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Stoma Babe

@stomababe

7,709
Followers
870
Following
561
Media
4,640
Statuses

I proudly wear a stoma bag, fight colitis, live with ADHD, create content, and write for newspapers. Most importantly, I'm Scarlett's mum. ❤️

London, England
Joined October 2018
Don't wanna be here? Send us removal request.
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@stomababe
Stoma Babe
2 months
So @taylorswift13 was epic but the crowd were not… I have never dealt with such nasty people before. I had to keep going the toilet and was treated with contempt whenever I went back to my spot. Despite explaining I have a medical condition. 1/3
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@stomababe
Stoma Babe
2 months
Repeat after me, chronically ill and disabled people are entitled to fun. They are entitled to concerts, they are entitled to holidays, and they are entitled to use the toilet whenever they need to. If you disagree with this, YOU are the problem.
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@stomababe
Stoma Babe
2 months
Just a reminder that disability is something that can happen to anyone at anytime. So the next time you want to be rude to somebody because they have medical condition, please remember that it could in-fact one day be you.
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@stomababe
Stoma Babe
2 months
When I used the disabled toilet I was continuously harassed by people banging on the door and shouting to hurry up. This made my anxiety go through the roof. So until @wembleystadium have a safer environment for those with medical conditions. I will not be going again. 3/3
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@stomababe
Stoma Babe
1 month
@IrradiatedMouse I would turn up to the school and bring my daughter the biggest ice cream sundae I could find if she was one of those being punished!
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@stomababe
Stoma Babe
6 months
People speculating that Kate Middleton has a stoma…can you please be sensitive how you discuss this subject if you have no experience of living with one. We are people, we have jobs, we have partners, we have lives!
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@stomababe
Stoma Babe
2 months
I was wearing my sunflower lanyard to let people know I have a hidden condition and had my backpack on with stoma supplies in. One lady demanded I remove my back pack even as I explained why I was wearing it. She then proceeded to continuously shove me. This was a parent btw. 2/3
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@stomababe
Stoma Babe
2 months
Disabled person: “I want to be able to access the toilets”. Able bodied people: “Why don’t you just stay at home. How dare you go out? Why do you want to be pandered to? You should just shit yourself. So ungrateful.”
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@stomababe
Stoma Babe
2 months
I won't rest until those with chronic health conditions and disabilities no longer have to lock themselves away and miss out on what they enjoy because venues refuse to make accessibility a priority, and people refuse to use compassion as a necessity.
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@stomababe
Stoma Babe
2 months
I have been refused payment from @TheSun despite them taking my photos and using them without permission. I have no issue with papers sharing my story, but it must be with my consent only. It seems they only care about disability when it suits them. Gross.
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@stomababe
Stoma Babe
1 month
I should wear this as a placard around my neck when I go to events. Last night, a lady was sitting outside the disabled toilet and told me I couldn’t use it because "I don’t look disabled." Her attitude changed when I showed her my stoma bag, but it should never have gotten to
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@stomababe
Stoma Babe
11 days
First you see it, now you don’t! Thank you @marksandspencer for gifting me these specially designed stoma knickers with built in support for bags! …the first ever on the British high street! These are perfect for every day wear but I especially look forward to wearing them
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@stomababe
Stoma Babe
2 months
@KyePilmore @taylorswift13 I would have loved to kye, but unfortunately they went in 0.5 seconds. Not rocket science is it.
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@stomababe
Stoma Babe
10 months
No better view in this world 💕
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@stomababe
Stoma Babe
2 months
The fact I shared my experience as a disabled woman at a @wembleystadium concert, and people responded that I am “entitled”, look like I wear a sign saying “come f**k me”, dress too scantily and should empty my “sh*t bag anywhere”, but in accessible toilets says everything.
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@stomababe
Stoma Babe
10 months
Finally Scarlett gets to be at home 💕
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@stomababe
Stoma Babe
2 years
Made it through surgery (again) let’s get this recovery on the road 💪
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@stomababe
Stoma Babe
1 month
A disabled toilet I encountered today in @ROKArestaurant Charlotte street…absolutely disgusting it’s been turned into a storage unit. This is one of many reasons why disabled people struggle to leave the house and go out!
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@stomababe
Stoma Babe
10 months
Definitely a treat and not a trick… Welcome to the world baby Scarlett. We are so happy to have you here with us. ❤️
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@stomababe
Stoma Babe
2 months
Over 1000 new followers in 24 hours on here. I’ll take a moment to reintroduce myself. My name is Holly, I am 30, I have an eight month old, and in 2021 I nearly died from ulcerative colitis. I spent 8 weeks in hospital that culminated in me having a stoma bag. 1/3
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@stomababe
Stoma Babe
2 months
However awful the world may be, this lady always makes me smile. ❤️
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@stomababe
Stoma Babe
10 months
My little living doll 🥹
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@stomababe
Stoma Babe
2 months
Just to add I have been extremely upset all morning because of how I was treated by people at @wembleystadium @taylorswift13 … nobody should be made to feel excluded because they have a disability beyond their control.
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@stomababe
Stoma Babe
8 months
Two years ago I nearly died in my Kew Gardens flat…tonight I was here to visit the Christmas lights with my precious daughter. Nothing could make my heart more full ❤️
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@stomababe
Stoma Babe
2 years
So inspired by all the incredible #ostomates featured on @reallorraine today. Here’s me with my best friend I call “Buffy the life saver” #stomaaware
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@stomababe
Stoma Babe
1 month
Disabled toilets are intended for people with disabilities, not for storage. Anyone can become disabled at any time. Imagine how you would feel if you needed to use the toilet and found it being used as a storage room.
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@stomababe
Stoma Babe
2 months
Wow, nearly 2000 new followers have been made in 48 hours! I will reintroduce myself again. My name is Holly; I am a journalist and content creator. I have a permanent stoma bag that has greatly enhanced my life. In my free time, I love running and standing up for disabled people
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@stomababe
Stoma Babe
4 months
One minute I'm out celebrating my anniversary, and the next I'm crying in the toilet with s**t all on my dress. Life with a stoma is anything but dull, I'll tell you that for free. If only people cared enough about ostomates to make supplies available in chemists. Sigh.
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@stomababe
Stoma Babe
10 months
One week old today 🤧🤧🤧
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@stomababe
Stoma Babe
2 months
The people posting how frustrated they would be if they had to move at a concert will never understand how frustrating it is to live with a bag on their stomach after three operations in two years, including having their colon and rectum removed just to have a quality of life.
@stomababe
Stoma Babe
2 months
Repeat after me, chronically ill and disabled people are entitled to fun. They are entitled to concerts, they are entitled to holidays, and they are entitled to use the toilet whenever they need to. If you disagree with this, YOU are the problem.
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@stomababe
Stoma Babe
2 months
Thank you everyone so much for (the nice, not the horrible) responses to my tweet about my experience at @wembleystadium to see @taylorswift13 . On Friday I will be appearing on @GMB to discuss my experience more in depth and raise awareness of life with a hidden disability. ❤️
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@stomababe
Stoma Babe
1 month
It is absolutely outrageous to think of punishing chronically unwell children, who already endure so much, by forcing them to watch their healthy classmates enjoy ice cream. It's utterly disgusting.
@IrradiatedMouse
Em 🐭
1 month
The kids at school who got 100% attendance had an ice cream van come into school on Thursday (it was a ridiculously hot day) and all got an ice cream, the ones that had had a single day off had to sit in the boiling hot playground with nothing. I hate attendance based rewards
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@stomababe
Stoma Babe
2 years
What a year it has been for me!
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@stomababe
Stoma Babe
2 months
King Rylan has spoken 🙌
@Rylan
R Y L A N
2 months
@stomababe @wembleystadium Fuck them , they’re idiots
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@stomababe
Stoma Babe
2 months
Someone suggested that if disabled people can't get a seat at a concert, they shouldn't go. Now, imagine me telling able-bodied people they shouldn't go to an event if they want to sit. Madness.
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@stomababe
Stoma Babe
1 year
For anyone who thinks it’s not possible to naturally have a healthy baby with no colon or rectum…here is my little peanut cooking nicely. 16 months post stoma surgery and 7 months post proctectomy surgery. 👼
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@stomababe
Stoma Babe
1 year
I’m fed up stoma bags not being available to purchase in public places like chemists and supermarkets. They’re an essential item for ostomates like sanitary ware is for women. So why must they only be accessed through a prescription service? It’s inconvenient and ableist.
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@stomababe
Stoma Babe
21 days
I had to face a verbal confrontation with someone for calling me “disgusting” for using the accessible toilet in @marksandspencer .… please consider updating your signage to include those with hidden disabilities! A great example is @sainsburys , who even offer sunflower lanyards
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@stomababe
Stoma Babe
2 months
Just because you don't see yourself as disabled doesn't mean someone with the same condition isn't. Disability is a spectrum, not a one-size-fits-all label. There's nothing wrong with being disabled, and you should not feel ashamed to acknowledge it. #disabilitypridemonth
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@stomababe
Stoma Babe
10 months
The first morning of the rest of our lives 🥹💕🥹
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@stomababe
Stoma Babe
2 months
I can announce that I will be taking part in @LondonMarathon next year as part of the team @CrohnsColitisUK !!!! And because of this charming comment, I will do it in my pants to get plenty of attention for those of us living with an ostomy! 💜
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@stomababe
Stoma Babe
1 month
It’s not a toilet for disabled people if it’s being used for storage. 💀
@Alastai22759462
Alastair Gray
1 month
@Ms_Deathwish @stomababe @ROKArestaurant They have a toilet , in fact one especially for disabled but they are upset because the business has to store stuff in there ,it’s pathetic
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@stomababe
Stoma Babe
2 years
In just 4 hours I will be heading down for my surgery…so I just wanted to say a big thank you to everyone for all their well wishes and support. I am eternally grateful. ❤️
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@stomababe
Stoma Babe
9 months
If you had told me two years ago when I was sat in hospital being fed through a tube this is where I would be, I wouldn’t have believed you.
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@stomababe
Stoma Babe
2 years
Got told on tiktok by a woman who “has two children” that she would “rather die” than “shit out of her stomach”. Imagine actually thinking that’s an alright thing to type to me…somebody who actually did almost die. I can’t.
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@stomababe
Stoma Babe
2 months
I am back at work today after eight months maternity leave! Where has the time gone. 😭 At least Scarlett looks like she’s been having a fun day with her nana today. 🩷
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@stomababe
Stoma Babe
1 month
The consultation period for PIP ends next week, and Liz Kendall still hasn't addressed whether she will abandon the Tory proposal to replace monthly payments with vouchers. This is causing unnecessary anxiety for society's most vulnerable individuals. Truly appalling.
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@stomababe
Stoma Babe
1 month
Good one Alastair, but I have a stoma bag so I can’t just “sh*t before I go”.
@Alastai22759462
Alastair Gray
1 month
@stomababe @ROKArestaurant Have shit before you go out ,the world doesn't revolve around your disability
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@stomababe
Stoma Babe
2 months
This is what people do not understand. It is incredibly difficult to obtain tickets for the disability area at Wembley. You can not even purchase them online. It is via a phone line that never picks up. People living with illness and disability have to miss out all the time.
@InclusFit
InclusFit™️
2 months
@Sedds58Seddon @stomababe That’s if you can get tickets for the disability area You can only get those tickets by ringing up & that’s if you get through you maybe lucky 2 get some I missed out on so many concerts due to how difficult it is to get disability area tickets especially as I can’t stand 4 long
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@stomababe
Stoma Babe
10 months
Don’t be fooled by this angel…she has a real set of lungs on her particularly when mum and dad want to sleep 🤣
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@stomababe
Stoma Babe
2 months
How about prioritising making pip more accessible to people with hidden disabilities, improve mental health services, and ensure timely NHS referrals instead of just constantly reiterating about "getting Britain working”. 🥱
@leicesterliz
Liz Kendall
2 months
A whirlwind few days in my new role as Secretary of State for Work and Pensions. People have voted for change and we are determined to deliver our plans to get Britain working, tackle poverty and provide security in retirement … in every corner of our great nation.
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@stomababe
Stoma Babe
3 months
New passport pic today…18 months ago after my illness I had only a few strands of hair left! So happy it is now nearly past my shoulders!
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@stomababe
Stoma Babe
1 month
Henley Festival today! My first black tie event with a stoma! Wish me luck 🤣
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@stomababe
Stoma Babe
1 year
An incredible day for ostomates as Gill made history being the first person in the world to swim the channel with a stoma. Absolutely outstanding effort. 👏👏👏
@katiecoletv
Katie Cole
1 year
13 hours, 53 mins believed to be Gills official time. Wow!
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@stomababe
Stoma Babe
10 months
How my Saturday nights are now 🤣
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@stomababe
Stoma Babe
2 months
Six months post Proctectomy surgery I conceived my first child and I welcomed her to the world via C-section in October 2023. I have been on my maternity leave since then and return to my role as a journalist this week. 3/3 💜
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@stomababe
Stoma Babe
2 months
It costs nothing to show compassion and kindness! The fact that the majority of nasty looks and comments I received were actually from parents and not children says it all!
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@stomababe
Stoma Babe
4 months
In her princess dress today 👑
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@stomababe
Stoma Babe
1 month
Having a permanent stoma can be incredibly exhausting. Nightly wake-ups to empty the stoma and the constant loss of nutrients take a toll. Simple tasks require tremendous effort every day. It's incredibly challenging, but it's the price we pay for survival.
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@stomababe
Stoma Babe
21 days
Two years back, I said goodbye to my bum hole for good and underwent a permanent stoma surgery. Since then, I've been living free from IBD and medications. Best decision I have ever made. ❤️
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@stomababe
Stoma Babe
15 days
Disability 😔
@em_Lazzy
Lazzyyyyyy
16 days
What's something that people don't understand until they experience themselves?
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@stomababe
Stoma Babe
5 months
Happy Easter from us 🐣
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@stomababe
Stoma Babe
10 months
Night number three in hospital with this little one, and somehow despite my incision pain and lack of sleep she is keeping me smiling ❤️
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@stomababe
Stoma Babe
2 months
She wakes me up very early but I can’t be mad because look at her sweet sleepy face 🥹
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@stomababe
Stoma Babe
5 months
Not letting a few leaks stop me wearing my favourite bikini ❤️
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@stomababe
Stoma Babe
8 months
Happy New Years everyone! Thank you so much for all your support this year ❤️
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@stomababe
Stoma Babe
8 months
In her finest dress for Boxing Day 🎄
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@stomababe
Stoma Babe
8 months
Merry Christmas from Scarlett x
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@stomababe
Stoma Babe
1 year
After two scans peanut has graced us with an appearance 😍💜
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@stomababe
Stoma Babe
2 months
Someone is happy that the sun is shining 😃
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@stomababe
Stoma Babe
5 months
Taking little dot to meet some incredible ostomates today 💜
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@stomababe
Stoma Babe
2 months
My #DisabilityPrideMonth story: I'm Holly, a 30-year-old mom to an eight-month-old and a content creator. In 2020, I was diagnosed with Ulcerative Colitis and now live with a permanent stoma. I also suffer from dyspraxia, ADHD, and depression. What's your story?
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@stomababe
Stoma Babe
6 months
Also this may really shock people but not everyone with a stoma wants to or needs to have a reversal. Many are better, healthier and happier just living life with a bag.
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@stomababe
Stoma Babe
2 months
I don’t even know where to start with this response.
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@stomababe
Stoma Babe
2 months
This post has nearly had 3 million views! I had no idea when I typed it how many people would relate to how I felt. 😿
@stomababe
Stoma Babe
2 months
So @taylorswift13 was epic but the crowd were not… I have never dealt with such nasty people before. I had to keep going the toilet and was treated with contempt whenever I went back to my spot. Despite explaining I have a medical condition. 1/3
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@stomababe
Stoma Babe
2 months
@OptimusBrides @taylorswift13 Firstly I had a lanyard on that says MEDICAL CONDITION in capital letters. It’s not difficult to see or understand. I “jostled” for my position the same as anyone else. What is wrong with being patient so I don’t end up covered in my own fecal matter?
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@stomababe
Stoma Babe
2 months
I didn't realise how challenging life is for disabled people until I got sick. In London, the pavements are in poor condition, and there are very few accessible tube stops. Disabled toilets are often used as storage cupboards, and the list of issues goes on and on!
@carmelk64425471
carmel keane
2 months
@stomababe I have to say I never really thought about disabled people to my shame until it came very close to home my grand niece is disabled due to accident I now look at everything through her eyes and I really don't like what I see
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@stomababe
Stoma Babe
1 month
@Angela5784 @IrradiatedMouse Oh yes how dare children who suffer sickness be rewarded! 🫠
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@stomababe
Stoma Babe
2 months
I’ll be on @GMB tomorrow at 7.25am to discuss the importance of hidden disability awareness and my @wembleystadium experience. 💜
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@stomababe
Stoma Babe
1 month
If companies really cared about “inclusion” they wouldn't just half arsedly put up a single disabled toilet at events. There are 16 million disabled people in England, it is time to do better.
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@stomababe
Stoma Babe
2 months
Some people genuinely treat their dogs better than they do disabled people. It’s astounding.
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@stomababe
Stoma Babe
2 years
She is beautiful, strong and will has an amazing life ahead of her ❤️
@Good_Bad_Autism
TheGoodTheBad&TheAutism
2 years
@stomababe My baby girl had her stoma at 9m old and it saved her life ♥️ those little red buttons are wonderful things. Some people are just ignorant!! Bet she’s got #bekind in her bio 😆 xx
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@stomababe
Stoma Babe
8 months
It’s my birthday 🥂
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@stomababe
Stoma Babe
2 years
Nothing annoys me more than IBD’ers who say “thankfully I didn’t need a stoma” or “lucky I don’t have a stoma”. Well good for you. I’m both thankful and lucky to just be alive, so there we go.
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@stomababe
Stoma Babe
9 months
My angel 👼
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@stomababe
Stoma Babe
9 months
Happy one month to my beautiful Scarlett ❤️
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@stomababe
Stoma Babe
2 months
Eight months after leaving hospital I had a second operation to remove my rectum and bum hole. I now have a permenant stoma bag that has taken a lot of getting used to. Throughout my journey I have shared the highs and lows on various social media to raise awareness. 2/3
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@stomababe
Stoma Babe
2 months
Iconic first passport photos.
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@stomababe
Stoma Babe
2 months
@ci188ty4 @taylorswift13 I tried many times to contact them via phone and email but got no response.
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@stomababe
Stoma Babe
2 months
Why does @UKLabour think it's acceptable to appoint Liz Kendall as the face of @DWPgovuk , when she lacks expertise or experience in chronic ill health or disability? Shouldn't someone with lived experience be given the opportunity instead?
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@stomababe
Stoma Babe
10 months
Morning from me and my London girl. 💂��♂️ @GSTTnhs
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@stomababe
Stoma Babe
1 year
Through to the terminal with no issues 🎉 Lady who patted me down said I wasn’t even the first to come through security with a stoma this morning ❤��. Dubai here I come 🇦🇪
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@stomababe
Stoma Babe
10 months
🥹🥹🥹
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@stomababe
Stoma Babe
8 months
Christmas Day two years apart
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@stomababe
Stoma Babe
2 years
If you had told me a year ago this would be me…I never would have believed you.
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@stomababe
Stoma Babe
2 months
@hey_now_uk @Kathy_and_co @wembleystadium @taylorswift13 Since it can be done “anywhere” what is your address loving tings?
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@stomababe
Stoma Babe
1 month
I noticed there was no mention of support for those relying on pip, welfare, or disabled individuals in the King's speech today. It's disheartening but not unexpected to see these critical issues overlooked once again.
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@stomababe
Stoma Babe
8 months
I love this precious girl so much ❤️
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@stomababe
Stoma Babe
2 months
@tina0402x @taylorswift13 Oh my god. That is a disgrace!
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