutisticCoach_

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Anna Rebowska

@anna_rebowska

4 months

‘Cuckooing’ in vulnerable people’s homes could become criminal offence. Great, how about we reflect on non existent community support that makes it possible for criminals to take over houses of vulnerable people without anyone noticing.

‘Cuckooing’ in vulnerable people’s homes could become criminal offence

48 MPs have backed a proposal that would make the act of occupying another person’s house in connection with criminal activity illegal

www.telegraph.co.uk

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Anna Rebowska

@anna_rebowska

6 months

@laurenancona You were diagnosed with ARFID and dedicated support to meet your nutritional needs has harmed you?

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Anna Rebowska

@anna_rebowska

4 months

@Dr_Done_ I strongly believe that what allowed PA idea to really take hold is a product of the medical education lobby and what they have done with UK training programs.

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Anna Rebowska

@anna_rebowska

3 years

@RoshanaMN The expectation to se personal mobile for on-call is wrong and needs to be addressed. Having a work mobile that can be switched off when not at work is a cornerstone of a healthy work-life balance.

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Anna Rebowska

@anna_rebowska

1 month

@ADHDForReal

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Anna Rebowska

@anna_rebowska

7 months

The constant use of the term "special needs" is causing ableists to accuse people of wanting "special treatment". It's hardly a 'golden ticket' to have access to what others can take for granted.

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Anna Rebowska

@anna_rebowska

6 months

Dying of malnutrition is not a 'part of autism'.

Deanne

@1985Deanne

6 months

This poor boy and his mum AFRID is a serious eating disorder. Parents and children need proper care and support. It's not just fussy eating and the consequences are horrific. Very close to home this one. We need change now.

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Anna Rebowska

@anna_rebowska

1 year

I don’t want a seat at your table: co-production in mental health services

I don't want a seat at your table: co-production in mental health services

We’re being offered opportunities to neatly slot into already-decided structures and hierarchies... we're underpaid, undervalued, and we aren't setting the agenda.

www.nsun.org.uk

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Anna Rebowska

@anna_rebowska

8 months

We hear a lot about autistic people not belonging in psychiatric hospitals but less about suitable alternatives. Has anyone tried innovative models like dedicated crisis houses run by actually autistic people?

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Anna Rebowska

@anna_rebowska

3 years

@BylineTV @mikegalsworthy Why all those people upset by Eastern Europeans stilling their jobs not grabbing this fantastic opportunity with both hands? 🤔

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Anna Rebowska

@anna_rebowska

1 year

@ChildrensComm Great. Who is going to tackle the lack of appropriate provision for children with additional needs, schools ignoring clinical recommendations regarding reasonable adjustments and growing numbers of exclusions?

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Anna Rebowska

@anna_rebowska

7 months

@AutismBookClub

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Anna Rebowska

@anna_rebowska

4 months

@autismtalknd I am just as weary of the superpower narrative as I am of the disorder concept, if not more.

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Anna Rebowska

@anna_rebowska

3 months

@LucyRebelHeart That metaphor resonates with me as an important reminder.

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Anna Rebowska

@anna_rebowska

3 years

@Angelmouse72 There is too much fragmentation. Go to CAMHS for ADHD, go to peads for ASD, school to assess for dyslexia, bun fight who should take responsibility for assessing for LD. It should be a one-stop-shop neurodevelopmental assessment once difficulties are picked up.

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Anna Rebowska

@anna_rebowska

10 months

@NellAitch It's beyond ironic that her final message highlighted the futility of seeking help and yet people still feel compelled to come up with the 'reach out' platitudes in response.

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Anna Rebowska

@anna_rebowska

6 months

@laurenancona I'm sure there are places where some misguided ABA style interventions take place to try and enforce a varied diet but this isn't what I'm talking about.

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Anna Rebowska

@anna_rebowska

1 year

@AnnMemmott We do hear a lot about 'homes not hospitals' being the aim. However a lot of community placements seem to be just like hospitals with the same restrictions and approaches. Is it because care plans are always driven by behavioral theory regardless of the setting?

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Anna Rebowska

@anna_rebowska

6 months

SIM has been disbanded but the tragic consequences of criminalisation of suicidal behavior continue .

Teenager found dead in prison ‘seemed like a lost soul’, mother tells inquest

Mental health concerns raised by family of Annelise Sanderson, who was found dead at HMP Styal weeks before release date

www.theguardian.com

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Anna Rebowska

@anna_rebowska

2 years

‘Woeful scarcity’: NHS psychiatrist decries lack of mental health beds.

‘Woeful scarcity’: NHS psychiatrist decries lack of mental health beds

Patients sent to private sector ‘overspill’ beds with little incentive to discharge them, says insider

www.theguardian.com

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Anna Rebowska

@anna_rebowska

2 months

@AnnMemmott I mean, 30 years ago is not some ancient past. That's when I got diagnosed, and I was not considered to be some unique and rare specimen, never encountered before.

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Anna Rebowska

@anna_rebowska

1 year

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Anna Rebowska

@anna_rebowska

5 months

@Dr_BellaR All the administrative tasks and most jobs generated from the ward round to free up doctors to attend clinics? Like the role was originally designed for and sold as?

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Anna Rebowska

@anna_rebowska

3 months

Autistic inertia is similar to Newton’s inertia, in that not only do Autistic people have difficulty starting things, but they also have difficulty in stopping things.

A communal definition of Autistic ways of being

Click your language to read: English / Français / Español / Eλληνικά / Íslenska / Italiano / Polski / Português brasileiro / Click here to use Google translate to read in other languages /&nbs…

autcollab.org

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Anna Rebowska

@anna_rebowska

4 months

@LizPeecock You may get lucky with an individual therapist who is familiar with neurodivergent people. More important than the therapeutic model IMO.

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Anna Rebowska

@anna_rebowska

3 months

@sillyoldjen Making choices and decisions about anything and everything quickly gets exhausting and overwhelming. Simplifying lots of stuff through stable routines preserves energy and brain power for other things.

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Anna Rebowska

@anna_rebowska

6 months

I have mixed feelings about it. It is one thing to willingly offer your insights for the greater good and something else entirely for your most private thoughts to be mined by researchers without consent.

Sian Griffiths

@SianGriffiths6

6 months

NEW: Caitlyn, 16, charted her hopes and fears before dying at a top boarding school. Now @Cambridge_Uni researchers are studying the autistic teen’s diary in a new research survey looking for answers. Plus 10 min bill @duncancbaker @AmbitiousAutism 👇👇👇

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