So, I'm in the ICU. Somehow I got a parainfluenza virus. I've been on bipap since yesterday. This shit is exhausting. First illness since before my cancer in 2018.
#FuckCamcer
#maskUp
@ThanksCancer
Pre-cancer me. I miss the energy I had. Today is sunny and warm and I would normally be spending it in my yard and garden. Which is now a disaster. But I’m still holding strong.
@ThanksCancer
I’ve made it to another birthday after my diagnosis. 4 years ago I was in the middle of testing, but we knew I had cancer of some sort. In my wildest nightmares, I never thought I would be in my 40’s with a rare incurable form of blood cancer. Every year is a gift.
@ThanksCancer
@AshleyGWinter
Last month my daughter miscarried and was bleeding out. She was rushed into surgery at 3am for a life saving abortion.
I don’t care what the reason for anyone else’s contraception or abortion, it’s healthcare. End stop.
Dr upped a bunch of meds this morning and we’re attempting room air for a bit. The cough is the hardest part of not being on bipap for me right now. But I’m hoping I can step down from the ICU today or tomorrow. I miss home.
#KeepMasking
my
#cancer
friends.
@ThanksCancer
@Peds_Ortho
So many patients in my Multiple Myeloma support groups who found out through ED trips after a chiropractor broke their lesion ridden bones. 😡
I met Bonnie at a cancer retreat last year. She was a very tiny human with an adventurous spirit. The day she found out she had cancer they offered hospice. She left the hospital and went skydiving. She checked off her bucket list and spoiled her nieces and nephews until the end.
I did it! Finally finished an entire cycle of this chemo. Even ate a little infusion snack. Lost 10lbs this week, but I’m mostly feeling ok. Just really tired.
@ThanksCancer
Early morning picture, but having my hair grow out on treatment and be healthy has been amazing.
Life has been rough lately, but the little things get you through.
#myeloma
@ThanksCancer
9 hour day at the clinic. 6 of that was infusions. Last night sucked. Feeling a little better today and even got some very early grocery shopping done.
So far all my labs are doing good and the study is still working. Over 5 years with
#MultipleMyeloma
💪🏼🤞🏼
So, just stepped down from the ICU. First step in my new room is to ask my nurse to put on a mask, and make a sign for my door.
I'm in here for a common virus that almost killed me, a cancer patient.
It's a hospital.
This is not normal.
@ThanksCancer
#KeepMasksInHealthCare
@arabellesicardi
Running errands together is my love language. Platonic or romantic, it’s the best quality time. Second best, organizing/building things together.
The funny thing about
#CancerTwitter
is that we're so active because most of us are too tired to do anything else but sit and talk to each other online for days/weeks/months at a time. Which is ok. We're in this together and loneliness helps none. 💪🏽♥️
@ThanksCancer
We tried getting off the bipap and onto a pressurized warm canula. It didn't go as desired so I'm back on bipap. But I figured out how to slip my glasses under, so that's a big win!
This is going to be a long icu stay and we're gonna need some help....
Got up early this morning for my weekly
#chemo
. Feeling a little haggard today, but I’m here. Peace and comfort to all my
#carcenomies
today. 🫶🏼🦄
@ThanksCancer
1/2 My friend who has been houseless due to her long battle with stage 4 metastatic breast cancer will be coming to my home tomorrow to check out her room. She had her spine fused and they put her on a cot in a shelter. I’m hoping she’ll stay here for good.
@ThanksCancer
“It’s so weird. You look so healthy and you’re so nice, you’d never think you were this sick.” -ED RN from last night.
Things not to say to a cancer patient.
@ThanksCancer
It's been a week since she's passed and I still haven't been able to go to her room. I know I'll have to go through her stuff and clean it out eventually. But I just can't go in there yet.
Tomorrow hospice is coming over for an intake for my friend with
#MBC
. We brought her into our home after she lost everything due to the inability to work through her treatments. It's going to be a hard day. This has been a rough week in our house.
Taking care of an MBC hospice patient while having chemo for multiple myeloma myself is definitely hard mode caregiving. But we’re managing.
Her body is starting to really shut down. Trying to keep her comfortable as possible.
@ThanksCancer
@RoxanneLaforge
@AshleyGWinter
My partner is a surgical nurse, you bet it's still considered an abortion. Banning abortion does not stop abortion. It kills women. There needs to be no purity test on it.
@Inadarkwood
As a cancer patient I feel completely disposable to the world right now. It sucks.
My partner is a nurse and seeing hospitalizations rise again and is worn out. Schools are starting back up and the next wave has already begun. It’s exhausting.
I’m not at the point yet. But I got to talk with my social worker about the events and set up for death with dignity and compassionate care. It’s comforting to know I live in a state I can have control of end of life care.
#terminal
#cancercare
@ThanksCancer
@koriialexandria
Did he give you a stretch goal? I’m thinking at this point, he’s gonna need a whole back piece worshiping you as his goddess. nothing simple either. You better look more glorious than this month’s Vogue cover on that skin of his.
@DGlaucomflecken
Meanwhile I am sitting here waiting to see if my insurance will cover $25,000 a month for 21 pills. Just to keep me alive. The US healthcare system is a nightmare And is sucking the life out of providers dealing with red tape.
Had a bad few days with this past infusion. But my daughter went out into the garden and made some amazing zucchini parmesan bites for dinner. We can now add this to our very short zucchini recipes.
In clinic today. Slept in this morning because I'm only having one infusion (Yay!). What are the odds I'll stay awake after the Benadryl? 🤔
#Chemotherapy
#Cancer
@ThanksCancer
The day before my weekly
#chemo
is my most energetic. Today is also the day I try to cook. The family has been waiting for my spaghetti sauce. So here it is, simmering until dinner.
After leaving the hospital from hell, I spent a very long night at home awake trying to monitor my stats until my oncologist office opened. This morning they sent me university hospital where I have my hemoc team. Currently much more comfortable.
Decided to go grocery shopping with my partner yesterday. Figured chemo was Thursday and I've been feeling ok the last few days. I was wrong. Everything hit me like a wall all at once. Sweats, nausea, fatigue, cramps, the "other stuff". Came home and slept 10 hours. Ugh.
My long day starts off with my first palliative care appointment. Then Labs, Hemoc donctor, and 4-5 hours of infusions to start round
#9
.
#Cancer
is a full time job.
@ThanksCancer
The guy in the room next to me at the clinic coded. They revived him, but oh man poor guy. He did have enough to yell "I think I'm still alive!" After they brought him back.
Oncology nurses are SUPER HEROS.
@RebeccaJJules
@thesp1
@AITA_online
Goddammit I read this out loud and now my partner WON’T STOP YODELING. When the 5 yr old granddaughter told him to stop, “I’m an adult! I do what I want!”. Send earplugs
@NotReida
@whimsikal
@uche_blackstock
I grew up Mormon and I'm an atheist polyamorist. My kids are mostly all adults and were raised with an amazing village and had pretty stable lives because of our polyamory.
@DGlaucomflecken
The funny thing is, in those countries they have better outcomes and higher life expectancy. So all of those arguments are pretty moot.
Every night I have to hype myself up for an hour or two before I actually take my pills. It's my daily reminder that my own blood is trying to kill me.
@ThanksCancer
Chemo Thursday. One of my favorite nurse who started on my unit 5 years ago snuck up to the research floor to visit me. These nurses are amazing. I see them more than my family and friends and they're always so kind and supportive. 💗
#silverlining
#myeloma
@ThanksCancer
I got a plane ticket for my birthday. I am supposed to leave Sunday. I’m trying not to freak out while my bank account is holding on with no money and my bills are past due, yet I’m flying, and it feels weird. I don’t need money at my destination, thank goodness.
@ManEatsCar
@PanickedFoodie
5 years of violent crippling vertigo and vomiting. Finally got to the right specialist. Diagnosed with Meniere’s after weeks of testing, had chemical labrynthectomy, then surgical. Go to new doctor years later when my other ear started up “I think you just need new glasses”. 🙄
It's my week off of
#chemo
. Hopefully I'll have enough energy to get some chores done. Yesterday was a hard emotional day. Today I'm trying to pull myself up and go on. Cancer is all encompassing, finances, relationships, body, soul...
It's ok to have bad days.
@ThanksCancer
May be getting lytic lesions in my foot. Was hoping I just had a fracture. Oncologist appointment next week. Seems so little to be causing so much pain.
Cancer sucks
@ThanksCancer
#MultipleMyeloma
Nurse at the lab: “What cycle is this for you?”
Me: “um… 17? 18? 19? I don’t know, I just show up every week and take a nap.”
#Myeloma
#Chemo
@ThanksCancer