Campaign to stop Oxevision, body worn cameras and other camera surveillance systems being used to breach patient rights on UK psychiatric wards
#StopOxevision
If you’re new here, read our open letter on why we want to stop the rapid rollout of Oxevision and other video surveillance in psychiatric wards
See link in bio for Trusts currently using it- we’ve sent multiple FOI requests on its use
And sign the petition to
#StopOxevision
Open letter on the use of Oxevision in patient settings: read and sign the petition to stop the rollout of Oxevision and invasive video surveillance in psychiatric hospitals
By
@StopOxevision
and supported by NSUN
#StopOxevision
🧵Mad activism is painful: a thread
I'll start by saying we're so grateful for everyone who has offered support, raised noise and supported this campaign so far.
But as usual, there's a noticeable silence from a lot of people (professionals, academics, charities etc)
we have been made aware that a key figure at
@rcpsych
is working as an advisor to Oxehealth without declaring this as a conflict of interest. We know the Royal College of Psychiatrists are currently writing a position statement on Oxevision and 1/
CN abuse
We’ve been worried about this for months but to see evidence it’s happening is sickening
A member of staff films a cctv screen of a patient while they’re naked and doing sexually explicit acts while unwell. Then shares it. Police say, carry on
Today we are at
@NHSEngland
Digital Technologies conference. We are presenting, based on our lived experience and extensive FOIs / research, why surveillance technology is not compatible with basic patient rights or safe care
#StopOxevision
Imagine being unwell and watched through a camera, but with only a reclining chair to sleep on
This is a reality.
Galling that Trusts are willing to spend hundreds of thousands, or even millions, on this system only to watch a patient sleep on a chair
Patients take a risk when speaking out and this person is incredibly brave to do so
As well as the issues raised in the article, we received images from a different person at the same Trust. When it’s dark in the garden, they can see full view of the screen in the office
This is an experience someone has shared with us about being on a ward that has Oxevision
It is a real-life example of our concern that Oxevision is enabling poor practice and being used as a response to inadequate levels of staffing
Great to see this was taken seriously and article has been retracted. The authors of this paper work for Oxehealth (lead author is the communications strategist) which is a clear conflict of interest when evaluating their own technology and absolutely should have been declared.
This is utterly heartbreaking, and shows the devastating consequences of staff indifference to patient suffering.
Whilst he was meant to be on constant observations, the CCTV enabled staff to sit in the office instead, vaping, doing each others hair and scrolling on their phones
In July 23 we did an FOI to Cambridge and Peterborough NHS Foundation Trust asking if they used Oxevision. They said they didn’t. However we found publicly available information that showed significant expenditure to Oxehealth.
So we asked again.
Thread (buckle up for this one)
What happens if a ward does agree to switch oxevision off for a patient? Well, they have no way of knowing if it’s been done because the light is on regardless
Millions of pounds are being spent on oxevision and this is the 'technology' turned to when patients want to opt out
Four employees of Oxehealth publish a paper concluding “preliminary support for wider rollout of [Oxevision]”
I’m not a researcher so perhaps someone needs to explain to me how this works. Isn’t a conflict of interest usually declared in the paper?
This is the most disgusting way to treat patients. being recorded without knowledge or consent is abuse and a human rights infringement
We deserve better than this
Another powerful lived experience piece up on the website today: What is camera based surveillance like for survivors of sexual violence? And what are its implications?
Sadly relevant in the context of the news this week
(Until a year's time when we've done all the work and they can publish an academic paper about it or present at a conference and get all the credit without being there at the hardest bit)
The problem with mad activism is it's so hard to step back, even when you know it's too much. Because it's so wrapped up in trauma and grief and the pain that happened to us we want to save others from. And because nobody else fights if we don't.
Patients need the right to choose whether they are happy to be surveilled by Oxevision
They should not have to ask to cover it. It should be assumed that they do not consent until consent is given
Given it’s intrusiveness it may still interfere with their care even when covered
Appalling thread about Oxevision
Another person only discovering it’s even been used on them because of our campaigning.
This is not right yet it continues on and on
a while ago, I shared this pic of a 136 suite where I spent 5 long days in 2023, and was kindly informed that there was an Oxevision unit (circled) alongside standard CCTV. I had no idea. I was never informed that Oxevision was in the room
surveillance is so deeply embedded in MH services now. It's unbelievable almost all Trusts are using Oxevision, CCTV and/or body worn cameras yet only now following service user campaigning have
@NHSEngland
pointed out to trusts they *should probably check if this is legal*
we are a small group of survivor campaigners. We operate anonymously for our safety. It is not acceptable to share our identities or to speculate and ask people if they are part of the group. To clarify, Andrew is not part of StopOxevision, though we are grateful for his support
In response to a DM suggesting hypocrisy:
I have no COI here as I'm not a member of
@StopOxevision
If I were, I would 1) always Report it 2) explicitly Discuss it & 3) flag it as a possible Limitation of research with a COI.
@StopOxevision
have flagged concerns & I share them.
This is what consent around Oxevision currently looks like
Patients can’t just ask for it to be turned off. If that request is made, an MDT meeting should be held within 72 hours and a decision will be made dependent on capacity, risk assessment and clinical recommendation
“Technology is promoted to improve patient safety and ease pressure on staff but not as a tool to improve compassionate support for patients... For me, the reality was that I felt unsafe, uncared for, scared and alone”
Brilliant blog by Sophina on her experience of Oxevision
"It terrified me that there was no way of knowing when I was being watched or by whom. I was reminded of past trauma and I believed I was unsafe on the ward. I spent many nights lying on the bed frozen with fear..."
New blog by Sophina Mariette:
New on the website: another lived experience perspective of Oxevision, a camera based monitoring system used in NHS psychiatric hospitals
‘I still don’t sleep in a bed and haven’t for 8 months’
There is a lot of confusion among patients and professionals about what Oxevision is and what it can and cannot do. One of our team has made this poster, aimed at advocates helping patients subject to Oxevision, so they can help patients make informed choices
TW inquest
We have been made aware of another death where the inquest mentioned Oxevision use. We won’t share the link due to self-harm method described.
Thoughts are with this person’s family.
New lived experience piece up on the website. The level of lying and covering up here is appalling
“We were given leaflets which included a photo of what staff would be able to see; a clear CCTV image of a patient in their bedroom”
Job advert for a Junior Data Annotator at Oxehealth
Extremely concerning
That ‘data’ is video images of patients in their bedrooms in NHS psychiatric wards. Many of whom are being filmed against their will.
It's the people who don't rock the boat until it fits their own aims and agendas.
But just as with SIM, they'll be making excuses in a few months time for why the never spoke up about Oxevision, why they didn't raise concerns, why they sat on information and left the work to us
New lived experience piece shared with us and is now available for you to read on our website
“This patient had no idea that, not only were staff watching her, but I could see her clearly too”
We look forward to receiving formal apologies from the CQC, NHS England and individual NHS Trusts, as well as commitments to removing surveillance technologies from bedrooms. During this conference, our presentation showed our survivor research and lived experience perspectives
“I’d been there for hours without a face-to-face check being done”
New lived experience piece on our website where a patient gets a shock when they discover there’s a camera in their bedroom - after a week on the ward.
We've complied a new spreadsheet which gives a simpler overview of the types of surveillance each English MH trust is using. This includes Oxevision, CCTV and body worn cameras, some trusts are big offenders whilst there are a few not using any of these
A callout for anyone willing and able to contribute towards drafting a letter and review of evidence around Oxevision. Particularly if you have knowledge about data protection/human rights/privacy/CCTV law. Please dm us
Is this ‘care’?
A camera in the room of an unwell persons bedroom (including children), with a private company remotely monitoring them 24 hours a day. If they deem it important they ring the hospital and tell them to intervene
“These camera would be able to see inside patient bathrooms… you could watch a patients every last movement”
Oxevision: a staff’s perspective - up on the website now
RT
@LuckyErica3
🧵: The Stop Oxevision poster is finally finished! I wanted to contrast the loneliness and betrayal people reported with staff turning towards their own comfort using visual based monitoring systems.
#stopOxevision
What are patients actually told about Oxevision? Not a lot apparently.
New spreadsheet outlines all the oxevision posters we have access to and the information they do and do not include
This is massively concerning and a huge breach of patient rights
how many people have to die before action is taken?
Here is central and North west London (CNWL)'s latest CQC report which discusses the death of a patient in the 136/hbpos suite.
Have you been on a ward, 136 suite or seclusion room with Oxevision? We are looking for people to share their experiences with us
We would also welcome speaking to staff who work on these wards. You can speak to us anonymously
If you weren’t aware, Oxevision looks like this
Next week is mental health awareness week and the theme is movement
Did you know that Oxevision tracks patient movement in their psychiatric ward bedrooms? Which is then used to refine Oxehealth’s product and research?
Patients usually don’t consent to this
#MomentsForMovement
“Have you assessed the likelihood of data causing any
unwarranted distress or damage to individuals concerned?”
Answer? Four pages of redacted text
Nothing to see here
Lancashire and South Cumbria foi response about
@StopOxevision
interestingly have decided the redact a very long section about the potential risks of the technology which is concerning…
We have also had the experience of being in hospitals that have surveillance like CCTV and oxevision and raising this concern and being told we are ‘paranoid’ or that ‘staff don’t come to work to hurt patients’
Sometimes they do and camera based surveillance facilitates it
Tales from the Ward: Katie
What’s it like to learn you’ve been being filmed only after you leave hospital?
This is the latest in our series of patient experiences about camera based surveillance. Please get in touch if you’d like to share your own story
Thanks
@NSUNnews
for including this blog of ours in their July 2023 media round up. So much other brilliant stuff there too
Check out the podcasts with
@micha_frazer
if you want to understand the political landscape that allowed Oxevision to flourish
Norfolk and Suffolk had a 3/4 month trial of using body worn cameras in PICU, adult and later life teams but also by community staff for patient home visits (!!!). They're currently deciding if to proceed with continuing to use bwc so now would be a good time to raise concerns
New blog ‘Surveillance is not safety- an analysis of Essex Partnership’s use of Oxevision and the inconsistency of CQC’s position on the technology’
How are EPUT implementing Oxevision in the context of the inquiry investigating 1500 deaths at the Trust?
are concerned that such an undeclared conflict of interest could be damaging. We encourage members of the college, as well as those with lived experience of psychiatric surveillance, to contact
@rcpsych
to impress upon them the importance of safeguarding patient human rights 2/
This has been months of exhausting work – without which the use of these technologies would have gone unchecked. Formal apologies and commitments to change would demonstrate a recognition of this evidence.
Watching this video of
@CWPT_NHS
new low secure ward for autistic people, "designed with autistic people in mind". It's utterly horrific, so many seclusion rooms and what looks like lots of built in CCTV?
Our new blog discusses the role
@NHSAccelerator
and
@AHSNNetwork
played in rolling out Oxevision and SIM
@StopSIMMH
We also discuss wider issues of privatisation and digitalisation of healthcare
The NHS Innovation accelerator has promoted multiple harmful innovations now, allowing widespread, rapid scale out without any evidence. This includes Oxevision and SIM where in both cases legal concerns have been raised. Why wasn't due diligence done initially?
@NHSAccelerator
Congrats to the 9th cohort of
@NHSAccelerator
fellows & welcome to our community of innovators, which is nearly 100 strong 🙌. These
#InnovationsinHealthcare
offer potential solutions to some of the most pressing health care challenges facing our society:
More ways in which Oxevision could collect data about you without your consent! We already know the Oxehealth system is used to tell patients they did/didn’t have a good nights sleep, regardless of their subjective experience
@richardbutchins
@AQuinnUnbroken
@StopOxevision
What's interesting is the footage is only available for 24 hours. So enough time for the trust or police to get it for a prosecution but no time for people reporting abuse.
Care Protect is a surveillance system used in care homes and the private sector, often CAMHS wards. The CCTV is remotely monitored off the ward by private security personnel
This blog tells the experience of a young person on a ward with Care Protect
‘We believe that the information you have requested may contain sensitive information such as… how data will be collected, shared and kept secure’
They are legally required to show how data will be collected and shared, this is a very concerning excuse!
Having met with Rethink before they released this statement, we were also extremely disappointed
Time for the big mental health charities to stand up for what’s right here and not hedge their bets
Horrified that people living with paranoia (and more) are being monitored by surveillance technology in mental health units. Like something out of a horror film. Should be front page news. Here’s one mental health charity’s frankly half-assed response
East London did share their seclusion leaflet but this doesn't mention Oxevision at all and you'd be forgiven for thinking it was advertising a city break rather than being put into solitary confinement with a camera and a plastic mattress on the floor
'it's not cctv'
'we can only see a live feed for 10 seconds when we do vital signs'
AND YET
- there's a 'view room' button allowing staff to 'see a clear live feed of the room' so they have another way of 'checking up on patients without going through the vital signs feature'
oh hey,
@sabpNHS
's FOI response links to the training video with this admission in it:
oxehealth knows patients hide under bedsheets "to have some privacy" from oxevision.
they know what they're doing to people.
they know it's an invasion of privacy.
they just don't care.
why do they think commercial interests outweigh the public interest in transparency?
how can they say its in the early stages of implementation when they’ve spent a significant amount of money on it for 2 years?
why would disclosing DPIA/business case risk Oxehealth’s security?
CQC have been one of the few organisations who haven’t responded to us despite multiple requests to reach out and arrange a meeting
It’s all very well saying the right things at a conference but given their promotion of Oxevision, this is galling
#rrnconf23
Practical, tangible support would help right now- information sharing, researching, writing, networking
This doesn’t have to be publicly- we know there’s lots of reasons survivors and professionals can’t put their name to something. Our DMs/email are always open, anon guaranteed
Dear Friends who are utterly drained from carrying resistance movements like
#StopSIM
and
#StopOxevision
. What do you need other survivors and professionals to do to carry weight and make sure these things don't happen again? xx (Do ignore if it would cost spoons to say)
We have noticed some comments today about our position on
#Oxevision
and participation at the Mental Health Network Annual Conference.
Here's a short thread outlining our position on the matter 👇
Having cameras there, even if someone isn't watching 24/7, means to patients they are being constantly observed. Because if you don't know when someone is looking you'll feel the permanent sense that they *could* be looking.
*Big Brother is always watching* sort of thing
i nearly threw something when i read this, are you fucking kidding me, they really want to argue covert surveillance is better for privacy and dignity than overt? in the *equality screening tool*!?
And remember, mental health patients are just the guinea pigs for testing equipment. A convenient population given the ways we're stripped of our rights and autonomy.
But the tech, used against people's will, is building algorithms so they can use the technology for other things
Space update. Launch preparations went smoothly last night. Launch window now 0900-1300 MT, 1600-2000 UK today.
@MayoClinic
team
@freemanwd
& Michelle Freeman heading to launch site. Thank you to C-AST for arranging this flight with
@exosaerosystech
And despite this here's a new hospital built this year which is just endless seclusion rooms, 'dog pens' for gardens, and some CCTV cameras to watch patients so people's won't even have contact with staff
Update:
@Southern_NHSFT
have responded to our latest FOI request and it’s pretty interesting
Firstly, call me old fashioned, but shouldn’t the equality impact assessment and policy on Oxevision be completed before you put cameras in children’s bedrooms?
Southern Health said they weren’t using Oxevision in response to FOI last year
In fact, this was a bit of a cheeky omission- they had *installed* it but it hadn’t gone live
Disturbingly, in only their CAMHS wards. With a view to roll it out to adult services in the future
New on the website, Tales from the Ward: David
We have been talking to people who have experienced Oxevision and will be sharing their experiences
This is David’s story
We did not hear back until March 24. The response was from their chief executive which is unusual as FOIs are usually responded to by FOI officer
Turns out CPFT have been planning to start using for two years
Documents we asked for were refused based on various exemptions
Southern Health said they weren’t using Oxevision in response to FOI last year
In fact, this was a bit of a cheeky omission- they had *installed* it but it hadn’t gone live
Disturbingly, in only their CAMHS wards. With a view to roll it out to adult services in the future
10 benefits of body worn cameras in healthcare (according to the manufacturers)
benefit one: even quicker and simpler ways of criminalising patients. Classic Essex partnership leading the way in harmful and criminalising approaches in mental health care
Open letter on the use of Oxevision in patient settings: read and sign the petition to stop the rollout of Oxevision and invasive video surveillance in psychiatric hospitals
By
@StopOxevision
and supported by NSUN
#StopOxevision
we have reorganised our spreadsheet which lists where oxevision is being used. You can view the trusts using oxevision and follow a link to their documents and policies, info on consent processes and CQC inspections - this will continue to be updated
Tales from the Ward: Tara’s story
Over the next few weeks we will be publishing the experiences of people with experience of Oxevision and similar camera surveillance systems
Next they identify how, as the technology is used in CAMHS wards, children may also be seen undressed and the system therefore may be misused by a paedophile staff member
But sure, Oxevision definitely reduces the risk of sexual abuse and increase patient safety
‘there is a need for our staff members to have a 'safe space' to be able to have free and frank discussions without exposure to public scrutiny’
Utterly appalling
Hold on everyone, here's a lesson in how to NOT do service user engagement brought to you by
@MaudsleyNHS
and
@Oxehealth
Step one: talk to people but ignore their concerns completely and carry on implementing your restrictive technology anyway
EXCL: Children and adults on NHS psychiatric wards are being monitored on a system that includes videos images which enable staff to see them naked in their own bedrooms, sparking concerns about privacy and consent. A campaign against it has been launched.
For example, here is an NHS employee, on an Oxehealth webinar intended to sell the system to a US audience. This ‘story’ told as a lighthearted anecdote is one of the saddest things I ever heard
An elderly man trying to set the Oxevision alarm off so staff will come to him
So while this case is horrifying it does not surprise us. We have seen mental health staff with their personal mobile phone in one hand and the Oxehealth tablet in the other. Or playing with their phone when meant to be watching the CCTV screen
Surveillance is not safety
So CPFT have been spending money on this system for two years but haven’t started the pilot. They say they plan to start using it ‘in the next few months’ but allegedly there are no risk assessments, patient information leaflets or policies/procedures to show
‘Sponsored by Oxehealth’ are the key words you need to understand this report - yes another one in HSJ
A private tech company about to launch their new sleep product
At a recent roundtable event, run in association with
@Oxehealth
, healthcare professionals and industry experts came together to discuss how making hospitals more conducive to sleep might benefit patient experience and wellbeing.
Read the report:
New foi response from Coventry and Warwickshire who use Oxevision on 2 dementia wards They acknowledge there's a risk of staff using the technology inappropriately and that there's no way of identifying who was doing this but consider the risks negligible
We would add: it’s frustrating that Rethink are quoted in this blog when their response to Oxevision has been so tepid (they met with Oxehealth before meeting with us - read their both siding statement for more)
We have worked non-stop on this for almost a year
This is an email received by someone currently on a
@TEWV
ward
It is outrageous that they are only now developing a policy on Oxevision, despite having it installed since 2021
Why was it not developed before implementation? Why are there questions over how long data is stored?
Here's part of SLaM's FOI about Oxevision. As we saw with SIM, trusts + NHSE + AHSN relied on an external company to have done due diligence, risk assessments and considered the legal issues of the 'innovation'
Trusts need to do their own assessments
This is crucial to understanding how Oxevision was rolled out without scrutiny to thousands of psychiatric ward bedrooms
It’s galling NHS Innovation Accelerator is trying to use ‘lived experience’ to legitimise commercial interests
Encourage everyone to
#BoycottNIAInvolvement
The NIA is the mechanism by which SIM - criminalising distress and illness with cops in care plans - and OxeVision - video surveillance in bedrooms and bathrooms on psych wards - were rapidly expanded. Note interest in patient, clinical and COMMERCIAL interests in the text above.
CCTV didn't increase but actually reduced the amount/intensity of observations despite the known risks and distress the patient was in.
Our hearts break at these horrific failings and our thoughts are with his loved ones and all those affected
“When patients are admitted to the ward, staff will present Oxevision and its benefits. At the Longview Ward patients are not able to opt-out and Oxevision is an integral part of care”
Why gaslight patients by insisting it’s positive when they have no choice in being surveilled?
Oxevision
@StopOxevision
is used at
@CNTWNHS
, deployed in 2020, and according to this document from 2022, patients at Longview Ward are NOT able to opt-out.
#stopoxevision
Surveillance is no safety
Please keep signing and sharing our petition and open letter to challenge the use of blanket restrictive practice in mental health wards
We would add: it’s frustrating that Rethink are quoted in this blog when their response to Oxevision has been so tepid (they met with Oxehealth before meeting with us - read their both siding statement for more)
We have worked non-stop on this for almost a year