Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹ Profile Banner
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹ Profile
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹

@Emma4facs

3,919
Followers
4,099
Following
6,708
Media
124,679
Statuses

Co founder @Infactuk Official Campaign/Trust for AEDs in Pregnancy๐Ÿคฐ Mum of 6 โค๏ธ Keynote Speaker & Award Winning Campaigner & Podcaster #FVSD #FACS #Epilepsy

Manchester/London/Worldwide
Joined April 2011
Don't wanna be here? Send us removal request.
Pinned Tweet
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
On this Xmas, so very proud to be recognised alongside @JanetWilliams99 by @thetimes for โ€œ The Alternative Honours Listโ€ For years we begged people to support our work & campaign for 1 of THE biggest medical scandals Finally we achieved that๐Ÿ™Œ๐Ÿผ
3
6
28
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
3 years
My amazing husband โ€ฆ.. need lots of prayers and positivity ๐Ÿ˜ข๐Ÿ’”๐Ÿ˜ข
Tweet media one
68
10
927
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
3 years
@DrAseemMalhotra Keep doing your great work and holding those to account ๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘
4
19
271
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
5 years
This week has left my family heartbroken. But I thank God to the amazing NHS Surgeons and Staff that have saved my husbands life after a 10cm Aneurysm on his heart was found and operated on. A long road to recovery but he is ALIVE ๐Ÿ’”๐Ÿ˜ฅ๐Ÿ’”๐Ÿ˜ฅ๐Ÿ’”๐Ÿ˜ฅ๐Ÿ’”
Tweet media one
25
9
177
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
3 years
My husband is fighting for his life in hospital โ€ฆโ€ฆ. Yet I canโ€™t visit him๐Ÿ’”๐Ÿ˜ข My 2 children this week tested positive for #COVID19 so I am โ€œdoing my legal duty โ€œ having to self isolate ( words said to me by test and trace) Why one rule for us ? #pisstake
Tweet media one
18
32
126
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
1 year
#alevelresults2023 Born at 31 weeks with a hole in her heart. Diagnosed with Fetal Valproate Spectrum Disorder/ Autism Cerebral Palsy Athsma Hypermobility Itโ€™s been very tough at times but sheโ€™s never let her disabilities stop her. Thatโ€™s our girl โค๏ธ ๐Ÿคฉ ๐Ÿ‘๐Ÿคฉ๐Ÿ‘๐Ÿคฉ
Tweet media one
10
7
121
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
4 years
Saying it how it is on @BBCNews โžก๏ธSanofi knew of the risk in 1973 โžก๏ธSanofi Warned the Government at liscensing โžก๏ธThe Government purposely hid and Denied the knowledge of risk to women โ€œDue to fear of litigationโ€ #FirstDoNoHarm #Patientsafety #valproatecrisis @JanetWilliams99
9
63
108
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
#PlatinumJubilee Delighted to announce that following 30yrs of voluntary dedication in raising awareness of #valproate and #AEDsinpregnancy @JanetWilliams99 has been awarded an MBE For โ€œServices to people with disabilitiesโ€ @CatSmithMP @Infactuk @cabinetofficeuk #fvsd #facs
Tweet media one
Tweet media two
Tweet media three
Tweet media four
16
21
97
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
4 years
@jessphillips You know when you think you canโ€™t get any more speechless by hypocrisy....... these are children ๐Ÿ˜ข๐Ÿ˜ข Absolutely saddens me so much ๐Ÿ’”
1
8
81
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
6 years
Honoured & so proud to Receive โ€œSpecial Recognition Awardโ€ for our National Campaign and work we do. Women have a basic human right to know #Epilepsy medicines may harm their babies when taken during pregnancy Weโ€™ll forever continue our work for informed choice #valproatecrisis
Tweet media one
5
27
72
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
4 years
Tweet media one
3
31
66
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
4 years
#Epilepsy absolutely won today. 2 hours of #seizures ๐Ÿง  I honestly donโ€™t know how I would cope if I didnโ€™t have my husband heโ€™s just the best ๐Ÿ’• Am absolutely exhausted, tearful, sore and aching ๐Ÿ˜ข๐Ÿ˜ข
25
1
65
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
5 years
Huge congratulations to @marksandspencer for using the Kaye Walker Frame in your promotions. My daughters frame is the only way she can walk independently so itโ€™s great to see such inclusion #CerebralPalsy #Inclusion #Disability ๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘
Tweet media one
Tweet media two
2
9
63
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
6 years
Today my babies heart stopped and was resuscitated by our amazing @NHSEngland Drs, just a โ€œnormalโ€ day in the lives of families affected by exposure to #epilepsy medicines @JanetWilliams99 @Jeremy_Hunt @jamesosh @normanlamb @IMMDSReview ๐Ÿ˜ข๐Ÿ˜ข๐Ÿ˜ข๐Ÿ˜ข๐Ÿ˜ข #valproatecrisis
Tweet media one
Tweet media two
9
18
53
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
3 years
Following my Official Complaint with regards #Burys failure with my sons EHCP, the SEN Dept have informed me they will name the college & amend his EHCP As Parents we shouldnโ€™t have to continuously submit complaints to get the correct support for our children with #disabilities
Tweet media one
8
14
51
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
3 years
#compensationforvalproate #valproatecrisis The Sunday Times @thesundaytimes @ShaunLintern officially supports our Campaign for Compensation for the thousands of babies, children & adults disabled to #valproate @Keir_Starmer @BorisJohnson @RishiSunak @sajidjavid @CatSmithMP
Tweet media one
Tweet media two
Tweet media three
Tweet media four
7
28
51
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
7 years
Tonight I listened to such an empowering, thought provoking and utterly inspirational story by @AngelaRayner She is the here and now and the future for our children/grandchildren . An absolute pleasure and honour to finally meet you ๐Ÿ‘๐Ÿผ๐Ÿ‘๐Ÿผ๐Ÿ‘๐Ÿผ @JanetWilliams99 @AndreaLSimpson
Tweet media one
Tweet media two
2
19
47
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
8 years
1st time ever my son (11) just told me he loved me.... for children with Autism that's a big thing for parents ๐Ÿ’˜๐Ÿ’˜๐Ÿ’˜๐Ÿ’˜๐Ÿ’˜๐Ÿ’˜ #Autism #facs
3
6
50
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
Today Iโ€™m the proudest mum ever, my heart could burst ๐Ÿ’•๐Ÿ’•๐Ÿ’• My daughter is off to Edge Hill University ๐Ÿคฉ๐Ÿ˜๐Ÿ’•๐Ÿคฉ๐Ÿ˜๐Ÿ’•๐Ÿคฉ๐Ÿ˜๐Ÿ’• #fetalvalproatespectrumdisorder #fvsd #nevergiveup #keepgoing #dontletanythingstopyou #keepgoing #disabilities #thatsmygirl
Tweet media one
5
1
51
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
4 years
@jessphillips Absolutely appalling and insulting..... Iโ€™ve a 3 year old and was so very poorly. I still had to get on with it, with my sick husband following heart surgery and also my children with disabilities ๐Ÿคฌ๐Ÿคฌ๐Ÿคฌ๐Ÿคฌ
1
1
49
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
8 years
Tweet media one
1
19
44
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
3 years
The advancements with Hearing Aids ๐Ÿ‘‚๐Ÿ‘‚ just picked up my daughters and they now connect to Bluetooth enabling her to listen to her music. Itโ€™s her birthday today and sheโ€™s absolutely over the moon ๐ŸŽ‚ #hearingloss #deafness #fetalvalproatespectrumdisorder
Tweet media one
5
1
43
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
7 years
Just coming for tea......... Itโ€™s not everyday you see the beautiful @MerylStreepPage #starstruck #mamamia
Tweet media one
Tweet media two
Tweet media three
2
7
45
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
7 years
As a National Campaign Camapign all we are asking is that women are informed of the dangers of #Epilepsy medicines taken during pregnancy
Tweet media one
1
32
44
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
7 years
@AndyBurnhamGM @ArianaGrande Such a fabulous, amazing event. Cried with my daughters. Proud to be from Manchester yesterday,today and every other day #OneLoveManchester
0
4
40
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
6 years
@jessphillips Itโ€™s dismal,Iโ€™m fighting to get services for my children that they should be entitled to but funding has been cut. As parents life is hard enough to then go &!fight authorities/hospitals for care needs for our children ๐Ÿคฏ๐Ÿ™„๐Ÿคฏ๐Ÿ™„๐Ÿฅบ #fetalvalproatespecturmdisorder #valproatecrisis
2
10
38
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
Another proud mum post ๐Ÿคฉ๐Ÿ’•๐Ÿ˜ My little fighter Lauren, my 3lb premature baby who has had to fight the hardest & overcome barriers but always done so with steel grit, determination & a smile ๐Ÿ˜ƒ has been offered her chosen University of #Salford to Study Psychology #fvsd
Tweet media one
Tweet media two
Tweet media three
Tweet media four
4
2
43
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
7 years
I absolutely love when @AngelaRayner is speaking, holding the opposition accountable and rightly so @JoPlattMP @jeremycorbyn @UKLabour ๐Ÿ‘๐Ÿ˜˜๐Ÿ‘๐Ÿ˜˜
3
15
36
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
5 years
Please keep praying for my amazing husband.... heโ€™s currently awaiting heart surgery ๐Ÿ’”๐Ÿ’•๐Ÿ’”๐Ÿ’•๐Ÿ’”๐Ÿ’•๐Ÿ’”๐Ÿ’•๐Ÿ’”๐Ÿ’•
25
2
41
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
3 years
๐Ÿ™Œ๐Ÿผ๐Ÿ™Œ๐Ÿผ๐Ÿ™Œ๐Ÿผ๐Ÿ™Œ๐Ÿผ๐Ÿ™Œ๐Ÿผ๐Ÿ™Œ๐Ÿผ๐Ÿ™Œ๐Ÿผ๐Ÿ™Œ๐Ÿผ
Tweet media one
0
12
42
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
5 years
#Oliverscampaign Such fabulous news for lovely @PaulaMc007 This story demonstrates how good effective campaigning can and should be done and the lengths we as parents will go to get justice and the truth for our children #Valproatecrisis RIP Oliver ๐Ÿ’•
1
11
36
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
9 years
As a National Campaign all we are asking for is women to be informed about the dangers of #epilepsy medicines taken in Pregnancy #nottomuch
10
45
36
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
๐Ÿ”Move Mountains by Climbing Them๐Ÿ™Œ๐Ÿผ I never anticipated how hard it would be but I think the weather played a huge part of it โ˜€๏ธ โ˜€๏ธโ˜€๏ธโ˜€๏ธ Apart from my children THE biggest achievement ever NEVER to be done again ๐Ÿคฃ๐Ÿ™Œ๐Ÿผ๐Ÿ”๐Ÿคฃ๐Ÿ™Œ๐Ÿผ๐Ÿ”
Tweet media one
Tweet media two
Tweet media three
Tweet media four
9
4
38
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
4 years
@JoanneMckinlay4 @LeslieRickeyMD @DrLAckerman @BethMuellerMD @brubaker1030 This really is an insult. I literally had 10 if not more glasses of water last night whilst crippled at the toilet , blood in urine, shivering , feeling sick, pain in my lower back. Water didnโ€™t help that much neither did the Cranberry Juice as suggested by 111 ๐Ÿฅฒ๐Ÿฅฒ
1
0
37
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
1 year
My daughter is currently Year 3 and last year studying Health & Social Care. For her last research assignment she picked The #Valproatecrisis Story and How herself having Fetal Valproate Spectrum Disorder affects her life. Iโ€™m so proudโ€ฆ. She achieved A* โค๏ธ๐Ÿ’ซ
Tweet media one
2
4
37
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
5 years
Today we received full backing, support & future collaboration from @WHO for Valproate in Pregnancy and for better care for women with #Epilepsy @Ajaxjam @facsnzawareness @Ajaxjam @normanlamb @jamesosh @JuliaCumberlege @CatSmithMP @LizMcInnes_MP @JoPlattMP @RosieDuffield1 #APPG
Tweet media one
4
10
36
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
7 years
Tweet media one
5
18
34
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
3 years
So sad about Sarah Harding. My mum was 42 when she passed away #breastcancer I thought she was young, but 39 is so young ๐Ÿ˜ข Ladies & Gents keep checking your breasts, donโ€™t feel paranoid or โ€œitโ€™s nothingโ€ From personal experience, it can save your life ๐Ÿ’” #RIPSarahHarding
Tweet media one
0
5
37
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
9 months
Huge Thank You to @vicderbyshire @BBCNewsnight for featuring our National Campaign on tonightโ€™s show You have already helped so much with awareness of Fetal Valproate Spectrum Disorder ! ๐Ÿซถ๐Ÿป @JanetWilliams99 #CompensationforValproate #Valproatecrisis #FVSD
Tweet media one
2
16
35
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
3 years
@RealDeniseWelch Just watching the football, stadiums back to full capacity, which is fantastic ๐Ÿ™Œ๐Ÿผ๐Ÿ™Œ๐Ÿผ๐Ÿ™Œ๐Ÿผ๐Ÿ™Œ๐Ÿผ Yet hardly any masks being worn? However our children have to wear masks ?? Just so contradictory like everything else ๐Ÿฅบ๐Ÿฅบ
8
0
34
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
40 weeks ago I started my training for #BenNevis It has been the biggest but the best challenge Iโ€™ve lost weight & inches Feel a bit fitter than I did before On Saturday I will climb for the 20,000 persons disabled by #valproatecrisis
Tweet media one
Tweet media two
Tweet media three
0
8
33
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
3 years
@janemerrick23 Your the best lovely ๐Ÿคฉ๐Ÿคฉ๐Ÿคฉ Keep hyping yourself up and be proud ๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘
2
0
33
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
6 years
@EmmaHardyMP Emma, you were fabulous today. Such a passionate and heart felt speech. The best of the day ๐Ÿ˜˜๐Ÿ‘๐Ÿ˜˜๐Ÿ‘๐Ÿ˜˜
0
0
31
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
9 months
#Valproatecrisis Today new prescribing measures for #Valproate come into force #Valproate must NOT be started in new patients (male or female) younger than 55 years,unless 2 specialists independently consider & document that there is no other effective or tolerated treatment
Tweet media one
Tweet media two
4
17
34
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
9 months
Tweet media one
1
12
34
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
6 years
We can now finally Confirm from the Health Minister @jamesosh @MHRAmedicines that a Valproate Register is being introduced, meaning that for women who HAVE to be on Sodium Valproate they will be tracked and monitored regularly @JanetWilliams99 @normanlamb
Tweet media one
1
15
32
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
4 years
@eliistender10 @TVSanjeev @UnforgottenTV Jesus.... crying again now ๐Ÿ˜ข๐Ÿ˜ข What a fabulous series, very well done, great acting as always ๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘
0
0
32
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
5 years
1๏ธโƒฃ5๏ธโƒฃ years ago at 31 weeks in the car park at Hope Hospital in Hubbys taxi, I gave birth to the smallest baby I had ever seen. Lauren weighed 3lb and was very poorly for a long time. Despite everything we were told by lots of different Drs, today she turns 15 ๐Ÿพ๐ŸŽ‚๐Ÿง๐Ÿญ๐ŸŽˆ๐Ÿ›๐ŸŽŠ๐ŸŽ๐ŸŽ‰
Tweet media one
Tweet media two
Tweet media three
Tweet media four
4
3
31
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
3 years
With the Workwife #BAPSawards ๐Ÿ’—
Tweet media one
5
2
32
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
7 years
5 Years of Campaigning on the Safety Of Sodium Valproate has finally paid off. The European Medicines Agency have...
4
10
30
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
4 years
To all fellow campaigners and families harmed by the 3 interventions, on such a monumentous week ..... Cheers #valproate #mesh #primodos #FirstDoNoHarm #valproatecrisis
Tweet media one
4
9
31
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
Health staff in England to be trained on learning disability and autism | NHS | The Guardian โฆ @PaulaMc007 โฉ โค๏ธ #oliverscampaign
1
7
30
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
#compensationforvalproate #valproatecrisis My beautiful inspirational daughter Lauren born at 31 weeks with a hole in her heart , #cerebralpalsy #autism #fetalvalproatespectrumdisorder #hypermobility #athsma To watch and hear her words , I am shattered but the proudest MUM ๐Ÿ’•
@ShaunLintern
Shaun Lintern
2 years
Watch and listen to the words of Lauren Murphy. The state owes a responsibility to help her and thousands like her 4/7
3
25
58
3
15
31
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
Yesterday my beautiful 3lb premature baby turned 1๏ธโƒฃ8๏ธโƒฃ She was born with a hole in her heart, #cerebralpalsy #fetalvalproatespectrumdisorder #autism and was a very poorly baby. She has defied the odds of what the Drs told me when she was a baby. Iโ€™m the proudest mum 1๏ธโƒฃ8๏ธโƒฃ๐Ÿพ๐Ÿ’ž๐Ÿคฉ๐Ÿ™Œ๐Ÿผ
Tweet media one
Tweet media two
Tweet media three
Tweet media four
5
3
30
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
The All Party Parliamentary Group for Valproate and other AEDs in Pregnancy would like to welcome long time supporter of our campaign/work @RosieDuffield1 as an officer. We @JanetWilliams99 @Infactuk look forward to working with you
Tweet media one
1
8
30
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
3 years
Parent Burnout is real and Iโ€™m feeling it ๐Ÿ˜ข๐Ÿ˜ข Today Iโ€™ve received my sons final EHCP with his post 16 college named. He will now get the support he needs to continue his education My thanks to my MP @Christian4BuryS for your support #fetalvalproatespectrumdisorder #autism
6
1
30
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
6 years
Iโ€™m publicly supporting this much needed campaign @PaulaMc007 @JanetWilliams99 @Jeremy_Hunt #patientsafety #informedchoice
0
20
27
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
3 years
A true pleasure to finally meet @MelanieLeahy at the #BAPSawards
Tweet media one
1
8
30
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
4 years
Ahead of the #cumberlegereview Announcement next week we @Infactuk want to publicly acknowledge & thank Mr Michael Mansfield QC & @NexusChambers for representing & supporting us with the Remit, answering the case for compensation/care plan for those harmed by #valproatecrisis
Tweet media one
2
14
30
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
Such a lovely, surreal morning for the most special lady in the World @JanetWilliams99 MBE - For services with people for disabilities #Honours #Windsorcastle @Infactuk @CatSmithMP Iโ€™m so proud of you Janet, my heart is bursting with pride โค๏ธ
Tweet media one
Tweet media two
Tweet media three
Tweet media four
6
6
30
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
Different to reading it online and feeling very teary ๐Ÿฅฒ ๐Ÿ’” An AVOIDABLE Man made Tragedy For 50 years EVERYONE watched it happen and still when we @JanetWilliams99 started our Campaign NO urgency despite the knowledge of causing Autism & lifelong physical disabilities
Tweet media one
0
19
30
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
4 years
2 years today my baby boy had his second operation on his Kidneys. Such a desperate, worrying time filled with lots of tears and not sleeping. This year aged 4 he had the best Xmas and brought such laughter and delight ๐Ÿ’œ๐ŸŽ„๐ŸŽ…๐Ÿป๐Ÿ’œ๐ŸŽ„๐ŸŽ…๐Ÿป #Keppraexposure #facs
Tweet media one
Tweet media two
0
5
29
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
4 years
Thank you so much for this award ๐Ÿ†๐Ÿฅ‡๐Ÿ†๐Ÿฅ‡ It really does mean a lot that finally our work has been recognised @JanetWilliams99 @Infactuk @CatSmithMP @SharonHodgsonMP @KateGreenSU @LizTwistMP @carolinenokes @NadineDorries @jamesosh @JimBethell @MattHancock #valproatecrisis ๐Ÿ†๐Ÿคฐ๐Ÿ†
2
8
28
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
#compensationforvalproate Thanking @wesstreeting for your time listening to how #valproate has disabled 20,000 babies in the UK & your pledge to support #compensationforvalproate also backed by @ShaunLintern @thesundaytimes @JanetWilliams99 @CatSmithMP
Tweet media one
1
10
29
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
7 years
@AngelaRayner A Grandma?!?!?!?! You donโ€™t look old enough!!!! Congratulations ๐Ÿผ ๐Ÿ‘ถ๐Ÿผ๐Ÿ‘ถ๐Ÿผ๐Ÿ‘ถ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜
2
0
27
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
Over the moonโ€ฆ. Our 3lb baby has had her 1st University Offer Proud parents do not cut it , she has worked her socks off all her life and overcome hard barriers ๐Ÿคฉ๐Ÿ‘๐Ÿคฉ๐Ÿ‘๐Ÿคฉ๐Ÿ‘๐Ÿคฉ๐Ÿ‘๐Ÿคฉ๐Ÿ‘๐Ÿคฉ๐Ÿ‘๐Ÿคฉ๐Ÿ‘ #cerebralpalsy #autism #fetalvalproatespectrumdisorder Congratulations Lauren โค๏ธ
Tweet media one
Tweet media two
Tweet media three
Tweet media four
12
1
29
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
3 years
2 years ago today I was about to go into a meeting at MHRA but got a call that my husband had collapsed with Drs finding a 10cm Aneurysm at his heart. Drs told me to โ€œgo home & prepare the childrenโ€ & pray. Heart surgery and our wonderful NHS surgeons saved his life ๐Ÿ’–๐Ÿ’–
Tweet media one
Tweet media two
3
1
28
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
6 years
Today was absolutely surreal & breathtaking to watch the debate on Medicines/Devices in the HoL. We thank @jamesosh for your kind invitation to attend, we are very grateful for your continued support & commitment @JuliaCumberlege @nicolablackwood @normanlamb @JanetWilliams99
Tweet media one
2
7
26
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
#compensationforvalproate We @JanetWilliams99 canโ€™t change the heartbreaking past for our children,but we can by working together help to shape the future for the innocent children whose life chances were stolen before birth @ShaunLintern @mariacaulfield @sajidjavid @CatSmithMP
5
21
28
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
4 years
8 Year Wedding Anniversary ๐Ÿ˜๐Ÿ˜๐Ÿ˜The man behind everything I do, having a young family all with disabilities, I couldnโ€™t have done the last 8 years of Parliamentary work without him. Thank you for supporting my vision and work ..... Hereโ€™s to another 8 years #anniversary
Tweet media one
5
1
28
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
4 years
Thank you @dobsonMEN @MENnewsdesk for helping to continue raise awareness of Fetal Valproate Spectrum Disorder and the risks of #Valproate #Valproatecrisis No one warned me': Battle of mum whose prescription caused autism in five kids
2
17
27
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
3 years
๐Ÿงต ๐Ÿงต #valproate has been a regulated drug for nearly 50 years in which Government, Sanofi & Shareholders have ALL profited from We @Infactuk started our campaign for safer warnings in 2012 and have been met with a reluctant, dismissive, arrogant attitude from ALL involved
Tweet media one
4
10
28
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
3 years
Feeling a proud mum tonight, just been notified by email my daughter has accepted her place on Level 3 Health & Social Care Diploma. Born at 31 weeks with a hole in her heart, Sheโ€™s beat the odds all her life Our girl is amazing ๐Ÿคฉ #fetalvalproatespectrumdisorder #proudmum โค๏ธ
Tweet media one
Tweet media two
Tweet media three
Tweet media four
5
2
27
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
1 year
5 years ago my son was told by ENT he had hearing loss & needed to wear Hearing Aids to help him. The 2nd Audiologist would NOT give him the Hearing Aids. He has struggled with his hearing all this time 3 weeks ago ENT initiated the appointment for Hearing Aids @ShaunLintern ๐Ÿ’”
@ShaunLintern
Shaun Lintern
1 year
๐Ÿšจ EXCLUSIVE: NHS trusts across England are scrambling to trace thousands of children for urgent hearing tests amid fears that cases of infant deafness may have been missed for years 1/8 Pls RT
15
159
192
2
7
27
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
11 years
3
14
23
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
3 years
Absolutely great to finally meet the inspiring @JamesTitcombe One of the best #patientsafety campaigners there is. Looking forward to collaborating ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜ #matsafety2021
Tweet media one
2
3
26
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
5 years
Wow!!!! Thank you so very much.... Itโ€™s an honour representing and leading the Campaign for all the children and adults affected by #Valproatecrisis ๐Ÿ†๐Ÿฅ‡๐Ÿฅˆ๐Ÿฅ‰๐Ÿ… #Alreadyawinner
@ndawards
National Diversity Awards
5 years
@Emma4facs has been nominated for the Positive Role Model Award for Disability at the National Diversity Awards 2020 in association with @itvnews ๐Ÿคฉ๐Ÿค— Congratulations Emma! You can vote by visiting #NDA20 #Vote
Tweet media one
1
1
3
11
9
27
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
3 years
Tweet media one
9
16
27
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
6 years
#bbcpanorama Iโ€™m the mum that has had to constantly be the voice for my 6 children with SEN against health professionals, education, Local Authorities, schools , welfare .... I will continue to shout for them and the thousands of other children harmed by #valproatecrisis
3
14
24
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
6 years
Take an absolute bow @JaneFallon What a fantastic book Tell Me A Secret Is....... Loved it ๐Ÿฅฐ๐Ÿฅฐ๐Ÿฅฐ๐Ÿฅฐ
1
2
26
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
3 years
Me and Hubbyโ€ฆโ€ฆ OUT OUT on a dateโ€ฆ,, with NO children โค๏ธ The physical and mental stress these last few months, going to have a great day ๐Ÿฅ‚โค๏ธ๐Ÿฅ‚โค๏ธ๐Ÿฅ‚
Tweet media one
1
1
28
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
4 years
Tweet media one
2
13
27
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
After their children were harmed by the epilepsy medication, Murphy, 42, and Williams, 58, have almost single-handedly taken on the government to campaign for safer use of sodium valproate, and for compensation for the 20,000 families left with a disabled child.
Tweet media one
4
9
25
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
My little rugby player met 1 of his @SedgleyTigers Inspirations @sedgleytruck Huge well done today Matt ๐Ÿ…๐Ÿ‘๐Ÿ‰๐Ÿ…๐Ÿ‘๐Ÿ‰
Tweet media one
1
2
26
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
@shartles1 @GOVUK @Malriel @lancaster_marj @valerie_valival @Christinefelth2 @Claresm81267911 @gaynor234 @Paula_Goss @clarky_on @hollydais @SusanR57 We @JanetWilliams99 met with Health Minister yesterday to discuss Compensation for Victims of Valproate ๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘
4
15
24
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
Positive meeting with Editor Ben Taylor & @ShaunLintern @thetimes about the continued campaign for Justice for #valproatefamilies @JanetWilliams99 #compensationforvalproate #valproatecrisis
Tweet media one
3
10
25
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
4 years
#RareDiseaseDay2021 My children diagnosed with Fetal Valproate Spectrum Disorder, a man made tragedy ๐Ÿ’” Impacted all their lives,with so many challenges๐Ÿ’” I will continue to lead the Campaign with @JanetWilliams99 so children like mine get support they need @rarediseaseuk
Tweet media one
Tweet media two
Tweet media three
3
9
25
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
3 years
This quote from @epilepsysociety yesterday demonstrates the lack of empathy,ignorant,defensive,attitude this campaign has faced from Regulators, Government & Everyone involved @Christian4BuryS @CatSmithMP @Jeremy_Hunt @carolinenokes @JanetWilliams99 @ShaunLintern @RosieDuffield1
Tweet media one
@epilepsysociety
Epilepsy Society
3 years
โ€œItโ€™s about time that we moved on from looking at what went wrong, to doing something about whatโ€™s going wrong todayโ€ #SafeMumSafeBaby #Epilepsy #EpilepsyAwareness #Valproate
14
0
3
5
20
21
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
@DrAseemMalhotra Absolutelyโ€ฆ.. One of the biggest Government medical cover ups, but we WILL win ๐Ÿ™Œ๐Ÿผ๐Ÿ™Œ๐Ÿผ โ€œFirst they ignore you, then they laugh at you, then they fight you, then YOU winโ€ #valproatecrisis #compensationforvalproate
Tweet media one
0
11
23
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
Tweet media one
4
9
24
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
5 years
#IntermittentFasting and #Keto has changed my life for the good both for my #epilepsy and weight From a size 22, today I got into new size 14 work pants If I can do this, anyone can ๐Ÿ‘Œ๐Ÿ‘Œ
Tweet media one
1
3
23
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
9 months
Honoured to speak at @PSCommissioner Launch Report today representing thousands of babies disabled by #Valproate Great to catch up with @SharonHodgsonMP @AlecShelbrooke @carolinenokes @LizTwistMP @CatSmithMP All have supported us @JanetWilliams99 for years,we appreciate you all
Tweet media one
Tweet media two
Tweet media three
Tweet media four
0
10
25
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 years
Today we @JanetWilliams99 @Infactuk have written to the Health Select Commitee @CommonsHealth @SteveBrineMP about the lack of action with regards Redress for Babies, children & adults disabled by #valproatecrisis @DHSCgovuk #compensationforvalproate
Tweet media one
0
12
23