Synapticure @synapticure Twitter profile | Pikagi

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Synapticure

@synapticure

3,907

Followers

507

Following

158

Media

825

Statuses

Personalized virtual neurology care for neurodegenerative diseases like Alzheimer's and related Dementias, Parkinson's, ALS, and Huntington's

https://t.co/zkF87tqlME

Joined December 2020

Don't wanna be here? Send us removal request.

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@synapticure

Synapticure

1 month

“For Love & Life: No Ordinary Campaign” is now on @PrimeVideo ! For those who have been diagnosed with a neurodegenerative disease, you are not alone. Support and resources are available. This film and our co-founders' journey are real reasons for hope:

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For Love & Life: No Ordinary Campaign

Explore ‘No Ordinary Campaign.’ Revolutionizing advocacy, research and care for neurodegenerative diseases. Stream on Prime Video 5/28.

www.forloveandlifefilm.com

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@synapticure

Synapticure

2 years

We have lived ALS. Today, ALS care is hard. It doesn’t have to be. We built Synapticure to make ALS care easy, accessible and personalized for all. If you or a loved one are living with ALS click on this link to find out more: #NewEraOfHope

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@synapticure

Synapticure

2 years

We are so excited to publicly launch with this story by @maureenmfarrell in @nytimes . This telemedicine company will bring personalized care to all living with ALS. Together, we'll leave behind the era of, "I'm sorry, but I can't help you." #NewEraOfHope

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A Race to Rethink Care After a Dire Diagnosis (Published 2022)

With the backing of venture capital and well-known tech investors, Synapticure seeks to fill in the gaps in care and research for those with amyotrophic lateral sclerosis.

www.nytimes.com

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@synapticure

Synapticure

5 months

"You’re pushing for better access to care and more support for caregivers." - Dr. Jill Biden, @FLOTUS . Yesterday was a big day! Our co-founders, @bsw5020 and @sabrevaya , brought the fight for improved health care and caregiver support to the @WhiteHouse .

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Continuing the Fight for Improved Care and Support | Synapticure

Synapticure’s co-founders invited to the White House to share their story of leading a patient-centered movement for healthcare reform.

www.synapticure.com

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@synapticure

Synapticure

2 years

One last story about @bsw5020 and @sabrevaya to close out the year on @NewsHour . Grateful for the work they've done for neurodegenerative disease and in the ALS community with @iamalsorg . #ENDALS

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Former Obama staffer fights to raise ALS awareness after devastating diagnosis

When a former Obama campaign staffer was diagnosed with the progressive neurodegenerative disease ALS, he was given six months to live. But five years later, with his wife's help, Brian Wallach is...

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@synapticure

Synapticure

1 year

To people living with #ALS , #PLS & #Parkinsons , thank you for trusting our Synapticure team with your #neurology care. ➡️ #teleheath #neurotwitter #MedTwitter #EndALS #parkinsonsdisease #seniorcare #EndPD #telemedicine #parkinsonscare #ALSwarrior

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@synapticure

Synapticure

2 years

“Tragedy is a call to action, especially with family.” Meet Peter Wallach, our co-founder and Chief Financial Officer, who shares his incredible story about how his brother’s ALS diagnosis led him to start Synapticure.

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How Peter Wallach honors his brother (and co-founder) | Synapticure

My name is Peter Wallach and I am the Chief Financial Officer & Co-Founder at Synapticure. After my brother was diagnosed with ALS, our family founded Synapticure to help him and others.

www.synapticure.com

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@synapticure

Synapticure

5 months

It can be difficult to access #mentalhealth care when you need it. That’s where Synapticure comes in. Our psychologists are expertly trained to help families dealing with #neurodegenerative diseases navigate grief, build coping skills & find better ways to practice self-care.

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@synapticure

Synapticure

1 year

This is a post we've been waiting to make for a long time...🥁 Synapticure is now licensed to see #ALS and #PLS patients in all fifty states! 1/3

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@synapticure

Synapticure

7 months

Thanks to @CBSSunday for sharing the story of @synapticure 's cofounders who were diagnosed with a fatal disease and decided to change access to #healthcare for people with #ALS & other #neurodegenerative diseases likes #Alzheimers , #dementia & #Parkinsons

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Fighting the good fight against ALS

Brian Wallach has beaten the odds after being diagnosed with ALS (amyotrophic lateral sclerosis, or Lou Gehrig's disease) six years ago. Since then, he and his wife, Sandra, have successfully lobbied...

www.cbsnews.com

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@synapticure

Synapticure

1 month

Our cofounders, @sabrevaya and @bsw5020 were on @TODAYshow this morning discussing the release of their Documentary on @PrimeVideo later this month. You can find the segment here

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‘For Love & Life’ doc tells moving story of couple’s journey with ALS

Brian Wallach and Sandra Abrevaya, former Obama campaign staffers, are the subjects of a new deeply moving Amazon documentary called “For Love & Life: No Ordinary Campaign,” executive produced by...

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@synapticure

Synapticure

1 year

We are thrilled to announce that Synapticure has received IRB approval to launch a study treating presymptomatic carriers of pathogenic ALS-associated genes with Riluzole. What, exactly, does that mean?

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Synapticure Launches an IRB-Approved Study for Presymptomatic Carriers of Pathogenic, ALS-Associa...

Synapticure has started a research study which will focus on presymptomatic individuals who carry a pathogenic or likely-pathogenic gene variant of ALS, as determined by genetic testing. Participants...

www.synapticure.com

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@synapticure

Synapticure

1 month

Hope is what drove our co-founders from advocacy to action and beyond. See how by watching their documentary, "For Love & Life: No Ordinary Campaign" now streaming on @PrimeVideo here 👉

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For Love & Life: No Ordinary Campaign

Explore ‘No Ordinary Campaign.’ Revolutionizing advocacy, research and care for neurodegenerative diseases. Stream on Prime Video 5/28.

www.forloveandlifefilm.com

@PodSaveAmerica

Pod Save America

@PodSaveAmerica

1 month

“We feel authentically hopeful that there is the chance that we could be among the first generation of survivors with [ALS] disease.” — @iamalsorg founder @sabrevaya See @bsw5020 and Sandra’s story in “For Love & Life: No Ordinary Campaign” on @PrimeVideo today.

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@synapticure

Synapticure

2 years

Over the coming weeks, we want to better explain how we help patients living with ALS through patient stories. From insurance navigation, benefits and VA access, ALS clinic referrals and appeals for insurance coverage, we're here to help.

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All of the care, please | Synapticure

My Father was recently diagnosed with ALS. We came to Synapticure for all of the care.

www.synapticure.com

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@synapticure

Synapticure

5 months

This isn't just Brian's diagnosis, this is OUR diagnosis. And caregivers need care too. ~ @sabrevaya Join us tonight at 7 pm ET to learn about @synapticure 's new Mental Health support team that's here to help patients & their families with #ALS ,, #Parkinsons , #Alzheimers

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@synapticure

Synapticure

2 years

We are in awe of the tireless advocacy of the ALS community and clinicians. We want thank the AdCom and the @US_FDA for the recommendation to approve AMX0035. We hope that approval will come quickly for all people living with ALS.

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FDA advisers recommend approval of controversial ALS drug

The vote increases the likelihood that the Food and Drug Administration will clear the first drug for the disease in five years.

www.washingtonpost.com

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@synapticure

Synapticure

9 months

Thank you @TrilliantHealth , @DevinCarty , @martinventures for hosting the Trilliant Summit fireside chat featuring @synapticure founders, Brian Wallach and Sandra Abrevaya as they shared their inspiring journey of advocacy for families affected by #neurodegenerative diseases. #ALS

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@synapticure

Synapticure

6 months

"I have been amazed at how this program really supports me and wraps me in care". - @bsw5020 To learn more about our Collaborative Mental Health Care Program, click below to register for our webinar on Monday, January 22nd:

@bsw5020

Brian Wallach

6 months

If you are living with a neurodegenerative disease, comprehensive mental health support is now available for you, your caregivers, and your family at @Synapticure . To learn more, click below to register for a webinar on Monday, January 22nd.

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@synapticure

Synapticure

1 year

We've seen a few questions about family histories of ALS and genetic testing, so figured we'd tackle them here. 1/4

@bsw5020

Brian Wallach

1 year

The best way to end ALS is for all of us to get genetic testing. If you do, it will unlock new treatments like Tofersen. If you have any questions or have not yet had testing, @synapticure is here for you. Visit to learn more.

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@synapticure

Synapticure

1 year

If you read @people magazine, you might see a few familiar faces in the latest issue! Synapticure's co-founders @bsw5020 and @sabrevaya sat down for an interview about their unrelenting fight on behalf of the #ALS and #neurodegenerative communities.

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Young Father Defying the Odds of His ALS Diagnosis Says the Disease Is 'No Longer Hopeless'

Meet Brian Wallach, a former Obama staffer diagnosed with ALS at 37, who has spent the past five years fighting for new treatments and funding for neurodegenerative diseases

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@synapticure

Synapticure

1 month

Don't forget! "For Love & Life: No Ordinary Campaign" hits @PrimeVideo May 28th. This documentary follows our co-founders, @bsw5020 & @sabrevaya 's relentless journey and the inspiring movement they’ve built in the fight against neurodegenerative diseases. Stay tuned for more...

@bsw5020

Brian Wallach

2 months

BREAKING NEWS: I am freaking out with excitement to share that @noc_film will be streaming on @PrimeVideo May 28th! Please share the trailer below with everyone so that, together, we can change the world. #ForLoveAndLife #NoOrdinaryCampaign

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@synapticure

Synapticure

1 year

Let's Talk Trials! Check out our blog, where we discuss the urgency in getting an #ALS diagnosis & factors that impact your ability to qualify for & choose a #clinicaltrial . #EndALS #ALSclock #neurology #LouGehrig #Neurotwitter #Medtwitter #familypractice

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@synapticure

Synapticure

1 year

We’re honored to announce that The Michael J. Fox Foundation for #Parkinsons Research ( @MichaelJFoxOrg ) has formed an advisory relationship with Synapticure! ⬇️PRESS RELEASE 🧵(1/3) #ParkinsonsDisease #PDWarrior #EndPD #telehealth #telemedicine

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@synapticure

Synapticure

2 years

If you're new to us, there's no cost for signing up and finding out more. If we can help (or you aren't sure and would like to find out more), feel free to grab time with our team here

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Personalized care for neurodegenerative diseases

my.synapticure.com

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@synapticure

Synapticure

2 years

Synapticure has launched a remote respiratory monitoring program, which allows our care team to monitor your SVC in real-time and inform the care you receive. We're grateful to our early test users, and excited to roll this out to all of our patients soon.

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Spirometer Launch Announcement

Synapticure announces the launch of a remote respiratory monitoring test program

www.synapticure.com

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@synapticure

Synapticure

1 year

On Global #ALS Awareness Day, @synapticure 's co-founders share their vision: "We are turning hope into action every day. And that action can & will change the world for those living with ALS" JOIN OUR FIGHT! #EndALS

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@synapticure

Synapticure

2 years

Excited to now be live for teleneurologists visits in 41 States. Welcome Colorado! 9 more to go.

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@synapticure

Synapticure

2 years

As of today, Synapticure's ALS care is now live in 45 States AND @bsw5020 's home town, Washington D.C. Marching to all 50 across neuro.

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@synapticure

Synapticure

2 years

. @ScottFightsALS and @JamieLW8 , Synapticure patient and caregiver, are sharing how Synapticure makes their life with two little ones so much easier.

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@synapticure

Synapticure

1 year

Synapticure's founders began their ALS journey by bringing patient voices to Congress. Now, they're helping establish the first-ever virtual clinic for neurodegenerative diseases. Synapticure is built by patients, for patients. #ALSAwarenessMonth

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@synapticure

Synapticure

1 year

There are <300 ALS and <700 PD specialists in the US for 30,000 and ~1M patients, respectively. Traveling all day for most patients to receive care is a burden; seeing patients when they need care with the existing infrastructure is near impossible. That's why we exist.

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@synapticure

Synapticure

2 months

Discover the Synapticure difference for those living with neurodegenerative diseases: 24/7 access, neurology appointments in less than 2 weeks, personalized care navigation, caregiver support, and expert guidance on clinical trials. Experience life-changing care with Synapticure

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@synapticure

Synapticure

1 year

Synapticure was co-founded by a patient and caregiver. We believe that changes everything. (1/4)

@bsw5020

Brian Wallach

1 year

This photo is from October 2017. Two months after I was diagnosed with ALS. On the outside, I look normal but on the inside, I was spinning with questions and uncertainty about my future.

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@synapticure

Synapticure

1 year

Synapticure launched with a New York Times story one year ago today. Since then, we’ve had the privilege of supporting nearly 1,000 #ALS , #PLS , and #Parkinsons patients. 1/6

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@synapticure

Synapticure

7 months

Being a #caregiver is a profound commitment to making a difference in someone's life. It's a journey that requires compassion, empathy, resilience, and a loving support team.🫶 At @Synapticure we are here for you❤️

@sabrevaya

Sandra Abrevaya

7 months

On the last day of National Family Caregivers Month, I want to share that being a caregiver has been the single hardest experience of my life. It is incredibly painful, overwhelming and I often feel like with Brian's illness I have lost my own identity, my freedom, my own life.

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@synapticure

Synapticure

1 year

. #OTD ALS took the life of #LouGehrig in 1941. @MLB now celebrates #LouGehrigDay on June 2nd, honoring the @Yankees ' slugger by helping raise awareness & research funding for #ALS , the disease that ended Gehrig's Hall of Fame career at 2,130 games.

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ALS: The Disease that Stopped “The Iron Horse,” Lou Gehrig | Synapticure

On June 2nd, MLB honors Lou Gehrig to raise awareness about ALS

www.synapticure.com

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@synapticure

Synapticure

3 months

. @synapticure is proud to announce we have been selected as an Established Participant in @CMSGov 's GUIDE program, serving families living with dementia as part of GUIDE starting July 1st in all 50 states. Learn more:

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@synapticure

Synapticure

1 year

This #NurseAppreciationWeek , we're especially thankful for the incredible #Synapticure nurses that support our patients & care partners every day. If you're fighting #Parkinsons , #ALS , or #PLS , reach out today and see for yourself how amazing they are!♥️

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@synapticure

Synapticure

1 year

Exciting update: Synapticure is now live in 48 States and Washington DC! If you live in any state except South Dakota and Delaware (working hard to get those soon!), our MDs are ready and able to see you.

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@synapticure

Synapticure

2 years

Our co-founders @bsw5020 and @sabrevaya shared with the @garybisbeeshow why they created Synapticure, and how Synapticure’s platform and Care Coordinators create the next level of continuity of care.

@garybisbeeshow

The Gary Bisbee Show

@garybisbeeshow

2 years

ALS is a devastating diagnosis, Brian Wallach and his wife Sandra Abrevaya are working to reframe the narrative around #ALS to focus on hope Today on #TGBS @bsw5020 & @sabrevaya , founders of @iamalsorg and @synapticure , share their story Watch here -

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@synapticure

Synapticure

2 months

What is Synapticure? More importantly, how can it help those living with Neurodegenerative diseases and their loved ones? Hear our story and why we exist to provide cutting-edge care that is personalized and compassionate directly from our co-founders 👇

@bsw5020

Brian Wallach

2 months

Today, let's start with a question many of you have asked. What the heck is @synapticure ?

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@synapticure

Synapticure

10 months

Sandra and Brian, our co-founders and a resilient husband and wife team, give a moving behind-the-scenes look into their lived experiences advocating for person-centered care for neurodegenerative diseases. #RHSummit23 @Rock_Health #digitalhealth @bsw5020

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Interview w/ Synapticure Co-Founders: Reimagining Neurological...

www.youtube.com

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@synapticure

Synapticure

4 months

“If there’s a single thing I can add to the universe coming out of this illness, it is to build something that helps caregivers.” Our CEO, Sandra Abrevaya, shares her powerful journey as a #caregiver with @PMDAlliance in the face of a terminal illness:

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@synapticure

Synapticure

1 year

"Speed." "Hope." "Discover." "Something new." We think we're onto something when patient feedback sounds like this.

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@synapticure

Synapticure

1 year

Let's go, Bri! We love seeing @synapticure 's fearless co-founder increase his step count and continue saying, "Not today, ALS. Definitely not today." If you want to learn more about in-home PT, give us a shout--we'd love to help you get started. #ENDALS

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Personalized care for neurodegenerative diseases

my.synapticure.com

@bsw5020

Brian Wallach

1 year

Today, I want to talk about physical therapy as it has helped me go from walking 4 feet to 16 feet in eight weeks. Let’s get physical…therapy If you have any questions about how to get it in your home or how much it costs, I know someone who can help: @synapticure

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@synapticure

Synapticure

1 year

Did you know that 32,000 Americans are living with #ALS ? Beside each of those 32,000 patients are care partners, family, and friends who want a better future for those who hear the words, "You have ALS." We're working to create that future. Will you join us? #alsawarenessmonth

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@synapticure

Synapticure

1 year

On the heals of @biogen 's approval today of Tofersen, @brookcroke explains what we understand so far for eligibility, how to engage with ATLAS, and more regarding the journey to today . We'll be updating as we learn more:

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First Gene-Specific ALS Treatment Approved on DNA Day | Synapticure

Biogen’s QALSODY receives accelerated approval by the FDA for SOD1-ALS, a genetic mutation which has known to increase risk of ALS. The drug was previously called tofersen, and can be accessed...

www.synapticure.com

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@synapticure

Synapticure

3 months

🤔 How much does Synapticure cost? Hear directly from our co-founders! Our mission is to democratize care, making it accessible financially and geographically. Your first consultation with a care navigator is at no cost. Ongoing care should be covered by most insurance. #RoonALS

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@synapticure

Synapticure

1 year

Take 30 seconds to listen to Ada's tips for those newly diagnosed with ALS. Wow--we are in awe of our patients.❤️ What tips would you share with newly diagnosed pALS?

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@synapticure

Synapticure

2 years

"This was my wake up call...when I came face-to-face with how important access to quality care is to ALS patients and how too many patients do not have that access." Meet Dr. Geraldi, one of our amazing Neurologists and learn about her incredible journey.

A Car and Mr. R | Synapticure

My journey as an ALS physician

www.synapticure.com

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@synapticure

Synapticure

2 years

A step by step guide to what happens next for AMX0035, from our care team at Synapticure.

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A Win for AMX0035 - What does this mean for you? | Synapticure

A new therapy for ALS, AMX0035 by Amalyx, is on the horizon and here are the details, and how Synapticure can help you get access.

www.synapticure.com

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@synapticure

Synapticure

3 months

We're excited to share that Synapticure has partnered with the @alsassociation to expand access to ALS care nationwide! Here's to setting a new standard of care for ALS while reducing the burden on individuals and families. Learn more:

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@synapticure

Synapticure

8 months

Sabrina Johnson is @synapticure 's Insurance Navigator. She also was a #caregiver for her father, who lived with #ALS .💙 Read how her empathy-driven caregiving transformed into a motivational and fulfilling career. Blog Here ➡️: @MDAorg @bsw5020

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@synapticure

Synapticure

4 months

"You guys have given him hope. You've given him a new lease on life.” - Caregiver to Synapticure patient We are so proud to support patients and caregivers on their #mentalhealth journey. Your bravery and resilience inspire us every day🌟 📽️Full video:

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@synapticure

Synapticure

1 year

Over 1M Americans are battling Parkinson's, but 70% are not receiving care from a #parkinsons #neurologist . We believe all patients deserve specialized care so we established a virtual #ParkinsonsClinic that you can visit from the comfort of home. #EndPD

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@synapticure

Synapticure

1 year

Wanna know the best part of our Monday? Hands down, today's highlight was watching Carla and Denby's amazing video about their experience with #Synapticure 😍 We're honored to support their #ALS journey and we'd love to do the same for you. Enroll today:

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@synapticure

Synapticure

2 years

Kicking off Monday with our first prior-auth approvals for Relyvrio, with more to follow. Hope to see many new treatments over the coming years in ALS.

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@synapticure

Synapticure

2 years

We are incredibly proud of what we accomplished in 2022. From launching a national care coordination network to moving to 45+ States of licensed and trained neurologists support, to getting in-network with major payers and partnerships we've built with brick and mortar clinics.

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@synapticure

Synapticure

2 months

Meet Rebecca Andrews, RN, a Care Coordinator at Synapticure. Inspired by her experience with familial ALS, Rebecca is dedicated to helping patients manage neurodegenerative diseases, knowing firsthand how to provide the care you need. Learn more at .

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@synapticure

Synapticure

1 year

Today is Rare Disease Day. Every day, people living with rare diseases navigate isolating, difficult diagnoses and are forced to fight for care. We're honored to support those patients, and we know all too well that one day is not enough.

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@synapticure

Synapticure

2 years

Synapticure is personalized care for all people living with ALS. See how Synapticure works:

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@synapticure

Synapticure

6 months

As we kick of 2024, we want to remind everyone who we are: @synapticure provides expert neurologist and wrap around care including care coordination, Behavioral Health, SLT, insurance navigation, PT / OT / RT, EAPs, clinical trial support and more for patients living with...

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@synapticure

Synapticure

2 years

Insurance shouldn't be hard to navigate; we’re here to guide you through it.

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@synapticure

Synapticure

1 year

. #OTD 84 yrs ago, #LouGehrig gave his "Luckiest Man" speech 2 yrs later on June 2nd, he died of #ALS Today we fight to expedite treatments & improve care for people with ALS #4thofJuly #July4th #Yankees #Yankeestwitter #baseball #fireworks #EndALS #MLB

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ALS: The Disease that Stopped “The Iron Horse,” Lou Gehrig | Synapticure

On June 2nd, MLB honors Lou Gehrig to raise awareness about ALS

www.synapticure.com

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@synapticure

Synapticure

5 months

🚨Join us tomorrow for Hilarity for Charity’s Annual CareCon, with special guests like @Trevornoah , to empower and support those impacted by Alzheimer’s Disease. Founded by @Sethrogen and @IamLaurenMiller , @WeAreHFC is bringing light to #Alzheimer ’s while improving care. (1/2)

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@synapticure

Synapticure

2 years

Wanted: Physicians who are passionate about care and democratizing care through innovation in #telemedicine . To join our growing team, apply below. #neurotwitter #neurology #AANEM

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@synapticure

Synapticure

2 years

Our new blog is live! Our first post features one of our incredible Care Coordinators, Danielle, who shares her "why" on joining Synapticure.

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How Danielle honors her father | Synapticure

My name is Danielle is a coordinator at Synapticure, an ALS, Parkinson's and neurodegenerative disease virtual care company. After graduating from social work school, her dad was officially diagnosed...

www.synapticure.com

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@synapticure

Synapticure

2 years

Our expansion to Parkinson's. #FPD #FALS #Neurodegenerative

Synapticure has expanded to serve Parkinson’s Disease Patients | Synapticure

Synapticure a has expanded to serve Parkinson’s Disease Patients, offering our full suite of care coordination, insurance navigation, genetic testing, neurologist visits, prescriptions and clinical...

www.synapticure.com

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@synapticure

Synapticure

1 year

🚫 Planes, Trains & Automobiles Living with #ALS , Brian knows first-hand that traveling to clinics becomes increasingly difficult Synapticure is here to ease that burden Meet with our #neurologists from the comfort of home ➡️ #telehealth #telemedicine

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@synapticure

Synapticure

1 year

Another day, another state added to our coverage! Welcome to our family, South Dakota. Synapticure now operates in 49 States and DC. Now just missing The First State...

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@synapticure

Synapticure

1 month

Excited to share @CNN 's feature on our co-founders' story and their fight to change the landscape for neurodegenerative disease: To learn more about their story or watch their documentary, @_forloveandlife , visit

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For Love & Life: No Ordinary Campaign

Explore ‘No Ordinary Campaign.’ Revolutionizing advocacy, research and care for neurodegenerative diseases. Stream on Prime Video 5/28.

www.forloveandlifefilm.com

@TheLeadCNN

The Lead CNN

1 month

Film profiles Brian Wallach's fight against ALS Watch the full video here: @bsw5020

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@synapticure

Synapticure

2 years

Imagine a world where every neurodegenerative disease patient -- not just those with access -- got modern, standardize diagnosis and molecular testing, including genomics, to deliver targeted treatment and dramatically reducing the time cost of drugs like Tofersen and Zolgensma

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@synapticure

Synapticure

1 year

We believe that every patient and patient family member with neurodegenerative disease should have access to genetic testing, should know about their rights for retesting, and when better tests have emerged. Many patients for example received a sponsored test that didn't...

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@synapticure

Synapticure

1 month

"For Love & Life: No Ordinary Campaign" streams on @PrimeVideo next week! We launched a new website dedicated to supporting individuals and families affected by neurodegenerative diseases. Explore the film, connect with @iamalsorg , and find comprehensive care with Synapticure👇

@bsw5020

Brian Wallach

1 month

A cool thing happed today. A new website went live that features @synapticure , @iamalsorg , and our documentary, For Love and Life : No Ordinary Campaign, all in one place. I hope you will check it out as it is pretty awesome.

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@synapticure

Synapticure

11 months

When diagnosed with #ALS , most people don't know the urgency in choosing a clinical trial or what to consider Our CEO shares our mission to empower our patients with the knowledge to decide which clinical trial is right for them ⬇️Free Consult #EndALS

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@synapticure

Synapticure

1 year

"With ALS, you can never have too much care. @synapticure just integrates ... with your care and it's really a beautiful thing." We couldn't have said it better if we tried, Donald. Thank you for being in our corner; we will always be in yours.❤️

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@synapticure

Synapticure

2 years

Brook Croke, one of Synapticure’s genetic counselors, explains why genetic testing and counseling is valuable for every pALS and their family, as well as for those who may be pre-symptomatic gene carriers, whom we are now enrolling.

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@synapticure

Synapticure

1 year

The Michael J Fox Foundation led efforts to introduce a bill called the National Plan to End #Parkinsons . They've made it easy to contact your Congresspeople & ask them to co-sponsor the bill with just a few clicks on their website. #parkinsonsdisease

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@synapticure

Synapticure

1 year

"I'm approaching my care in a fight mode...I'm going to fight for extra time, over and over." @sabrevaya says it all: We're here for those who are fighting, who fought but got tired, and for those who have been scared to try. We're here, ready to fight together. Let's do this👊

@LorrisPodcast

I’m Dying To Tell You Podcast with Lorri Carey

1 year

In this clip hear Sandra describe her & Brian's inspiration to launch @synapticure a healthcare company offering virtual care for those w/ ALS. Their generous spirit inspires me! Our chat: Visit:: @sabrevaya @iamalsorg @bsw5020

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@synapticure

Synapticure

16 days

Exciting update from Synapticure's lab: Dr. Martina de Majo and Dr. Layla Starr will present their innovative research at #ISSCR2024 ! Don't miss out on learning more about our 3D brain #organoid platform. 🔬🧠 Contact lab @synapticure .com to connect at the conference!

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@synapticure

Synapticure

4 months

When you have a #RareDisease like #ALS , #PLS or #Huntingtons , few neurologists have expertise in your disease, less know about clinical trials & almost none understand the unique mental health burdens in your disease. At Synapticure, we wanted to change that. #RareDiseaseDay 1/2

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@synapticure

Synapticure

1 year

We're starting off 2023 with a bang by hosting our first-ever patient panel on Facebook Live! 🎉 This Thursday at 7:00p ET, four patients and caregivers will share their ALS journeys and why they decided to add Synapticure to their care team. Block your calendars now!

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@synapticure

Synapticure

2 years

A few reminders of why we exist: 1. pALS and cALS carry an enormous burden of managing care outside the clinic, included finding DME, mental health, PT, etc. 2. We bring ALS-trained neurologists to all 50 States 3. We reach patients we are often left out of ALS clinical care...

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@synapticure

Synapticure

20 days

Tune in to @katiecouric 's podcast featuring our co-founders @bsw5020 & @sabrevaya ! Learn about their inspiring journey with ALS, their advocacy, and the new documentary "For Love & Life: No Ordinary Campaign" on Amazon Prime. Don't miss it! Listen here:

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‎Next Question with Katie Couric: For Love and Life: No Ordinary Campaign on Apple Podcasts

‎Show Next Question with Katie Couric, Ep For Love and Life: No Ordinary Campaign - Jun 13, 2024

podcasts.apple.com

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@synapticure

Synapticure

1 year

"We. Love. Dr. Faber." It feels like we hear that message daily from patients and caregivers who have seen Dr. Faber, one of Synapticure's incredible sub-specialized neurologists. They love him--and we do, too! See below to learn more about this incredible member of our team 🙌

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@synapticure

Synapticure

2 years

In neurodegenerative disease, Feb' 22 story counts as a lifetime ago. From a small care coordination program to a 45 state, in-network medical practice, we're just getting started. Come find out the future of care at home in our bio. #ENDALS #ENDParkinsons

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A Race to Rethink Care After a Dire Diagnosis (Published 2022)

With the backing of venture capital and well-known tech investors, Synapticure seeks to fill in the gaps in care and research for those with amyotrophic lateral sclerosis.

www.nytimes.com

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@synapticure

Synapticure

1 year

We started Synapticure with one hope: to reimagine #ALS care.. Turning that hope into reality hasn't been simple--but, we think we're on the right track when feedback sounds like this. Synapticure is built for patients, by patients. ⬇️Give us a try today

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@synapticure

Synapticure

2 years

We're here for one reason: to make sure you as a patient or caregiver receive the best care possible, via digitally enabled tools we offer, via your clinic partners in person, or with (and helping to build) your local support network. We can do better, and are here to help.

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@synapticure

Synapticure

6 months

“Every #Veteran should have the right to a peaceful & dignified life after their service to our country. And every Veteran should have the right to stay in their home & receive the care they need, the care they have earned & the care they deserve" #ALS

Elizabeth Dole Home Care Act and the Importance of Caregivers for Disabled Veterans | Synapticure

The VA recognizes both ALS and Parkinson’s are service-related diseases. Families dealing with both have dire caregiving needs. The Elizabeth Dole Home Care Act will help Disabled Veterans improve...

www.synapticure.com

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@synapticure

Synapticure

6 months

Synapticure is now offering compassionate and personalized mental health support for people and caregivers living with #Alzheimers , #Dementia , #ALS , #PLS , #Parkinsons , and #Huntingtons . Register here to learn more about our collaborative program:

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@synapticure

Synapticure

2 months

Meet our dedicated speech-language pathologist, Kylee Haller, guiding patients and families through the complexities of communication and swallowing changes. From education to advanced communication technologies like eye gaze, she is here every step of the way to empower you. 💙

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@synapticure

Synapticure

1 year

"You'll never be rushed out of a visit with me." This is what #ALS , #PLS , and #PD care should look like. Patients deserve attentive, empathetic, knowledgeable clinicians, and they find them at Synapticure.

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@synapticure

Synapticure

2 years

If you are living with PD, ALS, or PLS: Synapticure is now in-network with United Healthcare! If you have UHC, your co-pay to see a Synapticure MD from your own home is usually the same or lower than going in person. Click below to calculate your copay:

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@synapticure

Synapticure

2 years

We hope everyone has a restful remainder of 2022, take time with those close to you, remember what's important in life, and celebrate the little things. For those who can use help living with ALS, PD or other neurodegenerative disease, we hope to see you in 2023.

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@synapticure

Synapticure

2 years

PLS patients, like ALS and other neurodegenerative disease patients, deserve better care. This is Sherry's story. #PLS

My Journey with Primary Lateral Sclerosis (PLS) | Synapticure

Primary lateral sclerosis (PLS) patients, like ALS and other neurodegenerative disease patients, deserve better care. This is Sherry's story and how Synapticure can help get access to better care.

www.synapticure.com

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@synapticure

Synapticure

8 months

Last week @synapticure and @iamalsorg co-founders Brian Wallach and Sandra Abrevaya provided a heartfelt testimony during the introduction of the "Promising Pathway Act".❤️ #ALS #patientexperience #advocacy #healthcare @bsw5020 @sabrevaya @SenatorBraun

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@synapticure

Synapticure

2 years

We've had a lot of people ask for mobility support, so our physician and care coordination team decided it was time to more closely partner with DME suppliers. Find out how Synapticure can help with mobility support with partners like NuMotion here:

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Helping ALS patients access mobility with Numotion | Synapticure

100 days to access mobility support is not okay. So we’re stepping in to help by helping ALS patients access these products and services in North America. Products include power chairs and manual...

www.synapticure.com

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@synapticure

Synapticure

1 year

"Synapticure is my partner. I feel like team at Synapticure cares about what's happening to me and they're there for anything that I need." We're here to 👂listen to, 🤝support, and 💪empower every patient--nothing more, nothing less.

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@synapticure

Synapticure

1 year

We're excited about this one(!)... On Monday, tune in to hear Dr. Jinsy Andrews and Dr. Danielle Geraldi discuss ALS care today. They'll cover promising treatments in the pipeline, limitations of ALS care today, and how Synapticure partners with clinics.

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@synapticure

Synapticure

5 months

Hearing testimonials like this reminds us why we're here: to bring much-needed support and care to those living with neurodegenerative diseases 💙. We're proud to be on your team. Interested in learning more about our mental health program? Click here:

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