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Long COVID Foundation Profile
Long COVID Foundation

@LongCFoundation

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USA based 501(c)(3) non-profit focused on supporting those with Long COVID & others affected by the COVID Pandemic. Chronic illness & chronic-viral advocates.

https://t.co/gYhkzBgIXD
Joined September 2023
Don't wanna be here? Send us removal request.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
2 months
The Long COVID Foundation is happy to be in charge of the “Athletes, Entertainers, & Other Notable People Who Get Long COVID+” List. It currently features 200 notable Long Haulers, filled with details. Link is below. You’re not alone. #LongCOVID #pwLC
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When Athletes, Entertainers, & Other Notable People Get Long Haul COVID+

The Long COVID Foundation has taken over the list of athletes, entertainers, & other notable people who get Long Haul COVID. There are currently 218 on the Long COVID list, with details and sources....

www.longcfoundation.org
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
Actress Christina Applegate revealed she’s suffered from #LongCOVID . She in turn contracted a chest infection & had wild heart problems. Her heart was speeding up on her. She experienced dizziness & had trouble eating. 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
Actor Colin Farrell suffered from #LongCOVID for at least 6 months. He decided to go running a week after his 1st #COVID infection & he felt that fueled his Long COVID. After his 2nd COVID infection he decided to lay low. #pwLC #LC #YoureNotAlone
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
23 days
Tron star, Jeff Bridges, contracted COVID in January of 2021 at the facility where he was receiving chemotherapy treatment. Soon thereafter he & his wife were both hospitalized due to COVID, her for 5 days & him for 5 weeks. #LongCOVID #pwLC 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
22 days
Jeff Bridges on his battle with COVID & Cancer: #LongCOVID #pwLC #LC #TreatLongCOVID #COVID #COVIDIsNotOver
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
2 months
Actress Alyssa Milano was still sick at least 2 years after getting #COVID . She felt like she was dying from #LongCOVID experiencing symptoms such as shortness of breath, loss of smell, hair loss, tingling in hands & feet, forgetfulness, & heart palpitations. 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
25 days
Jim Inhofe, now former United States Senator from Oklahoma, had to retire from the Senate due to his #LongCOVID . His activities day to day were too affected for him to continue in office he stated. #pwLC #LC 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
Dave Navarro, guitarist from Jane's Addiction & RHCP, is another that's made the list of notable COVID Long Haulers. He caught COVID 12/2021. Navarro explained on Instagram "So yeah, I'm one of the ones who came down with the 'Long Haul COVID.'" #LongCOVID #pwLC #LC 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
30 days
Dianna Cowern, known as “Physics Girl”, has suffered from severe #LongCOVID since July of 2022. She was hospitalized for same in March of 2023. Dianna has faced tremendous difficulties with being able to think, not even being able to use her phone to text at times. 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
26 days
Actress & business woman, Gwyneth Paltrow, is another notable COVID Long Hauler. Her struggles started early in 2020. She felt continued fatigue & brain fog from LC. Tests performed about a year later showed she had really high levels of inflammation. #LongCOVID #pwLC 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
Author Derek Draper was hospitalized with #COVID 3/2020. He was in critical condition for weeks & put into an induced coma. He remained in the hospital for more than a year. He struggled to speak after contracting SC2 & required around the clock care. #LongCOVID #pwLC 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
18 days
Karl Anthony-Towns, Minnesota T-Wolves Star 🏀, has had one of the toughest experiences with COVID we have ever heard. Karl contracted long term COVID starting 1/15/21 & missed 13 games. He was extremely sick at times & very scared. #LongCOVID #pwLC 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
2 months
Actress Anna Camp, seen in Pitch Perfect & True Blood, came down with #LongCOVID in the summer of 2020. She stated she forewent wearing a mask one time & ended up getting #COVID . She’s concerned about long term damage & how it will affect her immune system. 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
Billie Eilish said she battled acute COVID starting in 8/21 for nearly 2 months. “I wasn't going to die, but that does not take away from how miserable it was. I mean, it was terrible. I still have side effects (stated this 4 months after initial infection).” #LongCOVID 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
23 days
Jeff said, “My dance with COVID makes my cancer look like a piece of cake 🍰.” Months later he was still working on strengthening his lung capacity & trying to get off of supplemental oxygen that he had been relying on since his COVID diagnosis.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
25 days
@weeklyshowpod #LongCOVID is the biggest threat to health that’s not being talked about. We need more voices to speak up about it. Cancer rising, tuberculosis rising, chronic illness through the roof, people need help.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
Actor Bryan Cranston suffered from symptoms of COVID-19 for months after his initial infection in March of 2020. 6 months after his acute infection he still had reduced/altered sense of taste & smell. #LongCOVID #pwLC #LC #YoureNotAlone 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
22 days
Who else would like to know why “Long COVID” is being erased from Long COVID Bills? It’s being replaced with terms such as Infection Associated Chronic Conditions. You can see the removal of #LongCOVID in this California BIll #AB3119 . 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
David Lindsey, guitarist of the band El Rayo-X, passed away due to #LongCOVID complications. He contracted COVID in 2020 & developed Long COVID. He battled chronic kidney damage & opportunistic infections because of his Long COVID. #pwLC #LC 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
Prior to revealing her Long COVID struggles she stated she was suffering from MS, which started a few months before her announcement of it in August of 2021. She is now seen walking with a cane. Could COVID have been an unknown contributing factor?
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
28 days
Actor Emilio Estevez, featured in movies such as The Mighty Ducks, The Outsiders, & The Breakfast Club, contracted COVID in March of 2020. He stated he suffered from #LongCOVID at least into the fall of 2020. 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
2 months
A CT revealed her small blood vessels in her lungs were operating at 30% capacity. You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below: #LongCOVID #pwLC #LC #YoureNotAlone
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When Athletes, Entertainers, & Other Notable People Get Long Haul COVID+

The Long COVID Foundation has taken over the list of athletes, entertainers, & other notable people who get Long Haul COVID. There are currently 218 on the Long COVID list, with details and sources....

www.longcfoundation.org
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below: #LongCOVID #pwLC #LC #YoureNotAlone #MS
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When Athletes, Entertainers, & Other Notable People Get Long Haul COVID+

The Long COVID Foundation has taken over the list of athletes, entertainers, & other notable people who get Long Haul COVID. There are currently 218 on the Long COVID list, with details and sources....

www.longcfoundation.org
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
23 days
You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below: #LongCOVID #pwLC #LC #Actor #YoureNotAlone
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When Athletes, Entertainers, & Other Notable People Get Long Haul COVID+

The Long COVID Foundation has taken over the list of athletes, entertainers, & other notable people who get Long Haul COVID. There are currently 218 on the Long COVID list, with details and sources....

www.longcfoundation.org
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
He passed away at age 56 due to Cardiac Arrest from COVID complications on January 3, 2024. May he rest in peace.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
16 days
Full body PET/CT Scan showing Long Hauler’s T cell activation in the link below. His T Cells are extra activated all over his body indicating his immune system is heightened, possibly due to persistent infection. #LongCOVID #pwLC #LC #TreatChronicCOVID #PETScan 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below: #LongCOVID #pwLC #LC
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When Athletes, Entertainers, & Other Notable People Get Long Haul COVID+

The Long COVID Foundation has taken over the list of athletes, entertainers, & other notable people who get Long Haul COVID. There are currently 218 on the Long COVID list, with details and sources....

www.longcfoundation.org
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
25 days
Jim suggested there were 5 or 6 others like him in office that had Long COVID, but wouldn’t admit it. You have to wonder how many people out in the world, notable or otherwise, are just not admitting they have Long COVID.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
Chris Cuomo, journalist for CNN at the time, contracted SARS-CoV-2 in April of 2020 & came down with #LongCOVID . He dealt with brain fog that just wouldn’t go away for several months (at a minimum). He was also unable to recover from trying to workout. 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
18 days
He was especially scared because his mother died due to COVID. She was placed on a vent, put into an induced coma, & passed at age 58. Additionally, KAT lost 7 other family members to COVID! Karl stated he received special treatment that he wishes was available to more people.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
11 days
Lewis Hamilton, Formula 1 driver, revealed he was suffering with Long COVID after he required medical attention in the wake of the Hungarian Grand Prix (race was on 8/21/21). Hamilton was visibly struggling after the 70-lap race. #LongCOVID #pwLC #LC 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
29 days
Eduardo Rodriguez, Major League Baseball pitcher, was diagnosed with Myocarditis due to COVID-19 & couldn’t play the entire 2020 season. Additionally, he would vomit after eating, lost his sense of taste & smell, & could only hold down water or juice. #LongCOVID #pwLC 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
4 months
We’re at #LCDC . What an event so far! Long Haulers making our voices heard for #LongCOVID . This is just amazing! #pwLC #LC
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
26 days
You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below: #LongCOVID #pwLC #LC
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When Athletes, Entertainers, & Other Notable People Get Long Haul COVID+

The Long COVID Foundation has taken over the list of athletes, entertainers, & other notable people who get Long Haul COVID. There are currently 218 on the Long COVID list, with details and sources....

www.longcfoundation.org
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
30 days
She’s faced struggles being able to move as well, along with unrelenting fatigue. More than 1.5 years later she’s bed bound laying in a dark room avoiding all stimulants. @thephysicsgirl
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below: #LongCOVID #pwLC #LC #LongCOVIDKills
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When Athletes, Entertainers, & Other Notable People Get Long Haul COVID+

The Long COVID Foundation has taken over the list of athletes, entertainers, & other notable people who get Long Haul COVID. There are currently 218 on the Long COVID list, with details and sources....

www.longcfoundation.org
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
2 months
Al Roker, USA’s favorite weatherman, was off air for two months due to being hospitalized with deep vein thrombosis (blood clots). The clots developed after a fall 2022 bout of COVID-19. #LongCOVID #pwLC #LC 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
19 days
We spoke with Evan Low’s office regarding AB3119 again & have an update on the bill’s language, which is a Long COVID Bill that had LC removed from it by Long COVID Orgs. Specifically Lisa McCorkell of Patient Led & Angela Vazquez of Body Politic+. #LongCOVID #pwLC #LC 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
21 days
Mr. Linsanity, professional basketball player, Jermey Lin lost 20 pounds after contracting COVID & suffering with Long COVID. Lin returned to active competition eventually with the Beijing Ducks after a 10 month absence. @JLin7 #LongCOVID #pwLC #LC #Basketball #NBA #Linsanity
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
19 days
Jon Bon Jovi, you know him, has stated he's suffered from Long Haul COVID. There are not many details about his #LC . Almost 10 years ago, his vocal cords started atrophying (as of 2024). #LongCOVID #pwLC #LC #YoureNotAlone 🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
17 days
Jonathan Toews', Chicago Blackhawks Hockey Player, chronic illness journey started in February of 2020. He missed the entire 2020-21 season due to illness & revealed he had “chronic immune response syndrome." #LongCOVID #pwLC #LC 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
@FromExes We are just pointing out that famous people get Long COVID too, since so many are unaware this is going on. This has nothing to do with division. This is to try to accomplish the opposite. For people & the government to come together to realize how much of a problem this is.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
22 days
Thanks @LCAPCure for bringing this to our attention. We are appalled at the attempted erasure of Long COVID. This has been one of the biggest concerns for LCF. That Long COVID will be pushed into vagueness, renamed, & repackaged … not for the patients’ benefit.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
Body builder, & veteran, Cedric McMillan died at age 44 from a heart attack in 2022. He contracted SARS-CoV-2 3/2020. He had long term heart effects thereafter & also had trouble breathing. #LongCOVID He stated he almost died from his heart problems in July of 2021. 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
18 days
You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below: #LongCOVID #pwLC #LC #NBA #Basketball #YoureNotAlone
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When Athletes, Entertainers, & Other Notable People Get Long Haul COVID+

The Long COVID Foundation has taken over the list of athletes, entertainers, & other notable people who get Long Haul COVID. There are currently 218 on the Long COVID list, with details and sources....

www.longcfoundation.org
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
30 days
You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below: #LongCOVID #pwLC #LC #LongCOVIDKills
Tweet card media
When Athletes, Entertainers, & Other Notable People Get Long Haul COVID+

The Long COVID Foundation has taken over the list of athletes, entertainers, & other notable people who get Long Haul COVID. There are currently 218 on the Long COVID list, with details and sources....

www.longcfoundation.org
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
2 months
You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below: #LongCOVID #pwLC #LC #YoureNotAlone
Tweet card media
When Athletes, Entertainers, & Other Notable People Get Long Haul COVID+

The Long COVID Foundation has taken over the list of athletes, entertainers, & other notable people who get Long Haul COVID. There are currently 218 on the Long COVID list, with details and sources....

www.longcfoundation.org
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
16 days
UFC fighter Khamzat Chimaev contracted COVID in the fall of 2020. Manager Majdi Shammas said that Chimaev ‘thought he was going to die’ following an incident in which symptoms resulted in him having to go to the hospital. #LongCOVID #pwLC #LC #UFC 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
@EnnnDeee She does seem to mask at least part of the time, but you’d think she would be ultra careful being what state she’s in currently.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
9 months
We are very pleased to announce the official beginning of the “Long COVID Foundation” (LCF), a non-profit 501(c)(3), & release of its’ website . You can also find us on Instagram as well at longcovfoundation. 🧵🧵🧵
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HOME | LCF
www.longcfoundation.org
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
Bethany Frankel, TV personality & business tycoon, stated she’s had a worsening of her autoimmune condition POTS since her COVID. She also believes her COVID Vaccine made her condition worse as well. #LongCOVID #pwLC 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
"Been sick since December and supposedly will be back to my old self in… nobody knows how long." (Article was published 5/31/22) "If there are any of you who are still suffering … I'm just saying you aren't alone," he wrote.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
2 months
Anna lost much of her sense of smell & taste & experienced dizziness, extreme fatigue, upset stomach, nausea, vomiting, fever, & sinus issues.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
@EssjSongoku There is lots of EBV reactivation with COVID/Long COVID and that has been linked to MS. You’re right. Hence I wonder if COVID could be involved at all.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
6 months
We are calling on those with #LongCOVID to fill out our treatment survey. It was a real long labor “of love” due to all the information put in it & the slowness of Google Forms when you input a certain level of data, but it’s finally ready. The survey results will be provided
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
25 days
You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below: #LongCOVID #pwLC #LC #Senator
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When Athletes, Entertainers, & Other Notable People Get Long Haul COVID+

The Long COVID Foundation has taken over the list of athletes, entertainers, & other notable people who get Long Haul COVID. There are currently 218 on the Long COVID list, with details and sources....

www.longcfoundation.org
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
2 months
@solarface77 She got sick in April of 2020, so definitely not due to that since it was not available.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
26 days
She’s been working with a functional doctor to improve. Alcohol & sugar had to be cut out of her diet.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
24 days
Major League Baseball Player, Jared Walsh, first came down with COVID mid-2020, but caught it at least 2 other times as well. He was then robbed of baseball for a year, but also robbed of being able to sleep. #LongCOVID #pwLC 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
21 days
You can call Evan Low’s office to voice your concerns with the removal of “Long COVID” from a Long COVID Bill 3119. Call 916-319-2026. LCF is here to protect those with Long COVID, not water it down or erase it. That’s why we already called. You should call too! #LongCOVID
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
4 months
Long COVID Foundation Founder, Devin Russell, gave a speech on #LongCOVID at #LCDC , here it is: “Hello everyone, nice to see you here at the Lincoln Memorial for such a worthy cause. I can't help but feel a sense of camaraderie, knowing that we're all in this together,
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
2 months
Please call to ask for $28 billion/year for #LongCOVID . Call by May 7th to demand an adequate starting point for #pwLC & the funding they desperately need. We understand people may not have the spoons to call everyone, so here’s who you can prioritize: - Bernie Sanders
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
14 days
COVID persists in gut for over 2 years! #LongCOVID #pwLC #LC #TreatChronicCOVID
@polybioRF
PolyBio
@polybioRF
14 days
Breaking!: Research published today in Science Translational Medicine and supported by PolyBio Research Foundation shows that the #SARS -CoV-2 virus can chronically persist in the gut of patients with long COVID for over 2 years:
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Long COVID Foundation
@LongCFoundation
22 days
This is where people never receive proper testing & treatments. Where mitigation doesn’t become an important focus because well, Long COVID is nothing new. It’s just one of those IACCs & post viral. Unfortunately, it is unique. We have to fight for it to be treated as such.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
19 days
Great work everyone who called Evan Low’s office! They heard Long Haulers loud & clear & will work to get Long COVID back in AB3119, a Long COVID Bill, after advocates from Patient Led & Body Politic+ had it removed. #LongCOVID #pwLC #LC #KeepLongCOVIDInLongCOVID #PatientsFirst
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
3 months
NIH Director states that COVID is chronic and persists in multiple areas of the body. This is huge news! It’s been difficult for the health agencies to say this with such certainty, but now they have. What does it mean for #LongCOVID ? It means we need antivirals developed and
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
4 months
Our #LongCOVID treatment survey is still open & submissions keep coming in. Thank you for everyone that’s filled it out so far #pwLC . If you haven’t yet, here is the link. Time for some interim results that you can see in the thread below. ⬇️⬇️⬇️⬇️⬇️
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Long COVID Foundation - Treatment Survey for Long COVID

The Long COVID Foundation (LCF) has created this extensive Long COVID Treatment Survey in order to ascertain what may be worthwhile to trial for COVID Long Haulers. The information will go to support...

docs.google.com
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
4 months
The Long COVID Foundation non-profit is pleased to announce that we are a 501(c)(3). And away we go … #LongCOVID #pwLC #LC #NotRecovered #Advocacy
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below: #LongCOVID #pwLC #LC
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When Athletes, Entertainers, & Other Notable People Get Long Haul COVID+

The Long COVID Foundation has taken over the list of athletes, entertainers, & other notable people who get Long Haul COVID. There are currently 218 on the Long COVID list, with details and sources....

www.longcfoundation.org
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
19 days
There is concerted push for the language surrounding Long COVID to go in a direction of vagueness, for whatever reason, & that is harmful to COVID Long Haulers. Language & details regarding implementation matter a lot.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
You can find the Long COVID Foundation’s list of athletes & other notable people who have had Long COVID below: #LongCOVID #pwLC #LC #YoureNotAlone
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When Athletes, Entertainers, & Other Notable People Get Long Haul COVID+

The Long COVID Foundation has taken over the list of athletes, entertainers, & other notable people who get Long Haul COVID. There are currently 218 on the Long COVID list, with details and sources....

www.longcfoundation.org
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
@s33ker_truth If you’re referring to the vaccine, he got sick in March 2020, long before a vaccine for COVID.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
"The fatigue and isolation is pretty awful but try to spend your time with the ones you love and stay creative. That's how I'm trying to get through this thing. Also lots of spiritual practices, meditation and yoga have been very helpful. I'll be OK, just don't know when."
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
8 months
Today is the day! It’s action time! LCF, in conjunction with @LongCovidAP , call upon the #LongCOVID & #COVID conscious community to email their local school districts to ascertain their COVID mitigation procedures. Below is the template to work from. 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
The Long COVID Foundation has gone into detail regarding our thoughts on the NASEM Long COVID definition. Our pros, cons, & hmms are listed below. The link will provide more detail for our reasoning. Let us know what you think. #LongCOVID #pwLC #LC #NASEM #Definition
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
22 days
Here is the amended text showing the removal of Long COVID throughout #AB3119 in California. The question is who is working to erase Long COVID? The politicians didn’t come up with the idea to replace it with IACC. #LongCOVID #pwLC #LC #PutPatientsFirst
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
22 days
It’s horrible what some, even in our own Long COVID Community, due to erase Long COVID. Repeating history is far too dangerous, especially in this instance. We urge you to push back against this harmful approach, that’s dangerous for tens of millions of people in the USA.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
@John85007155 Oh SARS-CoV-2 is unique & thus is Long COVID. It’s a wretched virus. Tunneling nanotubes doesn’t happen with just ole anything. They walked that back afterwards I believe.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
19 days
Who is developing the education materials for the medical field on Long COVID & what are they going to say? Will it be a situation where the education materials don’t reflect the uniqueness & seriousness of Long COVID? Like the changes to this bill.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
6 months
Our treatment survey is piling up the responses. We are right near triple digits in just a few days. Please fill out & share. We need as much information as possible to help guide #LongCOVID treatment trials. #pwLC #LC #NotRecovered #TreatLongCOVID
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Long COVID Foundation - Treatment Survey for Long COVID

The Long COVID Foundation (LCF) has created this extensive Long COVID Treatment Survey in order to ascertain what may be worthwhile to trial for COVID Long Haulers. The information will go to support...

docs.google.com
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
2 months
@AxelrodIcarus She seems to have improved significantly from her perosnal IG, but you can never easily tell for certain. Unfortunately, it’s not always simple to get updates. Often there is a news rush of stories on a star’s Long COVID & then that’s it.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
2 months
Asia Durr missed two seasons of playing professional basketball in the WNBA for the New York Liberty due to #LongCOVID . She experienced fatigue, headaches, & a feeling of fog when it came to concentration & memory. She was up & down with her symptoms throughout. 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
22 days
Here’s what you can do: - Reach out to the people in the post below & demand the bill’s language return to “Long COVID”. - Suggest they create a separate bill for other chronic illnesses. - Ask them who changed the language in the bill & why? Who influenced that?
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
19 days
It might be a combination of the original Long COVID Bill & the altered one & still have “Infection Associated Chronic Conditions” as the focus, with Long COVID stuck in the body somewhere. This brings up an important question, besides the language.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
19 days
@thesicktimes Here is a good story for you to write about. Long COVID advocates removing “Long COVID” from a Long COVID Bill.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
19 days
The bill can’t currently be changed, but once out of the current committee they will work to get Long COVID put back in the bill once on the floor. What that will look like exactly is unclear, but they will email us when changes are made, which will we share with the community.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
6 months
Long COVID Foundation - Treatment Survey for Long COVID #LongCOVID #pwLC #LC #NotRecovered #TreatLongCOVID
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Long COVID Foundation - Treatment Survey for Long COVID

The Long COVID Foundation (LCF) has created this extensive Long COVID Treatment Survey in order to ascertain what may be worthwhile to trial for COVID Long Haulers. The information will go to support...

docs.google.com
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
22 days
Remind them Long COVID is a unique & a tremendously large, ever growing problem. 23 million+ people in the USA alone have active LC. Thousands, in the least, have died due to Long COVID. Continuing airborne reinfections poses a major problem. And that SARS-CoV-2 is chronic.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
9 months
Our 1st action will be to push for COVID mitigation in schools. We will need the community to participate in this action. More to come shortly. COVID suppression & viral load reduction are very important to us at LCF. There are far too many already with #LongCOVID .
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
2 months
@JCStarbuck3 I’m so sorry. We have certainly seen Long COVID contribute to suicides. We’re trying to bring some more attention. There are many people that don’t even know the term Long COVID still.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
28 days
Estevez was concerned when production of “The Mighty Ducks: Game Changers” restarted production. He was uncertain how safe the set would be & questioned the wisdom of returning to make a tv show in the middle of a pandemic.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
1 month
@_APWK_ Not everyone is vaccinated that has Long COVID & such a large portion of people had it in 2020 before vaccines were available. Something to consider.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
3 months
Thank you Jalen @itsJalenB for writing on the incredibly important overlooked issue of #LongCOVID . You can read the article on Bernie Sanders’ proposed legislation for #LC & some of the issues with that legislation below. #pwLC #NotRecovered #WeNeedMore
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
4 months
Watch the #LCDC live stream for #LongCOVID !
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LCDC March 15
www.youtube.com
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
2 months
Alphonso Davies is a great soccer talent who plays for Bayern Munich & on the Canadian National Team. At age 21 his career was in jeopardy though after developing Myocarditis from #SARSCoV2 . He was worried he would never play again. 🧵🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
4 months
We need help #HHS . Tens of millions of us with #LongCOVID . We need antivirals and other treatments now! #pwLC #LC #Notarecovered #TreatLongCOVID
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
2 months
Andrew Gwynne, member of the United Kingdom’s Parliament, revealed he almost collapsed in the House of Commons due to #LongCOVID . He caught COVID-19 in March of 2020 & was perpetually exhausted afterwards. 🧵🧵
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
4 months
Here’s an update on some back office & other things for the Long COVID Foundation (LCF): As you may know the non-profit LCF was formed on 9/27/23, as you can see here on the New York Department of State Division of Corporations Website.
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@LongCFoundation
Long COVID Foundation
@LongCFoundation
2 months
@KeithJajko She contracted COVID-19 in April of 2020. No COVID Vaccines available at the time.
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