I have brain damage (incl FASD) & profound emotional developmental stagnation. Behaviourally disinhibited. I do science, logic & chaos. I'm a pharmacologist.
I am back.
1. I am not going to do advocacy, it just reminds me that society is this superior species I can't function amongst and I actually want to not be related to as part of society
2. If you want to ask questions about FASD etc, tag me, DM me
3. I'll mainly reply to stuff
How to DIY fix any mental illness:
Just exercise! It will remove 96.46% of your mental illness in just two weeks!
Schizophrenia? Yeah it works for that.
Bipolar? Yep
Crippling OCD? Yep
Agoraphobia? You'll be going out in no time! Just by going out you'll be going out!
@Galaxibrain444
@wideeyedla
This is excellent. Pushing socialisation is dangerous.
I was pushed into socialisation a lot throughout my life and the result is now I hide in my flat and remove myself from society severely because I have that choice now.
@happy_nabby
Well trained police will tell people with extreme mental distress that they are safe. I have seen this kind of tactic in some police training programmes but they describe it as giving reassurance.
@laurenancona
I can imagine my tourettes would have a field day if I got charged with a crime...... I would be ticcing self incriminations galore. When the police took me under a mental health section (1 of >60 in my life) I told them I bought sulphuric acid to unalive someone with. I hadn't.
Autistic 1: youre an autistic too?
Autistic 2: yes
Autistic 1: You're in my tribe
Sick of this idea that if u are autistic you will get along with all other autistics because theyre in some presumed tribe
I have FASD w/ autistic traits & I have a bad track history w/ autistics
@Autistic_at_40
I think the infant / toddler / young child years are the worst. I'm not talking from my experience, I was horrifically abused, but from what I've read about and studied, people forget the lack of autonomy as a child and near total control over you as an infant feels horrid.
@HumanbeingAwk
I have reactive attachment disorder which is opposite to abandonment fears. I don't care when someone leaves as I never formed the ability to form human attachments anyway.
I am thankful that I was sectioned. I am thankful that I was restrained and sedated when I was putting myself in risk of death and others in severe danger with zero self control. I am thankful that I was made to take medication when acutely psychotic. It means I am alive today.
@Galaxibrain444
@wideeyedla
I have self isolated in my flat enough before that I forgot what outside life is like.
I don't care much that society doesn't accept me, I don't accept society so it's mutual understanding.
@JourneyofHope4U
What if your insomnia is neurological and not psychological, but it gets misdiagnosed as psychological at first?
I have FASD. CBT isn't going to change it, I've been there. My issue is a severe lack of an off switch in general & I don't get tired, not even after 4 days no sleep
I'm confused, why is it when people diagnosed with BPD hear voices, they will quite often be told it's part of the BPD? This sounds absurd to me that a PD would cause hallucinatons.
@EmergMedDr
The thought of a patient with a highly complex medical history and multiple specialist prescribed medications turning up to a surgery full of non full medical degree people is ... terrifying. I mean... errors can kill ๐
@AliArthPainter
I am both pro & anti euthanasia. Pro in principle, autonomy over ones life & death is important in that context. Anti in practice cos I don't believe any government is capable of running a truly ethical service and Canada is example of a government attempting euthanasia program.
New pinned post. I'm visually impaired and a long cane user. I also have global brain damage and severe behavioural issues. I disengage from any conversations that could become heated, and I no longer will announce I am disengaging when I do. I cannot afford a repeat of Facebook.
@HumanbeingAwk
Abuse/neglect history here. I come from a long line of people in my mother's family that would qualify as antisocial PD & I believe a couple got diagnosed in prison. I have major deficits in human things. I keep out of people's way severely and I will NEVER parent a child.
Can an antipsychotic act on psychosis overnight in some cases? I hear a lot about the time it takes to work, yet when I heard someone say "my son was doing better with his psychosis the next day" I thought - do high dose antipsychotics treat psychosis overnight?
I had a police incident last night. Also psych liaison interviewed me whilst I had half asleep so I have no memory of being interviewed. I think it is unethical to interview someone who is almost sleeptalking the answers.
@laurenancona
I'm weird. I live in severe self imposed isolation for safety reasons, and I don't get lonely at all, however I do get a bit of talking energy and when I take an Uber I want to talk to them and I like the ones that have wisdom and open mindedness.
My mental and neurodevelopmental disorders DO INDEED contain violent behaviour, risk to others as well as myself and hence dangerousness. I am not afraid to say that. Because people being too averse to talking about it is not helping people who do have these difficulties get help
@ekverstania
FASD here not mainly autistic but
"Be yourself" is TERRIBLE advice to give me in public ๐ if I'm myself expect the police to arrive, don't let me into that trap!
Pip changes - what about people who don't buy equipment or aids, which is loads of people, but who self fund private healthcare, or those that don't even do that but spend their pip on a hobby that's essential to their mental health? Why assume we all have equipment and aids???
Having free healthcare doesn't necessarily mean you can access it. Some people like me will choose to die instead of going to hospital because going to hospital is the wore option in certain situations. I do what I call DIY medicine to avoid healthcare.
Some people are terrified
@dysclinic
I quit most of the NHS as a result of the NHS, almost every doctor I see, carrying on the narrative that almost everything i have that hasn't got like a massively out of range blood value or crazy enough ECG (uncrazy but still odd results don't count) is due to my mental illness.
Me: cooking takes too long when I'm hungry, I get rage watching my food cook whilst I'm hungry, and then I end up eating snacks whilst my food is cooking
Person: you cook before you get really hungry
Me: how do you know when you will get hungry? Do people have scheduled hunger?
Who would have known that 213 people would follow a shit like me. I'm honoured and thankful to you all for making my time worthwhile on Twitter. FAR better than Farcebook
Go to a psych ward or secure unit and observe mental illness that renders you needing to be in a care home.
Look at severe depression where you will lie in bed long enough to lose bladder control and then not care.
Look at extreme anxiety that causes you to regularly pass out
Why do people with so called MH issues get the blame for the sick note culture? I would work and work till I totally broke with my mental illness but with a physical issue I hardly thought twice. My gp was amazing as was supportive in telling me to take my time each time I broke.
@AnnMemmott
@acamh
I had a special interest in forensic pathology, reading colour photo textbooks at 14, I wasn't emotionally bothered by the photos, I wanted to become a forensic pathologist... That was my dream job...
My point is even though my special interest was weird, it was productive
@kellykatxx
It's curious to see that these people go on about the harms of SSRIs but never the harms of keto on some populations.
Keto and intermittent fasting damn right tried to kill me. I may be unable to produce ketones with any real efficiency.
@ekverstania
@OGdukeneurosurg
Not the spastic part. Just the ataxic part. I don't get spasticity in my legs. My upper back and neck was said by my physio to be "like granite" but my limbs are ataxic. I haven't got truncal ataxia.... I'm waiting for rabbit hole research mode to engage on this.
How is a bowl of corn flakes enough for a breakfast in someone who goes to work all day???? Like how does that not last only 40 minutes before you're really hungry again? Or am I a weird creature?
@wideeyedla
A good placement for me would only be 1:1 work and no group work, and also tbh I would like staff to be trained to manage aggression because I have concern over staff managing me when I do get aggressive, they struggle to deal with it.
@laurenancona
But I'm at least fortunate that I live in the UK......if I lived in the US... Well my US friend told me not to visit because the police in her area are pretty bad and I have serious behavioural issues and tendency to ultra violently dissociate and holidays= stress.
@Shrink_at_Large
This is terrible. Crisis teams are tragically terrible. I've heard so many bad stories and I have my own (being half yelled at by them multiple times and lying that they are calling the police as a threat, my number is now blocked because I called them whilst dissociating?).
@DrAnnieHickox
The brain is biology
The mind is biology
Emotions are biology
Depression is biology
Reactions are biology
Thinking is biology
The approach is usually best multimodal. And always check for physical health issues like who knows they could have hypothyroidism, bad blood values etc
@adamfare1996
I had a "body language expert" as a friend. I rage quit the friendship after she started making up shit about me because of my body language, when I have tourettes and brain damage but ok ms expert
@HumanbeingAwk
I am under the definition of neurodivergent but I don't call myself neurodivergent because I am ostracised by neurodivergent places for having disabilities that trigger people apparently. Like neurobehavioural issues from highly suspected foetal alcohol syndrome.
Please can someone tell me, can someone have PTSD that only be consciously experienced/detected when directly physically thrown into a trigger (not by talking about it, I can talk about anything). Or am I not understanding myself. My PTSD doesn't seem to bother me outside of that
Apparently my NHS mental health team refused to diagnose me with complex PTSD because I didn't have the emotional component of abuse history. Weird. My private psych diagnosed me w/ complex PTSD because I do have other issues like avoiding hospitals and dissociative rage episodes
Don't assume that because someone is book smart and can type well, that they are going to be able to run their life at the level of an average adult. Some people have had severe child neglect, some have brain damage, some have neurodevelopmental disorders, I have all three. 4/4
I kind of feel like a basement human, where my computer is my only true friend, but its not a sad feeling, because I spend all day every day (except when i go out) on tech so I feel generally content. But take away my tech and take me out of my flat to live with others.....don't.
BMI ๐คฃ ๐คฃ
My BMI is 32.0 but my GP said he hasn't seen any evidence of it being a problem for me
I'm an ex competitive powerlifter with now chronic illness who lifts for 40 mins usually twice a week
My biceps still bulge
Muscularity runs in my dad's family in both sexes
@EmergMedDr
That's not reassuring at all that any one of us could end up in the neurosurgical unit if we had an accident or whatever, and there's some PA trying to start a trend of polls for whether they should do invasive exams on you.
I want there to be more awareness about people with severe behavioural disorders.
I get demonised a lot for having these issues. But it isn't appreciated that having severe behavioural disorders is most painful for the person that has them. I would love to be regulated.
@YesAnastasia13
@kakarot9911
@waysidewhelp
I'm chronically ill and I have a pharmacology degree ๐ I love flaunting that at doctors who tell me bullshit. One doctor said I should consult my private psych about my meds dose. I told him my psych let's me find the ideal dose and frequency for me. It's called trust. ๐
Never in my lifetime as a severely mentally ill person under the NHS who has been restrained 100s numbers of times in medical settings, have I had full body restraints used on me (except when police were involved)in a physical or mental hospital. Why does the US need to use them?
Something important that may not be clear on the outset to many.
Mental health charities can't deal with people who have significant disinhibition and whose crises are violent/excited delirium and require the police.
They only deal with the more moderate/mild people.
@angryhacademic
I have hypoxia, not related to covid but due to other reasons, just letting
#medtwitter
know that hypoxia that I have most of the day combined with exercise causes a fairly rapid decline into seizures, tachycardia, gasping for air, incontinence and muscle spasms and burning.
I got into Cambridge. I was highly commended. I left after two weeks when I ended up in a psych ward having an acute stress induced psychotic episode because I was physically bullied and I received zero support, came from a lifetime of severe neglect and abuse.
@v_novem
@LansleyAnna
I find it hilarious lol. Autism supremacy is endemic in the neurodivegent areas. They like to forget/ ignore the people that are disabled to fuckery by autism and comorbids that they wouldn't have otherwise, and no not everyone loves their autism and that's not to be cancelled.
Hello. I'm tired of humans for a reason I haven't found anyone else I've met here so far sharing.
I'll be back when I've spent enough time with forensic pathology special interests.
New pinned post. I have FASD and this is a form of global brain damage caused by my mother drinking a fair amount of alcohol during pregnancy. As a result of FASD, I make regular reading/wording errors on social media, and at times I misunderstand what you said. Please be patient
This needs to be pinned at this rate because people sometimes think this is physically impossible for me to have done ๐คฃ yeah it took 8 years, 6 secure unit incarcerations, multiple arrests, had to have a full time 1:1 support worker and they tried to expel me but FFS I did it!
Funny thing my GP said about my ADHD meds (dexamphetamine)
GP: *weighs me*
Me: I lost weight?
GP: well you are on speed
His humour ๐
I took my boots off to be weighed and together we decided to weigh my army boots first ๐ 1.75kg ๐
๐ ๐
They complain about the employment gap for things like autism and mental illness. But have they considered the level of disability that can be involved where no amount of practical accommodations will change this for many that currently are on unemployment & disability benefits?
With my chronic illnesses, I push myself as far as possible for a period of time and then I crash for a bit lying motionless in bed with YouTube, and then I push myself hard to do as much activity as I can force out of my body, and then crash. I know, criticise me lol.
@EllenWatson95
We didn't have toilet rolls for about 3 days. We had no milk for a week. No butter for two weeks. The staff said the budget for food had been exceeded so nurses were buying these things out of the kindness of their own heart.
NHS psych wards also have...other issues.
Some people can't get it because they've never been at risk of death, permanent disability or ending up in prison for their actions that the police or secure unit staff or A&E staff or whatever prevented. They would have been fine without. I wouldn't have been fine without.
I am thankful that I was sectioned. I am thankful that I was restrained and sedated when I was putting myself in risk of death and others in severe danger with zero self control. I am thankful that I was made to take medication when acutely psychotic. It means I am alive today.
Nurse on ward: tries to give me an injection I don't know what it is
Me: stop, what is that you are injecting me with
Nurse: enoxaparin, it's a -
Me: I know what that is, I'm a haemophiliac, are you trying to kill me?
Nurse: *looks confused*
๐คฆ๐ฝโโ๏ธ
As a pharmacologist, I am very frustrated in doctors' visits. I know stuff. My pharmacology degree at University College London included pharm + physiology, genetics, biochemistry x2, immunology, chemistry, neuroscience, statistics and I did optional module of pharmacoeconomics.
Some people aren't prepared to have a discussion, because they have decided they must be right, when in fact the thing is very nuanced and arguments from both sides are legitimate.
Human bias.
I am prepared to change my opinion on things in discussion if given evidence to.
@Shrink_at_Large
Retyped as typoed
I get written down as "known to mental health services" (when I'm taken in by the police to be sedated, psych liaison writes this) when I don't even have a mental health team, I self discharged two years ago....I have a private psych now.... Weird ๐
FASD with strong autistic traits here. Does anyone else, FASD or autism, find studying in libraries impossible because other people are in the same room and this completely throws you off?
I am having my first session with a peer support worker taking me out tomorrow, from the mental health charity that I know well, am popular in and trust. The peer support worker is my favourite worker there and I think it will go well. No demands made on me. RAD accommodated lol.
People. I am not malicious. I try hard to do things in a decent way and not cause shit. They didn't tell me for two fucking months and watched me become the problem person and allowed it to cascade when all they had to do was tell me.
The next day (yesterday), I called in 8/19
I have concern about anyone neurodevelopmentally impaired going into NHS mental health services. I have been abused not just in institutions but also by the outpatients services. See my entire thread in my reply to the post to see some of what I've been through.
@Shrink_at_Large
I have learnt from NHS mental health services: don't admit to suffering, swallow your feelings, desensitisation is a good method, do not ask for help ever, be tough, be a lone wolf, do not ask for support, expect to be incriminated.
HEY EVERYONE GUESS WHAT I'M A VICTIM OF THE PSYCHIATRY SYSTEM I'M BRAIN WASHED AND I SHOULD CURE MYSELF WITH LOVE AND KINDNESS
HAHAHAHA I DON'T NEED MEDICATION AND NOBODY NEEDS TO SAVE MY LIFE WHEN I'M IN EXCITED DELIRIUM
I HAVE NO BRAIN DAMAGE RIGHT
LOVE SOLVES ALLLLLLLL
I am glad when a researcher admits that you can't truly train emotional empathy into an adult or even a teenager who has never developed it in their life.
This should really be obvious.
However you can work around with other methods of learning.
"A study in The Lancet (2017) estimated 41% of pregnant women in UK drank alcohol while pregnant - the 4th highest in the world."
Its unsurprising that clinical FASD is much more common than autism. Sadly FASD is much less recognised, accomodated for & advocated for than autism
Hey everyone my account got hacked even though the website was interesting I fell for it lol
I mean it's nice to know who stalks my account but ... Lol
@autisticadele
In hospital in completely awful states, like one case I heard was a woman who ended up paralysed from the neck down from hanging, whilst still having her chronic pain syndrome but she was unable to communicate except by blinking
Other people are far more upset by my childhood abuse than I am.
Other people are far more angry about the NHS negligence in my life than I am (I don't care about it, I just make do with what I've got).
Other people fight for their rights, I avoid services and keep to myself.
I take 7 medications a day but without them I would be in prison/on a very long hospital order or dead, and if not dead I would be feeling very fucking unwell physically without all my meds,psych ones included because I would crash myself out repeatedly with extreme hyperactivity
@TraumaPhDandMe
I stopped asking for help years ago after they kept incarcerating me for my autism and putting me on high dose antipsychotics etc. I self discharged from mental health services, held a celebration on that day, am off the radar now including social services and happier. 1/2
@AliArthPainter
I don't get it how exercise can 'fix' existing mental illness. Every mentally ill person I know of in my life has a ton of complexity and needs ideally a multimodal, social, medical and psychological, approach. Exercise alone is a bit....too weak?
@SameiHuda
I remember such people dogpiled on me because I have a pharmacology degree, I must be buying into BIG PHARMA and all that crap. No, I literally just took a degree in it because I love that particular scientific study. I'm not paid by anyone, I don't have an agenda.
Whilst y'all trying to enforce 100% full social model (as opposed to finding the best of all three models and mixing) you may forget that some people don't enjoy being disabled and would just like to not have their disabilities and no I don't feel divergent I feel brain fucked.
@sassy_girl1000
@DrAnnieHickox
Medication saved my life. I have FASD and severe neurobehavioural problems. I was heading towards a forensic unit for a long time without medication.
So despite my account getting h*cked and the h**k sending a fuck ton of DMs like well over 100, this a**ount is not suspended.
Well I have a new account anyway so I'll be porting anyone who wants to stay in contact over to there
@IsabelRamirezRD
@ekverstania
Ive tried cold water immersion- it caused sympathetic activity- I had to be helped out because I had spasms and seizure like activity. It was tap water in the autumn cold. I didn't put ice cubes in, glad I didn't. I get some level such effects from other "parasympathetic" methods