Letter arrived today.
Liver cancer has metastases to the lymph nodes.
I moved from stage 3 to stage 4 not that it really means anything.
Prognosis for 12 month survival is less than 12% with zero recorded cures.
All hope has gone 😭
@ThanksCancer
So here we go, admitted to the hospital for Liver surgery tomorrow, may the odds be ever in my favour (except they are not) but there is no point thinking about that now.
I will either survive or I won't so here we go.
@ThanksCancer
Watching Villa reach Europe in what could possibly be the last ever game I see them, thanks to Cancer !!
Could not have wanted my 42 year love affair with the mighty AVFC to have gone any other way.
#heits
#AVFC
#fuckcancer
One of the many things cancer has taken from me... My smile.
This is the best I can manage because chemo and radiotherapy has destroyed my teeth.... I had perfect teeth so it's a massive loss.
@ThanksCancer
We don't call it terminal anymore, we call it advanced cancer, and I'm afraid to tell you that yours is advanced !!
Chemotherapy is no longer an option so we are going to try immunotherapy.
Well that was a shit meeting with my Onc Donc.
@ThanksCancer
#fuckcancer
Is having Cancer that annoying for other people ?
Since announcing my diagnosis 5 months ago on FB I have been unfriended by 203 people 🤣🤣 they must think it's contagious or something !
@ThanksCancer
I have served my country.
I have been faithful to my wife of 31 years.
I have worked and paid taxes my whole life.
I have never committed a crime outside of a speeding fine !
And my reward is Cancer.
Talk about indiscriminate !
@ThanksCancer
#Cancer
Cancer update (finally)
My Radiotherapy did NOT work.
But
They have decided now to perform a Portal Vein Embolism.
This will kill off the right lobe of my liver in the hope the left lobe will compensate and grow.
Probably next week.
Renewed hope
@ThanksCancer
I am a Villa fan through and through. But cancer does not give a fuck what colours you wear or badge you honour.
I have had messages from supporters of all teams, from
#MCFC
to
#BCFC
Rivalries aside football fans are some of the best people in the world. Fact
#avfc
#footballfan
When getting a terminal cancer diagnosis, you can't help but create a series of milestones.
Today is my only son's 28th Birthday.
When I got mine in March this was the first milestone I thought of.
I love you son ❤️
@ThanksCancer
#grateful
#CancerAwareness
So i had an MRI last Thursday.
Today I g6et a call requesting I attend an urgent CT scan today at 18.40.
Should I be worried /scared / relieved things are happening.
Can't get hold of anyone to get the reasoning.
Scanxiety hitting the roof again. 🤮
@ThanksCancer
So I just had an appointment re post surgical scans.
The first words were "this is going to be a difficult conversation"
My Liver regenerated fine, sadly it also grew the tumor back with it and it is super aggressive.
Palliative Chemo is next.
@ThanksCancer
Sitting in my chair in my hospital ward, what is it about these places that are so terrifying 😱
Nil by mouth from midnight, sexy surgical stockings at the ready.
General anaesthetic at least tomorrow so I won't know much about it.
Night all 💚💚💚
@ThanksCancer
@jrpeet
@ThanksCancer
Whilst I appreciate that you took the time to post this, please don't make me tell you what you can do with your religion.
All Religious beliefs are the single biggest cause of human deaths on this planet. There is no way any "GOD" would allow what's happening in the world !
THE CONVERSATION
Your scan shows the tumor is over 70% of the Liver and Radiotherapy and Embolization has not worked
I estimate 3 to 4 months before Liver failure.
Do you trust me ? I think I can cut it out but I won't know until I'm in !
ME - LETS DO THIS !!
@ThanksCancer
I have had a few messages so I thought I had better say something.
I had 75% of my Liver removed on Jan 18th.
It has been an uphill battle for recovery with a few complications and more hospital stays.
I was waiting to say that they got it all, that I am in remission but I can't.
Sitting in McDonald's about a mile away from hospital waiting for my last ditch SIRT cancer treatment. Absolutely shitting myself and every fibre of my being is telling me to turn back. Real risk of death today !
Love my family, love my friends & love the Villa .
#AVFC
#vtid
🤣🤣Cancer scan results🤣🤣
CT scan shows no metastasis and no focal recurrence.
Congratulations you have defeated the Cancer demon.
But wait.
MRI scan shows 15mm lesion on newly formed Liver, wait another few weeks whilst we clarify in teams meeting.
@ThanksCancer
"what type of cancer do you have ?"
"I have stage 3b Primary Liver Cancer"
"Oh so not stage 4 then !! I knew someone with stage 4 who didn't last very long"
" I'm sorry are you disappointed ? Stage 4 just means it has spread from primary ,educate yourself !"
@ThanksCancer
Wow, urgent MRI scan for 8 am today.
I love how they drop this shit on you, but at least I have no time for scanxiety, that comes whilst I wait weeks for results (5 last time)
@ThanksCancer
#Cancer
25 days since the CT scan
21 days since MRI
Still no results on the NHS.
Rang yesterday to find out what's going on to get an answer machine saying the department is temp closed .
After 7 months these results are literally to tell me if I have any hope. 😭🙏😔
@ThanksCancer
My precious Ella,
Two pressies for father's Day.
My son brought Ella with her new outfit❤️
My daughter bought me the away top❤️
I pray I can beat this cancer to watch her grow..
@ThanksCancer
#avfv
#fuckcancer
#utv
Just phoned my Cancer Nurse Specialist, told me still no results (18 days now) but I'm on teams meeting list for next Tuesday, so hold on another week.
When my life is now measured in weeks it seems harsh 😭
@ThanksCancer
All the waiting is now over. I have to attend Heath Hospital in Cardiff, UK this coming Monday for my Portal Vein Embolism on Tuesday.
Let's get that Liver tumor killed !!
@ThanksCancer
Having Cancer still feels like it is happening to someone else.
I think I have disassociated myself from it and now am just a running commentator on my own life.
How am I coping ?
By pretending it's not me !
@ThanksCancer
#MentalHealthMatters
So some amazing human being has come up with a plan to save my life.
Dr R Muirhead ❤️
Using some science wizardry to attempt to shrink my Cancer.. whilst at the same time grow the other half of my liver.
Then they cut it out and I will live.
Gonna see
#avfc
in Europe after all🙏
Sorry Simon, we are running out of time and the radiotherapy did not work. We have decided to go ahead with a PVE as a last resort and need to do this asap.
That was last Wednesday.
Tumbleweeds !!
I'm quite literally dying here where is the big red panic button ?
@ThanksCancer
To all those commenting about "GOD" on my posts.
Please enlighten me, which one are we talking about ?
Apollo ? Zeus ? Osiris ? Thor ? Vishnu ? Shiva ? Or any of the other 3000 gods.
Of course you don't believe in those in the same way I don't believe in yours.
@ThanksCancer
Update, thank you so much for all for your well wishes, I read them all and it makes me proud to be a villain. although I feel like death warmed up I'm Not ready to be a
#heits
just yet .
That may have bought me another 6 months so bring on the season.
#UTV
#AVFC
#fuckcancer
Just to clarify. I had a meeting with my hepatobiliary surgeon last Tuesday, Which I had to travel a long way for.
He then could not see me, so sent his understudy to deliver my bad news.
However he could not answer my questions, and when asked why I can't have another op
Moved over to Palliative Chemotherapy this week
My body hates me because yesterday I also had an upper endoscopy to find out why my pain was so high
Found 3 upper ulcers, a hiatus hernia and a 10mm cratered duodenum ulcer along with an Infection
To the Opioids
@ThanksCancer
He said it's not as simple as that.
He did say they were moving me to Oncology for Palliative care hence why I knew the news was bad.
However the letter today shocked me because he did NOT say it had metastasised to Lymph nodes.
@
So after being told there was no treatment, not even chemo for my liver cancer, I have been invited to the Churchill Oncology outpatient to discuss a potential treatment this Friday. Hope ????
@ThanksCancer
#avfc
#heits
#fuckcancer
@ThanksCancer
#utv
#AVFC
I have been blessed enough to still be here to say a massive thank you for all of your support.
I had my surgery on the 18th where they took 73% of my Liver.
After some dodgy times in ICU my remaining Liver finally kicked in and took over all function.
So far the side effects are .
Surgery trapped air pain
Indigestion from sips of water followed by hiccups for 10 minutes.
The constant need to pee, but you get there it won't happen.
Nausea and dizziness.
I felt fine when I went in . Lol
@ThanksCancer
Phew, just had my CT scan date of 27th December.
Add 2 weeks for results and that means I'm guaranteed no surgery at Christmas 🎄🎄🎄
I can relax now
If only I felt better, superglueing 2/3rds of my Liver shut has had some nasty side effects 🤮🧟♂️☠️
@ThanksCancer
#CancerAwareness
Hey everyone, been a while.
Took some downtime after last immunotherapy.
It all starts again Bloods today
Monday Onc Donc
Tuesday next round in the chair 🤮😴
Side effects mainly burning muscles and joints and extreme fatigue.
Here we go again !!
@ThanksCancer
#FuckCancer
I do not wish to offend anyone, I've a dark sense of humour (ex forces)
But I am also an atheist and can never be convinced of anything else
I know I don't speak for all cancer patients, only myself and my views are my own.
Cancer sucks and has taken much from me !
@ThanksCancer
Cancer Bingo, come and join in.
Whenever you post a cancer Update cross off the following and add more.
Ivermectin
RSA oil
My friend/relative has cancer
God/Jesus will save you
Try this (insert ridiculous remedy)
@ThanksCancer
Keep it going 😁
Had my final live or die Pet CT scan 10 days ago and still no results.
#scanxiety
through the roof.
Why are the NHS so slooooow , I mean it's not like I have terminal Cancer or anything
@ThanksCancer
I have had 4 MRI cancelled and my surgeon has also cancelled 3 appointments.
I have been left in the unknown, still major swelling, still constant pain and still just as scared.
I have just been told I have the MRI this Thursday, so fingers crossed
@ThanksCancer
He told me he thinks he got it all, but is worried he left some on the Hepatic Vein. MRI will tell.
He also said it was up to me now as the complications after surgery were more likely to kill me, well two months later I'm alive.
I had two further hospital stays but MRI tomorrow
Sorry ,if that gets me I followed so be it. But I have bigger things to worry about than whether an all encompassing made up character from a book that just about everyone misinterprets to suit their own narrative is saving me.
In 500 years time Harry Potter will be GOD !!
@MarieSc21914643
@ThanksCancer
I was in a meeting with them last Tuesday and whilst I knew the news was bad, they clearly chickened out of telling me the whole story.
Cards on the table, Cancer has financially crippled me !!
The gofundme has paid my mortgage and i am eternally grateful to all the donors.
If you see this, please retweet !
Maybe it will get seen by someone who has the means to help me.
@ThanksCancer
Last two days I have had a constant metallic taste of blood .
Apparently a sign of Liver problems (no shit Sherlock)
Either that or I am becoming a vampire !
NM , if Bill Gates had his way I would be euthanised by now 🤡
@ThanksCancer
Does anyone have any experience with THC for cancer care ? If I'm going to be palliative anyway then self poisoning may be the way forward.
Picture for attention as my Skittles wants to know too.
@ThanksCancer
Not been able to bring myself to "do" anything social. The Cancer gremlins have got my anxiety up again. I'm mourning the loss of ... myself
@ThanksCancer
#cancersucks
I have booked to see a medium 😱
Now this has nothing to do with religion, this is more for me to try and find if there is any piece of mind that there may be "something" afterwards.
Does anyone have advice on what to ask ? Again no religion ! I'm just intrigued
@ThanksCancer
There is a special place reserved on my shit list for people who prey on cancer patients.
I shit you not a DM asking to pay this dick £150 a month for him to send healing vibes from Chicago (6000 miles away)
Fuck off pal, and when you get there fuck off some more
@ThanksCancer
It's been exactly 6 months since my cancer diagnosis !
In that time my specialist "team" has only actually phoned me once to see how I am, and spoken to an oncologist twice. Is this normal ?
@ThanksCancer
A total of 22 days in hospital under the care of some wonderful people and my surgeon told me these words.
"Simon I think I got it all"
I won't know for certain until my 3 month scan, but I may actually be Cancer Free !!
From terminal to kicked it's arse.
I will take the win
The Cancer naughty step.
So yet again I have been told to go sit on it
It's the place we go when the rushed treatment activity is over and you are waiting for results
Every so often someone walks past and prods me, makes sure I'm still sane
Not sure I am !
@ThanksCancer
Is it sad that everything I know about my Liver Cancer is self taught ?
Every procedure I have had to Google to get some expectations.
Every side effect after surgery researched myself, although I didn't see the lung collapse from Ascites coming !
@ThanksCancer
So I'm being asked what will help.
If I don't want prayers or offers of quack cures what do I want.
Honestly
Money. If you really want to help then drop a fiver in my gofundme and save me from the financial ruin cancer has caused me (or anyone else's).
@ThanksCancer
#cashhelps
To all well intentioned people telling me about Ivermectin.
Ivermectin was used in clinical trials in 2020 in mice and was found that it blocked cancer cells.
However in 2022 human trials showed it severely damaged the Liver, causing Fibrosis and cell destruction.
@ThanksCancer
@JuleoftheLake
@ThanksCancer
In the same letter they "discharged" me to palliative care. They were a hepatobiliary surgical team that have moved me to Oncology
@retrowedding68
@ThanksCancer
I always can talk about my feather babies. And I love African greys.
I have conures, macaws and an incredibly funny Galah. I used to breed Greys but I gave it up when diagnosed
Major abdominal pain.
Upper endoscopy today.
3 varices ulcers
A sliding Hiatal Hernia
A 10mm cratered mound
I'm a "ticking time bomb" apparently.
@ThanksCancer
, if the cancer doesn't get me I will just bleed out !
When it rains it pours !!
To all my new followers, this is Tiki , he is a Severe Macaw and is 2 years old.
I raised him from 3 weeks old and he is a sweetheart.
And that is a parrot biscuit before anyone asks 🤣🤣
#parrot
#Birdies
@snufflewort
The reality is that they need to do their thing to cope, my daughter just spent a fortune on me for father's day, and I know it's because it's probably my last. But they need it as much as we do is the reality of the shitty situation. 💚❤️💚
Much love !!
@ThanksCancer
This says a lot about my karma.
Got 2 letters today
Get my final appointment for a CT , this is the big one. Live or die type results !!
Then I open the 2nd letter 🤣🤣🤣🤣
I fell about laughing cause that's all you can do.
@ThanksCancer
As a terminal cancer patient what advice would I give my younger self ?
Don't drink..it's literal liver poison
Don't smoke..it's literal lung poison
Don't overeat sugar..it's literal body poison.
Would I have listened ? Don't be daft I was way too stupid
@ThanksCancer
I really need to check my sense of humour in public !!
Onc Donc : any history of mental illness in the family
Me : yes my Mom went to church.
Awkward silence ensues but Inside I'm literally pissing my pants 🥹🤡
@ThanksCancer
#fuckcancer
Here is an update on my journey with cancer so far.
I couldn't put the update here without being verified so just put the link to the campaign with the full update on from diagnosis to now
@ThanksCancer
Peace and love ♥️
Bloody Cancer !!
Can't I just go to the Winchester and have a nice pint until it all blows over
If you know, you know 🧟♂️
(only one of the greatest films ever made dontchaknow)
@ThanksCancer
@simonpegg
Would like to say a massive thank you to everyone who responded to my tweet regarding my terminal cancer.
Your words of support are incredible, humbling and comforting.
Not only is the
#avfc
community incredible, but wonderful messages from other fans ♥️
@espenstrand
#fuckcancer
10 minutes the other direction from my house, apparently this is where they filmed the batcave location for the Chris Nolan versions, you learn something new every day !
@ThanksCancer
So yet another front tooth snaps in half 😭
That is 6 since my Internal Radiotherapy.
Can't see a dentist until February 😱
Looks like it's a full set of upper dentures at 51, assuming I survive the big January surgery of course 💚💚
Wow , phone call from Clinical Nurse Specialist to tell me I have to wait for results till "hopefully" next Tuesday. A full 4 weeks and 1 day since the scan.
But not to worry cause they haven't forgotten about me ... Gee thanks
@ThanksCancer
Journey so far.
Selective Internal Radiotherapy
Trans Arterial Chemo Embolism
Portal Vein Embolism
Full right Liver lobe resection.
Just been told my Liver regeneration has also regrown the Tumor but twice as aggressive and there are no other surgical options.
@ThanksCancer
Bill Gates tells G20 world leaders that 'death commissions' will soon be needed
According to Gates, in the near future such commissions will be needed to end the lives of sick and unhealthy people due to " very, very high medical costs ."
Gates went on to explain that " the
@EvelynE04265048
@ThanksCancer
Sadly having cancer has also financially crippled me and my regular dentist has dropped all NHS patients for private only.
Implants are a pipe dream at the moment 😔
Cancer messes with your mind !!
Get a call booking me in for Surgery to remove it. It was inoperable so I am surprised but overjoyed.
2 days later a call to cancel it as the scans were not good and it's still inoperable. Cruelty in a nutshell.
@ThanksCancer
#Cancer
I thought Carcinomies would all be trying to one up each other, with who's C is bigger or my C is worse than yours. Turns out they are all cool people !
@ThanksCancer
@ThanksCancer
2023 is gone !
Sting in the tail was catching COVID on the 29th and cancelling the New Year Party to isolate.
2024.. phone call from the Cancer team.
The PVE worked, Liver has grown & tumor has shrunk.
Full right lobe liver resection on the 18th.
Fuck you cancer
Paid a visit to Whipsnade Zoo this week.
This perfectly represents my argument with my Cancer at this moment in time.
One of us has to win, I hope it's me !!
@ThanksCancer
#fuckcancer
Looking forward to our new top brass talent spotters actually bringing in talent !
For the 1st time in a while I don't care about the names..these guys know what they are doing .
Boy have we bought some dross over the years
#AVFC
#UTV
@snufflewort
I'm 52 on June 30th, so so glad it's a Sunday as I was panicking I would be "in the chair" for it.
Just surround yourself with your favourite people, then it doesn't matter where you are 💚💚