Charity costumer, lover of things comic book, idler, eccentric, and MS sufferer. He/him. Dom. SSC/CNC Some NSFW posts. Everyone deserves equality and love ♿🇪🇺
Looks like Linktree is allowed again, so here's mine - social media, Amazon wishlist, etc. You'll probably not use it, but it's nice to have it all in one place!
1) I'm utterly sick of every government - Labour, Tory, whatever - defining the absolute worth of a person by work. "We'll help people get back to work", "It's important to work", "Everyone should have the goal to return to work", etc.
Please understand:
2)....there are thousands of
#disabled
people like me who cannot work. Whose conditions are permanent, and deleterious enough that we'll never work. Are we worthless? It seems like it. No-one ever mentions support for us, it's always about getting disabled people back to work.
Someone suggested I should cancel my Amazon subscription. All well & good, but being disabled, I use deliveries a helluva lot because I often can't get out. Alexa has saved my bacon when I've fallen and needed to call 999. Some things can be seen as luxuries, but are in fact, not
3). We have lives, you know. We have hopes, dreams, and more. Why do you ignore us, why can't you reassure us you'll not bully, pressure, compel us to do work that we cannot do just to be of any value. To
#Labour
I say this:
Mick Lynch on the BBC this morning was an absolute hero, knocking it out the ballpark. Versatile, articulate and refusing to be led or distracted, just the kind of rep the working class needs!
@RMTunion
4). We've lived in fear for 14 years. Dread of having any support arbitrarily snatched away because we can't work has been a constant comparison. Yet all I've heard from you is the same mantras that we had from the Tories - we'll get you back into work.
A message from a
#disabled
person to all you healthy ableds freaking out over getting sick. Have you tried yoga? Maybe you could meditate COVID-19 away? Or perhaps it's all in your head? Possibly you could pray it away?
Yeah, welcome to our world.
#chronicillness
#COVID
ー19
A thread (tw: suicide)
Dear
@RishiSunak
.
I know you won't read this, but it's important I write it, just to tell you a bit about me.
I'm
#disabled
, with progressive multiple sclerosis, epilepsy, chronic depression & more.
Over 10 years ago I lost my job due to my disability.
@kween_night
This sounds exactly like my job with a major bank. Perfectly accommodating with time off, until I was diagnosed with progressive MS, then put every obstacle in my way, made every excuse to get me to leave. I persevered, until in the end they fired me. Screw 'em.
@Joanna__Hardy
@ladybex1994
As an active dreamer, I took to recording myself. The finest idiocy was me giving a15 minute interview on the validity of cloning dinosaurs, cutting off their heads, glueing them onto headless corpses then reanimating them as a workforce for Aldi.
Coupla things of note re:
#benefits
.
1) The massive proportion of the welfare budget goes on pensions - yet they're not vilified like disabled people.
2) The miniscule amount of benefit fraud (less than 1%)is hugely outweighed by the benefits that could be claimed yet aren't.
I really do despise the term "wheelchair-bound". We're not bound, slaves to our chairs. Would you describe yourself, if abled, as "leg-bound"? Of course not, your legs give you freedom and independence. Well guess what? So do our chairs.
#wheelchair
#disability
@Damoned
Absolutely - we are failing as a society when the vulnerable are used as tokens to be demonised and scapegoated for political gain. We are not a resource to be deployed at whim. We are humans, with lives, loves, feelings, hopes and dreams.
No. Don't ask. My medical conditions are not your concern. If I want to give you more information on my disability, I'll tell you myself - I get enough prying interrogation in what I can or can't do from random strangers at my PIP assessments with the DWP .
#AskDontAssume
I'm a
#disabled
man with
#MS
living alone in a 1 bed flat. I survive on
#benefits
as I can't work. I have to maintain a regular temperature, wash clothes & shower a lot (incontinence) & charge a mobility scooter.
@ShellEnergyHome
are increasing my DD from £69 p/m to £199!
1/3
@GinaCuomo2
"I don't recall <insert character name> using a cane/chair!" Get this all the time when in kit at conventions. And I refuse to stop cosplaying able-bodied characters simply because they're not disabled on screen!
We're citizens of this country, we have a right to be supported by those we placed into power
Be different.
Change.
Care.
And above all, listen to us.
I know you won't read it, but it's important I write it.
As a postscript, in particular to those who are able-bodied or may not be fully aware of the extent to which the vulnerable have suffered under austerity, I'd like to recommend this book by the exceptional
@DrFrancesRyan
.
@Joanna__Hardy
@ladybex1994
The lunacy that I talk is something to behold. Another was me giggling because I'm sailing through the skies with some mice on flying bicycles, as I shout at envious earthbound onlookers.
Christ, listening to Rachel Johnson on
#LBC
saying how bonkers lockdown was is annoying. I shielded for 2 bloody years as a CEV person, & it likely saved my life. Yet I watched people breaking it all the damn time because people like her didn't think it was worth it.
So when I read today of yet further proposed benefit cuts, the terror rises again. We are weak. We are vulnerable. We are an easy target, unheard, unseen by those like yourselves, who will never suffer like us.
So I ask you: help us, don't abuse us. Don't force us into work, then punish us if we can't. Don't use our lives as mere fodder for gaining votes.
Be different. Break the cycle of previous Conservative governments. Don't rip away our meagre security, & care about us instead.
And this is why we disabled people get angry. When we're treated as less important than a suitcase, how do you think it makes us feel?! This is wrong on so many levels...
On
@LNER
1E51 a wheelchair user was not allowed onto the train at Newcastle 1227 because of overcrowding caused by short form. Told to wait 1hr for the next one.
Staff were actively putting luggage into the wheelchair space, instructing others to do so.
I've never told anyone anyone about my suicide attempt, not even my family - but I thought you should know. Every day is spent in anxiety, dreading the snap of the letterbox, the brown envelope from the DWP dropping on the mat, the missive removing my financial lifeline.
3)...terrifies us. We suffered 14 years of demonisation, vilification, scapegoating, and cruelty under the Tories. Yet what we're seeing is a tilt towards the exact same thing from yourselves. Each announcement from the Department for Work & Pensions does nothing to assuage..
2)...mental health issues mean I can't work. I'll never be able to work, the issues I have are complex & insurmountable. And you know what? There's thousands out there like me. So here's the thing - the constant rhetoric about helping working people, forcing people to work...
Many of the problems can be laid at the feet of previous Conservative administrations - the hollowing out of the NHS, the diminished provision of mental health support, the aggressive persecution by the DWP, the demonisation of the disabled & vulnerable.
9) Please, reassure us. Please change the priorities, don't feel you must appease the right-wing voters, the client media.
Change.
Your campaign slogan was one word - "Change" and I had hope,so I ask you - stand by that. You can change our lives.
#LizKendall
announces those on sickness benefits, the disabled, # chronically ill will be forced to work. 14 years of Tory persecution of we disabled & now this? Plus ça change, I guess. Thanks,
@UKLabour
, for destroying any hope we disabled had.
@Keir_Starmer
@leicesterliz
5)...so the response appears to be to change our benefits to vouchers. It's demeaning, impractical, and even dangerous. We actually know how to handle the meagre allowance we get, & it's not spent on fripperies. So saying vouchers would obviate the problem of fraud...
We have suffered. We continue to suffer, more and more everyday. I hold on, I persevere, but there are thousands like me who can't. There are despairing vulnerable people across the country. Some like me, will carry on. Many will not, and will take their own lives.
I was starving, and in danger of losing my flat, so had to apply for benefits. The lengthy forms, the collating of evidence, the interviews, the delays, the suspicious aggression from assessors took their toll, and I ended up overdosing on my meds in an effort to finally...
6)..which - as I'm sure you know - is so miniscule as to be microscopic isn't a solution, it's a sop to prejudices carefully cultivated by the previous Government. We don't need vouchers, our needs are complex and unique to each of us..
4)...the fear things could be different. All we're seeing is the same rhetoric we have for the last 14 years. A case in point: vouchers. A large chunk of the able-bodied population see us as defrauding the public purse to gain money to spend on mobiles, plasma TVs, drink, etc...
8)..lived in fear of every letter that fell on the mat, every telephone call, informing me the safety net was being yanked away. I know I'm not alone.
You have it in your power to change this, to blow away the terror we've lived with for over a decade.
It broke me. I sank into deep depression, & had psychotic breaks. Hallucinations came & went, & I locked myself away, sinking further into the mire of depression, paranoia, & crippling anxiety. I wanted to end my life, & I couldn't get the medical support I needed due to cuts...
..end my life. It failed, and I found myself back in the endless whirl of mental & physical health problems that were now my daily routine.
I am still there. I cannot work, accepted by consultants, doctors & indeed the DWP. I live my days sunk in depression, though like many...
7) We don't need crushing control, draconian threats to force us to work, the likes of which has even caused some of us to even take their own lives in the past. We need reassurance, the correct support, quality of life. Myself, I've...
...in the health service. It was close, finally friends managed to arrange support & pulled me back from the brink. However, my physical condition deteriorated, ending up with me in a wheelchair, incontinent, fatigued, and often barely able to get out of bed.
3/3
This is what we disabled and vulnerable face. I'm terrified. I know people will say "Oh, try doing this" and "You could apply for this", but frankly I'm too scared, tired, angry, and depressed to do all that.
#EnergyCrisis
@SarahThomas1010
Spot on! This that's the phrasing I was trying to (clumsily) articulate - it's the "working people", "hard workers" in every damn pronouncement that makes me feel both worthless and afraid.
@TaraSkurtu
Just two lines from Dylan Thomas:
"Do not go gentle into that good night,
Rage, rage against the dying of the light"
I take it slightly out of context, in both fighting my disability, and combating the injustice in this ever-darkening world.
@fesshole
I love doing this (and 90 minutes is easily doable). I've multiple personalities I use, including the elderly Albert, who loves regaling them with tales of the war, trips to Bognor, and & how his wife Edie keeps putting his suppositories in the wrong way round.
Just been called by the council to say they have a wheelchair accessible flat available! Got to arrange a viewing but sounds ideal - so nervous about the prospect of moving after 17 years. Worried about cost & logistics, I can't pack anything myself, and can't afford movers. Eek!
@Tanni_GT
Utterly, utterly unacceptable! How the hell can people not see how distressing, frustrating, and outright insulting this is? I often hear abled folks say disabled travellers gripe a lot about accessibility, but when this routinely happens, who can blame us?!
@itsmeheythere
I despise my dad bod, though I'm certain it's because I'm conditioned that way by society. As much as I try to combat that in myself, I can't get past the perception (being in a wheelchair doesn't help either). I've only had 1 pic of me taken bare chested in 15 years.
@holyspacemonkey
@bailsmartens
Picked up all the bits to make a set of these a few months ago, just never got round to it. Immediately I floated the idea on FB, ableds started raging "You could hurt us with those! We're only trying to help!" Yeah, that's kinda the point really. (it'd only be discomfort anyway)
@djonesbutchers
As a disabled person, locked in and immuno-compromised, I am the most terrified I've been in my life. Governments are supposed to instil confidence - this one just haunts me with their damn incompetence. Their ineptitude and arrogance is costing lives the lives of people like me.
I've decided to go for it with a full Star Lord cosplay. I had money saved for a holiday last year which never went ahead, and looks like it won't this year. So now I've ordered helmet and blasters - after a hellish year, I need a treat.
The most touching moment of yesterday's Comic-Con? A burly security guard breaking down in tears, saying I was the best cosplay there. Turned out his son is
#disabled
, and had always wanted to costume up at an event, but they'd feared... 1)
It's
#InternationalWheelchairDay
! When I was first advised I'd have to use a
#wheelchair
, it left me frightened, nervous, ashamed, depressed & worried about the future. I was so wrong. It gave me freedom, happiness, and opened so many doors. Don't be afraid if you need one!
@DrFrancesRyan
When it comes to the disabled and vulnerable, they don't give a damn. They never have. For over a decade we've been screaming, unheard, about it, but no-one ever listened. And now, when COVID, might've made us more audible, they dish out earplugs to the general public as we die.
2/3
How am I supposed to afford this?!! That's 2 weeks ESA on one bill! I still have to pay rent, council tax, water rates, broadband & phone, all of which have gone up. I cannot afford all this. I'm wiped out. Maybe I'll stop washing. Or eating. Or possibly existing...
@ArtfulExorcism
Aye - in a Western society, our worth is only dictated by how much we work, and every emphasis is on getting us to do so, not supporting us when we can't.
In the UK it's an attitude particularly prevalent, it's just so dehumanising & dispiriting. 💜
@wonder_cripple
It's kind of a "used to" one, no longer valid now I'm in the wheelchair, but I used to fall asleep standing up. Prop me in a corner, and MS fatigue would just send me off. I fall asleep on the phone mid-sentence, on the loo, everywhere. Fatigue is a real bind!
@SecretDJBook
It was a real outpouring of love & support, and was a joy to be there as part of it.
As a wheelchair user, I'd like to say thanks to all my fellow protesters who kept an eye out for me, helped me navigate & described what I couldn't see.
You truly are a wonderful lot! ❤️♿
@ludawinthesky
A woman once advised me I should eat nothing but chicken, drink only boiled water, and not speak for 4 weeks in order to cure my incurable multiple sclerosis 😂
@gregjudge
@itsaboutbikes
@KatiePennick
Whenever an abled refers to me as "wheelchair-bound" I'll retort by calling them "leg-bound". My chair is no different than your legs, pal. It's what gets me around, giving me freedom and independence.
I've never taken legal action against a company before, but today I engaged a solicitor to tackle one. I'm really, really nervous, but it's got to be done - it's less about damages, more about driving home that disabled guests deserve as much service & provision as abled ones.
@Wolverinetits
A solid follow on the basis of the finest tale of anal misfortune I've read all year! Now the bejewelled burrower has been duly extracted, I wish you a speedy recovery! 😉
Yay! My PIP has increased this year! An extra 75p a week, such largesse will surely help deal with the ever-increasing cost of living for disabled and abled alike.
Incidentally, I wonder what MPs pay rise is this year?
1) CW: Suicide
Many years back, when I was first diagnosed with
#MS
, when I lost my job, my partner, & my home, I came incredibly close to ending everything. I was broken. There was no hope. Gradually I built my life back up - I learned that I was a valid, worthy person.
1) Being
#disabled
is extortionately expensive. An example: the average lifespan of an active daily users
#wheelchair
is 4 years & 4 months. A decent mid-range wheelchair is around £3,000 to £4,000. You can get a secondhand Audi A6 for less. So imagine having to buy a new car...
Anyone who criticises a chronic illness sufferer for using painkillers regularly, can wind their neck in. Try living every day with aches, spikes, wrenching, searing pain, 24/7. If you can take that, only THEN can you criticise. Otherwise, take your tutting and frowning away.
I've said it before & I'll say it again - on behalf of
#wheelchair
users everywhere, if you've a dog & it fouls the pavement PLEASE clean it up! Our hands are right next to our wheels, & ending up with crap all over our palms isn't pleasant (twice today for me).
#disability
2)...he would have trouble doing it (including kiddo himself). After talking to the guard, I kinda restored his faith over worries his kid would be left out - and he vowed they'd all attend next year as attendees...in kit. Ended up in tears myself. Cosplay is for all!
@EmpickaLiesel
Absolutely! Everything I have through my PIP is spent. There's nothing to save, and of course the unpaid care I get from friends & family saves the system a lot.
@DrFrancesRyan
I suspect we're being thrown to the wolves, as its unlikely we disabled & vulnerable are going to be part of the Tory voter demographic. Consequently, our deaths don't matter overmuch, not against being seen to get the economy running again. Or maybe I'm just a cynic.
@DJ_itwasascam
@Mariannelouise
Least worst option, basically. No other party would come within a country mile where I am. Having suffered under a Tory regime for 14 years, my priority was to get them out at all costs. At least there's the faintest, microscopic hope Labour won't be as unceasingly cruel.
@ally_hutch
@Sarahcoombez
@lb_southwark
I'm a council tenant, and my home is kept impeccably clean at all times. It's always, swept, mopped, dusted, tidied, and organised throughout the week, and I do it in a wheelchair no less. Don't tar everyone with the same brush.
Thanks to all who've expressed support and solidarity with my previous post about work and disability.
I'm thinking of you all - remember, you're not alone, and despite whatever your Governments say about you, you are unique, valued, and beautiful. 💜👍♿
@ThisisDavina
If you're going to "clarify" Davina, at least show some contrition & sincerity for what was entirely your error.
Mealy-mouthed platitudes & excuses designed to get you out of a fix come across as precisely what they are - insincere & disingenuous.
It's official, the High Court, in backing the Government have confirmed that in an emergency, my life as a
#disabled
person is worth less than an abled person.
Gosh, I feel so valued - & where's the wider coverage of this, eh?
#Grenfell
#disability
So many responses here that show a lot of ableds really do seem to live in a different universe! I was told not speaking for a month would cure my my MS and epilepsy...
@DrProudman
Kink shaming, eh? Strangulation/erotic asphyxiation is quite a common kink, but those in the BDSM lifestyle consider it a kink to be discussed in minute detail, with appropriate experience, & explicit safe words/signals. We don't go choking partners on a whim - we're responsible.
@Flaminhaystack
Jesus, we men really are a bunch of total f*cking creeps at times. Really sorry you had to suffer this shitstick, but at least you found out what an utter cockwit he is beforehand. Hope you have way better luck next time - and to hell with these cretins.
1) Lots are coming back to me saying their taxes shouldn't pay for others disabled support.
I don't have kids, why should I pay for others education?
Im not a pensioner, why should I pay for pensioners wellbeing?
@StevenMAlderson
Yep. Temperature is single figures in my flat, and I can't afford to put the heating on at all. It's wrecking my body, as my multiple sclerosis cannot handle cold, so I'm lying in bed wearing 2 pairs of socks, thermals, fleece, and a woolly hat. Tory Britain - what a life, eh?