Nev Jones PhD @viscidula Twitter profile

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Nev Jones PhD

2 months

NIMH webinar "Transforming Mental Health Disability Research Through Lived Experience Leadership & Co-Production" So excited about this!

Office for Disparities Research and Workforce Diversity’s Disability, Equity, and Mental Health...

This webinar will introduce a range of approaches to meaningfully integrate individuals with lived experiences of psychiatric disabilities into mental health research.

www.nimh.nih.gov

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Nev Jones PhD

@viscidula

5 months

I can't quite put on my finger on why it's felt so uncomfortable to post this, but surprised and of course relieved that a few days ago @LeahJacobsPhD and I were awarded tenure & promotion to associate professor @PittSocialwork . Why uncomfortable...? 🧵 1/x

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Nev Jones PhD

@viscidula

3 years

This is a thread about what it’s like to collaborate on numerous psychosis research projects, global & local in scope, as a researcher with (long term) psychosis. I think most of this is often completely missed by even the most well-intentioned collaborators. 1

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Nev Jones PhD

@viscidula

5 months

1. Survivor's guilt. Success in academia is wildly arbitrary, often cruel, and underwritten by ableist, classist, racist thinking and policy. In particular, I think of my many many disabled friends & comrades who have never had any fair shot at any of it... 2/x

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Nev Jones PhD

@viscidula

3 years

Tomorrow get to do one of the things I personally find most meaningful: a workshop for front-line clinicians/staff on alternative approaches to thinking about & working with psychosis

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Nev Jones PhD

@viscidula

3 years

On a personal note, very pleased to announce I’ve accepted a faculty position @PittSocialwork (& hence will be moving to Pittsburgh!) this summer! Grateful to be joining a dept w a deep commitment to racial equity, social justice & community engaged research. 1

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Nev Jones PhD

@viscidula

2 years

Finally get to officially announce our new ⁦ @NIMHgov ⁩ R01 (MPIs = ⁦ @lisabdixon ⁩, the unparalleled Twitterless Howard Goldman & me). Massive mixed methods project designed to understand/improve school/work & disability income trajectories & outcomes in early psychosis

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Nev Jones PhD

@viscidula

3 years

Another piece of ours I care deeply about out today: Lived Experience, Research Leadership, & the Transformation of Mental Health Services: Building a Researcher Pipeline #PsychServices (thread).

Lived Experience, Research Leadership, and the Transformation of Mental Health Services: Building a...

In recent years, investment in participatory research methods within mental health services research has grown. Participatory efforts are often limited in scope, however, and attention to research...

psychiatryonline.org

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Nev Jones PhD

@viscidula

5 months

The very first Director of Disability Services I met with: "schizophrenia? We don't have any students w that here. You should reconsider whether a graduate program is even appropriate for u given a diagnosis this severe..." Left crying, never finished the paperwork. 4/x

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Nev Jones PhD

@viscidula

2 years

There are these times when I hit a certain milestone of "success" (grant award in this case), and some part of me ardently wishes I could email former professors/supervisors. Not the supportive ones, the one's who said really damaging stuff. Like.. Thread. #TheBarriersWeFace

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Nev Jones PhD

@viscidula

2 years

Psychosis Outside the Box: A User-Led Project to Amplify the Diversity and Richness of Experiences Described as Psychosis | Psychiatric Services. So proud of ⁦ @SPagdon ⁩ (1st first-authored paper)!

Psychosis Outside the Box: A User-Led Project to Amplify the Diversity and Richness of Experiences...

Despite some progress toward greater inclusion, individuals with personal experience of psychosis are rarely integrated into the training of clinicians or knowledge generation. Their exclusion...

psychiatryonline.org

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Nev Jones PhD

@viscidula

3 years

It feels excessively self-referential to promote pieces *about* me, but new ⁦ @TheLancetPsych ⁩ profile.

Nev Jones: fixing a broken system

“In young adulthood I was diagnosed with schizophrenia, and I do think that is what really lit a fire under me personally, in terms of mental health services research, systems, and interventions, on...

www.thelancet.com

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Nev Jones PhD

@viscidula

2 years

An initial booklet of our ( @SPagdon & @BrownMarieC ) Rethink Negative Symptoms project is now posted! Still a relatively small number of contributions, but they're powerful. Check them out and if you want to contribute, please still do!! ()

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Nev Jones PhD

@viscidula

5 months

Post-PhD, there are too many allies & supporters to name, including my anonymous tenure-letter-writers & the many incredible colleagues here @PittSocialwork who have reassured me *constantly* over the past year 🙏♥️ 17/end

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Nev Jones PhD

@viscidula

3 years

Really excited to see this team effort out! “Investigating the impact of involuntary hospitalization on youth/young adult trust & help-seeking in pathways to care (thread)

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Nev Jones PhD

@viscidula

5 months

2. Disbelief. For such a long time I've believed I would never get tenure. As I recently posted, a long list of former professors, mentors & supervisors told me just that. The next dozen Tweets bear witness to resulting wounds 3/x

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Nev Jones PhD

@viscidula

3 years

One week into teaching MH policy to some amazing @PittSocialwork MSW students, thoughts on pedagogy: (1) disability scholars have said it before but we should assume that all the experiences we’re lecturing on-homelessness, incarceration, ‘SMI’-*are* present in the classroom 1

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Nev Jones PhD

@viscidula

8 years

Thrilled that my toolkits to support the full inclusion of students with early psychosis in higher ed now available:

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Nev Jones PhD

@viscidula

3 years

First, the degree to which expertise over psychosis—what it is, what it means, even what it “feels” like—has been collectively captured by researchers w no direct experience, is staggering. The weight of it all can feel suffocating. 2

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Nev Jones PhD

@viscidula

2 years

Until having personally been made aware of legal threats to a journal in order to force the retraction of work by a disabled scholar I deeply admire, I might not have believed this. The use of legal threats to silence critics should be seen as unacceptable, full stop.

Nikolas Rose

@Nikolas_S_Rose

2 years

Since some express doubt, to be clear, I wrote this Tweet after personally witnessing the distressing effect of a threat of potential legal action concerning a publication including criticism of some ideas in PTM, made to a female, disabled, long term mental health service user🧵

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Nev Jones PhD

@viscidula

3 years

Curious who all is concerned by the growing use of predictive analytics in mental health services, particularly in the context of risk assessment & triage? (Genuine question.)

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Nev Jones PhD

@viscidula

4 years

Our ( @SPagdon and my) initial Psychosis Outside the Box (visions, felt presences, alterations of time & space) first person accounts compilation is now available! Download the full report at

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Nev Jones PhD

@viscidula

3 years

Whether the claim is that delusions are “cognitive beliefs”, that psychosis *is* deficit, that there are exactly 12 categories of delusion(s) across the globe: no hint that in & through this capture is enacted a very profound form of violence, of colonization 4

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Nev Jones PhD

@viscidula

3 years

By “weight” I mean the sheer volume of scholarship, the number of experts, the unblinking certainty w/ which clinical trainers explain what psychosis is, the endless recitations of DSM & ICD constructs (I think I hear these in conferences & trainings easily a 100 times a year) 2

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Nev Jones PhD

@viscidula

4 years

Exciting Psychiatric Services news! Keris Myrick @KerisWithaK and I will be co-editing a new column on Lived Experience Inclusion & Leadership. Description in thread. Deepest thanks to @lisabdixon and the PS team.

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Nev Jones PhD

@viscidula

1 year

Delighted to announce open applications for the @PittSocialwork Lived Experience Research Academy (LERA). Summer research devt program for current/recent undergrads & MSW students with lived experience. Details below & key info in 🧵 & huge 🙏 to Dean @BetsyPitt 1/x

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Nev Jones PhD

@viscidula

5 months

That 1st year my assigned faculty mentor said "It's not that I don't believe people with schizophrenia can be successful [in academia], it's that I don't believe *you* can." Again, so much more implied than said, so definitive, so final 11/x

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Nev Jones PhD

@viscidula

1 year

Really looking forward to this! Upcoming @philosopher1923 panel webinar “What is Mental Illness?” Justin Garson, Nev Jones, and Marco Ramos in conversation with Kendall Atterbury. For more info or to register navigate to

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Nev Jones PhD

@viscidula

3 years

They are real in the sense that they fundamentally re-write people’s lives, spin them off into poverty, incarceration, alienation. They are real in the degree to which they actually disenfranchise & subjugate. But this is not seen or said. 10

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Nev Jones PhD

@viscidula

2 years

I swear this is not a “sub-tweet” or criticism of anyone in particular but rather a general observation of something particularly alienating about #SIRS conference tweets featuring almost no one with direct experience, especially when we’re talking phenomenology 🧵

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Nev Jones PhD

@viscidula

3 years

Let me stress how painful this is—unless we seal ourselves off from it. If we allow ourselves to experience it for what is it is, it is deeply wounding. Alienation & estrangement from the self, self-knowledge, collective knowledge & identity 7

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Nev Jones PhD

@viscidula

3 years

But maybe, maybe if once we could just have this conversation instead. Maybe. 13/

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Nev Jones PhD

@viscidula

2 years

I’ve gotta say that I find myself rather dismayed that, in 2022, a special edition like this, 40 articles, includes only a single essay written by anyone w direct experience (Elyn Saks in this case) & minimal interdisciplinary A 🧵

SchizRes

@SchizRes

2 years

Our special edition, "Re-Inventing Schizophrenia: Updating the Construct", is 100% free right now, with 40+ articles from leaders and experts across the world.

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Nev Jones PhD

@viscidula

5 months

It took my 3 years to speak up about this. I did so as a GSA rep in a faculty meeting. As a punishment, the grad committee "failed" me on professionalism in my annual review. I then finally filed Title IX & OCR complaints. 12/x

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Nev Jones PhD

@viscidula

2 years

Honored & humbled to receive the National Coalition's Judi Chamberlin Joy in Advocacy Award this week (). Special thanks to @SusanRogersMH ; we all stand on the shoulders of giants. 🙏

Alternatives 2022 Awards Recipients — Alternatives Conference

www.alternatives-conference.org

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Nev Jones PhD

@viscidula

5 months

Title IX also chastised me for never having filed formal accommodations paperwork. I couldn't even bring myself to explain why ("because I ran out sobbing, overwhelmed by shame and not for the last time")... 9/x

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Nev Jones PhD

@viscidula

5 months

Outsiders -- @MonaShattell (nursing) & @Robyn_LB (sociology) -- saved me in that final year. Heckuva lot of people said that filing federal grievances about the senior faculty in my program, in & of itself, would "destroy my career." 13/x

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Nev Jones PhD

@viscidula

3 years

And—finally out!—our paper on youth experiences of police interactions in the context of involuntary psychiatric hold initiation & transport w ace collaborators @MMunsonPhD @MorganCShields @KellyLGreenPhD & others not on Twitter. 🧵 w some reflections 1

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Nev Jones PhD

@viscidula

3 years

By unblinking certainty I mean the reality that even when known ppl/researchers w direct experience are in the room—as is true for clients of course—little or nothing changes. There is rarely even a moment of hesitation, an averted glance. This is also the weight of certainty 3

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Nev Jones PhD

@viscidula

3 years

Another real concern of mine: and something journalists need to stop doing! Interviewing experts about complex issues and then reducing them only to their own personal experience. This is a form of epistemic injustice, & it’s pervasive. The field can do better. 1

Sophie McBain

@SEMcBain

3 years

My latest @NewStatesman #longread is on the end of mental illness: Should we stop medicalising mental distress? What would happen if we dropped all labels?

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Nev Jones PhD

@viscidula

5 months

& this is just a selection--judgments so deeply internalized over the years.. But gonna end w love & thanks for true allies, incl from those early days: @Robyn_LB , @MonaShattell , Steve Marcus (who apparently lurks here on X!), @CRosenPhD , @neilthomaspsy 16/x

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Nev Jones PhD

@viscidula

5 months

Because they were not earned -- any success in these ways was simply a byproduct of Disability-DEI; undeserved, unwarranted, divorced from merit... 15/x

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Nev Jones PhD

@viscidula

3 years

The object (‘psychotic’) is not only any object, but, this logic requires, an object that does not know/recognize itself; in other words, premised on near total erasure of any “right” or capacity for collective self-definition; & the heterogeneity, depth, ineffability w/in this 5

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Nev Jones PhD

@viscidula

5 months

I did go to Title IX. Predictably (?) they suggested I do nothing. "Surely you don't want to be in a program that none of the faculty want you in..? Reinstatment is the most you could achieve & if you don't feel comfortable there, there's no point filing a grievance." 8/x

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Nev Jones PhD

@viscidula

5 months

In grad prog 1, surrounded by 10 senior faculty, a solitary ally asked why other profs wanted to terminate me. Sr philosopher who I had worshipped up until that day turned to Ally-Prof and said: 5/x

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Nev Jones PhD

@viscidula

3 years

This is nothing visible on Twitter, but reflecting today on the profound failures of the ADA to protect the rights of students w psych disabilities, and the “everyday evil” that universities can come to embody. Thread. 1/x

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Nev Jones PhD

@viscidula

1 year

Such a deep honor to have written this with one of the mentors I have learned absolutely the most from: @BritzBerta . Open access in SSM-MH "Experiencing and treating ‘madness’ in the United States circa 1967–2022: Critical counter-histories" Thread 1/x

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Nev Jones PhD

@viscidula

3 years

Then we come to the clinical sequelae—the way researchers talk about insight, adherence/compliance, side effects, for example. Again, almost never with hesitation, doubt, sheepish glances; with cool, collected professional certainty 8

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Nev Jones PhD

@viscidula

3 years

We sit there, on Zoom, in a meeting, in a conference, & have no choice but to listen; & often, just by being there, realize em we have tacitly endorsed what is said and the unspoken claims that undergird it. 6

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Nev Jones PhD

@viscidula

5 months

Kicked out of grad program #1 : “it would be unethical to allow someone with no hope of ever being able to pay back loans to take out loans for a degree”; second grad program : “it’s not that I don’t think ppl w/ schizophrenia can’t succeed, it’s that I don’t believe you can”

Empress, student doctor demon

@studentdrdemon

5 months

I want to hear some underdog stories. Tell me about your 12th grade advisor who said you wouldn’t get into college, your premed advisor who said you wouldn’t get into med school, etc. tell me all the ways you’ve turned their doubt into fuel 💪

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Nev Jones PhD

@viscidula

3 years

Psychosis researchers, activists, stakeholders: the Lancet Psychiatry Commission on Psychosis now has an open call for blogposts (responding to, critiquing or commenting on Commission methods and aims). We also have a new lived experience listserv. See

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Nev Jones PhD

@viscidula

5 months

"If you'd read her recent writing, you would know. You would *know*." The trailing off not motivated by kindness, I think, but a testament to finality -- absolutely, definitively, no future, no possibility of a future even. 6/x

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Nev Jones PhD

@viscidula

3 months

Great thread. I think about this often. In many ways, outcomes for schizophrenia are unchanged decade on decade; societal stigma & reliance on coercion have demonstrably worsened. We need real change.

Jasper Feyaerts

@JasperFeyaerts

3 months

After doing some recent talks for/with mental health professionals involved in psychosis care, I was painfully reminded about how little of our so-called research ‘breakthroughs’ & ‘key findings’ actually have a meaningful impact on improving care for psychosis patients. (1)

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Nev Jones PhD

@viscidula

5 years

'Psychosis Beyond the Box': Shannon Pagdon & I recently kicked off a *non-research* project focused on less attention-getting experiences under the 'psychosis' umbrella ((quasi-)visions, felt presences, perception of time). Please consider participating!

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Nev Jones PhD

@viscidula

3 years

What do I mean by ‘certainty’ this time? No intimation that the political & epistemic hierarchies bound up in these terms, the scaffolding of coercion/violence, the layers of complexity are there. & not just there, but absolutely, viscerally real 9

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Nev Jones PhD

@viscidula

3 years

“My hope is that this account raises serious questions in our community about how we talk about and treat survivors of psychiatric trauma—because nobody should be dehumanized in the very place they seek care…”

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Nev Jones PhD

@viscidula

5 months

After my first year in grad program #2 (psych phd) I was told by the assoc chair that requesting greater flexibility in my RA lab hours was "unreasonable" & that with all my psych appts, I should give up my assistantship. I did. Subsequently racking up $100Ks in loans. 10/x

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Nev Jones PhD

@viscidula

5 months

"From the sounds of it she would be quite a burden on faculty" said senior Hegelian; Grad Director: "it would be unethical to allow her [you] to take out loans given her [your] near certain inability to repay them" 7/x

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Nev Jones PhD

@viscidula

3 years

Feel very discouraged—whether I’m interviewing youth who were involuntarily hospitalized or students denied accommodations—by how normative it is to assign moral & personal blame for psych disabilities. Folks just aren’t “trying hard enough”; aren’t “following the rules” 1

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Nev Jones PhD

@viscidula

3 years

Thinking about graduate mental health courses (& course titles & descriptions) & wondering what folks’ thoughts are on language (especially “serious mental illness” & “serious and persistent mental illness”) and preferred alternatives... #DisabilityTwitter #DisabledinSTEM

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Nev Jones PhD

@viscidula

5 months

“If the priorities of people with lived-experience of mental ill-health… were driving research…quality of care, improvements in MH service delivery attending to social issues & social determinants, peer models of care & improving experiences of care would be funded”

Professor Victoria J Palmer (she/her)

@VictoriaJPalmer

5 months

Our paper reviewing mental health research priorities since 2011 was published today. Have a read for more reasons to ensure the priorities of people most impacted are addressed in mental health, suicide prevention and well-being initiatives.

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Nev Jones PhD

@viscidula

3 years

And simultaneously all the talk about recovery, identity, meaning, honoring “subjective experience”, reducing force—as if the deeper processes of capture & erasure were not already in play. As if they could just be brushed aside. 11

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Nev Jones PhD

@viscidula

3 years

It’s sad but perhaps telling that almost none of the “critical” texts/publications suggested in this thread are/were written by ppl with direct experience of psychosis. Clearly we’ve got a long way to go….

Dr James Davies (PhD) 💭

@JDaviesPhD

3 years

For those psychiatrists who are interested in learning about critical perspectives on 'schizophrenia' what sources would you recommend (books, articles etc)?

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Nev Jones PhD

@viscidula

5 months

Skipping ahead to jr faculty years, one of my early supervisors 'warned' me that grants I was a co-I on and keynote/plenary invitations/talks would not "count" for me the same way they would for other people. Why? 14/x

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Nev Jones PhD

@viscidula

10 days

Excited to be starting this new R01 with Josh Breslau (vanished from Twitter?!) , brilliant RAND co-I Sapna Mendon-Plasek & collaborators Harvey Rosenthal & Len Statham @Alliance4RR

Pitt Social Work

@PittSocialwork

11 days

Nev Jones @viscidula receives $3.48 million dollar @NIMHgov grant to study Certified Community Behavioral Health Centers! Dr. Jones has been awarded a R01 as multiple-primary-investigator in collaboration w/ Dr. Josh Breslau ( @RANDCorporation ). Read more:

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Nev Jones PhD

@viscidula

3 years

How might we move forward—that seems the elusive question. Certainly “involvement” in the usual sense is not only not a solution, but arguably only bolsters the logic in play. Strengthens it, reseals the cracks. 12

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Nev Jones PhD

@viscidula

2 years

These all of course end up deeply inscribed in one's memory; burned, branded. So yes, there's part of me that wishes so badly that I could just email them & say "you were so wrong. Never say this to any student/supervisee ever again." Tweeting instead; thanks for reading! 7/7

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Nev Jones PhD

@viscidula

2 years

Really dismaying to see this & a second recent @people spin job on psychosis & ‘insight’. Obviously there are a range of views in play, the actual issues are complex & fraught—these articles entirely lack balance, oversimplify, medicalize & help no one in the process.

Schizophrenia & Psychosis Action Alliance

@sczaction

2 years

Anosognosia is the No. 1 barrier to treatment for people with #schizophrenia ; this article is critical to raising awareness of the cruel symptom that affects 57%-98% of those with the brain disease. Public policies that ignore anosognosia are failing us.

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Nev Jones PhD

@viscidula

3 years

Survey for current/former students who have experienced psych disability-based discrimination in a US higher ed setting (inc Autism): 1

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Nev Jones PhD

@viscidula

3 years

Got some really nice texts & emails on this from PhD students w psychosis in the audience. Reflecting on differences betw this talk & similar ones I gave a decade ago this is one big shift: There is power in collective legitimization, power in numbers, power in solidarity.

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Nev Jones PhD

@viscidula

4 years

Psychosocial Intervention With or Without Antipsychotic Medication for First-Episode Psychosis: A Randomized Noninferiority Clinical Trial | Schizophrenia Bulletin Open | Oxford Academic

Psychosocial Intervention With or Without Antipsychotic Medication for First-Episode Psychosis: A...

Abstract. This triple-blind (participants, clinicians, and researchers) randomized controlled noninferiority trial examined whether intensive psychosocial

academic.oup.com

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Nev Jones PhD

@viscidula

3 years

Adding here that if we want change—& many of us surely do—it’s going to come from a next generation of philosophers, not one but the many, who have actually been there, in institutions as patients; involuntarily hospitalized; epistemically & phenomenological invisible. 1

Solidarity is our only hope ✌☮🌹

@KonstantinaPou1

3 years

Brilliant talk by @viscidula on dehumanisation and epistemic injustice that people with psychiatric diagnoses are subjected to within philosophy of psychiatry debates

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Nev Jones PhD

@viscidula

2 years

If you have experienced or been labeled with “negative symptoms” in the context of #psychosis , please consider contributing an anonymous account of your views & experiences here: 1/x

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Nev Jones PhD

@viscidula

3 years

Somewhat predictably, once a journalist learns I have “lived experience” that’s all I’m quoted on. Perpetuated all the worst kinds of epistemic hierarchies. Actually, I’ve studied & traced the uptake & impact of diagnoses for years & years. 2

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Nev Jones PhD

@viscidula

3 years

I keep seeing great threads about health disparities/racial equity pubs & authorship: all-white authors, ask why & how that/you can change. But also then reflect on schizophrenia & ‘SMI’ research and how extremely rare it is to see lived exp co-authors 1

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Nev Jones PhD

@viscidula

1 year

New publication alert! Trauma practices & trauma informed care in Early Psychosis Intervention programs, nationally & internationally. Analyses led by the phenomenal Helen Wood. Link here: 1/x

(PDF) Trauma and Trauma-Informed Care in Early Intervention in Psychosis: State of Implementation...

PDF | Objective: Although trauma is increasingly recognized as a major risk factor for psychosis and for its link to treatment outcomes, the landscape... | Find, read and cite all the research you...

www.researchgate.net

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Nev Jones PhD

@viscidula

11 months

A little late posting, but surprised and happy to report that Bevin Croft, the team at HSRI & I were awarded the New York Office of Mental Health’s contract to evaluate AOT (CTOs in UK terminology) in NY. Notified a couple weeks ago. Surprising…? Brief 🧵1/x

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Nev Jones PhD

@viscidula

3 years

Important #PsychServices editorial statement from @lisabdixon on lived experience inclusion in the journal & call for interest in a new LX advisory group. The times they are a changing’.

Psychiatric Services | Psychiatry Online

PsychiatryOnline.org is the platform for all American Psychiatric Association Publishing journals, DSM, and bestselling textbooks, as well as APA Practice Guidelines, and continuing medical education.

psychiatryonline.org

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Nev Jones PhD

@viscidula

3 years

Okay, since people are requesting it (and this was a "paper" based presentation), put the full draft up on ResearchGate:

(PDF) To do justice to madness: orienting to the politics of phenomenological psychopathology

PDF | Philosophy of psychiatry webinar paper on the political and ethical stakes of phenomenological psychiatry and that attempts to reflect on why it... | Find, read and cite all the research you...

www.researchgate.net

Julia Brown, PhD

@juliaehbrown

3 years

Thank you @viscidula this was by far the most powerful talk I’ve ever attended on psychosis. I’m guilty of being influenced by Laing, Foucault and to some extent Sass - esp in grad school - but I strive to give voice to lived experiences first and foremost.💛

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Nev Jones PhD

@viscidula

2 years

“Development and early testing of SPIRIT: (Schizophrenia Prediction of Resistance to Treatment) - a clinical tool to predict treatment resistance to anti-psychotics treatment in First Episode Schizophrenia. “ A concerned 🧵

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Nev Jones PhD

@viscidula

3 years

Today is apparently @Rethink_ ‘s UK #NationalSchizophreniaAwarenessDay . What would I want to inject here? Appreciation for the extent to which society & social institutions are okay w ppl w sz who look & act “normal” while continuing to marginalize & exclude those who do not 1

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Nev Jones PhD

@viscidula

4 years

Honestly frustrating to see (1) no service user involvement in any article; (2) no mention of the importance of value of involvement in research, design etc (3) no articles on innovations in person centered psychosocial or clinical approaches (beyond mHealth)

Journals of The American Psychiatric Association

@APAPubJournals

4 years

Our Fall 2020 issue focuses on progress in schizophrenia research and treatment. Learn More:

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Nev Jones PhD

@viscidula

3 years

“The Humane Asylum”: well-intentioned essay that unfortunately, as for its recent predecessors, makes some important points only to conclude that “new” asylums are the answer. And why is this fantasy so very flawed? Thread.

We are failing people with severe mental illness. What can we do? | Aeon Essays

As a society we are failing people with severe, persistent mental illness. It’s time to reimagine institutional care

aeon.co

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Nev Jones PhD

@viscidula

2 years

Out today! New @APAPubJournals #PsychServices paper from folks involved w the Advancing user/survivor involvement in research coalition = Strengthening Review & Publication of Participatory MH Research to Promote Empowerment & Prevent Co-optation led by @peacefulbeingol 1/x

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Nev Jones PhD

@viscidula

3 years

ICYMI flyer for our upcoming dialogue about navigating research roles as individuals with the direct experiences/conditions studied (specifically psychosis)

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Nev Jones PhD

@viscidula

3 years

I admit to mixed feelings seeing all the SIRS symposia tweets. On the one hand, yay, lots of cool stuff; on the other: what a stark epistemic wall; What a reminder of the exclusivity of academic knowledge production about the psychotic other 1

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Nev Jones PhD

@viscidula

2 months

I frequently reflect on cooptation, tokenism, extractivism & exploitation in the lived exp involvement space. Reflecting especially much on this today... 🧵1/

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Nev Jones PhD

@viscidula

2 years

Maybe this counts as a variant of the #subtweet ? Researchers/scholars who claim to be anti-oppressive: keep it real. Don't write about exclusion & your efforts to include marginalized folks, etc, & then fail to carve out even a few moments of time to be kind & supportive. 🧵 1/x

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Nev Jones PhD

@viscidula

2 years

Nice to see two of our pieces listed on the hardcopy front cover of #PsychServices , @awaisaftab et al “A diversity of beliefs…” & @peacefulbeingol et al “Strengthening review…of participatory MH research”

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Nev Jones PhD

@viscidula

3 years

Folks invested in advancing user/survivor/mad/psychosocial disability leadership in research: periodic reminder that there’s a fairly large listserv anyone interested can join. Just DM or email me to be added. #UserSurvivorResearch #MadintheAcademy

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Nev Jones PhD

@viscidula

5 years

Thread: one of these “early career researcher” lessons learned tales. 1.5 years ago I submit a manuscript that gets rejected after review, described by an authoritative sounding review as “fatally flawed.” We all know we’re not supposed to take these things to heart but I did. 1

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Nev Jones PhD

@viscidula

1 year

Searching the ⁦ @SIRSGlobal ⁩ conference for sessions/posters on poverty & “no results found.” Probably the single biggest sociostructural problem folks w schizophrenia face…

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Nev Jones PhD

@viscidula

2 years

So grateful for the beauty—and forest creatures—on my daily pedestrian commute to ⁦ @PittSocialwork ⁩ . We’ll be posting a faculty search for this year very soon! (Focus : race & social determinants)

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Nev Jones PhD

@viscidula

5 years

Do not let the idiosyncrasies of review get to you! No matter how scary and authoritative and damning any given review might seem. Swiftly resubmit. Especially important for those of us ECRs w multiple additional ‘risk factors’ for low confidence -gender, disability, race, etc

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Nev Jones PhD

@viscidula

3 years

Conceptualization and Study of Antipsychotic Medication Use: From Adherence to Patterns of Use | David Roe, myself & colleagues proposing a shift from research on antipsychotic “adherence” to diversified real-world usage patterns

Conceptualization and Study of Antipsychotic Medication Use: From Adherence to Patterns of Use |...

Despite treatment guidelines recommending antipsychotic medication (APM) as the frontline treatment for schizophrenia, its use remains a controversial topic, and nonadherence rates range between 40%...

psychiatryonline.org

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Nev Jones PhD

@viscidula

2 years

A webinar I am very excited about! Please join us ( @liminal67 @climateshlock aerik woodams) for a critical dialogue on exclusionary sanism in and outside activism, social media, academia. We're going to be asking & discussing the hard questions! Register:

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Nev Jones PhD

@viscidula

6 months

Folks invested in mental health research: Josh Gordon’s departure from NIMH represents a critical opportunity to make recommendations to the NIH Director regarding her next appointment. I urge all colleagues to consider writing individual or group letters. I’ve drafted one. A 🧵

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Nev Jones PhD

@viscidula

1 year

After many years, finally back in the UK and en route to Nottingham for #RefocusOnRecovery ! Can’t wait to see multiple old friends and comrades!

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Nev Jones PhD

@viscidula

3 years

Keynote on Friday! What I’ll cover: the growing divide between phenomenological psychiatry and political/social philosophy over the 20th/21st centuries 1/x

Wouter Kusters

@kstrw

3 years

Last call to enter the world of Mad Philosophy & Philosophical Madness - starts 23rd Sept -

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Nev Jones PhD

@viscidula

3 years

While I realize this is the New York Post, the images & text here seem more an exaggeration than departure from other reporting on Simon Martial. The whole situation is a tragedy, including (not excluding) him. Thread.

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