CCF is pleased to award the Inaugural 2021 Poster Awards to Meredith Mason, Pashtoon Kasi, and Laurence Diggs. These award winners were honored for making significant contributions in driving progress towards finding a cure for cholangiocarcinoma through their posters.
#ccfac2021
CCF staff and volunteers are walking, talking, and collaborating at
#ASCO23
in Chicago. It’s an honor to do this work especially within a community of patients and caregivers who selflessly lead the charge in changing the course of this disease.
#curecca
💚
#curecca
#asco2023
James said “
@melinda_bachini
gives me hope.” He traveled all the way from Ireland 🇮🇪 to be here and this is his first time meeting others with CCA.
#ccfac24
Flavio Rocha, Shishir Maithel, Jennifer Knox and Stacie Lindsey at
@ASCO
#GI23
. Collaboration is 🔑 to help better patient outcomes for cholangiocarcinoma.
We are grateful
@staclinds
presented at the Embassy of Spain to the Ambassador and the Holy See about the importance of accurate diagnosis and classification of
#cholangiocarcinoma
.
Experts from 27 countries came together to help advance CCA research, treatment and care!
TODAY is World Cholangiocarcinoma Day, where the community will come together to shine a light on
#cholangiocarcinoma
(CCA). Make sure you use the hashtag
#WorldCCADay
and share where you are supporting from so we can see all your contributions!
We are thrilled to announce Juan Valle as CCF’s first-ever Chief Medical Officer. Dr. Valle will help chart the path forward and change the trajectory of this disease for patients. 💚💚
#ccfac23
Our Chief Patient Office
@melinda_bachini
had the opportunity to meet up with Dr.
@AnjanaPillaiMD
from the University of Chicago at the
@AHPBA
Conference in Miami. Dr. Pillai gave a wonderful presentation on Expanding Access to Transplant Organs.
#AHPBA24
Mayo Clinic's historic Plummer Building lit lime green on the evening of Friday, May 28, 2021 in support of the research in and patient care of cholangiocarcinoma, as part of the nationwide Journey of Hope.
@MayoClinic
#isawdave
#ccfturns15
#cholangiocarcinoma
4th Annual Cholangiocarcinoma Summit: Surgical approaches to biliary tract cancer (BTC) session with
@FlavioRochaMD
and Laleh Melstrom as moderators.
#CCASummit2022
#CCA2022
CCF is pleased to have another option available for our patients.
The Foundation commends FDA approval of TIBSOVO® as a new therapy for individuals with IDH1-mutated cholangiocarcinoma developed by
@ServierPharma
.
FEBRUARY is Cholangiocarcinoma Awareness Month, with February 12th marking
#WorldCCADay
.
Please review this toolkit to learn how to participate in this campaign: .
#greenforcca
#curecca
Dr. Lipika Goyal, a medical oncologist from Massachusetts general hospital, is currently discussing circulating tumor DNA, a type of Liquid biopsy, and it’s various clinical applications for biliary cancer patients.
#ccfac2020
TODAY is World Cholangiocarcinoma Day
#WorldCCADay
!
Please join the cholangio community to help others
#SeeCCA
. Make sure you use the hashtags
#WorldCCADay
and
#SeeCAA
in your posts so that CCF can see and share all of your contributions!
October is Liver Cancer Awareness Month! Did you know there are 3️⃣ types of
#cholangiocarcinoma
?
Staging is a way to describe how far the tumor has spread and to decide which treatment might be the most appropriate.
Learn more at .
#Octoberis4Livers
🌏💚TODAY is World Cholangiocarcinoma Day! This
#WorldCCADay
we’re shining a light on this disease and asking people to
#PledgeforCCA
to raise awareness. Make sure to use these hashtags in your posts so that CCF can share all of your contributions!
🟩FGFR2 fusions in
#CCA
are rare
🟩Pemigatinib offers meaningful benefits to CCA patients
🟩Pemigatinib was approved by
#HealthCanada
but remains unfunded
🟩Funded in US, not in Canada
🟩We will keep advocating for ALL patients globally for the best treatments & outcomes
Alone we can do so little; together, we can do so much. The foundation is enjoying meeting up with many outstanding individuals working together to
#curecca
.
@ASCO
#GI23
Dr. Pashtoon Kasi at
#ASCO23
presenting his poster on Liquid-biopsy detection of FGFR2 and other actionable rearrangements in GI malignancies.
Actionable rearrangements represent an emerging therapeutic target for GI malignancies.
#curecca
CCF supports
#RareDiseaseDay
, which takes place on the last day of Cholangiocarcinoma Awareness Month!
There are so many positive ongoing developments in the field of cholangiocarcinoma. Whether you are a patient or know a patient, there is more reason than ever to have hope.
2021 Annual Conference Registration is OPEN!
The Cholangiocarcinoma Foundation (CCF) is pleased to announce its 8th Annual Conference held virtually March 31 - April 2, 2021. Thanks to our generous conference sponsors, registration is free.
#ccfac2021
Dr. Katie Kelley & Dr. Tim Greten from have been awarded the 2024 CCF Innovation Grant, funded by the Bachrach Family Foundation. Their project aims to understand resistance in cholangiocarcinoma, potentially improving treatment outcomes. Learn more: .
🥳👏🏻We are pleased to share that Melinda Bachini has been promoted to Chief Patient Officer, joining our Executive Team.👏🏻🥳
Please join us in congratulating Melinda and wishing her much success in the future!
The Foundation is at
#GI23
@ASCO
this week! Please stop by booth 36 to learn about our mission to find a cure and improve the quality of life for cholangiocarcinoma patients. 💚
It is with great humility, gratitude, and love that we announce this year's Mark R. Clements award honorees. A small way to thank two outstanding people who have moved mountains for CCA patients. Congratulations to Renuka Iyer and Lisa Craine
#ccfac2021
Please join us this week for a free webinar to learn more about
#PrecisionMedicine
in
#cholangiocarcinoma
presented by Dr.
@MPishvaian
with Johns Hopkins University.
The webinar takes place on Thursday, August 10, 2023 at 4:00 p.m. ET. Register at .
Our Chief Patient Officer, Melinda Bachini’s story is full of HOPE.💚
“I want you to know you are part of this family, and there is strength in community and hope in research.
#ccfac24
Congratulations to this year's Research Fellowship Awardees. $550,000 in research grants were awarded by the Cholangiocarcinoma Foundation to fund early-career investigators at renowned institutions.
#ccfac22
#NationalDoctorsDay
"I would like to honor Dr. Goyal. During this last visit, she called me from her vacation to tell me my scans were stable. I have been in the medical field for 25 years now. There are only a handful of doctors that do that, in my experience!" -Kellie K.
CCF is at
#AACR23
. Please come visit Amy Payne at booth AP17 to learn more about the work CCF does to support cholangiocarcinoma patients and caregivers.
#Cholangiocarcinoma
Awareness Month is around the corner! Let’s work together this February to raise awareness! Follow our daily
#ccawareness
highlights and take part in our Light it Green for CC Campaign.
Surgical Approaches to Biliary Tract Cancer (BTC) discussion at the
#CCASummit2023
. These experts and professionals are sharing their knowledge and insights, fostering a collective understanding of cholangiocarcinoma and its treatment.
This evening, the CN Tower in Toronto will shine green for World Cholangiocarcinoma Day, recognizing the hope and challenges people living with this little-known type of cancer face.
#WorldCCADay
#PledgeforCCA
TOMORROW is
#WorldCCADay
! Cholangiocarcinoma is the second most common primary liver cancer worldwide, occurring in the bile duct. Sign the
#PledgeforCCA
and raise awareness for World CCA Day by spreading the word and encouraging others to sign our pledge.
#NationalDoctorsDay
"I am so thankful for Dr. Katie Kelly giving us hope. She is an excellent doctor and human. I know Dr. Kelly will continue to do excellent work and change the outcome of patients. From the bottom of my heart, thank you for caring for my mom." 💚 -Jeni
"This is a great opportunity to better understand CCA pathogenesis to find novel therapeutic approaches to improve the welfare and outcome of patients." - Paula Olaizola Rebé.
To learn more about CCF's 2023 Research Fellowship Awards, please visit .
Congratulations to Patty Maxin for receiving the President’s Volunteer Service Award for Lifetime Achievement. This award honors individuals who have given 4,000+ hours of service in their lifetime.
#ccfac23
Attending conferences like
@BioCanRx
’s
#Summit4CI
isn't just about learning—it's also about fostering collaboration that can transform healthcare. Together, we can find a cure for
#CCA
. 🤝💉🩺
Thank you,
@CcaEns
for the recognition of
@staclinds
and
@curecc
. Patients first is a core value that drives the daily efforts of the Foundation to improve the quality of life for everyone impacted by
#CCA
Jonathan Hernandez from
@NIH
shared clinical trials that are available to patients with
#cholangiocarcinoma
& some of the results from the trials. Thank you to all the patients who participate in clinical trials which contribute to the development of better treatments.
#ccfac24
Are you at the American Society of Clinical Oncology
@ASCO
conference in Chicago? If so, come visit the Cholangiocarcinoma Foundation at Booth
#13001
! We'd love to see you and want to share our latest resources.
We hope to see you soon.
#ASCO24
#ASCO2024
#CCAhope
On behalf of patients and families impacted by cholangiocarcinoma (bile duct cancer), the Cholangiocarcinoma Foundation congratulates AstraZeneca and its positive results from the TOPAZ-1 Phase III trial.
#curecca
Robert Redford is staying close to his family following the death of his son, James.
James died on Friday from bile-duct cancer in his liver at the age of 58. We send our condolences to the Redford family. 💚💚💚
Congratulations to
@rachnatshroff
for presenting a beautiful summary of the much awaited GAP study during the keynote
@ASCO
#GI23
. The definition of a successful trial: "Collaboration, coordination, & answers a meaningful question."👏🏻
An Op-Ed by our Founder & CEO
@staclinds
ran in some publications in the US this week and her message about unity in the face of challenges and hope fueled by research has us feeling inspired and ready for all 2024 holds
Read it here:
It is CCA Awareness Month, and in celebration of how far we have come, we are sharing our updated logo with you. We are elevating our brand to keep pace with the work of the CCF community while also maintaining the heart and soul that makes our organization unique. 💚
FDA Approves Incyte’s Pemazyre™ (pemigatinib) as First Targeted Treatment for Adults with Previously Treated, Unresectable Locally Advanced or Metastatic Cholangiocarcinoma.
#cholangiocarcinoma
#bileductcancer
#curecca
The Cholangiocarcinoma Foundation would like to join the rest of the world in recognizing World Cancer Day! It is only through collaboration as an entire world community that we can see the end of all cancers, including cholangiocarcinoma!
#ccawareness
#cholangiocarcinoma
A small way to thank three outstanding people who have moved mountains for CCA patients. Congratulations Sue, Dr. Javle, and Patty. Rewatch the video with the link below.
#ccfac2020
October is Liver Cancer Awareness Month!
Cholangiocarcinoma is the second most common liver cancer in the world and it is vital for this community to join in the conversation and learn more.
More info about CCA at .
#OctoberIs4Livers
#CCAhope
#cureCCA
@melinda_bachini
,
@staclinds
, and Juan Valle are attending the International Liver Transplantation Society Consensus in Valencia, Spain. Our team enjoyed presenting The Patient’s Perspective on Liver Transplantation for Hepatocellular, Carcinoma, and Intrahepatic CCA.
#CCAhope
📣On 1st & 2nd of February,
#DiCE
is attending the
#ILTSILCA2024
in Valencia 🇪🇸.
DiCE will, jointly with
@curecc
, present on The Patient’s Perspective on Liver Transplantation for Hepatocellular Carcinoma and Intrahepatic Cholangiocarcinoma.
👉
Join us now to learn more from
@rachnatshroff
about the GAP trial, a phase III randomized clinical trial for biliary tract cancer with the highest and fastest accrual rate.
It has been an honor to host the 6th Annual Asia-Pacific Cholangiocarcinoma Conference at Tata Memorial Hospital. We are glad to collaborate here in Mumbai on research advances and improved treatment options.
Together, we can change the course of this disease.
#cureCCA
Conference chair
@DrAngelaLamarca
is presenting an overview of the 2023 CCA research and a look ahead to the research happening in 2024.
“The more we learn, the more we know.”
The future is bright for cholangiocarcinoma.
#CCAhope
Our Chief Patient Officer,
@melinda_bachini
, published this paper on recent developments in BTC in Future Oncology (
@tandfonline
).
BTC's molecular heterogeneity offers new hope with potentially targetable genetic alterations.
Read more➡️ .
#CCAhope
Hear from UChicago Medicine experts, including
@AnjanaPillaiMD
, on October 11 at Gleacher Center about the latest updates, insights and advances concerning cholangiocarcinoma, liver disease and oncology at the Fourth Annual Cholangiocarcinoma Symposium.
CCF is grateful for the incredible support pouring in during
#WorldCCADay
. Thank you to everyone who's sharing, posting, and spreading the word. Together, we're making a difference and raising crucial awareness.
#BeClearOnCCA
#greenforCCA
#CCAhope
February 15 is World Cholangiocarcinoma Day! 💚
We are joining hands with
@curecc
to spread awareness about
#cholangiocarcinoma
, a rare cancer of the bile duct.
In collaboration with
@curecc
, GCAR is sponsoring the development and implementation of a cutting-edge
#clinicaltrial
@CcaEns
biennial & joint
@CholangioNet
meeting. (L to R)
@JesusMBanales
, chair of ENS-CCA. Helen Morement, CEO AMMF.
@staclinds
, CEO
@curecc
. Greg Gores, Mitesh Borad & Lewis Roberts, Mayo Clinic. Luke Boulter, University of Edinburgh. Chiara Braconi, University of Glasgow
Dr Juan Valle is sharing important information about Hepatic Arterial Infusion. 📣 Unresectable Intrahepatic Cholangiocarcinoma: systemic plus hepatic arterial infusion chemotherapy is associated with longer survival in comparison with systemic chemotherapy alone.
#CCASummit2021
Congratulations
@staclinds
for receiving a Luminary Award in GI Cancers! Stacie and four other individuals were honored for their lifetime achievements focused on finding cures for GI cancers and improving the lives of those affected by them.
#curecca
?amp=1
@JavleMilind
presents IMFINZI® (durvalumab) as a First-Line Treatment Option With Gemcitabine and Cisplatin for Locally Advanced or Metastatic Biliary Tract Cancers.
#CCASummit2022
Imagine getting a rare cancer. You would probably want all the information and connections you could find. Mark Clement’s family did just that. The
#Cholangiocarcinoma
Foundation was founded by Mark’s...
Today the High Level Bridge in YEG, Canada is lit green! 💚💡 Pictured is Nancy Elson, who is currently fighting Stage IV cholangiocarcinoma. She arranged the lighting of the bridge with the city!
#greenforcc
#WorldCCADay