Today is my 51st birthday
12 months ago I wasn’t diagnosed with grade 5 melanoma, but it was there.
I wasn’t diagnosed with multiple sclerosis, but all the symptoms were there.
I was married, he left me after 27 years.
BUT life is good, I’m happy.
I’m having lunch today with the man I was married to for 27 years. The man who walked out when I needed him the most. I’m not looking forward to it, for some reason I felt the need to put some makeup on and look decent.
Dating when you have a chronic medical issue like MS is difficult. Finding your worth after 27 years of marriage and being discarded is difficult.
I’m for ever worried that I’m not good enough, I have little to offer.
I over think, I push people away.
True.. a year ago I was diagnosed with Melanoma, multiple sclerosis and my husband of 27 years left.
I didn’t think I could be this strong but here I am laughing, smiling and enjoying every moment.
My Multiple sclerosis update. I now walk 7-10,000 steps a day. Not bad for someone discharged 18 months ago with a walker.
I watch what I eat, I limit sugar and preservatives, I’m not perfect, still love a wine. 1/3
Guess what chickie babe is being discharged from hospital on Friday ??
This one.
Yesterday I walked 10,000 steps. I still have the NDIS paperwork to do and the purchase of a few walking aids. But I feel like an old Holden that someone has found in a paddock and done up.
It’s rare I have a rant. But here it goes. I have MS, every month I inject myself with a variation of chemotherapy, it hopefully will enable me to keep walking and functioning. I’m immunosuppressed and Im over those are against vaccinations that don’t giving a shit about others.
@JoeBiden
Listen to Joe.. we in Australia wore the mask and continue to do so in shopping centres. We had a strict lockdown, lots of testing and contact tracing.. we are now up to 30 days Covid free.
This is how I feel. 2022, grade 5 cancer, a 26 year marriage ending (although, the rubbish took itself out) and a diagnosis of multiple sclerosis.
Fuck me! Actually I think the universe is.
Painted these rocks for the group of people I walk on the beach daily. It’s a symbol of our bond and love for each other. The rocks were found on ‘our beach’ all different shapes and sizes but all connected, like the people that they are for.
So lunch was pleasant enough. I ordered a prawn pasta. We have 2 adult children together. It’s important to me that things are civil. We will always be part of our shared child ten’s life. Although it’s over for us, we will always be their parents.
I tidied myself up, got my new wizzding walker and saw how my dog would walk with it. She’s a champion, we had no problems at all. I enjoyed a coffee, she looked for rabbits. It’s a 6500 step round trip.
Today I found out my MS has not progressed in 12 months. I have 3 lesions on my brain, the MRI showed no new lesions.
The Kesimpta injections are doing their job. I need to ensure this magic medication that suppresses my immune isn’t allowing the melanoma cells to reappear.
Today is one of “those MS days”. I feel completely sabotaged by this crap disease. I crave for my old life, my career, my place in society. I know these feelings won’t last but it’s shit.
A few of the the close people I know are aware of the rough time I’ve been having. On Tuesday after battling months of back pain and x which leg weekness which I put down to being an old nurse I was diagnosed with MS.
Since my diagnosis of
#MS
I’ve done my best to appreciate and enjoy life. I have a much different approach. I’m selective on who I spend time with and are trying to be gentle on myself. Fatigue is real and so are the crazy emotions. I felt good last night.
Today I turned 50. I’ve had such a beautiful day surrounded by love. Walks on the beach, swims in the ocean, champagne, oysters and Italian food on a balmy night.
She’s finished, all 1.5 metres of her. Layers and layers of love.
Circles are the foundation of life from the microscopic cells in our body to the earth we stand on.
10am.. walked 2.5 Km, climbed 10 flights of stairs. Completed the strength exercise program set out by the physiotherapist.. Not bad for a chick who 2 weeks ago couldn’t use her right leg.
Taking on MS like a wild, warrior, woman.
So I walk regularly past this home with an amazing colour palette. The tones inspired me, I painted them a rock and left it on their veranda as a thank you ❤️
@PKMfantasies
@ask_aubry
Needed to go to the hospital, couldn’t drive as right leg paralysed. Husband of 27 years told me “I’m leaving you for good and you are no longer my problem” .
I got to the hospital and was diagnosed with multiple sclerosis.
My ex is no longer my problem.
Everyone is posting their bikini shots and I thought I’d post mine. It is a few years ago and kinda explains why I had a melanoma.
I use to walk with my dog to a nice spot, have a skinny dip and down a can of Bundy I tied in my sarong.
Opinion time.. I’m 51, yet to get any grey hair. I don’t colour it at all, I’m thinking of getting a few highlights. What do you think? Leave it or book that appointment?
I was absolutely spoiled for my birthday today. My gorgeous man made me breakfast, we went and checked on the cows then he whisked me off to Lacy’s to spoil me rotten with jewellery. We finished the night at Trulli’s having amazing Italian food
A friend of mine with a creative mind and beautiful eye, snapped this. I told him it was too beautiful not to be shared.
The contrast of the natural shades and the vibrance of the butterfly are stunning.
Enjoy your Friday
I still grieve my old live. I miss the vibrate me that had a career and such but life is good. We get one shot at this and I’m going to make the absolute best of it. ❤️
@g_jayney
@ianbrown
If you are a registered nurse you need reporting because us nurses need to practice our profession on evidence based research not YouTube clips.
I needed the red wine and chill tonight.. a little confronting news regarding MS treatment that is complicated by recent melanoma.. but hey, it’s life. None of us get out of this alive
This is what happens when you suspect a scammer, they take the rubbish out for you. I always ask for a pic doing an action, I always look at you they are following. If it’s mostly women, it’s a red flag.
I’m feeling a little MS today.. I dragged myself to the shops for a coffee. If gives me so much joy seeing my love rocks in local businesses, it’s just what I needed
I had a great grandfather who was a light horse man, a grandfather who was in the pacific in WW2. An uncle in Vietnam who they waited to return to be my godfather.
They never participated in ANZAC day, they also never really talked about it. Lest we forget
Today I had a visit from Charlotte. Not only did she make my day but she smiled and waved to every patient as she walked past their rooms bringing so much joy. I think the rehab ward needs weekly Charlotte therapy ❤️