💛Lady w/ LongCovid💛 @TheExtraFiles Twitter profile

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💛Lady w/ LongCovid💛

19 days

LOCKDOWNS.. Not a single mention that COVID is causing eye issues in children.. So obviously no mention about preventing COVID to protect children's eye health. 😷 #LongCovidKids

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💛Lady w/ LongCovid💛

@TheExtraFiles

7 months

Yesterday my 12 year old son asked if I thought he would be able to get hired for a job when he's older if he wears a mask to a job interview. It brought up a lot of questions. Mask discrimination is a thing now. @USEEOC @USDOL what is being done to address this?

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💛Lady w/ LongCovid💛

@TheExtraFiles

3 years

#Paxlovid was prescribed to me during reinfection.. I took on about day 8 of symptoms due to lack of availability in Jan. ..Yes, it was out of the use within the 3-5 day recommended guideline. IT STILL WORKED FOR ME & HELPED ME GET RELIEF IN #LongCovid SYMPTOMS TOO!!

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

Know what's worse for me than having #LongCovid ? Having 2 kids with #LongCovid .. I HATE THIS! #LongCovid #COVID19 #LongCovidKids

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

As voted by the Long COVID community-- International Long COVID Awareness month will be the month of March with the International Long COVID Awareness Day being March 15th! 🧵

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💛Lady w/ LongCovid💛

@TheExtraFiles

7 months

This disease is so politicized-- It has turned many people's fam/friends on them--when they need support most. (txt msg below is from a family member) & I STILL WON'T STOP TALKING ABOUT COVID/LONG COVID. People want to ignore the truth & pretend everything is okay. I CANNOT.

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

#LongCovid #LongCovidAwarenessDay

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

To Everyone in #LongCovid groups on Twitter/FB/Everywhere--Please share the Long COVID Awareness ribbon & date/month with all that are suffering/every support group INTERNATIONALLY! With your help we can all unite globally to spread our message/awareness to the the world! 🧵

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

After much thought & discussion-- We are moving ahead with the Poll Awareness Colors selected by the #LongCovid community. This will unify us internationally as we work together to continue our efforts to raise awareness & make the best possible impact!♡

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

Today my dad told me--"If I want my life back-- I have to take it back" ..Like I haven't been trying to take it back for 2.5yrs..!! 🤦🏽‍♀️🤬😒 Ughhhh #LongCovid #MECFS

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💛Lady w/ LongCovid💛

@TheExtraFiles

1 year

I have LONG COVID. It is what it is.. #LongCovid -- I got sick with a COVID infection in early 2020-- and never recovered. I have had symptoms every day, every minute, every second since. Due to my symptoms I cannot live my normal daily life like my pre-COVID days. #COVID19

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

Scientists instead of using your time to create a new deadly Covid strain with an 80% kill rate-- YOU SHOULD BE CREATING OR FINDING A CURE FOR LONG COVID!!! #COVID19 #LONGCOVID

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💛Lady w/ LongCovid💛

@TheExtraFiles

7 months

COVID KILLS! COVID DESTROYS! I miss exercising, volunteering, hiking, driving, working, showering, dancing, friends/fam, adventures--I miss life! I miss being the mom that I was more than anything. Long Covid stole my life. #ConfrontLongCovid #LongCovidAwarenessDay #LongCovid

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💛Lady w/ LongCovid💛

@TheExtraFiles

3 years

I have received a few msgs asking how I'm feelin. Quick update: Yesterday marked 2 wks since my last dose of Paxlovid. Last week was my best week in 2yrs. I'm not out joggin or dancin yet, but I'm slowly improving. #paxlovid #longcovid (Thread)

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💛Lady w/ LongCovid💛

@TheExtraFiles

3 years

Pretty sure Paxlovid saved me. It's been 1 week since last dose. Turned my reinfection mild after 24hrs. My LC symptoms are improving (maybe cuz reinfection or antiviral or both). Only time will tell.. See how things are in a mth, 6mths & yr from now.🤞🏼🙏🏼 #PAXLOVID #COVID19

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💛Lady w/ LongCovid💛

@TheExtraFiles

8 months

Today= 4 years=battling LongCovid 6 months=in current decline from my betterish baseline 1,461 days=of symptoms 0=FDA approved treatments 0=Cure #LongCovid #LongCovidAwareness

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

I miss my friends. I miss having tea or drinks with friends. Not only because I'm too sick --but because the risk of reinfection exists. #LongCovidAwarenessDay #LongCovidAwarenessMonth #LongCovid

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💛Lady w/ LongCovid💛

@TheExtraFiles

3 years

#Paxlovid must be trialed for #longcovid ! I have had so much relief in my symptoms since being reinfected and taking Paxlovid.

Hannah Davis

@ahandvanish

3 years

Case report of a #LongCovid patient, sick for 7 months, whose symptoms completely resolved after taking Paxlovid. Paxlovid is one of the most obvious drugs for a Long Covid clinical trial - why isn't it happening?

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

When #LongCovid clinics are applying for funding for acupuncture & mindfulness-or recommending music-- We have no option but to keep trying all the supplements/meds/therapies on our own. Fund Medication trials-- Meditation is not a cure for us.

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

Someone seriously txt me this. 🤦🏽‍♀️🤷🏽‍♀️💔 #COVID19 #longcovid

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

@NickGuthe Never ever in my life ever thought about suicide. Til I got stuck in Long Covid early 2020. For about 8 months I struggled with not ending my life of #LongCovid misery. Things still get rough.. but it has gotten betterish for so many. It's so hard to see things can improve

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💛Lady w/ LongCovid💛

@TheExtraFiles

1 year

All these articles about long colds.. I've had many colds even long colds & flu-- those symptoms were nothing as severe as COVID for me-- My brain & heart (whole body) never did all this w/ any cold. I was 38yrs old! In my prime. #LongCovid =Hellish misery. NOT A COLD. 1/2

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

Looking for the #LongCovid social media frame? Need ribbon graphics to make awareness items? Want to purchase merch for #LongCovidAwarenessDay ? Now you can find it all in one place!

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💛Lady w/ LongCovid💛

@TheExtraFiles

7 months

Light Up for Long Covid Awareness! For every person suffering this hellish misery and to honor those who have lost their lives to Long Covid. #LongCovidAwarenessDay #LongCovidAwarenessMonth #ConfrontLongCovid

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💛Lady w/ LongCovid💛

@TheExtraFiles

1 year

I went to the cardiologist. It was crowded. No one was masked. I left without having my heart checked & recieving care. Sick people go to doctor offices & hospitals. EVERYONE SHOULD BE MASKED TO PROTECT EACH OTHER. Do no harm has turned into-- Do more harm.💔 #LongCovid #Covid

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💛Lady w/ LongCovid💛

@TheExtraFiles

1 year

When they say "rates of severe COVID may be staying at relatively low levels"-- Don't forget 90% of people living with Long Covid initially experienced mild illness with COVID-- #COVID #LongCovid #LongCovidAwareness

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💛Lady w/ LongCovid💛

@TheExtraFiles

7 months

It's one thing if you had a job since people started masking (then dropping masks) and you continue to mask. It's a completely different thing when you're applying for a new job where people are not masking.

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

@NickGuthe When we are stuck in the depths of LC Hell. If you are reading this keep holding on. Be part of a support group and know we are all here for you.

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💛Lady w/ LongCovid💛

@TheExtraFiles

7 months

You cannot be denied employment, harassed, demoted, terminated, paid less, or treated less favorably because of your race, color, religion, sex, sexual orientation, gender identity, national origin, disability, or status as a protected veteran. 😷what if you mask? @USDOL

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

No more 5 mile mornings with the mountain view-- #LongCovidAwarenessDay #LongCovidAwarenessMonth

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💛Lady w/ LongCovid💛

@TheExtraFiles

1 year

I will talk about #LongCovid as long as I have a voice or can type– until the day I die. My family has been hit too hard by #COVID & I have seen too many lives destroyed– to not speak up about the truth and destruction. THAT'S WHY #LongCovidAwareness

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

@Guglar9 🤬How have people still not figured this out? This is one reason my friend circle got so much smaller

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💛Lady w/ LongCovid💛

@TheExtraFiles

3 years

@TrishtheDish_7 I have LC and 2 children that are Long Haulers. The reason many don't know anyone is you are busy living your life and haven't been impacted, like some of my family members. Visit one of our timelines..they are filled with other long haulers, many have been suffering for 2yrs.

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

@D_Bone @Mersey_Care @Patrici15311724 @liverpoolccg @StHelensCCG @Knowsley_CCG @NHSSSCCG What on Earth are you all doing??! Where are your masks? Every unmasked person in the world is at even more risk of being infected, death, #longcovid & reinfection which means possible worse/longer long covid for those suffering LC. Aint even sad at this point.. Just angering.

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💛Lady w/ LongCovid💛

@TheExtraFiles

9 months

Today is day 1,427 of #LongCovid for me. I've had symptoms every single day, every single minute for 1,427 days. THERE'S NO CURE-- Protect yourself & others from COVID!😷 Long Covid can happen to anyone.💔 #LCDCmarch15 #LCDC #myLCstory

LC/DC (Awareness Day '24)

@LCDCmarch15

9 months

How many days have you had Long Covid? #LCDCmarch15 #LCDC #myLCstory

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

"Respondents indicated that they could no longer care for families, homes, or even themselves due to their symptoms. They described their inability to manage their daily lives as distressing and upsetting" #LongCovid

Survey explores the experiences of individuals with long COVID

Researchers explored the experiences of individuals with post-acute sequelae of COVID-19, also known as long COVID.

www.news-medical.net

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💛Lady w/ LongCovid💛

@TheExtraFiles

7 months

Of course we talked about working from home/remote jobs/different jobs that might be a possibility for him look into. He still has a few years before he will be working any job, but there are people facing this today.

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

Too many cliques in the #chronicillness community. What's the deal with that?? ..YEP I SAID IT. We can do more united.💛

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

@RepRashida It means so much when our leaders that we voted for say & do what is right for the people. Wish gov/leaders were saying this all over the globe--& putting those words to action. Thank you💛👏🏽

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

I wish that for every Long Covid study that came out--that a trial of a MEDICATION or THERAPY that might really treat Long Covid had to happen too. While their off doing studies people are suffering an unimaginable hell. #LongCovid

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💛Lady w/ LongCovid💛

@TheExtraFiles

3 years

I ain't playin when I say give a box of #Paxlovid to every person with #LongCovid , & see what happens.. Some could get better!! Which is better than what's happening right now.. Sure there's risks.. DOING SOMETHING IS BETTER THAN NOT TRYING ANYTHING TO GET OUT OF MISERY!!

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

Several of you have asked for a Long COVID awareness ribbon to post as profile pics and use for making items--I'm hoping to get that out this week.♡

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

Press Release about #LongCovidAwarenessDay is going out this morning! Feel free to let me know if you have emails for press that have been sharing stories about #LongCovid globally. EMAIL INFO TO: LongCovidAwareness @gmail .com THANK YOU!💖

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💛Lady w/ LongCovid💛

@TheExtraFiles

3 years

Can someone just get a Paxlovid study goin already?! We've got anti-maskers being able to get Paxlovid while #longhaulers are stuck waiting for some kind of relief..

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💛Lady w/ LongCovid💛

@TheExtraFiles

1 year

Can Green Tea Really Prevent Covid? **The answer is NO. I drank green tea more than most-- I got COVID & have Long Covid.

Can Green Tea Really Prevent Covid?

Hi folks, it’s Kristen here enduring yet another rainy weekend in New York. In this week’s Sunday Q&A a reader wonders whether green tea might be more than just delicious. But first...

www.bloomberg.com

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

Too many. Too #LongCovid . #LongCovidAwarenessDay

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💛Lady w/ LongCovid💛

@TheExtraFiles

1 year

Diagnosed or Suspected Long COVID-- What year did you first get sick? *Feel free to add in replies --What # infection seemed to be the one that left you stuck with Long COVID if not the first or only infection you've had. --If worse LC after any reinfection. 💛 #LongCovid

2019 or 2020

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

LONG COVID CHATS💛 Open Zoom 7 days a week 9a PST-6p PST 12p EST-9p EST Chat & share together as we carry each other through the days of #LongCovid life-- -Come & go as you please -Video can be on or off DM for Zoom link: @haziethompson @D_Bone @TheExtraFiles

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

@PeterSweden7 I think many factors.. Less people wanting to have kids due to craziness in world, cost to live in world, damage done to world. More people sick whether due to covid, long covid and vax damage. All off that can impact fertility for everyone & chronic illness=no energy for sex.

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

@MrkStdngr Everything is not alright.. Mark, there's one thing I know.. Some of us were right there where you are, felt life was over. Somehow our bodies have mended over time.. Some meds/supplements/therapies helped some maybe pick up the pace on some kind of relief.

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💛Lady w/ LongCovid💛

@TheExtraFiles

9 months

@TheLewisBlack 💔Hope you get better-- I've been sick for 205 weeks since COVID infection. Protect yourself and your audience,they don't got cures for what's goin around.😷

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💛Lady w/ LongCovid💛

@TheExtraFiles

7 months

I watched @LCDC with my kids. The wind might try to knock down the signs.. but we heard your words! Thank you for pushing through to represent for all of us!💞 We had a little chant going here in our home.. "WE ARE LIVID! WE HAVE LONG COVID! ✊🏾✊🏻✊🏼😷

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

#LongCovid Awareness merch designed by @haziethompson in our LONG COVID community!! Check out the shop here: ♡

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💛Lady w/ LongCovid💛

@TheExtraFiles

7 months

The law forbids discrimination in every aspect of employment. 😷What about masking? @USEEOC

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

COVID is still controlling my life. It's consumed my family's lives. It's controlling the lives of all those suffering with #LongCovid . Mad as hell about the lack of help & protection from our governments. Shame on every person that has been part of the problem. #COVID @POTUS

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

#LongCovid #LongCovidAwarenessDay

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💛Lady w/ LongCovid💛

@TheExtraFiles

7 months

Under the laws enforced by EEOC, it is illegal to discriminate against someone (applicant or employee) because of that person's race, color, religion, sex (including gender identity, sexual orientation, and pregnancy), national origin, age (40 or older)

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

@aspoonielife 💔 I am thinking of you extra right now. Sending love and want you to know you can DM anytime-- if it would help to have some of us to reach out to at random times.

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💛Lady w/ LongCovid💛

@TheExtraFiles

1 year

As for me and my house we call it #LongCovid You will only confuse people more if you try to "rebrand" it.. I'm not even sure your maskless selves understand how it works. We got COVID and didn't get better/Or thought we were better, but weren't. Stop the one name campaign--

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💛Lady w/ LongCovid💛

@TheExtraFiles

7 months

disability or genetic information. It is also illegal to retaliate against a person because he or she complained about discrimination, filed a charge of discrimination, or participated in an employment discrimination investigation or lawsuit.

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

🤬Such nonsense! Some of us will soon be at 3yrs of DEBILITATING hell.. 《Those suffering from #LongCovid will get better in time and people should not panic over news that the number of Long Covid patients is on the rise, a top virologist said》

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

Tollovid Update: I know Tollovid has been quite the topic in our #LongCovid world. So here is the shortest version of my experience. Gonna keep it 💯. No sugar coating it for anyone. I HAVE: LESS POISON/MUTATING FEELING & MY MAIN IMPROVEMENT LESS FATIGUE!! I feel healing🎉 🧵

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

U.S. government to test Pfizer's Paxlovid for long COVID If they do this right-- Many might see significant improvement. It definitely helped me! 🤞🏽🙏🏽🤞🏽🙏🏽 #LongCovid #COVID19 #Paxlovid

U.S. government to test Pfizer's Paxlovid for long COVID

The trial will investigate a leading theory of the cause of long COVID, which holds that fragments of the virus persist in the tissues of some individuals, causing prolonged symptoms.

www.reuters.com

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💛Lady w/ LongCovid💛

@TheExtraFiles

3 years

@risahoshinoMD I have had Long Covid over 2yrs & lost many "friends" 💔 They didn't believe Long Covid was real(including my family) -They don't want to talk to a person this ill -I'm boring cuz I stay home except for medical appts mostly. I did find real friends in Long Covid Support Group.💛

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

#Groundhog Day every single day. #LongCovid

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

Throughout the month of March & more specifically on March 15th we will raise Long Covid awareness together across the globe by wearing shirts, changing profile pics & whatever we can do to team up & increase awareness about Long COVID--Those impacted, prevention & how to help.

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

"I'm sure long COVID is associated with suicidal thoughts, with suicide attempts, with suicide plans and the risk of suicide death. We just don't have epidemiological data," said Leo Sher, a psychiatrist #LongCovid

Insight: Long COVID's link to suicide: scientists warn of hidden crisis

Scott Taylor never got to move on from COVID-19.

www.reuters.com

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

"Long C deserves the same sense of urgency, focus, funding and communication as the acute form of the disease. What is needed now is an aggressive focus on treatment of long C to overcome the potential physical, emotional and economic impacts" #LongCovid

Ready or not, here it comes: We are unprepared for long COVID

The recent disclosure by Sen. Tim Kaine (D-Va.) that he still suffers from COVID-19 symptoms nearly two years after being diagnosed underscores the fact that concerted efforts in science, public he…

thehill.com

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

That 2 week thing they said was WAY off.. Feb. 18th, 2020 The day the horrific debilitating fatigue slammed in along with so many miserable symptoms that took over my life-- 3 YEARS AGO.. 🧵 #LongCovid

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💛Lady w/ LongCovid💛

@TheExtraFiles

1 year

Telling me to go live my life maskless in the COVID is kind of like telling a person with lung cancer from smoking to go smoke cigarettes.. What is wrong with these people?! #LongCovid

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

@sanj971 @MsahWu This isn't about comfortable. It's about not killing & debilitating people. I could care less if you floss.. That impacts you. Not masking impacts you & OTHERS!!

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

From now on the majority of any of my money donated will go directly to individuals suffering #LongCovid , #chronicillness & other sufferings. I need to know I'm actually helping people that NEED it! I'll keep donating to organizations proving that they really help people.💚

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

International Long Covid Awareness Website: Twitter: @LCawarenessInt Press Realease:

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💛Lady w/ LongCovid💛

@TheExtraFiles

9 months

Global Governments-- WE DEMAND MORE! Your email box being disrupted by 600 emails does not matter more than the lives of millions. I've been sick for 1,427 days. I have children and a life that have been disrupted. I WANT MY LIFE BACK! I WANT MY KIDS TO BE PROTECTED! #LongCovid

LCAP (Long Covid Action Project)

@LongCovidAP

9 months

Hear this recording & act. LCAP emails from pwLC will stop when the #CureLongCovid 11 demands are in legislation, when @JoeBiden Declares LC a National Emergency 🚨, when LCAP can testify 2HELP, when children receive LCantivirals @kbr227 #NoCureNoPeace 🆘

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

#LongCovidAwarenessDay #LongCovid

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💛Lady w/ LongCovid💛

@TheExtraFiles

8 months

@MatthewJDalby Absolutely absurd.. That's like saying we shouldn't bring condoms into STD advocacy.. Why would you not talk about prevention when talking about Long Covid? Prevention is how you save lives. More people will probably mask if they keep getting sick or end up with Long Covid.

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

@MrkStdngr You rest, be kind to yourself & know we are all thinking of you & each other struggling through this Hell. I am hoping & praying healing comes your way! I don't know everyone's trajectory with this, but I am keeping hope. I know healing can happen, we've seen it. I feel it.💛

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

HERE'S THE PRESS RELEASE!!

International Long Covid Awareness

@LCawarenessInt

2 years

Link to Press Release: Long COVID Community Sets International Awareness Date for March 15th Feel free to share everywhere! Your local news stations and papers. EVERYWHERE!! #LongcovidAwarenessDay #LongCovid

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

@txsalth2o @harvardmed We just had INTERNATIONAL #LongCovidAwarenessDay yesterday for this reason. Check out that hashtag & see where everyone is from. COVID SPREAD ALL AROUND THE WORLD, MILLIONS ARE SUFFERING #LONGCOVID (another good hashtag for you) We aren't all white, kids have Long COVID too!

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

Birthday #3 stuck in #LongCovid Birthday #1 without my mom This year has been a rollercoaster.. I'm THANKFUL for the major healing I've had the last 9mths & for the support network we have right here.. We are all carrying each other through this journey/battle. 🌻💛🤎🧡 🧵

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

#LongCovid ribbon designed by @haziethompson ♡

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💛Lady w/ LongCovid💛

@TheExtraFiles

1 year

@nihceal And what about my heart issues, SOB, pain from head to toes, FATIGUE, the migraine that never goes away, nausea 24/7, etc?? What about all the very physical sx people with #LongCovid are suffering from? The physical sx are why most of us have so many mental & emotional issues🤦🏽‍♀️

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💛Lady w/ LongCovid💛

@TheExtraFiles

3 years

This pandemic is causing so many lives to be torn apart. Lives Lost. Financial Hardships. Chronic Illness. Broken relationships. Hate. Stress. Isolation. Depression. Madness. Ravaging Everything.. So consuming.. The heartbreak is too much.💔 #LongCovid #chronicillness #COVID19

Sunshinesideoflife77

@Sunshineside77

3 years

Another casual destruction caused by chronic illness. I'm getting a divorce. Wife is leaving me because she can't handle me sick anymore. She wants a life without sickness. I cannot make it happen. #ravagedbycovid #LongCovid

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

@mildanalyst So what you're saying is adults can get it.. But kids can't get it.. Masks aren't needed.. And you can't give it to your pets.. People should quarentine for 2wks..or 10 days..or 5..or none.. Oh wait..people should wear masks.. And it'll only last for 2wks.. Right? 🤦🏽‍♀️

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

Not everyone that treats it, beats it.. There's people that treated it-- and still ended up with #LongCovid . Don't play in the #Covid it's not fun to take such a risk.

Hazie Thompson

@haziethompson

2 years

This is the type of asinine messaging we’re up against. No masks. No quarantine. No organ damage, brain fog or disabling fatigue. Just vibes & good times!

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

The top 3 colors selected in the INTERNATIONAL LONG COVID COLOR AWARENESS POLL: #LongCovid LET'S UNITE & SPREAD THE TRUTH ABOUT LONG COVID!

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💛Lady w/ LongCovid💛

@TheExtraFiles

1 year

I tried Nattokinase,Serrapeptase, Lumbrokinase a year ago--it helped. Tried it again recently--felt like I was about to die w/in 2 days of starting it again. Some symptoms similar to brain embolism. I got off all 3 supplements by day 3 & now back at baseline. #LongCovid

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

@MeetJess It's so hard not to assume Covid is taking people earlier than they had to go.. I mean we know anything coulda caused this.. Until they tell us I just assume It's all Covid related which I know I shouldn't..but again hard not to.

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💛Lady w/ LongCovid💛

@TheExtraFiles

1 year

Got my Long Covid awareness ribbon pin today! #LongCovid

Long Covid Awareness Ribbon Pin. Gray, Black, & Teal. post-covid/long-haul - Etsy

Long Covid Awareness pins. The SARS-CoV-2 virus, responsible for the COVID-19 disease, has caused lasting health issues for many of us. I am a Covid long-hauler. I have a myriad of symptoms that...

www.etsy.com

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💛Lady w/ LongCovid💛

@TheExtraFiles

1 year

Heard some of you and other familiar voices in our community at the @US_FDA meeting-- THANK YOU FOR YOUR WORDS & SHARING YOUR STORIES--YOU ALL REPRESENTED FOR US TODAY!👏🏼✊🏼💛 #LongCovid #LongCovidAwareness LET'S KEEP FLOODING THAT PUBLIC DOCKET!--

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

Hopefully have the awareness website up next week--Til then you can email: LongCovidAwareness @yahoo .com for the ribbon graphics and awareness merch shop list. Please send any graphics you want to make/share to that email. Thank you all!💛

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💛Lady w/ LongCovid💛

@TheExtraFiles

8 months

I support @LCDCmarch15 ! I've become friends with one of the co-founders @DYork1979 . She is risking her health declining to keep fighting for us. Today for March 4th I would like to match the first 4 donations of $25 Let's turn $100 into $200! #LongCovid

LCDC March 15 2024, organized by Dara York

Twenty-five million people in the US are suffering from long covid, and our numbers continue to swell. We… Dara York needs your support for LCDC March 15 2024

www.gofundme.com

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

As the color poll is closing tonight-- I wanna hear your ideas for a phrase we can all be printing up on some of our gear/merch (Shirts, bracelets, stickers, etc.) *Short is best to fit on most items #LONGCOVID IS REAL LONG COVID HOPE LONG COVID UNITED CURE LONG COVID #LongCovid

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

Another Stellate Ganglion Block article.Even though it doesn't work for everyone. 《‘It totally changed my life the next day’: Pueblo man found relief from #LongCovid with new procedure》

‘It totally changed my life the next day’: Pueblo man found relief from long COVID with new...

After suffering from the lingering effects of COVID-19 for more than eight months, Edward Baros was at the end of his rope. He was tired of having brain fog, tired of hallucinating, and, frankly, h…

www.canoncitydailyrecord.com

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💛Lady w/ LongCovid💛

@TheExtraFiles

7 months

@cv_cev @LCawarenessInt @BBCCasualty They got it ALL wrong.. I definitely wouldn't be taking my mask off to talk to them. Healthcare workers are around all the sick people. None of the staff are masked. It's ridiculous. Shame on this and shame on healthcare doing this in real life. Protect yourself😷

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

Some of us have been sick with #LongCovid for almost 3yrs.. No amount of #Thanksgiving dinner gatherings or #BlackFriday deals are worth any of the hellish misery many have suffered. MASK IF YOU MUST GO OUT!! Mask For You/Mask For Others. #COVIDIsAirborne #CovidIsNotOver

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💛Lady w/ LongCovid💛

@TheExtraFiles

9 months

@MeetJess So I guess they're okay with letting children with TB attend class.. This is exactly why some of us have been doing homeschool-- Schools are not protecting kids!

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

#LongCovid friends & All- @inducekarmaaa is suspended & @D_Bone can't tweet. No idea why.. Why are they being silenced?

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

@Dakota_150 I'm so confused why they keep saying this is new.. Many had Pink Eye in 2019/2020 with their COVID infections.

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

If you got #LongCovid & aint maskin up.. You must not have got the kind of LongCovid some of us got. Unfollow me if you don't wanna hear the truth. I ain't here for followers. :) #MaskON #MaskUp #Masks

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💛Lady w/ LongCovid💛

@TheExtraFiles

2 years

@BagTooth Gray/Teal/Black

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