I might sound like an asshole but even though my grief brings me to my knees on a daily basis, I actually feel sorry for the people in my life who want me to move on. If you can’t understand why I am still grieving my aunt barb, maybe you have just never known a love like ours.
You want proof about capitalism killing disabled people?? Two weeks ago, KN95 masks on Amazon were $12.99 for a 30pk. Today that same 30pk is $61.95, because of demand increasing. I’m on disability support. Realistically, I cannot afford that. & neither can most disabled ppl.
@evermcrc
This is the real reason why the moment she looks happiest on stage is when she pulls her earpieces out to hear the cheering after champagne problems 💀
@this1wierdgirl
^^ this. Also, delivery of basics like groceries are more expensive than buying them in person. Not to mention that disabled/immunocompromised ppl should not have to isolate forever just bc others are too selfish to help stop the spread.
I did not expect this to blow up the way it did. I really appreciate everyone RT’ing + talking about the many deep-seated inequities facing marginalized communities, particularly the
#Disabled
community, during the pandemic, especially w/ Omicron. I also appreciate the mask recs.
I’ve had some people DM me asking if they can send mutual aid.
I’m a mature student and this is my first Xmas living alone. Disability support barely covers rent. So while I feel weird about this, any support would be helpful for utilities, food & PPE:
@YaboiDom14
@LeftAtLondon
Do you want a prize for missing the point or...? Yes, of course it’s the same price for everyone, but where I live, ppl on disability support live ~40% below the poverty line. It’s the same price for everyone but disabled people are extremely likely to not be able to afford it
Omicron is highly contagious, and ppl should not have to risk illness & death b/c they can’t make bail. Many of these ppl are already members of marginalized communities, & most don’t have access to proper PPE/social distancing. So let’s keep ppl out of jail w/
@bailfundnetwork
.
There are also some great places to donate if you’re feeling generous this holiday season: what comes to mind rn are
@projectn95
, a nonprofit I’ve just become aware of, and
@bailfundnetwork
.
I think I’m getting old…are there people who don’t know about Jonestown??? (also— it was Flavor-aid, not Koolaid. if you haven’t already listened to the entire back catalogue of
@yourewrongabout
, get on that asap)
Also great, as always, to donate to food banks, groups in your area aiding houseless folks, as well as those in your community seeking mutual aid.
And as always, get your boosters if you can, wear the best PPE you can afford, and eat the rich. Take care of each other xoxo ♥️✨
seriously, this. the pandemic allowed me as a disabled woman to participate in life again, to go back to school, to feel included. now that we’re pretending it’s over, it feels like it’s all being taken away…and for what???
Genuinely bitter that people are insisting on doing things in person-only again. Was really hoping the accessibility of virtual events would be embraced as a part of this new pandemicine normal, but...
hi
@jk_rowling
I know you wrote the books that made me love reading and defined my childhood but I am BEGGING you to shut the fuck up about trans people, who are valid and needed and far braver than you are, sitting behind a computer and attacking them.
just feeling fucking hopeless. within a few years it’ll be easier for me to get
#MAiD
than to live in this city. honestly, it might already be. so I’m disabled enough for a dignified death but not enough to be given the supports necessary to live? absolutely fucking horrific.
(also feel the need to remind some people* that not everyone (or me) is located in the US!!)
*most ppl are being totally lovely but some are being ableist trash which, I suppose, is to be expected
@vivafalastin
Hey. So. I understand that your community is feeling a lot of pain right now and I’m so sorry. This massacre was perpetrated by a white aupremacist. And
@ChelseaClinton
is emphatically not a white supremacist. You should be angry, but not at her.
@taylgbtswift
I think they were written in that era but most of them (other than a few of the fearless/speak now ones) were never fully finished in terms of recording, so she and Jack/Aaron have had to rework the sounds and production which makes them sound more like her current stuff.
#DisabledPeopleAreHot
~ I don’t self identify as ‘hot’ lol but I’m here for disabled representation!! Also, some of us pass as able bodied but that doesn’t erase our disability. Xo
it’s officially impossible to find anywhere to live within a 20 min walk of my university campus under $1500/month (unless it’s like a den or something). how the fuck are students supposed to afford that???
#HousingCrisis
Being this fucking poor means having to make hard choices. This week it is between buying food or buying the textbook for my course. Living like this is scary and depressing and lonely. I don’t know how to make the people around me understand so I just avoid talking.
#ODSPoverty
@sam213Ra
@rockstarronan
I know this message was super well intentioned and pls don’t take this personally but pls in the future don’t tell anyone who is grieving that their person is in a better place. The best possible place for him was here, with his mom who loved and cared for him so well.
@NilaJones3
I don’t know where you’re located, but I can’t find those on Amazon in Canada. KN95’s are a bit more comfortable for me (I have a disorder that causes facial pain) have nearly the same protection so I prefer those, but I’d check out the Honeywell N95’s if you could send a link.
got a letter saying my
#ODSP
file has been put on hold because I haven’t reported income. I’ve never reported any income, because I’ve never had any, and when I went online to check it out it wouldn’t even let me because I don’t have any sources of income listed…what the fuck???
if I don’t have private insurance, can I get eye care? no. can I get dental care? no. can I see a therapist? LOL no. can I get physical therapy? no. can I get any alternative therapies? no. can I get pharmacare? only in extremely limited situations and you’ll have to fight for it
I mean sure, no one here is going broke because of a long hospital stay or an ER visit or because they’ve been diagnosed with cancer. but if you’re disabled? you’re fucked. if you have mental illness that needs treatment? fucked. and so on
as someone who has (a) been overweight her whole life and (b) suffered with a (sometimes severe) eating disorder since I was eleven, this episode was so so validating. thx
@MaintenancePod
for doing the good work.
being poor and multiply-marginalized means being reminded over and over again that no one is ever going to be as generous or as considerate to a poor and multiply-marginalized person as other poor and marginalized folks.
@vvictorman_uel
I’m so sorry. I’ve been there. Parents who are incapable of empathy and resent you and refuse to believe that you are doing the best you can and are truly feeling as badly as you say. Sending strength. Is there any way you can get out of that environment?
sorry but I am very possibly losing my private health insurance for at least a 3 month period of time come June, because I’m not in what the insurer considers “full time classes” (even though my school considers it full time!!!)—
my head hurts and my executive dysfunction is crippling and I just feel shitty and I have ‘adulting’ crap in my apartment I have to deal with and I have to see family today and I don’t want to deal with them and I can’t sleep and I’m just sad. idk why but I’m really sad.
— so that monthly injection that costs $800 every month (capitalism needs to die, but anyway...) and seriously improves my migraine and my QOL? yeah well I might be screwed come my birthday in June. this is not at all causing a mental breakdown, no siree
if you need me I’ll just be here seething with rage over what this prick on quora wrote re:migraines in response to a question I searched about flying with
#migraine
.
#ableism
so excited to announce that my poetry collection THE SLOW CLIMB is available today!!
this collection of 70+ poems explores themes of mental and chronic illness, love, divorce, body image, grief & healing.
available at the link in my bio ✨✨✨
much love to the lady at the grocery store this afternoon who, after defending a cashier against racist remarks, got into a shouting match with the guy who said them and answered his shout of “you’re a communist!” with “you bet I am, motherfucker!!!” 🥰🥰🥰
week one Emgality updates:
I have felt so, so freaking good this week— and I didn’t expect to!!
Only had one bad night, barely needed meds, pain has been super low, got to enjoy a day full of triggers on Xmas and came out unscathed!!!
Praying it continues like this 🤞🏻🤞🏻🤞🏻
anyone else here suffer from awful motion sickness? it’s gotten worse as my migraine has. I used to be able to ride bus/trains no problem and now I feel sick just sitting in the front seat of the car and can’t even think about a bus without taking meds first. any tips?
#NEISvoid
In the end it comes down to this.
If the claims against
#Kavanaugh
are false, he has nothing to fear from a polygraph/FBI investigation, which all three women accusing him have asked for.
Him refusing both are indicators of his guilt.
#IBelieveDrFord
, and you should too.
anyway. supposed to get my benefits next week but I guess !!! that will not be happening until I can deal with this with my caseworker (an infamously slow process). just gonna go panic about how I’m not going to be able to make rent or pay my bills or literally anything.
@kiranfatimaopal
like damn have you not heard of disability, chronic illness, food insecurity??? what about ppl who work 2-3 jobs and actually do not have time to go to the gym, or can’t afford “healthy” food? the ableism and anti-fat bias and privilege in this thread is kinda astounding.
@aletoowelll
@swifferwins
it’s so interesting how people have such different opinions on the re-recorded songs because New Romantics is def my favourite on TV and definitely in my top 3 re-recorded songs in her discography. I feel like it sounds so much crisper and the nostalgia adds so much heart!!
@kiranfatimaopal
there are more ways to be useful to a movement than just physically. your version of leftist politics blatantly and profoundly ignores the presence and voices of disabled people. maybe skip arm day or whatever and go to a library or something…
I’m pretty heat intolerant (in large part I believe due to meds/possible thyroid issues)— and my apartment building hasn’t turned on the a/c yet (it was 30 C/86 F today). Anyone have any tips for keeping cool/temp regulated? Get nauseous, shaky, triggers migraines, etc
#NEISvoid
trying to remind myself:
✨you can do hard things
✨this is difficult but you’re strong enough to get through this
✨feel the fear and do it anyway
✨one minute at a time.
#mindfulness
#anxiety
#chronicpain
three weeks into month one of
#Aimovig
as of yesterday. no pain free days but I seem to have less nausea overall, more energy and so far 7 markedly low pain days (compared to zero in December). I’ll take it. So excited to go up to 140 next week & see how much that helps me.
@kiranfatimaopal
also, kinda insane to be talking about how “there’s no excuse not to be strengthening your body daily” (which, again…there actually is lmao) and not once in this thread mentioning taking covid precautions like wearing high quality masks!!! covid is a leftist issue
hey, guys. I hate to do this but my bills are due and everything in my account won’t even fully cover rent. this includes:
— $225 low on rent
— $87.71 hydro
— $107.05 phone bill
— $61.21 Internet
any help would be appreciated. pls like/rt/share ♥️
#mutualaid
#ODSPoverty
watching the ppl you went to high school with become anti-vaxxers is wild tbh. like Stacy you literally helped me study for my bio exam, I know you know better than this
yesterday I found out that my pain management dr has decided to just drop me as a patient. won’t let me schedule an appt or even give me a refill of a medication I’ve needed for a while. what the fuck.
#DoctorsAreDickheads
me tonight: I just feel so hopeless, the pain is so bad and constant and I don’t know what to do
my aunt: I’m so sorry. I don’t either. I feel so helpless because I don’t know how to help you. Please don’t ever forget how much I love you.
endlessly, endlessly grateful for her.
when I was 13 I found
@madisenkuhn
's poetry on tumblr and fell in love with her words. 5 years later and I am in awe of you & your talent. thank you for sharing these most vulnerable parts of yourself. when I'm on the bathroom floor panicking, your words make me feel less alone.
I found a voicemail recording from my aunt that I thought I’d deleted a long time ago and I never realized that I could feel such relief and such love and such grief all at the same time. tonight has been especially bad— just miss her desperately— but I’m so glad I found this.
@JoshMatlow
it was 30 degrees in my apartment today. I’m heat intolerant/struggle to regulate my temp due to chronic illness. My apartment building has a/c— the fact that the property managers haven’t had it turned on yet (w/ no ETA). This is hell.
sometimes the best thing someone can say when you’re in pain is that they don’t know how it feels, but they hear you and they love you and they know it’s hard.
you don’t always realize how rarely people validate your pain until it finally happens.
it’s been somewhere around 48 hours + I can’t sleep. I’ve been writing you a eulogy or a letter or something. watched a video of you over + over again. wept + begged for you to come back to me while holding our last photo together to my heart. this is agony. I miss u desperately
I wrote something of a long form answer to the question “how has migraine impacted your work/school?” I guess you could say I’m kind of bitter about it.
#MHAM
#migrainestigma
#SowingtheSeeds
@reidsresearch
Thomas Gibson— his real personality is so different from Hotch and he plays him so well. And just look @ his acting in 5x09 “100”, 10x21 “Mr. Scratch”, and more episodes I can’t even name— he’s just really, really good at what he does.
Made it to FL with very low pain & manageable anxiety, despite numerous travel delays and issues. A year ago I was so agoraphobic I couldn’t even ride in the car without multiple meds. So proud of myself today 💜
was anyone going to tell me that one of the main reasons why the German army was so powerful and tireless at the beginning of World War II was because all the soldiers were on crystal meth or was I just supposed to find this out for myself
I’ve gotten about 100 messages asking “are you ok” and I appreciate the concern but with all due respect, I am not ok now and I will never be ok in the same way again. my favourite person— my safe harbour— is gone. there is no universe where I could be ‘ok’ right now.
I’m having a rough day. I am trying not to talk about it as much, at least on social media, because it’s the same thing day in and day out and complaining about it makes me annoying and a bummer but fuck. Grief is just so heavy and every day I struggle to carry it.
— I need to get my hair done and face waxed to feel human again but I’m fully scared of the flare it’ll cause
— I feel like I’m behind in life
— I have to take benzos and antipsychotics just to calm my intense panic attacks from my agoraphobia
#MyDisabledReality
@swiftiesorority
@delicatelor
@taylorswift13
blind loyalty to any person or cause is a mistake. part of supporting anyone— whether it be someone you know personally or a public figure— means being able to give fair & gentle criticism & point out when they are making choices that are destructive to themselves and others
I’m starting on Emgality today! 💞💞💞 those of you on it, any side effects? any relief? how soon after the first dose did you notice either? thanks!
#emgality
#migraine
tonight my grandmother told me I’ve been “living an unnatural life”, in that I’ve been unable to work or study since becoming disabled by chronic
#migraine
.
My disability doesn’t make me, or my life, “unnatural”. I am just trying to get through the fucking day.
#ableism