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Vitiligo Society Profile
Vitiligo Society

@vitiligosociety

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Following
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📍London based charity. Est. 1985. Supporting and collaborating with those with vitiligo in the UK and globally.

London
Joined April 2011
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@vitiligosociety
Vitiligo Society
4 months
🚀 Today we launch our #LetsTalkVitiligo campaign to raise awareness of the impact of having vitiligo and how to get support. Over 700 people with vitiligo spoke to us about how the condition affects their lives. 🔎 Find out what they had to tell us ➡️
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@vitiligosociety
Vitiligo Society
2 years
Look what we spotted! The new Rainbow doll Jewel Richie, is their first doll with #vitiligo ! We just love seeing these new toys coming out & raising awareness of vitiligo 💜🥳 #vitiligoawareness #vitiligocommunity #vitiligotoys #kidswithvitiligo
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@vitiligosociety
Vitiligo Society
2 years
We want to say a huge thank you to @leonnaMayor for speaking out about her #vitiligo yesterday, and helping to raise awareness about the condition. We think you're incredible Leonna! #vitiligoawareness #vitiligoeducation
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@vitiligosociety
Vitiligo Society
7 years
On @thismorning at 10:55...Iomikoe Johnson talks about life with Vitiligo...tune in if you can... #Vitiligo
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@vitiligosociety
Vitiligo Society
5 years
Happy World Vitiligo Day! - It’s an incredible time to have Vitiligo and be proud of it. Today is a reminder of just how far we’ve come as a strong community that celebrates, appreciates and embraces their skin. 💜 Today is for us. It’s about us. Let’s celebrate us.... #wvd2019
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@vitiligosociety
Vitiligo Society
6 years
The media needs to listen...
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@vitiligosociety
Vitiligo Society
5 years
Elisabeth Van Aalderen’s Vitiligo project has been featured in another newspaper...we’re not surprised...how she captures Vitiligo is breathtaking....Have a read!
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@vitiligosociety
Vitiligo Society
2 years
6 year old Zac refers to his #vitiligo as his 'clouds' and sadly it's something he's just started to feel self-conscious about. Lets all give him some encouragement and support, so he continues to feel proud of his unique appearance 💜 We think you're brilliant Zac!
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@vitiligosociety
Vitiligo Society
2 years
Treatment Update! The U.S. Food and Drug Administration granted approval on Monday for Opzelura, which is the first topical JAK inhibitor cream for the treatment of vitiligo for people 12 and older. #vitiligo #vitiligotreatment #vitiligonews #vitiligoresearch
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@vitiligosociety
Vitiligo Society
2 years
Exciting announcement! The makers of Barbie have unveiled an inclusive range of dolls - including the first Ken with #vitiligo - coming out in June! Mattel said it wants children to 'see themselves reflected' in the barbie dolls and 'understand the importance of inclusion'.
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@vitiligosociety
Vitiligo Society
2 years
Exciting news! One o four favourite ambassadors is been working on a new children's book called 'The Adventures of the Vitiligo Man'. More details to be revealed soon, and we certainly can't wait to hear more from this new #vitiligo superhero!
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@vitiligosociety
Vitiligo Society
2 years
Congratulations to our ambassador Shankar Jalota for publishing his new book 'The Adventurers of the Vitiligo Man'! The new books aims to celebrate, educate and empower children with vitiligo. Available now to order from amazon. #vitiligo #childrensbooks #vitiligobook
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@vitiligosociety
Vitiligo Society
7 years
The Final Edit! What Not To Say To Someone With Vitiligo featuring 8 awesome people 🤗 #Vitiligo
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@vitiligosociety
Vitiligo Society
5 years
In a quest to put a stop to rude remarks, this young woman decides to have a clear message tattooed on her skin...
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@vitiligosociety
Vitiligo Society
4 years
A short video message from Natalie, on behalf of the trustees at the society... HAPPY WORLD VITILIGO DAY! Today is about so many things....raising awareness, educating others but most importantly CELEBRATING our skin because we can! We hope today is as amazing as you are! 💜
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@vitiligosociety
Vitiligo Society
3 years
Happy #WorldVitiligoDay ! Let's kick today off with a free gift for all you lovely followers 💜 We have a new ebook that gives you all the information #vitiligo diagnoses, treatment, support and much more! 🤓📖📚 Download it for free:
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@vitiligosociety
Vitiligo Society
5 years
I’ve never experienced such Togetherness. You’re never alone when you have Vitiligo... #wvd2019houston 💜
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@vitiligosociety
Vitiligo Society
6 years
Happy World Vitiligo Day! Loving all the inspiring images, self loving quotes and empowering stories being shared across social media to mark such a special day in the calendar. Hope your day has been as amazing as you all are 💚 #worldvitiligoday
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@vitiligosociety
Vitiligo Society
3 years
Exciting news about the upcoming launch of a new #Barbie featuring #vitiligo ! It's just amazing to see diversity celebrated in this wonderful toy collection. Check out our new article for the full story 💜👫👏
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@vitiligosociety
Vitiligo Society
8 months
"What an honour it is to be the first female footballer in EA Sports FC 2024 to represent the #vitiligo community...I want more people to love who they are and be okay with looking different and walking with confidence." Thank you Tiffany Cameron for being such an inspiration!
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@vitiligosociety
Vitiligo Society
1 year
Important news! Incyte Announces European Commission Approval Of #Opzelura ® (Ruxolitinib) Cream For The Treatment Of Non-Segmental #Vitiligo . This means we're potentially a step closer to the treatment being available in the UK. Links to further reading in the comments below.
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@vitiligosociety
Vitiligo Society
5 years
Primark praised for using teenage model with Vitiligo... @Primark #vitiligo #incredible #celebratingdiversity
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@vitiligosociety
Vitiligo Society
2 years
University of the Arts London student is looking to photograph males and females with vitiligo as a way of raising awareness and normalising visible skin conditions. London based shoot. Interested? Please darher96 @poczta .fm for more info. Photo credit: Elizabeth Van Aalderen
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@vitiligosociety
Vitiligo Society
7 years
Exciting new BBC series seeking people with Vitiligo! Get in contact for a chance to appear... #vitiligo
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@vitiligosociety
Vitiligo Society
7 years
'Before you comment on someone's appearance, try and get the whole story first....' Open account by Dean Edwards
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@vitiligosociety
Vitiligo Society
6 years
“Today I represent a different standard of what people traditionally consider beauty” ❤️ Great interview with @TeenVogue @winnieharlow
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@vitiligosociety
Vitiligo Society
2 years
When diagnosed with vitiligo, people often feel overwhelmed with all the new information they have received. That's why we created our new patient leaflet to make sure no-one has to go through their vitiligo diagnosis alone. #vitiligo #vitiligosociety
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@vitiligosociety
Vitiligo Society
2 years
Why #vitiligo occurs is not currently known. It is thought to be linked to autoimmune diseases, which result in the immune system attacking its own healthy tissues in error. We exist to educate, support research, and spread awareness about vitiligo. #vitiligosociety
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@vitiligosociety
Vitiligo Society
3 years
James was just 13 years old when this stunning picture was taken by @MrElbank . Here's to James and all the young people in our community who are raising awareness of vitiligo and teaching the world a lesson in self acceptance 💙👏 #vitiligo
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@vitiligosociety
Vitiligo Society
4 months
Happy #InternationalWomen 'sDay to all the strong, beautiful women living with #vitiligo around the world. #strong #brave #visibledifference #community #vitiligocommunity #1 %club
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@vitiligosociety
Vitiligo Society
2 years
"I am more than my skin, more than my appearance and more than what is seen." Inspirational words from model and vitiligo advocate Curtis J McDaniel #vitiligo #vitiligosupport #vitiligoawareness #vitiligocommunity
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@vitiligosociety
Vitiligo Society
6 years
Loving the cover of the May issue of Elle UK! Who better to have represent ‘The Face of Now’ ❤️
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@vitiligosociety
Vitiligo Society
6 years
Contestant who competed on The Bachelor explains how she went from hiding her skin on the show, to embracing her skin and finally letting go of her insecurities...
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@vitiligosociety
Vitiligo Society
2 years
Are Vitiligo and Psoriasis Related? Experts seem to agree that they share certain risk factors, and are meaningfully connected. Once you’ve been diagnosed with one autoimmune disorder, you’re often more at risk of developing another. Read more here:
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@vitiligosociety
Vitiligo Society
7 years
The amazing stories of those with Vitiligo just keep coming...BBC Radio 1.. 'My Extraordinary Skin', 4th August..
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@vitiligosociety
Vitiligo Society
1 year
Our quote of the week: “Everything you need is within you, the strength, courage and confidence to change your life. You just need to look within yourself and find it.” ~ Amanda Ray #vitiligo #vitiligocourage #showyourspots #vitiligopride #vitiligocommunity #vitiligosupport
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@vitiligosociety
Vitiligo Society
2 years
Kuwaiti Doctors explain new vitiligo treatment "With generalized #vitiligo , over 90% give positive results. For other types, the response rate is over 80%, with the exception of segmental vitiligo, where half of the users show results."
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@vitiligosociety
Vitiligo Society
8 months
Winnie Harlow hit the Vogue Netherlands cover last month sharing on her social media: 'I hope every time a little girl or boy sees me on a cover they remember anything is possible'. #vitiligo #vitiligoawareness #vitiligobeauty
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@vitiligosociety
Vitiligo Society
2 years
“Wear your parches with pride. Hold your head up high. If people stare, let them stare. They are just fascinated with your uniqueness.” Shop our #vitiligosuperhero merch and help support our mission. #vitiligo #vitiligoawareness
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@vitiligosociety
Vitiligo Society
7 years
Winnie gracing the cover of this months Glamour Magazine! Great to see her on the UK magazine shelves....Grab your copy now! @GlamourMagUK
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@vitiligosociety
Vitiligo Society
8 years
London Vitiligo Open Day, 1st October 2016! A day of exciting guest speakers including @leethomastv ! Book Now -
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@vitiligosociety
Vitiligo Society
3 years
Did you know that if you have #vitiligo an SPF 50 sun screen will protect you from both UVA and UVB rays. Most products contain a star rating. A rating of 5 will give you the highest level of protection, which is just what those of us with vitiligo we need 😎💜 #SunAwarenessWeek
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@vitiligosociety
Vitiligo Society
3 years
"Since learning to embrace my skin and knowing that I don't need to hide...it's made me realise just how courageous I am" - Sonya Danita Beautiful words from a beautiful woman 💚💪 #vitiligo #strongwomen
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@vitiligosociety
Vitiligo Society
4 years
How exciting is this! @GilletteVenus have just launched a new animal crossing line that celebrates all skin tones including Vitiligo! Amazing collaboration with character designer @acnhfashion 💜
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@vitiligosociety
Vitiligo Society
3 years
If there was ever a picture that summed up that #FridayFeeling for us, then this was it! Wishing everyone from our #vitiligo community a wonderful weekend - time to #relax , #unwind & #recharge 💜
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@vitiligosociety
Vitiligo Society
1 year
“The most important kind of freedom is to be what you really are. You trade in your reality for a role and your sense for an act. You give up your ability to feel, and put on a mask. There can't be any large-scale revolution until there's a personal revolution.” ―Jim Morrison
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@vitiligosociety
Vitiligo Society
2 years
"Beauty begins the moment you decide to be yourself" Wishing all our vitiligo community a wonderful weekend 💜 #vitiligo #vitiligoproud #vitiligoawareness #vitiligocommunity #naturalbeauty
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@vitiligosociety
Vitiligo Society
6 years
Now showing on BBC IPlayer...MisFits Like Us! The inspirational lives of those living with the condition. @BBCiPlayer #vitiligo
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@vitiligosociety
Vitiligo Society
2 years
#vitiligo may start as a small white spot that differs from the regular skin, but as time goes on, this spot will become paler until it turns white. How the patches develop is wholly unpredictable. We exist to educate, support research, and spread awareness about vitiligo.
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@vitiligosociety
Vitiligo Society
1 year
It’s really important that schools are aware of how to support a child with vitiligo, you can download our schools support pack to help teachers understand what measures to put in place to help your child. Download your free pack today: #vitiligo
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@vitiligosociety
Vitiligo Society
3 years
June is #VitiligoAwarenessMonth , and there are so many incredible events taking place 💜 Check out our global event calendar and have a look at all the great ways that you learn about #vitiligo this month:
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@vitiligosociety
Vitiligo Society
7 years
A stunning collection of photos by Brock Elbank. Get in contact to see how you can get involved!
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@vitiligosociety
Vitiligo Society
3 years
"I love having #vitiligo ! I wouldn't change it for anything. It's shaped the person I am inside and out" - Here's to all the people in our community learning to embrace their unique, beautiful appearance
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@vitiligosociety
Vitiligo Society
1 year
To celebrate the released of the #Barbie movie we got our hands on some beautiful #vitiligo Barbie and Ken dolls - on sale in our shop now for just £7.99+p&p! All funds raised help to support people living with vitiligo. #barbiemove #vitiligotoys
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@vitiligosociety
Vitiligo Society
6 years
The Vitiligo Society will be hosting a lunch in London and Essex on Saturday June 23rd to celebrate World Vitiligo Day. Fancy joining us for an informal gathering and great conversation? Email; Natalie.ambersley @vitiligosociety .org.uk #worldvitiligoday2018 #vitiligo
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@vitiligosociety
Vitiligo Society
3 years
“It might not be easy to overcome your insecurities, but don't hide or cover your who you are because there is no greater feeling than loving and accepting yourself for who you are" - Dove Storm #vitiligo
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@vitiligosociety
Vitiligo Society
1 year
In this VitLife article guest contributor Shehrazade Zafar-Arif explores the emergence of vitiligo models in the fashion world, and the impact it’s having on how society views the condition. #vitiligo #vitiligosociety #vitiligoawareness #winnieharlow
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@vitiligosociety
Vitiligo Society
7 years
We are very excited to announce, Lee Thomas, Emmy award winning Broadcaster has joined The Vitiligo Society as a Patron! @leethomastv
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@vitiligosociety
Vitiligo Society
6 years
Inspirational & powerful campaign by @LoveDisfigure that features 20 beautiful models including Natalie with Vitiligo, that celebrates beauty in all forms...
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@vitiligosociety
Vitiligo Society
3 years
For many people it's their faith that leads them to accepting and loving their skin: "Trusting in god, and knowing it's gonna be hard at times but I keep reminding myself that god doesn't give you anything you can't handle" @IsaiahJCollins #vitiligo
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@vitiligosociety
Vitiligo Society
2 years
Did you know you can donate your unused clothes to raise money for us? For Charities that don't have their own shops, Thrift + is a great way to support them. Fill a ThriftBox and you can donate up to 40% of the proceeds to your chosen charity! #vitilgo
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@vitiligosociety
Vitiligo Society
6 years
Whilst we all have similar stories in relation to Vitiligo, often the case is, we deal with it and embrace it in our own different ways. Read the stories of these great women and how they learned to embrace their skin....
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@vitiligosociety
Vitiligo Society
1 year
Are you supporting a loved one with vitiligo? Our Parent Support Network is a safe space for family members to share experiences and talk about how to support someone living with vitiligo. Find out more: #vitiligo #vitiligosociety #vitiligoawareness
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@vitiligosociety
Vitiligo Society
5 years
TOWIE star Demi Sims and younger sister of Chloe Sims reveals she has Vitiligo to her 135k Instagram followers saying it’s taken years to finally feel comfortable showing her Vitiligo patches without covering them up...
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@vitiligosociety
Vitiligo Society
1 year
Our Vitil-i-go campaign is looking for ParkRun ambassadors to help encourage people living with #vitiligo to get out the house and join them for a park run - can you be a part of this work and help inspire others? Email hello @vitiligosociety .org to find out more 💜🌳⁠
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@vitiligosociety
Vitiligo Society
2 years
"Since letting go of my anxieties and the idea that my skin is a flaw, I feel completely free within myself. It's allowed me to open up, talk freely about what I have gone through, embrace fashion and finally enjoy beach holidays". Our girl Natalie never stops inspiring us💜
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@vitiligosociety
Vitiligo Society
2 years
“I think it’s important to teach others about vitiligo so that people don’t feel embarrassed about having vitiligo.” We're so proud of young leaders like Charlie who speak out about their #vitiligo , and help create awareness.
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@vitiligosociety
Vitiligo Society
7 years
Supporting an inspiring Vitiligo photo series! Want to get involved? Email Vitiligo @mrelbank .com for details! @MrElbank #vitiligo
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@vitiligosociety
Vitiligo Society
8 months
New research to discover genetic influence on #vitiligo World-renowned vitiligo researcher Dr. John Harris has recently announced that he is leading on new research. #vitiligogenetics #vitiligoresearch #vitiligofamilies
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@vitiligosociety
Vitiligo Society
4 months
Our quote of the week: "Life doesn't get easier or more forgiving, we get stronger and more resilient." ~ Steve Maraboli #vitiligo #vitiligosociety #vitiligoawareness #vitiligosupport
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@vitiligosociety
Vitiligo Society
3 years
"The main thing that gave me freedom is my self-confidence and belief in myself. When I accepted my #vitiligo , my life changed in the most positive way" We know the journey to accepting your appearance can be long and hard, so remember our Society is here to support you.
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@vitiligosociety
Vitiligo Society
3 years
Another story published by the Daily Mail. Roger Monte from Brazil developed vitiligo when he was 23 years old. Now a model, he shares some of his most challenging moments living with the condition....
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@vitiligosociety
Vitiligo Society
5 years
We have the upmost respect for @leethomastv and his ability to touch us with his incredible story & share with us the challenges, his personal experiences and how it feels to be on the receiving end of society when you have a skin condition like Vitiligo..
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@vitiligosociety
Vitiligo Society
1 year
Although we as patients cannot instruct our doctors which direction to take, it is still useful for us to know options and be aware of the different treatments. Our free E-book provides you with information on UK treatment guidelines Download it for free:
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@vitiligosociety
Vitiligo Society
3 years
It’s always interesting to hear about vitiligo from a cultural perspective. In this interesting piece by The Guardian, Ugandan artist Martin Senkubuge dispels the stigma around vitiligo through inspiring photography…
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@vitiligosociety
Vitiligo Society
11 months
Have you seen our incredible video by Nutritionist Kay Rai, who gave a brilliant presentation and Q&A session on the impact of diet on vitiligo. A big thanks to Kay for donating her time to the Society, and sharing such valuable insight! #vitiligo
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@vitiligosociety
Vitiligo Society
1 year
Did you know that approximately 15-25% of people with vitiligo may also be affected by one other autoimmune disease such as hyperthyroidism, disease, rheumatoid arthritis, type 1 diabetes, psoriasis or Addison disease. for more information #vitiligo
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@vitiligosociety
Vitiligo Society
3 months
Our quote of the week: “Body positivity is as simple as making the choice to love yourself despite your shortcomings - to embrace your whole self and not let other dictate how you feel about your body" ~ Paige Fieldsted #vitiligo #vitiligosociety #vitiligosupport
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@vitiligosociety
Vitiligo Society
7 years
Had a blast recording with this great guy for BBC 3! Lots of banter as we ‘shut down’ all the crazy questions we get asked about our skin!
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@vitiligosociety
Vitiligo Society
1 year
Our quote of the week: “Fitting in allows you to blend in with everyone else, but being different allows you to be yourself, to be unique and to be more creative.” - Sonya Parker #vitiligo #vitiligosociety #vitiligoawareness #vitiligosupport
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@vitiligosociety
Vitiligo Society
3 years
"The main thing is that has given me freedom in relation to my skin is gaining self awareness deeper than what I look like, and also, who I am. I'm more than my skin, more than my appearance and more than what is seen." - Curtis J McDaniel #vitiligo 💪💚
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@vitiligosociety
Vitiligo Society
3 months
Have you spotted the latest bit of national press coverage from our #letstalkvitiligo campaign? We were thrilled to see our ambassador Reuben’s interview online today, helping to create more awareness of #vitiligo in the UK.
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@vitiligosociety
Vitiligo Society
8 months
Our quote of the week: “Cherish forever what makes you unique, ‘cuz you’re really a yawn if it goes.” - Bette Midler #vitiligo #vitiligosociety #vitiligoawareness #vitiligosupport
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@vitiligosociety
Vitiligo Society
11 months
In this VitLife article Natalie Ambersley shares her experience of growing up with Vitiligo from a very young age and what is was like ongoing treatments throughout her life. #vitiligo #vitiligosociety #vitiligoawareness #vitiligosupport
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@vitiligosociety
Vitiligo Society
2 years
Are you feeling Christmassy yet? We hope you're loving your #VitiligoChristmasJumper which raises awareness of Vitiligo and our charity.
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@vitiligosociety
Vitiligo Society
3 years
Vitiligo model, Prarthana Jagan shares her story on how she went from being an insecure teen with vitiligo to being signed by a modelling agency and becoming a beauty creative and voice for vitiligo.
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@vitiligosociety
Vitiligo Society
4 years
An insightful feature featuring some key voices from the Vitiligo community who speak about the stigma often associated with vitiligo in South Asian communities....
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@vitiligosociety
Vitiligo Society
6 years
Fox 2 News Reporter Lee Thomas, a Patron of The Vitiligo Society, reveals how Vitiligo has affected his career in the spotlight....a definite must read!
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@vitiligosociety
Vitiligo Society
6 years
Another Friday Positive! Women with Vitiligo are Finally Feeling Seen! Thank you @glamour @glamourmag for a great feature!
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@vitiligosociety
Vitiligo Society
1 year
Natalie got vitiligo on her arms and legs at just three years old – and doesn’t remember life before the condition. In this VitLife article she shares her experience of growing up with Vitiligo from a very young age. #vitiligo #vitiligosociety
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@vitiligosociety
Vitiligo Society
3 months
Last week we launched our #LetsTalkVitiligo campaign to spark a national conversation about the impact of a #vitiligo diagnosis. We spoke to over 700 people with vitiligo to find out more about their experiences - and the change we all want to see.
@vitiligosociety
Vitiligo Society
4 months
🚀 Today we launch our #LetsTalkVitiligo campaign to raise awareness of the impact of having vitiligo and how to get support. Over 700 people with vitiligo spoke to us about how the condition affects their lives. 🔎 Find out what they had to tell us ➡️
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@vitiligosociety
Vitiligo Society
1 year
Our quote of the week:"You were born to be an original. Don’t die a copy." —John Mason #vitiligo #vitiligosociety #vitiligoawareness #vitiligosupport
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@vitiligosociety
Vitiligo Society
3 years
Read Georgia Trodds personal journey with vitiligo having developed the condition when she was just 4 years old…
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@vitiligosociety
Vitiligo Society
2 years
How stunning is this? Winnie Harlow has been announced as the latest ambassador for the #SheMovesUs campaign! Thanks Winnie for showing the world how beautiful and unique #vitiligo can look 🤩
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