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Kim French Profile
Kim French

@kimfrench0405

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1,364
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1,021
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ALS Warrior...mom of 3.

Illinois, USA
Joined July 2019
Don't wanna be here? Send us removal request.
@kimfrench0405
Kim French
8 months
My ALS community and family , I need support and love right now. My husband of over 19 years has decided he wants a divorce. I am still in shock. ALS tore through and ripped our marriage apart. #fuckALS
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@kimfrench0405
Kim French
2 years
Sometimes Iโ€™m still in shock that I have #ALS itโ€™s like living the painful diagnosis over and over. #ENDALS
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@kimfrench0405
Kim French
7 months
Even though my brother and sister in law make sure thereโ€™s always someone here to take care of me, Iโ€™ve never felt more alone. Iโ€™ve cried so much I physically cannot cry anymore
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@kimfrench0405
Kim French
10 months
Today is my 41st birthday! Fuck you #ALS
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@kimfrench0405
Kim French
2 years
I want to get in my wheelchair and take my bipap and camp out on the steps of the @US_FDA until they approve #NurOwn #ALS
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@kimfrench0405
Kim French
2 years
I was diagnosed on a Friday the 13th. #ENDALS
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@kimfrench0405
Kim French
2 years
Signed my Living Will and DNR today. #als has taken so much from me and my family. #ENDALS
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@kimfrench0405
Kim French
2 years
Today is my oldest baby girlโ€™s 15th birthday I hope Iโ€™m able for many more celebrations #EndALS
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@kimfrench0405
Kim French
2 years
I hate #ALS itโ€™s a big black hole dragging me into the darkness kicking and screaming. Please @DrCaliff_FDA you can help! #NurOwn works
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@kimfrench0405
Kim French
3 years
Dear @BrainstormCell my breathing is declining. My legs grow weaker. I need #nurown now. Please #filetheBLA we need your help
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@kimfrench0405
Kim French
1 year
Today is my 5 year anniversary of my #ALS diagnosis. Tomorrow Iโ€™ll be living on borrowed time but today #ALS can suck it. #ENDALS
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@kimfrench0405
Kim French
2 years
I just donโ€™t want to be sick anymore. #ENDALS @DrCaliff_FDA I donโ€™t want to be a burden any longer
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@kimfrench0405
Kim French
2 years
Just got my Relyvrio one day early. Hereโ€™s hoping to no side effects #ENDALS
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@kimfrench0405
Kim French
3 years
Dear @BrainstormCell @Cylebo please donโ€™t let my fight be in vain #filetheBLA for #NurOwn
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@kimfrench0405
Kim French
1 year
Dear @DrCaliff_FDA I have a fly in my house. Why should you care? Well, I canโ€™t shoo it away because I have #ALS . Itโ€™s absolutely torture. Iโ€™m thinking if Iโ€™d been able to decide whether or not to try #NurOwn when I was diagnosed I could do more than shoo a fly. #NurOwnWorks
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@kimfrench0405
Kim French
2 years
My experience with @synapticure has been nothing but pure excellence. My care coordinator, Crystal has always made me feel # 1 priority. If you have #ALS you need @synapticure and follow @bsw5020 #EndALS
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@kimfrench0405
Kim French
1 year
I did my best #EndALS
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@kimfrench0405
Kim French
1 year
#NurOwn may not help me because itโ€™s too late but it will help some and thatโ€™s worth fighting for @DrCaliff_FDA
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@kimfrench0405
Kim French
2 years
Iโ€™m so effing sick of #ALS @DrCaliff_FDA there is so much suffering and dying. You can help us please. #DyingWaiting #NurOwn #ENDALS
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@kimfrench0405
Kim French
3 years
Dear @BrainstormCell @Cylebo please #filetheBLA for #NurOwn please let us know youโ€™re listening
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@kimfrench0405
Kim French
2 years
I absolutely love @iamalsorg and @synapticure they have been beyond amazing
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@kimfrench0405
Kim French
2 years
Iโ€™m catching a cold. @DrCaliff_FDA do you know how much it is going to suck with #ALS I bet if I had gotten the chance for #nurown months ago it wouldnโ€™t be so hard on my dying body
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@kimfrench0405
Kim French
1 year
Family needs support too. The #ALS monster attacks them physically, mentally and financially too. Letโ€™s #ENDALS @DrCaliff_FDA we need accelerated approval
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@kimfrench0405
Kim French
4 years
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@kimfrench0405
Kim French
2 years
You know what?! Fucking fuck ALS ! #ENDALS
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@kimfrench0405
Kim French
1 year
Sometimes Iโ€™m just ready for the Peace and to ease the burden on my family. Really considering to just starting hospice and begin the process. #ENDALS
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@kimfrench0405
Kim French
2 years
I wish iPhone had an app that could turn your phone into an eye gaze. Iโ€™m not ready to give up my my phone. #Apple #ENDALS @AppStore @TobiiDynavox
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@kimfrench0405
Kim French
3 years
@people You need to run a story about how @US_FDA is refusing all #ALS patients life saving treatments and keep getting victimized by the same org that has benefited millions only to go to payroll and bonuses @als_now @Michell62614519
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@kimfrench0405
Kim French
3 years
You are literally killing me #DyingWaiting @US_FDA @DrWoodcockFDA
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@kimfrench0405
Kim French
1 year
Thank you Brooke
@limpbroozkit
Brooke Eby
1 year
My comments to the FDA leading up to the Nurown advisory committee on 9/27. Iโ€™ll post the link where you can add comments in my bio. #fda #nurown #adcom
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@kimfrench0405
Kim French
1 year
I am noticing that the UK and the US are sharing similarities in gaining access to promising therapies for 100% fatal disease ALS/MND. Why isnโ€™t this world news? @NBCNews @ABC @CNN @MSNBC #EndALS #dyingwaiting
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@kimfrench0405
Kim French
7 months
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@kimfrench0405
Kim French
1 year
This is so incredible! #NurownNext
@iamalsorg
I AM ALS
1 year
Breaking news: The FDA has approved Tofersen for SOD1 ALS! @US_FDA thank you for living up to your promise of regulatory flexibility for ALS. ALS community: YOU made this happen with your relentless advocacy. Remember that. Stay tuned for updates on access to this treatment!
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@kimfrench0405
Kim French
4 years
@sandrac37082124
sandra castillo cano
4 years
We've been begging for Approval of treatments for a year.Many have lost their lives waiting.When are we going to get an answer?STOP!!Treatments NOW!! #AMX0035 & #NUROWN @US_FDA @EMA_News @FDACDERDirector @DrWoodcockFDA @SteveFDA @SKyriakidesEU @vonderleyen @AmylyxPharma @Cylebo
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@kimfrench0405
Kim French
4 years
@PascrellforNJ The passing of #HR8662 to give dying #ALS patients like me a chance to live. We need a chance to survive #DyingWaiting
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@kimfrench0405
Kim French
1 year
@sabrevaya Youโ€™re in Illinois right? Contact the Department of Human Rehabilitative Services (DoHRS) and the state pays for caregivers and even pays you for being @bsw5020 caregiver. I get like 52 hours a week. You can apply online too.
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@kimfrench0405
Kim French
4 years
@HHS_ASH Thank you for acknowledging us. All weโ€™re asking is for you to speak to the President @realDonaldTrump and ask for an #EO for #NurOwn so that we may have a fighting chance to live. Sir, I have three young daughters and a veteran husband watching me die.
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@kimfrench0405
Kim French
2 years
@synapticure is one of the best things to happen to an #ALS patient
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@kimfrench0405
Kim French
3 years
Why do I feel @FDACBER @US_FDA @DrWoodcockFDA just blatantly donโ€™t give a damn about #ALS patients? Maybe I need to just accept the fact that Iโ€™m going to die without a chance for treatment at the hands of the @US_FDA
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@kimfrench0405
Kim French
2 years
#ALS is ripping my family apart #ENDALS
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@kimfrench0405
Kim French
4 years
It seems that the @US_FDA and now @RareDiseases have a vendetta against the #ALS community. What is the problem? I think itโ€™s time we deserve some answers! And supporting action! Our best interest is not a heart when you let innocent ppl die. @FDACommissioner @SteveFDA
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@kimfrench0405
Kim French
1 year
Today the ALS is winning #EndALS I fucking hate this disease
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@kimfrench0405
Kim French
5 years
@als_now
No More Excuses ALS Watchdogs!
5 years
Watch ABC Nightline to find out "if this is real". (Hint: it is) America finally will see why "No More Excuses!" ALS members like Thurman have fought so hard for months! #Thurmantough #ALSplea @realDonaldTrump @FLOTUS @WhiteHouse @VP @CraigReagan2 @ALS
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@kimfrench0405
Kim French
5 years
Iโ€™m dying too, weโ€™re told life-saving treatment is not accessible to us because of red-tape. I feel like the refusal from the #FDA is a blatant definition of murder. Can we get Executive Action now please?!?! @AnnCurry here the story for your show! @WhiteHouse @SenDuckworth
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@kimfrench0405
Kim French
5 years
@FDACommissioner Please do the right thing now and approve #NurOwn . So many lives will be lost by the end of September
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@kimfrench0405
Kim French
5 years
I am asking for assistance in contacting the President to use Executive Order to release the treatment, NurOwn to dying ALS patients. @als_now @POTUS @VP @WhiteHouse @GOP @DNC @realDonaldTrump @SenateFloor @SenDuckworth @SenatorDurbin @FLOTUS @US_FDA @FDACommissioner @HouseFloor
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@kimfrench0405
Kim French
3 years
Today was definitely an ALS day. First, I usually donโ€™t wear my bipap when I nap but today I just needed it. I kept waking up from not breathing. Second, my voice just feels ready to give out. It hurts to talk. #nurown @US_FDA @DrWoodcockFDA @FDACBER @FDACDERDirector #ACTforALS
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@kimfrench0405
Kim French
5 years
@als_now
No More Excuses ALS Watchdogs!
5 years
ALS patient can draw same bow again after 7 months of being unable to! Full story on ABC Nightline coming soon. Can @FDACBER name any approved drugs which have shown similar ability to REVERSE ALS symptoms? No, but but we have with NurOwn at NME. Approve now! #ENDALS #ALS #MND
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@kimfrench0405
Kim French
5 years
I am asking for assistance in contacting the President to use Executive Order to release the treatment, NurOwn to dying ALS patients. @POTUS @realDonaldTrump @VP @FLOTUS @US_FDA @FDACommissioner @FDAMedia @SenateFloor @SenDuckworth @SenatorDurbin @GOP @DNC @PressSec @WhiteHouse
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@kimfrench0405
Kim French
5 years
I think itโ€™s time for an investigation @TodayWithBBB lives are lost daily to @alsassociation and @US_FDA
@als_now
No More Excuses ALS Watchdogs!
5 years
Ah, the old "page not found" trick. But we found it. Whoops. Looks like ALSA DOES fund Phase III trials, just not NurOwn. This is getting ridiculous, people. JUST ADMIT THE MISTAKE AND FIX! People are dying! #ENDALS #ALS #ALSplea @craigreagan2 NO MORE EXCUSES MUCH MORE COMING!
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@kimfrench0405
Kim French
4 years
@US_FDA Yet #NUROWN has been stuck in trials for 10 years
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@kimfrench0405
Kim French
4 years
@US_FDA To date, the @US_FDA has still ignored the cries for help from #theALSCommunity . We are dying! #NurOwn @FDACommissioner @SteveFDA @FDACBER
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@kimfrench0405
Kim French
1 year
Please go โค๏ธ her comment
@limpbroozkit
Brooke Eby
1 year
@MrBeast @MrBeast hear me out- Iโ€™m 34 with a terminal disease called #ALS (donโ€™t I look just like Lou Gehrig?). Letโ€™s get your $ toward a cure for a devastating, underfunded disease that kills someone every 90 minutes. You can be the next #icebucketchallenge .
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@kimfrench0405
Kim French
5 years
#nurown maybe I could pick up my two year old daughter that Iโ€™ve never picked up before! #ALSplea @US_FDA @FDACommissioner @SenDuckworth @FLOTUS @WhiteHouse @realDonaldTrump
@ThurmanTough
Thurman
5 years
Yes I do have ALS. December 2018 I could not pull the bow back. 2 injections NurOwn give me the ability to pull a 50 lbs Bow back.
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@kimfrench0405
Kim French
4 years
@JeffFortenberry
Jeff Fortenberry
4 years
My brother-in-law's death from #ALS connected me to so many courageous persons suffering from this cruel disease. The @US_FDA just shattered hope, not approving the treatment NurOwn because it only helped some. We canโ€™t take much more. Is our government here to help?
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@kimfrench0405
Kim French
5 years
@realDonaldTrump please Sir, I pray and ask with everything I have you see this tweet. Please use #ExecutiveDecision to force the @US_FDA to release the life saving treatment #NurOwn for dying #ALS patients. Please help us.
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@kimfrench0405
Kim French
4 years
@bsw5020 I fight for my daughters
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@kimfrench0405
Kim French
4 years
@SteveFDA #ALS patients have been begging for #NurOwn way before COVID. Can you at least tell us why? Why are you ignoring us? Why wonโ€™t you issue EUA for #NurOwn ? Itโ€™s surpassed the criteria needed.
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@kimfrench0405
Kim French
5 years
@Markbedwell11
Mark bedwell AlS
5 years
@dbellina3 @Loftus @US_FDA NurOwn needs approved now And no more questions asked. There are ALS Pals dying every day and this is unacceptable. We have the right to live so fulfill are right now. Fda U have seen proof that it works
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@kimfrench0405
Kim French
4 years
@SteveFDA Iโ€™m sure these committees would not recommend you ignore the ALS. I do, however, see them urging you to follow your own policy an issue EUA for #Nurown and saving lives.
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@kimfrench0405
Kim French
4 years
@JeffFortenberry @iamalsorg Thank you. This is such a devastating disease
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@kimfrench0405
Kim French
2 years
Hearing the busy sounds from my kitchen. Seeing the excitement of Christmas in my childrenโ€™s eyes. All from the sidelines. Thanks ALS #ENDALS
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@kimfrench0405
Kim French
1 year
@CBSEveningNews @DrLaPook Please do a story about how the @US_FDA is not using accelerated approval of safe and effective therapies in the pipeline. They are literally killing us in the #ALS community. #EndALS
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@kimfrench0405
Kim French
5 years
@als_now
No More Excuses ALS Watchdogs!
5 years
This is f!%king heroic. Hey @FDACommissioner @FDACBER @US_FDA , your call. ALS patient refusing to eat because of your SIX YEAR incompetence. How many will join? Maybe we should do the same over NurOwn, FDA? NO HELP, ALSA? ALS patients are ready to fight. #ALSstarvation #ALS @CNN
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@kimfrench0405
Kim French
2 years
@angeldawnpopp Iโ€™m getting ready to start Relyvrio and put it through my tube. Iโ€™m so worried about the side effects. Iโ€™m so sorry is happening. @DrCaliff_FDA we need #NurOwn
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@kimfrench0405
Kim French
3 years
I also am your constituent please @SenDuckworth cosponser #ACTforALS
@bsw5020
Brian Wallach
3 years
Dear @SenDuckworth , I am an Illinois resident living with ALS. My wife worked on your 1st congressional campaign. We have waited for you to co-sponsor #ACTforALS . To do what you have done so many times before and fight for our veterans and those marginalized by the systemโ€ฆ
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@kimfrench0405
Kim French
4 years
@SteveFDA when will @US_FDA use the same urgency for dying ALS patients? #AskFDA
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Join the Q&A!๐Ÿ‘‡
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@kimfrench0405
Kim French
2 years
@DrCaliff_FDA my thoughts exactly
@jonstew1982
Stew
2 years
Here I sit wondering if this will be my last #Easter with my #family . Without #treatments #ALS patients are always left to wonder. No #NurOwn in my #easterbasket #HeIsRisen #SOS #EndALS @BrainstormCell @Cylebo @DrCaliff_FDA @US_FDA
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@kimfrench0405
Kim French
5 years
@ALSwarriorLeeG
Lee Glenn ๐Ÿ‡บ๐Ÿ‡ธ โ™ฟ ๐Ÿณ๏ธโ€๐ŸŒˆ ๐Ÿฑ ๐ŸŒŠ๐ŸŒŠ๐ŸŒŠ
5 years
Yes, but far too many of us don't have access to this potentially life saving treatment. We are being ignored, and left to die a brutal death. #IamALS #StopALS
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@kimfrench0405
Kim French
5 years
@SuzanneBeers2
Suzanne Beers
5 years
There are Americans who suffer with ALS a devastating disease that ends in death. We need more support from the President. There are companies that can provide cures and hope . Non help we need Brainstorm and their Nurown.
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@kimfrench0405
Kim French
4 years
@SecAzar @CMSGov @HRSAgov When is going to be time for ALS patients? We donโ€™t have time weโ€™re dying too fast. Please approve #NurOwn
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@kimfrench0405
Kim French
2 years
@DrCaliff_FDA @US_FDA @MCERSI Iโ€™m speechless. #NurOwn works! Why does the @US_FDA continually ignore the #ALS community? It has nothing to do with science and more to do with money
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@kimfrench0405
Kim French
4 years
@US_FDA @NIH You have treatments in trials that are working!!! You committed to completely ignoring our pleas to live. @als_now @FDACommissioner @SecAzar @SteveFDA
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@kimfrench0405
Kim French
5 years
@ThurmanTough
Thurman
5 years
@realDonaldTrump We are getting robbed Mr @realDonaldTrump Our Lives is on the line and we need NurOwn for all ALS people.
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@kimfrench0405
Kim French
2 years
@DrCaliff_FDA does your 5 year old feed you? I bet not. Maybe with #NurOwn I can regain the ability to feed myself. #ALS
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@kimfrench0405
Kim French
4 years
@richardmarx Frustrated, see Iโ€™m dying from #ALS and fight daily to gain access to lifesaving treatments stuck in inhumane trials through the @US_FDA . Maybe you can help us? @iamalsorg @als_now
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@kimfrench0405
Kim French
5 years
@DavidSt87034021
David Stone
5 years
Mr. President, I have ALS, looking at going to Mexico or China for stem cell treatment that the greatest medical system in the world cannot supply because the FDA will not approve Nurown based on current phase 3 results. @POTUS @realDonaldTrump @FDACommissioner @bryne @martharoby
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@kimfrench0405
Kim French
5 years
@FDACommissioner @US_FDA would that be #NurOwn ??? You literally hold our lives in your hands!!!
@US_FDA
U.S. FDA
5 years
In our latest #FDAVoices , read about FDAโ€™s five programs aimed at expediting patient access to important drugs that treat serious or life-threatening conditions.
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@kimfrench0405
Kim French
4 years
@SteveFDA Donโ€™t forget others need your attention too. We need #NurOwn now
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@kimfrench0405
Kim French
2 years
This is a long shot but @elonmusk can you use your Twitter platform and your resources to bring awareness and funding for #ALS ? I and thousands more are dying from this horrific disease.
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@kimfrench0405
Kim French
3 years
I canโ€™t wait for #congressionalhearing Thursday. I want the @US_FDA to be held accountable. @FDACBER @DrWoodcockFDA
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@kimfrench0405
Kim French
2 years
I just want to wrap my kids in a hug and tell them itโ€™s going to be ok. #ENDALS
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@kimfrench0405
Kim French
4 years
@SteveFDA When will see what else you and @US_FDA have been working on? #NurOwn
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@kimfrench0405
Kim French
1 year
@DrCaliff_FDA #ALS is not rare, we donโ€™t have time to wait. We need accelerated approval now. We are fighting like hell and begging for our lives. #ENDALS
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@kimfrench0405
Kim French
5 years
Who is held accountable when ALS patients are dying everyday while #NurOwn is stalled in an inhumane double blind placebo phase III trial?
@FDACommissioner
FDA Commissioner
5 years
Today, @TheJusticeDept helped FDA take action against two drug, dietary supplement, and device distributors for violating federal law and putting consumer health at risk.
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@kimfrench0405
Kim French
4 years
@SteveFDA Please remember you have other obligations. Do the right thing approve #NurOwn now
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@kimfrench0405
Kim French
4 years
@GOP @SecAzar Help #ALS patients gain access to promising #NurOwn which has been stuck in @US_FDA trials for more than 10 years. #ALS is 100% fatal.
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@kimfrench0405
Kim French
5 years
@ScottGottliebMD please help dying ALS patients like me we need #NurOwn now please! My young children are watching me die
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