🚀 Today we launch our
#LetsTalkVitiligo
campaign to raise awareness of the impact of having vitiligo and how to get support.
Over 700 people with vitiligo spoke to us about how the condition affects their lives.
🔎 Find out what they had to tell us ➡️
Happy World Vitiligo Day!
-
It’s an incredible time to have Vitiligo and be proud of it. Today is a reminder of just how far we’ve come as a strong community that celebrates, appreciates and embraces their skin. 💜 Today is for us. It’s about us. Let’s celebrate us....
#wvd2019
Elisabeth Van Aalderen’s Vitiligo project has been featured in another newspaper...we’re not surprised...how she captures Vitiligo is breathtaking....Have a read!
6 year old Zac refers to his
#vitiligo
as his 'clouds' and sadly it's something he's just started to feel self-conscious about.
Lets all give him some encouragement and support, so he continues to feel proud of his unique appearance 💜
We think you're brilliant Zac!
Exciting announcement!
The makers of Barbie have unveiled an inclusive range of dolls - including the first Ken with
#vitiligo
- coming out in June!
Mattel said it wants children to 'see themselves reflected' in the barbie dolls and 'understand the importance of inclusion'.
Exciting news!
One o four favourite ambassadors is been working on a new children's book called 'The Adventures of the Vitiligo Man'.
More details to be revealed soon, and we certainly can't wait to hear more from this new
#vitiligo
superhero!
Congratulations to our ambassador Shankar Jalota for publishing his new book 'The Adventurers of the Vitiligo Man'!
The new books aims to celebrate, educate and empower children with vitiligo. Available now to order from amazon.
#vitiligo
#childrensbooks
#vitiligobook
A short video message from Natalie, on behalf of the trustees at the society...
HAPPY WORLD VITILIGO DAY!
Today is about so many things....raising awareness, educating others but most importantly CELEBRATING our skin because we can!
We hope today is as amazing as you are! 💜
Happy
#WorldVitiligoDay
!
Let's kick today off with a free gift for all you lovely followers 💜 We have a new ebook that gives you all the information
#vitiligo
diagnoses, treatment, support and much more! 🤓📖📚
Download it for free:
Happy World Vitiligo Day! Loving all the inspiring images, self loving quotes and empowering stories being shared across social media to mark such a special day in the calendar. Hope your day has been as amazing as you all are 💚
#worldvitiligoday
Exciting news about the upcoming launch of a new
#Barbie
featuring
#vitiligo
! It's just amazing to see diversity celebrated in this wonderful toy collection. Check out our new article for the full story 💜👫👏
"What an honour it is to be the first female footballer in EA Sports FC 2024 to represent the
#vitiligo
community...I want more people to love who they are and be okay with looking different and walking with confidence."
Thank you Tiffany Cameron for being such an inspiration!
Important news! Incyte Announces European Commission Approval Of
#Opzelura
® (Ruxolitinib) Cream For The Treatment Of Non-Segmental
#Vitiligo
.
This means we're potentially a step closer to the treatment being available in the UK. Links to further reading in the comments below.
University of the Arts London student is looking to photograph males and females with vitiligo as a way of raising awareness and normalising visible skin conditions. London based shoot. Interested? Please darher96
@poczta
.fm for more info.
Photo credit: Elizabeth Van Aalderen
When diagnosed with vitiligo, people often feel overwhelmed with all the new information they have received. That's why we created our new patient leaflet to make sure no-one has to go through their vitiligo diagnosis alone.
#vitiligo
#vitiligosociety
Why
#vitiligo
occurs is not currently known. It is thought to be linked to autoimmune diseases, which result in the immune system attacking its own healthy tissues in error.
We exist to educate, support research, and spread awareness about vitiligo.
#vitiligosociety
James was just 13 years old when this stunning picture was taken by
@MrElbank
. Here's to James and all the young people in our community who are raising awareness of vitiligo and teaching the world a lesson in self acceptance 💙👏
#vitiligo
Contestant who competed on The Bachelor explains how she went from hiding her skin on the show, to embracing her skin and finally letting go of her insecurities...
Are Vitiligo and Psoriasis Related?
Experts seem to agree that they share certain risk factors, and are meaningfully connected. Once you’ve been diagnosed with one autoimmune disorder, you’re often more at risk of developing another.
Read more here:
Kuwaiti Doctors explain new vitiligo treatment
"With generalized
#vitiligo
, over 90% give positive results. For other types, the response rate is over 80%, with the exception of segmental vitiligo, where half of the users show results."
Winnie Harlow hit the Vogue Netherlands cover last month sharing on her social media: 'I hope every time a little girl or boy sees me on a cover they remember anything is possible'.
#vitiligo
#vitiligoawareness
#vitiligobeauty
“Wear your parches with pride. Hold your head up high. If people stare, let them stare. They are just fascinated with your uniqueness.”
Shop our
#vitiligosuperhero
merch and help support our mission.
#vitiligo
#vitiligoawareness
Did you know that if you have
#vitiligo
an SPF 50 sun screen will protect you from both UVA and UVB rays. Most products contain a star rating. A rating of 5 will give you the highest level of protection, which is just what those of us with vitiligo we need 😎💜
#SunAwarenessWeek
"Since learning to embrace my skin and knowing that I don't need to hide...it's made me realise just how courageous I am" - Sonya Danita
Beautiful words from a beautiful woman 💚💪
#vitiligo
#strongwomen
How exciting is this!
@GilletteVenus
have just launched a new animal crossing line that celebrates all skin tones including Vitiligo! Amazing collaboration with character designer
@acnhfashion
💜
“The most important kind of freedom is to be what you really are. You trade in your reality for a role and your sense for an act. You give up your ability to feel, and put on a mask. There can't be any large-scale revolution until there's a personal revolution.” ―Jim Morrison
#vitiligo
may start as a small white spot that differs from the regular skin, but as time goes on, this spot will become paler until it turns white. How the patches develop is wholly unpredictable.
We exist to educate, support research, and spread awareness about vitiligo.
It’s really important that schools are aware of how to support a child with vitiligo, you can download our schools support pack to help teachers understand what measures to put in place to help your child.
Download your free pack today:
#vitiligo
June is
#VitiligoAwarenessMonth
, and there are so many incredible events taking place 💜
Check out our global event calendar and have a look at all the great ways that you learn about
#vitiligo
this month:
"I love having
#vitiligo
! I wouldn't change it for anything. It's shaped the person I am inside and out"
- Here's to all the people in our community learning to embrace their unique, beautiful appearance
To celebrate the released of the
#Barbie
movie we got our hands on some beautiful
#vitiligo
Barbie and Ken dolls - on sale in our shop now for just £7.99+p&p!
All funds raised help to support people living with vitiligo.
#barbiemove
#vitiligotoys
The Vitiligo Society will be hosting a lunch in London and Essex on Saturday June 23rd to celebrate World Vitiligo Day. Fancy joining us for an informal gathering and great conversation? Email; Natalie.ambersley
@vitiligosociety
.org.uk
#worldvitiligoday2018
#vitiligo
“It might not be easy to overcome your insecurities, but don't hide or cover your who you are because there is no greater feeling than loving and accepting yourself for who you are" - Dove Storm
#vitiligo
Inspirational & powerful campaign by
@LoveDisfigure
that features 20 beautiful models including Natalie with Vitiligo, that celebrates beauty in all forms...
For many people it's their faith that leads them to accepting and loving their skin:
"Trusting in god, and knowing it's gonna be hard at times but I keep reminding myself that god doesn't give you anything you can't handle"
@IsaiahJCollins
#vitiligo
Did you know you can donate your unused clothes to raise money for us?
For Charities that don't have their own shops, Thrift + is a great way to support them.
Fill a ThriftBox and you can donate up to 40% of the proceeds to your chosen charity!
#vitilgo
Whilst we all have similar stories in relation to Vitiligo, often the case is, we deal with it and embrace it in our own different ways. Read the stories of these great women and how they learned to embrace their skin....
Are you supporting a loved one with vitiligo?
Our Parent Support Network is a safe space for family members to share experiences and talk about how to support someone living with vitiligo.
Find out more:
#vitiligo
#vitiligosociety
#vitiligoawareness
TOWIE star Demi Sims and younger sister of Chloe Sims reveals she has Vitiligo to her 135k Instagram followers saying it’s taken years to finally feel comfortable showing her Vitiligo patches without covering them up...
Our Vitil-i-go campaign is looking for ParkRun ambassadors to help encourage people living with
#vitiligo
to get out the house and join them for a park run - can you be a part of this work and help inspire others?
Email hello
@vitiligosociety
.org to find out more 💜🌳
"Since letting go of my anxieties and the idea that my skin is a flaw, I feel completely free within myself. It's allowed me to open up, talk freely about what I have gone through, embrace fashion and finally enjoy beach holidays".
Our girl Natalie never stops inspiring us💜
“I think it’s important to teach others about vitiligo so that people don’t feel embarrassed about having vitiligo.”
We're so proud of young leaders like Charlie who speak out about their
#vitiligo
, and help create awareness.
"The main thing that gave me freedom is my self-confidence and belief in myself. When I accepted my
#vitiligo
, my life changed in the most positive way"
We know the journey to accepting your appearance can be long and hard, so remember our Society is here to support you.
Another story published by the Daily Mail. Roger Monte from Brazil developed vitiligo when he was 23 years old. Now a model, he shares some of his most challenging moments living with the condition....
We have the upmost respect for
@leethomastv
and his ability to touch us with his incredible story & share with us the challenges, his personal experiences and how it feels to be on the receiving end of society when you have a skin condition like Vitiligo..
Although we as patients cannot instruct our doctors which direction to take, it is still useful for us to know options and be aware of the different treatments.
Our free E-book provides you with information on UK treatment guidelines
Download it for free:
It’s always interesting to hear about vitiligo from a cultural perspective. In this interesting piece by The Guardian, Ugandan artist Martin Senkubuge dispels the stigma around vitiligo through inspiring photography…
Have you seen our incredible video by Nutritionist Kay Rai, who gave a brilliant presentation and Q&A session on the impact of diet on vitiligo.
A big thanks to Kay for donating her time to the Society, and sharing such valuable insight!
#vitiligo
Did you know that approximately 15-25% of people with vitiligo may also be affected by one other autoimmune disease such as hyperthyroidism, disease, rheumatoid arthritis, type 1 diabetes, psoriasis or Addison disease.
for more information
#vitiligo
Our quote of the week: “Body positivity is as simple as making the choice to love yourself despite your shortcomings - to embrace your whole self and not let other dictate how you feel about your body" ~ Paige Fieldsted
#vitiligo
#vitiligosociety
#vitiligosupport
"The main thing is that has given me freedom in relation to my skin is gaining self awareness deeper than what I look like, and also, who I am. I'm more than my skin, more than my appearance and more than what is seen."
- Curtis J McDaniel
#vitiligo
💪💚
Have you spotted the latest bit of national press coverage from our
#letstalkvitiligo
campaign?
We were thrilled to see our ambassador Reuben’s interview online today, helping to create more awareness of
#vitiligo
in the UK.
Vitiligo model, Prarthana Jagan shares her story on how she went from being an insecure teen with vitiligo to being signed by a modelling agency and becoming a beauty creative and voice for vitiligo.
An insightful feature featuring some key voices from the Vitiligo community who speak about the stigma often associated with vitiligo in South Asian communities....
Fox 2 News Reporter Lee Thomas, a Patron of The Vitiligo Society, reveals how Vitiligo has affected his career in the spotlight....a definite must read!
Natalie got vitiligo on her arms and legs at just three years old – and doesn’t remember life before the condition. In this VitLife article she shares her experience of growing up with Vitiligo from a very young age.
#vitiligo
#vitiligosociety
Last week we launched our
#LetsTalkVitiligo
campaign to spark a national conversation about the impact of a
#vitiligo
diagnosis.
We spoke to over 700 people with vitiligo to find out more about their experiences - and the change we all want to see.
🚀 Today we launch our
#LetsTalkVitiligo
campaign to raise awareness of the impact of having vitiligo and how to get support.
Over 700 people with vitiligo spoke to us about how the condition affects their lives.
🔎 Find out what they had to tell us ➡️
How stunning is this?
Winnie Harlow has been announced as the latest ambassador for the
#SheMovesUs
campaign!
Thanks Winnie for showing the world how beautiful and unique
#vitiligo
can look 🤩