Aortic Dissection Charitable Trust @AorticDissectCT Twitter profile

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Aortic Dissection Charitable Trust

3 days

Officially amazing! Mike finishes his solo kayak UK circumnavigation challenge. His journey has raised significant awareness & funds for aortic dissection research & patient support. Thank you @livelaughgraft for your incredible dedication! #TeamAorta 💪

Michael Lambert Finishes UK Kayak Challenge for Aortic Dissection

Mike Lambert finishes solo kayak around the UK and Ireland, raising awareness and funds for aortic dissection research and patient support.

aorticdissectioncharitabletrust.org

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Aortic Dissection Charitable Trust

@AorticDissectCT

1 year

More needs to be done to save the lives lost to #aorticdissection in #emergencymedicine . Please watch and share this 3 minute masterclass created by experts, and together we can make a difference. #AortaEd

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Aortic Dissection Charitable Trust

@AorticDissectCT

11 months

Following the @UKParliament debate led by @Pauline_Latham & very positive meetings with @SteveBarclay @DHSCgovuk . TADCT’s comprehensive strategy to improve long-term #aorticdissection care is moving forward. A real paradigm shift for patients & families:

Elective Aortic Dissection Toolkit: A Landmark Initiative

The Elective Aortic Dissection Toolkit promises transformative improvements in the care, screening, and support of aortic dissection patients in the UK.

aorticdissectioncharitabletrust.org

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Aortic Dissection Charitable Trust

@AorticDissectCT

3 years

Honoured to join the premiere of @ticktickboom tonight. As we celebrate Jonathan Larson’s life, we remember that after suffering severe chest pains & #syncope , being discharged from 2 hospitals. He tragically died from a 2x misdiagnosed #AorticDissection on his kitchen floor 👇

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

We are honoured to announce our newest patient ambassador; Steve Perryman MBE. Former @SpursOfficial captain suffered an #aorticdissection as director of football at @OfficialECFC in 2012 as the team played @SheffieldUnited . Saved by @stjohnambulance @DevonAirAmb 's swift response

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Aortic Dissection Charitable Trust

@AorticDissectCT

11 months

#WorldPatientSafetyDay Spotlighting the crucial role of patient & family engagement in #PatientSafety . Preventing delayed & misdiagnoses of critical conditions like #aorticdissection . Chloe's story is a powerful reminder for change @ptsafetylearn

The Crucial Role of Patient Engagement - Remembering Chloe

Advocating for clearer communication and shared decision-making between healthcare providers and those impacted by aortic dissection

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Aortic Dissection Charitable Trust

@AorticDissectCT

3 years

Official Launch: 31 March 2021. Please join our virtual event, hear about our plans to improve patient outcomes from #aorticdissection . Speakers inc @WhisperingBob @AmyYasbeck4real @Pauline_Latham @timesforrhymes @sroseparamedic @BcsPresident Register

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Aortic Dissection Charitable Trust

@AorticDissectCT

1 year

On #IPD2023 , we're honouring those who race against the clock in the face of #aorticdissection . Thanks to our training with UK ambulance trusts, paramedics can spot early signs & make life-saving decisions. Here's to Tim, a survivor who owes his life to their quick action. Your

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Aortic Dissection Charitable Trust

@AorticDissectCT

1 year

Today, on #RareDiseaseDay2023 , we recognise and stand in solidarity with all those affected by rare diseases. As we raise awareness about rare diseases, we also need to advocate for more research & resources to improve the lives of those affected. We #CareForRare . @GeneticAll_UK

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Today is our 1st #birthday ! It’s been an amazing year establishing & growing a #community of #inclusivity in #aorticdissection . Like everyone, the past year has been trying. But we're reflecting on the highlights of what has been achieved so far. Please read on 🧵👇

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Congrats to our Trustee Catherine Fowler BCAh who today receives an honour for service to healthcare. Here holding the coveted Medal of Honour in recognition for her selfless work campaigning for improved diagnosis & treatment for #aorticdissection patients #thepeopleshonours

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Today we release our online resources for #aorticdissection patients These resources aim to support those living with or at risk of the condition & their families. Supported by @WhisperingBob & Dr Bejal Pandya of @BartsHospital @NHSBartsHealth #AortaEd

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Aortic Dissection Charitable Trust

@AorticDissectCT

3 years

Thank you to our ambassador @WhisperingBob for sharing his story and helping others connect to the UK charity for #aorticdissection on today’s @theJeremyVine @BBCRadio2 show #PatientLeadership

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Aortic Dissection Charitable Trust

@AorticDissectCT

1 year

Today is our 2nd #birthday ! It's been a remarkable year growing a community of inclusivity within #aorticdissection . Despite the challenges for both families & healthcare pros, we're proud & excited to continue our mission. Join us in reflecting on a packed & successful year 🧵

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 months

Exciting breakthrough at @emergencyhull ! They've slashed #aorticdissection diagnostic times, improved detection rates & achieved a 100% detection success rate. Discover how @HullHospitals ' innovative approach saves lives. #PatientSafety @HumberNHSFT

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Aortic Dissection Charitable Trust

@AorticDissectCT

3 months

It's rare for a surgeon to speak so openly about their work. Listen to Prof Mark Field @LHCHFT discuss the emotional challenges of #aortic surgery @thesilentwhypod . A candid look at a life-saving profession. Thank you Mark @TeamAortaLHCH @UK_Aorta @SCTSUK

Surgery Realities: Insights from Aortic Surgeon Prof Mark Field

Gain a deeper understanding of aortic surgery through the eyes of Prof Mark Field, who discusses the emotional impact and responsibilities of his profession.

aorticdissectioncharitabletrust.org

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Remembering all of those who have tragically lost their lives to this detectable, treatable, survivable disease #aorticdissection , every day & especially during the awareness month. We are working to make the world a safer place for patients with AD through #research & #AortaEd ❤️

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Thank you to #aorticdissection Ambassadors & #Spurs special guests for bringing #AortaEd to over 250 people at the UK’s largest awareness event. Also raising funds for #aortic #research . @WhisperingBob @Steve6Perryman @osvaldooardiles #AorticDissectionAwarenessDay #AortaSupporta

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Aortic Dissection Charitable Trust

@AorticDissectCT

3 years

We're halfway through #MarfanAwareness month. Those with Marfan's can have an altered fibrillin-1 protein which causes weakened connective tissues. This can affect the wall of the #aorta . As a result, someone with #MarfanSyndrome has a 250x⬆️chance of having an #AorticDissection

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Aortic Dissection Charitable Trust

@AorticDissectCT

3 years

#AorticDissection field guide for #primarycare Proud to launch this #AortaEd in partnership with @PCCS_UK supporting multi-disciplinary teams of GPs, nurses, pharmacists & other healthcare pros involved in CV disease care #aorticdissectionawarenessweek

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Aortic Dissection Charitable Trust

@AorticDissectCT

1 year

@PaigeChristieUK @untaymed13 We're also here Paige if we can offer any further help or advice. Wishing the best for your brother ❤️

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Snowy is back! Tomorrow marks the start of #AorticDissection awareness month. An ideal time to increase attention to this poorly acknowledged healthcare disaster, show solidarity for patients & their loved ones who have endured the consequences of AD

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Aortic Dissection Charitable Trust

@AorticDissectCT

3 years

Paramedics play a vital role in the early diagnosis of the detectable killer #aorticdissection . Join @sroseparamedic tomorrow at @ParamedicsUK to enhance the understanding, knowledge and management of this time-critical condition for pre-hospital clinicians #ParaCon21 #AortaEd

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Thrilled to see the new Acute #AorticDissection Pathway Toolkit has been released by @NHSEngland . Thank you to all of those of you who gave feedback to help develop it. These principles support the basis of improving regional variation & saving 𝟱𝟬𝟬 𝗹𝗶𝘃𝗲𝘀 per yr in the UK

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Aortic Dissection Charitable Trust

@AorticDissectCT

6 months

Uniting in grief to spark change 🕊️ When bereaved families and medical professionals come together, powerful transformations happen. The latest episode @thesilentwhypod #podcast explores this powerful collaboration. #grief #bereavement #loss

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Aortic Dissection Charitable Trust

@AorticDissectCT

3 years

Tomorrow marks the start of #AorticDisease September, a month remembering those lost, celebrating those who have survived and those making a difference to #AortaEd #MedEd Lots happening this month - shining a spotlight on #aorticdissection across the world.

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Earlier in parliament, @Pauline_Latham called for a @UKParliament debate to mark the global awareness day for #AorticDissection @ADsept19 and asked the new @DHSCgovuk minister @ThereseCoffey for improved #AortaEd to reduce the current tragic loss of life due to AD.

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 months

Wishing calm seas as @livelaughgraft sets off on his Guinness @GWR record attempt today, raising funds for #aorticdissection and the @RNLI . Track his live journey and read about the impact his challenge will make. #TeamAorta 👇

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Aortic Dissection Charitable Trust

@AorticDissectCT

1 year

Losing a loved one to aortic dissection brings unique challenges & profound pain. We've created a comprehensive Bereavement Resource to offer solace, guidance & understanding during this difficult journey. Find comfort through shared experiences & expert

Aortic Dissection Bereavement Support - Comprehensive Guide for Grieving Families & Partners

Navigate the complexities of grief after losing a loved one to aortic dissection with our comprehensive support guide, developed collaboratively by families, partners, and medical professionals.

aorticdissectioncharitabletrust.org

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Aortic Dissection Charitable Trust

@AorticDissectCT

1 year

#Aortic dissection grants are now available. For 2023, we are thrilled to announce that we are accepting applications for #researchgrant funding. Closing on 6th June. See full details #medicalresearch #medical #research #whywedoresearch

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Exciting news for the medical community! We have released the first set of new online #aortaEd resources, providing comprehensive aortic dissection information and expert advice for healthcare professionals. Check it out now at #MedEd #FOAMed

AortaEd any time, any place | healthcare aortic resources

This online educational platform is the go-to resource for healthcare professionals interested in expanding their knowledge and skills in the crucial area of aortic dissection.

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Aortic Dissection Charitable Trust

@AorticDissectCT

3 years

Risk of #AorticDissection increases within a large spectrum of rare genetic, connective tissue & inflammatory diseases. We support ♥️ all those organisations representing the patients & families affected by these conditions @RareDiseaseUK @RareDiseasesIE #RareDiseaseDay

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 months

Today marks an important day & bright future for current & future specialist #aortic nurses. Highlighting their critical role in patient care and follow-up, providing invaluable insights, fostering professional growth & national development of this aortic service. We're deeply

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Aortic Dissection Charitable Trust

@AorticDissectCT

10 months

Live from #CPC23 @ConHome fringe. Trustee Catherine Fowler highlights active #PPV in shaping long-term #cardiovascular #healthcare strategies. Through collaboration to propel patient-centred care, moving beyond passive agreements to proactive partnerships for meaningful change

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Since we formed, #aorticdissection has propelled to top-of-mind for first responders, clinicians & policymakers. This new, connected approach unifies all to make a real change. In times of extremely complex current affairs, we thank @Pauline_Latham for continuing this work #PMQs

Pauline Latham OBE

@Pauline_Latham

2 years

A tough but important subject to raise at #PMQs today. Aortic Dissection kills over 2000 people every year, and I asked the PM for research funding to increase awareness and detection of this disease. More on the work of @AorticDissectCT here:

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

We are delighted to launch the first in-person #Irish #AorticDissection Symposium this September Reserve your free place today for this engaging & innovative #AortaEd #MedEd program aimed at Emergency Physicians, Cardiothoracic Surgeons & Cardiologists ☘️

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Aortic Dissection Charitable Trust

@AorticDissectCT

3 years

. @WhisperingBob will tell his story, along with others, about the direct impact #aorticdissection has had on their lives. Early presentation, diagnosis & transfer to specialised care will save many lives. Join us to find out how we plan to make this change

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Aortic Dissection Charitable Trust

@AorticDissectCT

1 year

A colossal thank you to everyone who made the "Alive!" event an unforgettable night of celebration & resilience! Special shout-outs to the folks of #Brighton , #Hove and beyond for your amazing support A standing ovation to our incredible performers

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

#AorticDissection grants now available 📢 For 2022, pleased to announce that we are accepting applications for #researchgrant funding in the field of AD. Closing on 31st May. See full details Pls share #medicalresearch #medical #research #whywedoresearch

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Risk of #AorticDissection increases within a large spectrum of rare genetic, connective tissue & inflammatory diseases We stand united with all those representing patients & families affected by these conditions @RareDiseaseUK @RareDiseasesIE #RareDiseaseDay2022 #RareDiseaseDay

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Today is a landmark day for aortic dissection as @UKParliament holds its first debate on improving patient care & securing further research funding. Led by TADCT uniting the voices of patients, families & med pros. Together making a difference. Watch live

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 months

1/3 of the way to setting a @GWR record by paddling around Britain! Despite monster waves & painful wounds, @livelaughgraft isn't giving up. His determination & spirit are amazing as he continues this epic journey. Thank you @SherrattZac @BBCSurrey

Surrey man faces gunfire and 6ft waves in kayak record challenge

Mike Lambert said gunfire off the coast of Wales was the scariest part of his journey so far.

www.bbc.co.uk

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Aortic Dissection Charitable Trust

@AorticDissectCT

10 months

Unlocking the Future of Diagnosis. The 2023 #research grant winners are in, focusing on innovative approaches to diagnose #aorticdissection more effectively. Find out who the recipients are & how their work could change the future of #aortic treatment.

2023 Aortic Dissection Research Grant Awards

The winners of the 2023 research grants aiming to improve the diagnosis of aortic dissection. Learn how these projects could change the future of AD treatment.

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Aortic Dissection Charitable Trust

@AorticDissectCT

10 months

#AortaEd : A concerning gap in Acute #Aortic Syndrome care within the NHS. While many trusts manage chest pain, specific expertise is lacking. Current recommendations fall short. The urgent need for improvements is clear #RCEMasc

Survey Reveals Gaps - Acute Aortic Syndrome in the NHS

Insights from a recent survey highlight the pressing need for change to national guidelines in managing Acute Aortic Syndrome within the NHS.

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Aortic Dissection Charitable Trust

@AorticDissectCT

1 month

As #LoeysDietzSyndrome Awareness Month ends we must keep raising awareness of #PatientSafety & #LoeysDietz . Sharon's story shows the urgent need for better diagnosis. Join us in keeping the momentum beyond this month. @ptsafetylearn @GeneticAll_UK

Raising awareness of the risks of Loeys-Dietz Syndrome

Sharon Goddard's story and the crucial importance of enhancing awareness and medical protocols for Loeys-Dietz syndrome to prevent similar tragedies.

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Aortic Dissection Charitable Trust

@AorticDissectCT

3 years

Meet our Trustees: Graham Cooper, past president of @SCTSUK , current National Clinical Advisor for Acute #AorticDissection @NHSuk , consultant cardiac surgeon, honorary lecturer @SheffieldHosp , specialist clinical interest in #AortaEd , Fellow @RCSnews

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Thank you for your support this year. We're so proud of what the AD community & its supporters have accomplished this year. Despite difficult times, we remain devoted to our purpose. We appreciate your ongoing support. Happy New Year, and we wish you a peaceful Christmas ❤️

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Aortic Dissection Charitable Trust

@AorticDissectCT

1 year

An honour hosting pioneering US cardiac surgeon Prof Duke Cameron at @UKParliament #PMQs today. Now, brimming with anticipation to join forces with the rest of the esteemed faculty for the Barts AortoVascular Symposium, celebrating an incredible milestone #Barts900 #NHS #AortaEd

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Aortic Dissection Charitable Trust

@AorticDissectCT

10 months

Missed our @EuropSocEM acute aortic dissection webinar? Sharpen your diagnostic & management expertise in these critical emergencies with this #AortaEd session summary, inc links to the on-demand webinar via #EUSEM Academy. Hosts @gregorprosen @mattreed73

Managing Acute Aortic Dissections in the Emergency Room

The intricacies of diagnosing and managing acute aortic dissection with medical experts in The European Society for Emergency Medicine Webinar

aorticdissectioncharitabletrust.org

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Catherine & @GrahamTADCT present #aorticdissection detection & treatment during The Acute Consult session at this week’s @acutemedicine conference. Sharing the session with @jonpdowning @WhebleMJ @dradelew @NorthBristolNHS @uhbwNHS Register at #AortaEd

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Patients, families and health care professionals come together in the #aorticdissection lunchbox session at #SCTS2022 on Sunday to share their outlook and ambitions for the future of #aortic care. Come and join in. We’re looking forward to seeing you there 🙌 #Aorta #AortaEd

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Due to overwhelming demand, the capacity for this in-person expert panel, simulation and wetlabs #AortaEd has now been increased. Register now for these final tickets before they get snapped up. #Irish #AorticDissection Symposium:

Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

We are delighted to launch the first in-person #Irish #AorticDissection Symposium this September Reserve your free place today for this engaging & innovative #AortaEd #MedEd program aimed at Emergency Physicians, Cardiothoracic Surgeons & Cardiologists ☘️

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Aortic Dissection Charitable Trust

@AorticDissectCT

5 months

Thrilled to have been part of the launch of the groundbreaking @NHSEngland SOP for acute aortic dissection in @NHSsoutheast & @NHSSW today! A huge step forward in standardising care. Thanks to @adpherwani @BrooksMedBris + more for making it happen!

SOP Enhances Aortic Dissection Care Across Southern England

NHS England's latest SOP transforms acute aortic dissection care in the South East and South West, ensuring standardised, high-quality treatment.

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Aortic Dissection Charitable Trust

@AorticDissectCT

7 days

In partnership with @LivUni , @EITC and funded by @STEMLearningUK , schools from around #Liverpool had the chance to discover careers in biomedicine, MedTech and aortic surgery➡️ #STEMEducation #STEM

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

A packed room at the #aorticdissection #emergencymedicine study day. Understanding misconceptions, barriers & opportunities to learn from those transforming the AD patient pathway. New approaches to biomarkers, AI & the implementation of the @NHSImprovement AD toolkit. #AortaEd

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Aortic Dissection Charitable Trust

@AorticDissectCT

3 years

Meet our Trustees: Catherine Fowler. A relentless campaigner to improve #AorticDissection patient pathways & save lives. Collaborated @SCTSUK @RCEMLearning @heartresearchuk @EuropSocEM @AssocEmergMedIE @ParamedicsUK @RCRadiologists to drive this change

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

This September 19th #aorticdissection #awarenessday we announce our 3 successful #researchgrant projects. Join to hear the #research focus areas & how you can be involved. Introduced by 2 powerhouses of AD patient advocacy, treatment & care. Register today

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Who had these 3 Lilywhites Legends in their @OfficialPanini collection? We are excited to announce this charity evening with Ricky Villa, @osvaldooardiles @Steve6Perryman . Join us & @DevonAirAmb for a very special event #THFC #Spurs #TottenhamHotspur

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Aortic Dissection Charitable Trust

@AorticDissectCT

4 years

From the co-creator and former lead of the highly successful #ThinkAorta campaign comes the first #aorticdissection focussed UK charity, aiming to bring consistency of treatment across the whole #aorticdisease patient pathway. An intro thread:

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Trustee & long-term #aorticdissection campaigner Catherine, today had the honour of presenting to the #NHS Medical Directorate inc Prof Stephen Powis @NHSEngland , updating the national senior team on the acute AD toolkit & our #PPV work empowering the voice of patients & families

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Aortic Dissection Charitable Trust

@AorticDissectCT

1 year

Join @PCCS_UK 's 6th Annual Conference virtually on 28-29 Sept 📅. 'Prioritising Cardiovascular Healthcare in the NHS - Practical Implementation for #PrimaryCare ' + expert discussions on lifestyle medicine, explaining risk & MDT #hypertension management. ➡️

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Aortic Dissection Charitable Trust

@AorticDissectCT

1 year

Great job to all of you super #TeamAorta runners at @LLHalf yesterday! 13 runners, 13 miles and £13,000 raised. ABSOLUTELY AMAZING! 👏 We loved cheering you on and seeing all the hard work pay off. Feeling inspired by our amazing runners? Registration for 2024 LLHM is now open:

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Aortic Dissection Charitable Trust

@AorticDissectCT

1 year

Liverpool #teachers #schools : Discover the exciting world of biomedical research careers 3rd May 2023 at @Everton , designed to inspire underrepresented students aged 14-16. Spaces filling fast!➡️ #STEMEducation #STEM #DiversityInScience #Liverpool #Aortic

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Aortic Dissection Charitable Trust

@AorticDissectCT

11 months

Snowy returns with a renewed mission! Starting tomorrow, September is THE month to act, learn & spread the word about #aorticdissection ! The community has lined up a series of can't-miss events. Don't sit this one out - join us in making a real difference

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

It's excellent to see the full paper now available & open access. #Deeplearning examining #aortic disease traits. #AortaEd #MachineLearning . 👏 @LizChou @jpirruccello @MarkELindsay @patrick_ellinor

Nature Reviews Cardiology

@NatRevCardiol

2 years

New Review by @MarkELindsay & colleagues on how advances in our biological understanding of thoracic aortic disease can contribute to strategies to prevent and treat aortic disease |

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Aortic Dissection Charitable Trust

@AorticDissectCT

4 months

Today marks our 3rd birthday & what a year it's been! From expanding our #AortaEd outreach & significant growth in our #research initiatives & policy change efforts, with the @NHSEngland toolkits for #aorticdissection making waves across regions. Our

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

#Liverpool is at the centre of #AortaEd this weekend. Thank you @DrRiazA @jill_madine @livunieng @LiverpoolCCS for kicking it off with #S2R2022 , supported by @CNTech1 @TheBHF @LiverpoolCCS A true strengthening of the #aorticdissection patient-researcher partnership.

Allam Harfoush

@AllamHarfoush

2 years

A photo from the 2022 Aorta conference hosted by the University of Liverpool, with @hanadyhamdallah @UoCMedSchool Thank you @DrRiazA for the invitation, and thanks to the @AorticDissectCT trustees for sharing such a great message. Hopefully, we’ll be able to help in the future

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

🎉 Happy Genetic Counsellor Awareness Day. Thank you for the work you do to support patients & families #GCAwarenessDay #GCAD2022 📺 To celebrate, today we release our latest patient resource explaining genetic testing for #aorticdissection . #AortaEd 👉

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

#SCTS2022 at the forefront of #aorticdissection future care yesterday: #AortaEd for the new-gen of cardiothoracic specialists, the changing landscape of #aortic emergencies & how a MDT Aortovascular Hub will save more lives. Thank you all for a warm #Belfast welcome ❤️

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Aortic Dissection Charitable Trust

@AorticDissectCT

1 year

Meet the @LLHalf #TeamAorta runners participating in #LLHM2023 tomorrow! We are so proud of the 5 runners honouring survivors, 6 runners remembering those lost to #aorticdissection . A special shoutout to our type A survivor & consultant cardiac surgeon runners. Good luck! 🏃‍♀️🏃‍♂️💪

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Aortic Dissection Charitable Trust

@AorticDissectCT

3 years

#Telehealth alerts patient to #aorticdissection while on 400-mile drive. Stops at the nearest hospital for diagnosis & treatment The epitome of reducing barriers to care @valahealth @ceo4vala @ADCollab

Telehealth appointment saves man’s life

Telehealth use increased by 50 percent in the first quarter of last year and 154 percent during the last week of March 2020 alone.

www.denver7.com

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Aortic Dissection Charitable Trust

@AorticDissectCT

4 months

Calling all nurses & AHPs. Join the core of aortic care at the inaugural UK Aortic Nurses Symposium sponsored by @EdwardsLifesci & @TerumoAortic hosted by @TheKingsFund . Explore aortopathy, patient care & more. Free entry + travel bursaries available.

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Aortic Dissection Charitable Trust

@AorticDissectCT

14 days

We are excited to announce that Dr John Elefteriades, a top cardiothoracic surgeon from @YaleMed , is our new patron! 🎉 Dr Elefteriades has decades of experience treating aortic diseases and has done amazing work at Yale University. We'll be using his

Dr John A. Elefteriades Named Charity Patron

Renowned cardiothoracic surgeon Dr John A. Elefteriades is announced as the patron of the charity, bringing his vast expertise and commitment to advancing aortic disease.

aorticdissectioncharitabletrust.org

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

So, so proud of the runners at @LLhalf today, raising funds in memory of loved ones to help others with #AorticDisease . A huge well done to all of you. Together we will make a difference. Thank you #TeamAorta @CRY_UK @TheBHF #LLHM2022

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Great to be back next week presenting an update on our work improving the misdiagnosis & delayed diagnosis of #aorticdissection in #emergencymedicine at @EuropSocEM #EUSEM22 congress on the 19th. Joined by Prof @MattReed73 @EdinburghUni & Dr Eva Göncz from @ChariteBerlin #AortaEd

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Aortic Dissection Charitable Trust

@AorticDissectCT

9 months

@PaigeChristieUK Sending heaps of positive energy your way. The courage of your brother and your family in facing this uncertain path is immense. We're all with you in spirit. Stay strong.

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Aortic Dissection Charitable Trust

@AorticDissectCT

11 months

This evening, hear from the #aorticdissection projects awarded the 2023 #research grants. We’re delighted to have two esteemed speakers open the event. @SteveBarclay highlights @NHSEngland ’s work & Lord Kakkar underlines @uk_biobank ’s key role. Join us ➡️

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Aortic Dissection Charitable Trust

@AorticDissectCT

3 years

Thank you Laura for running an #aorticdissection education event this week at South Warwickshire NHS @nhsswft . Helping ACPs to enhance their capacity & capability to spot the red flags & speed up diagnosis 👉 #alwaysimproving #ACP #advancedclinicalpractice

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Aortic Dissection Charitable Trust

@AorticDissectCT

3 years

At this year’s virtual @SCTSUK annual meeting we are proud to be the sponsor for the Aortic Surgery I session on Sunday 9th May. @GrahamTADCT will also be presenting the current #aorticdissection national overview #AortaEd . Join at

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Tackling the charity’s most adventurous challenge so far. Val will be following the iconic scallop shells on 507 miles of the #CaminodeSantiago . Raising awareness & funds for #aorticdissection which affects her family along with #loeysdietzsyndrome

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Aortic Dissection Charitable Trust

@AorticDissectCT

3 years

Meet our Trustees: Pauline Latham OBE MP for Mid Derbyshire, who lost her son to #AorticDissection at the age of 44. Currently influencing the @NHSuk service specification and directly impacted the @NHSImprovement Specialised #Cardiac toolkit, out soon

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Aortic Dissection Charitable Trust

@AorticDissectCT

1 month

Join us for the Scottish Aortic Dissection #AortaEd Event. Explore aortic dissection pathophysiology & pre-hospital management. Afternoon sessions: live simulation or POCUS. Tailored for paramedics & emergency medicine. Free + 5 CPD hours by @RCSEd .

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

At @SCTSUK #SCTS2022 we brought together leading experts to discuss their vision of the future of #aorticdissection care. This cutting-edge seminar has been compiled into an article detailing the future of treatment, genetics & holistic care for patients.

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Aorta is always the first thing on our minds. How about you? 🟩🟩🟩🟩🟩 1/6 #aorticdissection #wordle #dailywordleclub

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Join us this evening to hear from the #aorticdissection projects awarded the 2022 AD #research grants, inc intros from Timo Söderlund & Prof John Elefteriades. Registration ➡️ Project 1/ Matthew Machin from @imperialcollege

Development of core outcome set for Type B Aortic Dissection

Type B aortic dissection (TBAD) is a potentially fatal illness that can affect people of any age and has an acute phase 30-day mortality rate of 13.3%.

aorticdissectioncharitabletrust.org

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Recorded lectures & highlights from the 2nd national Irish #aorticdissection symposium are now available. Register for free to access diagnosis & treatment insights from the leading #aortic experts. Open to all #AortaEd #FOAMed #MedEd #MedTwitter ➡️

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Thank you @GloriaDePiero and @GBNEWS for hosting @Pauline_Latham , highlighting the importance of diagnosis in acute #AorticDissection and the work we’re doing with patients and families impacted by AD.

GB News

@GBNEWS

2 years

'He died from an aortic dissection... You don't hear about it until it affects your family.' Conservative MP Pauline Latham tells Gloria De Piero of the loss of her son in 2018, and what she's doing to help others. The Real Me: Exclusively on GB News 📻 DAB+

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

We’re celebrating the critical role patient participation plays in shaping the future of #primarycare . We are proud to unite and support those impacted by #aorticdissection , contributing to making fundamental changes to the quality of care #PPGawarenessweek #PatientPartnership

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 months

Yesterday’s workshop brought together leading experts, researchers & patients to push fwd the discussion on aortic health & #BicuspidAorticValve . Cutting-edge research on microstructure, amyloidosis, microcalcifications & circadian rhythms emphasised the importance of diversity

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Aortic Dissection Charitable Trust

@AorticDissectCT

3 years

There is an urgent need for a new, faster way to Dx #aorticdissection - every minute's delay can prove fatal. Following the recent @TheBHF @dundeeuni amino acid biomarker research, an exciting new study on a protein-coding gene potential identifier & therapeutic target #AortaEd

Extracellular Matrix News

@ExtracellMatrix

3 years

Lactate dehydrogenase A mediated degradation of #ExtracellularMatrix is a potential target for the treatment of #AorticDissection , according to researchers at Fujian Medical University. Read it here: 📚

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Aortic Dissection Charitable Trust

@AorticDissectCT

3 years

It’s looking like a busy year for #aorticdissection ambassadors, experts & patient champions. Kicking off this week with an #emergencymedicine event @CDDFTNHS - @acutemedicine & @EMASNHSTrust #firstresponders conferences soon. More #MedEd #AortaEd TBC

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

We believe it is vital for professionals and patients to work together for better #aorticdissection emergency care: improving diagnosis, increasing survival and reducing disability. We support #EmergencyMedicineDay #TeamED #PatientPartnership #PatientEngagement

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

. @WhisperingBob talks about his #aorticdissection and messages from @RobBrydon & #SteveCoogan during his recovery on the latest @RobBrydon Brydon & #podcast . #AortaEd

Rob Brydon

@RobBrydon

2 years

In this week's podcast, I'm joined by @WhisperingBob to discuss The Old Grey Whistle Test, hanging out with The Beach Boys and more. Listen to the full 47-minute episode, free and exclusively on @SpotifyUK 🎙 #oldgreywhistletest #countrymusic

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Aortic Dissection Charitable Trust

@AorticDissectCT

1 year

Overjoyed and humbled by the phenomenal feedback we've received from the schools that attended 💖 Thank you to the #aortic and industry specialists who lent their expertise on the day @DrRiazA @jill_madine @TeamAortaLHCH @LHCHFT @LivuniSTEM @LivUni

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

It is a great opportunity to remind the public, media, @NHSuk @HSELive , healthcare pros & @DHSCgovuk @roinnslainte that there is an urgent need to improve education, diagnosis & long-term care The power of persistent awareness should never be underestimated. Please get involved!

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Aortic Dissection Charitable Trust

@AorticDissectCT

3 months

Renewing @DHSCgovuk 's commitment to #aorticdissection care. Today's discussion with @VictoriaAtkins focused on strategic innovations & Elective Toolkit update, dedicated to elevating care standards. Setting the blueprint for a brighter patient care future

Setting the blueprint for a brighter patient care future

Changing the future of AD care in the UK, improved diagnosis, treatments, and patient support, as discussed in a crucial meeting with health officials.

aorticdissectioncharitabletrust.org

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

We’re showing our stripes for International #DayoftheZebra . Raising awareness of the increased risk of #aorticdissection for #EDS and #HSD patients. #EhlersDanlosSyndrome #zebrastrong #HypermobilitySpectrumDisorder #hypermobility @HMSACharity

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

This week we brought 3 proposals to the ministerial team @DHSCgovuk focusing on a step change in approach to national #aorticdissection diagnosis, genetic guidance & patient care. These were shaped by patients, families & the medical community. This is where real change starts.

Will Quince

@willquince

2 years

A pleasure to meet with @Pauline_Latham alongside my @DHSCgovuk colleague @Helen_Whately and @AorticDissectCT to discuss aortic dissection. Eaely diagnosis is vital and the Government is working alongside the @NHS to speed up diagnosis and raise awareness for families.

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Aortic Dissection Charitable Trust

@AorticDissectCT

4 months

Discover the future of #BicuspidAorticValve #BAV treatments and #aortopathy management. Join experts in a discussion on personalised care and the latest innovations. Open to patients, researchers and clinicians #AortaEd #aorticvalve #bicuspid

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Aortic Dissection Charitable Trust

@AorticDissectCT

2 years

Honoured to announce our newest patient ambassador; Sharon Sewell a recent survivor of #aorticdissection who is coming to terms with life post-AD. Sharon is helping champion the advice, information & friendship offered by the charity that understands the impact of the condition.

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Aortic Dissection Charitable Trust

@AorticDissectCT

3 years

Jon had a tear of more than 12 inches along his #aorta . Investigators concluded that he would have lived if #AorticDissection had been correctly diagnosed & treated with surgical repair. #Marfan BUT, 25 yrs following this heartbreaking loss, AD continues to be misdiagnosed 👇

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