Public policy vet, founder, Survivors for Solutions-nonprofit for innovation, cures, & better health (
@hopemattersmost
). Husband, dad, MSer. NO CRYPTO HERE.
I was honored to share my story and speak out for patient’s hope, telling the Congressional committee: “while a cure never discovered may show savings on a CBO spreadsheet, there’s nothing more costly than losing a loved one.” Especially to a health challenge close to being
Biden: "We finally beat Medicare."
FACT CHECK - True: In 2022, Biden signed the Inflation Reduction Act, raiding Medicare to the tune of $260 billion to pay for EV subsidies and other green initiatives, and harming how cures are delivered. They beat us good.
The DC swamp is a dirty puddle compared to Albany. Check out our next two episodes to hear how fmr Gov Andrew Cuomo’s 3/24/21 order led to unnecessary Covid nursing home deaths, and an epic coverup. Cuomo-as-savior was quickly over as the party needed him gone before 2-many saw
Latest episode is now up! If you ever wanted a crash course on NYS health policy, don’t miss this 2 parter. The tragic Covid nursing home deaths is rescued from the memory hole by this week’s guest & hosts:
@RealEU4U
&
@RealJoeGrogan
Thank you, Mr. President (45). For seeing patients and their hope for cures. Giving us “Right to try” and a real end of cancer, rare disease, suffering and despair. The current president (46) is proud of the IRA and its war on patients’ hope. Price controls give us
As I wrote in New York Times, “When your child is heroically fighting a losing battle against leukemia with the one drug available, you’ll wish, pray, demand another option, or two, or three.” This isn’t funny. The
#IRA
is choking off cures, it’s criminal.
@chamath
Will ice cold reality wake us from our fever dream where boys are girls and borders don’t matter.? Rape, murder, and JV leadership from the WH I pray shock us awake before this gets worse. It can.
Here’s a rough-cut summary of the inaugural year of Survivors for Solutions (
@Hopemattersmost
). I am proud to stand up for medical miracles, give voice to sick Americans, & expose efforts to increase their despair. Happy new year!
,
@AdamThierer
: it was great to reconnect, and most importantly to get an informed dose of guidance as policymakers stand on (another) regulatory precipice. It would be difficult to overstate what this could mean to the American economy for the next 100 years.
my pleasure to join the
@DCEKGpodcast
for a wide-ranging discussion about
#AI
policy, including:
* why a sectoral approach to AI policy is superior to general purpose licensing
* why comprehensive AI legislation will not pass in Congress
* the best way to deal with algorithmic
Happy President’d Day! New episode just dropped!
@RealJoeGrogan
&
@RealEU4U
speak with a leading researcher & brilliant mind about her recent paper that exposed “nonprofit” hospitals provide LESS charity care than for-profits.
When this progressive plan to remake how cures and treatments r discovered is put in place, my life is directly threatened. I need a pipeline of new medicines to speak, be a dad, to live. My MS is manageable but not cured. They are risking my life & millions of other patients.
No surprise in this Dec 7th attack. The Biden team says it can undercut the foundation of the medical discovery ecosystem. Which means the drugs on which my life depends has been sacrificed on the alter of the progressive left.
#Bidenomics
@Hopemattersmost
Don’t miss this episode: we are reposting our 2023 interview with Dr. Jay Bhattacharya. This expert review of public health during COVID from one of the scientists who were silenced for challenging the elite orthodoxy. A living lesson to learn from.
“How’s (he) doin’?” Ten years after the death of NYC mayor Ed Koch,
@dcekgpodcast
talks with their guest Tevi Troy about the larger-than- life mayor and what he would think about our current president.
I appeared at 9 of 10 CMS meetings over the last three weeks on drug prices. Speaking up for the unheard patients who are having their lives threatened by government overreach.
@Hopemattersmost
See my most recent here:
The mad skills of
@GeBaiDC
are on full display in the episode.
A humbling and powerful reminder of how we can fix high cost healthcare with proven solutions that surround us everyday. Thank you, Ge!
Happy President’d Day! New episode just dropped!
@RealJoeGrogan
&
@RealEU4U
speak with a leading researcher & brilliant mind about her recent paper that exposed “nonprofit” hospitals provide LESS charity care than for-profits.
Just like this White House “determined” that it had the authority open the border, shut down schools and censor voices on social media, they are now ready to seize ownership of drugs. Excessive power that will again hurt Americans.
@RealJoeGrogan
@mssociety
Can we keep the pedal to the medal?
The assault on innovation by policymakers and their stigmatizing of “me too” treatments as meaningless risks the MS drugs I need to live. Please stop kowtowing and fight for a vibrant ecosystem of medical development.
Thank you, Mr. Speaker! We need to pull as many fire alarms as possible before people suffer unnecessarily from this “signature” progressive program. Which is more like a public policy progrom with a body count and attacks on the innocent.
Powerful and disturbing piece from John Czwartacki
@CZ
, an MS patient raising the alarm on how the IRA is crippling medical innovation in the U.S, but being met with indifference from the Biden CMS.
From my hospital bed, I’ve seen overworked nurses, stretched too-thin doctors, and deeply caring therapists. The billions spent on US healthcare never makes it to a patients’ bedside, it goes to fund faraway office towers and a
headcount that’s just pushing paper.
How is anything but this dominant in the headlines? Americans and innocent Israelis were snatched by terrorists. Why haven’t we said return them unharmed or else. “Israeli Families Push for Deal to Free Men Still Held Hostage in Gaza”
No surprise in this Dec 7th attack. The Biden team says it can undercut the foundation of the medical discovery ecosystem. Which means the drugs on which my life depends has been sacrificed on the alter of the progressive left.
#Bidenomics
@Hopemattersmost
Just like this White House “determined” that it had the authority open the border, shut down schools and censor voices on social media, they are now ready to seize ownership of drugs. Excessive power that will again hurt Americans.
@RealJoeGrogan
Knowing your birthday, and therefore your chronological age, is brand new in human history. Until 200 years ago you were either young or old. “Teenage” or “retirement” years weren’t a thing. We’re now living longer and know how to be healthier. So let’s create the best life with
Not an overdose. Fentanyl poisoning. We need to approach this on a war footing: American citizens are dying every 10 minutes as a result of chemical warfare, manufactured by hostile foreign powers. This needs action yesterday!
Winnefeld makes great arguments for smart FISA reforms. FISA was abused in the past -- no question-- but we should reform it, not scrap it: Adm. Winnefeld's 19-year-old son never had to die from a fentanyl overdose. This critical law can fight the crisis
If you haven't heard
@MajorCBS
's new podcast "Agent of Betrayal: The Double Life of Robert Hanssen," what are you waiting for?
Available now, wherever you get your pods.
Episode 2 drops Thursday AM!
Subscribe/rate/review:
Survivors For Solutions’ Submitted Comment to CMS on IRA. Public comments are throttled. They don’t want to hear how much harm will rain down on patients as innovation dies.
@rachelcohrs
@HouseCommerce
@boblatta
The reason we hate all those SW DC government buildings is… because we’re supposed to. Tune into this week’s podcast and hear how GSA’s brutalist design is supposed to evoke fear and terror.
“Look ma, the New York Times does publish patients voices-or at least one.” Check out my
@survivorsforsolutions
lte calling out the ongoing anti survivor/pro illness assault.
I understand firsthand the importance of the hope that new treatments bring, which is why I started
@hopemattersmost
. We must ensure these patients’ success stories w/ the new Alzheimer’s drug aren’t the last. Protect medical innovation and access!
Healthcare spending is too high. Americans pay more for healthcare than anyone else. And they’re pissed. This waste, abuse & bloat lines Wall Street pockets & Big Insurance, & exploit hospitals systems, patients, & US taxpayers. The answer is to follow the $$$, not kill cures.
GREAT Interview with
@DrBrian4Health
how AI will improve patient care, doctor efficacy, and overall healthcare productivity. He even talked about how blockchain for personal health records can finally alleviate the nagging paperwork hassle for everyone… safely.
Just posted:
@RealJoeGrogan
&
@RealEU4U
interview Dr. Brian Miller, a hospitalist just off rounds, about how much innovation is needed & how AI can help doctors, patients, and the entire healthcare system with efficiency, cost, and care.
September is Suicide Prevention Month. Unfortunately, our country is in the midst of a mental health crisis, with nearly 50k lives lost to suicide in 2022. The 988 Suicide & Crisis Lifeline offers free 24/7 mental health support at your fingertips. Call or text 988 for help.
‘Getting DC regulators off on the right foot with AI’ is how I’d describe this episode. “Gloom and doom” vs “trial and error.” It’s the most clear-eyed view for policymakers I’ve heard.
@Jason
@chamath
@DavidSacks
For patients, this is another d day. The hope of free people to do great things. Future discovery, innovation, & cures is at stake.
@hopemattersmost
: “Merck sues Biden administration over Medicare drug price negotiations”
@CNBC
It’s debate night. So as bread and circuses distract us from real policy problems, the humanity’s “Doomsday Clock” will be closer to midnight because of this announcement. Not nuclear weapons, not climate change, not Trump on Tucker.
Patent reform may be necessary, but the IRA is FAR bigger threat to innovation and development of new drugs. The moment the researchers BELIEVE that an MS Rx- any DMT for MS - will be price controlled, that is THE END of any new medication for those trying to fight MS. Mark my
Tune into the
@JudiciaryDems
@SenJudiciaryGOP
hearing on the
#Rx
drug market. As members discuss the patent system, they must keep in mind how these protections enhance innovation and deliver lifesaving cures to patients.
AI could be considered by federal agencies to stop waste and abuse, especially in HHS programs. But no sign that team Biden will. Latest budget is under the microscope this week. Listen and subscribe lo
@DCEKGpodcast
link below.
Latest
@DCEKGpodcast
is up now. Great discussion with Paul Winfree in 3 parts re federal budget. Pt I out now. Also debuted the ad for its latest sponsor, SuviorsforSolutions,org aka
@Hopemattersmost
.
How nice. Not only does this cost the taxpayer, but most painfully is the squeeze that it places on those who actually need the help- the poor, children, disabled. Insurance companies are kept healthy, but America is left in worse shape than ever.
@costplusdrugs
@mssociety
As a 30-year survivor of MS who’s navigated the many costs of this disease, I applaud
@costplusdrugs
4 bringing lower-cost generics to MS patients & bringing more hope to patients & for solutions like this. However, as you know, it’s an uphill fight. More…1/ 8
@GOPHELP
@mcuban
Plan B, C, and D treatment options are meaningful for the patients living with a disease without a known cure. The devaluation of these “me-too” drugs by some public health experts is alarming. Read
@CZ
’s LTE in
@nytopinion
:
Happy Star Wars Day! On this very special occasion I want to remember the Star Wars scene that changed history and gave us one of the most iconic lines ever put to screen.
#MayThe4thBeWithYou
Tune into the
@JudiciaryDems
@SenJudiciaryGOP
hearing on the
#Rx
drug market. As members discuss the patent system, they must keep in mind how these protections enhance innovation and deliver lifesaving cures to patients.
CMS Charges Ahead w/ Drug Price Controls Despite Concerns
“The same government that…has trouble counting blimps in our sky is now telling us it can master the economics … of delivering breakthrough medicines…. I’m not buying it, and neither should you.”
Remarkable how the current ownership is never mentioned in this coverage. No one reports facts anymore, it’s all some “approved narrative.”“Washington Post journalists launch historic 24-hour strike”
For
#worldMSday
let’s raise our voices for MS patients, and for ALL diseases: keep innovation going and support all medical breakthroughs. Because
@Hopemattersmost
Just posted: deep dive into the geopolitical landscape and how we got here, from Israel, Ukraine, China, and “useful idiots” of the west. National security expert joined
@RealJoeGrogan
and
@RealEU4U
. Listen and subscribe:
Besides the embarrassing defacing of our first president, all American citizens should see the attack on our nation and its democratic values. As a GWU graduate (‘92), I deeply ashamed.
Ok after some soul searching it’s become clear that my fudgicle addiction is a feature not a bug. I’m leaning in and unafraid. I can say I ate two yesterday. Sue me.
A powerful oped by fmr Rep. Lamar Smith explains the assault on bipartisan law that unlocked taxpayer funded research (but being wasted) & allowed millions of patients to benefit. Now twisted into limitless gov plan for confiscation.
@JTLonsdale
Discounts on “blue checks”? Free Yeti stuff? Cat videos? Not here, just the “what and why” of Washington in our weekly
@DCEKGpodcast
w/
@RealJoeGrogan
&
Come for the healthcare discussion, stay for the insider deep tracks.