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JoSoHappy She/Her Profile
JoSoHappy She/Her

@JoSoHappy83

2,289
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3,718
Following
549
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I’m 41 neurodivergent mum/woman/human. #autistic #ADHD . Advocating for #parents #carers #send #disability #equality #Inclusion #changemaker

Newport, Wales
Joined April 2022
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@JoSoHappy83
JoSoHappy She/Her
3 months
I was horrified to see this was in a local charity shop window! I’ve spoken to the management of the shopping mall and it’s been taken down. Seriously tho! Why???? #ADHD #autistic #Disabled
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@JoSoHappy83
JoSoHappy She/Her
1 year
#ADHD While the media ignore the real problems around getting your ADHD diagnosed diagnosed we carry on the fight for our children. Especially the failed females!
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@JoSoHappy83
JoSoHappy She/Her
2 years
@botany_beck Yes!!!! My daughter wore a suit to hers! She loves a good hat too!
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@JoSoHappy83
JoSoHappy She/Her
2 years
My youngest has been refused for adhd diagnosis pathway because she’s got a lovely group of friends in school. Fml!!!! #ADHD
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@JoSoHappy83
JoSoHappy She/Her
4 months
My #ADHD Child got a negative behaviour point today because her #ADHD Mother put her swimming kit in her bag instead of PE kit. 😞 Do I just let it go or battle to get it removed ? Sigh! It never ends
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@JoSoHappy83
JoSoHappy She/Her
2 years
My daughter is trying to go back to school AGAIN. She missed most of last year due to mh and unmet needs. She’s adhd autistic. She just sent me this, she had to sign it or she couldn’t go in the class!!! #SEND #actuallyadhd @ADHDFoundation @PCamhs #Autistic
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@JoSoHappy83
JoSoHappy She/Her
2 years
Can’t think of anything more patronising than being an autistic parent of autistic children and “support” services thinking what u need is a parenting course to help you understand your child’s autism!!!! Please! Make it stop! #ActuallyAutistic #autistictwitter #autisticParent
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@JoSoHappy83
JoSoHappy She/Her
7 months
This morning she was shaking getting ready for school. In school she spent most of the day in a class on her own This evening she had a breakdown Unfortunately she’s #Autistic so #CAMHS Refused her. School felt what would help is threatening the parent with fines
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@JoSoHappy83
JoSoHappy She/Her
6 months
It’s official! I’m now diagnosed #Autistic 🥳🥳🥳🥳🥳🥳🥳🥳🥳🥳🥳 I have so many emotions right now but the overwhelming feeling I have is happiness! Alongside my #ADHD diagnosis I have a greater understanding of myself and the confidence to grow and reach my full potential!
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@JoSoHappy83
JoSoHappy She/Her
10 months
This has to be the out the box problem solving skills of #ADHD
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@JoSoHappy83
JoSoHappy She/Her
6 months
@naomicfisher My adhd daughter was made to sign this on her first day back in school after being off with poor mental health
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@JoSoHappy83
JoSoHappy She/Her
6 months
Had assistance in filling in my PIP renewal forms yesterday. I mentioned how being #Menopausal is having a huge impact on my adhd/autism. I was told the assessors won’t take that into account so it’s not worth putting it on the form! 😡😡 🧵
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@JoSoHappy83
JoSoHappy She/Her
2 years
This is especially true for women! It has to change! #ADHD #autistic
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@JoSoHappy83
JoSoHappy She/Her
6 months
When you’re a parent of a neurodivergent child who doesn’t fit the school system (EBSA) you think that there will be people who understand and will help you find your child an education they can thrive in. 🧵
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@JoSoHappy83
JoSoHappy She/Her
1 year
I refer to this as a brain fart! #ADHD
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@JoSoHappy83
JoSoHappy She/Her
2 years
My 1st tattoo! #Neurodiversity decided since I’m 40 this year I should do some things I’ve wanted to do but not got around to. #ActuallyAutistic #adhdtwitter
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@JoSoHappy83
JoSoHappy She/Her
3 months
@theboringbroski Thanks for explaining that. Sad that people think being autistic/adhd is something that needs a cure.
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@JoSoHappy83
JoSoHappy She/Her
11 months
This!!!. Argh!!! I can’t help but finish the off their sentence for them. It feels like time stands still. There’s also no guarantee I’ll remember what they said when they finish as my brain will be trying to hold onto my reply. Which I’ll also most likely forget! #ADHD
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@JoSoHappy83
JoSoHappy She/Her
2 years
Her mother ( me) is autistic/adhd. Her sisters have adhd yet they think because she has friends she doesn’t have it. Fml! Of course she has friends. She’s hilarious like her mother
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@JoSoHappy83
JoSoHappy She/Her
6 months
@Kaels1808 @naomicfisher Yeah mainstream. I ended up deregistering her. She’s doing really well in college now
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@JoSoHappy83
JoSoHappy She/Her
2 years
She doesn’t want me to ring the school either in case they talk to her about it. She’s too anxious
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@JoSoHappy83
JoSoHappy She/Her
6 months
This sort of thing is why I get so angry at “autism” “charities” who raise huge amounts of cash to find a “cure” rather than do anything that actually improves the lives of autistic humans. Then there’s the fact women face so many barriers to diagnosis because the 🧵
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@JoSoHappy83
JoSoHappy She/Her
8 months
Imagine if, instead of bombarding parents with attendance letters , they send well wishes cards to the child and parent. It would help the child feel they were genuinely cared about and it would build trust between the school and parent.
@75ThunderRoad
Steve B
8 months
10/10 The health crisis (mental and physical health) isnt a quick fix. It requires people to start seeing things differently. The attendance crisis isn't a quick fix. It requires people to start doing things differently. End.
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@JoSoHappy83
JoSoHappy She/Her
3 months
@Dmdav1 Sillica is the little packets of bead things that u get when u buy new bags/shoes etc. it’s poisonous
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@JoSoHappy83
JoSoHappy She/Her
1 year
#ADHD assessment day tomorrow! 🥳🤨😥😥😱🥴. It feels like a landmark on my path of self discovery and growth. I’m proud of how far I’ve come. #ADHD #ActuallyAutistic #latediscovered I just wish little struggling me understood she was #differentnotless
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@JoSoHappy83
JoSoHappy She/Her
6 months
Criteria is based on white boys! We go thru life with every diagnosis except the right one. Taking all sorts of medication that of course doesn’t help. Hormonal changes have a huge impact on our lives but because we’re #Neurodivergent women, there not enough medical research. 🧵
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@JoSoHappy83
JoSoHappy She/Her
2 years
More discrimination from my adhd/autistic daughters school this morning. They refuse to assess/address her needs and now she’s being punished. #ADHD @ADHDFoundation #Neurodiversity #SEND @martinimarie @WG_Education #ActuallyAutistic
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@JoSoHappy83
JoSoHappy She/Her
2 years
When you take your autistic child to A&E it’s never considered that the parent may be autistic and struggling too. #ActuallyAutistic #autisticparent
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@JoSoHappy83
JoSoHappy She/Her
1 year
Update on my #ADHD assessment. Today was the 1st of 3 appts. The woman was lovely and had quirky glasses on which made me feel comfortable… I suspect she’s one of us… it felt like this was the first time I’ve ever felt heard by a medical person. 🧵
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@JoSoHappy83
JoSoHappy She/Her
7 months
I have a huge problem with the term EBSA. Emotionally based school avoidance. I feel it puts the onus on the child. It’s doesn’t address the cause of a child not being able to attend school. Roughly 85% of the parents I support have #neurodivergent children. 🧵
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@JoSoHappy83
JoSoHappy She/Her
4 months
There’s a lot of talk about the surge in people wanting diagnosis of #ADHD #Autism . There isn’t much talk of the damage thats done to those who have had to go thru life believing they are faulty! More people knowing themselves earlier means less trauma and missed opportunities
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@JoSoHappy83
JoSoHappy She/Her
2 years
Things that are a little different at Xmas with my ND children. My middle daughter will open 1 or 2 presents a day. My youngest will be cooking ( her special interest). We won’t be visiting family, it’ll be a day just for us. #Neurodivergent #ActuallyAutistic #ADHD
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@JoSoHappy83
JoSoHappy She/Her
4 months
Being present and engaged in what was being said! Something most people do every day. It was wonderful! Can you imagine never having experienced that before? Oooft!
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@JoSoHappy83
JoSoHappy She/Her
2 years
I’m so protective for this reason. I always see things from the child’s perspective and want to move mountains for them. I also of course love to be around my fellow neurokin. #ActuallyAutistic #adhdtwitter #Neurodivergent
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@JoSoHappy83
JoSoHappy She/Her
10 months
The thought of yet another generation of traumatised #neurodivergent humans puts 🔥 in my belly and fuels my unstoppable drive for a better world. #ActuallyAutistic #ADHD #EnoughIsEnough
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@JoSoHappy83
JoSoHappy She/Her
1 year
My tattoo. The infinity symbol for #neurodiversity . It represents my new understanding of myself and compassion for the former me. The phoenix feather represents me rising from the ashes with my new found confidence. When I’m having a wobble it reminds me how far I’ve come.
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@JoSoHappy83
JoSoHappy She/Her
8 months
Over the moon to receive this in the post today. I was nominated to go because of the voluntary work I do in my community. Supporting neurodivergent families and being a voice for parents. Never underestimate an #autistic #ADHD woman with a bee in her bonnet. #excited
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@JoSoHappy83
JoSoHappy She/Her
4 months
Day 4 of #ADHD medication. I’ve had headaches for a few days but today it’s mostly gone so far. I just experienced something that I’ve never had before. 🧵
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@JoSoHappy83
JoSoHappy She/Her
2 years
Just got confirmation my driving lessons will start in January. Argh! Any tips for an #autistic #ADHD learner driver?
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@JoSoHappy83
JoSoHappy She/Her
10 months
@ItsEmilyKaty The therepist not understanding autism/adhd. Fear appearing too negative/moody RSD…. Hard to unmask and be the real you Forgetting what we discussed/planned to work on Cbt techniques having too many steps so my ADHD shuts off from it Struggling to sit for the whole session
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@JoSoHappy83
JoSoHappy She/Her
6 months
So again we are expected to suck it up and carry on without the support that could make life bearable. #Itsamansworld #MedicalMysoginy
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@JoSoHappy83
JoSoHappy She/Her
6 months
Imagine, if, right at the beginning, the parent/child were believed, understood and supported. Shown compassion and empathy. If instead of threatening letters, they were sent well wishes cards and invited for a cuppa and chat. 🧵
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@JoSoHappy83
JoSoHappy She/Her
3 months
@ianthom94585013 @theboringbroski Yes!! What exactly would be cured? My brilliant mind, my attention for detail, my personality? being autistic is a different way of being human. It’s not an illness and therefore doesn’t need a cure. The world needs those who think and experience the world differently
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@JoSoHappy83
JoSoHappy She/Her
1 year
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@JoSoHappy83
JoSoHappy She/Her
6 months
They suggest parent courses, usually run by neurotypicals with outdated ideas of what #Autism /ADHD actually is. School continues to pressure and threaten parents with fines 🧵
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@JoSoHappy83
JoSoHappy She/Her
1 year
Something I find really hard to get passed as a proudly #Autistic parent is going to appts with your daughter and being spoken to like I’m the child. #ableism I’m kicking myself for not calling it out but I didn’t want to distress my daughter any more than she already was.
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@JoSoHappy83
JoSoHappy She/Her
1 year
Have you heard of CPTSD? I think so many #unpaidcarers #Parents are experiencing this! That huge surge of emotion and panic when the school rings, your child is refused help, going thru school meetings, attending appts.
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@JoSoHappy83
JoSoHappy She/Her
6 months
Top down approaches will never work! The solution must be taking an empathetic approach, the parent and child central to every decision. Services need to build relationships with each other to build trust and understanding of their limitations. Any other way is just lip service
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@JoSoHappy83
JoSoHappy She/Her
2 years
Stollen for breakfast is perfectly acceptable this time of year right?
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@JoSoHappy83
JoSoHappy She/Her
1 year
Every day in school is important and low attendance is a huge detriment to a child’s education….. except when an LA doesn’t want to meet a child’s needs. Then it’s perfectly ok for them to miss months/years of education #ALN #EnoughIsEnough #EducationForAll
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@JoSoHappy83
JoSoHappy She/Her
2 years
The struggle is real!! #adhdtwitter
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@JoSoHappy83
JoSoHappy She/Her
6 months
If schools were genuinely inclusive so #Neurodivergent children weren’t routinely discriminated against and made to feel like a burden. Not only would the family be able to actually enjoy the time when the children are young but also it would also prevent huge pressures on 🧵
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@JoSoHappy83
JoSoHappy She/Her
1 year
Something many parents ask me is why their #ADHD children lie. I explain to them that it’s a protective response. Often this is because they can’t understand themselves why they did something 🧵
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@JoSoHappy83
JoSoHappy She/Her
1 year
I shouldn’t have had to get to the point I fell apart. However! Since then I’ve grown so much and don’t recognise my former self! #riselikeaphoenix
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@JoSoHappy83
JoSoHappy She/Her
2 years
@wurzelmoonraker Exactly. A diagnosis isn’t just for school. It’s your whole life! Especially as a woman. The hormonal changes. Being a mother. Working. Having a fulfilled life! I’m late diagnosed and know the damage it can cause
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@JoSoHappy83
JoSoHappy She/Her
6 months
A miracle happens, #camhs agree to see your child. However it’s in a room that looks like a school office and the child can’t speak to them. The child is blamed for refusing to engage. They also blame the parent for being stressed. 🧵
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@JoSoHappy83
JoSoHappy She/Her
1 year
How much easier would school meetings be if they began with empathy and understanding. #SEND #edutwitter #parenting @martinimarie #unpaidcarer
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@JoSoHappy83
JoSoHappy She/Her
6 months
You get referred to #Camhs who refuse your child because they think poor mh is just part of not being Neurotypical Schools assume that because camhs refused them, it means the mh is ok and the parent is just making excuses for poor attendance 🧵
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@JoSoHappy83
JoSoHappy She/Her
7 months
This as such a lovely experience Being amongst so many great #changemakers .
@KensingtonRoyal
The Prince and Princess of Wales
7 months
This year’s Carol Service at Westminster Abbey was all about #ShapingUs and thanking those supporting the very youngest members of our society during those crucial early years.
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@JoSoHappy83
JoSoHappy She/Her
4 months
Listening to what they are saying and not just waiting for them to finish their sentences so I can speak before I forget what I wanted to say. No feeling overwhelmed from everyone speaking No feeling that I needed to leave the room No pottering about while they speak 🧵
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@JoSoHappy83
JoSoHappy She/Her
2 years
@LucyDigest The thing is she loves school. She has a teacher who gets her. Allows for her quirks and makes her feel she belongs. However. She barely sleeps so gets burnt out. She really struggles with her emotional regulation too. High school in sept will be a diff ballgame for her
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@JoSoHappy83
JoSoHappy She/Her
2 years
Spoke to the ALENCO and HOY this morning. HOY said it was intended to rev up the kids for their final year of school!! I’ve told her its discriminatory and they’ve caused us undue stress. She’s getting back to me
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@JoSoHappy83
JoSoHappy She/Her
2 years
My 10yo has just gone to sleep. She decided at 8pm she was going to be a fashion designer of clothes for bigger kids so they don’t feel upset when their size isn’t available. She’s picked a brand name, drawn some designs and decided who will be in her team. #hyperfocus #ADHD
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@JoSoHappy83
JoSoHappy She/Her
3 months
Day 7 of #ADHD medication Managed 3 meetings back to back this morning, 1 unplanned without getting overwhelmed. Letter came about changing my daughter’s DLA to PIP now that she’s 16. Called them straight away instead of panicking and putting it off Mowed the lawn 🧵
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@JoSoHappy83
JoSoHappy She/Her
1 year
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@JoSoHappy83
JoSoHappy She/Her
4 months
@BelindaLondon She’s been trying so hard to not get bad behaviour points. I had to get her first ever one removed last week. Now this. She’s said she doesn’t see the point in trying anymore
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@JoSoHappy83
JoSoHappy She/Her
6 months
You have endless meetings that achieve nothing apart from causing trauma and stress on the parent. This makes it harder and harder to be the calm, loving, safe person your child needs. The child sees what a parent is going through which reinforces their knowledge that school 🧵
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@JoSoHappy83
JoSoHappy She/Her
2 years
@DarkMalicex @ADHDFoundation @PCamhs I’m autistic adhd too. As her mother I totally understand her struggles I think that adds to my anger. The school didn’t ring me back either
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@JoSoHappy83
JoSoHappy She/Her
1 year
Made sure I didn’t forget my anxiety meds today. Dreaded team around the family meeting! I want to hide under my duvet. The cruel thing is that it’ll totally put me in burn out but I still need to be what my children need. It shouldn’t be this hard! #send #discrimination
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@JoSoHappy83
JoSoHappy She/Her
2 years
Arghhhhhhhhh I can’t decide if I’m excited or scared!!!! #adhdtwitter so many emotions!
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@JoSoHappy83
JoSoHappy She/Her
10 months
My 11 yo has thought up ANOTHER money making scheme. She’s been out collecting conkers today to sell to people as it’s spider mating season! Spiders don’t like conkers apparently 🤷🏼‍♀️ #ADHD #entrepreneurlife
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@JoSoHappy83
JoSoHappy She/Her
10 months
I had THE most amazing phone all tonight! It looks like, after 18 months of no education, my child is finally going to get the support and setting she needs!!!!! I can’t believe it!!! #ActuallyAutistic #ALN #parentCarer
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@JoSoHappy83
JoSoHappy She/Her
10 months
Had my final appt today to confirm my #ADHD diagnosis. Feels cruel that I have to now wait until at least January to access meds due to the national shortage. Feels like there’s no end to the hurdles we face. I’m sick of struggling!
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@JoSoHappy83
JoSoHappy She/Her
10 months
IT’S HAPPENING! #Neurodivergent adults are getting together across #Wales Finding their tribe and kicking #isolation and #lonliness to the kerb! Please Share Share Share! More Locations available soon! Gotta love a free cuppa! #ADHD #Autistic #Dyslexic #Youtime @PCamhs
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@JoSoHappy83
JoSoHappy She/Her
4 months
Hubby, myself and my daughter having a long conversation in the kitchen and I was totally in it! No distractions from random thoughts 🧵
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@JoSoHappy83
JoSoHappy She/Her
1 year
Well that was an emotional watch. Well done #insideourautisticminds its made me realise. The last person I think I’d be able to completely unmask around is my mother…. #actuallyautstic
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@JoSoHappy83
JoSoHappy She/Her
6 months
Parents fight for CAMHS to see their child while also facing loosing their jobs as their child deteriates. They loose income so on top of seeing their child suffer, they can no longer afford nice things like days out, good food and a warm home 🧵
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@JoSoHappy83
JoSoHappy She/Her
4 months
@DudeAdhd Yeah I had to get one removed last week. Her teacher decided she shouldn’t need her headphones and ended up drawing all over herself. She got a point for disrupting the class. I’m worn out tonight. I’m sure my fight will come back tomorrow. Xx
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@JoSoHappy83
JoSoHappy She/Her
9 months
Raging listening to a woman on @LBC talking about #Autism like it’s a disease! People talking like this set the autistic community back years in changing perceptions of what it is to be #Autistic also dismissing those who self diagnose fml!!!
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@JoSoHappy83
JoSoHappy She/Her
4 months
This legend is 16 today! My loopy Lydia! My Autistic adviser! My Queen of put downs! My future Author! My World! She’s taught me that doing things your own way is always the best way! #Daughter #Love
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@JoSoHappy83
JoSoHappy She/Her
8 months
#Disabled children are routinely failed by education. #Parents have to leave work to support them #unpaidcarers can’t afford to give their #children the opportunities others take for granted #children leave school with poor qualifications and trauma 🧵
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@JoSoHappy83
JoSoHappy She/Her
2 years
Our next get together is planned for Friday. Come join the conversation A safe space for your voice to be heard. The recording is available afterwards @martinimarie #neurotwitter @CarersCampaign #EBSA #EducationForAll @ciarale01 #NothingAboutUsWithoutUs
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@JoSoHappy83
JoSoHappy She/Her
2 years
I love to get compliments BUT I never know how to respond 🤷🏼‍♀️ #actuallyautistic
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@JoSoHappy83
JoSoHappy She/Her
1 year
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@JoSoHappy83
JoSoHappy She/Her
4 months
A few mths ago I applied for a job with a well known mental health charity. They didn’t grant any accommodations, the whole process was awful and discriminatory. I recently applied for another and the whole process was accommodating and ND friendly. 🧵
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@JoSoHappy83
JoSoHappy She/Her
2 years
#Neurodivergent #ActuallyAutistic I do this. It’s how I show I have understanding and to help people feel I care.
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@JoSoHappy83
JoSoHappy She/Her
7 months
To be clear, it’s not unfortunate she’s autistic, I am too. It’s unfortunate that it’s used as an excuse to not help
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@JoSoHappy83
JoSoHappy She/Her
1 year
Tulips. My favourite! From my oldest! We’ve come so far! When our babies struggle we are often the ones who they take it out on! It’s so hard when they won’t let you comfort them. It will get easier I promise! #parentcarer #ADHD #mentalhealth #Parents
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@JoSoHappy83
JoSoHappy She/Her
6 months
School continues to send letters and emails about the importance of education, reminding you of how much education your child is being denied. 🧵
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@JoSoHappy83
JoSoHappy She/Her
2 years
A BIG part of being a neurodivergent family is switching the toilet light off and flushing toilets. My kids never remember to do both! Actually my hubby never remembers the light either! #ADHD #Autistic
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@JoSoHappy83
JoSoHappy She/Her
3 months
I’m meeting with my local hospital soon to discuss how they can improve the experience of being in A&E for #Neurodivergent people. What things would have made it easier for you? #ActuallyAutistic #AdhdTwitter #DisabilityTwitter
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@JoSoHappy83
JoSoHappy She/Her
2 years
It’s driving lesson day! Argh!!!!! You can do this Jolene!! Lol #ActuallyAutistic #ADHD
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@JoSoHappy83
JoSoHappy She/Her
1 year
What a day! I’ve met so many amazing passionate people trying to make a change. I would have never had the confidence to do this before discovering my neurodiversity and finally understanding myself! #ActuallyAutistic #adhdwoman #latediagnosed
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@JoSoHappy83
JoSoHappy She/Her
1 year
PIP forms are a literal “form” or torture thought up by the DWP to make a #Neurodivergent brain explode! It’s a conspiracy I tell you! 😂😂😂
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@JoSoHappy83
JoSoHappy She/Her
6 months
Is not safe. They also blame themselves which eats into their self esteem and feeds anxiety. They shut off from the world even more. The parent and child are stuck in this cycle while everyone around turns their backs and blame either the parent/child or other service 🧵
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@JoSoHappy83
JoSoHappy She/Her
1 year
Super excited to be asked to help local families support their children with #ADHD 🎉🎉🎉
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@JoSoHappy83
JoSoHappy She/Her
9 months
#NHSWalesAwards #coproduction WINNERS!!!!!! Wow! We did it! @PCamhs ARGH!!! I’m so proud of our team! #StrongerTogether #Neurodiversity #NHS
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@JoSoHappy83
JoSoHappy She/Her
2 years
Asked my Ceryn to do me something on a canvas to go in my downstairs loo. This is what. She came up with. I love it!
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