Mother to my beautiful daughter who died in labour due to multiple catastrophic individual and systemic failures in our care
@Safe_Maternity
#maternitysafety
@catherineroyuk
I was wrongly telling myself this in the 8 days after my bump height dropped when doctors kept refusing the scan I should have had. The scan I was referred for twice and was begging for myself. My baby died. I should never have trusted my care team. This affirmation is dangerous.
This time last year I was at Glastonbury 7 months pregnant with my beautiful daughter. I had such an amazing time. I would give anything to have her here now. I can't believe how much has been destroyed by the horrific maternity care we received.
@catherineroyuk
Jesus, it's not societal pressure to not want you or your baby to be catastrophically injured or die in childbirth. It's a fundamental human drive to protect your baby.
@MartynPitman
.. years. I've given so much to it and this is how I was treated. My daughter was killed for the cost of a scan and I'm left totally broken and unable to go back to work in a job I loved. The human and economic costs and so enormous. My daughter lost her entire life for a scan.
@MartynPitman
The clinical director lied and said 'the scan wouldn't have made a difference'. MNSI and anyone who knows anything about maternity obviously disagrees with this. The perinatal mental health team wouldn't take me as my baby was dead. I was with the crisis team for 6 weeks.
@catherineroyuk
@RoyalSurrey
@RSCH_Maternity
@LouiseSteadRSFT
and she died because of failures of individuals and the system. If I'd not been using hypnobirthing to try to brainwash myself not to be anxious when I should have been, maybe I could have saved my daughter.
@catherineroyuk
@RoyalSurrey
@RSCH_Maternity
@LouiseSteadRSFT
A problem is that hypnobirthing gives the impression that if you just relax and not get anxious everything will go ok. That problems will only arise if you get anxious and oxytocin isn't flowing freely. Women then feel that if they just stop being anxious everything will be ok.
@catherineroyuk
@RoyalSurrey
@RSCH_Maternity
@LouiseSteadRSFT
In the days before my daughter died in labour, I used hypnobirthing affirmations to try to convince myself everything was ok, when it was not. When NHS failures meant that the scan I was referred for by my midwife kept being refused by drs, when my daughter's life was in danger..
@FionaWinserRamm
Clinical director telling me it was a 'catastrophic event', she was a 'normal weight' and the scan that I was referred for & refused 3 times 'wouldn't have made a difference' after my baby died 8 days after growth concerns arose. My baby was born on the 9th centile, not normal.
@drphilhammond
@UKLabour
@wesstreeting
Agree, I was perfectly healthy and happy before NHS negligence killed my baby in full term labour in September. Now I have PTSD, depression, severe social anxiety, muscle pains, etc. Prevention is better than cure.
Women probably don’t want babies because maternity care in the uk is absolutely fucking shit. Women and babies are getting injured and even worse dying every single day.
Maybe make a change and more women may want babies
@EmilyJBarley
...everything is okay if you're able to have another baby. That it somehow erases your baby who died and that they're replaceable in some way. I don't think the term is healthy for the new baby either. That they're expected to bring some sort of resolution from the agony.
@catherineroyuk
@RoyalSurrey
@RSCH_Maternity
@LouiseSteadRSFT
I was anxious and trying to convince myself it was ok, saying 'I am safe and my baby is safe.' 'Everyone is here to help me get the baby into the world.' 'Everyone here wants the best for me and my baby.' My baby was not safe, Everyone did not want the best for my baby...
@DVLAgovuk
I'm trying to change my driving test not book tickets for Glastonbury. Why does it keep crashing? Been trying for 40 minutes and I keep getting http status 403 forbidden at various random points. It's getting really annoying.
@MartynPitman
I complained to them but they don't have the funding in that particular team. If you have a live baby and struggle you get help, but if they kill your baby and you're catastrophically harmed you get nothing.
@MartynPitman
The stupid thing was they could have even persuaded me to bring induction forwards on a SFH measurement, but they didn't even try. They never mentioned any risks after there were growth concerns, only I did.
@kiityc
@summonsy
@MartynPitman
Absolutely agree with you. I got exact risk stats when offered an epidural in labour, but nobody could tell me stats about risk of preeclampsia or growth restriction as I had an abnormal uterine artery doppler. The greatly increased risks of stillbirth were totally kept from me.
@EmilyJBarley
Completely agree. If I'm able mentally and physically to have another baby then that child will be a baby born after my daughter was killed by catastrophically poor care not a 'rainbow baby'. I feel the term minimises the trauma and loss and adds to this awful idea that...
@Nishaobgyn
Jesus, this is an awful headline. As someone whose baby died in full term labour, why say this shit that stigmatises caesareans. It's dangerous. It's not about being 'too old' or 'too posh' it's about individual risk factors and the safety of mother and baby. If we can make...
@elizabethduff2
It's not okay to imply women aren't putting their baby first when using perfectly safe medications to manage most likely the most intense pain of their life. If we're really thinking of the baby, what about all the effect of stress hormones going around a woman's body when the...
@EmilyJBarley
@MartynPitman
@HHFTnhs
Jesus christ that's ridiculous Emily! Them killing your baby and using the usual terminology might upset other people 🤦🏻♀️🤯. The trust I was in don't acknowledge the babies who die at all in their monthly stats. I requested they did, but was ignored.
@MartynPitman
...do it because it wasn't required. My bump height dropped at 40+1, but my induction was booked at 41+2. I was referred for a scan. I was sitting at home heavily pregnant waiting for the scan. Nobody contacted me so I called myself. I was told 'scans aren't accurate' and told...
@drruthannharpur
@EmilyJBarley
@MartynPitman
Yes, but unfortunately these teams don't exist in most places so you end up, having had your baby killed, in the worst place in your life. Often suicidal and with psychotic thoughts with absolutely no help, rejected by the only specialist perinatal team because your baby is dead.
@sljvalk
@catherineroyuk
...before my planned induction when I went into labour. When I called the maternity unit in labour having about 4 contractions in 10 I was told to stay at home and wait for my induction. My baby was growth restricted as the placenta was failing. I was at high risk of this.
@RMatthewsPsyEdu
@JamesTitcombe
@Charlot76377903
Not had the best experience myself. I messaged the Oxfordshire MVP over 7 weeks ago about my baby who needlessly died in labour. I was hoping to get my voice out there to stop this happening to anyone else. They said they'd love to speak to me, but still haven't arranged a call.
@kiityc
@summonsy
@MartynPitman
We're at risk of bring run over every time we cross the road, but we all do it. Just telling you a risk is there is very difficult to interpret until you quantify how likely it is so can make an informed decision.
@agemjourney
So sorry that's not how new colleagues should be treated. Everything takes ages when you're new as you're learning! In time it becomes much easier. Sorry you're not getting the support you should be.
@MartynPitman
Before my planned induction. I phone the maternity assessment unit in labour and they just told me to stay at home and wait for induction when baby was dying or ready dead. All for the cost of a scan. I worked as a mental health nurse and a CBT therapist in the NHS for many...
@TeamOUHMat
Your stillbirth rate is higher than every trust surrounding Oxfordshire and higher than the national average as far as the figures publically available go back. You're not providing great care for everyone, babies are dying preventable deaths under your 'care'. How dare you.
@elizabethduff2
It's not about people being offended or judged. From ACOG: 'The medications used to relieve pain during labor and delivery have no long-term effects on the baby. They also have no effect on a child’s later development.' Why would women not relieve pain in labour when it's safe.
@doctorrah
@JamesTitcombe
My baby died in labour because the trust I was in didn't follow national guidelines in monitoring growth in high risk women. My care didn't follow Saving Babies Lives. These jobs are vitally important to ensure best practice is implemented, saving many babies.
@theodoraclarke
@RishiSunak
@BirthTrauma
My daughter died in labour due to the shockingly poor 'care' I received antenatally. Hundreds of other babies are also dying every year in this country when it could be prevented. Thousands of women traumatised by birth. Maternity needs to be sorted out as a national priority.
@MartynPitman
They kept telling me 'scans aren't accurate'. All the evidence shows scans are just as accurate at full term, although the head may be difficult to measure. Scans can show so many things other than efw to check FGR (amniotic fluid, abdominal circumference, umbilical pi, mca, cpr)
@SandsUK
@CHarmerSands
Hi, I think it may be useful for you folks at SANDS to comment on the Maternity Broken Trust documentary that went out on Sunday night on ITV. So many families who lost their babies due to negligence have had to fight to get the truth of why their baby died
@MartynPitman
...appointments stopped. I was put on labetalol and given an app to home monitor my BP. My growth pathway scans ended at 36 weeks. I called up asking to have one at 40 weeks as I was previously being scanned every 4 weeks. I was just told 'we don't do that'. I trusted they didn't
@MartynPitman
I was high risk of growth restriction as I had an abnormal UAD at 20 weeks then developed gestational hypertension at around 36 weeks. My baby was growing fine around the 30th-40th centile until I developed gestational hypertension. That's when all my scans and consultant...
@MartynPitman
I fought to get the scan. I was just told a day and a half before my daughter died by my consultant that they prioritise giving the 36 week scan to all women so don't scan after 40 weeks. He didn't ever discuss bringing iol forwards and my baby died when I went into labour hours
@TomPettinger
@GreenDocScott
@doctorrah
@ObsDocJon
@MCR_SB_Research
There's not the evidence to back it up, as reflected in the NICE guidelines who reviewed it. I was in a trust who did the 36 week scan and my baby died because they used up all their resources on providing this instead of giving serial scans till delivery for high risk women.
@drruthannharpur
@EmilyJBarley
@MartynPitman
In fact, what would be best is an health service that learn from incidents and near misses, reflects and prevents all avoidable deaths instead of trying to cover them up. Prevention is far better than cure.
@MartynPitman
There was a note saying bring induction forwards,but my midwife was telling me everything was normal and I knew a scan was better to tell me what was going on before blindly inducing. I told staff what they were doing was against NICE guidelines. They didn't listen. Nobody did.
@natalie_needham
I'm so, so sorry. It's totally unacceptable. It's hard enough sending our babies for an autopsy in the first place, let alone be sent photographs from it. I hope you've been offered some trauma therapy to help you manage this.
@Helen_Gittos
@thetimes
So sorry you've been going through this hell. I can only empathise in that I felt blamed for my baby's death by the JR hospital's internal investigation, despite them not following multiple national guidelines and ignoring my 44 calls for the scan they offered and then refused me
@DHSCgovuk
@milicaredfearn1
@VictoriaAtkins
@OUHospitals
If OUH had listened to my 44 concerned phonecalls and provided the basic standard care then my baby would not have died. Families should be at home with live babies, not spending time on a berevement suite with their corpses. You're looking in the wrong place for a fairer system.
@EmilyJBarley
@Alex_Stafford
@JakeBenRichards
I've worked for the NHS for years and been a passionate advocate for it. Never in my life did I imagine having to consider legal action against it. But, their negligence killed my daughter and left me and my partner totally broken and severely psychologically damaged.
@kaedequinn
I found this myself in the hospital, absolutely we didn't 'lose' our babies (we know exactly where they are), they died. I've come to not mind the term so much over time as I feel it encompasses what she missed out on in life, or 'lost' and what we missed out on and 'lost'. ❤
@Laurenncaul
Oh Lauren, it's awful and unacceptable that wanting justice for Grace and your family is causing so much pain. I'm so sorry you're having to go through this shit.
@kiityc
@catherineroyuk
Absolutely. My baby died after I was told to stay at home and wait for my induction appointment later that day when I called the maternity assessment unit. I was in labour having about 4 in 10 contractions and was high risk. I was only 2cm dilated when they checked later.
@Halfords_uk
It's really not good that at your Mile End store I'm having to wait so far nearly 30 mins to pick up a click and collect. The whole point of click and collect is supposed to be that you've already paid making it easier and quicker.
@Siege_Perilous
@Sandyboots2020
If they actually paid tax like everyone else and stopped hiding it in tax havens that money could actually be used for decent housing and a properly funded NHS rather than these vanity project charities.
@OUHospitals
Try telling this to all the families who have been failed by OUH and their babies died preventable deaths. These same stats show the stillbirth rate for Oxfordshire is higher than every other trust surrounding it and the national average, for every single one of the past 6 years.
@truthoutthere12
@EmilyJBarley
What do you mean by safe? That neither mother or baby die? Research shows upto 45% of new mothers report birth trauma, 4-5% develop PTSD. Many are seriously injured. Babies also experience injuries and sometimes brain damage. It's not that uncommon.
@kaedequinn
...the language that's right for us. To be honest, maybe the term 'stolen' is more accurate than 'lost' for me based on how my daughter died, i.e. 'sorry your daughter was stolen from you'.
@livbellxo
Oh my goodness that's horrible and unacceptable I'm so, so sorry. What on earth saying her trust could never be responsible for a baby's death.
@DHSCgovuk
@VictoriaAtkins
@OUHospitals
@TeamOUHMat
Please can you not allow videos of politicians holding up your hospital as a 'fairer' system whilst visiting the berevement suite where I was forced to spend time with my daughter's dead body because of the multiple failures in my care. It's totally inappropriate.
@truthoutthere12
@catherineroyuk
If I'd listened to my instincts instead of trying to decrease my anxiety by gaslighting myself into believing my care team had my best interests at heart, maybe I'd have been able to save my daughter. I was anxious for good reason.
@EmilyJBarley
Yes, agreed. Hope died for me, which impacts everything. Trust in others died with what came immediately after from the hospital's lack of accountability. I want to regain some semblance of a liveable life and the remnants of myself, my joys and passions. Take back what I can.
@mwfrymusing
@RMatthewsPsyEdu
@BirthTrauma
In labour, having to run out of the room into a corridor (away from the gas & air) to use the toilet & my partner having to leave delivery suite to use the toilet after being told our daughter had died took all my dignity. Yet, the midwifery unit had an ensuite toilet and shower
@Laurenncaul
I think those are the things they may tell themselves to help the pain of losing their baby with no known negligence involved. These are not coping strategies available to us unfortunately. I don't think they know how to deal with it, so try to dismiss it.