Shift.ms/Adrian @shiftms Twitter profile

Last Seen Profiles

@__Sharyf

@guangzhoukeyue2

@ryanmcdevitt

@no111ordinary

@karenva95571041

@archinei

@TheAdele32

@moreira_willlll

@CGarbally

@stw46

@Magazine_SV

@zeyneb576853244

@binor40

@Shahules786

@Rodrigobaer

@avika_n_joy

@kosmic_angst

@KOH_KIRA

@nickgriggs4321

@asikoma777

@maligirlfriend

@milkyuez

@jandakembangstw

@Toptierteeth

@AOT_Sanrio

@AInfiniteTV

@lovesunwing1

@MemesOficiial

@HunterHall75902

@Rovsen24061988

@nono_moshi

@BinorRaja

@Diane2V

@urmiiiiiiiii

@SICKSADWOC

@Axum_Gaz

Shift.ms/Adrian

@shiftms

4 years

Lately, every day. #fighter

9

38

160

Shift.ms/Adrian

@shiftms

5 years

Does anyone else find that their MS makes them more emotional than usual? Fatigue hits and I feel like I could spend the next year crying...

27

10

144

Shift.ms/Adrian

@shiftms

2 years

So I thought I would introduce myself properly today. My name is Helen and I've just transitioned from RRMS to SPMS. I was absolutely terrified of this moment but it actually worked out quite well for me. I'm wondering what people's views/feelings are about SPMS in general?

43

0

137

Shift.ms/Adrian

@shiftms

5 years

I’ve always hated the whole “I have MS, but MS doesn’t have me” trope. It’s trite. There’s no cure, so MS has you. Sorry. Let’s change the narrative. How about “I have MS, but MS is NOT ME”?

34

16

135

Shift.ms/Adrian

@shiftms

1 year

I'm @ChrisBrWriter , and I'm doing a weekend takeover. I'm a nurse and writer from London. I was diagnosed with relapsing remitting MS in January 2020 (timing, huh?). Here's me and my poodle sidekick, Frida. I'll be tweeting throughout the weekend. Good to meet you all.

19

1

128

Shift.ms/Adrian

@shiftms

5 years

Let me introduce myself for those who haven’t ‘met’ me before. My name is Emma, I am 37 & have been diagnosed with MS for 13 yrs.I am a single mum to a 10yr old girl.I was medically retired as a primary school teacher last year & am currently readjusting to my new way of life 😃

24

7

121

Shift.ms/Adrian

@shiftms

4 years

Does anyone else find themselves bumping into stationary things - for me the stair banister, door frames and wall corners, often find random bruises which I don’t remember when or how I got them #mslife #clumsy

33

14

115

Shift.ms/Adrian

@shiftms

4 years

There are several #mobility aids available. This is me using the #hip flexor assist device. It lifts my #leg , helps prevent my #knee from bending backwards and stops #footdrop . #MSLife

14

12

115

Shift.ms/Adrian

@shiftms

6 years

Really wish they had a medical solution for guilt. I hate having to say no to going to the park because my body is tired, I hate having to leave the cooking to my husband because I can't hold anything tight. Sometimes the guilt is as overwhelming as the MS 🙄 #MS #NoTwoTheSame

15

16

111

Shift.ms/Adrian

@shiftms

4 years

This.

2

38

114

Shift.ms/Adrian

@shiftms

6 months

I had some good news last week. No evidence of disease activity on my latest MRI. Always good news 🎉 and that's 6 years now! But also, does it not drive you mad having to explain to people that what it actually means is 'I still feel like shit, I'm just not getting shitter'?

12

3

108

Shift.ms/Adrian

@shiftms

1 year

After diagnosis, I went down a bit of a research rabbit hole for about a year. I am not sure how helpful this was in hindsight. However, I have consistently found the video and newsletter content from these guys invaluable in breaking down a wide range of topics that affect us:

18

6

106

Shift.ms/Adrian

@shiftms

1 year

"Anybody else struggle with MS memory and speech problems? Lately, I've had trouble remembering things from everyday life and expressing myself. The words are in my head but just won't come out. Anyone else experiencing this?"

23

6

102

Shift.ms/Adrian

@shiftms

4 years

We're total badasses - Cat - #FridayFeels

5

16

101

Shift.ms/Adrian

@shiftms

4 years

This is Cooper. I’ve never had a dog but living with MS, I wanted some unconditional love. Do you have a four legged family member giving you some extra love love? 🐶🐱🐹🐰

50

7

101

Shift.ms/Adrian

@shiftms

1 year

When I was first diagnosed with #MS , my MS nurse suggested it could take years to come to terms with the diagnosis. I'm 6 yrs in and still don't think I fully get it. Anyone feel the same??

36

1

98

Shift.ms/Adrian

@shiftms

3 years

Evening everyone, how are you doing? This isn't my first rodeo but for those I've not connected with before, hi! I'm Jo DX just gone 4 years. RRMS, Lemtrada is doing it's thing and I live in Greater Manchester with my husband and dog!

19

1

94

Shift.ms/Adrian

@shiftms

1 year

It's World MS Day! Unveiling our #WhatMSLooksLike video, a compilation of inspiring stories from our MS community. MS doesn't look any one way - let's celebrate diversity and challenge misconceptions 👉

2

33

89

Shift.ms/Adrian

@shiftms

4 years

"You don't look like you're ill" 👀 🙄 Many MS symptoms are not visible, which means that as a community, we've heard a fair share of comments from people who just don't get it 😩 Am I right?! #InvisibleDisabilitiesWeek #IAmInvisibleNoMore #invisibledisabilities

18

43

89

Shift.ms/Adrian

@shiftms

9 months

No more tears left to cry 😢 👉 #MSWarrior #InvisibleIllness #ShiftMS

5

7

88

Shift.ms/Adrian

@shiftms

3 years

Morning all 😋 Last night reminded me of my trip to LA several years ago. You wouldn’t know it, but I had optic neuritis in this pic. It was blinding and epically painful. 👁 Anyone else suffered this or have a ‘non visible’ disability that can be difficult to understand?

21

4

89

Shift.ms/Adrian

@shiftms

4 years

Hands up if you know what this means 🙋🏻‍♀️🙋🏻‍♀️🙋🏻‍♀️🙋🏻‍♀️

17

4

88

Shift.ms/Adrian

@shiftms

5 years

Awake, aching and buzzing. So tired. Will shut up about it shortly but so much #teamwork and ingenuity to get me round each obstacle. Started with ‘just’ my friends and upUgo colleagues. Then strangers, volunteers, everyone... #toughmudder #msawareness #NoTwoTheSame

7

11

87

Shift.ms/Adrian

@shiftms

4 years

🚨 BREAKING 🚨 How will #coronavirus impact people living with MS? 🦠 MS Reporter Dominic put questions from the community to Professor @GavinGiovannoni to get answers to your questions🎙️❔ Watch the interview here 👉 #COVID19

12

65

88

Shift.ms/Adrian

@shiftms

5 years

Helllloo everyone! Welcome to my Twitter Takeover shift for Shift MS! A little bit about me: I’m a long term MSer who was diagnosed over 25 years ago aged 15. I have two kids and love coffee, sleep, cocktails, reading and crochet. Happy weekend!

20

4

88

Shift.ms/Adrian

@shiftms

3 years

I still find some people’s reactions difficult when I say I have MS I’ve had “where’s your wheelchair” or “but you look fine”

19

8

87

Shift.ms/Adrian

@shiftms

4 years

Ocrivus is my saviour! One day in hospital which I actually love as it’s a day of peace and quiet. No relapses since starting just over a year ago. How lucky are we to have our amazing #nhs 💗

12

0

88

Shift.ms/Adrian

@shiftms

1 year

Sometimes the truth hurts 🤷 👉 #MSWarrior #InvisibleIllness #ShiftMS

6

14

82

Shift.ms/Adrian

@shiftms

4 years

"MS taught me to value things that I took for granted. Like holding a pen, walking, being awake past 9PM, etc. "Handle MS with as much dark humor as possible. When I look at the tattoo under my collarbone, which says “invincible”.. I realise I really am." - Karolina, USA 🌍📍

5

8

80

Shift.ms/Adrian

@shiftms

3 years

Without my husband,I would not have coped with my diagnosis. He is my wall and support. When I was diagnosed, I told my husband that if you leave,I will understand you. He took offense and said that at the wedding he had given me an oath "in grief and joy" and he would keep it.

13

1

85

Shift.ms/Adrian

@shiftms

5 years

#Donations for #MultipleSclerosis #Research is always welcome! I was #shocked when I had seen this! What was your reaction?

8

7

83

Shift.ms/Adrian

@shiftms

8 months

4

2

83

Shift.ms/Adrian

@shiftms

4 years

I’ve just realised that it’s 6 weeks since I left the house due to #lockdownuk but as yet I’m not going stir crazy. If #MS has prepared me for anything it’s definitely this

13

7

81

Shift.ms/Adrian

@shiftms

10 months

Has anyone else given up work because of their ms? I miss working terribly and the income 😔

31

3

83

Shift.ms/Adrian

@shiftms

4 years

Does anyone else have speech issues? When I’m really tired or very stressed (happens due to work) I can’t get words out and particular letters are super hard like M and N or all the words get stuck, please tell me I’m not alone

51

5

80

Shift.ms/Adrian

@shiftms

2 years

I do get some strange things said to me when I tell people I’ve got MS from “why are you not in a wheelchair” or “you don’t look ill”

25

2

77

Shift.ms/Adrian

@shiftms

7 months

Morning ms'ers, WK 1 Run 1 Couchto5k completed! #whilsticaniwill #dosomethingdifferent #feelingproud

13

0

80

Shift.ms/Adrian

@shiftms

5 years

Because a lot of people don't understand what MS actually is and how it feels, it's easy for people to say the wrong thing... 😩 As part of #InvisibleDisabilitiesWeek tell us what thing has someone said that's made your eyes roll? 👀 "Yeah, I get quite tired too..." 🙄

37

27

78

Shift.ms/Adrian

@shiftms

5 years

Since your MS diagnosis, have you found yourself apologizing more than usual (for things that shouldn’t require one)? EX: “I’m sorry for moving so slow”; etc.

47

8

79

Shift.ms/Adrian

@shiftms

5 years

I've not had the best week but I did get my MRI results today no new lesions so that made my day

5

1

80

Shift.ms/Adrian

@shiftms

5 years

Ever have to explain Feeling tired vs. being fatigued?

8

31

77

Shift.ms/Adrian

@shiftms

1 year

"I wish I started exercising earlier after my MS diagnosis!" It's like a downpayment on my future self. Keeping moving=keeping moving.💪 Do you agree? How do you keep fit with MS? 👇

28

3

79

Shift.ms/Adrian

@shiftms

5 years

SHOUT TO MY DOG, COOPER!! I got him because life and career ambitions and having #MS was a lot to deal with and I wanted something to give me unconditional love. Do you have a furry friend to help you through it all? Follow him on Instagram @CoopTheFloof 🐶

25

4

77

Shift.ms/Adrian

@shiftms

1 year

I had some MRI results back from November a few weeks ago (yes, I know...slow!) I'm pleased to say that almost 5 years after my first round of Lemtrada, I have no evidence of disease activity. However, I still feel worse than that day. How relatable is this for you?

26

1

76

Shift.ms/Adrian

@shiftms

7 months

Hi all! Excited to chat all things MS as I take over for the weekend. My name is Kylin and I am a proud member of Gen Z (with MS💁‍♀️). I’m based in Seattle but I’m on vacation in San Diego, CA, and I am soaking up all the Vitamin D possible! What are your weekend plans? 🧵

25

2

76

Shift.ms/Adrian

@shiftms

5 years

Does anyone find it difficult to be honest about their pain/symptoms with their family, even their spouse? Whatever the reason - Mine is I don't want to be a bother and seem like I am always complaining. -M #NoTwoTheSame #MultipleSclerosis #honesty #pain #relationships #family

12

8

76

Shift.ms/Adrian

@shiftms

4 years

Misunderstanding of MS is common, often family members, friends & others who we love just don't get it 😕🤷‍♀️ But how can we expect them to get it when we don't talk about MS? Sidecar is a film exploring the pressures of advanced MS. Watch ➡️

7

31

72

Shift.ms/Adrian

@shiftms

3 years

I have noticed when the fatigue gets bad my brain gets overwhelmed easily and i can’t think clearly

10

6

75

Shift.ms/Adrian

@shiftms

2 years

Has anyone else experienced this before? Like you can't judge how far your feet are from the floor? 🥾

7

16

74

Shift.ms/Adrian

@shiftms

5 years

MS nurses play an integral role in many MS teams 👩‍⚕️ so we decided to put together A.M. as a thank you to MS nurses from the community🙏🎥 Watch A.M. here 👉 #AMnurses

8

17

70

Shift.ms/Adrian

@shiftms

5 years

What’s your hardest hitting symptom? Heat intolerance be having me like:

24

10

74

Shift.ms/Adrian

@shiftms

3 months

Repeat after me... MS can be different for everyone❗ How do you deal with comments like this? Let us know in the comments👇 👉 #MSWarrior #InvisibleIllness #ShiftMS

25

9

76

Shift.ms/Adrian

@shiftms

1 year

I've attached a photo of multiple sclerosis symptoms (which I notice numbness is missing and probably my strongest symptom). I was wondering if anybody has ever found an easy way to explain it to somebody with no idea what it is, I am never sure how to explain it succinctly.

25

17

73

Shift.ms/Adrian

@shiftms

2 years

How would you describe how MS fatigue feels? #MultipleSclerosis Happy MS Awareness Month 💚 Looking forward to seeing some awesome content from the community this month. Click here to join our community, ran by MSers, for MSers:

19

17

72

Shift.ms/Adrian

@shiftms

4 years

Me after walking farther than I should have. What GIFs can illustrate some of your symptoms? #MSbeLike

36

3

70

Shift.ms/Adrian

@shiftms

5 years

Good evening everyone. My name is Cathy Howard and I am taking over @shiftms until Monday morning. I have secondary progressive MS and my daughter has Highly Active MS. I’m open to any MS questions you might have. I’ll try not to be boring #MS #MSLife

16

7

72

Shift.ms/Adrian

@shiftms

2 years

Quick update on me… diagnosed 2018 with relapsing remitting MS, started Lemtrada pretty quickly, round 1 & 2, failed Lemtrada. Approved for #HSCT late 2021, transplanted June 2022. I’m now six months post and doing really well. Happy to answer any questions, including hair q 🤣

11

1

73

Shift.ms/Adrian

@shiftms

4 years

New question. If you could get rid of 1 MS symptom, what would it be? For me it would be weakness. I’d love to be able to walk again.Among other things.

68

3

71

Shift.ms/Adrian

@shiftms

1 year

MS gives me some weird sensations: the army of ants with their feet dipped in chilli who march up and down my legs, the ghost spiders who wander across my face, the phantom tennis ball that hits the back of my leg and the invisible puddle I've stepped in. Maybe I'm just haunted.

19

3

71

Shift.ms/Adrian

@shiftms

1 year

I’m talking about vices tonight. To drink or not to drink that is the question I have cut down lots, not just because of MS but because I’m wild even without a drink but I do love sitting in the garden with a beer in the Summer What’s your view? Any value in eliminating it?

54

1

70

Shift.ms/Adrian

@shiftms

1 year

Also want to give a shout out to all the Neuro Physical Therapists! My PT has helped me understand exactly what is wrong with my gait, why it's happening, and what we're going to do about it! What has PT done for you? #NoTwoTheSame #MS #PT #MultipleSclerosis

18

3

70

Shift.ms/Adrian

@shiftms

5 years

Hello! From a very wet and windy Wales. I’m Ailsa (not Elsa) and this is my second time hosting Shift MS. I’m 23 (😂) and when I grow up I want to be a YouTuber. Only joking, I’m married with four sons and a beagle called Daisy. I was diagnosed with RRMS in 2018. Introductions...

30

4

71

Shift.ms/Adrian

@shiftms

9 months

Greetings from Washington, DC! I am Rebecca, the stunning brunette in the chair below. My 20th MS anniversary is April 2024. My 15th anniversary with my favorite mobility aid (the guy, not the wheelchair) was in October.

5

2

71

Shift.ms/Adrian

@shiftms

2 years

It is difficult living with MS some days are hard

6

2

71

Shift.ms/Adrian

@shiftms

6 years

Because a lot of people don't understand what MS actually is and how it feels, it's easy for non-MSers to say the wrong thing. What thing has someone said that's made your eyes roll the most? 🙄 "Yeah, I get quite tired too.." / "You don't look like you're ill"

50

12

67

Shift.ms/Adrian

@shiftms

5 years

Has MS ever made you feel weird? 😜

18

23

69

Shift.ms/Adrian

@shiftms

5 years

Today the team are celebrating the charity's 10th birthday with cake, party poppers & party hats! 10 years ago @gpeps and @freddieyauner set up to support people recently diagnosed with MS, last week the network hit 20,000 members.

14

69

Shift.ms/Adrian

@shiftms

6 months

So here goes: I am 31 with RRMS diagnosed in 2019. I am married and have a dog called Rufus (see picture), and a 17 month old son. I am scientist and I currently am prescribed Ocrevus. I am VERY fortunate that MS does not currently limit what I can do.

8

2

69

Shift.ms/Adrian

@shiftms

3 years

I don't know about you, but I HATE (yes, it's that extreme) when people tell me to "get well soon" (if I'm recovering from something MS-related). Ugh. 😫

13

4

69

Shift.ms/Adrian

@shiftms

4 years

It’s hard for me to believe that I have MS. But I'm sure my diagnosis made me look back to see how I lived before.🤦 And I started to do what I always put off - I started traveling, I got a tattoo😃

8

5

70

Shift.ms/Adrian

@shiftms

2 years

I’ve bitten the bullet and made an appointment with a medical cannabis clinic in the New Year, my NHS Trust isn’t one that supports Sativex so I’m “going it alone”. I don’t tolerate mainstream drug’s very well so I’m hoping they can help me 🤞🤞🤞 #MS

16

2

68

Shift.ms/Adrian

@shiftms

5 years

This bothers me. When I see a new lesion on my scans, the last thing I do (personally) is try to pretend it’s cute (this is after 15 years of this shit). “Bright idea” my ass. 🙄 What are your thoughts? Am I being too “sensitive”?

39

11

64

Shift.ms/Adrian

@shiftms

5 years

I have MS and MS DEFINITELY has me. It’ll have me until there’s a cure. That said, though...I have MS, but MS is NOT ME. It does not define me. I am not MS. There’s a difference.

6

11

65

Shift.ms/Adrian

@shiftms

3 years

Ah yes...tell me more 😹

Must Stop MS!

@MustStopMS

3 years

MS humor

5

21

110

2

8

66

Shift.ms/Adrian

@shiftms

3 years

What's the most valuable life lesson you've learned since being diagnosed with MS? For me it's: DO IT NOW. ♥️ MS has taught me not to take any moment for granted. It sounds cheesy, but it's true.

16

2

68

Shift.ms/Adrian

@shiftms

1 year

Do sometimes feel with MS that it’s never ending hospital appointments , scans, treatment ,blood tests the list goes on

11

5

66

Shift.ms/Adrian

@shiftms

1 year

I am now on Ocrevus, which I have a love-hate relationship with (I realise I am privileged to have access to DMTs). Infusion days are always good practice for my Turkish 😉 If you’re on a DMT, are you happy with it?

21

1

65

Shift.ms/Adrian

@shiftms

6 years

Some pretty huge news here in the UK "Medical cannabis to be available on prescription in UK after being approved for use by government"

7

21

66

Shift.ms/Adrian

@shiftms

4 years

One symptom I suffer from is cog fog sometimes when people are talking to me my brain get overwhelmed and I can’t take in what they are saying

14

6

67

Shift.ms/Adrian

@shiftms

3 years

Living with MS I have lost my ability to do the work I once did. This was very difficult for me to handle, but it was starting my blog, which helped me find a new purpose in life. Now I use my experience to help researchers, pharmaceutical companies and EU projects about health.

6

2

64

Shift.ms/Adrian

@shiftms

2 years

My biggest problem is fatigue I never have much energy and it makes life difficult some days are a struggle

13

3

65

Shift.ms/Adrian

@shiftms

2 years

Hi fellow MSers! My name is Rae, I’m a writer/theatre maker from Brum. I’ve had MS for almost 20 years. I’m a mum of two&lover of all things bright&colourful. I genuinely find that colour helps lift my energy &mood. What little things help make your day a little easier? 🌈⭐️

16

0

64

Shift.ms/Adrian

@shiftms

1 year

Good evening everyone. I am Anna from Kyiv, Ukraine and we will spend this weekend together. I hope you will be interested with me.🤞

15

3

66

Shift.ms/Adrian

@shiftms

4 years

Now that we are in the delay phase of this pandemic we have to prepare ourselves. Because of my bonus illnesses I have been asked (probably more like required) by my family to isolate myself as much as possible. This won’t be much different to my usual life. What are your plans?

28

4

63

Shift.ms/Adrian

@shiftms

6 years

Fatigue sucks! Did you know that 60% of MSers state that it's the symptom that affects their life the most? When a wave of fatigue washes over you, what do you do?

27

21

63

Shift.ms/Adrian

@shiftms

5 years

This is just a short snippet of my daughter in her first ever swimming gala (black hat). One proud mummy tonight. I will not let MS dictate what I can be a part of or not and there was no way I was missing this #MSwarrior #strength #family

8

1

65

Shift.ms/Adrian

@shiftms

3 years

I managed to walk for 30 minutes and a distance of 1.2 kilometres. This was a short walk, with the second 0.6 km taking much longer to walk Managed to meet a donkey on the way too Even though it is really hard work, it keeps my legs working, which means I’ll walk another day

3

2

64

Shift.ms/Adrian

@shiftms

2 years

Hello fellow MSers and thanks for the welcome. I’m Andrew, I live in Buckinghamshire and as well as being a bouncy castle/climbing frame for 2 small children I work as the comms manager for a small charity. Just finishing work now so will tweet more when I get home! 👋

10

0

60

Shift.ms/Adrian

@shiftms

3 years

No disrespect to anyone who embraces it, but I've always shied away from the "I have MS, but MS doesn't have me" statement. I prefer "I have MS, but MS IS NOT ME". There's a qualitative difference, I think.

9

4

65

Shift.ms/Adrian

@shiftms

2 years

Good morning everyone! Happy Saturday! Any big plans for the day? Here’s a photo of my cat Dracula!

13

1

63

Shift.ms/Adrian

@shiftms

3 years

California takeover! Hey there, I was dx in Feb 2020 with primary progressive ms. It's been aggressive (already an EDSS of 6 yikes), but I'm proactive and trying to do all the things!! I live in the SF Bay area, married with a 12 and 10 year old. I'm a big fan of mobility aids!

10

0

62

Shift.ms/Adrian

@shiftms

4 years

Last week I spent 5 days in hospital to get IV methyl prednisone to help me with my walking. I am home for a week now and the treatment really helped. My #walking is so much better plus I have a new walking aid “Hip flexion assist device” #strongertogethershiftMS

2

3

63

Shift.ms/Adrian

@shiftms

3 years

What’s everyone’s biggest annoying MS symptom - mine is fatigue I could sleep on a washing line, hate feeling drained all the time

34

0

64

Shift.ms/Adrian

@shiftms

4 years

Sound like a familiar routine to anyone else? 🤪

10

6

62

Shift.ms/Adrian

@shiftms

4 years

Hi, everybody, I'm Anna. I'm from Kiev, Ukraine.🇺🇦 I'm very happy to take Twitter this weekend. I think it'll be fun😀. P.S. English is not my mother tongue, if there are any mistakes in the text, I apologize in advance🙄

11

2

61

Shift.ms/Adrian

@shiftms

5 years

My REAL name is Amy. I'm 40 something former teacher and divorced mother of 1 teenage son. I was born and raised in Michigan, USA. For those on the other side of the globe, we're the state that looks like a mitten. Appropriately so, as we have LONG winters. Where's everyone from?

81

5

62