Emma, thechronicsurvivor✨🕯 @chronicsurv1vor Twitter profile

Pinned Tweet

Emma, thechronicsurvivor✨🕯

6 years

#tbt to singing two years ago before MECFS made it very hard for me to sing. I am focusing on improving to get back to a point where I can do what I love more often. Never give up! #MyalgicEncephalomyelitis #singer #singers #music #musicvideo #musician 🎶🎤

51

40

326

Last Seen Profiles

@almter86

@jabar_toto

@D6741526262337

@NitroNuke

@hishamkaaki

@jeanmarcayrault

@khlaid0

@AJellerson60884

@Bernadette80222

@SenDaveCortese

@cuatrolunasco

@a___yasama

@1giantleap

@jandakembangstw

@ChilepaM

@FlowRekha

@CAStateLibrary

@bijl_robbert

@christianaarxn

@mark_up

@HalstonL14146

@Pj3Ps

@mmmkkk22055958

@AlzbydyQyd14066

@Lisa30s1

@DathanHovs77767

@pinkpanther83

@ChilepaM

@HarshnaParoha

@NevilleStudio

@Dhoff6

@benitomascarpon

@Qataremb_NL

@lAsif70

@Cardiff_Queen

@CaJudicial

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

9 months

ps. #mecfs #severeME #Pots I FIGURED OUT WHAT TO SAY IN ANY HOSPITAL SETTING!👇🏼 (Before) Staff/Dr/Nurse: You can’t lie down here. Why are you lying down?! *annoyed* Me: I have ME/CFS & POTS!!! Them: ….. *shrug* sit up!!! (What I say now)👇🏼👏🏼 Staff/Dr/Nurse: You can’t lie down

31

189

1K

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

2 years

Wow! My Mum is under a neurologist for her own health issues. He was told I have #MECFS & he said he wants to see me to test for further things or underlying factors to help. And he runs #LongCovid research I think. A NEUROLOGIST wanting to help an ME patient - this is huge!

30

58

1K

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

1 year

#MEawarenessmonth 💙 #severeME pls RT! People ask me what do I do with my days. Well… the photo below is what I do. Every day. 7 days a week. Every day. I do THIS 👇🏼 , & do my best to get to the toilet daily, twice a week perhaps I text with my close friends, I may have a 5

47

192

702

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

1 year

#MECFS GUYS I AM STILL PROCESSING WHAT THE FUCK I HAVE JUST DONE!!!! I went glamping for two days & got back yesterday. First time seeing nature in 3 years. Birds… 5 years. The sky… years. The sun on my skin. Years. it doesn’t feel real! Wtf. I lay in my reclining chair for

43

25

698

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

1 year

I’ve got #COVID19 🥺💔. Ambulance were called out to me and they basically said nothing they can do for me. Just have to ride it out. Fever was 39.8. I’m not vaxxed due to it injuring me. I deserve care!! I deserve to be monitored safely!! I deserve saline drips!! Aren’t

165

57

567

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

9 months

#MECFS abuse 😡 I had a neurologist literally tell me the moment he met me in 2021 when my #POTS was getting worse & undiagnosed that I’m mentally ill & when I said no, I’ve had anxiety in the past this is DIFFERENT….he leaned forward & pat my leg; “it’s what they all say..” &

30

87

475

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

1 year

#MEawarenessmonth 🙏🏼💙 Life in real lockdown. It’s been 4 years since I’ve seen a friend… It’s been 6 years since meeting a friend for coffee. It’s been 5 years since I’ve been able to sit up for more than 30 mins. It’s been 2 years since I’ve been able to sit up for more

20

81

348

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

2 years

Last year; unable to tolerate the car ride, the movement, stimulation, I went into cellular energy deficit. My heart was struggling, I was trembling, I had to lie down flat immediately. Only thing I remember is saying; “stop the car, now! Now!”Before sinking to the ground. #MECFS

11

58

344

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

8 years

Singing some #Adele tonight! #sing #singing #love #spoonie #music 🎤🎉🎤😊 #RT

28

77

286

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

2 years

Thanks to @drclairetaylor I now have some hope. I don’t know how I survived four months no shower & complete autonomic madness I’ve wanted to throw myself out the window to make it stop. What a doctor. What a person & what a friend! Give her a follow! 💞🙏🏼 #mecfs #doctors

10

14

262

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

1 year

This photo speaks for itself. Wow even I had no idea. Chart showing the quality of life for people with #MECFS ranks worst compared to other illnesses such as depression, cancers, stroke & many more. Pease retweet the hell out of this post for #meawarenessmonth Thank you 🫶🏻💙

6

103

157

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

2 years

So many #MECFS or #LongCovid or #POTS patients are traumatised by the medical profession. Often made to question their own sanity, in fear of seeking out help. It almost feels unreal when you come across a Doctor who is kind, who believes you & wants to genuinely help. ❤️🙏🏼❤️

5

23

137

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

So, I managed to go out for lunch today at a quiet pub restaurant. The first time in 8 months!! I struggled but I did it. Sat outside for less noise!! Yay!! So. Proud!! #MECFS #MyalgicEncephalomyelitis #spoonie #chronicillness

12

6

127

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

how #MECFS affects my life - Internal tremors, Confusion, Headache, Difficulty with speech, Muscle pain & spasms all over, Dizziness, Nausea, Flu like feeling, Multiple infections, Sore throat, Need mobility aids due to weakness, The list goes on. It is NOT “being tired” RT

6

51

108

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

This is what I was was told by a rheumatologist 2 years ago when I was first diagnosed...... Please RT & share. #mecfs #MyalgicEncephalomyelitis patients are still being damaged by professionals. 😢😤 #MillionsMissing #PWME @DanikaAlice @JennySRP @jenbrea @FunWithCFS

15

71

109

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

Please retweet to raise awareness. #MyalgicEncephalomyelitis is a complex, severe and debilitating chronic disease and can turn your world upside down. Hopefully more people can learn about it. It is NOT "fatigue" We are NOT "tired" We are S I C K #MECFS #pwme

3

104

105

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

Ok let’s get real for a moment. Tonight, I’m struggling. I’ve had enough of being missing. I’ve had enough of hiding away in the dark. If you have ME or know someone with ME, I’m sure you can all relate to this somehow. Stay strong 🎶💗 #mecfs #MillionsMissing #pwme

10

28

97

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

Struggling. A lot. I am getting sick of living in my bedroom. Nearly 2 months straight being housebound. This is an all time low for me and my #MEcfs Please read & respond. Hugs to you all. Stay strong!! #ChronicIllness #pwme #chronicpain 💙

27

20

92

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

8 years

Some people should remember this 👇🏼👇🏼👇🏼

4

33

81

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

#MEawarenesshour 2016 vs 2018 Picture on the left, able to work, party socialise, looking good, long walks. Pic on the right - 80% housebound, very bad neuro / immune symptoms, brain fog and needing help to walk and unable to really socialise. #mecfs is REAL.

6

17

79

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

"ME/CFS is not deconditioning nor are its symptoms explained by inactivity. It is a complex, multi-system disease involving neurological, immunological, autonomic, and energy metabolism impairments." … @meassociation @4WorkWell #MECFS #MEAwarenessWeek

0

38

79

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

#MillionsMissing #MEcfs awareness. 💙 My current week. Not great. Please remember: 🌟 Allow yourself to rest 🌟 Try not to feel guilty that you're unable to do what you used to 🌟 You are loved, needed & wanted 🌟 Give yourself a break. You're not well. 🌟 Hold onto hope

7

16

79

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

1 year

Do you ever just lie there and weep? Like, REALLY weep? For what’s happened to your life, so much grief and loss you don’t want to even hold on anymore? You’re not alone. I urge you to please hold on & remember how brave & courageous you all are. 🙏🏼🌸👇🏼 It takes an incredible

10

3

77

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

2 years

Many with #MECFS are far too ill to go to a&e / ER in an emergency.... being left to fend for yourself at home alone in isolation is terrifying. Please please know you’re not alone. I get it. Pls RT for awareness. Love & Light. Emma 💕🕯✨. STAY STRONG! 🤗🙏🏼🌹

0

26

77

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

Has anyone else noticed that their eyes just aren’t the same since falling ill with #MECFS ? My eyes used to be so vibrant and alive. Now even if I fake looking more alive there’s still like a hollow, worn out look in the eyes. Example below... Anyone else? :( #PWME

24

3

77

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

Sometimes brain fog legit feels like Alzheimer's. Was updating my card info & the expiry date is 5/21. I kept putting it in as July 2021 & kept getting error. Got there eventually! Also called mango melon! Who relates?! 😱 #MECFS #PWME #MyalgicEncephalomyelitis #brainfog #fibro

19

10

74

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

Merry Christmas, everyone! ✨ I'm spending it at home this year and that's ok. Lots of hot chocolate & cream tonight and a few naughty treats so it's all good ha. Take care of yourselves & remember you're not alone. 💙 #mecfs #MerryChristmas #mentalhealth #chronicillness

5

13

58

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

1 year

#MECFS peeps - With love - please get off your damn smart phones & have a break!! Scrolling ISN’T resting. Reading isn’t resting. Interacting isn’t resting. Hyper-stimulation isn’t resting!! We often don’t stop due to fear, fear of losing connection, fear of losing even more.

7

16

70

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

It is upsetting that people think they have the right to judge: "shouldn't you be over this by now" "people have it worse" "Just snap out of it" People have NO idea about the battles others face. END the stigma. #keeptalkingMH #sicknotweak #endthestigma #mentalhealth

2

21

65

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

How ill are people with #MyalgicEncephalomyelitis #MECFS ? It is a serious neurological immune disease. I am moderately affected. Had to stop work, my Mum helps make my food & I need help walking when I leave the house & wheelchair for anything far. Please RT for awareness!

6

48

67

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

Sometimes this shit just gets the better of me. It's OK to not be ok for a moment. It's OK to cry and let it out. It's OK to feel let down. Please read 👇🏼 please please be kind of you know someone with #ChronicIllness - PLEASE 💙. Make them feel like they still matter

12

26

60

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

#MEawarenesshour #MEcfs is NOT about feeling tired. It is NOT fatigue. It is a severe disease causing neurological & immune system dysfunction. 25% of us are in wheelchairs. Worst case are tube fed & some sadly passed away. Please start to understand our illness. 🙏🏼

1

37

58

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

Just a reminder to anyone struggling mentally or physically 👇🏼👇🏼👇🏼👇🏼 💙 #QOTD #quotes #mecfs #MentalHealthAwareness #strength #Wednesdaymotivation #WednesdayWisdom

3

17

60

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

1 year

Help! #MECFS community. 😔🌹My mum has #covid19 since Monday & I’m testing myself for the next 7 - 10 days to see if I get it. Feel horrendous. My Dysautonomia attacked me tonight with 3 hour tachychardia episode. I’m now paralysed. Pissing on side of my bed yep 👍🏼. I am the most

12

5

61

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

Hi guys, After nearly two years of fighting to be tried on anti virals, I got a prescription of Valtrex for a year. 🙌🏼 Who knows if it will help. I've always had the feeling my old EBV virus is one of the causes of my #mecfs My glands are usually swollen & tender! Ahh!💙

20

3

61

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

10 years

It's absolutely disgusting that people are tweeting #cut4zayn ! #selfharm is no joke and people can easily be triggered. Am shocked!

1

22

52

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

Looking for any #London #reporter or #journalist or #press to cover the #millionsmissing protest next Saturday outside the BBC Broadcasting house @BBCNews on 12th May. Please RT to get the word out. Need #media coverage. It is vital. So important!! #MyalgicE #MECFS 💙

0

58

56

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

A gentle reminder 👇🏼👇🏼 Hope everyone is doing as ok as they can be. I have quite a high pain day today, shivering as the pain is so bad in my shoulders. #Fibromyalgia kicking my ass today. Looking forward to taking my amitryptaline soon! #mecfs #chronicillness #quote

6

4

49

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

I just saw a tweet that pointed out the flaw in saying... "Why do you have depression? You have so much to be happy about" their response was... "Why do you have asthma? You have so much air you can breathe" I absolutely love this! 😂 #mentalhealth #depression

0

23

51

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

I was in A & E today / the ER & was told there was nothing they could do to make me feel better. Bloods normal, no explanation. It was tough to hear.... Can't fault the staff though. They were so kind and lovely. Please read below 👇🏼👇🏼 🙏🏼💙 #MECFS #chronicillness

18

9

56

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

2 years

Many ppl w #MECFS feel unloveable. In fact it makes us the best person TO LOVE & to be with bc we have seen the depths of darkness & hell & despite it all, our hearts & our souls still continue to glow, even if we don’t feel it. We love in the most purest form. 💞💯🙏🏼

1

8

56

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

Who else gets really bad #anxiety since they've been unwell? @MEAssociation let's have a discussion about this because mine is through the roof. Especially when in a crash. Fellow patients please do respond! #MyalgicE #CFSME #cfs #anxietyproblems #mentalhealth

19

5

54

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

9 months

@ThePOTSPostman Please do! It’s true. When we stand our heart races due to pooling of blood aka racing to keep blood flow to our brains!

0

8

55

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

9 months

#mecfs #euthanasia You beautiful angel, I wish you peace & to finally be free from suffering. Thank you for holding on this long & I completely understand this brave woman’s decision to seek euthanasia. It crosses my mind often. Fly free, beautiful one & kick ass in the spirit

2

4

54

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

The reality of depression. It is NOT just simple sadness. #depression #mentalillness #EndTheStigma #MentalHealthMatters #mentalhealth #PTSD #SuicidePrevention Please retweet to raise awareness. 🙏🏼💙

1

35

49

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

I've had a tough week. I am now single again, My friend passed away, My Mum almost got meningitis. But I'm OK & still fighting the war of my mind and the war of my body. Never stop holding on. We got this. Who's with me? 🌟💙 #MECFS #Mentalhealth #pwme #strength

14

2

52

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

** PLEASE RETWEET ** #MEcfs patients are still only given psychiatric treatment and graded exercise therapy as the main treatments in the uk. This has to STOP. Please sign the petition below. It takes less than one minute. #RT 👇🏼

2

57

50

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

Today I found out my brother thinks I am making the most out of being sick, as in - not exercising enough, enjoying not working etc. Hearing that shit hurt. I am sick. It is not my fault. I want to be out there pursuing my acting and working! I so want to. #MECFS #PWME

12

3

51

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

Wow! All of you on here are incredible. Amazing people. Kind. Beautiful souls. I am so lucky to have the support from all of you. I promise to do my best to support you too & make you laugh with my videos We got this. We can't give up. Promise me ok? #MEcfs #chronicillness

2

9

51

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

10 years

I can so relate to Alice in Wonderland. She just keeps randomly eating & drinking with the hope that it might magically solve her problems.

2

27

45

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

1 year

@healing4uall Thank you! But I’m older than you! LOL! I had many achievements, singing, training to be a therapist, working as a teacher for special needs children, recording in recording studios, traveling the world regularly, a manager in an office, all achievements which are deemed as

2

1

49

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

Raising some awareness again tonight for #MECFS I speak about how i'm trying to handle being unwell and stating this is NOT a psychological illness. Please RT! @JanetDafoe @Derya_ @davidtuller1 @jenbrea @FunWithCFS @JohnMayer @KevinReinholz @christina4hope @chronic_hopeful

8

29

49

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

Thank you @jayletay for FaceTiming me and letting me see the London protest. So proud of everyone!!! ❤️💙💙 #millionsmissinguk #MillionsMissingLondon #pwme #millionsmissing #MyalgicEnceplalomyelitis

1

8

48

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

I am looking for man who can trim my hairs down below and who can provide for my family. Funny acting sketch I did today from my bed to amuse myself and amuse others! 🎭😂👍🏼 I love acting and at the moment do it from my bed due to #mecfs #comedy #funny #ChristmasEve 💙

3

29

28

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

I'm not going to name & shame but I emailed 6 neurologists stating I have #MEcfs (which IS a neurological disease) & the response from one of them is below. I was told to see a psychiatrist. This has to stop. Can "medicine" please stop hurting us! Wtf. #PWME

8

21

46

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

#PWME who else gets spinning feeling in bed when in a crash? Just like being drunk and got the spins / vertigo! Makes you feel nauseous. 🌀🌀🌀🌀 Literally! LOL. #mecfs #chronicillness #MyalgicEncephalomyelitis

10

2

47

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

1 year

First time the sun has been on my face since 2020!!!!!!! What the fuck I am still in shock tbh !!!! 🫣🌸💫🙏🏼🙏🏼🌸 #severeME #MECFS #POTS #dysautonomia

4

0

46

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

When you've told a friend you're housebound several times and they send you a text saying "let me know when you're feeling better to going out" I SAID I'M HOUSEBOUBD!! 👇🏼👇🏼👇🏼👇🏼😩 #DisappointMeIn4Words #MECFS

5

4

42

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

Sometimes all you need is lipstick, a loyal companion, nature and a scooter. Good day today. #MECFS #MyalgicEncephalomyelitis #PositiveVibes

4

44

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

All I want to do is sing again, with ease, to be able to go out and enjoy the weather. Do things. My family have all gone out today and I’m here, on my own. Sometimes I just don’t want to do it anymore & I break down. Today is one of those days. #MECFS #millionsmissing

7

8

43

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

Hello, everyone. Would love some feedback to what I posted here below. It's a difficult time and I just don't know what to do with myself. Hope you're all ok as much as you can be 💙. #MEcfs #pwme #chronicillness

31

9

43

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

2 years

It dawned on me the other day I’ve only managed 3 showers in ONE YEAR. 🤯💔. I spent a couple of days crying over this realisation & what #MECFS has done to me. Traumatised. No wonder my hair is falling out. It’s a daily battleground. Please find us a cure. 💜 #MEawarenesshour

3

13

43

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

This book arrived today! Very intrigued to see a doctors view when being struck down with our condition! @DoctorwithME #MEcfs #PWME #MillionsMissing 💙

9

41

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

#2018goals I hope #NewYear brings us more answers, more understanding from doctors, family & friends & some improvements no matter how small they may be. Got to keep up hope. We are all amazing people and I don't want us all to suffer as much in 2018.💙 #mecfs #hope

0

10

38

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

I know you’ve been doubting your progress, regretting past choices, putting yourself down. Please remind yourself right now that no matter what it looks like, you are doing the best you can. Always encourage, support & believe in yourself. #inspiration #love #mentalhealth #MEcfs

0

6

39

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

Patients with #MECFS are finally slowly beginning to be heard. Thanks to the independent for posting this and @jenbrea @jayletay @JanetDafoe @davidtuller1 and all others who raise awareness and help patients worldwide. 🙏🏼 #MyalgicEncephalomyelitis

1

17

41

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

How's everyone doing? Im struggling at the moment & missing participating in the world. Not a good week with my #MECFS My brain is thinking of ideas of what to do when I'm up to it. I may start a meditation YouTube for #PWME people with our illness! How's everyone? #MyalgicE

10

2

41

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

Ladies and gentleman ladies and gentleman after a two year fight with Doctors to be tried on anti virals... Guess who started them today?! 🙌🏼😍 (excuse my voice and laugh, I've got flu) Who knows if it will do anything but I'm giving it a go! #MECFS #pwme #MillionsMissing

8

3

42

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

Who is ready for all the #MillionsMissing protests that are going to take place worldwide on the 12th May?! If you're near London please come along. I went last year & everyone is so nice!! Hope I can make it. Please #RT to spread the word! #MECFS

2

24

38

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

Listen up!! All of us please let's make videos for the #WhitneyPlea @JanetDafoe is asking us all to make videos like her son does. Check out her video here 👇🏼👇🏼 #MillionsMissing #CanyouseeMEnow #PWME #MECFS @JanetDafoe @jenbrea @jayletay

0

14

38

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

For anyone battling fibromyalgia or MECFS or any chronic pain disease you are badass mother fuckers. This shit is unreal. STAY STRONG. Hold on. We got this. #MECFS #FIBROMYALGIA #chronicillness #ChronicPain

7

4

39

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

Not all #chronicillnesses & #disabilities are visible. Please show your loved ones kindness, less judgement & realise that even though we may not look sick, our pain & illness is very, very real. #ChronicPain #Spoonies #invisibleillness #Fibromyalgia #Spoonie #mecfs

1

21

36

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

Reminder to self 👇🏼 You're a fucking badass and nothing is gonna break you. You may feel broken for an hour, a day, a week. That's ok. Waking up every day stronger than yesterday, facing the present and wiping away your tears one day at a time. #MEcfs #MentalHealth

1

8

34

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

#millionsmissing protest in London May 2018. Please retweet and please attend if you're well enough!! 👇🏼👇🏼 Here's some pics from last years event and I had red hair! #MEcfs #pwme #MillionsMissing #event #Timeforunrest #ChronicallyAwesomeCAFS

2

23

38

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

2 years

A shoutout to @drclairetaylor 💞🌸 - the only dr who suggested I may be stuck in sympathetic overdrive & may have POTS / IST. If it weren’t for her & @valeria_iodice_ I would still be questioning my sanity. There are amazing ppl in the medical field! #MECFS #doctors 💞🙏🏼

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

2 years

So many #MECFS or #LongCovid or #POTS patients are traumatised by the medical profession. Often made to question their own sanity, in fear of seeking out help. It almost feels unreal when you come across a Doctor who is kind, who believes you & wants to genuinely help. ❤️🙏🏼❤️

5

23

137

1

12

41

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

I can proudly say I am an #MEcfs activist and I don't give a f*** if you like it or not. I promise to do my best for the community & raise awareness & educate newly diagnosed patients to not be misled by the GET/CBT "treatment" we get given once diagnosed. Pls read thread #PWME

2

5

40

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

Prior to being unwell with #MECFS I travelled the world, trained martial arts 4-5 times a day, partied HARD ha, worked hard, socialised daily. Now I am confined to my room 80% of the time. Please RT to spread awareness. #myalgicencephalomyelitis is a serious disease. 🙏🏼

0

26

37

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

In absolute agony. Burning. Burning pain. Wrists. Shoulders. Arms. Fingers. Legs & internal tremor. Not the best day. Stay strong everyone. Remember your inner lion. Your inner fighter. #MECFS #Fibromyalgia #pwme #MillionsMissing #chronicillness #strength

6

8

38

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

Pain is better today!! WOOOOOHOOOOOO!!!!!! Happy Saturday. I’m about to watch Netflix on the sofa and enjoy some food!! Grateful for each day and every moment when I’m able to do something “normal” 🙏🏼 #MECFS #ChronicIllness #grateful

1

2

36

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

Here’s my interview I did with #skyone on #MECFS #MyalgicEncephalomyelitis 👇🏼👇🏼 I hope I did the community proud! #pwme #chronicillness #chronicpain #millionsmissing @claire_00017 @MEAssociation @MEActNet @chronic_hopeful @JanetDafoe

8.3K views · 43 reactions | What's Up TV, M.E Awareness Campaign:...

Thanks for watching episode 1 of #whatsuptv. Here's some extra content that we filmed with @ARoachBridgeman chatting with lovely Emma aka @sleepy_comedian

www.facebook.com

4

12

39

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

Please remember - #depression is lying to you. It may tell you you're unworthy, you're crap, you're hideous, you're not worth being around... it is LYING! You are all worthy. You are all strong. You are all beautiful. I'm proud of you. #SickNotWeak #mentalhealth #quotes

0

24

33

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

Looking to hire a carer soon as im now at a point in my illness I can no longer prepare my own meals etc. It’s really tough. I’m scared of getting even worse. Sending love to you all. Stay strong. #mecfs #MyalgicEncephalomelitis #pwme

12

1

35

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

2 years

My best friend Bailey passed away just now at the vets office. She was 14 years old. Ancient for a labradoodle with tons of health issues. Her spleen ruptured and had internal bleeding. I was on face time during. I am destroyed. My best friend. My heart is broken. #RIP #dogs

14

1

38

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

1 year

What do #MECFS patients share in common with dangerous criminals?! 🤔 Well! criminals are punished by being forced into solitary confinement for an evil act they committed & often go mad in isolation! ME patients are forced into the same situation but are INNOCENT of any crimes,

3

7

36

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

So is the idea that we have to just "think ourselves well"....? The ONLY time a psychiatrist should be on board is if we are struggling to cope mentally with disease & need support and care. THE ONLY TIME. #MEcfs #pwme #millionsmissing Look what they did to Sophia Mirza!!

0

10

36

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

My first time out in nearly 3 months apart from doctor appointments. 💪🏼🙌🏼 I am back in bed now and not getting out for a few days! #mecfs #today #progress #PWME #ChronicallyAwesomeCAFS #chronicillness

5

2

32

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

Proud! Managed a 5 hour car ride lying down with a pillow. First time in nearly a year since my #mecfs has been so bad. Spent few days prior resting & avoiding stimulation. I just hope PEM doesn't strike too hard. 🙏🏼. Legs are buzzing now grr. #pwme #MyalgicE @MEAssociation

2

34

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

TIRED just doesn't cut it. The girl in this picture is dizzy, weak, a bit shaky, confused, sore throat, eyes burn, noise hurts, had to eat food lying down & bathroom trips are a marathon. 🖕🏼 who say #mecfs isn't real. 🖕🏼 who trivialise it. 🖕🏼 Dr's that don't help.

1

7

36

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

Awake and struggling. 😢 In a complete blur of confusion and fog. So fatigued I don’t know what’s real or what’s not. It’s tough. But we are tougher. This won’t break us. Keep strong. #MyalgicEncephalomyelitis #mecfs #spoonie #chronicillness

5

1

35

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

I made a short video to try to show what an #MECFS flare is like. I've been like this pretty much since December so this is my norm a lot of the time. Some days better than others. Please retweet for awareness. #PWME #chronicallyawesomecafs

3

21

36

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

Went on my new scooter today!! Crashed quite a bit now but yay! It felt amazing!!! #MECFS #MyalgicEncephalomyelitis #chronicillness 💙

4

2

34

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

#MyalgicEncephalomyelitis is terrifying. When you crash, it is like you’re paralysed, in and out of consciousness. Wanting to throw up, your head going thud thud thud. Internal tremor, dizziness, spasms all over, you cry & just pray it eases. This is me today. #MECFS

5

10

35

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

2 years

When your brain fog is so bad you actually have to look @ your phone and check if it’s 2022 or 2023 😂😂🥴 #MECFS #POTS #MEAWARENESS

5

2

36

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

9 years

True motivation comes from within. From yourself. No one can hand it to you, but no one can take it away, either. #weightloss #Fitness

3

7

27

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

Hmm. Grandma is getting more action than me this #ChristmasEve2017 !!😂🎭 One actress. Two characters. New #acting sketch uploaded! #funny #duvetknowitschristmas #mecfs #MerryChristmasEve #comedian #mentalhealth 😂🎭🙏🏼

1

25

16

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

I'm still in this horrendous flare & family came over today. I was determined to lie on the sofa & socialise. I failed. I lasted 5 mins. I'm now back in my room on my own. I can't take much more of this. 😢. I'm hurting. I tried. I bloody tried. #pwme #millionsmissing #mecfs

14

2

31

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

6 years

What does #MyalgicEncephalomyelitis #mecfs look like? This 👇🏼 Feeling so so poorly 😭. Hope with complete rest and using my oxygen etc will help me get through this crash. Love you guys. #chronicillness #pwme #millionsmissing

11

1

30

Emma, thechronicsurvivor✨🕯

@chronicsurv1vor

7 years

Went out to get nails done today. The result : Been shaking and tremoring, nausea and dizziness in bed in the dark for hours. Needed diazepam to stop me shaking. #MECFS you are a bastard It hit me today how ill I have become. 😢 #pwme

7

6

30