Alba Azola, MD @AzolaAlba Twitter profile

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Alba Azola, MD

7 months

Save the date! Dr. Peter Rowe's book on orthostatic intolerance will be out on August 27, 2024. This one is a must-read! Pre-order your copy at:

Living Well with Orthostatic Intolerance

This is a placeholder description.

www.press.jhu.edu

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Alba Azola, MD

@AzolaAlba

1 month

Tip of the day from one of my #LongCovid patients with orthostatic intolerance: Meet the TaDa Seat Stick, so you can stop worrying about finding a place to seat when you are out and about.

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Alba Azola, MD

@AzolaAlba

2 years

This is a #LongCovid patient during 10 min stand test in clinic today. #MedTwitter tell me again how anxiety explains this physical exam finding ? #POTS since SARS CoV 2 in August 2020, dozens of doctors visits and no treatment offered until today. WE MUST DO BETTER!

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Alba Azola, MD

@AzolaAlba

2 years

I received this message from one of my most impaired #longcovid patients … Sharing anonymously with permission …because this stories need to be told!

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Alba Azola, MD

@AzolaAlba

1 year

I asked my Long COVID patient if he ever noticed a change in color of his legs when standing, his answer was no… #MedTwitter When examining a LC patient, take their shoes and socks off, you can see acrocyanosis with standing or prolonged sitting secondary to dysautonomia.

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Alba Azola, MD

@AzolaAlba

3 months

For those doing LC research… around you having trouble finding controls? We are experiencing that most of our “HC” volunteers, when further assessed, end up having post COVID symptoms😩

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Alba Azola, MD

@AzolaAlba

2 years

I wish I could have spent the appt time more productively but I was so overcome with emotion that I was focused on holding back tears and not begging him to fix me. I don't know what else to say. I guess I wanted to reach out to someone who understands what I'm going through.

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Alba Azola, MD

@AzolaAlba

2 years

“I had a doctors appt yesterday and I couldn't stop crying:( I am so embarrassed. All I could think about is that an entire year has passed since he told me that my life was going to change and I absolutely DID NOT believe him and here I am living mostly in bed, mostly homebound.

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Alba Azola, MD

@AzolaAlba

2 years

My poor kids lost their active mother-now a nanny takes them to all their activities. It's my daughters 4th bday tomorrow and I'm grieving for her- all she knows is ever having a sick mommy. She's never had me at a school event or cheering her on at a soccer game or swim lessons.

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Alba Azola, MD

@AzolaAlba

2 years

My son has never had me walk him to the bus stop because I can't stand and wait. I panic and crash and get too sick. I can't believe this is my life now. I was an active, successful working mom and now I'm a hermit hobbling around the house attached to an IV pole.

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Alba Azola, MD

@AzolaAlba

2 years

Some days I can't even read to them because my voice is too weak. This is a torture chamber and I would never wish it on anyone. I do feel like I've made progress since last year but its soooo sloowwww and my worst fear is that this is the best I'm going to get.

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Alba Azola, MD

@AzolaAlba

2 years

I've never taken her to camp or even a playground. Its so devastating sending them on summer vacation and looking at pictures. She doesn't even remember a time when mommy went on vacations. It's just normal for her for me to always stay home and its so heart breaking.

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Alba Azola, MD

@AzolaAlba

2 months

“Postexertional malaise is not just feeling tired … It’s an out-of-proportion onset of symptoms that range from neurological to musculoskeletal, which arise from activity that was previously tolerated”

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Alba Azola, MD

@AzolaAlba

1 month

In the room where it happens, listening to @AngelaMSWinCA and Liza Fisher school the audience on the truth of living with #LongCovid .

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Alba Azola, MD

@AzolaAlba

1 year

#Fangirl moment! Such a treat to be able to meet @WesElyMD in person. Thank you for highlighting the importance of bringing humanism, empathy, and compassion to the field of medicine. Also for the ongoing advocacy in #LongCovid

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Alba Azola, MD

@AzolaAlba

3 years

We don’t need to start from scratch when it comes to treating #longcovid . Let’s build upon the decades of existing research in #MECFS . This is a must watch!!! Dr. Peter Rowe presents Observations on long COVID through an ME/CFS lens via @YouTube

Observations on long COVID through an ME/CFS lens

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www.youtube.com

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Alba Azola, MD

@AzolaAlba

11 months

Patients with Long COVID that meet IOM 2015 diagnostic criteria for MECFS should be given the diagnosis and it must be added to their medical records.

Paul Wischmeyer MD

@Paul_Wischmeyer

1 year

🙋‍♂️ What’s your unpopular opinion in medicine that will get you in this position? #MedTwitter

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Alba Azola, MD

@AzolaAlba

3 years

Pandemics disable people — the history lesson that policymakers ignore

Nature - Influenza, polio and more have shown that infections can change lives even decades later. Why the complacency over possible long-term effects of COVID-19?

www.nature.com

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Alba Azola, MD

@AzolaAlba

1 year

Exited to present on COVID fatigue at #AAPMR23 . I shared our clinics approach integrating insights of MECFS in the evaluation of LC patients that meet diagnostic criteria for MECFS. Identifying and optimizing management of these common co morbid conditions is key!

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Alba Azola, MD

@AzolaAlba

3 years

As a physician working with long Covid patients I find this article unethical. The author, an internist, is intentionally mocking and discrediting the #LongCovid movement. Widening the gap between patients and medical community. We must work together!

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Alba Azola, MD

@AzolaAlba

3 years

@DhruvKhullar As a physician treating long Covid patients, your article seems unethical, intentionally discrediting and mocking the #LongCovid movement. The medical community has a duty to protect patients. Your words effectively disrupt the essential partnership between medicine and patients.

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Alba Azola, MD

@AzolaAlba

2 years

"This is not in their heads," Azola said of her patients. "This is not something that is just to get out work or a disability scam. These patients just want to be themselves again."

'No man's land': Long COVID knocks young workers out of the job market

More than two years after the pandemic began millions of Americans report being left with debilitating symptoms that have kept them home from work.

abcnews.go.com

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Alba Azola, MD

@AzolaAlba

7 months

Exciting news! Our Johns Hopkins ME/CFS team is expanding and we're hiring! We're looking for a Nurse Practitioner or Physician Assistant to join us in providing exceptional care to those with ME/CFS, Long COVID, and related conditions. #JohnsHopkins #MECFS #LongCOVID #healthcare

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Alba Azola, MD

@AzolaAlba

1 month

🩺 We’re thrilled to announce the launch of our clinics page. We are dedicated to the care patients with #MECFS , #LongCOVID & related disorders. Follow us & stay updated on our research and advancements in treatment.

Hopkins ME/CFS & Related Disorder Program (@HopkinsMECFSC) on X

Our goal is to provide outstanding clinical care to patients with ME/CFS & related disorders and improve our understanding of these illnesses through research.

x.com

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Alba Azola, MD

@AzolaAlba

3 months

Some have asked what sx we check for, here is our screener. This is performed as part of an interview by a trained clinician a Nurse Practitioner.

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Alba Azola, MD

@AzolaAlba

2 years

@notrendstudio It is the very least we as physicians can do for patients

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Alba Azola, MD

@AzolaAlba

1 month

I was privileged to be a panelist at the #RECOVERTLC NIH meeting. I advocated for research informed by the expertise of #MECFS and #IACC researchers. I emphasized the critical need to understand post-exertional malaise ( #PEM ) and its neurobiological mechanisms. 🧠🔬 1/

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Alba Azola, MD

@AzolaAlba

10 months

Our JHCFS clinic's website is live! The vision is to build upon our landmark work in ME/CFS, continue expanding our research footprint with interdisciplinary collaborations, and providing excellent clinical care for our patients.

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Alba Azola, MD

@AzolaAlba

1 year

I disagree with withholding a diagnosis of ME from a LC patient. There is clear diagnostic criteria established and we should be building on the decades of work and not reinventing the wheel. Not all Long COVID patients meet MECFS criteria, but those who do need to be identified.

Putrino Lab

@PutrinoLab

1 year

care will be taken to NOT diagnosis them with other conditions just because they meet diagnostic criteria and for no other reason. For instance, people with #LongCOVID at our center will not receive an #MECFS diagnosis just because they meet international consensus criteria 3/

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Alba Azola, MD

@AzolaAlba

2 years

@doctor_zeest Thanks! It’s unimaginable, but grateful I can advocate for them😍

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Alba Azola, MD

@AzolaAlba

2 years

"We are not enough," Azola told MedPage Today. "In terms of the post-COVID clinics, there's just not enough for the millions and millions of Americans that are affected."

Physician Group Releases Guidance on Cardiovascular Issues in Long COVID

AAPM&R calls for greater awareness of post-COVID cardiovascular complications among clinicians

www.medpagetoday.com

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Alba Azola, MD

@AzolaAlba

8 months

Today is Long COVID awareness day. I stand in solidarity with the millions of people living with LC in a call to action. Funding to support 1.Access to care and basic needs of disabled patients suffering now 2. Research 3. Clinical trials and 4. Public Education

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Alba Azola, MD

@AzolaAlba

5 months

Multiple studies show that historically and persistently oppressed communities are at higher risk of developing #LongCOVID . Unfortunately they face barriers in access to care and implicit biases in healthcare that hinder their ability to get treatment.

How long COVID is impacting communities of color

A Washington Post story documented how getting a diagnosis of long COVID in communities of color can be particularly challenging.

www.goodmorningamerica.com

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Alba Azola, MD

@AzolaAlba

1 year

@PutrinoLab I disagree with withholding a diagnosis of ME from a LC patient. There is clear diagnostic criteria established and we should be building on the decades of work and not reinventing the wheel. Not all Long COVID patients meet MECFS criteria, but those who do need to be identified.

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Alba Azola, MD

@AzolaAlba

3 months

@MarloVanMarck We are looking for SARS CoV 2 infected but fully recovered.

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Alba Azola, MD

@AzolaAlba

1 year

@Opinions_Survey Im sorry you have been dealing with long COVID. Thankfully you can sleep with your arms down, acrocyanosis in long COVID is likely related to a faulty signal in you autonomic nervous system and not blood clots.

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Alba Azola, MD

@AzolaAlba

2 months

“Postexertional malaise is not just feeling tired or like you can’t walk up the steps. It’s an out-of-proportion onset of symptoms that range from neurological to musculoskeletal, which arise from activity that was previously tolerated.”-PEM is not fatigue

Contagion

@Contagion_Live

2 months

#LongCOVID 's impact on the brain goes beyond lingering concerns, it is a pressing health challenge. Expert insights, recent studies, and research from @neurology_live reveal symptoms can persist long after the initial infection.

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Alba Azola, MD

@AzolaAlba

3 months

@GendlinsMuse Absolutely! Is almost like some of them gaslighting themselves into believing they don’t have Long Covid

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Alba Azola, MD

@AzolaAlba

9 months

Neurology consult on my pwLC ... "Various conditions have been raised recently including Long COVID, ME/CFS as potentially explanatory. While I am not an expert in these conditions, I am highly doubtful these are useful / valid constructs to approach her symptoms"

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Alba Azola, MD

@AzolaAlba

5 months

Had the privilege to attend Demystifying Long Covid conference and represent the work of our JH Long COVID ME/CFS clinic and our collaborations with Dr. Antar on the COVID Cortisol study 🤩 @HopkinsMedicine @Hopkins_PMR

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Alba Azola, MD

@AzolaAlba

10 months

Women are disproportionately affected by Long COVID and other infection associated chronic illnesses such as MECFS. We do not know why, however, it has certainly shaped the historical view of these “contested illnesses”

Why Are Women More Likely to Get Long COVID?

Emerging research showing links to female reproductive health may offer clues to why women experience long COVID at nearly twice the rate of men.

www.medscape.com

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Alba Azola, MD

@AzolaAlba

5 months

One of my favorite lines from the report on Long COVID: "These symptoms should be assessed and treated appropriately, and the ICD-10 code U09.9 (post COVID-19 condition,unspecified) may be used even before establishing a Long COVID diagnosis. .

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Alba Azola, MD

@AzolaAlba

3 months

@sunsopeningband My healthy controls…. Pretend unicorns

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Alba Azola, MD

@AzolaAlba

3 months

@G_Commish We look for SARS CoV2 infected with no post COVID symptoms 3 months post infection

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Alba Azola, MD

@AzolaAlba

11 months

#fangirl moment! Meeting Cindy Bateman IRL@ Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID meeting

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Alba Azola, MD

@AzolaAlba

1 year

@awgaffney I am more troubled by the lack of humility in the field of medicine, than by suffering patients looking for answers. “To know what you know and what you do not know, that is true knowledge.” Physicians must remain inquisitive and open minded, we do not have all the answers.

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Alba Azola, MD

@AzolaAlba

11 months

@microbeminded2 Absolutely!!!!!!! It’s an Inclusive diagnosis, I also look after patients with MECFS with a wide range of triggers.

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Alba Azola, MD

@AzolaAlba

2 years

@HeyJanae1 @Dakota_150 I often ask my patients about this … some memorable examples included laying down in the middle of Macy’s, sidewalks, or in the DC Metro…Really telling about the severity of orthostatic intolerance.

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Alba Azola, MD

@AzolaAlba

1 year

@LauraineWe52738 😂 yep he can see, and after seeing it he said… “ok, so maybe I should take the salt tabs and drink 100 oz.” This patient is a physician himself.

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Alba Azola, MD

@AzolaAlba

3 months

@G_Commish We check common post Covid conditions sx that include autonomic dysfunction sx, new allergies or MCAS sx, smell and taste disorders, cognitive and neuro sx. If they report not having LC and have some of the symptoms positive, I called them and go over a review of symptoms myself.

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Alba Azola, MD

@AzolaAlba

10 months

#MedTwitter treating Long COVID patients, this one is a must read "Post-COVID dysautonomias: what we know and (mainly) what we don’t know" Another gem form my favorite "catecholaminaholic", Dr David Goldstein.

Post-COVID dysautonomias: what we know and (mainly) what we don’t know

Nature Reviews Neurology - Autonomic nervous system dysregulation contributes to the chronic, debilitating disorders referred to as ‘long COVID’ or post-acute sequelae of SARS-CoV-2...

www.nature.com

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Alba Azola, MD

@AzolaAlba

11 months

New route for COVID-19 into human cells found by scientists

Nature Italy - In addition to the known ACE2 receptor, the SARS-CoV-2 virus can also bind to the RAGE receptor found in white blood cells.

www.nature.com

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Alba Azola, MD

@AzolaAlba

1 year

@microbeminded2 @AAPMR I find extraordinarily helpful to implement the insights of clinicians that have treated ME for decades such as my mentor Dr Rowe. I’m hopeful that scientist like you and others that I collaborate with at @HopkinsMedicine will help find treatments that target the root cause.

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Alba Azola, MD

@AzolaAlba

1 year

@microbeminded2 @AAPMR I’m following very closely the exciting scientific work into understanding the pathophysiology of LC. My role is to take care of patients that are suffering right now. I have found applying the insight of clinical management of ME has helped my LC patients gain function. 1/

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Alba Azola, MD

@AzolaAlba

3 years

@ahandvanish As a physician working with long Covid patients I find this article unethical. The author, who is an internist, is intentionally mocking and discrediting the #LongCovid movement. Widening the gap between patients and medical community. We need to work together!

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Alba Azola, MD

@AzolaAlba

1 month

@MzAllieOsin1 Yep! Walking is better than standing still. When standing still the leg muscles are not as active and blood 🩸 pools in the legs, and less blood gets to your brain 🧠. Walking activates leg muscles and helps pump the 🩸 up to your heart and brain.

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Alba Azola, MD

@AzolaAlba

6 months

HOT OFF THE PRESS: Our article is on Long COVID and Its Impact on Adolescents and Young Adults. We discuss special considerations for this population and a detailed clinical approach for those pwLC meeting criteria for ME/CFS.

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Alba Azola, MD

@AzolaAlba

2 years

What’s filling your cup today? .. For me is my #LongCovid patient who sent me this selfie celebrating 🥳 her first day back to work! Shared with permission, with the goal to inspire the ones struggling today!

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Alba Azola, MD

@AzolaAlba

3 months

@Elana_Brooklyn We check common post Covid conditions sx that include autonomic dysfunction sx, new allergies or MCAS sx, smell and taste disorders, cognitive and neuro sx. If they report not having LC and have some of the symptoms positive, I called them and go over a review of symptoms myself.

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Alba Azola, MD

@AzolaAlba

3 years

@DhruvKhullar I found publishing quotes as this very harmful to the #LongCovid community. To the medical reader, it clearly aims to discredit.

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Alba Azola, MD

@AzolaAlba

1 month

We absolutely need to focus on finding a cure for #pwLC ; however, we do know repurposed drugs can help patients gain function and QoL. At 4 yr into this mess we have unsurmountable resistance from the medical community to adopt these practices given the lack of evidence ... 2/

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Alba Azola, MD

@AzolaAlba

3 years

@OnTapPhysio Our neuropsychology team has preliminary data demonstrating that the degree of objective cognitive impairments in long COVID patients is independent to the degree of coexisting depression and anxiety.

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Alba Azola, MD

@AzolaAlba

1 month

.. and the historical skepticism on dx like #MECFS #POTS , etc. I spoke of my pre-pandemic stigma toward these dx and how caring for #pwLC caused a paradigm shift in me. I reached out to clinicians treating these conditions & they enthusiastically shared their experiences.

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Alba Azola, MD

@AzolaAlba

2 years

@MartyMakary You have an open invitation to our Hopkins post COVID. Would love to discuss the “exaggeration” of long COVID you are reporting on. 💯 agree that there are some taking advantage of this vulnerable population…

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Alba Azola, MD

@AzolaAlba

1 month

I am not sure what I was saying at the moment this pic was taken, but it looks like I was imploring the NIH gods for a miracle ... preferably in the form of billions in funding for the next ten years ...lol

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Alba Azola, MD

@AzolaAlba

3 months

@tmprowell They need to be infected w SARS CoV2 fully recovered

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Alba Azola, MD

@AzolaAlba

2 years

@WailofaTale Happy to talk! As a Latinx I have much to say about the suffering in the undocumented population

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Alba Azola, MD

@AzolaAlba

1 month

@ErinMariLee I’m sorry you had to go through that! There is so much work to be done to educate physicians on #MECFS & Associated Chronic Conditions. I have the opportunity to present on #LongCOVID at Internal JH Medicine Grand Rounds next month🤩 One step at a time we will get there!

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Alba Azola, MD

@AzolaAlba

5 months

A few other pearls: The 2024 NASEM Long COVID Definition does note ME/CFS and POTS, among others, as examples of diagnosable conditions that can be part of the picture of Long COVID. .

A Long COVID Definition: A Chronic, Systemic Disease State with Profound Consequences

Read online, download a free PDF, or order a copy in print or as an eBook.

nap.nationalacademies.org

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Alba Azola, MD

@AzolaAlba

1 month

🚨 New POTS Self-Advocacy Program Alert! Awareness for POTSies has launched a pilot program designed to help those with POTS advocate for themselves effectively. #POTS #SelfAdvocacy #POTSies

Self-Advocacy Training — Awareness for POTSies

www.awarenessforpotsies.org

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Alba Azola, MD

@AzolaAlba

3 years

@edyong209 Thank you for this story! As co director of the post Covid clinic in my academic hospital I struggle with the fact that my best is not good enough for my long Covid patients. We are failing our patients, and there is a lack of urgency of medical community to take action. 1/2

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Alba Azola, MD

@AzolaAlba

1 year

Tomorrow is my last day at Bayview inpatient rehab unit and as co director of the Johns Hopkins Post Acute COVID team. Excited for the future as I step into my new role at the Hopkins Chronic Fatigue Clinic. I wanted to share my goodbye message to my work family 1/

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Alba Azola, MD

@AzolaAlba

1 year

@PutrinoLab So MECFS is a blanket dx but LC is not a blanket dx ? 🤔 Lumping all pw LC in studies without clinically phenotyping them will continue to muddy the science. My clinical lens may be skewing my view. I leave the science to you. I guess we can agree to disagree(;

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Alba Azola, MD

@AzolaAlba

9 months

Learn from the source!! Don't miss Dr Peter Rowe's lecture series on ME/CFS and associated comorbidities hosted by @remissionbiome and @renegaderes

RemissionBiome MECFS/LongCovid Patient-Led Science

@remissionbiome

9 months

We're excited to announce that Peter Rowe, MD will be presenting to the @remissionbiome @renegaderes community on Feb 9 & 16! What’s new in ME/CFS, OI/POTS, CCI, MCAS, and more Sign up now! #MECFS #LongCOVID #CCI #AAI #MEspine #MCAS #hEDS #POTS #TOS

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Alba Azola, MD

@AzolaAlba

2 years

Thank you @ABCNewsLive for raising awareness of the human toll of #LongCovid . Grateful for the opportunity to be able to advocate for the millions of patients suffering in silence.

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Alba Azola, MD

@AzolaAlba

2 years

@MartyMakary However your narrative minimizing LC and poorly understood post viral illnesses to the public will only negatively affect our patients.

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Alba Azola, MD

@AzolaAlba

11 months

@PutrinoLab I give both, U09.9 and G93.32, and also add additional codes for other things we are treating the patient for ie migraines, neuropathy, MCAS, POTS or Autonomic Dysfunction ect…

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Alba Azola, MD

@AzolaAlba

1 year

I am beyond excited to be part of the @LongCOVIDPhysio team😍 I have admired the work of this collective for the past 2 years and the positive impact they have on the #LongCovid space🤩looking forward to contributing my grain of sand and keep the momentum as a healthcare ally!

Long COVID Physio

@LongCOVIDPhysio

1 year

Allied Health Professions (AHP) Committee: @OT_Skiff @AzolaAlba @kirrabrean @CATradrebecca @CovidCareGroup Prof Louise Cummings & Kim Martin & May Lim & Claire Pechaud

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Alba Azola, MD

@AzolaAlba

9 months

@loscharlos @MVGutierrezMD I have had good response in terms of cognitive fatigue, like it widens the window before the brain fog sets in. Here are my slides on Amantadine, 3 different mechanisms of action that are potentially at play.

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Alba Azola, MD

@AzolaAlba

6 months

I am humbled by the opportunity to represent PM&R physicians at the 2024 U.S. Health Care Leadership Summit on Long COVID Rehabilitation.

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Alba Azola, MD

@AzolaAlba

1 month

Hispanic communities are experiencing higher rates of #LongCovid , but many aren’t receiving the care they need. It’s time we address the disparities in healthcare access.” From Dr Linda Martinez at the LC Summit in Chicago #HealthEquity #LongCovidCare #SystemicInequality

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Alba Azola, MD

@AzolaAlba

2 years

Great paper on CPET findings in #LongCovid patients. It is NOT deconditioning!!!! “The findings of this review do not support deconditioning as the primary mechanism of low VO2peak post-COVID-19.”

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Alba Azola, MD

@AzolaAlba

11 months

Brilliant talk by @AgosCasamentoM ! Proud to colaborarte with outstanding neuroscientist elevating the science in the field of Long COVID and MECFS

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Alba Azola, MD

@AzolaAlba

11 months

@ahandvanish Yes, I’m a big fan! We just started using the FUNCAP 27, the shorter version of this questionnaire to assess PEM, and also to assess the PEM experienced after participating in a study.

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Alba Azola, MD

@AzolaAlba

1 month

Star struck! 🤩 so inspired by this women!

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Alba Azola, MD

@AzolaAlba

3 years

Long Covid | Johns Hopkins Post Acute Covid-19 Team (PACT) @Hopkins_PMR @HopkinsPCCM @AnnEkedahl via @YouTube

Long Covid | Johns Hopkins Post Acute Covid-19 Team (PACT)

People with long COVID, or “long-haulers,” are COVID-19 survivors but they have persistent symptoms such as shortness of breath, fatigue, headaches, palpitat...

www.youtube.com

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Alba Azola, MD

@AzolaAlba

2 months

@doctor_zeest Following! What about anesthesia in patient with MCAS?

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Alba Azola, MD

@AzolaAlba

10 months

Long COVID: New Info on Who Is Most Likely to Get It

Fresh research and clinical anecdotes have given experts a much clearer picture of which patients are most likely to develop long COVID.

www.medscape.com

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Alba Azola, MD

@AzolaAlba

10 months

Special thanks to Meghan Swope, Camille Broussard, Renee Swope, @AgosCasamentoM and Peter Rowe for his inspirational leadership! Grateful for our talented extended JH family collaborators and the patients for entrusting us with your care and supporting our work.

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Alba Azola, MD

@AzolaAlba

1 year

@microbeminded2 @AAPMR @HopkinsMedicine We are on the same team! I’m one of many clinicians that work in the trenches helping LC patients one on one. I’m lucky to practice in a setting where I can collaborate with brilliant scientists, and work towards the ultimate goal of finding a cure.

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Alba Azola, MD

@AzolaAlba

10 months

Addressing Long COVID: Advancing Researc... | Senate Committee on Health, Education, Labor and Pensions

Addressing Long COVID: Advancing Research and Improving Patient Care | The U.S. Senate Committee on...

The U.S. Senate Committee on Health, Education, Labor & Pensions

www.help.senate.gov

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Alba Azola, MD

@AzolaAlba

6 months

If you are a person with Long COVID or a caregiver to one, let your voice be heard! Please complete the following questionnaire to inform the government of your experience with SSI.

COVID-19 Longhauler Advocacy Project

@C19LH_Advocacy

6 months

Hello #LongCOVID Team! In 2022, 44% of respondents in a #C19LAP survey said they had applied for #SocialSecurity #Disability . We are re-evaluating the experience of the U.S. #LongCOVID community when it comes to applying for Social Security Disability. We are asking everyone

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Alba Azola, MD

@AzolaAlba

2 years

@AmyMooney145 Thank you for sharing your wisdom and experience! I’m a better provider to my patients because of you☺️

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Alba Azola, MD

@AzolaAlba

2 years

@ItsAngInLA @MVGutierrezMD @AAPMR If you think about the pathophysiology of hyperadrenergic POTS it totally makes sense, we just don’t get taught about POTS in med school. The IV fluids volume expand and prevent the cathecolamine surge that causes the hypertension. Midodrine also works in these patients

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Alba Azola, MD

@AzolaAlba

2 years

This paper was sent to me by a colleague…. feel bullied. This comes on the heels of stating that multiple members of a family having MECFS is a result of learned behavior. There is much work to be done!

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Alba Azola, MD

@AzolaAlba

2 years

Thank you @FrancesSSellers from @washingtonpost for highlighting this important topic! Patients living with #LongCovid are a vulnerable population and need to be warned.

Desperate covid long-haulers turn to costly, unproven treatments

Unproven treatments put patients at risk of potentially harmful health effects as well as having their hopes dashed and their wallets emptied.

www.washingtonpost.com

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Alba Azola, MD

@AzolaAlba

4 years

@ahandvanish I think you have earned an honorary medical degree! You are helping clinicians caring for Covid patients deliver better care. Thank you for all the work that you do!

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Alba Azola, MD

@AzolaAlba

3 years

@DanChapmanDPT @sunsopeningband @LongCOVIDPhysio A key piece on rehab of Long Covid patients with predominant fatigue is to identify those experiencing PEM. If PEM is present is important to give them the tools to understand how to manage their energy envelope and identify triggers and how to avoid them.

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Alba Azola, MD

@AzolaAlba

5 months

@dysclinic I don’t, do you order it? Would love to hear arguments for the clinical utility of the test. I do understand the research value, but do the results lead to actionable readily available treatments?

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