katiana mekka ❤️‍🩹🦠 Profile Banner
katiana mekka ❤️‍🩹🦠 Profile
katiana mekka ❤️‍🩹🦠

@katiamek

1,575
Followers
637
Following
73
Media
2,493
Statuses

26. Former Architecture student and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic

greece
Joined March 2011
Don't wanna be here? Send us removal request.
@katiamek
katiana mekka ❤️‍🩹🦠
2 months
(1) A neurologist came by my house today to review me for disability. He told my nurse there is nothing wrong with me and I choose not to walk or stand up. I literally cried out of pain when he made me stand and I begged him to let me lay down. #mecfs #longcovid
98
274
2K
@katiamek
katiana mekka ❤️‍🩹🦠
11 months
I’m 25. I’m sick with Long Covid since I was 23. Had no prior health issues, I was an athlete and I dreamed about my architecture career. Currently bedbound. Full story: #LongCovid #MyalgicEncephalomyelitis #longcovidgreece
Tweet media one
60
283
1K
@katiamek
katiana mekka ❤️‍🩹🦠
2 months
(2) He didn't care about the reports from the specialists and he told said that it's my "preference" to have the lights closed. Of course he asked me to see a psychiatrist. I'm literally dying and and this is what I went through today. #mecfs #longcovid
8
44
827
@katiamek
katiana mekka ❤️‍🩹🦠
2 months
(3) Oh and he also asked to speak with my parents (who already abuse me and don't believe me all these years). Yet people critisize me for wanting to die.
11
24
694
@katiamek
katiana mekka ❤️‍🩹🦠
2 months
Oh and I'm in Greece. #govgr #longcovidgreece
7
12
435
@katiamek
katiana mekka ❤️‍🩹🦠
7 months
Adam Devine’s health issues….seem familiar ??? #longcovid #mecfs #pwLC #pwME #adamdevine
Tweet media one
24
51
395
@katiamek
katiana mekka ❤️‍🩹🦠
4 months
Tweet media one
5
103
397
@katiamek
katiana mekka ❤️‍🩹🦠
8 months
Anyone with long Covid and hair loss ? I’m shedding like crazy for 2 years now. I’ve lost like 60% of my hair. Did anything help you? #mecfs #longcovid
134
58
348
@katiamek
katiana mekka ❤️‍🩹🦠
16 days
I just heard my mother talking about how they are trying to get me hospitalised without my will. They will use the words of a neurologist who has seen me and totally dismissed me along with a local phychiatrist that he will call. They want to get me involuntary in a hospital.
20
66
330
@katiamek
katiana mekka ❤️‍🩹🦠
17 days
I can't believe I lost her. I lost that girl. I lost myself. Without doing anything wrong. I took care of her. I miss her and I grieve about her everyday. I've lost my life. There is no going back. #pwme #mecfs #υγεια #κοβιντ #longcovidgreece #longcovid
13
37
297
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
(1) An update for anyone caring about my situation. I'm declining a lot. I've had 3 consultations (that harm me of course because I don't have the energy for that) in home with a psychologist just in case she could advocate for me to my father. #mecfs #longcovid #pwme
22
40
236
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
So I'm 98% bedbound. I don't have a doctor. Greece's healthcare system doesn't even care about me. I'm in my 20s, I don't have savings or a husband to help me. And my family doesn't give a shit about me, or abuses me. Is there ANY chance that I will live? #mecfs #pwme #longcovid
24
36
232
@katiamek
katiana mekka ❤️‍🩹🦠
10 months
Don’t even recognise me anymore. Looking back at old pictures is the worse. I hate what has happened to me. I miss myself. #mecfs #longcovid #longcovidgreece
Tweet media one
3
32
227
@katiamek
katiana mekka ❤️‍🩹🦠
9 months
I'm 2 years into severe state of LC and ME. I still don't have a carer. Living in a country does doesn't care about us is one thing but living also in a family that doesn't care is another. I don't think i will survive this. #longcovid #mecfs #longcovidgreece
22
26
225
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
I'm literally dying. I'm at 2% of functionality and I'm all alone in the house. No carer, no help. Family doesn't care, only gaslights. I seriously don't know why to keep trying to survive this. #mecfs #pwme #longcovid
21
36
216
@katiamek
katiana mekka ❤️‍🩹🦠
28 days
I have declined a lot. I have the most severe pressure on my ears. Feels like my brain is about to explode. I wanted to say a huge thank you to all of you for being here with me all this time. It's the only reason I keep holding on. #mecfs #pwme #longcovid
Tweet media one
15
13
202
@katiamek
katiana mekka ❤️‍🩹🦠
4 months
So life gave me 23 years. That was it. I had so many dreams. So much to look forward to. And it wasn't a happy life. It was all about trying to leave my abusive home. In which I am forced to live now. #mecfs #longcovid
13
15
188
@katiamek
katiana mekka ❤️‍🩹🦠
8 months
Today is another day of grieving. Grieving who I was. Don’t know who she is anymore. Glad to have met this girl. She was full of life, full of dreams and much creativity. Hope to bring her back one day. #pwme #pwlongcovid #mecfs #longcovid
Tweet media one
Tweet media two
6
8
182
@katiamek
katiana mekka ❤️‍🩹🦠
7 months
I could never meditate as a long hauler with also severe me/cfs mostly because when I try to “concentrate on my body and breathing” I concentrate MORE on my symptoms (pain, numbness, chest pressure, breathlessness). Am I the only one? #mecfs #longcovid
56
12
173
@katiamek
katiana mekka ❤️‍🩹🦠
7 months
Please just recommend anything that helped you (severe, very severe patients). I need to try something. I'm losing my hopes. I've tried: prednisone, ldn, midodrine, tons of supplements, antihistamines #pwME #pwLC #longcovid #mecfs
75
35
172
@katiamek
katiana mekka ❤️‍🩹🦠
9 months
I’m done. I can’t handle this anymore. Having to deal with the severity of this torturous chronic illness is one thing but having to deal with daily gaslighting and psychological abuse is another. How am I supposed to go through this? #longcovid #mecfs
23
16
170
@katiamek
katiana mekka ❤️‍🩹🦠
2 months
I've become so weak I couldn't even get up to go to the bathroom today. And I have to go through 3 stairs to get there. I can't even stand someone talking to me. Yet nobody helps. I've been sending messages to my parents everyday and they don't even answer. #mecfs #longcovid
14
24
164
@katiamek
katiana mekka ❤️‍🩹🦠
7 months
I don’t want any false hopes. I’m very severe. I have no help, no carer. I’m SURE I also have EDS and many undiagnosed comorbidities. I simply can’t anymore. I barely try to sit and not lay on my bed. I experience severe pain 9/10 every day. #mecfs #longcovid
31
16
158
@katiamek
katiana mekka ❤️‍🩹🦠
17 days
I texted my mother I've been declining and needing immediate help. That I'm dying and they don't care. She replied with an emoji "👍". Now tell me this world isn’t cruel. Ive been rotting . ROTTING here. #mecfs #longcovid #pwme #longcovidgreece
14
19
146
@katiamek
katiana mekka ❤️‍🩹🦠
4 months
I'm at my lowest and I really feel I won't make it. Objectively. I hope this profile becomes the evidence that I was severely ill and I've always tried to live and to fight for advocacy but nobody listened (doctors or parents). #mecfs #pwme #longcovid
16
25
141
@katiamek
katiana mekka ❤️‍🩹🦠
6 months
In the last month I've experienced three times full body paralysis. I am conscious but can't move or speak. Has anyone else experienced this? #mecfs #longcovid
44
19
139
@katiamek
katiana mekka ❤️‍🩹🦠
7 months
Is 1k for an ME Specialist logical?? Am I the only one that finds this enormously pricey? If I need 1k for each appointment how am I supposed to have money left for medication and all the other things I'll need? #mecfs #longcovid
45
13
128
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
I haven't heard a genuine question of "how are you feeling?", "how can I help" from my family in all this time. Never. #pwme #mecfs #longcovid
14
13
130
@katiamek
katiana mekka ❤️‍🩹🦠
27 days
Everyone abandons me. Everyone. Not even doctors want to deal with a very severe case. It's not my fault for having this family or for being so severe. I am only asking for help. #mecfs #pwme #longcovid
7
23
128
@katiamek
katiana mekka ❤️‍🩹🦠
16 days
I have nobody on my side. I don't have my doctor anymore. I don't have anyone here and if they agree they can do this to me. There have been MANY doctors etc. that believe I have nothing and Im perfectly ok. They will kill me #mecfs #longcovid #pwme #abuse
1
17
125
@katiamek
katiana mekka ❤️‍🩹🦠
16 days
I'm shaking. I'm EXTREMELY SEVERE. This will kill me. Don't even think about Millys case. Greece is WAY worse. I have been hospitalised 4 times and gotten so much worse. I just want to die right now. I don't want to experience this.
1
11
126
@katiamek
katiana mekka ❤️‍🩹🦠
16 days
Oh and also: it's my fault that I have me/cfs and long covid because I didn't stay with my family on Christmas day (when I got covid) and God punished me. So she told me "you did this to yourself".
4
8
124
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
My father is threatening me because I talk about the abuse I get on the Internet. I'm really afraid. He threatens to sue and harm people who care about me, believe me and want to help me. I don't have anyone. I'm all alone. Please help. #severeme #longcovid #mecfs
27
34
119
@katiamek
katiana mekka ❤️‍🩹🦠
4 months
That's a photo of me at my favorite place, the summer before I got severely ill. That girl didn't know a thing of what was to come. I am glad I got to know her. Second photo is my everyday life and view. #mecfs #longcovid
Tweet media one
Tweet media two
7
17
119
@katiamek
katiana mekka ❤️‍🩹🦠
6 months
Let's say i had all the money in the world as severe me/cfs and long covid patients. Is there really a good long covid clinic? Is there any place right now that i could go and get the care that i need as a very severe patient? I've been thinking... #mecfs #longcovid
35
20
114
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
My psychologist told me today "you deserve care. You deserve someone to bring you food, clean your room and wash your hair. You deserve to be understood. You deserve some quality of life". Sometimes I forget how many things I don't have... #mecfs #pwme #longcovid
1
16
113
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
(1) Another health/situation update: I've found no ME specialist knowledgable of very severe me to talk to my physician in Greece. My father is being harassing and calling my psychologist all day long to ask her to convince me I have something psychosomatic #MECFS #LONGCOVID
10
24
110
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
Please can any organisation from Europe help me? I am extremely severe and i live in a neglecting and abusive environment! #mecfs #pwme #longcovid
10
55
109
@katiamek
katiana mekka ❤️‍🩹🦠
1 month
(1) A convo between my Father and the Nurse who comes only for 4hrs/day after a very serious anaphylactic shock I had, due to mcas : Nurse: Please don't wear so much cologne in the whole house. Katiana is very sensitive and has extreme reactions #longcovid #mecfs #pwme
9
7
110
@katiamek
katiana mekka ❤️‍🩹🦠
10 months
I feel like I’m at my last days…..I feel like death is looking at me everyday. I’ve been dealing with long covid, me/cfs for 22 months now. I’m bedbound and suffering all day. My father thinks I’m psycho and keeps gaslighting me everyday. I need this to end. #longcovid #mecfs
10
12
106
@katiamek
katiana mekka ❤️‍🩹🦠
24 days
(1) I haven't been able to try medications for a long time because every day I'm declining due to the abuse, I'm alone almost all day long and I don't have a supportive environment. #mecfs #pwme #longcovid
8
28
106
@katiamek
katiana mekka ❤️‍🩹🦠
4 months
Please tell me that full leg numbness and paralysis like feeling is part of the ME and Long covid. I can barely move my hands. More days like that are occurring. Anyone else? #mecfs #longcovid
36
15
103
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
A 22 year old died of me/cfs. And doctors have told me to be patient, have postitve thinking and that I'm overreacting. When I'm 98% bedbound. My condolences to the family. I'm sorry for this world. #mecfs #longcovid #pwme
@MECFS_BW
ME/CFS-Netzwerk Baden-Württemberg
3 months
Unser tief empfundenes Beileid an die Familie und Freunde #MEAwarenessday #MECFS
Tweet media one
75
120
463
2
18
103
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
This is so close to me. It's my favourite place and I used to consider it usual to sit over there. Through years and years. And now I can't even look out of my window. #mecfs #longcovid #pwme
Tweet media one
3
12
102
@katiamek
katiana mekka ❤️‍🩹🦠
2 months
I just want to live. #pwme #mecfs
5
8
103
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
I don't see a reason to live right now, to be honest. It would be really helpful to have family who loves me and endure all this for them but that doesn't exist. I simply live to endure and suffer when everything gets worse. #mecfs #pwme #longcovid
19
4
102
@katiamek
katiana mekka ❤️‍🩹🦠
2 months
@itsallsuccess Thank you but unfortunately I'm in Greece. We don't have disability attorneys here.
3
3
102
@katiamek
katiana mekka ❤️‍🩹🦠
10 months
I’m getting worse everyday. I feel like I’ve been poisoned or something. I can’t even talk to someone. My brain feels like it’s going to explode. Pressure,tinnitus,extreme constant pain, burning pain, no help. This is hell. #longcovid #longcovidgreece
9
12
97
@katiamek
katiana mekka ❤️‍🩹🦠
16 days
Before I got sick with severe logn covid and me/cfs, I never thought I would cry for help to medical professionals and get dismissed. And I never thought anyone would don't interfere with a case when the patient is being abused and disbelieved. #mecfs #pwme #longcovid
3
22
97
@katiamek
katiana mekka ❤️‍🩹🦠
19 days
Watching other people going on with their lives, knowing I was part of it and watching my family killing me and everyone abandoning me. That's all I do. And I can't stop it. It's like living your death everyday and watching everyone go on. #mecfs #pwme #longcovid
3
12
95
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
My father is calling my psychologist everyday. He is sending her misinformation about me/cfs needing exercise and good psychology. He is telling her he won't take a carer if I don't push myself. Im trapped in this hell forever until death. #pwme #mecfs #longcovid
15
20
95
@katiamek
katiana mekka ❤️‍🩹🦠
4 months
How many of you have constant tinnitus, skull sounds? #mecfs #longcovid
41
5
95
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
(13) A huge thank you to all the poeple who are trying to find wayd to help me now and for a long time. You know who you are. You're the reason I'm still alive and have 1% of hope. I'm so grateful for you and I wish I can give 10x more back to you some day ❤️ #mecfs #pwme
2
4
93
@katiamek
katiana mekka ❤️‍🩹🦠
7 months
@AlexSprackland If I hadn’t listened to that cardiologist who told me to “get back to exercising” and if I hadn’t pushed myself so much, maybe I wouldn’t be here today. I wish I had the knowledge I have now.😔
3
2
89
@katiamek
katiana mekka ❤️‍🩹🦠
6 months
@alexandrite113 My father does that too all the time. And he talks to doctors behind my back. I think it's a big factor to why they gaslight me immediate.
3
1
89
@katiamek
katiana mekka ❤️‍🩹🦠
2 months
We had another fight today -abusive parents. In the same fight I heard the sentences "I understand your illnesses" and “go to work” . I am dangerously declining, I’m barely able to speak, I need 24h care and I was suggested to get to work. #mecfs #pwme
2
9
88
@katiamek
katiana mekka ❤️‍🩹🦠
8 months
I just took a shower. Sitting. I bended over just for my hair. Apart from everything else, I have full body spasms and tremors for over 30 minutes now. I can’t walk straight. My spine is like it’s being electrocuted. This is reality. #mecfs #longcovid
10
11
84
@katiamek
katiana mekka ❤️‍🩹🦠
2 months
How am I supposed to deal with the fact that I'm watching and experiencing myself dying slowly while also being abused? #mecfs #severeme #longcovid #pwme
4
10
86
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
My father just came into my room, no mask on, wearing heavy perfume. I am already in the edge of dying, he made me have an mcas reaction. The picture is the "food" I've had for the day. I can't even eat these. I've been left alone all day or with 0 care. #mecfs #pwme #longcovid
Tweet media one
12
9
86
@katiamek
katiana mekka ❤️‍🩹🦠
4 months
I've been so severe in the last 8 months I literally don't know what day or month it is. I spend all my days in a loop of suffering with some moments I have some kind of consciousness enough to try to eat and use the restroom. #mecfs #longcovid #pwme
7
11
82
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
(4)...because social services would probably take my fathers side and involuntarily hospitalise me as a psychiatric case. The only physician who knows about my situation is in a different city and doesn't seem to understand the urgent need for a CARER above everything.
1
4
80
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
(2) The psychologist doesn't have enough knowledge about severe me but she was understanding and believing in me. My father keeps sending her messages with articles that talk about how people with me/cfs should exercise and have a psychological problem.
1
4
81
@katiamek
katiana mekka ❤️‍🩹🦠
18 days
The truth is I'm so severe I can't even cry. I can't even react to the everyday abuse and gaslighting. I can't even act somehow. Get out of this place. Not even get out at the streets. This is where I'm going to die and everybody is watching. #mecfs #longcovid #pwme
5
14
78
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
(5) He tries to push me into getting hospitalised to try IVIG when I tell him Im so severe I can't even talk most of the times and I have SO many symptoms. I'm trying to make him understand I need a carer and advocate FIRSTLY because being with my father AND...
1
4
77
@katiamek
katiana mekka ❤️‍🩹🦠
4 months
Anyone else? My eyelids are super swollen and red, everyday. I also have really dry eyes, itchiness, drooping and other things. I've been to the opthalmologist numerous times. #mecfs #pwme #longcovid
Tweet media one
38
10
76
@katiamek
katiana mekka ❤️‍🩹🦠
15 days
Apart from threatening to involuntary hospitalise me , my mother today accused me of doing this to myself (gettin sick) because i chose to not spend christmas with them when i contracted covid. She told me you did this to yourself and god punished you. #mecfs #longcovid #pwme
13
6
78
@katiamek
katiana mekka ❤️‍🩹🦠
4 months
I've posted a new update to my funding. I should have noted "I'm literally dying" but I guess that's not appropriate. If you can help in any way, please help. Thank you all for the support, this community is all I have ❤️ #mecfs #pwme
4
56
73
@katiamek
katiana mekka ❤️‍🩹🦠
4 months
I used to go to my uni (6+ hours), go out, cook, study for uni, work and have a social life. Like EVERYDAY. And now I can barely speak for a few minutes or seconds and I don’t even know what day it is because I remember and live an hour with difficulty. #pwme #mecfs #longcovid
4
6
74
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
(3) She doesn't know what to do because he keeps yelling at her when she tries to advocate for me. She told me he is really angry and believes most of my problems are psychological. She doesn't know what to do and she also doesn't want to get social services involved.
1
6
74
@katiamek
katiana mekka ❤️‍🩹🦠
4 months
She thought she would become an architect. 😔 I'm tired and more than furious seeing lives getting destroyed. #pwme #mecfs #longcovid
Tweet media one
@ProperChels34
Josh
4 months
Hey kid! Remember all those hopes and dreams you had, how full of life and happy you were? Yeah well bad news your life is over in your mid 20s, sorry!
Tweet media one
22
18
209
2
11
74
@katiamek
katiana mekka ❤️‍🩹🦠
29 days
Would people support me through a patreon in which a friend and co-patient of mine will upload weekly or monthly long covid related comics? I need to somehow raise a lot more money to get out of this abusive situation. #pwme #mecfs #longcovid
7
41
73
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
(12) I have lost nearly all of my hope. I've been battling and advocating for me EVERYDAY in the last 2 years. I can't do this anymore. It's always my word against his. No paper, no me specialist, no documentary helps, because he just doesn't want to believe me.
2
3
72
@katiamek
katiana mekka ❤️‍🩹🦠
6 months
(1) I've been threatened with involunta hospitalization by my father due to my ME/CFS condition. He doesn't understand the severity of the illness and i have no care. An expert from our patient association warned me about the lack of recognition for these.. #mecfs #greece
7
19
72
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
(7) So I'm more than afraid now because yesterday the psychologist actually told me she doesn't know what to do with the situation since my father is in complete denial, didn't even care about Dr Levines letter and tries to find doctors who will gaslight me
1
4
68
@katiamek
katiana mekka ❤️‍🩹🦠
6 months
Another great parenting. My father asked me today "so this is the life you CHOSE to live?" Yeah I guess I didn't have anything better to do #mecfs #longcovid
9
5
69
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
I trully respect and understand your decision Leurah. Here with you ❤️😔 WE’RE FUCKING DYING AND YOU PEOPLE DO FUCKING NOTHING. This is not fair for any human being. To suffer that much and get through gaslighting and neglecting at once. #mecfs #pwme #longcovid
3
15
69
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
(8) so apparently I have no care, no doctor who is willing to advocate and nobody else from family to care about me and advocate for me. My father's "opinion" will never change because he is a narcissist and he simply doesn't want to realise he needs to care for me
1
4
67
@katiamek
katiana mekka ❤️‍🩹🦠
10 months
Today marks 22 months since my first infection with Covid-19. I don't even recognise me anymore. Severe me/cfs and long covid, dysautonomia, pots, mcas. I don't have a single pleasure in my day. Only suffering. When does it stop? #LongCovid #longcovidgreece #mecfs
5
8
66
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
(9) These are not even all the details but I'm currently at probably 2% of this chart in a house with a narcissist, having a lot of undiagnosed comorbidities, no proper doctor near me and no allies here with me apart from the psychologist who is also scared about my father.
Tweet media one
1
1
64
@katiamek
katiana mekka ❤️‍🩹🦠
7 months
@healingfromlc I'm constantly in pain, i feel like i'm boiling, i'm on fire, i've had the worst hangover of my life, i'm dying and i've survived a torturus massacre. Also my brain feels like poisoned, super warm like i have fever. Food is torture.
6
3
64
@katiamek
katiana mekka ❤️‍🩹🦠
1 month
(2) F: I don't care. I won't stop putting on my perfumes. End of talking to you. N: please can you at least wear them outside or at your car? F: if you continue talking you will not have someone to pay you. I have to SURVIVE and NOT decline in here. #pwme #longcovid #mecfs
2
0
64
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
(6) in a hospital that I've been already to twice, will only make things worse. I need care and a person who i can trust to be my voice and care for me first. That's my last email to this physician (He wasnt adresing the lack of care ). (Auto translated)
Tweet media one
1
2
62
@katiamek
katiana mekka ❤️‍🩹🦠
2 months
Does anyone else can't breathe through nose? As if it's clogged but it's not? It's like I'm suffocating but my oxygen levels are fine. Is it something seen in me/cfs patients? Could it be inflammation? I always had a deviated septum but I could still breathe. #mecfs #longcovid
23
4
60
@katiamek
katiana mekka ❤️‍🩹🦠
5 months
I genuinely don't think I can survive this. Not alone. And I'm eternally alone. #mecfs #longcovid
13
2
61
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
(10) He is also more pissef of because of me talking about my situation online. I don't think he means twitter because he doesn't have Twitter. But nevertheless his ego is everywhere. He keeps gaslighting and saying how much he cares and loves me and that people know he provides
1
1
62
@katiamek
katiana mekka ❤️‍🩹🦠
7 months
Anyone else is nocturnal here? #mecfs #longcovid
19
1
62
@katiamek
katiana mekka ❤️‍🩹🦠
1 month
When you can't even reply "yes" or "no", when you can't even advocate for yourself. When everyone treats you worse than dead and they continue to abuse you. That's worse than death. #longcovid #longcovidgreece #mecfs #pwme
2
9
60
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
I used to be so energetic and so into life. I had so many passions and dreams to go for. On the left is a photo of me at Tate Modern museum of London in. Just before my degree. On the right, the reality I live in for the last 2,5 years. #pwme #mecfs #longcovid #MEAwarenessDay
Tweet media one
Tweet media two
2
11
59
@katiamek
katiana mekka ❤️‍🩹🦠
6 months
It's my bday in 2 days. I'll be 26, no insurance, bedbound since 23, severe me/cfs and long covid and im living with abusive parents. Please share and help if you can. Thank you for being here and keeping me sane 🙏❤️ #mecfs #longcovid #pwme #pwLC
7
32
59
@katiamek
katiana mekka ❤️‍🩹🦠
10 months
I was a CrossFitter too! I was an athlete since 10 years old. I was in immense health before Covid-19 hit me. I had no prior health issues. Now i'm housebound and bedbound and i've been like this for the last 22 months. I can't even have a decent conversation. #LongCovid
@agy_lena
Agy Lena 🏳️‍🌈🇵🇱🇬🇧
10 months
Boris Johnson thinks diseases like mine are bollocks. Imagine calling cancer or MS bollocks… But it’s ok when it’s #LongCovid or #MECFS . Yep, I lost my bright future cos you know, suddenly I’ve become lazy & prefer to be housebound/22hrs a day horizontal than live #Covidinquiry
Tweet media one
14
66
419
2
15
61
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
When I was hospitalised the neurologist was mocking me telling me "I want to skip uni". Then 2 psychiatrists came and diagnosed me with somatic disorder and they all talked to my parents making me seem crazy...we shouldn't go through these things. #mecfs #pwme #longcovid
@TheChronicColab
@TheChronicCollaboration
3 months
URGENT UPDATE #SaveCarlasLife Psychiatrists are some of the most narcissistic, toxic people going. It's all suddenly kicked off today #ExposeMENow WATCH:
21
62
176
4
13
61
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
Since my father denies the severity of my situation, the lack of therapies and the fact that I'm dying and my mother had severe psychiatric issues Ive continously messaged my aunt who I used to be really close with. (1)
9
4
57
@katiamek
katiana mekka ❤️‍🩹🦠
2 months
I have severe jaw issues since having long covid and me/cfs. I didn't have them before. This makes me wonder. But I can't get an evaluation for my jaw. And I feel it's connected to CCI stuff. This is so weird. #pwme #mecfs #longcovid
Tweet media one
Tweet media two
16
7
60
@katiamek
katiana mekka ❤️‍🩹🦠
6 months
How many of you have brain,head,skull issues amongst everything? My head feels inflamed, always in pain and ready to explode. Feels like it weights 100kg. It burns and hurts so bad I can't even move. I call it crash and brain inflammation but I'm not sure. #mecfs #longcovid
18
4
59
@katiamek
katiana mekka ❤️‍🩹🦠
2 months
If I had a caring family I would've never ended up at my 2% of functionality. And if there weren't so many gaslighting doctors they probably would've believed me. I don't want to accept I'm just waiting for my death. #mecfs #longcovid #severeme
3
10
58
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
(11) He is and was a manipulator his whole life and he uses what he does (have payed for gaslighting doctors in the past or give me a house and food, whatever food that may be) to get people to praise him and to feel good about himself.
1
1
58
@katiamek
katiana mekka ❤️‍🩹🦠
3 months
The situation is so bad I want to start writing goodbye notes for my friends and I can't even tolerate that #pwme #severeme #mecfs #longcovid
5
8
58
@katiamek
katiana mekka ❤️‍🩹🦠
4 months
Is there any European ME group/organisation I can talk to for mistreatment from parents and severe gaslighting that leads to my deterioration? I'm extremely severe. #mecfs #longcovid
5
23
57