Linn Järte @LinnJarte Twitter profile | Pikagi

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Linn Järte

@LinnJarte

1,994

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1,202

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MBBS iBSc DTM&H DMCC. Global. Junior anaesthetist. Inquisitive. Strive to always be open-minded. Clean air is a human right. I 😷 #LongCovid #COVIDisAirborne

Wales, United Kingdom

Joined November 2012

Don't wanna be here? Send us removal request.

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@LinnJarte

Linn Järte

4 years

We need to embrace the uncertainty of the unknown, and show not only a clinical curiosity but compassion and understanding towards the #LongCovid experience. And demonstrate, in tangible ways, an appreciation of its potentially grave societal impact.

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Health systems stumble on ‘Long COVID’ as crisis grows

Without quick action, the knock-on effects of long COVID could be devastating, warn patients and experts.

www.politico.eu

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@LinnJarte

Linn Järte

2 years

Don’t look up. Over 144 million people long-term sick. Increases in stillbirths, preterm birth, and postpartum haemorrhage. Young people in numbers not seen before presenting to cardiologists. The experts are screaming at the top of their lungs.

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@LinnJarte

Linn Järte

2 years

Arrhythmias. Myocarditis. Pericarditis. Sudden deaths in fit and healthy adults. Blood clots in lungs and brains. Bowel ischaemia. Damaged kidneys. The experts are screaming at the top of their lungs.

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@LinnJarte

Linn Järte

3 months

Making others uncomfortable by taking airborne precautions…a short 🧵 I recently got disinvited to a close relative’s 60th birthday celebrations - mostly lunches and dinner events. 1/6

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@LinnJarte

Linn Järte

3 months

The issue isn’t with me. I’m not that bothered; quite like looking after my health and it’s the people and the experience I’m primarily there for, not the food. It’s others that are projecting theirs onto me. My guess is that my mere presence threatens their denialism. 6/6

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@LinnJarte

Linn Järte

1 month

Immunocompromised patient had covid for 613 days, which led to extensive viral evolution with over 50 mutations. ….yet oncology wards don’t see a need for HEPA filters, RPE (FFP3/N95), or ensuring staff stay at home if they’re unwell 🤔

@DaniBeckman

Danielle Beckman

1 month

Why do I feel like I am reading a scene from some dystopian movie. The rise of the Frankenstein-esque mutation.

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@LinnJarte

Linn Järte

2 years

The US economy is losing $2.6 trillion. The UK doesn’t have enough healthy people to employ and growth halts. The experts are screaming at the top of their lungs. Don’t look up. #stuckinanalternateuniverse #COVID19 #LongCovid

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A multinational Delphi consensus to end the COVID-19 public health threat

Nature - A diverse, multidisciplinary panel of 386 experts in COVID-19 response from 112 countries provides health and social policy actions to address inadequacies in the pandemic response and...

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@LinnJarte

Linn Järte

2 years

🧵 My 2-year #LongCovid anniversary present? A reinfection.

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@LinnJarte

Linn Järte

2 years

The politicians are busy outlasting lettuces. The media tags along. The experts are screaming at the top of their lungs.

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@LinnJarte

Linn Järte

3 months

But this isn’t about me. This is about me going against social norms and making them too uncomfortable. Not eating when others are, and - most importantly - taking actions that others aren’t… 4/6

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@LinnJarte

Linn Järte

2 years

The others pats their friends with damaged bodies on their shoulders. Grieves the lost friend or relative. Reads the media’s headlines. The experts are screaming at the top of their lungs.

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@LinnJarte

Linn Järte

2 years

“The idea that a child born today could contract COVID 40 times before college and live a normal, healthy lifespan, is completely unsupported by what we know about this disease.” Great article. Proactive,tangible advice. #CovidIsNotOver @10DowningStreet

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Ten COVID Facts Health Officials Dangerously Downplay | The Tyee

We should be rallied to defend ourselves and our kids. Our leaders offer timid silence.

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@LinnJarte

Linn Järte

3 months

I’d explained that I wouldn’t eat due to the covid risk (but happy to drink with a SIP valve) but would love to see everyone and celebrate the birthday. “Isn’t it best if you don’t come, it won’t be much fun for you, will it”. Statement, not a question. 2/6

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@LinnJarte

Linn Järte

3 months

I recently visited Dublin with some friends. Had a blast. Very crowded Guinness museum with lots of people coughing. SIP valve did the job. They had an indoor pub lunch; I briefly left them and got my outdoor dose (my tent to bed ratio is always off) and found a lovely park. 5/6

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@LinnJarte

Linn Järte

3 months

Pretty much the same thing happened for a friend’s wedding a while back. I’d already said that I’d love to be there. I have no doubt I’d have a wonderful time. Since when is great company, wonderful atmosphere, plus wine/champagne not?! 3/6

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@LinnJarte

Linn Järte

3 years

Developed runny nose, headache, sore throat, aching body. Treating myself as covid until proven otherwise. Shocked to realise that highly educated people around me “don’t think it’s covid so don’t think I need to isolate”…1yr+ into this and ppl still haven’t grasped the basic.

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@LinnJarte

Linn Järte

3 months

@CovidSolidarit1 Thank you, but they’re close family so it still hurts. Wanted to celebrate them. Practically, there are no obstacles. It’s their emotional reactions to our new, complex society that created them.

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@LinnJarte

Linn Järte

3 years

1/9 Thread on the narrative around #longcovid Commonly, the narrative around long covid is that we need to ‘understand how long the condition lasts’. I find that concerning.

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@LinnJarte

Linn Järte

3 years

1/3 Just had the result from a cardiac MRI as part of the #coverscan study. Almost 13 months after contracting #covid19 I’ve developed mild myocarditis.

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@LinnJarte

Linn Järte

11 months

Cognitive dissonance 🧵 Medically trained person asking my views on Eris being considered mild. Links to an article arguing it is, but which makes no comment on medium- to long-term risks of infection. 1/6

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@LinnJarte

Linn Järte

3 years

2/3 This is not a delayed finding - this is new. An MRI in Sept only showed pericarditis, no myocardial involvement. And clinically fits as I had new, angina-like pain in Jan-Feb. Cannot stress enough how #LongCovid needs to be taken seriously and patients investigated properly

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@LinnJarte

Linn Järte

3 years

2/9 It implies that #longcovid is a condition that will self-resolve with time, i.e. medical intervention is not needed. But we do not know this, which makes it a dangerous assumption.

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@LinnJarte

Linn Järte

2 years

2yrs of gaslighting; dismissal; organ damage & subsequent chronic chest pain; the rare but amazing doctor who practices real medicine - listens, investigates & treats; my deep refusal to give up; and a very gradual and non-linear process of patching my life back together again.

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@LinnJarte

Linn Järte

2 years

This virus is a beast. Fortunately not for all - but not to acknowledge that it is for some (many) equates to discrimination.

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@LinnJarte

Linn Järte

2 years

Ending with a photo of my last hike. Not sure why. To show how I’d indeed patched myself back from 1yr’s bed-bound state, skin and bone at 48kg? To appeal to that empathy society tragically is proving to be lacking? To reminisce and give me the determination to recover? Probably.

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@LinnJarte

Linn Järte

2 years

Instead the world is turning unliveable for a large proportion of its population. Humanity, empathy and compassion - traits that supposedly separates us from others in the animal kingdom - forced to step back while Darwinism takes over.

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@LinnJarte

Linn Järte

2 years

It’s simple. Practice #airsafety (filters,CO2 monitors; rewrite building regulations so new-builds accommodate a future with further pandemics (ie air filter systems..); FFP3 for all HCP; testing to know when to increase response by temporarily WFH, limiting indoor activity etc).

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@LinnJarte

Linn Järte

3 years

4/9 It perpetuates a view that #pwLC only need rest, rehab and time, and removes focus away from the urgent need for research into its pathophysiology and treatment development.

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@LinnJarte

Linn Järte

3 years

3/9 If anything, @resiapretorius ’s work on microclots and platelet hyperactivation suggests otherwise. New organ damage, occurring at any point during the disease process - including many months down the line, also suggests otherwise.

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@LinnJarte

Linn Järte

2 years

A relentlessly careful life. Respirator at work. FFP2/3 everywhere else. Socialising outdoors. All it took was one evening. One single evening that could have been nothing other than a wonderful dinner. Had the venue just chosen to practice #airsafety by installing air filters.

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@LinnJarte

Linn Järte

3 years

9/9 The narrative around long covid needs to change. Sympathy and support is highly valued, but what every individual wants - and society needs - is to #treatlongcovid All #pwLC wants is their lives back. All a world battling a pandemic needs is manpower. Let’s achieve that.

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@LinnJarte

Linn Järte

2 years

I’ve done it once and I will do it again. But this further delays my recovery and return to work. At large costs to society. Politics is by its very nature incredibly short-sighted, and this time we’re paying an extortionately high price for that.

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@LinnJarte

Linn Järte

3 years

5/9 Also removing focus away from medical intervention, I believe the #longcovid narrative is too centred around the symptomatology rather than the diagnoses making up the umbrella term long covid. Focus is on symptom support when it should be on diagnosis and treatment.

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@LinnJarte

Linn Järte

2 years

And I’d done it. I was hiking mountains, running 5Ks in 27mins, routinely cycling 10KM to work, and gradually but successfully increasing my workload (cognitive rehab was slower than physical - but equally working, especially after stellate ganglion blocks..).

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@LinnJarte

Linn Järte

3 years

8/9 POTS, IST, neuropathies, myopericarditis, MVA, mast cell dysfunction, OSA, V/Q mismatch etc…a myriad of diagnoses are being made in #pwLC - when appropriately looked for - allowing for treatments to be initiated. Not a cure, but often a big help.

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@LinnJarte

Linn Järte

2 years

Instead I’ve spent the last week soaking my bedsheets with sweat from my high fevers, establishing a 3AM warm milk with honey routine when my throat gets so sore just trying to swallow wakes me up, losing my voice, almost choking on thick secretions I’m struggling to cough up.

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@LinnJarte

Linn Järte

3 months

@AshleyGWinter Sorry, can imagine it’s a difficult juggle. Maybe consider HEPA filters to try to reduce the frequency of the infections?

@SmartairUk

SmartAirUK

6 months

Preliminary results of Finnish study shows that air purifiers in Kindergartens reduced parental workplace absences by 30%‼️ Using this 30% across all kindergarten children can potentially save employers EUR 20 million annually in Helsinki alone. Invest in HEPA filtration now 💨

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@LinnJarte

Linn Järte

3 years

Only took nearly 2 years, but the word is finally getting out: #COVIDisAirborne ! Prevention is always, always, always cheaper. Compared to the cost of staff sickness, the cost difference between FFP3 and FRSM is negligible. #protectNHSstaff #FFP3forall

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@LinnJarte

Linn Järte

11 months

Yet they can’t see a need for decreasing overall covid transmission. Can’t even get HEPA filters for when I visit. Cause you know, it’s mild. 6/6 #CovidIsNotOver #CognitiveDissonance #CovidIsAirborne #LongCovid

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@LinnJarte

Linn Järte

3 years

6/9 I believe this needs to change. While #pwLC and the medical community impatiently awaits research into the underlying disease mechanism, each individual patient needs appropriate investigations into their clinical presentation.

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@LinnJarte

Linn Järte

11 months

I explain that focus need to not only be on the acute illness; it must consider medium- to long-term risks too to be a valid risk assessment. Also include a link to a paper on LC-risks. 3/6

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@LinnJarte

Linn Järte

3 years

One for #MedTwitter … Part of a new #LongCovid endothelial function study. Distal UL occluded with tourniquet at 200mmHg for 5mins, plethysmograph on both fingers. Plus US images of brachial artery. Showed that I have severe endothelial dysfunction. Got covid 17 March 2020

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@LinnJarte

Linn Järte

3 years

7/9 There’s plenty we don’t know about #longcovid , but there’s also plenty we do - and this knowledge should not be dismissed but instead put to use.

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@LinnJarte

Linn Järte

11 months

Gets sent another article describing it as mild. Again only focuses on the acute illness. I comment on the one-sided, and incomplete views in both those articles. Point out that HIV was also pretty mild initially. 4/6

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@LinnJarte

Linn Järte

4 years

Thank you @MattHancock for acknowledging Long COVID at the Health and Social Care Committee today! #LongCovid #longhaulers #CountLongCovid Full video here

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@LinnJarte

Linn Järte

11 months

I give multiple, clear examples of these risks. Sudden cardiac deaths, links to diabetes, miscarriages, pre-eclampsia, reduced sperm count, cognitive decline, leading cause of death in children, previous covid infection linked to last year’s RSV wave. 2/6

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@LinnJarte

Linn Järte

3 months

@hismerecry You’re right. I did wonder if they’d have sorted out wheelchair access had that been my disability!

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@LinnJarte

Linn Järte

3 years

Example of how too many of England’s so called #LongCovid clinics lack diagnostic capabilities or access to multispecialty team. Pts bounced back to GPs due to untreated medical issues - a GP who referred in the first place as need specialist advice, yet have nowhere to send them

@ShaneyWright

Shaney Wright

3 years

Direct quotes from Long Covid 'Hub' letter to my GP: "The HUBs objective is to assess the patients rehabilitation needs and make onward referrals to appropriate community based therapy teams"

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@LinnJarte

Linn Järte

4 years

#LongCovid forums tell of diagnoses incl cerebral vein thrombosis, PE, myopericarditis, atrial flutter, microvascular angina, POTS, myelopathy, PUO (fever for 7+ months)..we need access to acute clinics for diagnosis and treatment. Rehab is secondary. @fmwales @vaughangething

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@LinnJarte

Linn Järte

11 months

This same person recurrently asks my advice for others with LC. Has tried incredibly hard over the years to help me however possible to recover from my severe LC. Has seen themselves how severely unwell I’ve been. Know my many diagnoses. 5/6

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@LinnJarte

Linn Järte

3 years

1/3 Very poorly constructed study by @ONS Not taking key symptoms like chest pain, palpitations, autonomic symptoms or brain fog into account. It’s hinting the true number of ppl with #LongCovid though - 1 in 9 says they have it! @bbchealth

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@LinnJarte

Linn Järte

3 years

“the virus is now one of the top 10 causes of death for children ages 5 through 11 years” #COVID19 . Top ten cause of death in children. Yet this age group isn’t even OFFERED the vaccine in the UK! Running out of words…the actions of this government is inhumane.

@jljcolorado

Prof. Jose-Luis Jimenez

3 years

ABC7: Pediatric hospitalizations up 395% in NYC amid COVID surge: What to know about kids and omicron. Experts say it is more critical than ever for children to get their COVID vaccine shots

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Linn Järte

11 months

@DrKerrySmith Am I reading this right - CD4 of 311? Patients with HIV are started on prophylactic cotrimoxazole at that level! 😳

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@LinnJarte

Linn Järte

2 years

I got covid after several on call shifts. I had only been at work and at home. I lived alone, drive to work. I know I’m not alone in this - we were all in strict lockdown at the time..! Airborne virus+pandemic+HCP…how much more is needed for it to be ‘reasonable evidence’?!

@guardian

The Guardian

2 years

Safety regulator refused to investigate some NHS staff Covid deaths

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@LinnJarte

Linn Järte

3 years

Just came across this Best resource on how to reduce the spread of #COVID19 I've seen! Practical, simple, straightforward and scientifically accurate advice. Key point: #COVIDisAirborne This should land in everyone's inbox! Thank you @jljcolorado and team

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@LinnJarte

Linn Järte

2 years

1/2 This! A friend recently asked how my ‘fatigue’ is going. I’m not ‘fatigued’, I’ve had: - chronic pericarditis - myocarditis ➡️ myocardial fibrosis - severe endothelial dysfunction - mast cell disorder - histamine intolerance - dysautonomia - significant cognitive impairment

@calirunnerdoc

Dr. Alice 💕

2 years

I was a healthy cardiologist and marathon runner. Now, I have organ damage and I’m on two medications to thin my blood. Let’s call #LongCovid like it is. A condition with potential to cause a vasculopathy and clotting state that will lead to unprecedented medical complications.

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@LinnJarte

Linn Järte

3 years

Thought it was just me but realising that lots of us long haulers who are starting to recover seem to be getting recurrent infections. #LongCovid / #COVID19 directly impairing our immune system? Consequence of chronic illness and sickness-induced isolation? Presumably both.

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@LinnJarte

Linn Järte

3 years

1/4 The govt and the news are painting an image of an increasing number of #longcovid clinics which will provide desperately needed help for us. Yet the majority of these are not doctor-led;

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@LinnJarte

Linn Järte

2 years

@10DowningStreet @BorisJohnson @sajidjavid @PrifWeinidog @Eluned_Morgan @AppgCoronavirus #airsafety #COVIDisAirborne #LongCovid #CovidIsNotOver #COVID19

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@LinnJarte

Linn Järte

3 years

1/2 #LongCovid is a disease that’s all in the history. When I began recovering my family started asking when I was going back to work. Realising I give an appearance of being 100% well I began explaining the severe cluster of symptoms even shorter activities can cause,

@PlanetEarth_HD

Stephen Davis

@PlanetEarth_HD

3 years

Watched the panorama covid doc with my mum and dad today. my mum goes wow she's really got it bad that women compared to you, hard to hear knowing I think i am very similar or even worse at times. ppl close to you sometimes cant see it at all its disheartening. #LongCovid

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@LinnJarte

Linn Järte

3 years

1/9 Interview worth watching. #LongCovid is an umbrella term for a severe, multi-system disorder. Or as @resiapretorius describes it in this interview, it’s a phenotype of acute covid.

@j_b_kennedy

JK

3 years

#longcovid is not a slow recovery. It’s chronic endothelial inflammation caused by circulating microclots & hyperactive platelets- preventing O2 getting to tissue Biomarkers will come. Treatment will come. Please watch & share @resiapretorius interview

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@LinnJarte

Linn Järte

3 years

Thread. 1/5 A very emotional morning, recalling just how sick I’ve been. I’m so grateful for having been given the opportunity to share my #LongCovid experience with @AppgCoronavirus .

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@LinnJarte

Linn Järte

3 years

“.. up to a million people needing treatment for long Covid [..] huge extra pressure on an already overstretched NHS” “...shows the importance of vaccinating as much of the adult population as possible.” #countlongcovid #longcovid #covidvaccine

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NHS may face a million long Covid patients after pandemic

Health service under pressure to care for significant number of patients with ongoing debilitating symptoms

www.theguardian.com

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@LinnJarte

Linn Järte

5 months

@MLS_Dave Same. The moral injury of witnessing superspreader events unfolding in front of my eyes, conversations around covid (or any disease prevention-starting to apply to measles too!) akin to hitting my head against a brick wall…it’s often feels too heavy to deal with.

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@LinnJarte

Linn Järte

3 years

A large number of anecdotal reports are telling of organ damage developing months into the illness - it risks patient safety not to investigate symptoms appropriately #LongCovid

@Dr2NisreenAlwan

Prof Nisreen Alwan 🌻

@Dr2NisreenAlwan

3 years

1/ Just watched #Newsnight report on #LongCovid . Key missing info: 1. ONS prevalence stats, including in kids (7-8%), released a week ago 2. Evidence of organ damage in non-ICU non-hospitalised LC patients & how this interacts with the discussed exercise therapy, e.g myocarditis

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@LinnJarte

Linn Järte

3 months

@SalamonSMD What I’m realising too. It’s just often more complicated than that in practice, but there absolutely is a way to balance this. Adapting and growing.

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@LinnJarte

Linn Järte

3 years

“It seemed nobody had thought about the enormous implications of chronic disease as a result of letting SARS-CoV-2 spread[…], assuming it would all be fine for those classed as non-vulnerable.” Humble, honest, spot on - thank you ⁦ @Dr2NisreenAlwan ⁩

The teachings of Long COVID

Communications Medicine - Alwan discusses the lessons learnt over the past year regarding Long COVID, prolonged illness resulting from SARS-CoV-2 infection, and their implications for public health...

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@LinnJarte

Linn Järte

3 months

@LoneWolfMasker I’m so sorry 😔 I’m trying to reframe it all, realising that people with these values are not those I want in my innermost circle. That’s reserved for those with the same ethics and values as me; those who make me heal, grow, develop. Chosen family. 1/2

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@LinnJarte

Linn Järte

2 years

“But COVID-19 does eliminate a significant number of T-cells, enough to make large numbers of sick people overwhelm emergency wards with RSV (respiratory syncytial virus), pneumonia, strep infections and other ailments.” #CovidIsNotOver #COVID19 #COVIDIsAirborne

@julia_doubleday

Julia Marie

@julia_doubleday

2 years

WOW- a Canadian outlet actually said the thing

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@LinnJarte

Linn Järte

2 years

@northernRG Thank you. I honestly thought this infection wouldn’t be this bad given vaccines! No one should have to live in fear, but this shows that every precaution you take is worth it and those telling you otherwise are unfortunately giving bad advice. Stay safe and hope your LC improve

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@LinnJarte

Linn Järte

4 years

Pleased to see our letter, written by 39 doctors affected by #LongCovid , in @bmj_latest We call for 1. Research 2. Clinical Services 3. Patient involvement 4. Clinical diagnosis adequate to gain access to services #countlongcovid

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@LinnJarte

Linn Järte

1 year

@alexmeshkin Despite us going through them for the past three years without the metal nose strip setting them off?! 😒 The discrimination continues to increase… #CovidIsNotOver #COVIDisAirborne

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@LinnJarte

Linn Järte

3 years

3/3 @Dr2NisreenAlwan @ShaunLintern @GeorgeMonbiot @james__glen @doctorasadkhan @LongCovidSOS @long_covid @LongCovidWales @LongCOVIDPhysio @vaughangething @fmwales @WGHealthandCare @BorisJohnson @dr_mattmorgan @MattHancock @Geraint6Jones

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@LinnJarte

Linn Järte

3 years

Briefly had to take the tube in London. Negative LFT. Somewhat short of breath in my FFP2 as I’m recovering from a respiratory tract infection. Surrounded by several people not wearing a mask at all. Selfishness? Ignorance? Arrogance? #COVID19 #COVIDisAirborne #FFP2 #LongCovid

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@LinnJarte

Linn Järte

3 years

3/3 Side note - asking if ppl “think” they have an illness rather than if they have a diagnosis made by a medical professional indicates the continued gaslighting of this huge patient cohort. We need to properly and accurately #countlongcovid

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@LinnJarte

Linn Järte

3 years

Terrible news of the death of a #LongCovid soul. Deepest condolences to his family 💐❤️ @david_rooksby “Don’t be complacent and don’t be an idiot” Imagine if #ZeroCovid had been our approach from the start. So much suffering that could’ve been avoided. But it’s never too late.

@OwenJones84

Owen Jones

3 years

Ed Rooksby, a brilliant man who has just died, was 45, fit and healthy. On the eve of the first lockdown, he contracted the virus, then developed Long COVID. He wrote about the horrors of Long COVID weeks before he died. We should all read it.

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@LinnJarte

Linn Järte

13 days

Living cøvid-safe = giving up your social life? Not by my definition🧵 This weekend I: …had a lovely dinner in the sun from @busabaeathai ☀️ …followed by an EPIC gig @foofighters What a night!! 🤟🏼🎶🎸 Even had a cider or two thanks to my #SIPvalve 🍻 1/2

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@LinnJarte

Linn Järte

1 month

@1goodtern Another key aspect for me is EVERY shift. Shows the prevalence during our ongoing covid times… Combined with that this means it’s not picked up in primary care (IMHO multifactorial, but lack of awareness and education is a major one).

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@LinnJarte

Linn Järte

5 months

@DRTomlinsonEP Not only did they actively decide to make us cannon fodder - with complete confidence (arrogance) they made the assumption that immunity was prolonged. Not only was that wrong - many of us didn’t make any antibodies at all! Presumably no immunologist was consulted…

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@LinnJarte

Linn Järte

4 years

We need to unveil the hidden numbers of #LongCovid Likely to be such a vast number, impacting our society for a very long time. The quicker we get help, the quicker the nation can heal @vaughangething @fmwales @WGHealthandCare #CountLongCovid #LongCovidKids

@lilystbarth

A. Cristina

4 years

@Dr2NisreenAlwan We already know kids may suffer of long covid, my 12y/o son is ill since march. It begun with a "mild covid" then we saw more than 30 simptoms, he is Still exhausted, POTS, too tired to go to school, brain abnormalities on pet scanner #apresJ20 #LongCovidKids

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@LinnJarte

Linn Järte

3 years

@ShaneyWright @ProfTonyDavid @Dr_psychiatry @AlanCarson15 @Neuropsychcovid @covidcns @SecretaryINA PET CT 🙋🏼‍♀️ Guess what - pathology found. Endothelial function study 🙋🏼‍♀️ Guess what - severe pathology found.. Like I’ve said before, we can’t use negative pregnancy tests to try to reassure our patients they didn’t have a heart attack…

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@LinnJarte

Linn Järte

3 years

8/9 Patients are recurrently told that their tests are “all” normal. I compare this to doing a pregnancy test and using the negative result to inform your patient that they’re not having a heart attack… We’re simply not running the right tests.

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@LinnJarte

Linn Järte

3 years

2/2 and even though I’m much improved compared to my bed/housebound state I still have some time left on my rehab journey. LC patients need to be listened to. Truly listened to. Not judged by our appearance.

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@LinnJarte

Linn Järte

5 months

@DanWuori Reminds me when I had a picnic with my cousin and little niece, who was super happily sat on my lap. Without thinking, I turned her around for us to look at the beautiful and exciting nature around us; she lost sight of mom and started crying! Aunt lesson right there 🙈

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@LinnJarte

Linn Järte

3 years

Please sign if you agree 😊 Petition: Recognise long Covid as an occupational disease

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@LinnJarte

Linn Järte

3 years

1/4 As part of my #LongCovid I appear to have developed a histamine intolerance. Some doctors say that this is not “recognised by western medicine”.

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@LinnJarte

Linn Järte

11 months

@ElizaEmTM @FredTopel Second this! And not just transmissible pathogens - would’ve loved one biking through clouds of pollution in London, or wearing one on the tube instead of blowing black out of my nose every evening..

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@LinnJarte

Linn Järte

3 years

Our paper on the recognition, diagnosis and mgmt of #LongCovid is out, hopefully of help to all involved in the care of people with LC! @Eluned_Morgan @fmwales @sajidjavid @amyismall @Dr2NisreenAlwan @longcovidbr @LongCovidCanada @LongCovidNZ @LongCovidScot @AppgCoronavirus

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@LinnJarte

Linn Järte

6 months

Same. My moral injury runs so deep-how can people actively choose to breathe a blood vessel wrecking, immune system damaging,brain injuring virus on others when putting on an FFP3,getting a HEPA filter,&testing is SO easy? Why do people actively want to harm others? I’m at loss

@elisaperego78

Dr Elisa Perego

6 months

I don't want this "new normal". I don't want to "live with Covid". I'm tired of people dying and being disabled by a preventable disease. I'm tired of being unable to access healthcare. I'm tired of people minimizing SARS-CoV-2 and the suffering of those injured by this virus

Tweet media one

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@LinnJarte

Linn Järte

3 years

4/4 ...and my professional self has made a note of the immense importance of not only listening to medical textbooks, but also to the patient. They are after all who we are there for. #longcovid #treatthepatient @long_covid @LongCovidSOS @LongCovidPhysio @LongCovidWales

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@LinnJarte

Linn Järte

5 months

@doctor_oxford @bowditch71 @LibDemPatrick @PeterStefanovi2 @JoFroggatt @ITV It’s not about a dichotomy between an authoritarian state of imposed mask mandates and individual choice. It’s about setting an example as a healthcare professional, about communicating through action that you are aware that the pandemic is still ongoing, that it’s airborne, 1/4

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@LinnJarte

Linn Järte

11 months

@DrKerrySmith Kerry I’m at loss for words! How can this go ignored, especially with known clinical consequences.. This truly is the start of the HIV epidemic all over again (and I wasn’t even around to see that; have just read enough history to realise..). Nothing learnt. Beyond disheartening.

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@LinnJarte

Linn Järte

2 years

@alitwy Lots of us have been saying the same thing lately..stay strong - our future bodies will thank us! Just remember that there’s many of us in this wise virtual boat together, we’re just geographically apart #Solidarity #CovidIsNotOver

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@LinnJarte

Linn Järte

4 years

Thank you @amyismall for bravely being so open about your experience with #LongCovid . @vaughangething @fmwales please watch - we need help. And not rehab. We need specialist clinics who can provide diagnosis and treatment #DiagnosisB4Prognosis #CountLongCovid @LongCovidWales 🏴󠁧󠁢󠁷󠁬󠁳󠁿

@BBCScotlandNews

BBC Scotland News

@BBCScotlandNews

4 years

GP Amy Small says she lost her job after experiencing so-called long Covid. She is calling for a "one-stop shop" that offers specialist support and treatment. Read more ➡️

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@LinnJarte

Linn Järte

3 years

4/4 The mismatch between public perception and the actual provision of care is enormous, and we are left falling between the crack.

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@LinnJarte

Linn Järte

4 months

@YouAreLobbyLud Well said. I’ve done some fairly high risk travelling but always done extensive risk assessments before-knew exactly what I was doing, how to mitigate the risks, and what risks I could not mitigate against ie an informed decision to accept them. I don’t accept the risk of covid..

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@LinnJarte

Linn Järte

3 years

Another excellent thread from @elisaperego78 So much has come out of this last ~1.5yrs (especially friendships, wisdoms and connections!) I wish to believe that we have an inspiring and proactive time ahead of us, leading to a positive cultural shift

@elisaperego78

Dr Elisa Perego

3 years

This is one reason why the patient-made term #LongCovid and advocacy movement are needed Long Covid is a disease identified, named and defined by those experiencing it It gained recognition at the speed of light despite all the structural injustices in medicine and policy making

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@LinnJarte

Linn Järte

3 years

1/3 Feels like a key paper moving forward with #longcovid . This says it all really: “beyond the first 30 days of illness, people with COVID-19 exhibit higher risk of death and health resource utilization”. Horrific. Thank you @zalaly et al!

@zalaly

Ziyad Al-Aly, MD

3 years

Happy to share the latest paper from our team in @nature A comprehensive characterization of post acute sequelae of COVID-19 #longcovid #PASC @VAResearch @vahsrd @WUSTL @WUSTLpubhealth @WUSTLmed @WUSTLnews @VREFSTL @Biostayan @BCBowe

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@LinnJarte

Linn Järte

3 years

“Testimonies [...] illustrate profound stigmatisation. Many of them have been disbelieved and their ill health was not recognised for months.” Invaluable article highlighting an experience sadly shared by the vast majority of #pwLC #LongCovid

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@LinnJarte

Linn Järte

3 years

3/4 Meanwhile many of us remain medically too complex for our local hospital consultants to manage, with them attempting to turn to #LongCovid clinics for what they assume will be expert medical management..

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