Diverse Alzheimers @DiverseAlz Twitter profile

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Diverse Alzheimers

@DiverseAlz

8 months

Question 1 If you have read Wendy Mitchell's last blog and indeed message, what did/do you think about it? #diversealz Here it is again - My final hug in a mug: #diversealz

Which me am I today?

One person's experience of living with dementia

whichmeamitoday.wordpress.com

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Diverse Alzheimers

@DiverseAlz

8 months

Seeing post re: Wendy Mitchell that she "will always be here". 👍 Her voice is immortalised in audiobooks 'Somebody I Used to Know'; 'What I Wish People Knew About Dementia' & 'One Last Thing'; recordings about dementia with the '4 amigos': #diversealz

The 3 Amigos - DEEP

The 4 Amigos are a virtual group creating films of conversations to share, teach and support everybody to have a greater understanding of their worlds living with dementia. Throw away your text books...

www.dementiavoices.org.uk

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Diverse Alzheimers

@DiverseAlz

2 years

Okay, let's put it out there. Father died today. May his soul rest in peace. It's been a busy day and as we didn't want to miss this evening's topic, chose bereavement and finance. Wanted to get people's take on this issues and start conversation #diversealz #fiancedem click send

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Diverse Alzheimers

@DiverseAlz

10 months

R.I.P. Naomi Feil, a pioneer of person centred care who died on 24th Dec. A gerontologist, she founded the Validation Training Institute with an emphasis on training & programmes re "older adults with cognitive decline". Leaves an everlasting legacy. May her soul rest in peace.

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Diverse Alzheimers

@DiverseAlz

8 months

Wendy Mitchell Obituary by Anna Wharton via The Guardian: @whartonswords co-wrote Somebody I used to know; What I wish people knew about dementia and One Last Thing: How to live with the end in mind with Wendy. #diversealz

Wendy Mitchell obituary

Writer and dementia campaigner who believed that people should have the right to choose their own death

www.theguardian.com

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Diverse Alzheimers

@DiverseAlz

4 years

Aged Care Australia article by Sarah Russell 'Aged care has been failing for years – coronavirus has merely highlighted systemic problems' via Guardian (July 2020):

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Diverse Alzheimers

@DiverseAlz

3 years

‘I’ve faced my biggest fear’: @WendyPMitchell on young-onset dementia via Financial Times: . Sub heading: 'Over a scrabble board, the former NHS manager talks about how ‘brain training’ games can help' #diversealz

‘I’ve faced my biggest fear’: Wendy Mitchell on young-onset dementia

Over a scrabble board, the former NHS manager talks about how ‘brain training’ games can help

www.ft.com

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Diverse Alzheimers

@DiverseAlz

3 years

We should revisit the conversation on male carers. There is one high profile male carer we can mention who is prolific not only on Twitter but in scholarship on dementia - @dr_shibley . We need to acknowledge male carers of people living with dementia. #diversealz

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Diverse Alzheimers

@DiverseAlz

3 years

Strive 4 cause MT @Tunde_OD It takes a lot of deliberate effort to do good work & sometimes you may feel unheard & unseen but remember to stay true to the mission & make sure you're in it for the right reasons. Someday all those sacrifices will count for something. #Diversealz

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Diverse Alzheimers

@DiverseAlz

3 years

Wonder how many people are living with vascular dementia as part of mixed dementia? See @WendyPMitchell on her extraordinary Alzheimer's memoir by Nicci Gerrard: and @lbsorg ambassador @chris40781 , #diversealz #adlb

Wendy Mitchell on her extraordinary Alzheimer’s memoir

Diagnosed at 58, Mitchell was determined not to be beaten: ‘Why feel ashamed of having a complex brain disease?’

www.theguardian.com

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Diverse Alzheimers

@DiverseAlz

8 months

We acknowledge that Wendy Mitchell is/was one among many people living with dementia who are creating legacies, advocating, campaigning and teaching. Anyone want to add to why we are mentioning her now? #diversealz

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Diverse Alzheimers

@DiverseAlz

8 months

This could be triggering but ahead of #Diversealz on narratives (8pmGMT/3pmET), do take a look at Wendy P Mitchell's last blog My Final Hug in Mug: How can one describe this final written act and the day it was posted? Rest in Peace Wendy P Mitchell

My final hug in a mug….

Dear everyone who has followed my story and anyone else who cares to read this… If you’re reading this, it means this has probably been posted by my daughters as I’ve sadly died. Sorry to break the…

whichmeamitoday.wordpress.com

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Diverse Alzheimers

@DiverseAlz

3 years

It's often said oral health/mouthcare gets forgotten re: dementia. Could it be the case, sometimes, that it becomes less of a priority as the dementia progresses? Think cases where supporters/carers could think person with dementia brushing when not. #diversealz #beginners

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Diverse Alzheimers

@DiverseAlz

3 years

Another dislike (Covid) are evictions from care homes & being "locked out" of care homes (4 some) following a trip out. Eviction is something we've mentioned overtime but not focused on. #Diversealz Thurs is power of attorney but also this & legal issues #contracts 8pmBST/3pmET

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Diverse Alzheimers

@DiverseAlz

4 years

Talking about care homes, we do acknowledge good practice and draw people to tweets by @donnapierpoint @saralivadeas @Shedfieldlodge who show lengths staff go to for residents and their policies. #diversealz Who else?

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Diverse Alzheimers

@DiverseAlz

7 years

Actress @Vicky_McClure 2 explore music & dementia on BBC1 forming band/choir with People w. Dementia. @UniofNottingham input. See Nottingham Post: :

Line of Duty's Vicky McClure to form band and choir for new TV special

Two 60 minute episodes will screen on BBC One

www.nottinghampost.com

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Diverse Alzheimers

@DiverseAlz

3 years

Dementia and Prescribed Disengagement™ by @kateswaffer via @DementiaJournal (2014) #diversealz We've spoken about this over the years. It's as relevant then as it is now and fits in with our convo.

Dementia and Prescribed Disengagement™ - Kate Swaffer, 2015

journals.sagepub.com

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Diverse Alzheimers

@DiverseAlz

3 years

Via @IzzyJon67069546 we hear how Twitter is highlighting situation of people living in care homes who are unable to see their relatives regularly, if at all due to Covid. See @rightsforresid2 in UK and @LTCcovid @COVID_LTC #diversealz . Globally also learnt of issues #diversealz

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Diverse Alzheimers

@DiverseAlz

3 years

As we mention unexpected hospital admissions, see @JohnCampaign campaigning "for the right to stay with people with dementia" in hospital, tho extended to situation with care home residents unable to see their relatives/friends regularly supporting @rightsforresid2 #diversealz

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Diverse Alzheimers

@DiverseAlz

4 years

For film buffs: Olivia de Havilland, Golden Age of Hollywood star, dies at 104 via BBC: The actress narrated the @IRememberBetter film I Remember Better When I Paint, a documentary about the value of the creative arts for people with dementia. #diversealz

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Diverse Alzheimers

@DiverseAlz

1 year

What effect does dementia have on sleep? by Dementia: Support for family and friends and Consultant Admiral Nurse specialist @raheli01 via @dementiauk : #diversealz #lewybody

What effect does dementia have on sleep?

Rachel Thompson writes about how dementia affects sleep and how carers and families can approach sleep disturbance and its possible underlying causes.

www.dementiauk.org

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Diverse Alzheimers

@DiverseAlz

6 years

To the people who often support others on this timeline, thank you. For everyone who thinks #diversealz is a supportive and informative environment, thank you and may you all prosper, thrive and stay positive in your dementia journeys in whatever capacity that may be #diversealz

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Diverse Alzheimers

@DiverseAlz

3 years

Abilities people with young onset dementia talented! @KateSwaffer co-founder @DementiaAllianc is doing a doctorate @TommyTommytee18 @mason4233 cofounders @thredcic @3NDWG respectively @WendyPMitchell best selling author @agnes_houston publications on sensory issues #diversealz

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Diverse Alzheimers

@DiverseAlz

7 years

Interested in dementia in low/middle income countries? @STRiDEDementia now tweeting & expected to cover its research on 7 countries. It’s a partnership @PSSRU_LSE see @AdelinaCoHe ) with @DementiaAllianc (See @KateSwaffer and @AlzDisInt #diversealz

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Diverse Alzheimers

@DiverseAlz

4 years

Understanding the impact of the COVID-19 pandemic on well-being and virtual care for people living with dementia and care partners living in the community by @pamelamroach et al via @DementiaJournal . Full article here: . Thank you! #diversealz #Canada

Understanding the impact of the COVID-19 pandemic on well-being and virtual care for people living...

The COVID-19 pandemic has necessitated public health measures that have impacted the provision of care for people living with dementia and their families. Addit...

journals.sagepub.com

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Diverse Alzheimers

@DiverseAlz

4 years

Visiting in care homes by @vicrayner via @NCFCareForum : She argues that preventing visits "creates significant risks" and concludes with "a real life story" #diversealz

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Diverse Alzheimers

@DiverseAlz

6 months

Admiral Nurse Kerry Lyons wins prestigious Commitment to Nursing award [RCNI] (2020) via @Dementiauk : Interview with dementia nurse, now Consultant nurse specialist @kmljjj #diversealz #NursesDay

Admiral Nurse wins Commitment to Carers Nursing award

Admiral Nurse Kerry Lyons is the winner of the Commitment to Carers category in the RCNi Nurse Awards 2020. These awards from the Royal College of Nursing celebrate excellence in the profession.

www.dementiauk.org

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Diverse Alzheimers

@DiverseAlz

3 years

Who's reading 'Listen' by With the End in Mind author @drkathrynmannix , which is our focus on 25th Nov when we discuss the importance of listening? Supplementary reading: How To Say the Unsayable via The Guardian: #diversealz . See you 25/2 8pmGMT/3pmET?

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Diverse Alzheimers

@DiverseAlz

4 years

@KateLeeCEO @JohnCampaign Second your sentiment for the fearless duo Julia Jones & Nicci Gerrard and quest for care homes to open up for visiting again. Tweeting to say some people may want to be you one day for your steer on equalities and looking at some of the issues with action in mind

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Diverse Alzheimers

@DiverseAlz

9 months

How important is to understand there is more than one type of dementia?

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Diverse Alzheimers

@DiverseAlz

2 years

Using social media for continuous professional development by @CalvinMoorley and @WeNurses founder @AgencyNurse via Wiley: . Though a focus is on the WeNurses tweetchat, the tips and reflective questions apply to all and make useful reading. #Diversealz

Using social media for continuous professional development

Click on the article title to read more.

onlinelibrary.wiley.com

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Diverse Alzheimers

@DiverseAlz

2 years

Can we start a twitter list of doctors/dentists/social/healthcare professionals tweeting good practice re: dementia? See @lucypgeridoc @drkathrynmannix @adamgordon1978 @Gerodontology @MiliDoshi7 @MCM_HEKSS @w8charlotte . However, please tell us why when tweet. #diversealz

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Diverse Alzheimers

@DiverseAlz

7 years

Early 2018 yet seems good year for life stories and impactful writing on dementia and [palliative]care as @Minghowriter wins @WritersGuildF award; @WendyPMitchell publishes memoir with major publisher @BloomsburyBooks and @helenfindlay launches play #eolc #diversealz

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Diverse Alzheimers

@DiverseAlz

3 years

#Diversealz -ers you know how we mention dentures? RT @rightsforresid2 RT We hear many stories of missing dentures etc and it is such an important subject that is often not spoken about #rightsforresidents #diversealz

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Diverse Alzheimers

@DiverseAlz

3 years

Bestselling author, dementia advocate and blogger () @WendyPMitchell (WPM) is on #diversealz timeline via @piponthecommons . WPM's new book 'What I Wish People Knew About Dementia' is out Jan 2022. Watch out for our tweet-up. #dembk

Home

One person's experience of living with dementia

whichmeamitoday.wordpress.com

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Diverse Alzheimers

@DiverseAlz

5 years

There is a growing body of work on South Asian communities and dementia and if interested in this are see @Shahid_MoSardar @TBmedementia @SahdiaParveen @ripaljeet as well #Diversealz

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Diverse Alzheimers

@DiverseAlz

6 years

Listening 2 Solving Alzheimer's: Fear & Stigma the BBC documentary () mentioned by @Mycarematters . Striking from beginning is language used and narrative....got an idea about this the narrative and hope not right #diversealz #alzchat #stigma

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Diverse Alzheimers

@DiverseAlz

3 years

Thank you so much for chatting with us @lorenzos_house and for making us think even more about brotherhood and sisterhood. Indeed, we are #diversealzers or the #diversealz family as several followers named us! We hope that researchers focus on your work at some stage.

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Diverse Alzheimers

@DiverseAlz

11 months

Hi #Alzchat A Chevrolet advert - A Holiday to Remember is trending. See the powerful story behind this car promotion. Glen Campbell's Sunshine on My Shoulder plays: #lifestory #dementia #memories Wishing you all a joyous holiday & peaceful 2024!

A Holiday to Remember | Chevrolet

The best part of the holidays is the memories, the ones we make and the ones we reminisce.Watch this heartwarming story about a woman’s holiday journey to gi...

www.youtube.com

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Diverse Alzheimers

@DiverseAlz

2 years

Oral health is on timeline as a learning outcome or rather some thing we learnt much more about. For many of us it was enhancing knowledge beyond measure. Continued thanks to @Gerodontology @MiliDoshi7 @w8charlotte @KOHCltd and colleagues #diversealz

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Diverse Alzheimers

@DiverseAlz

8 months

Sad news that best selling author, dementia advocate and blogger () @WendyPMitchell has died. Sending condolences to her daughters at this time.

Home

One person's experience of living with dementia

whichmeamitoday.wordpress.com

DrDr (😊)Wendy Mitchell

@WendyPMitchell

8 months

This is Sarah and Gemma, Wendy’s daughters. Our mum died peacefully early this morning. She wrote a blog post before she died so you can read about it from her perspective. Sarah and Gemma

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Diverse Alzheimers

@DiverseAlz

8 months

#Diversealz on Thursday is about dementia narratives/lifestories & importance. We're going to devote a bit of time to Wendy P Mitchell who died today (announced by her daughters). Wendy left a final blog. We send condolences to her family. May her soul rest in peace.

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Diverse Alzheimers

@DiverseAlz

3 years

Question 5 what can be done about staff shortages in care homes and let’s ask this who cares? Will we ever know the impact of this, including Covid situations and with reference to dementia? #diversealz Cc @rightsforresid2

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Diverse Alzheimers

@DiverseAlz

3 years

Supplementary reading for #diversealz extra on Tuesday 22 Feb: @WendyPMitchell reveals all is not lost…via Daily Mail: This supports our convo on her book What I Wish People Knew About Dementia #Diversealz 8pmGMT/3pmET

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Diverse Alzheimers

@DiverseAlz

3 years

Question 9 Men. We forget about men and yet, this affects men too. The question: how/why are they forgotten? For sure, we applaud single men who are caring for parents with dementia. More stories needed here, still #diversealz

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Diverse Alzheimers

@DiverseAlz

6 years

FYI @AlzToronto @IRememberBetter @creativitycare @SrCareCorner @LEAD_Coalition @DementiaAllianc The BBC has launched website Music memories for people with dementia. Music divided into classical, popular and theme tunes:

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Diverse Alzheimers

@DiverseAlz

7 years

spare a thought for people where English might not be 1st language. Observation, listening, signing can matter. #alzchat #diversealz

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Diverse Alzheimers

@DiverseAlz

3 years

RT @KarrieMarshall Interesting that many care homes still full on with restrictions. Interested in how other care homes manage risks to be more flexible with times and number of visitors. Building design & creative thinking may feature in this. #AlzChat

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Diverse Alzheimers

@DiverseAlz

10 months

Seeing a conversation on anticipatory grief. Many people do not recognise it or are aware that it exists. Can be mistaken for sadness or depression. Why would you grieve for a living person?

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Diverse Alzheimers

@DiverseAlz

10 months

Remembering Naomi Feil, @validationinc founder (22/7/32- 23/12/23). This 2009 video continues to makes an enormous contribution to dementia care: Gladys Wilson & Naomi Feil: #playlists #personcentredcare #music , #communication #understanding #listening

Gladys Wilson and Naomi Feil

Naomi Feil, founder of Validation Therapy, shares a breakthrough moment of communication with Gladys Wilson, a woman who was diagnosed with Alzheimer's in 20...

www.youtube.com

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Diverse Alzheimers

@DiverseAlz

4 years

Giving thanks to people on social media (when #diversealz first started) whose advocacy, knowledge, determination has made difference inclu @Aspirantdiva @Minghowriter @helenfindlay @TommyTommytee18 @dr_shibley @KateSwaffer @YODsupporter @ripaljeet @nchadborn @ClarissaGiebel

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Diverse Alzheimers

@DiverseAlz

2 years

First off we say thanks to @MiliDoshi7 who didn't hesitate and never does when we mention oral health and participation. Tonight's topic is thanks to her and we have an additional hashtag #pohdem #diversealz

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Diverse Alzheimers

@DiverseAlz

2 years

C is for campaign. Sending good wishes to @rightsforresid2 for their continued efforts re: rights of residents in care homes and addressing visitor restrictions.

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Diverse Alzheimers

@DiverseAlz

3 years

We've learnt about nutrition via @AngelaTella1 , dental health @MiliDoshi7 & colleagues, delirium @dr_shibley , Listening and End of Life Care @drkathrynmannix , long term care @AdelinaCoHe so many friends. Had better prep for #Diversealz Thursday retrospective. It's 8pmGMT/3pmET

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Diverse Alzheimers

@DiverseAlz

4 years

#Diversealz Thurs: dementia and research. Three points: 1) why's it a challenge for caregivers/people with dementia to have research/work accepted; 2) collaborations; 3) researcher perspectives. Joining us: @nchadborn collaborations, @ClarissaGiebel perspectives. 8pmGMT/3pmET

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Diverse Alzheimers

@DiverseAlz

7 years

‘It changed my life: author, activist and poet living with dementia’ @KateSwaffer interview via The Strait Times: #inspire #aspire #resolve

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Diverse Alzheimers

@DiverseAlz

8 years

Hope you are enjoying #alzchat . Mondays busy here. Just tweeting to say that music crosses boundaries and same when used in dementia care.

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Diverse Alzheimers

@DiverseAlz

10 months

To everyone here…All the best for the New Year. Wishing you peace, success and the capacity to manage the challenges life will bring.

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Diverse Alzheimers

@DiverseAlz

2 years

Should dementia be part of formal medical training/doctors increase knowledge rather than awareness? #oomf mentions doc won't change medication as not a dementia specialist. As waiting lists re: specialists can be long, how important is primary care here? #diversealz

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Diverse Alzheimers

@DiverseAlz

10 months

All that's left is to say thank you for joining #Diversealz and for your interest throughout the year. Sending you all good wishes for a prosperous, safe and happy 2024. See you then! We'll pick up any posts tomorrow

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Diverse Alzheimers

@DiverseAlz

3 years

Question 4 We automatically speak of family members and advocacy, but what about people who are single or ageing without children. Who is speaking for them and when do we remember? #diversealz

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Diverse Alzheimers

@DiverseAlz

3 years

Just hearing via @NLWheeler4583 and tweeting with a heavy heart that Derek Fisher died suddenly yesterday. Many people on the timeline knew Derek for his devotion to dementia awareness, dementia care & Arsenal. We send condolences to his family. R.I.P Derek. #diversealz

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Diverse Alzheimers

@DiverseAlz

3 years

Those hard parts about dementia: when it becomes harder to find ways to let your loved one/friend with dementia know how much they are loved/care for. What do you do? #diversealz

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Diverse Alzheimers

@DiverseAlz

4 years

It's your last #alzchat before Christmas so taking time out to wish you & your followers peace, good health and safety at this time. Best wishes to you all cc @IRememberBetter

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Diverse Alzheimers

@DiverseAlz

4 years

We need to chat about supporting carers/supporters of people with dementia during Covid. We'll focus on this next Tuesday 15th September 8pmBST/3pmET. It matters. We know it matters all the time but the pandemic also provides an additional focus. Some may say urgency #diversealz

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Diverse Alzheimers

@DiverseAlz

5 years

10 ways to love your brain via @alzassociation : #saludtuesday resource. See also @kateswaffer : what the hell happened to my brain and @WendyPMitchell Somebody I used to know: memoirs by people with dementia #dembk #saludtuesday

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Diverse Alzheimers

@DiverseAlz

2 years

Reading that @karenwatchman is now a Professor. To recap, Dr Watchman is known for her pioneering and award-winning work re: learning disability and dementia, training and teaching. She also enlightens us from time to time and we appreciate it. Congratulations Prof!

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Diverse Alzheimers

@DiverseAlz

8 years

It's @TommyTommytee18 . Congrats both. @dementiaboy

Chester Standard

@standardchester

8 years

Nurse from the Countess of Chester Hospital clocks up his 6,000th ‘dementia friend’

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Diverse Alzheimers

@DiverseAlz

4 years

Who can't be inspired by the work/campaigns of @rightsforresid2 and @JohnCampaign re: care home visits UK? #diversealz

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Diverse Alzheimers

@DiverseAlz

3 years

' Dancing With Dementia: Exploring the Embodied Dimensions of Creativity and Social Engagement' (2021) via The Gerontologist @geronsociety by @piakontos et al mentions our point about use & includes information on Sharing Dance Seniors project: #diversealz

Dancing With Dementia: Exploring the Embodied Dimensions of Creativity and Social Engagement

AbstractBackground and Objectives. Dance is increasingly being implemented in residential long-term care to improve health and function. However, little re

academic.oup.com

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Diverse Alzheimers

@DiverseAlz

6 years

@denmellen @jaynegoodrick @Innov_Dementia @JulieEmberton2 @WendyPMitchell @DementiaTweets @DementiaVoices @george_rook @3NDWG @tide_carers @TommyTommytee18 @mason4233 @doryitsme @DementiaUK @Dementia_Action @PeterBe1130 @nigel8812922 @DementiaAllianc You will find lots of solace in Twitter groups and learn things that some professionals will not be able to “teach” or impart. When interacting with individuals/groups you have a 24 hour information and support group. Also , so many perspectives. #diversealz .

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Diverse Alzheimers

@DiverseAlz

6 years

To everyone who: works to help raise awareness of Alzheimer's; is part of Alzheimer's care; an advocate; someone who works to raise awareness of dementia....World Alzheimer's Month should be celebrating you. Take a bow even if it is a silent one. #diversealz

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Diverse Alzheimers

@DiverseAlz

5 years

@arcad_ug @CommonAgeAssoc @asanakpan @DrJohnBeard @AMPot1 @AgeingNepal @Nekehia1 @HydeM1976 @daveomokaro @AlzKenya @HelpAgeAfrica @SAGEHealthInfo @grandpaamaa @AlzDisInt @ADB_AgingAsia @saveelderstz @AdelinaCoHe Would be interesting to see if there are diffeeences in attitudes towards dementia in villages and towns in some places. Work is going on, it is about knowing who is doing it, sharing and respect. #diversealz

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Diverse Alzheimers

@DiverseAlz

2 years

#Diversealz on Thursday cancelled unexpected bereavement matter. Apologies. See you on Tuesday.

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@DiverseAlz

4 years

Mental health impact on care staff via @ClarissaGiebel is an important one as one can overlook needs of care staff #diversealz

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Diverse Alzheimers

@DiverseAlz

4 years

On 4th March we focus on book With the End in Mind by @drkathrynmannix to discuss end of life care and death. #diversealz . We'll talk about the book and the issues. Do join this important conversation 8pmGMT/3pmET

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Diverse Alzheimers

@DiverseAlz

3 years

Food and we should add drink and the importance of hydration. Saying congratulations to @JellyDrops_ whose brand will be seen in America soon. See: My Mum has Alzheimer's, these hydrating jelly drops sweets help boost her water intake #diversealz

My mum has Alzheimer’s, these Jelly Drops sweets help boost her water intake

Gamechangers: This product is a gloriously simple solution to a complex problem

www.independent.co.uk

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Diverse Alzheimers

@DiverseAlz

10 months

Reminiscing about Twitter and X following news Naomi Feil died 24/12. Why? Gladys Wilson & Naomi Feil: This video connected & continues to reconnect so many of us here re: discussions and validation of the power of music. More on #diversealz Thurs 8pmGMT

Gladys Wilson and Naomi Feil

Naomi Feil, founder of Validation Therapy, shares a breakthrough moment of communication with Gladys Wilson, a woman who was diagnosed with Alzheimer's in 20...

www.youtube.com

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Diverse Alzheimers

@DiverseAlz

3 years

Oral health is on our list of course because of the sterling work of @Gerodontology @w8charlotte @MiliDoshi7 and colleagues. #diversealz

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Diverse Alzheimers

@DiverseAlz

6 years

#Diversealz Thurs: All fair in dementia?: dementia & health inequalities focusing on postcode lotteries, access to services, caring and impact. That's our agenda - yours? Join us with @ClarissaGiebel who will be co-hosting 8pmGMT, 3pmET #groups

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Diverse Alzheimers

@DiverseAlz

5 years

Question 3 How important is it to "feel good" when providing care or attention? Please think of this in the context of self care. Could it be possible that if you don't look after yourself well or feel good, you can't exude confidence or give the care really needed? #diversealz

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Diverse Alzheimers

@DiverseAlz

8 months

Thinking back on #Diversealz Thursday and the news of Wendy Mitchell's death, just thinking about her humility, which does not detract from her enormous contribution, which includes book. Although the dementia world may think a light has gone, a guiding light remains. #Legacy .

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Diverse Alzheimers

@DiverseAlz

4 years

So great to have @2centscorner on the chat tonight. #diversealz -ers please send hugs. Again, we are so sorry to hear about loss of your mum. She has left you with many gifts. Remember that.

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Diverse Alzheimers

@DiverseAlz

8 months

We always intended to discuss dementia and narratives/stories for #diversealz Thurs 22/2. It's the day we hear of Wendy P Mitchell's death. We'll start by looking briefly at her contribution to dementia/care and last blog My Final Hug in a Mug:

Which me am I today?

One person's experience of living with dementia

whichmeamitoday.wordpress.com

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Diverse Alzheimers

@DiverseAlz

3 years

Point about newsletters and care homes is frequency and, importantly, consistency. @KT2690 highlights infrequency at mother's care home adding "it is like a life line that never quite happens". #diversealz clearly Newsletters can be an important way to know what's going on

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Diverse Alzheimers

@DiverseAlz

2 years

Reminder via @MiliDoshi7 of partnership approaches RT It would be great if we could utilise our dental care professionals - dental nurses, hygienists and therapists. #diversealz #pohod . Reminds us of proverb, if you want to go fast go alone, if you want to go far go together.

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Diverse Alzheimers

@DiverseAlz

2 years

Briefly stopping by #alzchat as online. Would like to emphasise that treating people with dignity closely linked to respect includes tone of voice, words, actions, body language. Arguably, we can all understand this. Feel strongly start with the approach first #diversealz

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Diverse Alzheimers

@DiverseAlz

3 years

Covid: Law reform calls for 'vital' care home visits via BBC (November 2021): cites @rightsforresid2 . #diversealz #diversealz5days

Covid: Law reform calls for 'vital' care home visits

Some care home residents are still dying alone during Covid-19 outbreaks, a campaign group says.

www.bbc.co.uk

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Diverse Alzheimers

@DiverseAlz

4 years

Question 3: music can play an important part in changing the mood of a person living with dementia. Has anyone tried this with success? Yes! But calling for examples all the same! #diversealz

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Diverse Alzheimers

@DiverseAlz

5 years

Reality check: #Diversealz does not exist in a vacuum. Everybody makes it, so thank you. We are all sharing, making a difference and talking or facing things we may not have done once upon a time. That’s the engagement #Diversealz

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Diverse Alzheimers

@DiverseAlz

6 years

Question: .is phrase living well...with dementia, most appropriate one to use? #Diversealz asked before. Think @dr_shibley @KateSwaffer have views. Now @WendyPMitchell who raised in blog has had notable response: . This tweet picks up on this. Thoughts?

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Diverse Alzheimers

@DiverseAlz

4 years

The S word and dementia suffer, suffering, sufferer. It has become such a loaded word and one to examine in many different contexts. We've mentioned it often, as is the case here, but let's ask...what do you think about it? #diversealz

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Diverse Alzheimers

@DiverseAlz

3 years

Question 6 Why are attitudes about/towards dementia important and why is attitude key? #diversealz Second part in relation to @WendyPMitchell discussing the attitude one adopts to approaching something.

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Diverse Alzheimers

@DiverseAlz

2 years

A quote adopted by the dementia community is Dr Maya Angelou's much cited "I've learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Did you know she was a dementia advocate? #diversealz

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Diverse Alzheimers

@DiverseAlz

4 years

To everyone on the #diversealz have a great day

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Diverse Alzheimers

@DiverseAlz

4 years

There, we've said it on the timeline...suicide is a real possibility for some carers given situations around covid, caring and dementia. Wonder who's looking at this? #diversealz

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Diverse Alzheimers

@DiverseAlz

4 years

It is great seeing all the ideas about ways to manage anxiety and depression yet the hardest, for many, and arguably, one of the most important ones is reaching out to ask for help or talk about it. Think of people who are alone for example. So easy to mask feelings #alzchat

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Diverse Alzheimers

@DiverseAlz

2 years

We're so excited for today's #Diversealz Tues as Special Care Dentist @MiliDoshi7 , possibly @w8charlotte & @Gerodontology folk chat with us about promoting oral health 8pmBST/3pmET #pohdem #diversealz #dementia We always learn something new with "our" dentists #endearment

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Diverse Alzheimers

@DiverseAlz

7 years

Took time but @DementiaAllianc now a major force in raising awareness. There is @tide_carers for carers in the U.K. #diversealz

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Diverse Alzheimers

@DiverseAlz

4 years

Question 8 Why is it difficult to get a dementia (type) diagnosis at times? #diversealz

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