Dr Andrew Grundy PhD @acgrundy Twitter profile

Pinned Tweet

Dr Andrew Grundy PhD

3 months

New paper out: Evaluation of a novel co-designed and co-delivered #training package to de-escalate violence and aggression in UK acute inpatient, PICU and forensic #MentalHealth settings @JPMHNursing @TheBeetleBox @xtraspirit @UoM_MHRG @NMSWResearch

Evaluation of a novel co‐designed and co‐delivered training package to de‐escalate violence and...

What is known on the subject? Clinical guidelines and staff training recommend using de-escalation over restrictive practices, such as restraint and seclusion Evidence suggests that restrictive ...

onlinelibrary.wiley.com

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Dr Andrew Grundy PhD

@acgrundy

3 years

After 5 years of work I have finally submitted my #PhD thesis! I'm not 100% happy with it, but thrilled to have got this far! I really hope I've served my participants well. Now it's time for a rest!

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Dr Andrew Grundy PhD

@acgrundy

5 years

In the light of #COVID19 , have heard people saying that they're "a bit OCD" about hand-washing/hygiene already. Whilst you may mean well, or are trying to be funny, it's actually trivialising OCD, which is a debilitating #MentalHealth condition. #OCD is not a quirk or a joke.

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Dr Andrew Grundy PhD

@acgrundy

6 years

In a bid to manage antipsychotic-related weight gain I took up running earlier in the year. Did my 25th #parkrun today, achieved a PB (28:43), and am now actually enjoying it! @beestonparkrun @parkrunUK #loveparkrun

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Dr Andrew Grundy PhD

@acgrundy

3 years

Absolutely thrilled that my #PhD corrections have been approved! I'm now officially Dr Grundy (just changed the bio!). So thankful to my supervisors @DrNicolaWright , @anne_feltonmh , and Prof Richard Morriss. And also to all of my participants. Now time to work on some papers!

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Dr Andrew Grundy PhD

@acgrundy

10 months

Gutted that my new psychiatrist is dismissive, unempathetic, patronising, and invalidating - just when I need to know someone understands & can help me. Had pinned my hopes on today's CMHT review that I would get some support (now there's a delusion).

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Dr Andrew Grundy PhD

@acgrundy

4 years

I'm so relieved that the University has given all PhD students a six-month extension. This has been such a stressful time. I will get this thesis done - I owe it to my participants & they are really keeping me going! #phdlife

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Dr Andrew Grundy PhD

@acgrundy

9 years

Excited that my very 1st paper has finally been published - all about user involved MH #careplanning #equipmh

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Dr Andrew Grundy PhD

@acgrundy

3 years

Delighted to share that I passed my #PhD viva today with minor corrections!!! Really thankful to @JuliaTerry123 & @GaryWinship for examining me & to @fimo18 for chairing. So grateful to my supervisors @DrNicolaWright , @anne_feltonmh , & Richard Morriss. #PhDone #WhyWeDoResearch

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Dr Andrew Grundy PhD

@acgrundy

7 months

Why do @NIHRresearch panels think that having a PhD and working in a University invalidate my lived experience? Why doesn't my 'involvement' count? Why am I considered 'professionalised'? I'm still in MH services. Do they understand what a Lived Experience Researcher is?

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Dr Andrew Grundy PhD

@acgrundy

5 years

When I first spoke out about my #psychosis : A friend asked my wife whether she feared for her life A youth-club leader asked if I was still safe to work with children & a hospital chaplain offered to exorcise me! Nothing prepared me for that #stigma . #TimeToTalk ?? #TimeToTalkDay

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Dr Andrew Grundy PhD

@acgrundy

2 months

Reminder that professionals have a responsibility for initiating & facilitating an 'engaging' therapeutic relationship. They can be the first to disengage from us - and sometimes with terrible consequences. 'Informal' service users deserve serious therapeutic engagement too.

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Dr Andrew Grundy PhD

@acgrundy

6 years

Absolutely thrilled that our new book 'A Research Handbook For Patient & Public Involvement Researchers' is now available open access (free!) here: via @ManchesterUP @Care_Plan #equipmh #PPI #coproduction #MentalHealth #health #research #whywedoresearch

A research handbook for patient and public involvement researchers

"A research handbook for patient and public involvement researchers" published on 01 Oct 2018 by Manchester University Press.

www.manchesterhive.com

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Dr Andrew Grundy PhD

@acgrundy

5 years

Jan 2018 I decided to try & tackle antipsychotic-related weight issues & started running with my (much fitter!) wife & began #Couchto5k . April 2018 conquered paranoia & we started #parkrun (Thanks Jude!). Today I ran my 50th parkrun & smashed my PB! @beestonparkrun #loveparkrun

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Dr Andrew Grundy PhD

@acgrundy

2 months

In 2007, a psychiatrist uttered a word that ruined my life: #Schizophrenia . The associated sanism & the almost universal misunderstanding of the term, has caused me & others real harm. I unexpectedly 'recovered', so they rebranded me: psychosis NOS. But damage remains. #NSAD24

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Dr Andrew Grundy PhD

@acgrundy

2 years

Graduation today! 😃 @UniofNottingham #WeAreUoN #PhD #HealthSciences

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Dr Andrew Grundy PhD

@acgrundy

4 years

If you're looking to use your #LivedExperience in research management and/or design and/or conduct, check out: 'A Research Handbook for Patient & Public Involvement Researchers' Available for free download! #PPI #involvement #research #whywedoresearch

A research handbook for patient and public involvement researchers

"A research handbook for patient and public involvement researchers" published on 01 Oct 2018 by Manchester University Press.

www.manchesterhive.com

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Dr Andrew Grundy PhD

@acgrundy

6 months

Really excited that our new Lived Experience Research Fellow roles @MentalHealthPRU are now open for applications. More details here: Please help spread the word!

UCL – University College London

UCL is consistently ranked as one of the top ten universities in the world (QS World University Rankings 2010-2022) and is No.2 in the UK for research power (Research Excellence Framework 2021).

www.ucl.ac.uk

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Dr Andrew Grundy PhD

@acgrundy

4 years

Today I am now a year older than the age my Dad was when he died, which was apparently the same age that his father had died too. Always wondered whether I'd make it this far, but think I may have broken the family curse!!! #Thankful

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Dr Andrew Grundy PhD

@acgrundy

4 years

Once #MentalHealth services have funding #parity , shorter waiting lists, lower access thresholds, greater access to crisis/respite admissions, & consistent compassionate care, then, maybe then, we can start telling people it will be OK to reach out! #WorldMentalHealthDay2020

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Dr Andrew Grundy PhD

@acgrundy

4 years

About this time Dec 2010, a keyworker gave me a flyer for a #Research #Methods training course for service users and carers & I was encouraged to apply. I saw my #LivedExperience could make a difference. I didn't know then that my Service User Researcher career had just begun!!

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Dr Andrew Grundy PhD

@acgrundy

5 years

Absolutely thrilled to have been given the 'Rising Star 2019' award today for my contributions to #research & to the @UoN_SHS community. Thanks to @fimo18 , @hollyblakenotts & panel for this amazing honour & to my mentors @DrNicolaWright & @anne_feltonmh ! #AHPGR2019 #phdlife

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Dr Andrew Grundy PhD

@acgrundy

3 months

Congratulations to another cohort trained in our ' #Research Methods for Lived Experience & Public Involvement Researchers' course. We've now finished an evaluation & engagement exercise where we've been asking: How can training better meet the needs of LERs? More details soon!

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Dr Andrew Grundy PhD

@acgrundy

5 years

Delighted to have jointly won 'Best publication by @InstituteMH member who is a person with lived experience of mental distress...' for this paper: 'Violence risk assessment and management in mental health: a conceptual, empirical and practice critique'!!

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Dr Andrew Grundy PhD

@acgrundy

2 months

Appalled by increasing evidence of the misogyny of anti-antipsychiatry criticals. I called out @StigmaB47868 for wishing sexual violence on Dr Jessica Taylor. Here's @sulmoney all dressed up as JT to mock & demean her. You can't fight one harm, by perpetuating another.

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Dr Andrew Grundy PhD

@acgrundy

3 years

Last big push to get a full draft of my #PhD thesis done. Still excited to be writing all about #MentalHealth inpatient perspectives and experiences of #risk assessment and management in an acute psychiatric setting... But feeling stressed right now too tbh!! #NearlyThere

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Dr Andrew Grundy PhD

@acgrundy

3 months

Can you imagine the DISTRESS of former MH inpatients discovering that: 1) They may have been filmed in their bedroom without knowing it & 2) Footage may have been sent to researchers for analysis WITHOUT consent? And all approved by @HRA_Latest @TEWV , @rdash_nhs & @EPUTNHS !!!

Stop Oxevision

@StopOxevision

3 months

If this horrifies you, please join us in contacting the Health Research Authority (in particular clinicians/researchers) You can also contact one of the three Trusts (EPUT, RDaSH, TEWV) involved if you think you might have been directly affected

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Dr Andrew Grundy PhD

@acgrundy

7 months

My CMHT have agreed to providing 6mths of clinical psychology! Can finally process psychosis-related & iatrogenic #trauma . I'm grateful to staff counselling service & visiting psychiatrist at Manchester Uni who listened to my needs & advocated for me, which made this happen!

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Dr Andrew Grundy PhD

@acgrundy

7 years

I'll be defending my PhD proposal later this afternoon, so that I can progress into my 2nd year & actually do the proposed work!

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Dr Andrew Grundy PhD

@acgrundy

5 years

My decade: Spent 1st part in & out of psychiatric units Took course in research/public involvement that changed my life 2013-16 1st #research post @UoN_SHS Meanwhile, re-stabilised on #Clozapine 2016-pres working on #PhD The power of experiential knowledge! #DecadeinReview

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Dr Andrew Grundy PhD

@acgrundy

4 years

I will forever be grateful to my 1st #EarlyIntervention Care Coordinator who introduced me to the #HearingVoices Network, the Talking with Voices approach, & to a local HVN peer group. It was life-changing! #WorldHearingVoicesDay @HVN_England

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Dr Andrew Grundy PhD

@acgrundy

3 months

Most people claiming a project or service or resource was #coproduced don't define the term, or unpack the values/principles, or demonstrate how the values were outworked in practice. We should suspect #fauxproduction until proven otherwise. #CoProWeek

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Dr Andrew Grundy PhD

@acgrundy

5 years

Had my annual blood tests (kidney/liver function, cholesterol etc), BP check and an ECG. A reminder of the cardio-metabolic risks of #clozapine , which I'm so glad are being monitored. But it's the price of mental stability for me.

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Dr Andrew Grundy PhD

@acgrundy

6 years

In times of stress I am tormented by three evil men who conduct painful experiments on me (psychosis). I take #Clozapine , which helps, and use #VoiceDialogue . Being a survivor researcher has empowered me! #BeBraveShareYourStory #WhyWeDoResearch

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Dr Andrew Grundy PhD

@acgrundy

7 years

Well, it felt like quite a grilling, and there were suggestions for improvement, but I've passed the first year of my PhD!!! #phdlife

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Dr Andrew Grundy PhD

@acgrundy

1 year

Keep getting asked what a 'Lived Experience Researcher' is - it's about bringing experiential knowledge and expertise to the whole research process; to study design, management, and conduct. I'm proud to have those credentials! #coproduction #MoreThanPPI #WhyWeDoResearch

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Dr Andrew Grundy PhD

@acgrundy

6 years

The Grundy family did our first @parkrunUK @beestonparkrun today! 5k felt far, but really enjoyed it. We'll be back next week!!

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Dr Andrew Grundy PhD

@acgrundy

5 years

First full week back in #phdlife and everything feels fresh & exciting again. Still struggling through the #clozapine brain-fog as I get to grips with my Findings chapter, but determined to get this done. My participants really keep me going, I owe it to them to do this well!

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Dr Andrew Grundy PhD

@acgrundy

6 years

Totally resonate with Eleanor Longden's notion that #hearingvoices can be "a survival strategy", representing "emotional pain" and "emotional conflicts". #MHNR2018

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Dr Andrew Grundy PhD

@acgrundy

7 months

I'm very grateful that @NIHRresearch have got in touch to ask for further information & that my email arguing for the recognition of Lived Experience Researchers has been forwarded onto senior figures across the NIHR for consideration.

Dr Andrew Grundy PhD

@acgrundy

7 months

Why do @NIHRresearch panels think that having a PhD and working in a University invalidate my lived experience? Why doesn't my 'involvement' count? Why am I considered 'professionalised'? I'm still in MH services. Do they understand what a Lived Experience Researcher is?

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Dr Andrew Grundy PhD

@acgrundy

2 months

If, like me, you're really distressed by all the "dangerous mental patient" talk in the media & socials right now, it's not your fault if you've internalised all this prejudice. Please try to talk to someone you can trust.

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Dr Andrew Grundy PhD

@acgrundy

3 months

We should be very suspicious of hierarchical organisations like Universities or NHS Trusts etc. claiming to be regularly 'doing #CoProduction '. How exactly are they sharing power/responsibility in equitable partnerships in such contexts/systems? #fauxproduction #CoProWeek

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Dr Andrew Grundy PhD

@acgrundy

5 years

I know I'm not the most macho of men(!), but I love GBBO's Michael for crying over struggling with the technical & not feeling ashamed! #RealMenCry #ManTears #GBBO

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Dr Andrew Grundy PhD

@acgrundy

2 months

Absolutely thrilled to have been invited to stage 2 of the @wellcometrust 'Innovative approaches to lived experience in mental health science' call. Glad there's good time for the team to get a full proposal in best shape & fully costed up ready for submission late November.

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Dr Andrew Grundy PhD

@acgrundy

5 years

Check out our new paper - 'Public involvement in health outcomes research: lessons learnt from the development of the recovering quality of life (ReQoL) measures' #hqlo #MentalHealth #Research #PPI #Involvement #PROM #whywedoresearch #ReQoL

Public involvement in health outcomes research: lessons learnt from the development of the recove...

Background To provide a model for Public involvement (PI) in instrument development and other research based on lessons learnt in the co-production of a recently developed mental health patient...

hqlo.biomedcentral.com

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Dr Andrew Grundy PhD

@acgrundy

4 years

I'm happy for the #academic success stories on here: theses submitted, vivas passed & graduations celebrated! In case you need to hear this: I'm into an extension & in my 5th year of my full-time #PhD . I had expected to be done by now. I've struggled. But we will get there!

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Dr Andrew Grundy PhD

@acgrundy

5 years

If you've not graduated with your peers, I know it hurts right now. I graduated late when my finals were delayed due to my #MentalHealth & then missed Masters graduations entirely because I was on psych wards. Please seek support if you're struggling. #Graduation2019 #graduation

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Dr Andrew Grundy PhD

@acgrundy

4 years

Really thankful to CMHT who have enabled me to have my monthly #clozapine blood-test at the GP's rather than the hospital. One small person-centred change, big difference! For more service user recommendations in how services can respond to #COVID ー19 see: #MadCovidRecommends

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Dr Andrew Grundy PhD

@acgrundy

2 months

Can't believe I'm nearly at the end of 5 months of the psychotherapy provision. Been helpful to process the trauma underlying the psychosis, the traumatic nature of psychosis experiences & the iatrogenic trauma I've experienced. I feel a lived experience narrative brewing!

Dr Andrew Grundy PhD

@acgrundy

7 months

My CMHT have agreed to providing 6mths of clinical psychology! Can finally process psychosis-related & iatrogenic #trauma . I'm grateful to staff counselling service & visiting psychiatrist at Manchester Uni who listened to my needs & advocated for me, which made this happen!

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Dr Andrew Grundy PhD

@acgrundy

5 years

Had a full meds review with CMHT's Advanced Clinical Practitioner. Full and frank discussion about #Clozapine side-effects & meds taken to alleviate some of them. Now have to have more routine blood tests and an ECG, but so glad they're taking my physical health seriously!

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Dr Andrew Grundy PhD

@acgrundy

6 years

Fantastic news: 'MPs approve 'Seni's law' to restrict use of force against mental health patients' via @Independent #SenisLaw #MentalHealth #restraint

MPs approve 'Seni's law' to restrict use of force against mental health patients

Bill tabled by Labour's Steve Reed had previously been blocked by Tory MPs but is now a step closer to becoming law after being passed by the Commons

www.independent.co.uk

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Dr Andrew Grundy PhD

@acgrundy

4 years

This is still one of the best critiques of #recovery & its operationalisation in #MentalHealth services that I've heard: ' #Neorecovery : A Survivor Led Conceptualisation And Critique' Also, do give @RITB_ a follow!

#Neorecovery: A Survivor Led Conceptualisation And Critique #MHNR2019

This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License. On the 13th September 2019, Recovery in the Bin delivered their keynote talk at the…

recoveryinthebin.org

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Dr Andrew Grundy PhD

@acgrundy

3 months

ANY proposed study on acute MH settings should undergo Ethical Review. Period. 'Service evaluations' should not be exempt. No 'usual care' loopholes. It's time to stand with this vulnerable population, who have been let down by those who should be protecting them. @HRA_Latest

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Dr Andrew Grundy PhD

@acgrundy

2 months

An important message - but this evidence is changing nothing! Look at how the press immediately speculates about the mental state of every mass shooter etc. The carelessness with how psychosis & violence gets reported. We urgently need media guidelines on this issue. #NSAD24

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Dr Andrew Grundy PhD

@acgrundy

6 months

We're also recruiting for 5 new Lived Experience Research Involvement roles @MentalHealthPRU . These ones are #involvement roles, not salaried staff roles. Deadline now Friday 5th April. More details here:

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Dr Andrew Grundy PhD

@acgrundy

7 years

Delighted to be giving a keynote at tomorrow's Annual #MentalHealth #Student #Nurse #Research Conference in Manchester! #UoMmentalhealth2017

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Dr Andrew Grundy PhD

@acgrundy

8 months

Really looking forward to interviewing more people about their experiences of the hunger side-effects of antipsychotics to help us co-develop a support-package of resources.

SUSTAIN Research

@SUSTAIN_MH

8 months

Dr Andrew Grundy ( @acgrundy ) is a Lived Experience Researcher working on the SUSTAIN study. He has personal experience of psychosis, Early Intervention services, antipsychotics, and hunger side-effects. So there's a friendly face doing the SUSTAIN interviews!

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Dr Andrew Grundy PhD

@acgrundy

6 years

Absolutely thrilled that the EQUIP trial paper has been published: 'Embedding shared decision-making in the care of patients with severe and enduring mental health problems...' via @PLOSONE #MentalHealth #careplanning #involvement #RCT #research #equipmh

Embedding shared decision-making in the care of patients with severe and enduring mental health...

Background Severe mental illness is a major driver of worldwide disease burden. Shared decision-making is critical for high quality care, and can enhance patient satisfaction and outcomes. However,...

journals.plos.org

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Dr Andrew Grundy PhD

@acgrundy

23 days

Apologies all, I'm not going to post again until I'm in a better situation & I also need a break from social media.

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Dr Andrew Grundy PhD

@acgrundy

7 years

Amazing keynote from @Shrink_at_Large on 'Trauma-Informed Care', addressing trauma & adverse childhood exp's in mental health care #MHNR2017

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Dr Andrew Grundy PhD

@acgrundy

4 years

Had my annual medication review via phone with CMHT. Talked about #clozapine side-effects (using the GASS-C, I think), cravings, mood, and (of course!) risk. Felt very weird over the phone. But good to reconsider risks/benefits of meds & glad for ongoing monitoring of issues.

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Dr Andrew Grundy PhD

@acgrundy

4 months

A welcome retraction. Note even when #Oxehealth declare their COIs there is a disturbing lack of reflexivity. Still waiting for reliable evidence of the effectiveness & safety of an intervention that has been rolled out without proper ethical scrutiny.

RETRACTION: Reduced self‐harm on acute mental health wards following the implementation of a...

RETRACTION: M. Kekic, A. Rose, C. Baker, and D. Bayley, ‘Reduced self-harm on acute mental health wards following the implementation of a vision-based patient monitoring system: Evidence from five...

onlinelibrary.wiley.com

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Dr Andrew Grundy PhD

@acgrundy

4 years

Heading off to the #clozapine clinic. So glad that the Community #MentalHealth Team centre is currently open again & that I can pick up my meds & see my CPN *in person* (note my emphasis!). Hoping things will stay that way during #Lockdown2 & beyond, but fearing that they won't.

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Dr Andrew Grundy PhD

@acgrundy

6 years

Thrilled to represent all the service users & carers that have worked on EQUIP over the last 5+ years today, as we picked up the @NIHRCRN @McPinFoundation @MQmentalhealth Award for 'Service User & Carer Involvement in Research'! #equipmh #PPI #coproduction

EQUIP

@Care_Plan

6 years

A small delegation from the EQUIP team at the NIHR CRN McPin MQ awards ceremony today collecting the service user and carer award for involvement in research obo EQUIP CI Prof Karina Lovell @karinalovell

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Dr Andrew Grundy PhD

@acgrundy

3 months

If you're not talking about POWER & transparently addressing power dynamics in your team, you're not doing #CoProduction . This requires critical thinking, consciousness-raising, and reflexivity. #fauxproduction is naive about the manifestations of power in teams. #CoProWeek

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Dr Andrew Grundy PhD

@acgrundy

4 years

If you're organising an event on #COVID19 & #MentalHealth #COVIDmentalhealth please consider inviting user-led @MadCovid to present their work. I've had the pleasure of working with their team & they are doing fantastic work, such as #MadCovidRecommends :

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Dr Andrew Grundy PhD

@acgrundy

4 years

Fantastic @MadCovid #MadMeetup tonight! We hope that out of the collective discussion of panelists & audience members we can produce some kind of guidance document for #MentalHealth services & professionals on how best to support us at this difficult time. So, watch this space!!

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Dr Andrew Grundy PhD

@acgrundy

5 years

As a #suicide attempt survivor, I really want to encourage people to reach out and talk, but we really need #traumainformed services that are prepared to listen and support & we need more safe spaces like Crisis Houses too! #parity #SuicidePrevention #WorldSuicidePreventionDay

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Dr Andrew Grundy PhD

@acgrundy

4 years

As I'm in cohort 6, I've been booked in for my #COVID19 vaccine tomorrow - so relieved. As well as providing protection from the virus, I think it should also really ease my health #anxiety & #paranoia . Rarely have I been thankful for having a #MentalHealth diagnosis!

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Dr Andrew Grundy PhD

@acgrundy

6 years

Thanks so much to all the #MentalHealth nurses @NottsHealthcare who have had an impact on my care & support thus far - some of you have literally saved my life! #InternationalNursesDay #IND2018 #MHnursingFuture

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Dr Andrew Grundy PhD

@acgrundy

4 years

Whilst it's disappointing that this year's Mental Health Nursing Research conference can't happen in person (I'll miss seeing friends & colleagues!) am thrilled that it can happen online. Check out the programme & join for free: @MHNRconf #MHNR2020 #mhTV

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Dr Andrew Grundy PhD

@acgrundy

7 months

Great @NHSEngland Digital Technologies conference today. Fab presentations from @SchrebersSister @gbrennancafc @AQuinnUnbroken @StopOxevision . Vital discussions questioning the ethics of current digital tech models in acute care - but WHY are we only addressing these issues now?

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Dr Andrew Grundy PhD

@acgrundy

7 months

We need to lock them in to keep them safe, they said. But the evidence suggests otherwise. Can we now finally pursue the least restrictive option here? Will be interesting to see if/how ward staff respond to this evidence.

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Dr Andrew Grundy PhD

@acgrundy

3 months

What can we say about NHS Trusts who implement unevidenced interventions in acute MH settings via ethically dubious research practices? They clearly cannot be trusted to provide evidence-based, safe & ethical care & treatment to this vulnerable group. @NHSEngland take action!

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Dr Andrew Grundy PhD

@acgrundy

4 years

@DisInHigherEd Hi I'm Andrew, a Service User Researcher & PhD student @UoN_SHS , living with #psychosis . I really wish the general public knew that people with #schizophrenia are way more likely to be harmed by others, than to harm others. #MentalHealth #stigma #IDPWD2020

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Dr Andrew Grundy PhD

@acgrundy

6 years

Some take home messages from #MHNR2018 for me: we need to fight for investment & #parity , provide an evidence-base for MH nursing, pursue #coproduction in research, challenge abuses of power, & protect our human rights!

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Dr Andrew Grundy PhD

@acgrundy

5 years

"These assessments are not only not fit for purposes, they are actually doing harm" How many have to suffer & die before the government takes action? ' #DWP shamed in parliament as MP breaks down reading list of #suicide victims' via @MetroUK

DWP shamed in parliament as MP breaks down reading list of suicide victims

Debbie Abrahams struggled to hold back tears as she read more than 20 names of those who had died after experiencing problems with the benefits system.

metro.co.uk

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Dr Andrew Grundy PhD

@acgrundy

3 months

Reflections on #CoProWeek 1). There's a concerning lack of knowledge of the #CoProduction literature from many claiming that they are achieving it 2). It's evidently been diluted & co-opted 3). #fauxproduction is rife & needs calling out 4). We need honesty & transparency.

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Dr Andrew Grundy PhD

@acgrundy

4 years

This year's International #MentalHealth #Nursing #Research Conference will be online 9th/10th June. Whilst it's really disappointing that we can't run it in-person, it still promises to be a great event! More updates via @MHNRconf #MHNR2021 Book now:

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Dr Andrew Grundy PhD

@acgrundy

6 years

Gearing up to attend my first Research Ethics Committee meeting tomorrow. Preparing to answer questions about my proposed PhD study! Feeling apprehensive. #REC #PhDLife

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Dr Andrew Grundy PhD

@acgrundy

4 years

Just back from having the first dose of my #COVID19 vaccine. Was so anxious, but it was a smooth and easy process, plus all the staff were fantastic! #ThankYouNHS

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Dr Andrew Grundy PhD

@acgrundy

5 years

Just gave my own concurrent on 'A feasibility & acceptability study of the Talking With Voices intervention amongst adults with psychosis' --- and survived! #MHNR2019

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Dr Andrew Grundy PhD

@acgrundy

5 years

The next time we complain about the intricacies & time it can take to get #Research #Ethics approval, let's not forget how we got here - the horrors of Nazi experimentations & their many victims, all committed in the name of 'science'. #NeverAgain #DoNoHarm #HolocaustMemorialDay

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Dr Andrew Grundy PhD

@acgrundy

3 months

Given the power dynamics of risk assessment and management in mental health services, the notion of 'coproduced safety plans' is utterly absurd. #fauxproduction #CoProWeek

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Dr Andrew Grundy PhD

@acgrundy

7 years

Really constructive meeting with my CPN today, talking stress-vulnerability, #mindfulness , #Clozapine levels, & managing my slightly raised blood sugar level. Lots packed in, but so helpful!

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Dr Andrew Grundy PhD

@acgrundy

5 years

I would argue that the #media need to look at how they report on violence and mental illness: 'Opinion: It's time to end the fear and #stigma of complex mental health problems such as schizophrenia' via @Independent #MentalHealth

Opinion: It's time to end the fear and stigma of complex mental health problems such as schizophr...

As a society we need to understand what it’s like living with more complex conditions such as psychosis and borderline personality disorder

www.independent.co.uk

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Dr Andrew Grundy PhD

@acgrundy

7 years

After getting a grant from @UoN_SHS to form a Service User & Carer Advisory Group for my #PhD study, excited to have set up the group! #PPI

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Dr Andrew Grundy PhD

@acgrundy

6 years

As I say every year, #BlueMonday (the most 'depressing' day of the year) is pseudoscience and it propagates a definition of depression & its treatment that trivialises it. #bluemonday2019 #MentalHealth

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Dr Andrew Grundy PhD

@acgrundy

4 years

Exciting plans are being made for next year's #MentalHealth #Nursing #Research Conference 9th/10th June 2021, @theRCN HQ London. Our theme will be: 'Thinking ahead: New futures for mental health nursing' Call for abstracts now open! @MHNRconf #MHNR2021

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Dr Andrew Grundy PhD

@acgrundy

6 years

Here's why I wanted to get involved with #equipmh - in fact, it's the driving force for my involvement in any research project! #WhyWeDoResearch #PPI #coproduction

Be Part of Research

@NIHRtakepart

6 years

Joint winner of the Mental Health #ServiceUserAwards : #EQUIP . Service user Andrew Grundy explains why he chose to get involved in the study and how it benefited him #MentalHealthAwareness @McPinFoundation @MQmentalhealth @Care_Plan

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Dr Andrew Grundy PhD

@acgrundy

3 months

If you're not talking about the VALUES shaping your SHARED DECISION-MAKING, you're not doing #CoProduction . SDM requires values-driven reflexivity on power, responsibility, accountability, & equity - & how they operate in decision-making processes. #fauxproduction #CoProWeek

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Dr Andrew Grundy PhD

@acgrundy

6 years

Early start, heading up to Manchester for the EQUIP (Enhancing the quality of service user involved care planning in #MentalHealth services) conference. Check out #equipmh throughout the day! #FF @Care_Plan

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Dr Andrew Grundy PhD

@acgrundy

3 months

If you compromise on any of the VALUES of #Coproduction , you stop doing coproduction! You might claim you were informed by coproduction principles & transparently report where those were not met & why, but you can't then disingenously claim you achieved coproduction. #CoProWeek

The McPin Foundation

@McPinFoundation

3 months

Day 3 of #CoProductionWeek & we've got the next 2 tips from our #McPin10for10 resource!🧵 Co-production seeks to build a consensus but compromises are sometimes needed in research studies, including co-produced ones. Read the resource to find out more 👉

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Dr Andrew Grundy PhD

@acgrundy

2 years

Feel like I need to reintroduce myself after a Twitter break (and in case Elon Musk wants to say Hi!) I'm Andrew, a #LivedExperience Researcher now mainly working on @SUSTAIN_MH . I tweet about all things #MentalHealth , including news, views, experiences, and #research .

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Dr Andrew Grundy PhD

@acgrundy

6 years

Absolutely buzzing after meeting with the Research Ethics Committee in Cambridge this morning. Some tweaks and clarifications coming my way, but it was a really constructive & friendly meeting. Relieved! #PhDlife

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Dr Andrew Grundy PhD

@acgrundy

7 months

In response to a DM suggesting hypocrisy: I have no COI here as I'm not a member of @StopOxevision If I were, I would 1) always Report it 2) explicitly Discuss it & 3) flag it as a possible Limitation of research with a COI. @StopOxevision have flagged concerns & I share them.

Dr Andrew Grundy PhD

@acgrundy

7 months

@StopOxevision Of the Background acute care lit, also note: Ndebele et al., 2022, Oxehealth authors x2 (COI declared) Barrera et al., 2020 Oxehealth x2 (Competing interests: 'None declared'). Clark et al., 2022 x3 authors COI declared. Ndebele et al. 2023 x2 authors COI declared.

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Dr Andrew Grundy PhD

@acgrundy

7 years

Had my annual #physical & #emotional health check-up with GP (good practice!) and talked about #Clozapine related weight gain, cravings, & need to exercise more. Now tracking calories with an app (tedious!) & started jogging after dark (the only time #paranoia will allow me to!).

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Dr Andrew Grundy PhD

@acgrundy

3 months

ALL studies/evaluations on acute MH wards should require informed consent from participants or consultee assent. No opt-out models. Fully/accessibly inform, assess capacity to consent & take enthusiastic consent &/or adopt a justifiable assent model. No exceptions. @HRA_Latest

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Dr Andrew Grundy PhD

@acgrundy

7 years

I know many of my followers will be struggling today, so won't wish you all merriment - but I pray you all have hope today whatever you're going through. Keep on going on.

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Dr Andrew Grundy PhD

@acgrundy

3 months

An important paper from @TheTealTigerUK on the different kinds of supervisory needs of Lived Experience Researchers. Having seen an early version, this has already significantly impacted my own thinking & practice towards giving & receiving supervision.

Catrin Eames

@CatrinEames

3 months

📣New paper exploring how to support lived experience researchers through supervision 📣 Another important study from @TheTealTigerUK with @peteleo68 @goldingeagles and others @LJMUPsychology @RCBB_LJMU @LJMU_Health @DClinPsyLiv

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